Anxiety and intellectual functioning in autistic children: A systematic review and meta-analysis / Jessica E. MINGINS in Autism, 25-1 (January 2021)  

Public ISBD [article]  inAutism > 25-1 (January 2021) . - p.18-32 Titre : Anxiety and intellectual functioning in autistic children: A systematic review and meta-analysis Type de document : texte imprimé Auteurs : Jessica E. MINGINS, Auteur ; Joanne TARVER, Auteur ; Jane WAITE, Auteur ; Chris JONES, Auteur ; Andrew SURTEES, Auteur Article en page(s) : p.18-32 Langues : Anglais (eng) Mots-clés : anxiety  autism  autism spectrum disorder  intelligence quotient  meta-analysis Index. décimale : PER Périodiques Résumé : Autistic children often experience higher levels of anxiety than their peers. It can be difficult to diagnose and treat anxiety disorders in autistic children, in part because of the high degree of variability in their underlying abilities and presentations. Some evidence suggests that autistic children with higher intelligence (as measured by intelligence quotient) experience higher levels of anxiety than autistic children with lower intelligence. However, the evidence is inconsistent, with other papers not finding a difference or finding higher levels of anxiety in autistic children with lower intelligence. In this article, we review existing literature to see whether autistic children with higher intelligence quotients have higher anxiety than autistic children with lower intelligence quotients. A systematic search of the literature was conducted which identified 49 papers on the topic. The methods of all the papers were reviewed using an objective quality assessment framework. When combining the data statistically, there was evidence that autistic children with higher intelligence quotients are more anxious than autistic children with lower intelligence quotients. The quality review raised common weaknesses across studies. Most importantly, few studies used measures of anxiety that have been shown to be valid for children with very low intelligence quotients. Similarly, many studies used measures of anxiety that have not been shown to be valid for autistic children. These factors are important because autistic children and those with low intelligence quotient may experience or understand anxiety differently. Future research should use fully validated measures to test whether high intelligence quotient is associated with high levels of anxiety in autistic children. En ligne : http://dx.doi.org/10.1177/1362361320953253 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437 [article] Anxiety and intellectual functioning in autistic children: A systematic review and meta-analysis [texte imprimé] / Jessica E. MINGINS, Auteur ; Joanne TARVER, Auteur ; Jane WAITE, Auteur ; Chris JONES, Auteur ; Andrew SURTEES, Auteur . - p.18-32. Langues : Anglais (eng) in Autism > 25-1 (January 2021) . - p.18-32 Mots-clés : anxiety  autism  autism spectrum disorder  intelligence quotient  meta-analysis Index. décimale : PER Périodiques Résumé : Autistic children often experience higher levels of anxiety than their peers. It can be difficult to diagnose and treat anxiety disorders in autistic children, in part because of the high degree of variability in their underlying abilities and presentations. Some evidence suggests that autistic children with higher intelligence (as measured by intelligence quotient) experience higher levels of anxiety than autistic children with lower intelligence. However, the evidence is inconsistent, with other papers not finding a difference or finding higher levels of anxiety in autistic children with lower intelligence. In this article, we review existing literature to see whether autistic children with higher intelligence quotients have higher anxiety than autistic children with lower intelligence quotients. A systematic search of the literature was conducted which identified 49 papers on the topic. The methods of all the papers were reviewed using an objective quality assessment framework. When combining the data statistically, there was evidence that autistic children with higher intelligence quotients are more anxious than autistic children with lower intelligence quotients. The quality review raised common weaknesses across studies. Most importantly, few studies used measures of anxiety that have been shown to be valid for children with very low intelligence quotients. Similarly, many studies used measures of anxiety that have not been shown to be valid for autistic children. These factors are important because autistic children and those with low intelligence quotient may experience or understand anxiety differently. Future research should use fully validated measures to test whether high intelligence quotient is associated with high levels of anxiety in autistic children. En ligne : http://dx.doi.org/10.1177/1362361320953253 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=437

Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management / Joanne TARVER in Autism, 25-2 (February 2021)  

Public ISBD [article]  inAutism > 25-2 (February 2021) . - p.429-439 Titre : Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management Type de document : texte imprimé Auteurs : Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Aryana SHIRAZI, Auteur ; Liana POTTER, Auteur ; Priya MALHI, Auteur ; Jane WAITE, Auteur Article en page(s) : p.429-439 Langues : Anglais (eng) Mots-clés : anxiety  autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : Anxiety is a common condition in autistic individuals, including those who also have an intellectual disability. Despite this, autistic individuals who have severe to profound intellectual disability, or use few or no words, are often excluded from autism research. There are also very few assessment tools and interventions with known effectiveness for autistic individuals with intellectual disability. In this study, we aimed to learn more about parent/carers experiences of recognising and managing anxiety in autistic individuals who use few or no words. We conducted semi-structured interviews with parents and carers to address three research questions: (1) what techniques and management strategies do parents describe for anxiety-related behaviour in their child; (2) how do communication difficulties impact parental understanding and management of anxiety provoking situations and behaviours; (3) what is the impact of anxiety-related behaviours on the quality of life of autistic individuals and their families? During the interviews, parents described difficulties recognising anxiety in their child, mostly due to reduced verbal language use and anxiety behaviours overlapping with other behaviours (e.g. autism characteristics). However, parents also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. We will use the findings of this study to inform future research to develop assessment tools and interventions for anxiety in autistic individuals who use few or no words. En ligne : http://dx.doi.org/10.1177/1362361320962366 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442 [article] Anxiety in autistic individuals who speak few or no words: A qualitative study of parental experience and anxiety management [texte imprimé] / Joanne TARVER, Auteur ; Effie PEARSON, Auteur ; Georgina EDWARDS, Auteur ; Aryana SHIRAZI, Auteur ; Liana POTTER, Auteur ; Priya MALHI, Auteur ; Jane WAITE, Auteur . - p.429-439. Langues : Anglais (eng) in Autism > 25-2 (February 2021) . - p.429-439 Mots-clés : anxiety  autism spectrum disorders  qualitative research Index. décimale : PER Périodiques Résumé : Anxiety is a common condition in autistic individuals, including those who also have an intellectual disability. Despite this, autistic individuals who have severe to profound intellectual disability, or use few or no words, are often excluded from autism research. There are also very few assessment tools and interventions with known effectiveness for autistic individuals with intellectual disability. In this study, we aimed to learn more about parent/carers experiences of recognising and managing anxiety in autistic individuals who use few or no words. We conducted semi-structured interviews with parents and carers to address three research questions: (1) what techniques and management strategies do parents describe for anxiety-related behaviour in their child; (2) how do communication difficulties impact parental understanding and management of anxiety provoking situations and behaviours; (3) what is the impact of anxiety-related behaviours on the quality of life of autistic individuals and their families? During the interviews, parents described difficulties recognising anxiety in their child, mostly due to reduced verbal language use and anxiety behaviours overlapping with other behaviours (e.g. autism characteristics). However, parents also described use of a number of management strategies, including some which overlap with components of evidence-based interventions for emotional and behavioural problems in autistic individuals (e.g. exposure/sensory calming). Despite this, parents reported that anxiety continues to have significant impact on quality of life. We will use the findings of this study to inform future research to develop assessment tools and interventions for anxiety in autistic individuals who use few or no words. En ligne : http://dx.doi.org/10.1177/1362361320962366 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=442

Behaviours that Challenge in SATB2-associated Syndrome: Correlates of Self-injury, Aggression and Property Destruction / Lauren SHELLEY in Journal of Autism and Developmental Disorders, 54-11 (November)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-11 (November) . - p.4179-4194 Titre : Behaviours that Challenge in SATB2-associated Syndrome: Correlates of Self-injury, Aggression and Property Destruction Type de document : texte imprimé Auteurs : Lauren SHELLEY, Auteur ; Jane WAITE, Auteur ; Joanne TARVER, Auteur ; Chris OLIVER, Auteur ; Hayley CRAWFORD, Auteur ; Caroline RICHARDS, Auteur ; Stacey BISSELL, Auteur Article en page(s) : p.4179-4194 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : SATB2-associated syndrome (SAS) is a genetic syndrome characterised by intellectual disability, severe speech delay, and palatal and dental problems. Behaviours that challenge (BtC) are reported frequently; however, there is limited research on specific forms of BtC and the correlates of these behaviours. The current study explores correlates of well-defined BtC, self-injury, aggression, and property destruction, in SAS. Eighty-one parents/caregivers of individuals with SAS (53.1% male, Mage 10.12 years) completed questionnaire measures of health, behavioural, emotional, and autism characteristics. Individuals with SAS were grouped based on caregiver responses to the presence or absence of self-injury, aggression, and property destruction on the Challenging Behaviour Questionnaire. Rates of self-injury, aggression and property destruction were 42%, 77% and 49%, respectively. Between-group comparisons were conducted to compare characteristics between behaviour groups. Significantly differing characteristics were entered into separate hierarchical logistic regressions for each form of BtC. Behavioural comparisons indicated variation in the characteristics associated with each behaviour. All hierarchical logistic regression models were significant (p < .001): self-injury ( 2(5) = 38.46, R2 = 0.571), aggression ( 2(4) = 25.12, R2 = 0.414), property destruction ( 2(4) = 23.70, R2 = 0.346), explaining between 34.6% and 57.1% of the variance in behaviour presence. This is the first study to identify correlates of self-injury, aggression, and property destruction in SAS. Variability in the characteristics associated with each behaviour highlights the importance of specificity when examining BtC. Understanding correlates of specific forms of BtC has important implications for informing SAS-associated pathways to behavioural outcomes and the implementation of tailored behavioural interventions. En ligne : https://doi.org/10.1007/s10803-023-06123-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537 [article] Behaviours that Challenge in SATB2-associated Syndrome: Correlates of Self-injury, Aggression and Property Destruction [texte imprimé] / Lauren SHELLEY, Auteur ; Jane WAITE, Auteur ; Joanne TARVER, Auteur ; Chris OLIVER, Auteur ; Hayley CRAWFORD, Auteur ; Caroline RICHARDS, Auteur ; Stacey BISSELL, Auteur . - p.4179-4194. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-11 (November) . - p.4179-4194 Index. décimale : PER Périodiques Résumé : SATB2-associated syndrome (SAS) is a genetic syndrome characterised by intellectual disability, severe speech delay, and palatal and dental problems. Behaviours that challenge (BtC) are reported frequently; however, there is limited research on specific forms of BtC and the correlates of these behaviours. The current study explores correlates of well-defined BtC, self-injury, aggression, and property destruction, in SAS. Eighty-one parents/caregivers of individuals with SAS (53.1% male, Mage 10.12 years) completed questionnaire measures of health, behavioural, emotional, and autism characteristics. Individuals with SAS were grouped based on caregiver responses to the presence or absence of self-injury, aggression, and property destruction on the Challenging Behaviour Questionnaire. Rates of self-injury, aggression and property destruction were 42%, 77% and 49%, respectively. Between-group comparisons were conducted to compare characteristics between behaviour groups. Significantly differing characteristics were entered into separate hierarchical logistic regressions for each form of BtC. Behavioural comparisons indicated variation in the characteristics associated with each behaviour. All hierarchical logistic regression models were significant (p < .001): self-injury ( 2(5) = 38.46, R2 = 0.571), aggression ( 2(4) = 25.12, R2 = 0.414), property destruction ( 2(4) = 23.70, R2 = 0.346), explaining between 34.6% and 57.1% of the variance in behaviour presence. This is the first study to identify correlates of self-injury, aggression, and property destruction in SAS. Variability in the characteristics associated with each behaviour highlights the importance of specificity when examining BtC. Understanding correlates of specific forms of BtC has important implications for informing SAS-associated pathways to behavioural outcomes and the implementation of tailored behavioural interventions. En ligne : https://doi.org/10.1007/s10803-023-06123-2 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=537

Child and parent outcomes following parent interventions for child emotional and behavioral problems in autism spectrum disorders: A systematic review and meta-analysis / Joanne TARVER in Autism, 23-7 (October 2019)  

Public ISBD [article]  inAutism > 23-7 (October 2019) . - p.1630-1644 Titre : Child and parent outcomes following parent interventions for child emotional and behavioral problems in autism spectrum disorders: A systematic review and meta-analysis Type de document : texte imprimé Auteurs : Joanne TARVER, Auteur ; Melanie PALMER, Auteur ; Sophie WEBB, Auteur ; Stephen SCOTT, Auteur ; Vicky SLONIMS, Auteur ; Emily SIMONOFF, Auteur ; Tony CHARMAN, Auteur Article en page(s) : p.1630-1644 Langues : Anglais (eng) Mots-clés : IAMHealth  autism spectrum disorder  emotional and behavioral problems  parent efficacy  parent stress  parent training Index. décimale : PER Périodiques Résumé : There is growing interest in the development of behavioral parent interventions targeting emotional and behavioral problems in children with autism spectrum disorders. Such interventions have potential to improve a number of child and parental well-being outcomes beyond disruptive child behavior. This systematic review and meta-analysis assesses evidence for the efficacy of behavioral parent interventions for disruptive and hyperactive child behavior in autism spectrum disorders, as well as parenting efficacy and stress. A total of 11 articles from nine randomized controlled trials were included. Sufficient data were available to calculate standardized mean difference and show favorable effects of behavioral parent interventions on parent-reported measures of child disruptive behavior (standardized mean difference = 0.67), hyperactivity (standardized mean difference = 0.31) and parent stress (standardized mean difference = 0.37); effects on parent efficacy are less clear (standardized mean difference = 0.39, p = 0.17). There were insufficient data to explore intervention effects on internalizing behavior in autism spectrum disorders, parenting behaviors, or observational and teacher-reported outcomes, providing important avenues for future research. This review adds to growing evidence of the efficacy of behavioral parent interventions for child behavior and parental well-being in autism spectrum disorders (Prospero: CRD42016033979). En ligne : http://dx.doi.org/10.1177/1362361319830042 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406 [article] Child and parent outcomes following parent interventions for child emotional and behavioral problems in autism spectrum disorders: A systematic review and meta-analysis [texte imprimé] / Joanne TARVER, Auteur ; Melanie PALMER, Auteur ; Sophie WEBB, Auteur ; Stephen SCOTT, Auteur ; Vicky SLONIMS, Auteur ; Emily SIMONOFF, Auteur ; Tony CHARMAN, Auteur . - p.1630-1644. Langues : Anglais (eng) in Autism > 23-7 (October 2019) . - p.1630-1644 Mots-clés : IAMHealth  autism spectrum disorder  emotional and behavioral problems  parent efficacy  parent stress  parent training Index. décimale : PER Périodiques Résumé : There is growing interest in the development of behavioral parent interventions targeting emotional and behavioral problems in children with autism spectrum disorders. Such interventions have potential to improve a number of child and parental well-being outcomes beyond disruptive child behavior. This systematic review and meta-analysis assesses evidence for the efficacy of behavioral parent interventions for disruptive and hyperactive child behavior in autism spectrum disorders, as well as parenting efficacy and stress. A total of 11 articles from nine randomized controlled trials were included. Sufficient data were available to calculate standardized mean difference and show favorable effects of behavioral parent interventions on parent-reported measures of child disruptive behavior (standardized mean difference = 0.67), hyperactivity (standardized mean difference = 0.31) and parent stress (standardized mean difference = 0.37); effects on parent efficacy are less clear (standardized mean difference = 0.39, p = 0.17). There were insufficient data to explore intervention effects on internalizing behavior in autism spectrum disorders, parenting behaviors, or observational and teacher-reported outcomes, providing important avenues for future research. This review adds to growing evidence of the efficacy of behavioral parent interventions for child behavior and parental well-being in autism spectrum disorders (Prospero: CRD42016033979). En ligne : http://dx.doi.org/10.1177/1362361319830042 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=406

Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale / Joanne TARVER in Journal of Autism and Developmental Disorders, 51-8 (August 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2812-2828 Titre : Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale Type de document : texte imprimé Auteurs : Joanne TARVER, Auteur ; Silia VITORATOU, Auteur ; Mathilde MASTROIANNI, Auteur ; Natalie HEANEY, Auteur ; Eleanor BENNETT, Auteur ; Felicity GIBBONS, Auteur ; Federico FIORI, Auteur ; Michael ABSOUD, Auteur ; Lakshmi RAMASUBRAMANIAN, Auteur ; Emily SIMONOFF, Auteur ; Paramala SANTOSH, Auteur Article en page(s) : p.2812-2828 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/diagnosis/psychology  Behavior Rating Scale  Caregivers/psychology  Child  Female  Humans  Male  Mental Health/trends  Parents/psychology  Problem Behavior/psychology  Psychometrics/methods  Reproducibility of Results  Surveys and Questionnaires  Young Adult  Autism spectrum disorder (ASD)  Emotional and behavioral problems  Instrument development and validation  Risk  F. Fiori is the Chief Technology Officer and shareholder in HealthTracker Ltd. Index. décimale : PER Périodiques Résumé : Although 70% of autistic children and young people meet criteria for co-occurring psychiatric conditions, there are few screening measures specifically for autistic individuals. We describe the development and validation of the Assessment of Concerning Behavior (ACB), an instrument co-developed with the autistic community to assess mental health and problematic/risky behaviors. Items include descriptions to facilitate symptom recognition by autistic people, and carers/professionals. The ACB was completed by 255 parents, 149 autistic children and young people and 30 teachers. Internal consistency, stability and validity was assessed. The ACB parent-version fit a two-factor model (internalizing and externalizing problems) and showed adequate test-retest reliability, internal consistency and construct validity. The ACB is a promising new measure for research and clinical use in autism. En ligne : http://dx.doi.org/10.1007/s10803-020-04748-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453 [article] Development and Psychometric Properties of a New Questionnaire to Assess Mental Health and Concerning Behaviors in Children and Young People with Autism Spectrum Disorder (ASD): The Assessment of Concerning Behavior (ACB) Scale [texte imprimé] / Joanne TARVER, Auteur ; Silia VITORATOU, Auteur ; Mathilde MASTROIANNI, Auteur ; Natalie HEANEY, Auteur ; Eleanor BENNETT, Auteur ; Felicity GIBBONS, Auteur ; Federico FIORI, Auteur ; Michael ABSOUD, Auteur ; Lakshmi RAMASUBRAMANIAN, Auteur ; Emily SIMONOFF, Auteur ; Paramala SANTOSH, Auteur . - p.2812-2828. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-8 (August 2021) . - p.2812-2828 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/diagnosis/psychology  Behavior Rating Scale  Caregivers/psychology  Child  Female  Humans  Male  Mental Health/trends  Parents/psychology  Problem Behavior/psychology  Psychometrics/methods  Reproducibility of Results  Surveys and Questionnaires  Young Adult  Autism spectrum disorder (ASD)  Emotional and behavioral problems  Instrument development and validation  Risk  F. Fiori is the Chief Technology Officer and shareholder in HealthTracker Ltd. Index. décimale : PER Périodiques Résumé : Although 70% of autistic children and young people meet criteria for co-occurring psychiatric conditions, there are few screening measures specifically for autistic individuals. We describe the development and validation of the Assessment of Concerning Behavior (ACB), an instrument co-developed with the autistic community to assess mental health and problematic/risky behaviors. Items include descriptions to facilitate symptom recognition by autistic people, and carers/professionals. The ACB was completed by 255 parents, 149 autistic children and young people and 30 teachers. Internal consistency, stability and validity was assessed. The ACB parent-version fit a two-factor model (internalizing and externalizing problems) and showed adequate test-retest reliability, internal consistency and construct validity. The ACB is a promising new measure for research and clinical use in autism. En ligne : http://dx.doi.org/10.1007/s10803-020-04748-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=453

Development and psychometric properties of the Clinical Anxiety Scale for People with Intellectual Disabilities (ClASP-ID) / Jessica Eliza MINGINS in Journal of Neurodevelopmental Disorders, 16 (2024)  

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Development of the Observation Schedule for Children with Autism-Anxiety, Behaviour and Parenting (OSCA-ABP): A New Measure of Child and Parenting Behavior for Use with Young Autistic Children / Melanie PALMER in Journal of Autism and Developmental Disorders, 51-1 (January 2021)  

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Feasibility study of the National Autistic Society EarlyBird parent support programme / Melanie PALMER in Autism, 24-1 (January 2020)  

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'It wasn't the strategies on their own': Exploring caregivers' experiences of accessing services in the development of interventions for autistic people with intellectual disability / Jessica HUGHES in Autism, 28-5 (May 2024)  

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Parent, Teacher and Observational Reports of Emotional and Behavioral Problems in Young Autistic Children / Melanie PALMER in Journal of Autism and Developmental Disorders, 53-1 (January 2023)  

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Utilising Interview Methodology to Inform the Development of New Clinical Assessment Tools for Anxiety in Autistic Individuals Who Speak Few or no Words / Georgina EDWARDS ; Joanne TARVER ; Lauren SHELLEY ; Megan BIRD ; Jessica HUGHES ; Hayley CRAWFORD ; Jane WAITE in Journal of Autism and Developmental Disorders, 53-6 (June 2023)  

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