Age of Initial Identification of Autism Spectrum Disorder in a Diverse Urban Sample / Jennifer HALL-LANDE in Journal of Autism and Developmental Disorders, 51-3 (March 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.798-803 Titre : Age of Initial Identification of Autism Spectrum Disorder in a Diverse Urban Sample Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer HALL-LANDE, Auteur ; Amy N. ESLER, Auteur ; Amy HEWITT, Auteur ; Amy L. GUNTY, Auteur Article en page(s) : p.798-803 Langues : Anglais (eng) Mots-clés : Age of initial identification  Autism prevalence  Autism spectrum disorder  Developmental delays  Diverse communities  Early diagnosis  Somali Index. décimale : PER Périodiques Résumé : This paper examines age of autism spectrum disorder (ASD) identification and related factors in a diverse urban sample, focusing on ASD identification in the East African Somali community. The overall average age of initial ASD identification was 4.8 years. Somali children received an initial clinical diagnosis of Autistic Disorder later than White children, and Somali children diagnosed with ASD born outside of Minnesota (MN) received their first comprehensive evaluation later than Somali children diagnosed with ASD born in MN. Most children had noted developmental concerns before age 3, with no significant racial or ethnic differences in those concerns. The current study contributes to a limited number of studies on early ASD identification in culturally and linguistically diverse populations. En ligne : http://dx.doi.org/10.1007/s10803-018-3763-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443 [article] Age of Initial Identification of Autism Spectrum Disorder in a Diverse Urban Sample [Texte imprimé et/ou numérique] / Jennifer HALL-LANDE, Auteur ; Amy N. ESLER, Auteur ; Amy HEWITT, Auteur ; Amy L. GUNTY, Auteur . - p.798-803. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-3 (March 2021) . - p.798-803 Mots-clés : Age of initial identification  Autism prevalence  Autism spectrum disorder  Developmental delays  Diverse communities  Early diagnosis  Somali Index. décimale : PER Périodiques Résumé : This paper examines age of autism spectrum disorder (ASD) identification and related factors in a diverse urban sample, focusing on ASD identification in the East African Somali community. The overall average age of initial ASD identification was 4.8 years. Somali children received an initial clinical diagnosis of Autistic Disorder later than White children, and Somali children diagnosed with ASD born outside of Minnesota (MN) received their first comprehensive evaluation later than Somali children diagnosed with ASD born in MN. Most children had noted developmental concerns before age 3, with no significant racial or ethnic differences in those concerns. The current study contributes to a limited number of studies on early ASD identification in culturally and linguistically diverse populations. En ligne : http://dx.doi.org/10.1007/s10803-018-3763-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=443

Autism Spectrum Disorder (ASD) Prevalence in Somali and Non-Somali Children / Amy HEWITT in Journal of Autism and Developmental Disorders, 46-8 (August 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2599-2608 Titre : Autism Spectrum Disorder (ASD) Prevalence in Somali and Non-Somali Children Type de document : Texte imprimé et/ou numérique Auteurs : Amy HEWITT, Auteur ; Jennifer HALL-LANDE, Auteur ; Kristin HAMRE, Auteur ; Amy N. ESLER, Auteur ; Judy PUNYKO, Auteur ; Joe REICHLE, Auteur ; Anab A. GULAID, Auteur Article en page(s) : p.2599-2608 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Intellectual disability  Autism prevalence  Somali Index. décimale : PER Périodiques Résumé : The current study presents results from an autism spectrum disorder (ASD) public health surveillance project conducted in Minneapolis. The study was designed to compare ASD prevalence in Somali children (ages 7–9) to that of non-Somali children. The study adapted methodology used by the Centers for Disease Control and Prevention’s Autism and Developmental Disabilities Monitoring Network. Results indicated that Somali (1 in 32) and White (1 in 36) children were about equally likely to be identified with ASD, but more likely to be identified with ASD than Black and Hispanic children. Somali children with ASD were significantly more likely to have an intellectual disability than children with ASD in all other racial and ethnic groups. En ligne : http://dx.doi.org/10.1007/s10803-016-2793-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290 [article] Autism Spectrum Disorder (ASD) Prevalence in Somali and Non-Somali Children [Texte imprimé et/ou numérique] / Amy HEWITT, Auteur ; Jennifer HALL-LANDE, Auteur ; Kristin HAMRE, Auteur ; Amy N. ESLER, Auteur ; Judy PUNYKO, Auteur ; Joe REICHLE, Auteur ; Anab A. GULAID, Auteur . - p.2599-2608. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-8 (August 2016) . - p.2599-2608 Mots-clés : Autism spectrum disorder  Intellectual disability  Autism prevalence  Somali Index. décimale : PER Périodiques Résumé : The current study presents results from an autism spectrum disorder (ASD) public health surveillance project conducted in Minneapolis. The study was designed to compare ASD prevalence in Somali children (ages 7–9) to that of non-Somali children. The study adapted methodology used by the Centers for Disease Control and Prevention’s Autism and Developmental Disabilities Monitoring Network. Results indicated that Somali (1 in 32) and White (1 in 36) children were about equally likely to be identified with ASD, but more likely to be identified with ASD than Black and Hispanic children. Somali children with ASD were significantly more likely to have an intellectual disability than children with ASD in all other racial and ethnic groups. En ligne : http://dx.doi.org/10.1007/s10803-016-2793-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=290

Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states / Amy S. HEWITT in Research in Autism Spectrum Disorders, 6-2 (April-June 2012)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 6-2 (April-June 2012) . - p.741-751 Titre : Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states Type de document : Texte imprimé et/ou numérique Auteurs : Amy S. HEWITT, Auteur ; Roger J. STANCLIFFE, Auteur ; Annie JOHNSON SIREK, Auteur ; Jennifer HALL-LANDE, Auteur ; Sarah TAUB, Auteur ; Joshua ENGLER, Auteur ; Julie BERSHADSKY, Auteur ; Jon FORTUNE, Auteur ; Charles R. MOSELEY, Auteur Année de publication : 2012 Article en page(s) : p.741-751 Langues : Anglais (eng) Mots-clés : Intellectual disabilities  Autism spectrum disorder Index. décimale : PER Périodiques Résumé : There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and developmental disabilities (IDD) adult service systems. This study presents descriptive data on a random sample of 12,382 individual users of adult IDD services from 25 states that included 1002 individuals with an autism diagnosis (8.1%). Data are provided on demographic characteristics, diagnoses, communication and relationship status for adults with autism/ASD and a comparison of these findings for IDD service users who have other diagnoses. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.10.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=150 [article] Characteristics of adults with autism spectrum disorder who use adult developmental disability services: Results from 25 US states [Texte imprimé et/ou numérique] / Amy S. HEWITT, Auteur ; Roger J. STANCLIFFE, Auteur ; Annie JOHNSON SIREK, Auteur ; Jennifer HALL-LANDE, Auteur ; Sarah TAUB, Auteur ; Joshua ENGLER, Auteur ; Julie BERSHADSKY, Auteur ; Jon FORTUNE, Auteur ; Charles R. MOSELEY, Auteur . - 2012 . - p.741-751. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 6-2 (April-June 2012) . - p.741-751 Mots-clés : Intellectual disabilities  Autism spectrum disorder Index. décimale : PER Périodiques Résumé : There is a significant increase in the prevalence of autism and autism spectrum disorders (ASD) in children with estimates now reaching 1 in 110 children in the United States. Families report difficulties in finding services for their young and adult children. Many adults with ASD receive services and supports through state intellectual and developmental disabilities (IDD) adult service systems. This study presents descriptive data on a random sample of 12,382 individual users of adult IDD services from 25 states that included 1002 individuals with an autism diagnosis (8.1%). Data are provided on demographic characteristics, diagnoses, communication and relationship status for adults with autism/ASD and a comparison of these findings for IDD service users who have other diagnoses. En ligne : http://dx.doi.org/10.1016/j.rasd.2011.10.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=150

Characteristics of adults with autism spectrum disorder who use residential services and supports through adult developmental disability services in the United States / Amy S. HEWITT in Research in Autism Spectrum Disorders, 34 (February 2017)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 34 (February 2017) . - p.1-9 Titre : Characteristics of adults with autism spectrum disorder who use residential services and supports through adult developmental disability services in the United States Type de document : Texte imprimé et/ou numérique Auteurs : Amy S. HEWITT, Auteur ; Roger J. STANCLIFFE, Auteur ; Jennifer HALL-LANDE, Auteur ; Derek NORD, Auteur ; Sandra L. PETTINGELL, Auteur ; Kristin HAMRE, Auteur ; Libby HALLAS-MUCHOW, Auteur Article en page(s) : p.1-9 Langues : Anglais (eng) Mots-clés : Intellectual disabilities  ID  Autism  Residential services  ASD  Community living  National Core Indicators Index. décimale : PER Périodiques Résumé : AbstractBackground Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered through state intellectual and developmental disabilities (IDD) service systems. Method A random sample of 11,947 individual users of adult IDD services from 25 states that included 1,459 individuals with an autism diagnosis was analyzed for this study looking at demographic characteristics and living arrangements. Comparisons were made between adults with and without ASD who receive services through the IDD service system. Results Overall, individuals with an ASD diagnosis were younger on average, had a higher percentage of males, and had higher percentages of the No Intellectual Disabilities (ID) and Severe ID categories compared to individuals without an ASD diagnosis. There was a significant association between the type of living arrangement and ASD status with a higher percentage of participants with ASD living in a family member’s home, but a lower percentage of people with ASD living in agency apartments, in their own home or an “other” living arrangement. However, with age, gender, and level of ID and challenging behavior taken into account, people with ASD had 29% higher odds of living in a family member’s home but 42% lower odds of living in their own home when compared to people with other developmental disabilities who received residential services through state IDD service systems. Conclusions There are key differences in access and utilization of residential services between people with ASD and people without ASD. While state developmental disabilities systems are serving individuals with ASD there are potential influences of state policies regarding ASD eligibility for various residential services. Implications for future research are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.11.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298 [article] Characteristics of adults with autism spectrum disorder who use residential services and supports through adult developmental disability services in the United States [Texte imprimé et/ou numérique] / Amy S. HEWITT, Auteur ; Roger J. STANCLIFFE, Auteur ; Jennifer HALL-LANDE, Auteur ; Derek NORD, Auteur ; Sandra L. PETTINGELL, Auteur ; Kristin HAMRE, Auteur ; Libby HALLAS-MUCHOW, Auteur . - p.1-9. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 34 (February 2017) . - p.1-9 Mots-clés : Intellectual disabilities  ID  Autism  Residential services  ASD  Community living  National Core Indicators Index. décimale : PER Périodiques Résumé : AbstractBackground Many children and adults with Autism Spectrum Disorder (ASD) need services and support across their lifespans. Currently many residential and community living supports are delivered through state intellectual and developmental disabilities (IDD) service systems. Method A random sample of 11,947 individual users of adult IDD services from 25 states that included 1,459 individuals with an autism diagnosis was analyzed for this study looking at demographic characteristics and living arrangements. Comparisons were made between adults with and without ASD who receive services through the IDD service system. Results Overall, individuals with an ASD diagnosis were younger on average, had a higher percentage of males, and had higher percentages of the No Intellectual Disabilities (ID) and Severe ID categories compared to individuals without an ASD diagnosis. There was a significant association between the type of living arrangement and ASD status with a higher percentage of participants with ASD living in a family member’s home, but a lower percentage of people with ASD living in agency apartments, in their own home or an “other” living arrangement. However, with age, gender, and level of ID and challenging behavior taken into account, people with ASD had 29% higher odds of living in a family member’s home but 42% lower odds of living in their own home when compared to people with other developmental disabilities who received residential services through state IDD service systems. Conclusions There are key differences in access and utilization of residential services between people with ASD and people without ASD. While state developmental disabilities systems are serving individuals with ASD there are potential influences of state policies regarding ASD eligibility for various residential services. Implications for future research are discussed. En ligne : http://dx.doi.org/10.1016/j.rasd.2016.11.007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=298

Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors / Lisa D. WIGGINS in Autism Research, 13-3 (March 2020)  

Public ISBD [article]  inAutism Research > 13-3 (March 2020) . - p.464-473 Titre : Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors Type de document : Texte imprimé et/ou numérique Auteurs : Lisa D. WIGGINS, Auteur ; Maureen DURKIN, Auteur ; Amy ESLER, Auteur ; Li-Ching LEE, Auteur ; Walter ZAHORODNY, Auteur ; Catherine RICE, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Nicole F. DOWLING, Auteur ; Jennifer HALL-LANDE, Auteur ; Michael J. MORRIER, Auteur ; Deborah CHRISTENSEN, Auteur ; Josephine SHENOUDA, Auteur ; Jon BAIO, Auteur Article en page(s) : p.464-473 Langues : Anglais (eng) Mots-clés : autism  diagnosis  disparities  surveillance Index. décimale : PER Périodiques Résumé : The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records and (b) evaluate differences in demographic, individual, and service factors between children with and without a documented ASD diagnosis. ASD surveillance was conducted in selected areas of Arizona, Arkansas, Colorado, Georgia, Maryland, Minnesota, Missouri, New Jersey, North Carolina, Tennessee, and Wisconsin. Children were defined as having ASD if sufficient social and behavioral deficits and/or an ASD diagnosis were noted in health and/or education records. Among 4,498 children, 1,135 (25%) had ASD indicators without having an ASD diagnosis. Of those 1,135 children without a documented ASD diagnosis, 628 (55%) were not known to receive ASD services in public school. Factors associated with not having a clinical diagnosis of ASD were non-White race, no intellectual disability, older age at first developmental concern, older age at first developmental evaluation, special education eligibility other than ASD, and need for fewer supports. These results highlight the importance of reducing disparities in the diagnosis of children with ASD characteristics so that appropriate interventions can be promoted across communities. Autism Res 2020, 13: 464-473. (c) 2019 International Society for AutismResearch,Wiley Periodicals, Inc. LAY SUMMARY: Children who did not have a clinical diagnosis of autism spectrum disorder (ASD) documented in health or education records were more likely to be non-White and have fewer developmental problems than children with a clinical diagnosis of ASD. They were brought to the attention of healthcare providers at older ages and needed fewer supports than children with a clinical diagnosis of ASD. All children with ASD symptoms who meet diagnostic criteria should be given a clinical diagnosis so they can receive treatment specific to their needs. En ligne : http://dx.doi.org/10.1002/aur.2255 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421 [article] Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors [Texte imprimé et/ou numérique] / Lisa D. WIGGINS, Auteur ; Maureen DURKIN, Auteur ; Amy ESLER, Auteur ; Li-Ching LEE, Auteur ; Walter ZAHORODNY, Auteur ; Catherine RICE, Auteur ; Marshalyn YEARGIN-ALLSOPP, Auteur ; Nicole F. DOWLING, Auteur ; Jennifer HALL-LANDE, Auteur ; Michael J. MORRIER, Auteur ; Deborah CHRISTENSEN, Auteur ; Josephine SHENOUDA, Auteur ; Jon BAIO, Auteur . - p.464-473. Langues : Anglais (eng) in Autism Research > 13-3 (March 2020) . - p.464-473 Mots-clés : autism  diagnosis  disparities  surveillance Index. décimale : PER Périodiques Résumé : The objectives of our study were to (a) report how many children met an autism spectrum disorder (ASD) surveillance definition but had no clinical diagnosis of ASD in health or education records and (b) evaluate differences in demographic, individual, and service factors between children with and without a documented ASD diagnosis. ASD surveillance was conducted in selected areas of Arizona, Arkansas, Colorado, Georgia, Maryland, Minnesota, Missouri, New Jersey, North Carolina, Tennessee, and Wisconsin. Children were defined as having ASD if sufficient social and behavioral deficits and/or an ASD diagnosis were noted in health and/or education records. Among 4,498 children, 1,135 (25%) had ASD indicators without having an ASD diagnosis. Of those 1,135 children without a documented ASD diagnosis, 628 (55%) were not known to receive ASD services in public school. Factors associated with not having a clinical diagnosis of ASD were non-White race, no intellectual disability, older age at first developmental concern, older age at first developmental evaluation, special education eligibility other than ASD, and need for fewer supports. These results highlight the importance of reducing disparities in the diagnosis of children with ASD characteristics so that appropriate interventions can be promoted across communities. Autism Res 2020, 13: 464-473. (c) 2019 International Society for AutismResearch,Wiley Periodicals, Inc. LAY SUMMARY: Children who did not have a clinical diagnosis of autism spectrum disorder (ASD) documented in health or education records were more likely to be non-White and have fewer developmental problems than children with a clinical diagnosis of ASD. They were brought to the attention of healthcare providers at older ages and needed fewer supports than children with a clinical diagnosis of ASD. All children with ASD symptoms who meet diagnostic criteria should be given a clinical diagnosis so they can receive treatment specific to their needs. En ligne : http://dx.doi.org/10.1002/aur.2255 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=421

Involvement of Children With Autism Spectrum Disorder (ASD) in the Child Protection System / Jennifer HALL-LANDE in Focus on Autism and Other Developmental Disabilities, 30-4 (December 2015)  

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Patterns of Special Education Eligibility and Age of First Autism Spectrum Disorder (ASD) Identification Among US Children with ASD / Amy N. ESLER in Journal of Autism and Developmental Disorders, 53-5 (May 2023)  

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Phenotypic Characteristics of Autism Spectrum Disorder in a Diverse Sample of Somali and Other Children / Amy N. ESLER in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

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Regional differences in autism and intellectual disability risk associated with cesarean section delivery / Deborah A. BILDER in Autism Research, 17-11 (November 2024)  

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The Intersection of Systemic, Child, and Evaluation Factors in the Prediction of Autism Special Education Eligibility; Examining the Role of Race and Ethnicity / Bryn HARRIS ; Jennifer HALL-LANDE ; Amy ESLER in Journal of Autism and Developmental Disorders, 54-9 (September 2024)  

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