A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives / Marisa PETRUCCELLI in Journal of Autism and Developmental Disorders, 52-2 (February 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673 Titre : A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives Type de document : texte imprimé Auteurs : Marisa PETRUCCELLI, Auteur ; Leah RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. Christopher SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Thomas I. MACKIE, Auteur Article en page(s) : p.647-673 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Parents  Pediatricians  Autism spectrum disorder  Harms  Healthcare providers  Qualitative methods  Screening  first-stage screeners used in this study. He conducts research related to this  instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but  receives no royalties. She is also co-creator of the BITSEA, which is one of the two  first-stage screeners used in this study. Dr. Carter receives royalties on the sale  of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors  report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455 [article] A Taxonomy of Reported Harms in Pediatric Autism Spectrum Disorder Screening: Provider and Parent Perspectives [texte imprimé] / Marisa PETRUCCELLI, Auteur ; Leah RAMELLA, Auteur ; Ana J. SCHAEFER, Auteur ; R. Christopher SHELDRICK, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Sarabeth BRODER-FINGERT, Auteur ; Thomas I. MACKIE, Auteur . - p.647-673. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-2 (February 2022) . - p.647-673 Mots-clés : Autism Spectrum Disorder/diagnosis  Child  Child, Preschool  Early Intervention, Educational  Humans  Mass Screening  Parents  Pediatricians  Autism spectrum disorder  Harms  Healthcare providers  Qualitative methods  Screening  first-stage screeners used in this study. He conducts research related to this  instrument but receives no royalties. Dr. Carter is the cocreator of the POSI but  receives no royalties. She is also co-creator of the BITSEA, which is one of the two  first-stage screeners used in this study. Dr. Carter receives royalties on the sale  of the BITSEA, which is distributed by MAPI Research Trust. The remaining co-authors  report no conflicts of interest. Index. décimale : PER Périodiques Résumé : The U.S. Preventive Services Task Force (USPSTF) report on screening for Autism Spectrum Disorder (ASD) highlighted the need for research that examines the harms potentially associated with screening so as to assess the overall net benefit of universal screening. In response, this study engages qualitative, semi-structured interviews to generate a taxonomy outlining potential harms reported by parents and providers (pediatricians and Early Intervention providers) with experience in screening young children for ASD. Potential harms emerged including: physical, psychological, social, logistical/financial, opportunity cost, attrition, and exacerbation of non-targeted disparities. Respondents reported harms being experienced by the toddlers, parents, and providers. The harms reported highlight opportunities for providers to offer resources that mitigate the potential for these unintended consequences. En ligne : http://dx.doi.org/10.1007/s10803-021-04964-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=455

Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation / Thomas I. MACKIE in Journal of Autism and Developmental Disorders, 51-3 (March 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.906-921 Titre : Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation Type de document : texte imprimé Auteurs : Thomas I. MACKIE, Auteur ; Ana J. SCHAEFER, Auteur ; Leah RAMELLA, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Manuel E. JIMENEZ, Auteur ; Angel FETTIG, Auteur ; R. Christopher SHELDRICK, Auteur Article en page(s) : p.906-921 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Parental perception  Qualitative  Screening Index. décimale : PER Périodiques Résumé : A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making. En ligne : http://dx.doi.org/10.1007/s10803-020-04502-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443 [article] Understanding How Parents Make Meaning of Their Child's Behaviors During Screening for Autism Spectrum Disorders: A Longitudinal Qualitative Investigation [texte imprimé] / Thomas I. MACKIE, Auteur ; Ana J. SCHAEFER, Auteur ; Leah RAMELLA, Auteur ; Alice S. CARTER, Auteur ; Abbey EISENHOWER, Auteur ; Manuel E. JIMENEZ, Auteur ; Angel FETTIG, Auteur ; R. Christopher SHELDRICK, Auteur . - p.906-921. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.906-921 Mots-clés : Autism spectrum disorders  Parental perception  Qualitative  Screening Index. décimale : PER Périodiques Résumé : A family's journey in understanding their child's behaviors in relation to Autism Spectrum Disorders (ASD) frequently begins with screening. This study aimed to characterize the interpretive processes that unfold for parents. We employed longitudinal interviews with 19 families engaged in a community-based multi-stage screening protocol. Parents participated in 1-6 interviews dependent upon children's length of engagement in the screening protocol; data were analyzed through modified grounded theory. Parents who moved towards understanding their child's behaviors as ASD expressed (1) sensitization to ASD symptoms, (2) differentiation from other developmental conditions, and (3) use of the ASD diagnosis to explain the etiology of concerning behaviors. Identifying interpretive processes involved during ASD screening provides new opportunities for shared decision-making. En ligne : http://dx.doi.org/10.1007/s10803-020-04502-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443

What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention / R. Christopher SHELDRICK in Journal of Autism and Developmental Disorders, 49-6 (June 2019)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2304-2319 Titre : What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention Type de document : texte imprimé Auteurs : R. Christopher SHELDRICK, Auteur ; Elizabeth FRENETTE, Auteur ; Juan Diego VERA, Auteur ; Thomas I. MACKIE, Auteur ; Frances MARTINEZ-PEDRAZA, Auteur ; Noah HOCH, Auteur ; Abbey EISENHOWER, Auteur ; Angel FETTIG, Auteur ; Alice S. CARTER, Auteur Article en page(s) : p.2304-2319 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Costs  Decision-making  Process assessment  Screening Index. décimale : PER Périodiques Résumé : U.S. guidelines for detecting autism emphasize screening and also incorporate clinical judgment. However, most research focuses on the former. Among 1,654 children participating in a multi-stage screening protocol for autism, we used mixed methods to evaluate: (1) the effectiveness of a clinical decision rule that encouraged further assessment based not only on positive screening results, but also on parent or provider concern, and (2) the influence of shared decision-making on screening administration. Referrals based on concern alone were cost-effective in the current study, and reported concerns were stronger predictors than positive screens of time-to-complete referrals. Qualitative analyses suggest a dynamic relationship between parents' concerns, providers' concerns, and screening results that is central to facilitating shared decision-making and influencing diagnostic assessment. En ligne : https://dx.doi.org/10.1007/s10803-019-03913-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400 [article] What Drives Detection and Diagnosis of Autism Spectrum Disorder? Looking Under the Hood of a Multi-stage Screening Process in Early Intervention [texte imprimé] / R. Christopher SHELDRICK, Auteur ; Elizabeth FRENETTE, Auteur ; Juan Diego VERA, Auteur ; Thomas I. MACKIE, Auteur ; Frances MARTINEZ-PEDRAZA, Auteur ; Noah HOCH, Auteur ; Abbey EISENHOWER, Auteur ; Angel FETTIG, Auteur ; Alice S. CARTER, Auteur . - p.2304-2319. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 49-6 (June 2019) . - p.2304-2319 Mots-clés : Autism spectrum disorder  Costs  Decision-making  Process assessment  Screening Index. décimale : PER Périodiques Résumé : U.S. guidelines for detecting autism emphasize screening and also incorporate clinical judgment. However, most research focuses on the former. Among 1,654 children participating in a multi-stage screening protocol for autism, we used mixed methods to evaluate: (1) the effectiveness of a clinical decision rule that encouraged further assessment based not only on positive screening results, but also on parent or provider concern, and (2) the influence of shared decision-making on screening administration. Referrals based on concern alone were cost-effective in the current study, and reported concerns were stronger predictors than positive screens of time-to-complete referrals. Qualitative analyses suggest a dynamic relationship between parents' concerns, providers' concerns, and screening results that is central to facilitating shared decision-making and influencing diagnostic assessment. En ligne : https://dx.doi.org/10.1007/s10803-019-03913-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=400

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