Autistic pupils' experiences in primary and post-primary schools: A scoping review and consultation with autistic pupils in Ireland / Aoife LYNAM in Autism & Developmental Language Impairments, 9 (January-December 2024)  

Public ISBD [article]  inAutism & Developmental Language Impairments > 9 (January-December 2024) Titre : Autistic pupils' experiences in primary and post-primary schools: A scoping review and consultation with autistic pupils in Ireland Type de document : texte imprimé Auteurs : Aoife LYNAM, Auteur ; Mary Rose SWEENEY, Auteur ; Lisa KEENAN, Auteur ; Sinéad MCNALLY, Auteur Langues : Anglais (eng) Mots-clés : Autism  child voice  lived experience  scoping review  school-age children Index. décimale : PER Périodiques Résumé : Background and aims Autistic pupils have the right to be heard in matters concerning their education and to be active agents in shaping their school experiences. Despite this, educational policies and research have rarely included the voices of autistic children, failing to identify what they consider to be beneficial and meaningful in their own education. This study aimed to (i) summarise existing literature exploring autistic pupils' experiences at school from their own perspectives and (ii) identify gaps for future research through a consultation with autistic pupils. Methods A scoping review was conducted to identify studies exploring first-person accounts of autistic pupils' school experiences (primary and secondary; aged 4-18 years) published between 2005 and 2023. Thematic analysis was conducted to identify overarching thematic categories across the included studies. Review findings were discussed through a consultation with a Child and Youth Advisory Group (CYAG) comprised of autistic pupils in Ireland (N = 3), to seek feedback and inform a future research agenda. Main contribution Thirty-six studies were included in the review and six themes were identified: Experiences of feeling misunderstood, of bullying and masking, of feeling excluded, of anxiety, of sensory needs in school, and of being overwhelmed during transitions. Consultation with the CYAG highlighted that these six themes were consistent with autistic pupils' experiences but that reports of positive experiences were missing in the literature. Conclusions This study identified several gaps in the literature on the school experiences of autistic pupils, based on both the scoping review and consultation with the CYAG. While the CYAG validated the themes identified in existing literature, there is a need for greater diversity in the samples included and increased focus on the potential positive aspects of the school experience. Implications. These findings have important research implications. In particular, further studies are needed with autistic pupils at primary school level, including those who are minimally or non-speaking, as well as ensuring pupils with positive school experiences are also represented. Findings also highlight the need for continued collaboration with autistic pupils themselves in matters concerning their education. En ligne : https://dx.doi.org/10.1177/23969415241258705 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538 [article] Autistic pupils' experiences in primary and post-primary schools: A scoping review and consultation with autistic pupils in Ireland [texte imprimé] / Aoife LYNAM, Auteur ; Mary Rose SWEENEY, Auteur ; Lisa KEENAN, Auteur ; Sinéad MCNALLY, Auteur. Langues : Anglais (eng) in Autism & Developmental Language Impairments > 9 (January-December 2024) Mots-clés : Autism  child voice  lived experience  scoping review  school-age children Index. décimale : PER Périodiques Résumé : Background and aims Autistic pupils have the right to be heard in matters concerning their education and to be active agents in shaping their school experiences. Despite this, educational policies and research have rarely included the voices of autistic children, failing to identify what they consider to be beneficial and meaningful in their own education. This study aimed to (i) summarise existing literature exploring autistic pupils' experiences at school from their own perspectives and (ii) identify gaps for future research through a consultation with autistic pupils. Methods A scoping review was conducted to identify studies exploring first-person accounts of autistic pupils' school experiences (primary and secondary; aged 4-18 years) published between 2005 and 2023. Thematic analysis was conducted to identify overarching thematic categories across the included studies. Review findings were discussed through a consultation with a Child and Youth Advisory Group (CYAG) comprised of autistic pupils in Ireland (N = 3), to seek feedback and inform a future research agenda. Main contribution Thirty-six studies were included in the review and six themes were identified: Experiences of feeling misunderstood, of bullying and masking, of feeling excluded, of anxiety, of sensory needs in school, and of being overwhelmed during transitions. Consultation with the CYAG highlighted that these six themes were consistent with autistic pupils' experiences but that reports of positive experiences were missing in the literature. Conclusions This study identified several gaps in the literature on the school experiences of autistic pupils, based on both the scoping review and consultation with the CYAG. While the CYAG validated the themes identified in existing literature, there is a need for greater diversity in the samples included and increased focus on the potential positive aspects of the school experience. Implications. These findings have important research implications. In particular, further studies are needed with autistic pupils at primary school level, including those who are minimally or non-speaking, as well as ensuring pupils with positive school experiences are also represented. Findings also highlight the need for continued collaboration with autistic pupils themselves in matters concerning their education. En ligne : https://dx.doi.org/10.1177/23969415241258705 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=538

Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences / Martina MICAI in Journal of Autism and Developmental Disorders, 52-4 (April 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639 Titre : Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences Type de document : texte imprimé Auteurs : Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.1623-1639 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/psychology/therapy  Autistic Disorder/psychology  Caregivers  European Union  Humans  Surveys and Questionnaires  Adults  Autism Spectrum Disorder  Interventions  Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475 [article] Intervention Services for Autistic Adults: An ASDEU Study of Autistic Adults, Carers, and Professionals' Experiences [texte imprimé] / Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Maria Luisa SCATTONI, Auteur ; Diana SCHENDEL, Auteur . - p.1623-1639. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-4 (April 2022) . - p.1623-1639 Mots-clés : Adult  Autism Spectrum Disorder/psychology/therapy  Autistic Disorder/psychology  Caregivers  European Union  Humans  Surveys and Questionnaires  Adults  Autism Spectrum Disorder  Interventions  Services Index. décimale : PER Périodiques Résumé : The Autism Spectrum Disorders in the European Union (ASDEU) survey investigated local services' use experiences of autistic adults, carers and professionals with interventions for autistic adults. The majority of the 697 participants experienced recommended considerations prior to deciding on intervention and during the intervention plan and implementation. Psychosocial interventions were the most commonly experienced interventions, while pharmacological interventions NOT recommended for core autistic symptoms were reported by fairly large proportions of participants. Family interventions were experienced slightly more commonly by carers than adults or professionals. Less than the 26% of autistic adult responders who had experienced challenging behaviors reported receiving an intervention to change them. These results provide insights for improving gaps in service provision of interventions among autistic adults. En ligne : http://dx.doi.org/10.1007/s10803-021-05038-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=475

Operationalisation of the European Protocol for Autism Prevalence (EPAP) for Autism Spectrum Disorder Prevalence Measurement in Ireland / Andrew Martin BOILSON in Journal of Autism and Developmental Disorders, 46-9 (September 2016)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 46-9 (September 2016) . - p.3054-3067 Titre : Operationalisation of the European Protocol for Autism Prevalence (EPAP) for Autism Spectrum Disorder Prevalence Measurement in Ireland Type de document : texte imprimé Auteurs : Andrew Martin BOILSON, Auteur ; Anthony STAINES, Auteur ; AnnJosette RAMIREZ, Auteur ; Manuel POSADA, Auteur ; Mary Rose SWEENEY, Auteur Article en page(s) : p.3054-3067 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Childhood  Epidemiology  Prevalence  Screening Index. décimale : PER Périodiques Résumé : The European Autism Information System project highlighted the lack of systematic and reliable data relating to the prevalence of autism spectrum disorders in Europe. A protocol for the study of ASD prevalence at European level was developed to facilitate a common format for screening and diagnosing children across the EU. This is the first study to operationalise and screen national school children for ASDs using this protocol. National school children 6–11 years (N = 7951) were screened males 54 % (N = 4268) females 46 % (N = 3683). Screening children for ASD implementing the EAIS protocol using the Social Communication Questionnaire (Rutter et al. in Social Communication Questionnaire (SCQ). Western Psychological Services, Los Angeles, ) as a first level screening instrument in a non-clinical setting of Irish national schools was demonstrated. En ligne : http://dx.doi.org/10.1007/s10803-016-2837-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292 [article] Operationalisation of the European Protocol for Autism Prevalence (EPAP) for Autism Spectrum Disorder Prevalence Measurement in Ireland [texte imprimé] / Andrew Martin BOILSON, Auteur ; Anthony STAINES, Auteur ; AnnJosette RAMIREZ, Auteur ; Manuel POSADA, Auteur ; Mary Rose SWEENEY, Auteur . - p.3054-3067. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 46-9 (September 2016) . - p.3054-3067 Mots-clés : Autism spectrum disorders  Childhood  Epidemiology  Prevalence  Screening Index. décimale : PER Périodiques Résumé : The European Autism Information System project highlighted the lack of systematic and reliable data relating to the prevalence of autism spectrum disorders in Europe. A protocol for the study of ASD prevalence at European level was developed to facilitate a common format for screening and diagnosing children across the EU. This is the first study to operationalise and screen national school children for ASDs using this protocol. National school children 6–11 years (N = 7951) were screened males 54 % (N = 4268) females 46 % (N = 3683). Screening children for ASD implementing the EAIS protocol using the Social Communication Questionnaire (Rutter et al. in Social Communication Questionnaire (SCQ). Western Psychological Services, Los Angeles, ) as a first level screening instrument in a non-clinical setting of Irish national schools was demonstrated. En ligne : http://dx.doi.org/10.1007/s10803-016-2837-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=292

Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study / Maria Luisa SCATTONI in Journal of Autism and Developmental Disorders, 51-11 (November 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146 Titre : Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study Type de document : texte imprimé Auteurs : Maria Luisa SCATTONI, Auteur ; Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Diana SCHENDEL, Auteur Article en page(s) : p.4129-4146 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Diagnostic Services  European Union  Humans  Surveys and Questionnaires  Adults  Autism spectrum disorder  Diagnosis  Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] Real-World Experiences in Autistic Adult Diagnostic Services and Post-diagnostic Support and Alignment with Services Guidelines: Results from the ASDEU Study [texte imprimé] / Maria Luisa SCATTONI, Auteur ; Martina MICAI, Auteur ; Antonio CIARAMELLA, Auteur ; Tommaso SALVITTI, Auteur ; Francesca FULCERI, Auteur ; Laura Maria FATTA, Auteur ; Luise POUSTKA, Auteur ; Robert DIEHM, Auteur ; Georgi ISKROV, Auteur ; Rumen STEFANOV, Auteur ; Quentin GUILLON, Auteur ; Bernadette ROGE, Auteur ; Anthony STAINES, Auteur ; Mary Rose SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Thóra LEOSDOTTIR, Auteur ; Evald SAEMUNDSEN, Auteur ; Irma MOILANEN, Auteur ; Hanna EBELING, Auteur ; Anneli YLIHERVA, Auteur ; Mika GISSLER, Auteur ; Tarja PARVIAINEN, Auteur ; Pekka TANI, Auteur ; Rafal KAWA, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Magdalena BUDISTEANU, Auteur ; Ian DALE, Auteur ; Carol POVEY, Auteur ; Noelia FLORES, Auteur ; Cristina JENARO, Auteur ; Maria Luisa MONROY, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Tony CHARMAN, Auteur ; Susanne CRAMER, Auteur ; Christine Kloster WARBERG, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Manuel POSADA, Auteur ; Diana SCHENDEL, Auteur . - p.4129-4146. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-11 (November 2021) . - p.4129-4146 Mots-clés : Adult  Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Diagnostic Services  European Union  Humans  Surveys and Questionnaires  Adults  Autism spectrum disorder  Diagnosis  Services Index. décimale : PER Périodiques Résumé : Research providing an evidence-base for autistic adult services is sparse. The Autism Spectrum Disorders in the European Union (ASDEU) network implemented an on-line survey to determine gaps in autistic adult diagnostic evaluation and post-diagnostic support services. More than 55% in all groups experienced most of the recommended features for diagnostic evaluation for autistic adults. In contrast, < 2% of adults or carers, and < 21% of professionals experienced each of the recommended features for post-diagnostic support. In contrast to 61% of professionals, only about 30% of autistic adults and carers had knowledge of good local services models for autism diagnosis in adulthood. There are major differences between good practice guidelines for diagnostic and post-diagnostic care for autistic adults, and what is actually experienced by services users and professionals. En ligne : http://dx.doi.org/10.1007/s10803-021-04873-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

Screening for Autism Spectrum Condition Through Inner City Homeless Services in the Republic of Ireland / Andrew Martin BOILSON in Journal of Autism and Developmental Disorders, 53-10 (October 2023)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3987-3998 Titre : Screening for Autism Spectrum Condition Through Inner City Homeless Services in the Republic of Ireland Type de document : texte imprimé Auteurs : Andrew Martin BOILSON, Auteur ; Alasdair CHURCHARD, Auteur ; M. CONNOLLY, Auteur ; B. CASEY, Auteur ; Mary Rose SWEENEY, Auteur Article en page(s) : p.3987-3998 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Homeless service users were screened for autism spectrum disorder through one of Ireland?s leading not for profit service providers. Keyworkers acted as proxy informants; their caseloads were screened using the DSM-5-Autistic Traits in the Homeless Interview (DATHI). Client current and historical health and behaviour data was collated. A representative sample of 106 eligible keyworkers caseloads were screened, identifying 3% "present" and 9% "possibly present" for autistic traits with the DATHI. These findings suggest a high estimate of autism prevalence and support emerging evidence that, people with autism are overrepresented in the homeless population, compared to housed populations. Autism may be a risk factor for entry into homelessness and a challenge to exiting homeless and engaging with relevant services. En ligne : https://doi.org/10.1007/s10803-022-05669-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511 [article] Screening for Autism Spectrum Condition Through Inner City Homeless Services in the Republic of Ireland [texte imprimé] / Andrew Martin BOILSON, Auteur ; Alasdair CHURCHARD, Auteur ; M. CONNOLLY, Auteur ; B. CASEY, Auteur ; Mary Rose SWEENEY, Auteur . - p.3987-3998. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 53-10 (October 2023) . - p.3987-3998 Index. décimale : PER Périodiques Résumé : Homeless service users were screened for autism spectrum disorder through one of Ireland?s leading not for profit service providers. Keyworkers acted as proxy informants; their caseloads were screened using the DSM-5-Autistic Traits in the Homeless Interview (DATHI). Client current and historical health and behaviour data was collated. A representative sample of 106 eligible keyworkers caseloads were screened, identifying 3% "present" and 9% "possibly present" for autistic traits with the DATHI. These findings suggest a high estimate of autism prevalence and support emerging evidence that, people with autism are overrepresented in the homeless population, compared to housed populations. Autism may be a risk factor for entry into homelessness and a challenge to exiting homeless and engaging with relevant services. En ligne : https://doi.org/10.1007/s10803-022-05669-x Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=511

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