Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group / Laura GRAHAM HOLMES in Journal of Autism and Developmental Disorders, 50-8 (August 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.3018-3031 Titre : Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group Type de document : Texte imprimé et/ou numérique Auteurs : Laura GRAHAM HOLMES, Auteur ; Donald S STRASSBERG, Auteur ; Michael B HIMLE, Auteur Article en page(s) : p.3018-3031 Langues : Anglais (eng) Mots-clés : Adults with autism  Autistic adults  Family sexuality communication  Parent–child sexuality communication  Sexual and reproductive health Index. décimale : PER Périodiques Résumé : Families are a critical context for healthy sexuality development. This study characterized family sexuality communication for autistic adults (age 18-30) without intellectual disability (n?=?117) versus a neurotypical comparison group (n?=?319). Parent-reported number of sexuality topics covered did not significantly differ by gender or autism/comparison group. Parents of autistic adults who covered few or no topics (31%) reported higher religiosity, lower comfort and self-efficacy, and were less likely to say that the adult expressed attraction or desire for relationships. Parents of autistic adults were more likely than comparison parents to perceive their young person as being uninterested or not ready to learn about sexuality topics. These results suggest that families of autistic people require support to convey sexuality-related knowledge and values. En ligne : http://dx.doi.org/10.1007/s10803-020-04398-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428 [article] Family Sexuality Communication: Parent Report for Autistic Young Adults Versus a Comparison Group [Texte imprimé et/ou numérique] / Laura GRAHAM HOLMES, Auteur ; Donald S STRASSBERG, Auteur ; Michael B HIMLE, Auteur . - p.3018-3031. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-8 (August 2020) . - p.3018-3031 Mots-clés : Adults with autism  Autistic adults  Family sexuality communication  Parent–child sexuality communication  Sexual and reproductive health Index. décimale : PER Périodiques Résumé : Families are a critical context for healthy sexuality development. This study characterized family sexuality communication for autistic adults (age 18-30) without intellectual disability (n?=?117) versus a neurotypical comparison group (n?=?319). Parent-reported number of sexuality topics covered did not significantly differ by gender or autism/comparison group. Parents of autistic adults who covered few or no topics (31%) reported higher religiosity, lower comfort and self-efficacy, and were less likely to say that the adult expressed attraction or desire for relationships. Parents of autistic adults were more likely than comparison parents to perceive their young person as being uninterested or not ready to learn about sexuality topics. These results suggest that families of autistic people require support to convey sexuality-related knowledge and values. En ligne : http://dx.doi.org/10.1007/s10803-020-04398-3 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=428

Healthy Relationships on the Autism Spectrum (HEARTS): A feasibility test of an online class co-designed and co-taught with autistic people / Emily F. ROTHMAN in Autism, 26-3 (April 2022)  

Public ISBD [article]  inAutism > 26-3 (April 2022) . - p.690-702 Titre : Healthy Relationships on the Autism Spectrum (HEARTS): A feasibility test of an online class co-designed and co-taught with autistic people Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. ROTHMAN, Auteur ; Laura GRAHAM HOLMES, Auteur ; Reid CAPLAN, Auteur ; Melody CHIANG, Auteur ; Brandy HABERER, Auteur ; Nick GALLOP, Auteur ; Rabindra KADEL, Auteur ; Mariah PERSON, Auteur ; Amelia SANCHEZ, Auteur ; Emily QUINN, Auteur ; Peter WHARMBY, Auteur Article en page(s) : p.690-702 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder  Feasibility Studies  Friends  Humans  Surveys and Questionnaires  Young Adult  adults  interventions?psychosocial/behavioral  social cognition and social behavior Index. décimale : PER Périodiques Résumé : The Healthy Relationships on the Autism Spectrum class is unique because autistic people helped to develop it and co-taught it. It is an online, six-session class. The class was piloted in 2020-2021 with 55 autistic people who were ages 18-44?years old. This feasibility study found that most people who took the class liked it. Surveys filled out by the students before and after the class showed that they became less sensitive to rejection, used more positive thinking skills, and were more interested in being social. However, the class may not have made them feel less lonely. The team that invented the class is using the feedback to improve it. The class holds promise for improving the quality of friendships and dating relationships for autistic adults and should be tested further. En ligne : https://dx.doi.org/10.1177/13623613211069421 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473 [article] Healthy Relationships on the Autism Spectrum (HEARTS): A feasibility test of an online class co-designed and co-taught with autistic people [Texte imprimé et/ou numérique] / Emily F. ROTHMAN, Auteur ; Laura GRAHAM HOLMES, Auteur ; Reid CAPLAN, Auteur ; Melody CHIANG, Auteur ; Brandy HABERER, Auteur ; Nick GALLOP, Auteur ; Rabindra KADEL, Auteur ; Mariah PERSON, Auteur ; Amelia SANCHEZ, Auteur ; Emily QUINN, Auteur ; Peter WHARMBY, Auteur . - p.690-702. Langues : Anglais (eng) in Autism > 26-3 (April 2022) . - p.690-702 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder  Feasibility Studies  Friends  Humans  Surveys and Questionnaires  Young Adult  adults  interventions?psychosocial/behavioral  social cognition and social behavior Index. décimale : PER Périodiques Résumé : The Healthy Relationships on the Autism Spectrum class is unique because autistic people helped to develop it and co-taught it. It is an online, six-session class. The class was piloted in 2020-2021 with 55 autistic people who were ages 18-44?years old. This feasibility study found that most people who took the class liked it. Surveys filled out by the students before and after the class showed that they became less sensitive to rejection, used more positive thinking skills, and were more interested in being social. However, the class may not have made them feel less lonely. The team that invented the class is using the feedback to improve it. The class holds promise for improving the quality of friendships and dating relationships for autistic adults and should be tested further. En ligne : https://dx.doi.org/10.1177/13623613211069421 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=473

A Lifespan Approach to Patient-Reported Outcomes and Quality of Life for People on the Autism Spectrum / Laura GRAHAM HOLMES in Autism Research, 13-6 (June 2020)  

Public ISBD [article]  inAutism Research > 13-6 (June 2020) . - p.970-987 Titre : A Lifespan Approach to Patient-Reported Outcomes and Quality of Life for People on the Autism Spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Laura GRAHAM HOLMES, Auteur ; Casey J. ZAMPELLA, Auteur ; Caitlin C. CLEMENTS, Auteur ; Joseph P. MCCLEERY, Auteur ; Brenna B MADDOX, Auteur ; Julia PARISH-MORRIS, Auteur ; Manisha D. UDHNANI, Auteur ; Robert T. SCHULTZ, Auteur ; Judith S. MILLER, Auteur Article en page(s) : p.970-987 Langues : Anglais (eng) Mots-clés : adults  life course  life span/lifespan  patient-reported outcomes  quality of life  sex/gender  women with autism Index. décimale : PER Périodiques Résumé : Autistic self-advocates, family members, and community organizations have called for greater emphasis on enhancing quality of life (QoL) for people with autism. Doing this is critical to understand how QoL unfolds across the life course and to clarify whether gender affects QoL, health, and functioning for people with autism. The purpose of this study was to curate and test a lifespan QoL measurement tool using freely available and well-constructed National Institutes of Health Parent-Reported Outcomes Measurement Information System (PROMIS). To develop the PROMIS Autism Battery-Lifespan (PAB-L), we identified PROMIS scales relevant for autism, reviewed each item, consulted with a panel of autism experts, and elicited feedback from autistic people and family members. This battery provides a comprehensive portrait of QoL for children ages 5-13 (through parent proxy), teens 14-17 (parent proxy and self-report), and adults 18-65 (self-report) with autism compared to the general population. Participants and parent informants (N =?912) recruited through a children's hospital and nationwide U.S. autism research registry completed the PAB-L online. Results indicate that compared to general population norms, people with autism of all ages (or their proxies) reported less desirable outcomes and lower QoL across all domains. Women and girls experienced greater challenges in some areas compared to men and boys with autism. The PAB-L appears to be a feasible and acceptable method for assessing patient-reported outcomes and QoL for autistic people across the life course. Autism Res 2020, 13: 970-987. © 2020 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: We developed a survey to measure the quality of life of children, teens, and adults with autism using free National Institutes of Health PROMIS questionnaires. People with autism and family members rated the PROMIS Autism Battery-Lifespan as useful and important. Some reported a good quality of life, while many reported that their lives were not going as well as they wanted. Women and girls reported more challenges in some areas of life than men and boys. En ligne : http://dx.doi.org/10.1002/aur.2275 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427 [article] A Lifespan Approach to Patient-Reported Outcomes and Quality of Life for People on the Autism Spectrum [Texte imprimé et/ou numérique] / Laura GRAHAM HOLMES, Auteur ; Casey J. ZAMPELLA, Auteur ; Caitlin C. CLEMENTS, Auteur ; Joseph P. MCCLEERY, Auteur ; Brenna B MADDOX, Auteur ; Julia PARISH-MORRIS, Auteur ; Manisha D. UDHNANI, Auteur ; Robert T. SCHULTZ, Auteur ; Judith S. MILLER, Auteur . - p.970-987. Langues : Anglais (eng) in Autism Research > 13-6 (June 2020) . - p.970-987 Mots-clés : adults  life course  life span/lifespan  patient-reported outcomes  quality of life  sex/gender  women with autism Index. décimale : PER Périodiques Résumé : Autistic self-advocates, family members, and community organizations have called for greater emphasis on enhancing quality of life (QoL) for people with autism. Doing this is critical to understand how QoL unfolds across the life course and to clarify whether gender affects QoL, health, and functioning for people with autism. The purpose of this study was to curate and test a lifespan QoL measurement tool using freely available and well-constructed National Institutes of Health Parent-Reported Outcomes Measurement Information System (PROMIS). To develop the PROMIS Autism Battery-Lifespan (PAB-L), we identified PROMIS scales relevant for autism, reviewed each item, consulted with a panel of autism experts, and elicited feedback from autistic people and family members. This battery provides a comprehensive portrait of QoL for children ages 5-13 (through parent proxy), teens 14-17 (parent proxy and self-report), and adults 18-65 (self-report) with autism compared to the general population. Participants and parent informants (N =?912) recruited through a children's hospital and nationwide U.S. autism research registry completed the PAB-L online. Results indicate that compared to general population norms, people with autism of all ages (or their proxies) reported less desirable outcomes and lower QoL across all domains. Women and girls experienced greater challenges in some areas compared to men and boys with autism. The PAB-L appears to be a feasible and acceptable method for assessing patient-reported outcomes and QoL for autistic people across the life course. Autism Res 2020, 13: 970-987. © 2020 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: We developed a survey to measure the quality of life of children, teens, and adults with autism using free National Institutes of Health PROMIS questionnaires. People with autism and family members rated the PROMIS Autism Battery-Lifespan as useful and important. Some reported a good quality of life, while many reported that their lives were not going as well as they wanted. Women and girls reported more challenges in some areas of life than men and boys. En ligne : http://dx.doi.org/10.1002/aur.2275 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=427

Reasons for alcohol use and non-use by underage U.S. autistic youth: A qualitative study / Emily F. ROTHMAN in Autism, 27-1 (January 2023)  

Public ISBD [article]  inAutism > 27-1 (January 2023) . - p.213-225 Titre : Reasons for alcohol use and non-use by underage U.S. autistic youth: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Emily F. ROTHMAN, Auteur ; Laura GRAHAM HOLMES, Auteur ; Dani BROOKS, Auteur ; Shari KRAUSS, Auteur ; Reid CAPLAN, Auteur Article en page(s) : p.213-225 Langues : Anglais (eng) Mots-clés : adolescents  qualitative research  social cognition and social behavior Index. décimale : PER Périodiques Résumé : This study describes the views and experiences of autistic youth about alcohol, including reasons for use and nonuse. We conducted 40 semi-structured interviews with autistic youth aged 16-20 years old. Of these, 20 had consumed alcohol in the past year. We used an inductive content-based analysis approach. Youth were deliberate about their choices to use, or abstain from, alcohol. Some conducted their own background research on the effects of alcohol, while others took a very measured approach to drinking and paced their alcohol consumption during drinking episodes with care. Reasons not to drink included fear of developing alcohol addiction, not liking the taste of alcohol, concern about alcohol interacting with prescribed medications, as well as the desire to avoid hangover, disinhibition, or other negative effects. On the contrary, youth had some positive alcohol expectancies: non-autistic people are more accepting when drinking, alcohol helps autistic people cope with problems, irritability, boredom, and sensory processing challenges, and helps them fit in. Results reveal that alcohol use disorder in autistic adults could have its roots in underage experiences that provide temporary relief from social anxiety, feeling socially isolated, and challenges with sensory processing. The development of evidence-based youth alcohol prevention strategies for autistic youth may be an important next step. Lay abstract What is already known about the topic? Hazardous alcohol use is when a person’s drinking puts them at increased risk for negative events (e.g. health problems or car crashes). Some studies show that autistic people may be at greater risk for hazardous alcohol use than non-autistic people, while other studies have found that hazardous alcohol use is less common among autistic people than non-autistic people. We need to learn why autistic underage youth choose to drink alcohol or not. The goal of this study was to learn from US autistic youth about their attitudes and behavior related to alcohol. Forty autistic youth aged 16-20 years old were interviewed. What this article adds? Youth described several reasons why they choose to drink alcohol, including feeling like non-autistic people are more accepting when drinking, that it puts them in a less irritable or bored mood, helps them cope with problems, and helps them fit in. Reasons for not drinking alcohol include worries about becoming addicted, medication interactions, not liking the taste, fear of experiencing hangover and other health problems, and concern about acting foolish when drunk. Implications for practice, research, or policy Results reveal that hazardous alcohol use in autistic adults could have its roots in underage experiences that give autistic youth temporary relief from social anxiety, feeling lonely, and challenges with sensory processing. Right now, there are no evidence-based alcohol prevention programs in the United States for autistic people. One or more such programs may be needed. The results from this study could be used to adapt existing programs for non-autistic youth to the unique needs and risk factors of autistic youth. En ligne : http://dx.doi.org/10.1177/13623613221091319 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491 [article] Reasons for alcohol use and non-use by underage U.S. autistic youth: A qualitative study [Texte imprimé et/ou numérique] / Emily F. ROTHMAN, Auteur ; Laura GRAHAM HOLMES, Auteur ; Dani BROOKS, Auteur ; Shari KRAUSS, Auteur ; Reid CAPLAN, Auteur . - p.213-225. Langues : Anglais (eng) in Autism > 27-1 (January 2023) . - p.213-225 Mots-clés : adolescents  qualitative research  social cognition and social behavior Index. décimale : PER Périodiques Résumé : This study describes the views and experiences of autistic youth about alcohol, including reasons for use and nonuse. We conducted 40 semi-structured interviews with autistic youth aged 16-20 years old. Of these, 20 had consumed alcohol in the past year. We used an inductive content-based analysis approach. Youth were deliberate about their choices to use, or abstain from, alcohol. Some conducted their own background research on the effects of alcohol, while others took a very measured approach to drinking and paced their alcohol consumption during drinking episodes with care. Reasons not to drink included fear of developing alcohol addiction, not liking the taste of alcohol, concern about alcohol interacting with prescribed medications, as well as the desire to avoid hangover, disinhibition, or other negative effects. On the contrary, youth had some positive alcohol expectancies: non-autistic people are more accepting when drinking, alcohol helps autistic people cope with problems, irritability, boredom, and sensory processing challenges, and helps them fit in. Results reveal that alcohol use disorder in autistic adults could have its roots in underage experiences that provide temporary relief from social anxiety, feeling socially isolated, and challenges with sensory processing. The development of evidence-based youth alcohol prevention strategies for autistic youth may be an important next step. Lay abstract What is already known about the topic? Hazardous alcohol use is when a person’s drinking puts them at increased risk for negative events (e.g. health problems or car crashes). Some studies show that autistic people may be at greater risk for hazardous alcohol use than non-autistic people, while other studies have found that hazardous alcohol use is less common among autistic people than non-autistic people. We need to learn why autistic underage youth choose to drink alcohol or not. The goal of this study was to learn from US autistic youth about their attitudes and behavior related to alcohol. Forty autistic youth aged 16-20 years old were interviewed. What this article adds? Youth described several reasons why they choose to drink alcohol, including feeling like non-autistic people are more accepting when drinking, that it puts them in a less irritable or bored mood, helps them cope with problems, and helps them fit in. Reasons for not drinking alcohol include worries about becoming addicted, medication interactions, not liking the taste, fear of experiencing hangover and other health problems, and concern about acting foolish when drunk. Implications for practice, research, or policy Results reveal that hazardous alcohol use in autistic adults could have its roots in underage experiences that give autistic youth temporary relief from social anxiety, feeling lonely, and challenges with sensory processing. Right now, there are no evidence-based alcohol prevention programs in the United States for autistic people. One or more such programs may be needed. The results from this study could be used to adapt existing programs for non-autistic youth to the unique needs and risk factors of autistic youth. En ligne : http://dx.doi.org/10.1177/13623613221091319 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=491

Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity / Jeroen DEWINTER in Autism, 28-3 (March 2024)  

Public ISBD [article]  inAutism > 28-3 (March 2024) . - p.770-779 Titre : Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity Type de document : Texte imprimé et/ou numérique Auteurs : Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena L. GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna IR VAN DER MIESEN, Auteur Article en page(s) : p.770-779 Langues : Anglais (eng) Mots-clés : autism  gender diversity  policy  recommendations  sexual health  sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523 [article] Short report: Recommendations for education, clinical practice, research, and policy on promoting well-being in autistic youth and adults through a positive focus on sexuality and gender diversity [Texte imprimé et/ou numérique] / Jeroen DEWINTER, Auteur ; Morénike Giwa ONAIWU, Auteur ; Maria L. MASSOLO, Auteur ; Reid CAPLAN, Auteur ; Els VAN BENEDEN, Auteur ; Nikki BRÖRMANN, Auteur ; Eileen T. CREHAN, Auteur ; Lisa A. CROEN, Auteur ; Susan FAJA, Auteur ; Dena L. GASSNER, Auteur ; Laura GRAHAM HOLMES, Auteur ; Cat HUGHES, Auteur ; Morrigan HUNTER, Auteur ; Monique HUYSAMEN, Auteur ; Paola JELONCHE, Auteur ; Meng-Chuan LAI, Auteur ; Ilse NOENS, Auteur ; Heta PUKKI, Auteur ; Mark A. STOKES, Auteur ; John F. STRANG, Auteur ; Anna IR VAN DER MIESEN, Auteur . - p.770-779. Langues : Anglais (eng) in Autism > 28-3 (March 2024) . - p.770-779 Mots-clés : autism  gender diversity  policy  recommendations  sexual health  sexuality Index. décimale : PER Périodiques Résumé : This short report presents recommendations to promote health and well-being relating to sexuality and gender diversity in autistic individuals. The recommendations were developed based on the latest available scientific knowledge coupled with a community-driven approach. An international group of autistic and non-autistic experts in the fields of autism, sexuality, and gender diversity and autistic advocates worked together to develop the initial recommendations; these recommendations were subsequently checked within the wider community through an online survey. Out of the original 11 recommendations, eight were rated above a consensus threshold. The final recommendations cover three themes: (1) providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; (2) improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and (3) meaningful inclusion of the autism community in future research that addresses well-being related to sexuality, relationships, and gender diversity. The recommendations emphasize the need for additional awareness and offer cues to parents, professionals, and policymakers to promote sexual health and well-being of autistic individuals. Lay Abstract In this article, we propose recommendations on what we can do to promote that autistic people can enjoy their sexuality and gender identity, because that contributes to overall well-being. First, we briefly summarize the existing research on sexuality and gender diversity in autistic individuals. Next, we propose recommendations for how to promote sexual and gender diversity-related health and well-being. Based on what is known about sexuality, gender diversity, and relationships in autistic adolescents and adults, we convened an international group of autistic and non-autistic researchers, advocates, parents, and professionals to develop recommendations to promote sexual and gender health in autistic people. The resulting recommendations were checked through an online survey distributed to autistic people across the world. The online participants endorsed the importance of eight final recommendations related to: 1.Providing education and information on sexuality, relationships, and gender diversity to autistic individuals and their families; 2.Improving expertise in and accessibility to healthcare for sexuality, relationships, and gender-related questions, with specific attention to prevention of and support after sexual victimization; and 3.Meaningfully including the autism community in future research that addresses well-being relating to sexuality, relationships, and gender diversity. These community-driven recommendations aim to promote sexual health and well-being in autistic individuals internationally. En ligne : https://dx.doi.org/10.1177/13623613231188349 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=523

Using percentiles in the interpretation of Patient-Reported Outcomes Measurement Information System scores: Guidelines for autism / Julia SCHUCHARD in Autism Research, 15-12 (December 2022)  

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