Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure / Steve LUKITO in Journal of Child Psychology and Psychiatry, 66-10 (October 2025)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 66-10 (October 2025) . - p.1577-1592 Titre : Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure Type de document : texte imprimé Auteurs : Steve LUKITO, Auteur ; Susie CHANDLER, Auteur ; Myrofora KAKOULIDOU, Auteur ; Kirsty GRIFFITHS, Auteur ; Anna WYATT, Auteur ; Eloise FUNNELL, Auteur ; Georgia PAVLOPOULOU, Auteur ; Sylvan BAKER, Auteur ; Daniel STAHL, Auteur ; Edmund SONUGA-BARKE, Auteur ; The RE-STAR TEAM, Auteur Article en page(s) : p.1577-1592 Langues : Anglais (eng) Mots-clés : Autism  attention-deficit/hyperactivity disorder  emotional burden  emotion dysregulation  psychometrics Index. décimale : PER Périodiques Résumé : Background Mental health problems are elevated in adolescents with ADHD and/or autism. Emotion regulation deficits (ERD) have been hypothesised as a key driver of such difficulties. The Regulating Emotions ? Strengthening Adolescent Resilience (RE-STAR) programme is examining an alternative pathway from neurodivergence to mental health problems, mediated by elevated emotional burden (EB) resulting from the interplay of increased exposure and an unusually intense emotional reaction to commonly upsetting events (CUEs). We present the development and application of the My Emotions in School Inventory (MESI), a self-report questionnaire co-produced with neurodivergent young people, focusing on EB in schools ? a setting thought to be of particular significance in this regard. Methods The MESI, containing 25 school-related CUEs rated on their frequency and the intensity of negative emotions they induce, was completed by secondary school students meeting symptom cut-offs on clinically validated scales of ADHD (n 100), autism (n 104), ADHD+autism (n 79) and neurotypical students (n 452). Psychometric properties were examined. The ability of the MESI to discriminate adolescents with ADHD and/or autism from neurotypical adolescents, and to predict depression and anxiety, independently of ERD, was explored. Results Adolescents in the ADHD and/or autism groups experienced higher CUE frequency and intensity of reaction than their neurotypical peers. Overall levels of EB, most robustly indexed by 24 MESI CUEs, were higher in the three neurodivergent groups, though they did not differ from each other. EB in the autism and ADHD groups was generated by distinctly different CUEs. EB and ERD each contributed independently to the prediction of higher depression or anxiety. Conclusions Our findings illustrate the potential value of the MESI as an instrument to measure the contribution of EB alongside ERD in relation to adolescent mental health risks in ADHD and/or autism. Future studies need to investigate its role longitudinally. En ligne : https://doi.org/10.1111/jcpp.70003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568 [article] Emotional burden in school as a source of mental health problems associated with ADHD and/or autism: Development and validation of a new co-produced self-report measure [texte imprimé] / Steve LUKITO, Auteur ; Susie CHANDLER, Auteur ; Myrofora KAKOULIDOU, Auteur ; Kirsty GRIFFITHS, Auteur ; Anna WYATT, Auteur ; Eloise FUNNELL, Auteur ; Georgia PAVLOPOULOU, Auteur ; Sylvan BAKER, Auteur ; Daniel STAHL, Auteur ; Edmund SONUGA-BARKE, Auteur ; The RE-STAR TEAM, Auteur . - p.1577-1592. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 66-10 (October 2025) . - p.1577-1592 Mots-clés : Autism  attention-deficit/hyperactivity disorder  emotional burden  emotion dysregulation  psychometrics Index. décimale : PER Périodiques Résumé : Background Mental health problems are elevated in adolescents with ADHD and/or autism. Emotion regulation deficits (ERD) have been hypothesised as a key driver of such difficulties. The Regulating Emotions ? Strengthening Adolescent Resilience (RE-STAR) programme is examining an alternative pathway from neurodivergence to mental health problems, mediated by elevated emotional burden (EB) resulting from the interplay of increased exposure and an unusually intense emotional reaction to commonly upsetting events (CUEs). We present the development and application of the My Emotions in School Inventory (MESI), a self-report questionnaire co-produced with neurodivergent young people, focusing on EB in schools ? a setting thought to be of particular significance in this regard. Methods The MESI, containing 25 school-related CUEs rated on their frequency and the intensity of negative emotions they induce, was completed by secondary school students meeting symptom cut-offs on clinically validated scales of ADHD (n 100), autism (n 104), ADHD+autism (n 79) and neurotypical students (n 452). Psychometric properties were examined. The ability of the MESI to discriminate adolescents with ADHD and/or autism from neurotypical adolescents, and to predict depression and anxiety, independently of ERD, was explored. Results Adolescents in the ADHD and/or autism groups experienced higher CUE frequency and intensity of reaction than their neurotypical peers. Overall levels of EB, most robustly indexed by 24 MESI CUEs, were higher in the three neurodivergent groups, though they did not differ from each other. EB in the autism and ADHD groups was generated by distinctly different CUEs. EB and ERD each contributed independently to the prediction of higher depression or anxiety. Conclusions Our findings illustrate the potential value of the MESI as an instrument to measure the contribution of EB alongside ERD in relation to adolescent mental health risks in ADHD and/or autism. Future studies need to investigate its role longitudinally. En ligne : https://doi.org/10.1111/jcpp.70003 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=568

Specificity of executive function and theory of mind performance in relation to attention-deficit/hyperactivity symptoms in autism spectrum disorders / Steve LUKITO in Molecular Autism, 8 (2017)  

Public ISBD [article]  inMolecular Autism > 8 (2017) . - 60p. Titre : Specificity of executive function and theory of mind performance in relation to attention-deficit/hyperactivity symptoms in autism spectrum disorders Type de document : texte imprimé Auteurs : Steve LUKITO, Auteur ; Catherine R.G. JONES, Auteur ; Andrew PICKLES, Auteur ; Gillian BAIRD, Auteur ; Francesca HAPPE, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur Article en page(s) : 60p. Langues : Anglais (eng) Mots-clés : Attention-deficit/hyperactivity disorder  Autism spectrum disorder  Comorbidity  Executive function  Snap  Theory of mind Index. décimale : PER Périodiques Résumé : Background: Individuals with autism spectrum disorder (ASD) frequently demonstrate symptoms of attention-deficit/hyperactivity disorder (ADHD). Previous findings in children with ASD have suggested that these symptoms are associated with an impairment in executive function (EF) abilities. However, studies rarely considered this association within a single framework that controls for other related factors such as Theory of Mind (ToM) abilities and ASD symptoms. Methods: We used structural equation modeling to explore the relations among EF, ToM, and symptoms of ASD and ADHD, using data from a population-based sample of 100 adolescents with ASD and full-scale IQ >/= 50 (the Special Needs and Autism Project (SNAP) cohort). The study used a multi-measure and multi-informant approach, where performance of inhibition, planning, switching, and working memory tasks indexed EF and performance on tasks involving mentalizing indexed ToM. Measures of ASD and ADHD symptoms included parent and teacher reports and direct observation of the children. Shared source of symptom reporting was accounted for with a parental rating latent factor indexed by symptom measures reported by parents. Results: Impairments in EF abilities were specifically associated with ADHD symptoms while impaired ToM was specifically associated with ASD symptoms, when accounting for the associations of each cognitive domain with the other factors. ASD and ADHD symptom latent factors were also correlated, but this association became nonsignificant once the shared source of reporting from parents was accounted for and within a model that also controlled for the correlated pathway between EF and ToM factors. The specific relations between the cognitive domains and behavioral symptoms remained even after controlling for IQ. Conclusions: In this ASD sample, symptoms of ADHD and ASD are underpinned by separate cognitive domains. The association between EF and ToM impairments is a likely partial explanation for the co-occurrence of ADHD symptoms in ASD, but the role of shared reporting effects is also important and supports the inclusion of independent informants and objective measures in future research. En ligne : http://dx.doi.org/10.1186/s13229-017-0177-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=330 [article] Specificity of executive function and theory of mind performance in relation to attention-deficit/hyperactivity symptoms in autism spectrum disorders [texte imprimé] / Steve LUKITO, Auteur ; Catherine R.G. JONES, Auteur ; Andrew PICKLES, Auteur ; Gillian BAIRD, Auteur ; Francesca HAPPE, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur . - 60p. Langues : Anglais (eng) in Molecular Autism > 8 (2017) . - 60p. Mots-clés : Attention-deficit/hyperactivity disorder  Autism spectrum disorder  Comorbidity  Executive function  Snap  Theory of mind Index. décimale : PER Périodiques Résumé : Background: Individuals with autism spectrum disorder (ASD) frequently demonstrate symptoms of attention-deficit/hyperactivity disorder (ADHD). Previous findings in children with ASD have suggested that these symptoms are associated with an impairment in executive function (EF) abilities. However, studies rarely considered this association within a single framework that controls for other related factors such as Theory of Mind (ToM) abilities and ASD symptoms. Methods: We used structural equation modeling to explore the relations among EF, ToM, and symptoms of ASD and ADHD, using data from a population-based sample of 100 adolescents with ASD and full-scale IQ >/= 50 (the Special Needs and Autism Project (SNAP) cohort). The study used a multi-measure and multi-informant approach, where performance of inhibition, planning, switching, and working memory tasks indexed EF and performance on tasks involving mentalizing indexed ToM. Measures of ASD and ADHD symptoms included parent and teacher reports and direct observation of the children. Shared source of symptom reporting was accounted for with a parental rating latent factor indexed by symptom measures reported by parents. Results: Impairments in EF abilities were specifically associated with ADHD symptoms while impaired ToM was specifically associated with ASD symptoms, when accounting for the associations of each cognitive domain with the other factors. ASD and ADHD symptom latent factors were also correlated, but this association became nonsignificant once the shared source of reporting from parents was accounted for and within a model that also controlled for the correlated pathway between EF and ToM factors. The specific relations between the cognitive domains and behavioral symptoms remained even after controlling for IQ. Conclusions: In this ASD sample, symptoms of ADHD and ASD are underpinned by separate cognitive domains. The association between EF and ToM impairments is a likely partial explanation for the co-occurrence of ADHD symptoms in ASD, but the role of shared reporting effects is also important and supports the inclusion of independent informants and objective measures in future research. En ligne : http://dx.doi.org/10.1186/s13229-017-0177-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=330

The association of adverse life events and parental mental health with emotional and behavioral outcomes in young adults with autism spectrum disorder / Matthew J. HOLLOCKS in Autism Research, 14-8 (August 2021)  

Public ISBD [article]  inAutism Research > 14-8 (August 2021) . - p.1724-1735 Titre : The association of adverse life events and parental mental health with emotional and behavioral outcomes in young adults with autism spectrum disorder Type de document : texte imprimé Auteurs : Matthew J. HOLLOCKS, Auteur ; Richard MEISER-STEDMAN, Auteur ; Rachel G. KENT, Auteur ; Steve LUKITO, Auteur ; Jacqueline A. BRISKMAN, Auteur ; Dominic STRINGER, Auteur ; Catherine LORD, Auteur ; Andrew PICKLES, Auteur ; Gillian BAIRD, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur Article en page(s) : p.1724-1735 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/complications  Child  Emotions  Humans  Longitudinal Studies  Mental Health  Parents  Young Adult  anxiety  co-morbid conditions  depression  environmental risk factors  stress Index. décimale : PER Périodiques Résumé : People with autism spectrum disorder (ASD) are at increased risk of developing co-occurring mental health difficulties across the lifespan. Exposure to adverse life events and parental mental health difficulties are known risk factors for developing a range of mental health difficulties. This study investigates the association of adverse life events, parental stress and mental health with emotional and behavioral problems in young adults with ASD. One hundred and fifteen young adults with ASD derived from a population-based longitudinal study were assessed at three time-points (12-, 16-, and 23-year) on questionnaire measures of emotional and behavioral problems. Parent-reported exposure to adverse life events and parental stress/mental health were measured at age 23. We used structural equation modeling to investigate the stability of emotional and behavioral problems over time, and the association between adverse life events and parental stress and mental health and emotional and behavioral outcomes at 23-year. Our results indicate that exposure to adverse life events was significantly associated with increased emotional and behavioral problems in young adults with ASD, while controlling for symptoms in childhood and adolescence. Higher reported parental stress and mental health difficulties were associated with a higher frequency of behavioral, but not emotional problems, and did not mediate the impact of adverse life events. These results suggest that child and adolescent emotional and behavioral problems, exposure to life events and parent stress and mental health are independently associated, to differing degrees, with emotional or behavioral outcomes in early adulthood. LAY SUMMARY: People with autism experience high rates of mental health difficulties throughout childhood and into adult life. Adverse life events and parental stress and mental health may contribute to poor mental health in adulthood. We used data at three time points (12-, 16-, and 23-year) to understand how these factors relate to symptoms at 23-year. We found that emotional and behavioral problems in childhood, adverse life events and parent mental health were all associated with increased emotional and behavioral problems in adulthood. En ligne : http://dx.doi.org/10.1002/aur.2548 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 [article] The association of adverse life events and parental mental health with emotional and behavioral outcomes in young adults with autism spectrum disorder [texte imprimé] / Matthew J. HOLLOCKS, Auteur ; Richard MEISER-STEDMAN, Auteur ; Rachel G. KENT, Auteur ; Steve LUKITO, Auteur ; Jacqueline A. BRISKMAN, Auteur ; Dominic STRINGER, Auteur ; Catherine LORD, Auteur ; Andrew PICKLES, Auteur ; Gillian BAIRD, Auteur ; Tony CHARMAN, Auteur ; Emily SIMONOFF, Auteur . - p.1724-1735. Langues : Anglais (eng) in Autism Research > 14-8 (August 2021) . - p.1724-1735 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/complications  Child  Emotions  Humans  Longitudinal Studies  Mental Health  Parents  Young Adult  anxiety  co-morbid conditions  depression  environmental risk factors  stress Index. décimale : PER Périodiques Résumé : People with autism spectrum disorder (ASD) are at increased risk of developing co-occurring mental health difficulties across the lifespan. Exposure to adverse life events and parental mental health difficulties are known risk factors for developing a range of mental health difficulties. This study investigates the association of adverse life events, parental stress and mental health with emotional and behavioral problems in young adults with ASD. One hundred and fifteen young adults with ASD derived from a population-based longitudinal study were assessed at three time-points (12-, 16-, and 23-year) on questionnaire measures of emotional and behavioral problems. Parent-reported exposure to adverse life events and parental stress/mental health were measured at age 23. We used structural equation modeling to investigate the stability of emotional and behavioral problems over time, and the association between adverse life events and parental stress and mental health and emotional and behavioral outcomes at 23-year. Our results indicate that exposure to adverse life events was significantly associated with increased emotional and behavioral problems in young adults with ASD, while controlling for symptoms in childhood and adolescence. Higher reported parental stress and mental health difficulties were associated with a higher frequency of behavioral, but not emotional problems, and did not mediate the impact of adverse life events. These results suggest that child and adolescent emotional and behavioral problems, exposure to life events and parent stress and mental health are independently associated, to differing degrees, with emotional or behavioral outcomes in early adulthood. LAY SUMMARY: People with autism experience high rates of mental health difficulties throughout childhood and into adult life. Adverse life events and parental stress and mental health may contribute to poor mental health in adulthood. We used data at three time points (12-, 16-, and 23-year) to understand how these factors relate to symptoms at 23-year. We found that emotional and behavioral problems in childhood, adverse life events and parent mental health were all associated with increased emotional and behavioral problems in adulthood. En ligne : http://dx.doi.org/10.1002/aur.2548 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449

Trajectories of emotional and behavioral problems from childhood to early adult life / Dominic STRINGER in Autism, 24-4 (May 2020)  

Public ISBD [article]  inAutism > 24-4 (May 2020) . - p.1011-1024 Titre : Trajectories of emotional and behavioral problems from childhood to early adult life Type de document : texte imprimé Auteurs : Dominic STRINGER, Auteur ; Rachel G. KENT, Auteur ; Jacqueline A. BRISKMAN, Auteur ; Steve LUKITO, Auteur ; Tony CHARMAN, Auteur ; Gillian BAIRD, Auteur ; Catherine LORD, Auteur ; Andrew PICKLES, Auteur ; Emily SIMONOFF, Auteur Article en page(s) : p.1011-1024 Langues : Anglais (eng) Mots-clés : Strengths and Difficulties Questionnaire  autism  emotional and behavioral problems  longitudinal  mental disorders Index. décimale : PER Périodiques Résumé : Although mental health problems are common in autism, relatively little is known about their stability and the factors that influence their persistence or change over the life-course. To address this, we use data from the Special Needs and Autism Project (SNAP) cohort studied at three time-points from 12 to 23 years. Using the parent-reported Strengths and Difficulties Questionnaire (SDQ) domains of conduct, emotional, and ADHD symptoms, we evaluated the role of child, family, and contextual characteristics on these three trajectories. Symptoms decreased significantly over time for all three domains, but many participants still scored above the published disorder cutoffs. Individuals showed high levels of persistence. Higher initial adaptive function and language levels predicted a greater decline in conduct and ADHD symptoms. In contrast, higher language functioning was associated with higher levels of emotional symptoms, as was lower levels of autism symptom severity and higher parental education. Those with higher neighborhood deprivation had higher initial conduct problems but a steeper decline over time. Our findings highlight that it may be possible to accurately predict mental health trajectories over this time period, which could help parents and carers in planning and help professionals target resources more efficiently. En ligne : http://dx.doi.org/10.1177/1362361320908972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Trajectories of emotional and behavioral problems from childhood to early adult life [texte imprimé] / Dominic STRINGER, Auteur ; Rachel G. KENT, Auteur ; Jacqueline A. BRISKMAN, Auteur ; Steve LUKITO, Auteur ; Tony CHARMAN, Auteur ; Gillian BAIRD, Auteur ; Catherine LORD, Auteur ; Andrew PICKLES, Auteur ; Emily SIMONOFF, Auteur . - p.1011-1024. Langues : Anglais (eng) in Autism > 24-4 (May 2020) . - p.1011-1024 Mots-clés : Strengths and Difficulties Questionnaire  autism  emotional and behavioral problems  longitudinal  mental disorders Index. décimale : PER Périodiques Résumé : Although mental health problems are common in autism, relatively little is known about their stability and the factors that influence their persistence or change over the life-course. To address this, we use data from the Special Needs and Autism Project (SNAP) cohort studied at three time-points from 12 to 23 years. Using the parent-reported Strengths and Difficulties Questionnaire (SDQ) domains of conduct, emotional, and ADHD symptoms, we evaluated the role of child, family, and contextual characteristics on these three trajectories. Symptoms decreased significantly over time for all three domains, but many participants still scored above the published disorder cutoffs. Individuals showed high levels of persistence. Higher initial adaptive function and language levels predicted a greater decline in conduct and ADHD symptoms. In contrast, higher language functioning was associated with higher levels of emotional symptoms, as was lower levels of autism symptom severity and higher parental education. Those with higher neighborhood deprivation had higher initial conduct problems but a steeper decline over time. Our findings highlight that it may be possible to accurately predict mental health trajectories over this time period, which could help parents and carers in planning and help professionals target resources more efficiently. En ligne : http://dx.doi.org/10.1177/1362361320908972 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

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