Brief Report: Developmental Trajectories of Adaptive Behavior in Children and Adolescents with ASD / A. T. MEYER in Journal of Autism and Developmental Disorders, 48-8 (August 2018)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2870-2878 Titre : Brief Report: Developmental Trajectories of Adaptive Behavior in Children and Adolescents with ASD Type de document : Texte imprimé et/ou numérique Auteurs : A. T. MEYER, Auteur ; Patrick S. POWELL, Auteur ; N. BUTERA, Auteur ; M. R. KLINGER, Auteur ; L. G. KLINGER, Auteur Article en page(s) : p.2870-2878 Langues : Anglais (eng) Mots-clés : Adaptive behavior  Autism  Developmental trajectories Index. décimale : PER Périodiques Résumé : Research suggests that individuals with autism spectrum disorder (ASD) have significant difficulties with adaptive behavior skills including daily living and functional communication skills. Few studies have examined the developmental trajectory of adaptive behavior across childhood and adolescence. The present study examined longitudinal trajectories of adaptive behavior in a community-based clinic sample of 186 individuals with ASD. The overall pattern indicated an initial increase in adaptive behavior during early childhood followed by a plateau in skills during adolescence for individuals of all IQ groups. Given the importance of adaptive behavior for employment and quality of life, this study emphasizes the importance of targeting adaptive behavior during adolescence to insure continued gains. En ligne : http://dx.doi.org/10.1007/s10803-018-3538-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367 [article] Brief Report: Developmental Trajectories of Adaptive Behavior in Children and Adolescents with ASD [Texte imprimé et/ou numérique] / A. T. MEYER, Auteur ; Patrick S. POWELL, Auteur ; N. BUTERA, Auteur ; M. R. KLINGER, Auteur ; L. G. KLINGER, Auteur . - p.2870-2878. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 48-8 (August 2018) . - p.2870-2878 Mots-clés : Adaptive behavior  Autism  Developmental trajectories Index. décimale : PER Périodiques Résumé : Research suggests that individuals with autism spectrum disorder (ASD) have significant difficulties with adaptive behavior skills including daily living and functional communication skills. Few studies have examined the developmental trajectory of adaptive behavior across childhood and adolescence. The present study examined longitudinal trajectories of adaptive behavior in a community-based clinic sample of 186 individuals with ASD. The overall pattern indicated an initial increase in adaptive behavior during early childhood followed by a plateau in skills during adolescence for individuals of all IQ groups. Given the importance of adaptive behavior for employment and quality of life, this study emphasizes the importance of targeting adaptive behavior during adolescence to insure continued gains. En ligne : http://dx.doi.org/10.1007/s10803-018-3538-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=367

Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood / Vanessa H. BAL in Autism Research, 11-11 (November 2018)  

Public ISBD [article]  inAutism Research > 11-11 (November 2018) . - p.1446-1454 Titre : Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa H. BAL, Auteur ; R. L. HENDREN, Auteur ; Tony CHARMAN, Auteur ; Leonard ABBEDUTO, Auteur ; Connie KASARI, Auteur ; L. G. KLINGER, Auteur ; W. ENCE, Auteur ; T. GLAVIN, Auteur ; G. LYONS, Auteur ; E. ROSENBERG, Auteur Article en page(s) : p.1446-1454 Langues : Anglais (eng) Mots-clés : lifespan  outcome  stakeholders  strengths Index. décimale : PER Périodiques Résumé : The autism spectrum disorder (ASD) research community is increasingly considering the importance of measuring outcomes that are meaningful to individuals with ASD and their families. The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from 280 participants, including people with ASD and their families, service providers, and researchers. Six themes were identified: (a) the definition of "outcome" varies by context and perspective; (b) the need to broaden the scope of what researchers measure; (c) the need for new assessment tools; (d) the need to expand data analytic methods; (e) where to focus (with emphasis on considering different developmental stages and aspects of diversity); and (f) a need for community partnerships to bridge research and daily practice. The challenge that the research community now faces is how to move the evidence base for clinical practice forward while keeping alive the divergence of views and considerations that are relevant for thinking about complex outcomes for the highly heterogeneous group of individuals with ASD. This commentary provides recommendations, with an emphasis on lifespan viewpoints that encompass individual strengths and preferences. Autism Research 2018, 11: 1446-1454. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from a variety of stakeholders. This commentary outlines the six themes identified from keynote and panel presentations and audience-participated discussions. Recommendations are made to emphasize perspectives that look across the lifespan and encompass individual strengths and preferences. En ligne : http://dx.doi.org/10.1002/aur.2034 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370 [article] Considerations from the 2017 IMFAR Preconference on Measuring Meaningful Outcomes from School-Age to Adulthood [Texte imprimé et/ou numérique] / Vanessa H. BAL, Auteur ; R. L. HENDREN, Auteur ; Tony CHARMAN, Auteur ; Leonard ABBEDUTO, Auteur ; Connie KASARI, Auteur ; L. G. KLINGER, Auteur ; W. ENCE, Auteur ; T. GLAVIN, Auteur ; G. LYONS, Auteur ; E. ROSENBERG, Auteur . - p.1446-1454. Langues : Anglais (eng) in Autism Research > 11-11 (November 2018) . - p.1446-1454 Mots-clés : lifespan  outcome  stakeholders  strengths Index. décimale : PER Périodiques Résumé : The autism spectrum disorder (ASD) research community is increasingly considering the importance of measuring outcomes that are meaningful to individuals with ASD and their families. The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from 280 participants, including people with ASD and their families, service providers, and researchers. Six themes were identified: (a) the definition of "outcome" varies by context and perspective; (b) the need to broaden the scope of what researchers measure; (c) the need for new assessment tools; (d) the need to expand data analytic methods; (e) where to focus (with emphasis on considering different developmental stages and aspects of diversity); and (f) a need for community partnerships to bridge research and daily practice. The challenge that the research community now faces is how to move the evidence base for clinical practice forward while keeping alive the divergence of views and considerations that are relevant for thinking about complex outcomes for the highly heterogeneous group of individuals with ASD. This commentary provides recommendations, with an emphasis on lifespan viewpoints that encompass individual strengths and preferences. Autism Research 2018, 11: 1446-1454. (c) 2018 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: The 2017 IMFAR preconference aimed to gain the perspectives of how to define and measure "meaningful outcomes" from a variety of stakeholders. This commentary outlines the six themes identified from keynote and panel presentations and audience-participated discussions. Recommendations are made to emphasize perspectives that look across the lifespan and encompass individual strengths and preferences. En ligne : http://dx.doi.org/10.1002/aur.2034 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=370

Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) / D. V. CHAN in Journal of Autism and Developmental Disorders, 51-7 (July 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2531-2537 Titre : Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) Type de document : Texte imprimé et/ou numérique Auteurs : D. V. CHAN, Auteur ; M. R. KLINGER, Auteur ; K. A. ADKISSON, Auteur ; L. G. KLINGER, Auteur Article en page(s) : p.2531-2537 Langues : Anglais (eng) Mots-clés : Activities of Daily Living  Adult  Autism Spectrum Disorder/epidemiology  Community Participation  Female  Geographic Information Systems  Humans  Male  Adults  Autism spectrum disorder  Community participation  Geographic information systems (GIS)  Services  Foundation, the Organization for Autism Research, The University of North Carolina  at Chapel Hill Junior Faculty Development Award and the University Research Council.  Laura Klinger received research grants from Autism Speaks (#8316) and the Foundation  of Hope. Index. décimale : PER Périodiques Résumé : A geographic information system (GIS) approach systematically assessed whether population density and distribution of community resources contributed to caregiver reported community participation outcomes for 124 adults with autism spectrum disorder (ASD). Regression analyses examined whether GIS measures predicted community participation in areas of social activities and use of services, while also accounting for adult age, conversation ability, and daily living skills (DLS). Results indicated that in addition to person factors of greater DLS and better conversation ability, access to specific community features, such as bus stops, contributed to improved participation. Unexpectedly, population density where one lived made minimal contribution to participation outcomes, except in getting together with friends outside of organized activities. En ligne : http://dx.doi.org/10.1007/s10803-020-04660-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] Examining Environmental Predictors of Community Participation for Adults with Autism Spectrum Disorder Using Geographic Information Systems (GIS) [Texte imprimé et/ou numérique] / D. V. CHAN, Auteur ; M. R. KLINGER, Auteur ; K. A. ADKISSON, Auteur ; L. G. KLINGER, Auteur . - p.2531-2537. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2531-2537 Mots-clés : Activities of Daily Living  Adult  Autism Spectrum Disorder/epidemiology  Community Participation  Female  Geographic Information Systems  Humans  Male  Adults  Autism spectrum disorder  Community participation  Geographic information systems (GIS)  Services  Foundation, the Organization for Autism Research, The University of North Carolina  at Chapel Hill Junior Faculty Development Award and the University Research Council.  Laura Klinger received research grants from Autism Speaks (#8316) and the Foundation  of Hope. Index. décimale : PER Périodiques Résumé : A geographic information system (GIS) approach systematically assessed whether population density and distribution of community resources contributed to caregiver reported community participation outcomes for 124 adults with autism spectrum disorder (ASD). Regression analyses examined whether GIS measures predicted community participation in areas of social activities and use of services, while also accounting for adult age, conversation ability, and daily living skills (DLS). Results indicated that in addition to person factors of greater DLS and better conversation ability, access to specific community features, such as bus stops, contributed to improved participation. Unexpectedly, population density where one lived made minimal contribution to participation outcomes, except in getting together with friends outside of organized activities. En ligne : http://dx.doi.org/10.1007/s10803-020-04660-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals / N. G. DREILING in Autism, 26-2 (February 2022)  

Public ISBD [article]  inAutism > 26-2 (February 2022) . - p.434-445 Titre : Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals Type de document : Texte imprimé et/ou numérique Auteurs : N. G. DREILING, Auteur ; M. L. COOK, Auteur ; E. LAMARCHE, Auteur ; L. G. KLINGER, Auteur Article en page(s) : p.434-445 Langues : Anglais (eng) Mots-clés : Project ECHO  autism  mental health  professional development  teleconsultation  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Although many autistic individuals have additional mental health conditions, most have a hard time getting services from mental health providers. One reason why these services can be hard to access is that many mental health providers do not feel confident in their ability to provide services to autistic individuals. To share autism expertise with local community providers and boost their confidence in working with autistic individuals, we created a mental health version of the Extension for Community Healthcare Outcomes (Project ECHO) Autism virtual teleconsultation program. In this pilot study, we recruited 51 community mental health providers to participate in Project ECHO Autism. During each biweekly session, providers received information from autism experts about how to tailor mental health interventions (e.g. attention-deficit hyperactivity disorder or anxiety interventions) for use with autistic individuals. They also had the opportunity to ask questions and get advice on their current cases. At the end of the 6-month study, mental health providers showed improvements in their confidence, in their knowledge of autism, and in their problem-solving skills. Nearly half (45%) of these providers participated from rural counties, suggesting that the Project ECHO Autism teleconsultation model was able to reach mental health providers who might not have been able to get training otherwise. This study supports the feasibility of using Project ECHO Autism to share autism knowledge with mental health providers, consequently expanding mental health service options for autistic individuals with co-occurring mental health conditions. En ligne : http://dx.doi.org/10.1177/13623613211028000 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] Mental health Project ECHO Autism: Increasing access to community mental health services for autistic individuals [Texte imprimé et/ou numérique] / N. G. DREILING, Auteur ; M. L. COOK, Auteur ; E. LAMARCHE, Auteur ; L. G. KLINGER, Auteur . - p.434-445. Langues : Anglais (eng) in Autism > 26-2 (February 2022) . - p.434-445 Mots-clés : Project ECHO  autism  mental health  professional development  teleconsultation  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Although many autistic individuals have additional mental health conditions, most have a hard time getting services from mental health providers. One reason why these services can be hard to access is that many mental health providers do not feel confident in their ability to provide services to autistic individuals. To share autism expertise with local community providers and boost their confidence in working with autistic individuals, we created a mental health version of the Extension for Community Healthcare Outcomes (Project ECHO) Autism virtual teleconsultation program. In this pilot study, we recruited 51 community mental health providers to participate in Project ECHO Autism. During each biweekly session, providers received information from autism experts about how to tailor mental health interventions (e.g. attention-deficit hyperactivity disorder or anxiety interventions) for use with autistic individuals. They also had the opportunity to ask questions and get advice on their current cases. At the end of the 6-month study, mental health providers showed improvements in their confidence, in their knowledge of autism, and in their problem-solving skills. Nearly half (45%) of these providers participated from rural counties, suggesting that the Project ECHO Autism teleconsultation model was able to reach mental health providers who might not have been able to get training otherwise. This study supports the feasibility of using Project ECHO Autism to share autism knowledge with mental health providers, consequently expanding mental health service options for autistic individuals with co-occurring mental health conditions. En ligne : http://dx.doi.org/10.1177/13623613211028000 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

Patterns of autism spectrum symptomatology in individuals with Down syndrome without comorbid autism spectrum disorder / Marie M. CHANNELL in Journal of Neurodevelopmental Disorders, 7-1 (December 2015)  

Public ISBD [article]  inJournal of Neurodevelopmental Disorders > 7-1 (December 2015) . - p.5 Titre : Patterns of autism spectrum symptomatology in individuals with Down syndrome without comorbid autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Marie M. CHANNELL, Auteur ; B. A. PHILLIPS, Auteur ; S. J. LOVEALL, Auteur ; F. A. CONNERS, Auteur ; P. M. BUSSANICH, Auteur ; L. G. KLINGER, Auteur Article en page(s) : p.5 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Comorbidity  Down syndrome  Intellectual disability  Social communication Index. décimale : PER Périodiques Résumé : BACKGROUND: Prevalence estimates of autism spectrum disorder (ASD) in Down syndrome (DS) are highly varied. This variation is partly due to the difficulty of screening for and diagnosing comorbid ASD in individuals with a syndrome that carries its own set of social communicative and behavioral difficulties that are not well documented. The aim of this study was to identify the typical range of social communicative impairments observed in children, adolescents, and young adults with DS who do not have comorbid ASD. METHODS: We examined patterns of scores from the five subscales of the Social Responsiveness Scale (SRS) in 46 individuals with DS (ages 10-21 years) without comorbid ASD relative to the published normative sample. We also explored the correlations between SRS symptomatology and age, nonverbal cognition, and receptive language. RESULTS: SRS scores were elevated (i.e., more ASD symptoms endorsed), with mean scores falling into the clinically significant range. Analysis by subscale revealed a specific pattern, with Autistic Mannerisms and Social Cognition scores significantly more elevated than Social Communication scores, which were significantly more elevated than Social Awareness and Social Motivation scores. Correlations between SRS scores and the other measures varied by subscale. CONCLUSIONS: General elevated ASD symptomatology on the SRS indicates the need for developing population-based norms specific to DS. The pattern of scores across subscales should inform clinicians of the typical range of behaviors observed in DS so that individuals with atypical patterns of behavior can be more easily identified and considered for a full ASD evaluation. En ligne : http://dx.doi.org/10.1186/1866-1955-7-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=347 [article] Patterns of autism spectrum symptomatology in individuals with Down syndrome without comorbid autism spectrum disorder [Texte imprimé et/ou numérique] / Marie M. CHANNELL, Auteur ; B. A. PHILLIPS, Auteur ; S. J. LOVEALL, Auteur ; F. A. CONNERS, Auteur ; P. M. BUSSANICH, Auteur ; L. G. KLINGER, Auteur . - p.5. Langues : Anglais (eng) in Journal of Neurodevelopmental Disorders > 7-1 (December 2015) . - p.5 Mots-clés : Autism spectrum disorder  Comorbidity  Down syndrome  Intellectual disability  Social communication Index. décimale : PER Périodiques Résumé : BACKGROUND: Prevalence estimates of autism spectrum disorder (ASD) in Down syndrome (DS) are highly varied. This variation is partly due to the difficulty of screening for and diagnosing comorbid ASD in individuals with a syndrome that carries its own set of social communicative and behavioral difficulties that are not well documented. The aim of this study was to identify the typical range of social communicative impairments observed in children, adolescents, and young adults with DS who do not have comorbid ASD. METHODS: We examined patterns of scores from the five subscales of the Social Responsiveness Scale (SRS) in 46 individuals with DS (ages 10-21 years) without comorbid ASD relative to the published normative sample. We also explored the correlations between SRS symptomatology and age, nonverbal cognition, and receptive language. RESULTS: SRS scores were elevated (i.e., more ASD symptoms endorsed), with mean scores falling into the clinically significant range. Analysis by subscale revealed a specific pattern, with Autistic Mannerisms and Social Cognition scores significantly more elevated than Social Communication scores, which were significantly more elevated than Social Awareness and Social Motivation scores. Correlations between SRS scores and the other measures varied by subscale. CONCLUSIONS: General elevated ASD symptomatology on the SRS indicates the need for developing population-based norms specific to DS. The pattern of scores across subscales should inform clinicians of the typical range of behaviors observed in DS so that individuals with atypical patterns of behavior can be more easily identified and considered for a full ASD evaluation. En ligne : http://dx.doi.org/10.1186/1866-1955-7-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=347

Understanding Service Usage and Needs for Adults with ASD: The Importance of Living Situation / K. M. DUDLEY in Journal of Autism and Developmental Disorders, 49-2 (February 2019)  

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