Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system / P. IMM in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1927-1935 Titre : Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system Type de document : texte imprimé Auteurs : P. IMM, Auteur ; T. WHITE, Auteur ; Maureen S. DURKIN, Auteur Article en page(s) : p.1927-1935 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  epidemiology  health disparities  prevalence Index. décimale : PER Périodiques Résumé : This study assessed potential under-ascertainment of autism spectrum disorder due to missing administrative information for Hispanic and non-Hispanic Black children within the Autism and Developmental Disabilities Monitoring Network. We analyzed data from two Network sites (Colorado and Wisconsin) for surveillance years 2012 and 2014 to determine whether children excluded from autism spectrum disorder prevalence estimates due to missing residency and other information differed from those included by race and ethnicity. We used multiple approaches to impute missing information to evaluate impacts on racial and ethnic disparities in autism spectrum disorder prevalence. Compared with confirmed autism spectrum disorder cases, those excluded due to missing residency were more than twice as likely to be Hispanic (19% vs 44%; p < 0.002), yet the number of cases excluded due to missing residency information was too small to account for prevalence differences. Confirmation of autism spectrum disorder case status was more likely for children with relevant health records than for those with school records only. Moreover, relevant health records were more likely to be missing for Black and Hispanic children than for White children. Observed disparities in autism spectrum disorder prevalence were not accounted for by missing demographic data, but may reflect disparities in healthcare access for developmental evaluations. En ligne : http://dx.doi.org/10.1177/1362361319827510 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system [texte imprimé] / P. IMM, Auteur ; T. WHITE, Auteur ; Maureen S. DURKIN, Auteur . - p.1927-1935. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1927-1935 Mots-clés : autism spectrum disorders  epidemiology  health disparities  prevalence Index. décimale : PER Périodiques Résumé : This study assessed potential under-ascertainment of autism spectrum disorder due to missing administrative information for Hispanic and non-Hispanic Black children within the Autism and Developmental Disabilities Monitoring Network. We analyzed data from two Network sites (Colorado and Wisconsin) for surveillance years 2012 and 2014 to determine whether children excluded from autism spectrum disorder prevalence estimates due to missing residency and other information differed from those included by race and ethnicity. We used multiple approaches to impute missing information to evaluate impacts on racial and ethnic disparities in autism spectrum disorder prevalence. Compared with confirmed autism spectrum disorder cases, those excluded due to missing residency were more than twice as likely to be Hispanic (19% vs 44%; p < 0.002), yet the number of cases excluded due to missing residency information was too small to account for prevalence differences. Confirmation of autism spectrum disorder case status was more likely for children with relevant health records than for those with school records only. Moreover, relevant health records were more likely to be missing for Black and Hispanic children than for White children. Observed disparities in autism spectrum disorder prevalence were not accounted for by missing demographic data, but may reflect disparities in healthcare access for developmental evaluations. En ligne : http://dx.doi.org/10.1177/1362361319827510 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide / Maureen S. DURKIN in Autism Research, 8-5 (October 2015)  

Public ISBD [article]  inAutism Research > 8-5 (October 2015) . - p.473-476 Titre : Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide Type de document : texte imprimé Auteurs : Maureen S. DURKIN, Auteur ; Mayada ELSABBAGH, Auteur ; Josephine BARBARO, Auteur ; Melissa GLADSTONE, Auteur ; Francesca HAPPE, Auteur ; Rosa A. HOEKSTRA, Auteur ; Li-Ching LEE, Auteur ; Alexia RATTAZZI, Auteur ; Jennifer STAPEL-WAX, Auteur ; Wendy L. STONE, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Audrey THURM, Auteur ; Mark TOMLINSON, Auteur ; Andy SHIH, Auteur Article en page(s) : p.473-476 Langues : Anglais (eng) Mots-clés : diagnosis  early detection  epidemiology  intervention Index. décimale : PER Périodiques Résumé : Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1575 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269 [article] Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide [texte imprimé] / Maureen S. DURKIN, Auteur ; Mayada ELSABBAGH, Auteur ; Josephine BARBARO, Auteur ; Melissa GLADSTONE, Auteur ; Francesca HAPPE, Auteur ; Rosa A. HOEKSTRA, Auteur ; Li-Ching LEE, Auteur ; Alexia RATTAZZI, Auteur ; Jennifer STAPEL-WAX, Auteur ; Wendy L. STONE, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Audrey THURM, Auteur ; Mark TOMLINSON, Auteur ; Andy SHIH, Auteur . - p.473-476. Langues : Anglais (eng) in Autism Research > 8-5 (October 2015) . - p.473-476 Mots-clés : diagnosis  early detection  epidemiology  intervention Index. décimale : PER Périodiques Résumé : Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1575 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269

Autism spectrum disorder reporting in lower socioeconomic neighborhoods / Aisha S. DICKERSON in Autism, 21-4 (May 2017)  

Public ISBD [article]  inAutism > 21-4 (May 2017) . - p.470-480 Titre : Autism spectrum disorder reporting in lower socioeconomic neighborhoods Type de document : texte imprimé Auteurs : Aisha S. DICKERSON, Auteur ; Mohammad H RAHBAR, Auteur ; Deborah A PEARSON, Auteur ; Russell S KIRBY, Auteur ; Amanda V. BAKIAN, Auteur ; Deborah A. BILDER, Auteur ; Rebecca A HARRINGTON, Auteur ; Sydney PETTYGROVE, Auteur ; Walter ZAHORODNY, Auteur ; III LEMUEL A MOYÉ, Auteur ; Maureen S. DURKIN, Auteur ; Martha Slay WINGATE, Auteur Article en page(s) : p.470-480 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  disparities  prevalence  school-age children Index. décimale : PER Périodiques Résumé : Utilizing surveillance data from five sites participating in the Autism and Developmental Disabilities Monitoring Network, we investigated contributions of surveillance subject and census tract population sociodemographic characteristics on variation in autism spectrum disorder ascertainment and prevalence estimates from 2000 to 2008 using ordinal hierarchical models for 2489 tracts. Multivariable analyses showed a significant increase in ascertainment of autism spectrum disorder cases through both school and health sources, the optimal ascertainment scenario, for cases with college-educated mothers (adjusted odds ratio = 1.06, 95% confidence interval = 1.02–1.09). Results from our examination of sociodemographic factors of tract populations from which cases were drawn also showed that after controlling for other covariates, statistical significance remained for associations between optimal ascertainment and percentage of Hispanic residents (adjusted odds ratio = 0.93, 95% confidence interval = 0.88–0.99) and percentage of residents with at least a bachelor’s degree (adjusted odds ratio = 1.06, 95% confidence interval = 1.01–1.11). We identified sociodemographic factors associated with autism spectrum disorder prevalence estimates including race, ethnicity, education, and income. Determining which specific factors influence disparities is complicated; however, it appears that even in the presence of education, racial and ethnic disparities are still apparent. These results suggest disparities in access to autism spectrum disorder assessments and special education for autism spectrum disorder among ethnic groups may impact subsequent surveillance. En ligne : http://dx.doi.org/10.1177/1362361316650091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305 [article] Autism spectrum disorder reporting in lower socioeconomic neighborhoods [texte imprimé] / Aisha S. DICKERSON, Auteur ; Mohammad H RAHBAR, Auteur ; Deborah A PEARSON, Auteur ; Russell S KIRBY, Auteur ; Amanda V. BAKIAN, Auteur ; Deborah A. BILDER, Auteur ; Rebecca A HARRINGTON, Auteur ; Sydney PETTYGROVE, Auteur ; Walter ZAHORODNY, Auteur ; III LEMUEL A MOYÉ, Auteur ; Maureen S. DURKIN, Auteur ; Martha Slay WINGATE, Auteur . - p.470-480. Langues : Anglais (eng) in Autism > 21-4 (May 2017) . - p.470-480 Mots-clés : autism spectrum disorders  diagnosis  disparities  prevalence  school-age children Index. décimale : PER Périodiques Résumé : Utilizing surveillance data from five sites participating in the Autism and Developmental Disabilities Monitoring Network, we investigated contributions of surveillance subject and census tract population sociodemographic characteristics on variation in autism spectrum disorder ascertainment and prevalence estimates from 2000 to 2008 using ordinal hierarchical models for 2489 tracts. Multivariable analyses showed a significant increase in ascertainment of autism spectrum disorder cases through both school and health sources, the optimal ascertainment scenario, for cases with college-educated mothers (adjusted odds ratio = 1.06, 95% confidence interval = 1.02–1.09). Results from our examination of sociodemographic factors of tract populations from which cases were drawn also showed that after controlling for other covariates, statistical significance remained for associations between optimal ascertainment and percentage of Hispanic residents (adjusted odds ratio = 0.93, 95% confidence interval = 0.88–0.99) and percentage of residents with at least a bachelor’s degree (adjusted odds ratio = 1.06, 95% confidence interval = 1.01–1.11). We identified sociodemographic factors associated with autism spectrum disorder prevalence estimates including race, ethnicity, education, and income. Determining which specific factors influence disparities is complicated; however, it appears that even in the presence of education, racial and ethnic disparities are still apparent. These results suggest disparities in access to autism spectrum disorder assessments and special education for autism spectrum disorder among ethnic groups may impact subsequent surveillance. En ligne : http://dx.doi.org/10.1177/1362361316650091 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=305

Behavioral problems in children with autism spectrum disorder with and without co-occurring intellectual disability / Margaret KURZIUS-SPENCER in Research in Autism Spectrum Disorders, 56 (December 2018)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 56 (December 2018) . - p.61-71 Titre : Behavioral problems in children with autism spectrum disorder with and without co-occurring intellectual disability Type de document : texte imprimé Auteurs : Margaret KURZIUS-SPENCER, Auteur ; Sydney PETTYGROVE, Auteur ; Deborah CHRISTENSEN, Auteur ; Anita L. PEDERSEN, Auteur ; Christopher CUNNIFF, Auteur ; F. John MEANEY, Auteur ; Gnakub Norbert SOKE, Auteur ; Rebecca A. HARRINGTON, Auteur ; Maureen S. DURKIN, Auteur ; Sydney RICE, Auteur Article en page(s) : p.61-71 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Intellectual disability  Self-injurious behavior  Problem behaviors  Autism and developmental disabilities monitoring network  Children Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD), intellectual disability (ID), and behavioral problems commonly co-occur, leading to increased impairment, diagnostic confusion, and treatment delays. Using data from a large surveillance population of children with ASD, the objectives of the present study were to compare the relative risk of common behavioral problems in children with ASD, with and without co-occurring intellectual disability. Methods Data from the Autism and Developmental Disabilities Monitoring (ADDM) Network (2006–2010) on 9378 8-year-old children who met case definition for ASD and had cognitive test scores and information on behavioral problems were analyzed using frequency measures, risk ratios, chi-squared tests, and trend tests. Results Children with ASD with and without ID had on average six co-occurring behavioral problems. The relative risk (RR) of self-injurious behaviors, unusual fear responses, and eating abnormalities increased with increasing cognitive impairment among children with ASD and ID (all p<0.001). Conversely, RR of mood (p<0.001) and sleep abnormalities (p=0.013) declined with increasing levels of cognitive impairment. Conclusions Children with ASD and ID are at greater risk of some behavioral problems and lower risk of others as compared to children with ASD only. Successful interventions depend on understanding the complex interactions between co-occurring neurodevelopmental and behavioral problems. En ligne : https://doi.org/10.1016/j.rasd.2018.09.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369 [article] Behavioral problems in children with autism spectrum disorder with and without co-occurring intellectual disability [texte imprimé] / Margaret KURZIUS-SPENCER, Auteur ; Sydney PETTYGROVE, Auteur ; Deborah CHRISTENSEN, Auteur ; Anita L. PEDERSEN, Auteur ; Christopher CUNNIFF, Auteur ; F. John MEANEY, Auteur ; Gnakub Norbert SOKE, Auteur ; Rebecca A. HARRINGTON, Auteur ; Maureen S. DURKIN, Auteur ; Sydney RICE, Auteur . - p.61-71. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 56 (December 2018) . - p.61-71 Mots-clés : Autism spectrum disorder  Intellectual disability  Self-injurious behavior  Problem behaviors  Autism and developmental disabilities monitoring network  Children Index. décimale : PER Périodiques Résumé : Background Autism spectrum disorder (ASD), intellectual disability (ID), and behavioral problems commonly co-occur, leading to increased impairment, diagnostic confusion, and treatment delays. Using data from a large surveillance population of children with ASD, the objectives of the present study were to compare the relative risk of common behavioral problems in children with ASD, with and without co-occurring intellectual disability. Methods Data from the Autism and Developmental Disabilities Monitoring (ADDM) Network (2006–2010) on 9378 8-year-old children who met case definition for ASD and had cognitive test scores and information on behavioral problems were analyzed using frequency measures, risk ratios, chi-squared tests, and trend tests. Results Children with ASD with and without ID had on average six co-occurring behavioral problems. The relative risk (RR) of self-injurious behaviors, unusual fear responses, and eating abnormalities increased with increasing cognitive impairment among children with ASD and ID (all p<0.001). Conversely, RR of mood (p<0.001) and sleep abnormalities (p=0.013) declined with increasing levels of cognitive impairment. Conclusions Children with ASD and ID are at greater risk of some behavioral problems and lower risk of others as compared to children with ASD only. Successful interventions depend on understanding the complex interactions between co-occurring neurodevelopmental and behavioral problems. En ligne : https://doi.org/10.1016/j.rasd.2018.09.002 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=369

Brief Report: Association Between Behavioral Features and Gastrointestinal Problems Among Children with Autism Spectrum Disorder / Matthew J. MAENNER in Journal of Autism and Developmental Disorders, 42-7 (July 2012)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 42-7 (July 2012) . - p.1520-1525 Titre : Brief Report: Association Between Behavioral Features and Gastrointestinal Problems Among Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Matthew J. MAENNER, Auteur ; Carrie L. ARNESON, Auteur ; Susan E. LEVY, Auteur ; Russell S. KIRBY, Auteur ; Joyce S. NICHOLAS, Auteur ; Maureen S. DURKIN, Auteur Année de publication : 2012 Article en page(s) : p.1520-1525 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Gastrointestinal  Trouble gastrointestinal Index. décimale : PER Périodiques Résumé : Recent reports suggest certain behaviors among children with autism spectrum disorders (ASD) may indicate underlying gastro-intestinal (GI) problems, and that the presence of these behaviors may help alert primary care providers to the need to evaluate a child with ASD for GI problems. The purpose of this population-based study of 487 children with ASD, including 35 (7.2%) with a medically documented history of GI problems, was to compare behavioral features of children with and without a history of GI problems. Unusual sleeping or eating habits and oppositional behavior were significantly associated with GI problems. These behaviors, however, were frequent in both children with and without GI problems, suggesting they may have limited utility in a screening capacity for GI problems. En ligne : http://dx.doi.org/10.1007/s10803-011-1379-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=166 [article] Brief Report: Association Between Behavioral Features and Gastrointestinal Problems Among Children with Autism Spectrum Disorder [texte imprimé] / Matthew J. MAENNER, Auteur ; Carrie L. ARNESON, Auteur ; Susan E. LEVY, Auteur ; Russell S. KIRBY, Auteur ; Joyce S. NICHOLAS, Auteur ; Maureen S. DURKIN, Auteur . - 2012 . - p.1520-1525. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 42-7 (July 2012) . - p.1520-1525 Mots-clés : Autism spectrum disorder  Gastrointestinal  Trouble gastrointestinal Index. décimale : PER Périodiques Résumé : Recent reports suggest certain behaviors among children with autism spectrum disorders (ASD) may indicate underlying gastro-intestinal (GI) problems, and that the presence of these behaviors may help alert primary care providers to the need to evaluate a child with ASD for GI problems. The purpose of this population-based study of 487 children with ASD, including 35 (7.2%) with a medically documented history of GI problems, was to compare behavioral features of children with and without a history of GI problems. Unusual sleeping or eating habits and oppositional behavior were significantly associated with GI problems. These behaviors, however, were frequent in both children with and without GI problems, suggesting they may have limited utility in a screening capacity for GI problems. En ligne : http://dx.doi.org/10.1007/s10803-011-1379-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=166

Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study / Gnakub N. SOKE in Journal of Autism and Developmental Disorders, 46-11 (November 2016)  

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Comparison of Perinatal Risk Factors Associated with Autism Spectrum Disorder (ASD), Intellectual Disability (ID), and Co-occurring ASD and ID / Laura A. SCHIEVE in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

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Disparities in Documented Diagnoses of Autism Spectrum Disorder Based on Demographic, Individual, and Service Factors / Lisa D. WIGGINS in Autism Research, 13-3 (March 2020)  

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Expanding Research on Contextual Factors in Autism Research: What Took Us So Long? / Teresa BENNETT ; Leann S. DAWALT ; Maureen S. DURKIN ; Gordon FORBES ; Patricia HOWLIN ; Catherine LORD ; Anat ZAIDMAN-ZAIT ; Lonnie ZWAIGENBAUM ; Vanessa H. BAL ; Somer L. BISHOP ; Chung-Hsin CHIANG ; Adriana DIMARTINO ; Christine M. FREITAG ; Stelios GEORGIADES ; Matthew HOLLOCKS ; Meng-Chuan LAI ; Matthew J. MAENNER ; Patrick S. POWELL ; Julie Lounds TAYLOR ; Alycia HALLADAY in Autism Research, 18-4 (April 2025)  

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Factors Associated with Self-Injurious Behaviors in Children with Autism Spectrum Disorder: Findings from Two Large National Samples / G. N. SOKE in Journal of Autism and Developmental Disorders, 47-2 (February 2017)  

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Global prevalence of autism: A systematic review update / Jinan ZEIDAN in Autism Research, 15-5 (May 2022)  

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Inter-Pregnancy Intervals and the Risk of Autism Spectrum Disorder: Results of a Population-Based Study / Maureen S. DURKIN in Journal of Autism and Developmental Disorders, 45-7 (July 2015)  

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A Preliminary Epidemiologic Study of Social (Pragmatic) Communication Disorder Relative to Autism Spectrum Disorder and Developmental Disability Without Social Communication Deficits / S. ELLIS WEISMER in Journal of Autism and Developmental Disorders, 51-8 (August 2021)  

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Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder / Gnakub Norbert SOKE in Research in Autism Spectrum Disorders, 61 (May 2019)  

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Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning / Sarah M. FURNIER in Autism Research, 17-3 (March 2024)  

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