Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging / Ye In HWANG in Journal of Autism and Developmental Disorders, 50-7 (July 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2326-2335 Titre : Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging Type de document : Texte imprimé et/ou numérique Auteurs : Ye In HWANG, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur Article en page(s) : p.2326-2335 Langues : Anglais (eng) Mots-clés : Activities of daily living  Adulthood  Aging  Aging well  Cognitive functioning  Education  Employment  Medical comorbidities  Physical functioning  Social participation  Successful aging  Theory Index. décimale : PER Périodiques Résumé : There is a gap in our knowledge of aging with autism. The present study examined the applicability of the popular gerontology concept of "aging well" to autistic adults. Using survey data, a model of "aging well" was operationalised and applied to 92 autistic adults and 60 controls. A very small proportion (3.3%) of autistic adults were found to be aging well. Significantly less autistic adults were "maintaining physical and cognitive functioning" and "actively engaging with life" in comparison to controls. Whilst important differences in health and functioning status were found, the current dominant model of "aging well" is limited for examining autistic individuals. Suggested adjustments include development of a broader, more flexible and strengths -based model. En ligne : http://dx.doi.org/10.1007/s10803-018-3596-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Aging Well on the Autism Spectrum: An Examination of the Dominant Model of Successful Aging [Texte imprimé et/ou numérique] / Ye In HWANG, Auteur ; Kitty-Rose FOLEY, Auteur ; Julian N. TROLLOR, Auteur . - p.2326-2335. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-7 (July 2020) . - p.2326-2335 Mots-clés : Activities of daily living  Adulthood  Aging  Aging well  Cognitive functioning  Education  Employment  Medical comorbidities  Physical functioning  Social participation  Successful aging  Theory Index. décimale : PER Périodiques Résumé : There is a gap in our knowledge of aging with autism. The present study examined the applicability of the popular gerontology concept of "aging well" to autistic adults. Using survey data, a model of "aging well" was operationalised and applied to 92 autistic adults and 60 controls. A very small proportion (3.3%) of autistic adults were found to be aging well. Significantly less autistic adults were "maintaining physical and cognitive functioning" and "actively engaging with life" in comparison to controls. Whilst important differences in health and functioning status were found, the current dominant model of "aging well" is limited for examining autistic individuals. Suggested adjustments include development of a broader, more flexible and strengths -based model. En ligne : http://dx.doi.org/10.1007/s10803-018-3596-8 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults / Samuel R. C. ARNOLD in Journal of Autism and Developmental Disorders, 50-6 (June 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.2217-2225 Titre : Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults Type de document : Texte imprimé et/ou numérique Auteurs : Samuel R. C. ARNOLD, Auteur ; Mirko ULJAREVIC, Auteur ; Ye In HWANG, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur ; Lauren P. LAWSON, Auteur Article en page(s) : p.2217-2225 Langues : Anglais (eng) Mots-clés : Adults  Autism  Depression  Factor analysis  Phq-9  Validation Index. décimale : PER Périodiques Résumé : Despite the high prevalence of depression and other mental illnesses in autistic adults, screening instruments such as the Patient Health Questionnaire (PHQ-9) have not been specifically validated in an autistic sample. Using data from two Autism CRC longitudinal studies (n?=?581), confirmatory factor analysis supported the two-factor model (somatic and cognitive/affective) in the autistic sample and one-factor model in the community comparison sample. Confirmatory bifactor analysis also supported use of the PHQ-9 total score in autism. Good convergent validity was found with two measures of psychological well-being for PHQ-9 total and subdomain scores. The PHQ-9 is a useful tool for autism research allowing comparison across autistic and non-autistic participants. En ligne : http://dx.doi.org/10.1007/s10803-019-03947-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425 [article] Brief Report: Psychometric Properties of the Patient Health Questionaire-9 (PHQ-9) in Autistic Adults [Texte imprimé et/ou numérique] / Samuel R. C. ARNOLD, Auteur ; Mirko ULJAREVIC, Auteur ; Ye In HWANG, Auteur ; Amanda L. RICHDALE, Auteur ; Julian N. TROLLOR, Auteur ; Lauren P. LAWSON, Auteur . - p.2217-2225. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-6 (June 2020) . - p.2217-2225 Mots-clés : Adults  Autism  Depression  Factor analysis  Phq-9  Validation Index. décimale : PER Périodiques Résumé : Despite the high prevalence of depression and other mental illnesses in autistic adults, screening instruments such as the Patient Health Questionnaire (PHQ-9) have not been specifically validated in an autistic sample. Using data from two Autism CRC longitudinal studies (n?=?581), confirmatory factor analysis supported the two-factor model (somatic and cognitive/affective) in the autistic sample and one-factor model in the community comparison sample. Confirmatory bifactor analysis also supported use of the PHQ-9 total score in autism. Good convergent validity was found with two measures of psychological well-being for PHQ-9 total and subdomain scores. The PHQ-9 is a useful tool for autism research allowing comparison across autistic and non-autistic participants. En ligne : http://dx.doi.org/10.1007/s10803-019-03947-9 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=425

Domestic violence events involving autism: a text mining study of police records in New South Wales, 2005-2016 / Ye In HWANG in Research in Autism Spectrum Disorders, 78 (October 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 78 (October 2020) . - 101634 Titre : Domestic violence events involving autism: a text mining study of police records in New South Wales, 2005-2016 Type de document : Texte imprimé et/ou numérique Auteurs : Ye In HWANG, Auteur ; Lidan ZHENG, Auteur ; George KARYSTIANIS, Auteur ; Vicki GIBBS, Auteur ; Kym SHARP, Auteur ; Tony BUTLER, Auteur Article en page(s) : 101634 Langues : Anglais (eng) Mots-clés : Domestic violence  family violence  victimisation  caregivers  relationships  text mining Index. décimale : PER Périodiques Résumé : Background Recent research and high-profile media cases have suggested an association between autism spectrum disorder and violent behaviour. Whilst certain characteristics of autism may make individuals vulnerable to increased involvement with the police, either as a victim or person of interest, evidence regarding this is scant. The present study used a population-based dataset to describe the characteristics of domestic violence events involving autistic and non-autistic adults. Methods Text mining and descriptive statistics were applied to police-recorded data for 1,601 domestic violence events involving autism and 414,840 events not involving autism in the state of New South Wales, Australia from January 2005 to December 2016. Results The relationship between autistic victims and perpetrators was predominantly familial or carer whereas events not involving autism were predominantly involved intimate partners. Abuse types and injuries sustained were similar for both autistic and non-autistic events. The most common mental conditions present in autistic perpetrators were developmental conditions and intellectual disability, whilst non-autistic perpetrators most commonly reported psychoactive substance use or schizophrenia. Conclusions These results highlight the need to further understand the risk factors for strain and violence in relationships between autistic adults and their family members or carers, especially for those with comorbid behavioural developmental conditions. Given the uniqueness of domestic violence involving autism found in this study and the potentially unique nature of the circumstances surrounding these events, appropriate police awareness and training in relation to autism is needed. En ligne : https://doi.org/10.1016/j.rasd.2020.101634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 [article] Domestic violence events involving autism: a text mining study of police records in New South Wales, 2005-2016 [Texte imprimé et/ou numérique] / Ye In HWANG, Auteur ; Lidan ZHENG, Auteur ; George KARYSTIANIS, Auteur ; Vicki GIBBS, Auteur ; Kym SHARP, Auteur ; Tony BUTLER, Auteur . - 101634. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 78 (October 2020) . - 101634 Mots-clés : Domestic violence  family violence  victimisation  caregivers  relationships  text mining Index. décimale : PER Périodiques Résumé : Background Recent research and high-profile media cases have suggested an association between autism spectrum disorder and violent behaviour. Whilst certain characteristics of autism may make individuals vulnerable to increased involvement with the police, either as a victim or person of interest, evidence regarding this is scant. The present study used a population-based dataset to describe the characteristics of domestic violence events involving autistic and non-autistic adults. Methods Text mining and descriptive statistics were applied to police-recorded data for 1,601 domestic violence events involving autism and 414,840 events not involving autism in the state of New South Wales, Australia from January 2005 to December 2016. Results The relationship between autistic victims and perpetrators was predominantly familial or carer whereas events not involving autism were predominantly involved intimate partners. Abuse types and injuries sustained were similar for both autistic and non-autistic events. The most common mental conditions present in autistic perpetrators were developmental conditions and intellectual disability, whilst non-autistic perpetrators most commonly reported psychoactive substance use or schizophrenia. Conclusions These results highlight the need to further understand the risk factors for strain and violence in relationships between autistic adults and their family members or carers, especially for those with comorbid behavioural developmental conditions. Given the uniqueness of domestic violence involving autism found in this study and the potentially unique nature of the circumstances surrounding these events, appropriate police awareness and training in relation to autism is needed. En ligne : https://doi.org/10.1016/j.rasd.2020.101634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433

Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates / Vicki GIBBS in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101866 Titre : Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates Type de document : Texte imprimé et/ou numérique Auteurs : Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : 101866 Langues : Anglais (eng) Mots-clés : Autistic  Sexual violence  Physical violence  Victimisation  Autistic traits  Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates [Texte imprimé et/ou numérique] / Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur . - 101866. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101866 Mots-clés : Autistic  Sexual violence  Physical violence  Victimisation  Autistic traits  Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum / Marisse T. SONIDO in Journal of Autism and Developmental Disorders, 52-7 (July 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014 Titre : Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur Article en page(s) : p.2997-3014 Langues : Anglais (eng) Mots-clés : Adult  Australia  Autism Spectrum Disorder  Autistic Disorder  Caregivers/psychology  Humans  Longitudinal Studies  Quality of Life/psychology  Adults  Autism spectrum disorders  Carers  Family functioning and support  Mental well-being  Psychiatric comorbidity  Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477 [article] Predictors of the Quality of Life of Informal Carers of Adults on the Autism Spectrum [Texte imprimé et/ou numérique] / Marisse T. SONIDO, Auteur ; Ye In HWANG, Auteur ; Preeyaporn SRASUEBKUL, Auteur ; Julian N. TROLLOR, Auteur ; Samuel R. C. ARNOLD, Auteur . - p.2997-3014. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-7 (July 2022) . - p.2997-3014 Mots-clés : Adult  Australia  Autism Spectrum Disorder  Autistic Disorder  Caregivers/psychology  Humans  Longitudinal Studies  Quality of Life/psychology  Adults  Autism spectrum disorders  Carers  Family functioning and support  Mental well-being  Psychiatric comorbidity  Quality of life Index. décimale : PER Périodiques Résumé : Carers of adults on the autism spectrum often experience high levels of stress, worry, and caregiver burden. There are few studies identifying the predictors of carer mental well-being and none have been conducted in Australia. Data from the Autism Cooperative Research Centre for Living with Autism's Australian Longitudinal Study of Autism in Adulthood was used to test the conceptual model by Sonido et al. (Rev J Autism Dev Disord, 2019, https://doi.org/10.1007/s40489-019-00177-8 ) by (a) identifying the predictors of mental well-being for carers of adults on the spectrum, (b) using model selection to determine which predictors contribute to the model of best fit, and (c) testing for mediating relationships between the predictors. Several predictors were directly associated with carer psychological quality of life, including carer age, care recipient intellectual disability, and carer intolerance of uncertainty. Model selection strongly supported the inclusion of most clusters from the conceptual model. Some mediating relationships were found, such as care recipient depressive behaviours mediating the relationships between caregiver burden and psychological quality of life. Future studies of the conceptual model will improve understanding of the predictors of carer mental well-being and enable tailored interventions to improve the psychological health of carers of adults on the autism spectrum. En ligne : http://dx.doi.org/10.1007/s10803-021-05178-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=477

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