Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide / Maureen S. DURKIN in Autism Research, 8-5 (October 2015)  

Public ISBD [article]  inAutism Research > 8-5 (October 2015) . - p.473-476 Titre : Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide Type de document : Texte imprimé et/ou numérique Auteurs : Maureen S. DURKIN, Auteur ; Mayada ELSABBAGH, Auteur ; Josephine BARBARO, Auteur ; Melissa GLADSTONE, Auteur ; Francesca HAPPE, Auteur ; Rosa A. HOEKSTRA, Auteur ; Li-Ching LEE, Auteur ; Alexia RATTAZZI, Auteur ; Jennifer STAPEL-WAX, Auteur ; Wendy L. STONE, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Audrey THURM, Auteur ; Mark TOMLINSON, Auteur ; Andy SHIH, Auteur Article en page(s) : p.473-476 Langues : Anglais (eng) Mots-clés : diagnosis  early detection  epidemiology  intervention Index. décimale : PER Périodiques Résumé : Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1575 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269 [article] Autism screening and diagnosis in low resource settings: Challenges and opportunities to enhance research and services worldwide [Texte imprimé et/ou numérique] / Maureen S. DURKIN, Auteur ; Mayada ELSABBAGH, Auteur ; Josephine BARBARO, Auteur ; Melissa GLADSTONE, Auteur ; Francesca HAPPE, Auteur ; Rosa A. HOEKSTRA, Auteur ; Li-Ching LEE, Auteur ; Alexia RATTAZZI, Auteur ; Jennifer STAPEL-WAX, Auteur ; Wendy L. STONE, Auteur ; Helen TAGER-FLUSBERG, Auteur ; Audrey THURM, Auteur ; Mark TOMLINSON, Auteur ; Andy SHIH, Auteur . - p.473-476. Langues : Anglais (eng) in Autism Research > 8-5 (October 2015) . - p.473-476 Mots-clés : diagnosis  early detection  epidemiology  intervention Index. décimale : PER Périodiques Résumé : Most research into the epidemiology, etiology, clinical manifestations, diagnosis and treatment of autism is based on studies in high income countries. Moreover, within high income countries, individuals of high socioeconomic status are disproportionately represented among participants in autism research. Corresponding disparities in access to autism screening, diagnosis, and treatment exist globally. One of the barriers perpetuating this imbalance is the high cost of proprietary tools for diagnosing autism and for delivering evidence-based therapies. Another barrier is the high cost of training of professionals and para-professionals to use the tools. Open-source and open access models provide a way to facilitate global collaboration and training. Using these models and technologies, the autism scientific community and clinicians worldwide should be able to work more effectively and efficiently than they have to date to address the global imbalance in autism knowledge and at the same time advance our understanding of autism and our ability to deliver cost-effective services to everyone in need. Autism Res 2015, 8: 473–476. © 2015 International Society for Autism Research, Wiley Periodicals, Inc. En ligne : http://dx.doi.org/10.1002/aur.1575 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=269

Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study / Gnakub N. SOKE in Journal of Autism and Developmental Disorders, 46-11 (November 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-11 (November 2016) . - p.3607-3614 Titre : Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study Type de document : Texte imprimé et/ou numérique Auteurs : Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; Cordelia ROBINSON, Auteur ; Laura A. CARPENTER, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur Article en page(s) : p.3607-3614 Langues : Anglais (eng) Mots-clés : Self-injurious behaviors  Autism  Autism spectrum disorder  Prevalence  Challenging behaviors Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) have been reported in more than 30 % of children with an autism spectrum disorder (ASD) in clinic-based studies. This study estimated the prevalence of SIB in a large population-based sample of children with ASD in the United States. A total of 8065 children who met the surveillance case definition for ASD in the Autism and Developmental Disabilities Monitoring (ADDM) Network during the 2000, 2006, and 2008 surveillance years were included. The presence of SIB was reported from available health and/or educational records by an expert clinician in ADDM Network. SIB prevalence averaged 27.7 % across all sites and surveillance years, with some variation between sites. Clinicians should inquire about SIB during assessments of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2879-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294 [article] Brief Report: Prevalence of Self-injurious Behaviors among Children with Autism Spectrum Disorder—A Population-Based Study [Texte imprimé et/ou numérique] / Gnakub N. SOKE, Auteur ; Steven A. ROSENBERG, Auteur ; Richard F. HAMMAN, Auteur ; Tasha FINGERLIN, Auteur ; Cordelia ROBINSON, Auteur ; Laura A. CARPENTER, Auteur ; Ellen GIARELLI, Auteur ; Li-Ching LEE, Auteur ; Lisa D. WIGGINS, Auteur ; Maureen S. DURKIN, Auteur ; Carolyn G. DIGUISEPPI, Auteur . - p.3607-3614. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-11 (November 2016) . - p.3607-3614 Mots-clés : Self-injurious behaviors  Autism  Autism spectrum disorder  Prevalence  Challenging behaviors Index. décimale : PER Périodiques Résumé : Self-injurious behaviors (SIB) have been reported in more than 30 % of children with an autism spectrum disorder (ASD) in clinic-based studies. This study estimated the prevalence of SIB in a large population-based sample of children with ASD in the United States. A total of 8065 children who met the surveillance case definition for ASD in the Autism and Developmental Disabilities Monitoring (ADDM) Network during the 2000, 2006, and 2008 surveillance years were included. The presence of SIB was reported from available health and/or educational records by an expert clinician in ADDM Network. SIB prevalence averaged 27.7 % across all sites and surveillance years, with some variation between sites. Clinicians should inquire about SIB during assessments of children with ASD. En ligne : http://dx.doi.org/10.1007/s10803-016-2879-1 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=294

Comparison of Perinatal Risk Factors Associated with Autism Spectrum Disorder (ASD), Intellectual Disability (ID), and Co-occurring ASD and ID / Laura A. SCHIEVE in Journal of Autism and Developmental Disorders, 45-8 (August 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2361-2372 Titre : Comparison of Perinatal Risk Factors Associated with Autism Spectrum Disorder (ASD), Intellectual Disability (ID), and Co-occurring ASD and ID Type de document : Texte imprimé et/ou numérique Auteurs : Laura A. SCHIEVE, Auteur ; Heather B. CLAYTON, Auteur ; Maureen S. DURKIN, Auteur ; Martha S. WINGATE, Auteur ; Carolyn DREWS-BOTSCH, Auteur Année de publication : 2015 Article en page(s) : p.2361-2372 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Intellectual disability  Preterm birth  Low birth weight  Intrauterine growth retardation  Risk factors Index. décimale : PER Périodiques Résumé : While studies report associations between perinatal outcomes and both autism spectrum disorder (ASD) and intellectual disability (ID), there has been little study of ASD with versus without co-occurring ID. We compared perinatal risk factors among 7547 children in the 2006–2010 Autism and Developmental Disability Monitoring Network classified as having ASD + ID, ASD only, and ID only. Children in all three groups had higher rates of preterm birth (PTB), low birth weight, small-for-gestational-age, and low Apgar score than expected based on the US birth cohort adjusted for key socio-demographic factors. Associations with most factors, especially PTB, were stronger for children with ID only than children with ASD + ID or ASD only. Associations were similar for children with ASD + ID and ASD only. En ligne : http://dx.doi.org/10.1007/s10803-015-2402-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263 [article] Comparison of Perinatal Risk Factors Associated with Autism Spectrum Disorder (ASD), Intellectual Disability (ID), and Co-occurring ASD and ID [Texte imprimé et/ou numérique] / Laura A. SCHIEVE, Auteur ; Heather B. CLAYTON, Auteur ; Maureen S. DURKIN, Auteur ; Martha S. WINGATE, Auteur ; Carolyn DREWS-BOTSCH, Auteur . - 2015 . - p.2361-2372. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-8 (August 2015) . - p.2361-2372 Mots-clés : Autism spectrum disorder  Intellectual disability  Preterm birth  Low birth weight  Intrauterine growth retardation  Risk factors Index. décimale : PER Périodiques Résumé : While studies report associations between perinatal outcomes and both autism spectrum disorder (ASD) and intellectual disability (ID), there has been little study of ASD with versus without co-occurring ID. We compared perinatal risk factors among 7547 children in the 2006–2010 Autism and Developmental Disability Monitoring Network classified as having ASD + ID, ASD only, and ID only. Children in all three groups had higher rates of preterm birth (PTB), low birth weight, small-for-gestational-age, and low Apgar score than expected based on the US birth cohort adjusted for key socio-demographic factors. Associations with most factors, especially PTB, were stronger for children with ID only than children with ASD + ID or ASD only. Associations were similar for children with ASD + ID and ASD only. En ligne : http://dx.doi.org/10.1007/s10803-015-2402-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=263

Global prevalence of autism: A systematic review update / Jinan ZEIDAN in Autism Research, 15-5 (May 2022)  

Public ISBD [article]  inAutism Research > 15-5 (May 2022) . - p.778-790 Titre : Global prevalence of autism: A systematic review update Type de document : Texte imprimé et/ou numérique Auteurs : Jinan ZEIDAN, Auteur ; Eric FOMBONNE, Auteur ; Julie SCORAH, Auteur ; Alaa IBRAHIM, Auteur ; Maureen S. DURKIN, Auteur ; Shekhar SAXENA, Auteur ; Afiqah YUSUF, Auteur ; Andy SHIH, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.778-790 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/epidemiology  Child  Ethnicity  Female  Humans  Male  Population Surveillance/methods  Prevalence  autism  methodology  risk factors  social determinants  time trends Index. décimale : PER Périodiques Résumé : Prevalence estimates of autism are essential for informing public policy, raising awareness, and developing research priorities. Using a systematic review, we synthesized estimates of the prevalence of autism worldwide. We examined factors accounting for variability in estimates and critically reviewed evidence relevant for hypotheses about biological or social determinants (viz., biological sex, sociodemographic status, ethnicity/race, and nativity) potentially modifying prevalence estimates of autism. We performed the search in November 2021 within Medline for studies estimating autism prevalence, published since our last systematic review in 2012. Data were extracted by two independent researchers. Since 2012, 99 estimates from 71 studies were published indicating a global autism prevalence that ranges within and across regions, with a median prevalence of 100/10,000 (range: 1.09/10,000 to 436.0/10,000). The median male-to-female ratio was 4.2. The median percentage of autism cases with co-occurring intellectual disability was 33.0%. Estimates varied, likely reflecting complex and dynamic interactions between patterns of community awareness, service capacity, help seeking, and sociodemographic factors. A limitation of this review is that synthesizing methodological features precludes a quality appraisal of studies. Our findings reveal an increase in measured autism prevalence globally, reflecting the combined effects of multiple factors including the increase in community awareness and public health response globally, progress in case identification and definition, and an increase in community capacity. Hypotheses linking factors that increase the likelihood of developing autism with variations in prevalence will require research with large, representative samples and comparable autism diagnostic criteria and case-finding methods in diverse world regions over time. LAY SUMMARY: We reviewed studies of the prevalence of autism worldwide, considering the impact of geographic, ethnic, and socioeconomic factors on prevalence estimates. Approximately 1/100 children are diagnosed with autism spectrum disorder around the world. Prevalence estimates increased over time and varied greatly within and across sociodemographic groups. These findings reflect changes in the definition of autism and differences in the methodology and contexts of prevalence studies. En ligne : http://dx.doi.org/10.1002/aur.2696 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Global prevalence of autism: A systematic review update [Texte imprimé et/ou numérique] / Jinan ZEIDAN, Auteur ; Eric FOMBONNE, Auteur ; Julie SCORAH, Auteur ; Alaa IBRAHIM, Auteur ; Maureen S. DURKIN, Auteur ; Shekhar SAXENA, Auteur ; Afiqah YUSUF, Auteur ; Andy SHIH, Auteur ; Mayada ELSABBAGH, Auteur . - p.778-790. Langues : Anglais (eng) in Autism Research > 15-5 (May 2022) . - p.778-790 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/epidemiology  Child  Ethnicity  Female  Humans  Male  Population Surveillance/methods  Prevalence  autism  methodology  risk factors  social determinants  time trends Index. décimale : PER Périodiques Résumé : Prevalence estimates of autism are essential for informing public policy, raising awareness, and developing research priorities. Using a systematic review, we synthesized estimates of the prevalence of autism worldwide. We examined factors accounting for variability in estimates and critically reviewed evidence relevant for hypotheses about biological or social determinants (viz., biological sex, sociodemographic status, ethnicity/race, and nativity) potentially modifying prevalence estimates of autism. We performed the search in November 2021 within Medline for studies estimating autism prevalence, published since our last systematic review in 2012. Data were extracted by two independent researchers. Since 2012, 99 estimates from 71 studies were published indicating a global autism prevalence that ranges within and across regions, with a median prevalence of 100/10,000 (range: 1.09/10,000 to 436.0/10,000). The median male-to-female ratio was 4.2. The median percentage of autism cases with co-occurring intellectual disability was 33.0%. Estimates varied, likely reflecting complex and dynamic interactions between patterns of community awareness, service capacity, help seeking, and sociodemographic factors. A limitation of this review is that synthesizing methodological features precludes a quality appraisal of studies. Our findings reveal an increase in measured autism prevalence globally, reflecting the combined effects of multiple factors including the increase in community awareness and public health response globally, progress in case identification and definition, and an increase in community capacity. Hypotheses linking factors that increase the likelihood of developing autism with variations in prevalence will require research with large, representative samples and comparable autism diagnostic criteria and case-finding methods in diverse world regions over time. LAY SUMMARY: We reviewed studies of the prevalence of autism worldwide, considering the impact of geographic, ethnic, and socioeconomic factors on prevalence estimates. Approximately 1/100 children are diagnosed with autism spectrum disorder around the world. Prevalence estimates increased over time and varied greatly within and across sociodemographic groups. These findings reflect changes in the definition of autism and differences in the methodology and contexts of prevalence studies. En ligne : http://dx.doi.org/10.1002/aur.2696 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

Inter-Pregnancy Intervals and the Risk of Autism Spectrum Disorder: Results of a Population-Based Study / Maureen S. DURKIN in Journal of Autism and Developmental Disorders, 45-7 (July 2015)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2056-2066 Titre : Inter-Pregnancy Intervals and the Risk of Autism Spectrum Disorder: Results of a Population-Based Study Type de document : Texte imprimé et/ou numérique Auteurs : Maureen S. DURKIN, Auteur ; Lindsay A. DUBOIS, Auteur ; Matthew J. MAENNER, Auteur Année de publication : 2015 Article en page(s) : p.2056-2066 Langues : Anglais (eng) Mots-clés : Autism  Pregnancy intervals  Epidemiology  Risk factors Index. décimale : PER Périodiques Résumé : Recent studies have reported an increased risk of autism among second-born children conceived <12 versus >36 months after the birth of a sibling. Confirmation of this finding would point to inter-pregnancy interval (IPI) as a potentially modifiable risk factor for autism. This study evaluated the relationship between IPI and autism spectrum disorder (ASD) risk in a Wisconsin birth cohort of 31,467 second-born children, of whom 160 resided in the study area and were found to have ASD at age 8 years. In adjusted analyses, both short (<12) and long (>84 month) IPIs were associated with a two-fold risk of ASD relative to IPIs of 24–47 months (p < 0.05). The long IPI association was partially confounded by history of previous pregnancy loss. En ligne : http://dx.doi.org/10.1007/s10803-015-2368-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261 [article] Inter-Pregnancy Intervals and the Risk of Autism Spectrum Disorder: Results of a Population-Based Study [Texte imprimé et/ou numérique] / Maureen S. DURKIN, Auteur ; Lindsay A. DUBOIS, Auteur ; Matthew J. MAENNER, Auteur . - 2015 . - p.2056-2066. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 45-7 (July 2015) . - p.2056-2066 Mots-clés : Autism  Pregnancy intervals  Epidemiology  Risk factors Index. décimale : PER Périodiques Résumé : Recent studies have reported an increased risk of autism among second-born children conceived <12 versus >36 months after the birth of a sibling. Confirmation of this finding would point to inter-pregnancy interval (IPI) as a potentially modifiable risk factor for autism. This study evaluated the relationship between IPI and autism spectrum disorder (ASD) risk in a Wisconsin birth cohort of 31,467 second-born children, of whom 160 resided in the study area and were found to have ASD at age 8 years. In adjusted analyses, both short (<12) and long (>84 month) IPIs were associated with a two-fold risk of ASD relative to IPIs of 24–47 months (p < 0.05). The long IPI association was partially confounded by history of previous pregnancy loss. En ligne : http://dx.doi.org/10.1007/s10803-015-2368-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=261

Prenatal, perinatal, and neonatal factors associated with self-injurious behaviors in children with autism spectrum disorder / Gnakub Norbert SOKE in Research in Autism Spectrum Disorders, 61 (May 2019)  

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Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning / Sarah M. FURNIER in Autism Research, 17-3 (March 2024)  

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The time has come for living systematic reviews in autism research / Mayada ELSABBAGH in Autism Research, 15-7 (July 2022)  

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The validity and usefulness of public health surveillance of autism spectrum disorder / Maureen S. DURKIN in Autism, 19-1 (January 2015)  

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Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development / Sarah M. FURNIER in Autism, 28-5 (May 2024)  

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