Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth / Ed-Dee G. WILLIAMS in Journal of Autism and Developmental Disorders, 52-8 (August 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3740-3745 Titre : Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth Type de document : texte imprimé Auteurs : Ed-Dee G. WILLIAMS, Auteur ; Matthew J. SMITH, Auteur ; Kari SHERWOOD, Auteur ; Temple S. LOVELACE, Auteur ; Lauren BISHOP, Auteur Article en page(s) : p.3740-3745 Langues : Anglais (eng) Mots-clés : Adolescent  African Americans  Autism Spectrum Disorder  Autistic Disorder  Depression  Healthcare Disparities  Humans  Whites Index. décimale : PER Périodiques Résumé : The lived experience of being autistic and being Black in America both put youth at higher risk for developing depressive symptoms. However, there is a dearth of research examining potential disparities in autistic youth with depression. The current study examined disparities in depressive symptoms among a sample of Black and White autistic youth between the ages of 16 and 26 years old. Using analysis of covariance this study found that the Black autistic youth had significantly higher depressive symptoms than White autistic youth (m = 7.3, sd = 4.4 vs. m = 3.8, sd = 3.6; t = 2.6, p = 0.013). This study presents initial evidence of a significant racial disparity between Black and White autistic youth depressive symptoms. En ligne : http://dx.doi.org/10.1007/s10803-021-05242-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485 [article] Brief Report: Initial Evidence of Depressive Symptom Disparities among Black and White Transition Age Autistic Youth [texte imprimé] / Ed-Dee G. WILLIAMS, Auteur ; Matthew J. SMITH, Auteur ; Kari SHERWOOD, Auteur ; Temple S. LOVELACE, Auteur ; Lauren BISHOP, Auteur . - p.3740-3745. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-8 (August 2022) . - p.3740-3745 Mots-clés : Adolescent  African Americans  Autism Spectrum Disorder  Autistic Disorder  Depression  Healthcare Disparities  Humans  Whites Index. décimale : PER Périodiques Résumé : The lived experience of being autistic and being Black in America both put youth at higher risk for developing depressive symptoms. However, there is a dearth of research examining potential disparities in autistic youth with depression. The current study examined disparities in depressive symptoms among a sample of Black and White autistic youth between the ages of 16 and 26 years old. Using analysis of covariance this study found that the Black autistic youth had significantly higher depressive symptoms than White autistic youth (m = 7.3, sd = 4.4 vs. m = 3.8, sd = 3.6; t = 2.6, p = 0.013). This study presents initial evidence of a significant racial disparity between Black and White autistic youth depressive symptoms. En ligne : http://dx.doi.org/10.1007/s10803-021-05242-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=485

Cardiovascular disease risk factors in autistic adults: The impact of sleep quality and antipsychotic medication use / Lauren BISHOP in Autism Research, 16-3 (March 2023)  

Public ISBD [article]  inAutism Research > 16-3 (March 2023) . - p.569-579 Titre : Cardiovascular disease risk factors in autistic adults: The impact of sleep quality and antipsychotic medication use Type de document : texte imprimé Auteurs : Lauren BISHOP, Auteur ; Rebecca A. CHARLTON, Auteur ; Kiley J. MCLEAN, Auteur ; Goldie A. MCQUAID, Auteur ; Nancy R. LEE, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.569-579 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Abstract Approximately 40% of American adults are affected by cardiovascular disease (CVD) risk factors (e.g., high blood pressure, high cholesterol, diabetes, and overweight or obesity), and risk among autistic adults may be even higher. Mechanisms underlying the high prevalence of CVD risk factors in autistic people may include known correlates of CVD risk factors in other groups, including high levels of perceived stress, poor sleep quality, and antipsychotic medication use. A sample of 545 autistic adults without intellectual disability aged 18+ were recruited through the Simons Foundation Powering Autism Research, Research Match. Multiple linear regression models examined the association between key independent variables (self-reported perceived stress, sleep quality, and antipsychotic medication use) and CVD risk factors, controlling for demographic variables (age, sex assigned at birth, race, low-income status, autistic traits). Overall, 73.2% of autistic adults in our sample had an overweight/obesity classification, 45.3% had high cholesterol, 39.4% had high blood pressure, and 10.3% had diabetes. Older age, male sex assigned at birth, and poorer sleep quality were associated with a higher number of CVD risk factors. Using antipsychotic medications was associated with an increased likelihood of having diabetes. Poorer sleep quality was associated with an increased likelihood of having an overweight/obesity classification. Self-reported CVD risk factors are highly prevalent among autistic adults. Both improving sleep quality and closely monitoring CVD risk factors among autistic adults who use antipsychotic medications have the potential to reduce risk for CVD. En ligne : https://doi.org/10.1002/aur.2872 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498 [article] Cardiovascular disease risk factors in autistic adults: The impact of sleep quality and antipsychotic medication use [texte imprimé] / Lauren BISHOP, Auteur ; Rebecca A. CHARLTON, Auteur ; Kiley J. MCLEAN, Auteur ; Goldie A. MCQUAID, Auteur ; Nancy R. LEE, Auteur ; Gregory L. WALLACE, Auteur . - p.569-579. Langues : Anglais (eng) in Autism Research > 16-3 (March 2023) . - p.569-579 Index. décimale : PER Périodiques Résumé : Abstract Approximately 40% of American adults are affected by cardiovascular disease (CVD) risk factors (e.g., high blood pressure, high cholesterol, diabetes, and overweight or obesity), and risk among autistic adults may be even higher. Mechanisms underlying the high prevalence of CVD risk factors in autistic people may include known correlates of CVD risk factors in other groups, including high levels of perceived stress, poor sleep quality, and antipsychotic medication use. A sample of 545 autistic adults without intellectual disability aged 18+ were recruited through the Simons Foundation Powering Autism Research, Research Match. Multiple linear regression models examined the association between key independent variables (self-reported perceived stress, sleep quality, and antipsychotic medication use) and CVD risk factors, controlling for demographic variables (age, sex assigned at birth, race, low-income status, autistic traits). Overall, 73.2% of autistic adults in our sample had an overweight/obesity classification, 45.3% had high cholesterol, 39.4% had high blood pressure, and 10.3% had diabetes. Older age, male sex assigned at birth, and poorer sleep quality were associated with a higher number of CVD risk factors. Using antipsychotic medications was associated with an increased likelihood of having diabetes. Poorer sleep quality was associated with an increased likelihood of having an overweight/obesity classification. Self-reported CVD risk factors are highly prevalent among autistic adults. Both improving sleep quality and closely monitoring CVD risk factors among autistic adults who use antipsychotic medications have the potential to reduce risk for CVD. En ligne : https://doi.org/10.1002/aur.2872 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=498

Cardiovascular risk and emotion regulation contribute to depression symptomatology in middle-aged and older autistic adults / Rebecca A. CHARLTON in Research in Autism Spectrum Disorders, 101 (March 2023)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 101 (March 2023) . - 102089 Titre : Cardiovascular risk and emotion regulation contribute to depression symptomatology in middle-aged and older autistic adults Type de document : texte imprimé Auteurs : Rebecca A. CHARLTON, Auteur ; Goldie A. MCQUAID, Auteur ; Lauren BISHOP, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : 102089 Langues : Anglais (eng) Mots-clés : Ageing  Autism  Cardiovascular risk factors  Depression  Emotion regulation  Later-life  Physical health Index. décimale : PER Périodiques Résumé : Background Cardiovascular risk factors (CVRF) and executive function difficulties increase during later-life and are associated with depression symptoms among non-autistic older people. These associations, however, have not yet been explored among middle-aged and older autistic people. Methods Using data collected via Simons Foundation Powering Autism Research (SPARK), Research Match, we examined the frequency of CVRF, and associations between CVRF, executive function and depression symptoms in 387 middle-aged and older autistic people (aged 40 “83 years). Results Autistic adults reported high rates of CVRF (two, 28.9%; three or more, 23.2%). Rates of high cholesterol and obesity were greater among middle-aged and older autistic adults compared to the general population. CVRF, age, and emotion regulation (but not inhibitory control), were significantly associated with depression symptoms in middle-aged and older autistic adults. Conclusions CVRF occur at high rates in middle-aged and older autistic adults, and it is important that healthcare providers monitor risk factors in order to implement preventative strategies. CVRF are associated with depressive symptoms among middle-aged and older autistic adults, but may not be as important as difficulties with emotion regulation. En ligne : https://doi.org/10.1016/j.rasd.2022.102089 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=492 [article] Cardiovascular risk and emotion regulation contribute to depression symptomatology in middle-aged and older autistic adults [texte imprimé] / Rebecca A. CHARLTON, Auteur ; Goldie A. MCQUAID, Auteur ; Lauren BISHOP, Auteur ; Gregory L. WALLACE, Auteur . - 102089. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 101 (March 2023) . - 102089 Mots-clés : Ageing  Autism  Cardiovascular risk factors  Depression  Emotion regulation  Later-life  Physical health Index. décimale : PER Périodiques Résumé : Background Cardiovascular risk factors (CVRF) and executive function difficulties increase during later-life and are associated with depression symptoms among non-autistic older people. These associations, however, have not yet been explored among middle-aged and older autistic people. Methods Using data collected via Simons Foundation Powering Autism Research (SPARK), Research Match, we examined the frequency of CVRF, and associations between CVRF, executive function and depression symptoms in 387 middle-aged and older autistic people (aged 40 “83 years). Results Autistic adults reported high rates of CVRF (two, 28.9%; three or more, 23.2%). Rates of high cholesterol and obesity were greater among middle-aged and older autistic adults compared to the general population. CVRF, age, and emotion regulation (but not inhibitory control), were significantly associated with depression symptoms in middle-aged and older autistic adults. Conclusions CVRF occur at high rates in middle-aged and older autistic adults, and it is important that healthcare providers monitor risk factors in order to implement preventative strategies. CVRF are associated with depressive symptoms among middle-aged and older autistic adults, but may not be as important as difficulties with emotion regulation. En ligne : https://doi.org/10.1016/j.rasd.2022.102089 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=492

Challenging neurotypical norms: Autistic adults' understandings of health / Jamie KOENIG in Autism, 29-12 (December 2025)  

Public ISBD [article]  inAutism > 29-12 (December 2025) . - p.3136-3146 Titre : Challenging neurotypical norms: Autistic adults' understandings of health Type de document : texte imprimé Auteurs : Jamie KOENIG, Auteur ; Kiley J. MCLEAN, Auteur ; Meghan HAAS, Auteur ; Megan HORVATH, Auteur ; Mariah VIGIL, Auteur ; Nahime G. AGUIRRE MTANOUS, Auteur ; Sarah EFFERTZ, Auteur ; Lauren BISHOP, Auteur Article en page(s) : p.3136-3146 Langues : Anglais (eng) Mots-clés : adults  autism  health services  qualitative research Index. décimale : PER Périodiques Résumé : This study examined how autistic adults conceptualize health and whether their conceptualizations differed substantively from those of their emergency contacts (people who helped with health or healthcare management). We conducted semi-structured interviews with 10 dyads of autistic adults and emergency contacts. A thematic analysis with deductive and inductive codes identified four main themes: (1) health is subjective well-being; (2) healthy is the absence of pain; (3) challenging neurotypical norms; and (4) differences in health definitions were smaller than perceived. Autistic participants and emergency contacts endorsed the first two themes. Only autistic participants discussed the third theme. Despite broad agreement about what "healthy" means, emergency contacts perceived significant differences between their definition of health and that of their autistic counterpart. The data suggest these differences were primarily about health behaviors. We present a model for a Personalized Health Ecosystem, describing important factors for personal conceptualization of health among autistic adults. These findings demonstrate the need for individualized care, for healthcare providers to partner with autistic patients to best support their health, and for education programs for providers who work with this community.Lay Abstract Autistic adults experience worse health and have a higher risk of mortality on average. Many autistic adults say that physicians and other healthcare providers do not understand autism and autistic people’s needs. This study wants to understand how autistic adults specifically understand healthy habits as this could inform better care. We interviewed 10 autistic adults and their emergency contacts (family or friends who help them with healthcare decisions) about how they understand health and what they do to be healthy. We compared what the two groups said. Both autistic adults and their emergency contacts said that being healthy could look different for everyone. Beyond physical health, participants talked about mental, financial, and spiritual health. Participants described "healthy" as the absence of pain, though the fact that you can be in pain and healthy was mentioned. Autistic adults and their emergency contacts described health similarly. Autistic adults, however, shared more non-traditional health-promoting behaviors. These findings can help healthcare providers better understand how to work with autistic patients. Physicians should work with autistic patients on how to be healthy, rather than assume that autistic adults do not understand health. En ligne : https://dx.doi.org/10.1177/13623613251362336 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572 [article] Challenging neurotypical norms: Autistic adults' understandings of health [texte imprimé] / Jamie KOENIG, Auteur ; Kiley J. MCLEAN, Auteur ; Meghan HAAS, Auteur ; Megan HORVATH, Auteur ; Mariah VIGIL, Auteur ; Nahime G. AGUIRRE MTANOUS, Auteur ; Sarah EFFERTZ, Auteur ; Lauren BISHOP, Auteur . - p.3136-3146. Langues : Anglais (eng) in Autism > 29-12 (December 2025) . - p.3136-3146 Mots-clés : adults  autism  health services  qualitative research Index. décimale : PER Périodiques Résumé : This study examined how autistic adults conceptualize health and whether their conceptualizations differed substantively from those of their emergency contacts (people who helped with health or healthcare management). We conducted semi-structured interviews with 10 dyads of autistic adults and emergency contacts. A thematic analysis with deductive and inductive codes identified four main themes: (1) health is subjective well-being; (2) healthy is the absence of pain; (3) challenging neurotypical norms; and (4) differences in health definitions were smaller than perceived. Autistic participants and emergency contacts endorsed the first two themes. Only autistic participants discussed the third theme. Despite broad agreement about what "healthy" means, emergency contacts perceived significant differences between their definition of health and that of their autistic counterpart. The data suggest these differences were primarily about health behaviors. We present a model for a Personalized Health Ecosystem, describing important factors for personal conceptualization of health among autistic adults. These findings demonstrate the need for individualized care, for healthcare providers to partner with autistic patients to best support their health, and for education programs for providers who work with this community.Lay Abstract Autistic adults experience worse health and have a higher risk of mortality on average. Many autistic adults say that physicians and other healthcare providers do not understand autism and autistic people’s needs. This study wants to understand how autistic adults specifically understand healthy habits as this could inform better care. We interviewed 10 autistic adults and their emergency contacts (family or friends who help them with healthcare decisions) about how they understand health and what they do to be healthy. We compared what the two groups said. Both autistic adults and their emergency contacts said that being healthy could look different for everyone. Beyond physical health, participants talked about mental, financial, and spiritual health. Participants described "healthy" as the absence of pain, though the fact that you can be in pain and healthy was mentioned. Autistic adults and their emergency contacts described health similarly. Autistic adults, however, shared more non-traditional health-promoting behaviors. These findings can help healthcare providers better understand how to work with autistic patients. Physicians should work with autistic patients on how to be healthy, rather than assume that autistic adults do not understand health. En ligne : https://dx.doi.org/10.1177/13623613251362336 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=572

Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system / Lauren BISHOP in Autism, 25-3 (April 2021)  

Public ISBD [article]  inAutism > 25-3 (April 2021) . - p.831-839 Titre : Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system Type de document : texte imprimé Auteurs : Lauren BISHOP, Auteur ; Kiley J. MCLEAN, Auteur ; Eric RUBENSTEIN, Auteur Article en page(s) : p.831-839 Langues : Anglais (eng) Mots-clés : Medicaid  autism spectrum disorders  epilepsy  gender  intellectual disability  medical comorbidity  sex differences  stroke Index. décimale : PER Périodiques Résumé : Epilepsy is more common in autistic children compared to children without autism, but we do not have good estimates of how many autistic adults have epilepsy. We used data from a full population of 7513 autistic adults who received Medicaid in Wisconsin to figure out the proportion of autistic adults who have epilepsy, as compared to 18,429 adults with intellectual disability. We also wanted to assess how often epilepsy is first diagnosed in adulthood. Finally, we wanted to see whether antiepileptic drugs are being used to treat epilepsy in autistic adults. We found that 34.6% of autistic adults with intellectual disability and 11.1% of autistic adults without intellectual disability had epilepsy, compared to 27.0% of adults with intellectual disability alone. Autistic women and autistic adults with intellectual disability were more likely than autistic men and autistic adults without intellectual disability to have both previous and new diagnoses of epilepsy. Finally, we found that antiepileptic medications are commonly prescribed to autistic people who do not have epilepsy potentially to treat mental health conditions or behavior problems, and that antiepileptic medications are not always prescribed to autistic people with epilepsy even though they are indicated as a first-line epilepsy treatment. The findings of this study highlight the need to effectively treat and prevent epilepsy in autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320942982 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system [texte imprimé] / Lauren BISHOP, Auteur ; Kiley J. MCLEAN, Auteur ; Eric RUBENSTEIN, Auteur . - p.831-839. Langues : Anglais (eng) in Autism > 25-3 (April 2021) . - p.831-839 Mots-clés : Medicaid  autism spectrum disorders  epilepsy  gender  intellectual disability  medical comorbidity  sex differences  stroke Index. décimale : PER Périodiques Résumé : Epilepsy is more common in autistic children compared to children without autism, but we do not have good estimates of how many autistic adults have epilepsy. We used data from a full population of 7513 autistic adults who received Medicaid in Wisconsin to figure out the proportion of autistic adults who have epilepsy, as compared to 18,429 adults with intellectual disability. We also wanted to assess how often epilepsy is first diagnosed in adulthood. Finally, we wanted to see whether antiepileptic drugs are being used to treat epilepsy in autistic adults. We found that 34.6% of autistic adults with intellectual disability and 11.1% of autistic adults without intellectual disability had epilepsy, compared to 27.0% of adults with intellectual disability alone. Autistic women and autistic adults with intellectual disability were more likely than autistic men and autistic adults without intellectual disability to have both previous and new diagnoses of epilepsy. Finally, we found that antiepileptic medications are commonly prescribed to autistic people who do not have epilepsy potentially to treat mental health conditions or behavior problems, and that antiepileptic medications are not always prescribed to autistic people with epilepsy even though they are indicated as a first-line epilepsy treatment. The findings of this study highlight the need to effectively treat and prevent epilepsy in autistic adults. En ligne : http://dx.doi.org/10.1177/1362361320942982 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

"I?m dealing with a health care system that doesn?t get it": Barriers and facilitators to inclusive healthcare for autistic adults / Kiley J. MCLEAN in Autism, 28-6 (June 2024)  

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Is the Autism Boom Headed for Medicaid? Patterns in the Enrollment of Autistic Adults in Wisconsin Medicaid, 2008-2018 / Eric RUBENSTEIN in Autism Research, 12-10 (October 2019)  

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Material hardship and sources of support for autistic adolescents and their families / Melissa RADEY ; Lauren BISHOP ; Nahime G. AGUIRRE MTANOUS ; Jamie KOENIG ; Lindsay L. SHEA in Autism, 29-6 (June 2025)  

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Mortality rate and age of death among Medicare-enrolled autistic older adults / Morgan KRANTZ in Research in Autism Spectrum Disorders, 100 (February 2023)  

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Predictors of sleep quality for autistic people across adulthood / Rebecca A. CHARLTON in Autism Research, 16-4 (April 2023)  

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Quality of Life in Autistic Children: Discrepancies Between Self- and Caregiver-Proxy Reports and Associations With Individual Characteristics / Emily C. SKALETSKI in Autism Research, 18-10 (October 2025)  

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Service deserts and service oases: Utilizing geographic information systems to evaluate service availability for individuals with autism spectrum disorder / Amy DRAHOTA in Autism, 24-8 (November 2020)  

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The impact of sleep quality on quality of life for autistic adults / Kiley J. MCLEAN in Research in Autism Spectrum Disorders, 88 (October 2021)  

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Virtual interview training for autistic transition age youth: A randomized controlled feasibility and effectiveness trial / Matthew J. SMITH in Autism, 25-6 (August 2021)  

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Virtual interview training for autistic transition age youth: A randomized controlled feasibility and effectiveness trial / Matthew J. SMITH in Autism, 26-6 (August 2022)  

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