Attitudes of the autism community to early autism research / Sue FLETCHER-WATSON in Autism, 21-1 (January 2017)  

Public ISBD [article]  inAutism > 21-1 (January 2017) . - p.61-74 Titre : Attitudes of the autism community to early autism research Type de document : Texte imprimé et/ou numérique Auteurs : Sue FLETCHER-WATSON, Auteur ; Fabio APICELLA, Auteur ; Bonnie AUYEUNG, Auteur ; Št?pánka BERANOVÁ, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Tony CHARMAN, Auteur ; Natasha CHERICONI, Auteur ; Inês C CONCEIÇÃO, Auteur ; Kim DAVIES, Auteur ; Teresa FARRONI, Auteur ; Marie GOMOT, Auteur ; Emily JONES, Auteur ; Anett KAALE, Auteur ; Katarzyna KAPICA, Auteur ; Rafal KAWA, Auteur ; Anneli KYLLIAINEN, Auteur ; Kenneth LARSEN, Auteur ; Jeremy LEFORT-BESNARD, Auteur ; Joëlle MALVY, Auteur ; Sara DIOS MANSO DE, Auteur ; Silvana MARKOVSKA-SIMOSKA, Auteur ; Inbal MILLO, Auteur ; Natercia MIRANDA, Auteur ; Greg PASCO, Auteur ; Ewa PISULA, Auteur ; Marija RALEVA, Auteur ; Bernadette ROGE, Auteur ; Erica SALOMONE, Auteur ; Synnve SCHJØLBERG, Auteur ; Przemys?aw TOMALSKI, Auteur ; Astrid M VICENTE, Auteur ; Nurit YIRMIYA, Auteur Article en page(s) : p.61-74 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  development  ethics  infancy  public engagement Index. décimale : PER Périodiques Résumé : Investigation into the earliest signs of autism in infants has become a significant sub-field of autism research. This work invokes specific ethical concerns such as use of ‘at-risk’ language, communicating study findings to parents and the future perspective of enrolled infants when they reach adulthood. This study aimed to ground this research field in an understanding of the perspectives of members of the autism community. Following focus groups to identify topics, an online survey was distributed to autistic adults, parents of children with autism and practitioners in health and education settings across 11 European countries. Survey respondents (n?=?2317) were positively disposed towards early autism research, and there was significant overlap in their priorities for the field and preferred language to describe infant research participants. However, there were also differences including overall less favourable endorsement of early autism research by autistic adults relative to other groups and a dislike of the phrase ‘at-risk’ to describe infant participants, in all groups except healthcare practitioners. The findings overall indicate that the autism community in Europe is supportive of early autism research. Researchers should endeavour to maintain this by continuing to take community perspectives into account. En ligne : http://dx.doi.org/10.1177/1362361315626577 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297 [article] Attitudes of the autism community to early autism research [Texte imprimé et/ou numérique] / Sue FLETCHER-WATSON, Auteur ; Fabio APICELLA, Auteur ; Bonnie AUYEUNG, Auteur ; Št?pánka BERANOVÁ, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Tony CHARMAN, Auteur ; Natasha CHERICONI, Auteur ; Inês C CONCEIÇÃO, Auteur ; Kim DAVIES, Auteur ; Teresa FARRONI, Auteur ; Marie GOMOT, Auteur ; Emily JONES, Auteur ; Anett KAALE, Auteur ; Katarzyna KAPICA, Auteur ; Rafal KAWA, Auteur ; Anneli KYLLIAINEN, Auteur ; Kenneth LARSEN, Auteur ; Jeremy LEFORT-BESNARD, Auteur ; Joëlle MALVY, Auteur ; Sara DIOS MANSO DE, Auteur ; Silvana MARKOVSKA-SIMOSKA, Auteur ; Inbal MILLO, Auteur ; Natercia MIRANDA, Auteur ; Greg PASCO, Auteur ; Ewa PISULA, Auteur ; Marija RALEVA, Auteur ; Bernadette ROGE, Auteur ; Erica SALOMONE, Auteur ; Synnve SCHJØLBERG, Auteur ; Przemys?aw TOMALSKI, Auteur ; Astrid M VICENTE, Auteur ; Nurit YIRMIYA, Auteur . - p.61-74. Langues : Anglais (eng) in Autism > 21-1 (January 2017) . - p.61-74 Mots-clés : autism spectrum disorder  development  ethics  infancy  public engagement Index. décimale : PER Périodiques Résumé : Investigation into the earliest signs of autism in infants has become a significant sub-field of autism research. This work invokes specific ethical concerns such as use of ‘at-risk’ language, communicating study findings to parents and the future perspective of enrolled infants when they reach adulthood. This study aimed to ground this research field in an understanding of the perspectives of members of the autism community. Following focus groups to identify topics, an online survey was distributed to autistic adults, parents of children with autism and practitioners in health and education settings across 11 European countries. Survey respondents (n?=?2317) were positively disposed towards early autism research, and there was significant overlap in their priorities for the field and preferred language to describe infant research participants. However, there were also differences including overall less favourable endorsement of early autism research by autistic adults relative to other groups and a dislike of the phrase ‘at-risk’ to describe infant participants, in all groups except healthcare practitioners. The findings overall indicate that the autism community in Europe is supportive of early autism research. Researchers should endeavour to maintain this by continuing to take community perspectives into account. En ligne : http://dx.doi.org/10.1177/1362361315626577 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=297

Behavioral and emotional problems in high-functioning girls and boys with autism spectrum disorders: Parents’ reports and adolescents’ self-reports / Ewa PISULA in Autism, 21-6 (August 2017)  

Public ISBD [article]  inAutism > 21-6 (August 2017) . - p.738-748 Titre : Behavioral and emotional problems in high-functioning girls and boys with autism spectrum disorders: Parents’ reports and adolescents’ self-reports Type de document : Texte imprimé et/ou numérique Auteurs : Ewa PISULA, Auteur ; Monika PUD?O, Auteur ; Monika S?OWI?SKA, Auteur ; Rafa? KAWA, Auteur ; Magdalena STRZ?SKA, Auteur ; Anna BANASIAK, Auteur ; Tomasz WOLANCZYK, Auteur Article en page(s) : p.738-748 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The purpose of this study was to investigate sex differences in behavioral and emotional problems in high-functioning girls and boys with autism spectrum disorder. The results obtained by adolescents with autism spectrum disorder were compared with those of typically developing girls and boys. Correlations between parents? and adolescents? ratings were also analyzed. Participants were 35 girls and 35 boys with autism spectrum disorder, aged 11?18?years, matched for chronological age and full-scale IQ. The control group consisted of 24 typically developing girls and 24 boys of the same age and IQ. The parents of adolescent participants were also included in the study. The measures used were the Child Behavior Checklist (4?18) completed by parents and Youth Self-Report (11?18) completed by adolescents. The adolescents with autism spectrum disorder presented higher levels of behavioral and emotional problems than the control group, according to both the parents? reports and the adolescents? self-reports. No sex differences were found in that respect. More differences between the assessments of adolescents and their parents occurred in the control group, and the effect size was larger. En ligne : http://dx.doi.org/10.1177/1362361316675119 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=311 [article] Behavioral and emotional problems in high-functioning girls and boys with autism spectrum disorders: Parents’ reports and adolescents’ self-reports [Texte imprimé et/ou numérique] / Ewa PISULA, Auteur ; Monika PUD?O, Auteur ; Monika S?OWI?SKA, Auteur ; Rafa? KAWA, Auteur ; Magdalena STRZ?SKA, Auteur ; Anna BANASIAK, Auteur ; Tomasz WOLANCZYK, Auteur . - p.738-748. Langues : Anglais (eng) in Autism > 21-6 (August 2017) . - p.738-748 Index. décimale : PER Périodiques Résumé : The purpose of this study was to investigate sex differences in behavioral and emotional problems in high-functioning girls and boys with autism spectrum disorder. The results obtained by adolescents with autism spectrum disorder were compared with those of typically developing girls and boys. Correlations between parents? and adolescents? ratings were also analyzed. Participants were 35 girls and 35 boys with autism spectrum disorder, aged 11?18?years, matched for chronological age and full-scale IQ. The control group consisted of 24 typically developing girls and 24 boys of the same age and IQ. The parents of adolescent participants were also included in the study. The measures used were the Child Behavior Checklist (4?18) completed by parents and Youth Self-Report (11?18) completed by adolescents. The adolescents with autism spectrum disorder presented higher levels of behavioral and emotional problems than the control group, according to both the parents? reports and the adolescents? self-reports. No sex differences were found in that respect. More differences between the assessments of adolescents and their parents occurred in the control group, and the effect size was larger. En ligne : http://dx.doi.org/10.1177/1362361316675119 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=311

Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives / Álvaro BEJARANO-MARTÍN in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3395-3396 Titre : Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives Type de document : Texte imprimé et/ou numérique Auteurs : Álvaro BEJARANO-MARTÍN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; María MAGÁN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; María Victoria MARTIN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigríður LOA JÓNSDÓTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Bernadette ROGE, Auteur ; Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Johanna Xenia KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur Article en page(s) : p.3395-3396 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained a mistake in one of the co-author's family name. The correct name should be María Victoria Martín-Cilleros instead of María Victoria Cilleros-Martín. En ligne : http://dx.doi.org/10.1007/s10803-019-04303-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430 [article] Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives [Texte imprimé et/ou numérique] / Álvaro BEJARANO-MARTÍN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; María MAGÁN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; María Victoria MARTIN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigríður LOA JÓNSDÓTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Bernadette ROGE, Auteur ; Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Johanna Xenia KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur . - p.3395-3396. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3395-3396 Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained a mistake in one of the co-author's family name. The correct name should be María Victoria Martín-Cilleros instead of María Victoria Cilleros-Martín. En ligne : http://dx.doi.org/10.1007/s10803-019-04303-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430

Correlations between temperament and autistic trait measures – Quantitative or qualitative differences between children with and without autism spectrum disorders? / Iwona OMELANCZUK in Research in Autism Spectrum Disorders, 76 (August 2020)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 76 (August 2020) . - p.101602 Titre : Correlations between temperament and autistic trait measures – Quantitative or qualitative differences between children with and without autism spectrum disorders? Type de document : Texte imprimé et/ou numérique Auteurs : Iwona OMELANCZUK, Auteur ; Ewa PISULA, Auteur Article en page(s) : p.101602 Langues : Anglais (eng) Mots-clés : Autistic traits  Autism spectrum disorder  Temperament Index. décimale : PER Périodiques Résumé : Background The study tested the spectrum hypothesis, which claims that children with Autism Spectrum Disorder with normal intelligence differ in terms of temperament from typically developing peers quantitatively and not qualitatively. Severity of autistic traits was also taken into account and the question whether temperament may serve as predictor for autistic traits was tested. Methods Participants included 352 children, aged 4–11 years, from the general population and 79 children with an ASD diagnosis. Parents completed questionnaires about the severity of autistic traits and temperament of their children. Results Quantitatively, differences in means were found between ASD and non-clinical groups in terms of emotionality, sociability, activity and shyness. Qualitatively, in the ASD group, there was higher variance in autistic traits, as well as sociability, activity, and shyness. There were also differences between ASD and non-clinical groups in internal consistency with respect to autistic traits and shyness but not activity, sociability and emotionality. In addition, the relationship between shyness and autistic traits was stronger in the ASD group than in the non-clinical group. Conclusions The results do not definitively confirm the spectrum hypothesis but further research is needed with better control for the severity of ASD symptoms in study groups and more sophisticated statistical analysis methods. En ligne : https://doi.org/10.1016/j.rasd.2020.101602 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=429 [article] Correlations between temperament and autistic trait measures – Quantitative or qualitative differences between children with and without autism spectrum disorders? [Texte imprimé et/ou numérique] / Iwona OMELANCZUK, Auteur ; Ewa PISULA, Auteur . - p.101602. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 76 (August 2020) . - p.101602 Mots-clés : Autistic traits  Autism spectrum disorder  Temperament Index. décimale : PER Périodiques Résumé : Background The study tested the spectrum hypothesis, which claims that children with Autism Spectrum Disorder with normal intelligence differ in terms of temperament from typically developing peers quantitatively and not qualitatively. Severity of autistic traits was also taken into account and the question whether temperament may serve as predictor for autistic traits was tested. Methods Participants included 352 children, aged 4–11 years, from the general population and 79 children with an ASD diagnosis. Parents completed questionnaires about the severity of autistic traits and temperament of their children. Results Quantitatively, differences in means were found between ASD and non-clinical groups in terms of emotionality, sociability, activity and shyness. Qualitatively, in the ASD group, there was higher variance in autistic traits, as well as sociability, activity, and shyness. There were also differences between ASD and non-clinical groups in internal consistency with respect to autistic traits and shyness but not activity, sociability and emotionality. In addition, the relationship between shyness and autistic traits was stronger in the ASD group than in the non-clinical group. Conclusions The results do not definitively confirm the spectrum hypothesis but further research is needed with better control for the severity of ASD symptoms in study groups and more sophisticated statistical analysis methods. En ligne : https://doi.org/10.1016/j.rasd.2020.101602 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=429

Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study / Quentin GUILLON in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2136-2150 Titre : Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study Type de document : Texte imprimé et/ou numérique Auteurs : Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur Article en page(s) : p.2136-2150 Langues : Anglais (eng) Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder/diagnosis/psychology  Personal Satisfaction  Autism Spectrum Disorder/diagnosis/psychology  Parents/psychology  Family  autism  early detection  parents’ experiences  satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study [Texte imprimé et/ou numérique] / Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur . - p.2136-2150. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2136-2150 Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder/diagnosis/psychology  Personal Satisfaction  Autism Spectrum Disorder/diagnosis/psychology  Parents/psychology  Family  autism  early detection  parents’ experiences  satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives / Álvaro BEJARANO-MARTÍN in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

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Friendship understanding in males and females on the autism spectrum and their typically developing peers / Mateusz P?ATOS in Research in Autism Spectrum Disorders, 81 (March 2021)  

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Gluten-Free Diet in Children with Autism Spectrum Disorders: A Randomized, Controlled, Single-Blinded Trial / Anna PIWOWARCZYK in Journal of Autism and Developmental Disorders, 50-2 (February 2020)  

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Parenting Stress in Mothers and Fathers of Children with Autism Spectrum Disorders / Ewa PISULA  

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Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism / Ewa PISULA in Journal of Autism and Developmental Disorders, 40-12 (December 2010)  

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The relationship between gestures and non-verbal communication and attentional processing in high-functioning adolescents with autism spectrum disorder / Monika PUD?O in Autism & Developmental Language Impairments, 3 (January-December 2018)  

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