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Auteur Julie LOUNDS TAYLOR |
Documents disponibles écrits par cet auteur (61)
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Frequency and Correlates of Service Access Among Youth with Autism Transitioning to Adulthood / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 45-1 (January 2015)
[article]
Titre : Frequency and Correlates of Service Access Among Youth with Autism Transitioning to Adulthood Type de document : Texte imprimé et/ou numérique Auteurs : Julie LOUNDS TAYLOR, Auteur ; Natalie A. HENNINGER, Auteur Article en page(s) : p.179-191 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder Transition to adulthood Services Comorbid psychiatric disorders Family Index. décimale : PER Périodiques Résumé : This study examined service receipt and unmet service needs among youth with autism spectrum disorders (ASD) in their last year of high school, as well as the youth (intellectual disability, race/ethnicity, autism severity, comorbid psychiatric diagnoses, behavior problems, adaptive behavior) and family (income, parental health, parental depressive symptoms, parental anxiety) correlates of service access. Thirty-nine families of youth with ASD participated. Data were collected via parental interview/questionnaire and youth psychological evaluation. Results suggested that this sample was underserved relative to a nationally-representative cohort. Those with a comorbid psychiatric diagnosis and lower levels of adaptive behavior received more services. Greater unmet needs were reported for youth who were racial/ethnic minorities, who had more behavior problems, and whose parents had greater anxiety. En ligne : http://dx.doi.org/10.1007/s10803-014-2203-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258
in Journal of Autism and Developmental Disorders > 45-1 (January 2015) . - p.179-191[article] Frequency and Correlates of Service Access Among Youth with Autism Transitioning to Adulthood [Texte imprimé et/ou numérique] / Julie LOUNDS TAYLOR, Auteur ; Natalie A. HENNINGER, Auteur . - p.179-191.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-1 (January 2015) . - p.179-191
Mots-clés : Autism spectrum disorder Transition to adulthood Services Comorbid psychiatric disorders Family Index. décimale : PER Périodiques Résumé : This study examined service receipt and unmet service needs among youth with autism spectrum disorders (ASD) in their last year of high school, as well as the youth (intellectual disability, race/ethnicity, autism severity, comorbid psychiatric diagnoses, behavior problems, adaptive behavior) and family (income, parental health, parental depressive symptoms, parental anxiety) correlates of service access. Thirty-nine families of youth with ASD participated. Data were collected via parental interview/questionnaire and youth psychological evaluation. Results suggested that this sample was underserved relative to a nationally-representative cohort. Those with a comorbid psychiatric diagnosis and lower levels of adaptive behavior received more services. Greater unmet needs were reported for youth who were racial/ethnic minorities, who had more behavior problems, and whose parents had greater anxiety. En ligne : http://dx.doi.org/10.1007/s10803-014-2203-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=258 Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum / C. E. LEE in Autism, 26-1 (January 2022)
[article]
Titre : Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : C. E. LEE, Auteur ; K. A. SHOGREN, Auteur ; J. SEGAL, Auteur ; F. PEZZIMENTI, Auteur ; Janeth ALEMAN-TOVAR, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.178-187 Langues : Anglais (eng) Mots-clés : adults autism spectrum disorders goal attainment scaling interventions—psychosocial/behavioral outcome Index. décimale : PER Périodiques Résumé : Among people with autism-all who have the same diagnosis-there are major differences on a nearly limitless number of areas, such as language, daily living skills, intellectual ability, sensory difficulties, and physical and mental health diagnoses. Despite these many differences, the targeted outcomes of intervention studies are often measured the same way across autistic adults, including outcomes such as getting a job, achieving greater independence, or getting more services. People have different goals and abilities, and it is important to have a way for intervention studies to measure outcomes in a way that is more personal to each individual. To address this issue, we developed a new approach-called "Goal Attainment Scaling-Community-based" or GAS-CB-to measure individualized outcomes across different research settings. In this article, we describe the need for individualized outcomes in autism intervention research and current approaches to gathering these outcomes, with our discussion focused on a method called goal attainment scaling. We then describe reasons why current goal attainment scaling approaches might not be useful in intervention research that takes place in the community. Finally, we discuss a new goal attainment scaling approach (GAS-CB) that can be flexibly used for research participants with very different characteristics. En ligne : http://dx.doi.org/10.1177/13623613211024492 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451
in Autism > 26-1 (January 2022) . - p.178-187[article] Goal attainment scaling-community-based: A method to incorporate personalized outcomes into intervention research with youth and adults on the autism spectrum [Texte imprimé et/ou numérique] / C. E. LEE, Auteur ; K. A. SHOGREN, Auteur ; J. SEGAL, Auteur ; F. PEZZIMENTI, Auteur ; Janeth ALEMAN-TOVAR, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.178-187.
Langues : Anglais (eng)
in Autism > 26-1 (January 2022) . - p.178-187
Mots-clés : adults autism spectrum disorders goal attainment scaling interventions—psychosocial/behavioral outcome Index. décimale : PER Périodiques Résumé : Among people with autism-all who have the same diagnosis-there are major differences on a nearly limitless number of areas, such as language, daily living skills, intellectual ability, sensory difficulties, and physical and mental health diagnoses. Despite these many differences, the targeted outcomes of intervention studies are often measured the same way across autistic adults, including outcomes such as getting a job, achieving greater independence, or getting more services. People have different goals and abilities, and it is important to have a way for intervention studies to measure outcomes in a way that is more personal to each individual. To address this issue, we developed a new approach-called "Goal Attainment Scaling-Community-based" or GAS-CB-to measure individualized outcomes across different research settings. In this article, we describe the need for individualized outcomes in autism intervention research and current approaches to gathering these outcomes, with our discussion focused on a method called goal attainment scaling. We then describe reasons why current goal attainment scaling approaches might not be useful in intervention research that takes place in the community. Finally, we discuss a new goal attainment scaling approach (GAS-CB) that can be flexibly used for research participants with very different characteristics. En ligne : http://dx.doi.org/10.1177/13623613211024492 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=451 Health profiles of adults with autism spectrum disorder: Differences between women and men / Leann S. DAWALT in Autism Research, 14-9 (September 2021)
[article]
Titre : Health profiles of adults with autism spectrum disorder: Differences between women and men Type de document : Texte imprimé et/ou numérique Auteurs : Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; A. MOVAGHAR, Auteur ; J. HONG, Auteur ; B. KIM, Auteur ; M. H. BRILLIANT, Auteur ; M. R. MAILICK, Auteur Article en page(s) : p.1896-1904 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder/complications/epidemiology Autistic Disorder Electronic Health Records Female Humans Male Sleep Wake Disorders adults electronic health records health health care utilization sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-9 (September 2021) . - p.1896-1904[article] Health profiles of adults with autism spectrum disorder: Differences between women and men [Texte imprimé et/ou numérique] / Leann S. DAWALT, Auteur ; Julie LOUNDS TAYLOR, Auteur ; A. MOVAGHAR, Auteur ; J. HONG, Auteur ; B. KIM, Auteur ; M. H. BRILLIANT, Auteur ; M. R. MAILICK, Auteur . - p.1896-1904.
Langues : Anglais (eng)
in Autism Research > 14-9 (September 2021) . - p.1896-1904
Mots-clés : Adult Autism Spectrum Disorder/complications/epidemiology Autistic Disorder Electronic Health Records Female Humans Male Sleep Wake Disorders adults electronic health records health health care utilization sex differences Index. décimale : PER Périodiques Résumé : The purpose of the present study was to investigate the hypothesis that women with autism have poorer health compared with men with autism, and compared with women without autism. Utilizing electronic health records drawn from a single health care system serving over 2 million individuals, 2119 adults with diagnosed autism spectrum disorders were compared with age- and sex-matched controls. When considering health care utilization, we found evidence of multiplicative risk for conditions within some domains (i.e., nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders) such that women with autism spectrum disorder (ASD) experienced double jeopardy-meaning they had greater rates of health care utilization within a domain than what would separately be expected by virtue of being a woman and having ASD. For other domains (i.e., endocrine disorders, gastrointestinal disorders), the risk was additive such that being a female and having ASD were both associated with higher health care utilization, but there were no significant interaction effects. It was only with respect to one domain (cardiovascular) that rates of health care utilization were reflective of neither ASD diagnosis nor sex. Overall, our findings suggest that women with ASD are a vulnerable subgroup with high levels of health care utilization. LAY SUMMARY: This study asked whether women with autism have poorer health compared with men with autism, and compared with women without autism. To answer this question, we used data from electronic health records. We found that women with autism spectrum disorder (ASD) were at the greatest risk for health problems such as nutrition conditions, neurologic disease, psychiatric conditions, and sleep disorders. More research on health of women with ASD is needed. En ligne : http://dx.doi.org/10.1002/aur.2563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Job loss predicts worsening depressive symptoms for young adults with autism: A COVID-19 natural experiment / Julie LOUNDS TAYLOR in Autism Research, 15-1 (January 2022)
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Titre : Job loss predicts worsening depressive symptoms for young adults with autism: A COVID-19 natural experiment Type de document : Texte imprimé et/ou numérique Auteurs : Julie LOUNDS TAYLOR, Auteur ; R. E. ADAMS, Auteur ; F. PEZZIMENTI, Auteur ; S. ZHENG, Auteur ; Somer L. BISHOP, Auteur Article en page(s) : p.93-102 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/complications Autistic Disorder Covid-19 Depression/complications Humans SARS-CoV-2 United States Young Adult adults autism spectrum disorder depression employment Index. décimale : PER Périodiques Résumé : Adults with autism spectrum disorder (ASD) experience high rates of both unemployment and depression. Though job loss predicts increased risk of depression in the general population, studies have yet to directly examine this relationship among individuals with ASD. With the backdrop of rising unemployment due to COVID-19, we used a longitudinal design to examine whether employment changes predicted increasing depressive symptoms among young adults with ASD. Online surveys were collected from young adults with ASD at two times: just before widespread social distancing measures were adopted in the United States, and again 10?weeks later. Both time points included measurement of depressive symptoms (Beck Depression Inventory-2). At Time 2, COVID-related employment changes and the perceived impact of those changes on well-being were collected. Of the young adults who were employed at Time 1 (n = 144), over one-third (37.5%) reported employment changes during the first 2?months of COVID-19. Most of this change was job loss or reductions in hours or pay ("job loss/reduction"). Controlling for Time 1 depressive symptoms, young adults who experienced job loss/reduction had significantly higher depressive symptoms at Time 2 than those without an employment change. Individuals' perceived impact of employment change also predicted depressive symptoms. These findings suggest that losing a job or experiencing reductions in hours or pay leads to worsening depressive symptoms among adults with ASD. Better supporting autistic adults in the workplace may not only decrease the likelihood of job loss, but also combat the exceedingly high rates of depression in this group. LAY SUMMARY: Though unemployment has been linked to mental health problems in the general population, this relationship is seldom considered among adults with autism. In this study, we found that adults on the autism spectrum who lost their jobs or experienced reductions in pay or hours during the first 2?months of COVID-19 had worsening depression compared to adults who did not have job changes. Our findings suggest that increasing access to employment may help alleviate poor mental health among autistic adults. En ligne : http://dx.doi.org/10.1002/aur.2621 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450
in Autism Research > 15-1 (January 2022) . - p.93-102[article] Job loss predicts worsening depressive symptoms for young adults with autism: A COVID-19 natural experiment [Texte imprimé et/ou numérique] / Julie LOUNDS TAYLOR, Auteur ; R. E. ADAMS, Auteur ; F. PEZZIMENTI, Auteur ; S. ZHENG, Auteur ; Somer L. BISHOP, Auteur . - p.93-102.
Langues : Anglais (eng)
in Autism Research > 15-1 (January 2022) . - p.93-102
Mots-clés : Autism Spectrum Disorder/complications Autistic Disorder Covid-19 Depression/complications Humans SARS-CoV-2 United States Young Adult adults autism spectrum disorder depression employment Index. décimale : PER Périodiques Résumé : Adults with autism spectrum disorder (ASD) experience high rates of both unemployment and depression. Though job loss predicts increased risk of depression in the general population, studies have yet to directly examine this relationship among individuals with ASD. With the backdrop of rising unemployment due to COVID-19, we used a longitudinal design to examine whether employment changes predicted increasing depressive symptoms among young adults with ASD. Online surveys were collected from young adults with ASD at two times: just before widespread social distancing measures were adopted in the United States, and again 10?weeks later. Both time points included measurement of depressive symptoms (Beck Depression Inventory-2). At Time 2, COVID-related employment changes and the perceived impact of those changes on well-being were collected. Of the young adults who were employed at Time 1 (n = 144), over one-third (37.5%) reported employment changes during the first 2?months of COVID-19. Most of this change was job loss or reductions in hours or pay ("job loss/reduction"). Controlling for Time 1 depressive symptoms, young adults who experienced job loss/reduction had significantly higher depressive symptoms at Time 2 than those without an employment change. Individuals' perceived impact of employment change also predicted depressive symptoms. These findings suggest that losing a job or experiencing reductions in hours or pay leads to worsening depressive symptoms among adults with ASD. Better supporting autistic adults in the workplace may not only decrease the likelihood of job loss, but also combat the exceedingly high rates of depression in this group. LAY SUMMARY: Though unemployment has been linked to mental health problems in the general population, this relationship is seldom considered among adults with autism. In this study, we found that adults on the autism spectrum who lost their jobs or experienced reductions in pay or hours during the first 2?months of COVID-19 had worsening depression compared to adults who did not have job changes. Our findings suggest that increasing access to employment may help alleviate poor mental health among autistic adults. En ligne : http://dx.doi.org/10.1002/aur.2621 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=450 Let’s talk about it: Peer victimization experiences as reported by adolescents with autism spectrum disorder / Marisa H FISHER in Autism, 20-4 (May 2016)
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Titre : Let’s talk about it: Peer victimization experiences as reported by adolescents with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Marisa H FISHER, Auteur ; Julie LOUNDS TAYLOR, Auteur Article en page(s) : p.402-411 Langues : Anglais (eng) Mots-clés : adolescents autism spectrum disorder bullying peer victimization Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder experience high rates of peer victimization; yet, their personal experiences and perceptions of such victimization are not well understood. In this qualitative investigation, responses to questions about bullying and teasing were examined to gain insight into the perception of peer victimization as reported by adolescents with autism spectrum disorder. While the majority of participants provided examples of peer victimization, their situations differed from items typically assessed on bullying questionnaires. Participants were also able to provide explanations for why they believe they are targets and descriptions of their reactions to bullying. Findings from the interviews are used to provide suggestions for the development of more informative bullying assessments and prevention programs for students with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361315585948 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287
in Autism > 20-4 (May 2016) . - p.402-411[article] Let’s talk about it: Peer victimization experiences as reported by adolescents with autism spectrum disorder [Texte imprimé et/ou numérique] / Marisa H FISHER, Auteur ; Julie LOUNDS TAYLOR, Auteur . - p.402-411.
Langues : Anglais (eng)
in Autism > 20-4 (May 2016) . - p.402-411
Mots-clés : adolescents autism spectrum disorder bullying peer victimization Index. décimale : PER Périodiques Résumé : Individuals with autism spectrum disorder experience high rates of peer victimization; yet, their personal experiences and perceptions of such victimization are not well understood. In this qualitative investigation, responses to questions about bullying and teasing were examined to gain insight into the perception of peer victimization as reported by adolescents with autism spectrum disorder. While the majority of participants provided examples of peer victimization, their situations differed from items typically assessed on bullying questionnaires. Participants were also able to provide explanations for why they believe they are targets and descriptions of their reactions to bullying. Findings from the interviews are used to provide suggestions for the development of more informative bullying assessments and prevention programs for students with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361315585948 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=287 Longitudinal follow-up of autism spectrum features and sensory behaviors in Angelman syndrome by deletion class / Sarika U. PETERS in Journal of Child Psychology and Psychiatry, 53-2 (February 2012)
PermalinkLongitudinal patterns of employment and postsecondary education for adults with autism and average-range IQ / Julie LOUNDS TAYLOR in Autism, 19-7 (October 2015)
PermalinkA Longitudinal RCT of P-ESDM With and Without Parental Mindfulness Based Stress Reduction: Impact on Child Outcomes / Amy S. WEITLAUF in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
PermalinkLoss in services precedes high school exit for teens with autism spectrum disorder: A longitudinal study / D. J. LAXMAN in Autism Research, 12-6 (June 2019)
PermalinkMaternal Depressive Symptoms Following Autism Spectrum Diagnosis / Julie LOUNDS TAYLOR in Journal of Autism and Developmental Disorders, 42-7 (July 2012)
PermalinkMeasuring the service system impact of a novel telediagnostic service program for young children with autism spectrum disorder / J. A. STAINBROOK in Autism, 23-4 (May 2019)
PermalinkNeurocognitive and Behavioral Outcomes of Younger Siblings of Children with Autism Spectrum Disorder at Age Five / Zachary WARREN in Journal of Autism and Developmental Disorders, 42-3 (March 2012)
PermalinkPermalinkOutcomes in adults with autism spectrum disorders: a historical perspective / Natalie A. HENNINGER in Autism, 17-1 (January 2013)
PermalinkPatterns and Predictors of Anxiety Among Siblings of Children with Autism Spectrum Disorders / Carolyn M. SHIVERS in Journal of Autism and Developmental Disorders, 43-6 (June 2013)
PermalinkPatterns of sleep disturbances and associations with depressive symptoms in autistic young adults / Linnea A. LAMPINEN in Autism Research, 15-11 (November 2022)
PermalinkPeer Victimization and Educational Outcomes in Mainstreamed Adolescents with Autism Spectrum Disorder (ASD) / Ryan E. ADAMS in Journal of Autism and Developmental Disorders, 46-11 (November 2016)
PermalinkPerceived helpfulness of depression treatments among young adults with autism / S. ZHENG in Autism Research, 14-7 (July 2021)
PermalinkPostsecondary Expectations of High-School Students With Autism Spectrum Disorders / Kristy A. ANDERSON in Focus on Autism and Other Developmental Disabilities, 31-1 (March 2016)
PermalinkPublishing standards for promoting excellence in autism research / Sue FLETCHER-WATSON in Autism, 25-6 (August 2021)
PermalinkPublishing standards for promoting excellence in autism research / Sue FLETCHER-WATSON in Autism, 26-6 (August 2022)
PermalinkPulling back the curtain: Issues in conducting an intervention study with transition-aged youth with autism spectrum disorder and their families / M. M. BURKE in Autism, 23-2 (February 2019)
PermalinkRelationship satisfaction, parenting stress, and depression in mothers of children with autism / Amy S. WEITLAUF in Autism, 18-2 (February 2014)
PermalinkSex and gender differences in autism spectrum disorder: summarizing evidence gaps and identifying emerging areas of priority / Alycia K. HALLADAY in Molecular Autism, (June 2015)
PermalinkSex differences in employment and supports for adults with autism spectrum disorder / Julie LOUNDS TAYLOR in Autism, 23-7 (October 2019)
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