Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners / Laura F. LEWIS in Autism, 27-2 (February 2023)  

Public ISBD [article]  inAutism > 27-2 (February 2023) . - p.321-330 Titre : Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners Type de document : texte imprimé Auteurs : Laura F. LEWIS, Auteur Article en page(s) : p.321-330 Langues : Anglais (eng) Mots-clés : autism  intimate partners  qualitative  romantic relationships  social media Index. décimale : PER Périodiques Résumé : Approximately one-third of autistics report intimate relationship experience, but few studies have explored neuromixed relationships from the perspectives of non-autistic partners. Non-autistic partners increasingly use peer-led online groups to seek support. The purpose of this study was to capture a theory that reflects the basic social experience of individuals who use these support groups using classic Glaserian grounded theory methodology. Online interviews were conducted with 162 non-autistics who believed that they were in neuromixed relationships. Data were concurrently collected and analyzed using constant comparative analysis. Participants described varying views of autism, from a difference to a disorder, which defined the context of their relationships. Five relationship profiles emerged-mutual partnership: viewed partners as = companionship: viewed partners as friends but lacked a deeper connection; caregiving: viewed partners as dependents and compared relationships to parent “child dyads; detachment: viewed relationships as broken beyond repair and isolated selves from partners; and discriminatory: believed and circulated negative generalizations about autism. Many participants who were dissatisfied in their relationships shared that their partners were not formally evaluated and did not self-identify as autistic. Future research should explore ways that autism labels are (mis)applied by the general public based on negative stereotypes about autism. En ligne : http://dx.doi.org/10.1177/13623613221097850 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493 [article] Autism as a difference or a disorder? Exploring the views of individuals who use peer-led online support groups for autistic partners [texte imprimé] / Laura F. LEWIS, Auteur . - p.321-330. Langues : Anglais (eng) in Autism > 27-2 (February 2023) . - p.321-330 Mots-clés : autism  intimate partners  qualitative  romantic relationships  social media Index. décimale : PER Périodiques Résumé : Approximately one-third of autistics report intimate relationship experience, but few studies have explored neuromixed relationships from the perspectives of non-autistic partners. Non-autistic partners increasingly use peer-led online groups to seek support. The purpose of this study was to capture a theory that reflects the basic social experience of individuals who use these support groups using classic Glaserian grounded theory methodology. Online interviews were conducted with 162 non-autistics who believed that they were in neuromixed relationships. Data were concurrently collected and analyzed using constant comparative analysis. Participants described varying views of autism, from a difference to a disorder, which defined the context of their relationships. Five relationship profiles emerged-mutual partnership: viewed partners as = companionship: viewed partners as friends but lacked a deeper connection; caregiving: viewed partners as dependents and compared relationships to parent “child dyads; detachment: viewed relationships as broken beyond repair and isolated selves from partners; and discriminatory: believed and circulated negative generalizations about autism. Many participants who were dissatisfied in their relationships shared that their partners were not formally evaluated and did not self-identify as autistic. Future research should explore ways that autism labels are (mis)applied by the general public based on negative stereotypes about autism. En ligne : http://dx.doi.org/10.1177/13623613221097850 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=493

A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults / Laura F. LEWIS in Journal of Autism and Developmental Disorders, 47-8 (August 2017)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 47-8 (August 2017) . - p.2410-2424 Titre : A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults Type de document : texte imprimé Auteurs : Laura F. LEWIS, Auteur Article en page(s) : p.2410-2424 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adult  Mixed method  Diagnosis  Self-diagnosis  Barriers Index. décimale : PER Périodiques Résumé : Delayed diagnosis of autism spectrum disorder (ASD) into adulthood is common, and self-diagnosis is a growing phenomenon. This mixed methods study aimed to explore barriers to formal diagnosis of ASD in adults. In a qualitative strand, secondary analysis of data on the experiences of 114 individuals who were self-diagnosed or formally diagnosed with ASD in adulthood was used to identify barriers. In a quantitative strand, 665 individuals who were self-diagnosed or formally diagnosed in adulthood were surveyed online to examine incidence and severity of barriers. Fear of not being believed by professionals was identified as the most frequently occurring and most severe barrier. Professionals must strategize to build trust with individuals with ASD, particularly when examining the accuracy of self-diagnosis. En ligne : https://doi.org/10.1007/s10803-017-3168-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=314 [article] A Mixed Methods Study of Barriers to Formal Diagnosis of Autism Spectrum Disorder in Adults [texte imprimé] / Laura F. LEWIS, Auteur . - p.2410-2424. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 47-8 (August 2017) . - p.2410-2424 Mots-clés : Autism spectrum disorder  Adult  Mixed method  Diagnosis  Self-diagnosis  Barriers Index. décimale : PER Périodiques Résumé : Delayed diagnosis of autism spectrum disorder (ASD) into adulthood is common, and self-diagnosis is a growing phenomenon. This mixed methods study aimed to explore barriers to formal diagnosis of ASD in adults. In a qualitative strand, secondary analysis of data on the experiences of 114 individuals who were self-diagnosed or formally diagnosed with ASD in adulthood was used to identify barriers. In a quantitative strand, 665 individuals who were self-diagnosed or formally diagnosed in adulthood were surveyed online to examine incidence and severity of barriers. Fear of not being believed by professionals was identified as the most frequently occurring and most severe barrier. Professionals must strategize to build trust with individuals with ASD, particularly when examining the accuracy of self-diagnosis. En ligne : https://doi.org/10.1007/s10803-017-3168-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=314

"Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations / Laura F. LEWIS in Journal of Autism and Developmental Disorders, 51-7 (July 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2324-2337 Titre : "Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations Type de document : texte imprimé Auteurs : Laura F. LEWIS, Auteur ; Caroline WARD, Auteur ; Noah JARVIS, Auteur ; Eleni CAWLEY, Auteur Article en page(s) : p.2324-2337 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/psychology  Communication  Female  Humans  Interpersonal Relations  Male  Middle Aged  Qualitative Research  Self Concept  Sexual Behavior/psychology  Sexual and Gender Minorities/psychology  Social Isolation/psychology  Young Adult  Intimacy  Lgbtq?+?  Phenomenology  Qualitative  Sexual relationships Index. décimale : PER Périodiques Résumé : Autistics are more likely than neurotypicals to be gay, lesbian, bisexual, asexual, and other sexual orientations. Autistics and sexual minorities represent populations at high risk for depression, anxiety, and suicidality. Little is known about the experiences of individuals living at this intersection. In this phenomenology, 67 individuals who identified as autistic sexual minorities participated in online interviews to describe the meaning of their experiences. Six themes emerged, including: self-acceptance is a journey; autistic traits complicate self-identification of sexual orientation; social and sensory stressors affect sexual expression; feeling misunderstood and isolated; challenges finding mutually satisfying relationships; and difficulty recognizing and communicating sexual needs. Autistic sexual minorities experience a "double minority" status that complicates identity formation and increases vulnerability in sexual relationships. En ligne : http://dx.doi.org/10.1007/s10803-020-04696-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] "Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations [texte imprimé] / Laura F. LEWIS, Auteur ; Caroline WARD, Auteur ; Noah JARVIS, Auteur ; Eleni CAWLEY, Auteur . - p.2324-2337. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2324-2337 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/psychology  Communication  Female  Humans  Interpersonal Relations  Male  Middle Aged  Qualitative Research  Self Concept  Sexual Behavior/psychology  Sexual and Gender Minorities/psychology  Social Isolation/psychology  Young Adult  Intimacy  Lgbtq?+?  Phenomenology  Qualitative  Sexual relationships Index. décimale : PER Périodiques Résumé : Autistics are more likely than neurotypicals to be gay, lesbian, bisexual, asexual, and other sexual orientations. Autistics and sexual minorities represent populations at high risk for depression, anxiety, and suicidality. Little is known about the experiences of individuals living at this intersection. In this phenomenology, 67 individuals who identified as autistic sexual minorities participated in online interviews to describe the meaning of their experiences. Six themes emerged, including: self-acceptance is a journey; autistic traits complicate self-identification of sexual orientation; social and sensory stressors affect sexual expression; feeling misunderstood and isolated; challenges finding mutually satisfying relationships; and difficulty recognizing and communicating sexual needs. Autistic sexual minorities experience a "double minority" status that complicates identity formation and increases vulnerability in sexual relationships. En ligne : http://dx.doi.org/10.1007/s10803-020-04696-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

The Development and Preliminary Psychometric Evaluation of the Theory of Mind Inventory: Self Report-Adult (ToMI:SR-Adult) / Tiffany L. HUTCHINS in Journal of Autism and Developmental Disorders, 51-6 (June 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-6 (June 2021) . - p.1839-1851 Titre : The Development and Preliminary Psychometric Evaluation of the Theory of Mind Inventory: Self Report-Adult (ToMI:SR-Adult) Type de document : texte imprimé Auteurs : Tiffany L. HUTCHINS, Auteur ; Laura F. LEWIS, Auteur ; Patricia A. PRELOCK, Auteur ; Ashley BRIEN, Auteur Article en page(s) : p.1839-1851 Langues : Anglais (eng) Mots-clés : Adult  Autistic Disorder/psychology  Humans  Male  Personality Inventory/standards  Psychometrics  Reproducibility of Results  Self Report/standards  Social Cognition  Theory of Mind  Young Adult  Assessment  Autism  Self-report  Social cognition  Theory of mind Index. décimale : PER Périodiques Résumé : This study describes the development and psychometric evaluation of a new self-report measure of social cognition: the Theory of Mind Inventory:Self-report-Adult (ToMI:SR-Adult). Adults with autism (or a suspicion of autism; n = 111) and typically developing adults (n = 109) completed a demographic questionnaire and the ToMI:SR-Adult online. Both quantitative and qualitative self-reports of one's own theory of mind functioning were collected. The ToMI:SR-Adult performed well under all examinations of reliability and validity (internal consistency, accuracy of classification, contrasting-groups). The qualitative data confirmed impressions of validity and revealed that the adults in our sample had high levels of self-insight regarding their own theory of mind. The ToMI:SR-Adult is offered as a promising research and clinical tool for the assessment of social cognition in adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04654-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] The Development and Preliminary Psychometric Evaluation of the Theory of Mind Inventory: Self Report-Adult (ToMI:SR-Adult) [texte imprimé] / Tiffany L. HUTCHINS, Auteur ; Laura F. LEWIS, Auteur ; Patricia A. PRELOCK, Auteur ; Ashley BRIEN, Auteur . - p.1839-1851. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-6 (June 2021) . - p.1839-1851 Mots-clés : Adult  Autistic Disorder/psychology  Humans  Male  Personality Inventory/standards  Psychometrics  Reproducibility of Results  Self Report/standards  Social Cognition  Theory of Mind  Young Adult  Assessment  Autism  Self-report  Social cognition  Theory of mind Index. décimale : PER Périodiques Résumé : This study describes the development and psychometric evaluation of a new self-report measure of social cognition: the Theory of Mind Inventory:Self-report-Adult (ToMI:SR-Adult). Adults with autism (or a suspicion of autism; n = 111) and typically developing adults (n = 109) completed a demographic questionnaire and the ToMI:SR-Adult online. Both quantitative and qualitative self-reports of one's own theory of mind functioning were collected. The ToMI:SR-Adult performed well under all examinations of reliability and validity (internal consistency, accuracy of classification, contrasting-groups). The qualitative data confirmed impressions of validity and revealed that the adults in our sample had high levels of self-insight regarding their own theory of mind. The ToMI:SR-Adult is offered as a promising research and clinical tool for the assessment of social cognition in adults. En ligne : http://dx.doi.org/10.1007/s10803-020-04654-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

The lived experience of meltdowns for autistic adults / Laura F. LEWIS in Autism, 27-6 (August 2023)  

Public ISBD [article]  inAutism > 27-6 (August 2023) . - p.1817-1825 Titre : The lived experience of meltdowns for autistic adults Type de document : texte imprimé Auteurs : Laura F. LEWIS, Auteur ; Kailey STEVENS, Auteur Article en page(s) : p.1817-1825 Langues : Anglais (eng) Mots-clés : autism;challenging behavior;meltdown;qualitative;tantrum Index. décimale : PER Périodiques Résumé : Autistic meltdowns have been explored from the perspectives of parents, but there is a paucity of research on the experience of meltdowns from the autistic perspective. Little is known about how adults experience these events. In this descriptive phenomenological study, we conducted online interviews with 32 autistic adults on the experience of having a meltdown. Data were analyzed using Colaizzi?s seven-step method. Six themes emerged from data that captured the essence of meltdowns, including feeling overwhelmed by informational, sensory, social, or emotional stressors; experiencing extreme emotions, such as anger, sadness, and fear; losing logic, including challenges with thinking and memory; grasping for self-control, in which participants felt out of touch with themselves; finding a release for emotions, often described as an "explosion" of external behaviors or self-harm; and minimizing social, emotional, or physical harm by avoiding triggers or self-isolating when possible. Findings highlight the painful and distressing internalized experience of meltdowns beyond behavioral characteristics. Participants shared examples of internal meltdowns, in which external characteristics of meltdowns were camouflaged. Participants also suggested that meltdowns may serve a functional role in regulating emotions and making one?s voice heard. Meltdowns are diverse experiences that hold different meaning to different people.Lay abstractThere is not a lot known about what it feels like for autistic people to have a meltdown. Past research has focused on what meltdowns are like for parents and what meltdowns look like from the outside without understanding what it is like for the person having the meltdown. We asked 32 autistic adults about what it is like for them to have a meltdown. We asked them to tell us about their thoughts and feelings about having a meltdown. Then, we looked for themes in their responses that summarized the meltdown experience. Our findings showed that meltdowns hold different meaning to different people. During a meltdown, we found that most autistics described feeling overwhelmed by information, senses, and social and emotional stress. They often felt extreme emotions, such as anger, sadness, and fear, and had trouble with thinking and memory during the meltdown. Participants described trying to stay in control of themselves, often feeling like they were not themselves during meltdowns. They described the meltdown as a way of letting go of or releasing the extreme emotions they felt. Participants tried to stay away from things or people that might trigger a meltdown or tried to make sure they were alone if they felt a meltdown may be coming as a way of avoiding harm-including harm to their bodies, their emotions, and their relationships. These findings offer an important look into what it is like for autistic adults to have meltdowns from their own point of view. En ligne : http://dx.doi.org/10.1177/13623613221145783 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509 [article] The lived experience of meltdowns for autistic adults [texte imprimé] / Laura F. LEWIS, Auteur ; Kailey STEVENS, Auteur . - p.1817-1825. Langues : Anglais (eng) in Autism > 27-6 (August 2023) . - p.1817-1825 Mots-clés : autism;challenging behavior;meltdown;qualitative;tantrum Index. décimale : PER Périodiques Résumé : Autistic meltdowns have been explored from the perspectives of parents, but there is a paucity of research on the experience of meltdowns from the autistic perspective. Little is known about how adults experience these events. In this descriptive phenomenological study, we conducted online interviews with 32 autistic adults on the experience of having a meltdown. Data were analyzed using Colaizzi?s seven-step method. Six themes emerged from data that captured the essence of meltdowns, including feeling overwhelmed by informational, sensory, social, or emotional stressors; experiencing extreme emotions, such as anger, sadness, and fear; losing logic, including challenges with thinking and memory; grasping for self-control, in which participants felt out of touch with themselves; finding a release for emotions, often described as an "explosion" of external behaviors or self-harm; and minimizing social, emotional, or physical harm by avoiding triggers or self-isolating when possible. Findings highlight the painful and distressing internalized experience of meltdowns beyond behavioral characteristics. Participants shared examples of internal meltdowns, in which external characteristics of meltdowns were camouflaged. Participants also suggested that meltdowns may serve a functional role in regulating emotions and making one?s voice heard. Meltdowns are diverse experiences that hold different meaning to different people.Lay abstractThere is not a lot known about what it feels like for autistic people to have a meltdown. Past research has focused on what meltdowns are like for parents and what meltdowns look like from the outside without understanding what it is like for the person having the meltdown. We asked 32 autistic adults about what it is like for them to have a meltdown. We asked them to tell us about their thoughts and feelings about having a meltdown. Then, we looked for themes in their responses that summarized the meltdown experience. Our findings showed that meltdowns hold different meaning to different people. During a meltdown, we found that most autistics described feeling overwhelmed by information, senses, and social and emotional stress. They often felt extreme emotions, such as anger, sadness, and fear, and had trouble with thinking and memory during the meltdown. Participants described trying to stay in control of themselves, often feeling like they were not themselves during meltdowns. They described the meltdown as a way of letting go of or releasing the extreme emotions they felt. Participants tried to stay away from things or people that might trigger a meltdown or tried to make sure they were alone if they felt a meltdown may be coming as a way of avoiding harm-including harm to their bodies, their emotions, and their relationships. These findings offer an important look into what it is like for autistic adults to have meltdowns from their own point of view. En ligne : http://dx.doi.org/10.1177/13623613221145783 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=509

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