Correction: The Developmental Autism Early Screening (DAES): a novel test for screening Autism Spectrum Disorder / Lara CIRNIGLIARO in Journal of Autism and Developmental Disorders, 54-6 (June 2024)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2418-2418 Titre : Correction: The Developmental Autism Early Screening (DAES): a novel test for screening Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Lara CIRNIGLIARO, Auteur ; Maria Stella VALLE, Auteur ; Antonino CASABONA, Auteur ; Martina RANDAZZO, Auteur ; Francesca La BRUNA, Auteur ; Fabio PETTINATO, Auteur ; Antonio NARZISI, Auteur ; Renata RIZZO, Auteur ; Rita BARONE, Auteur Article en page(s) : p.2418-2418 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06274-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530 [article] Correction: The Developmental Autism Early Screening (DAES): a novel test for screening Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Lara CIRNIGLIARO, Auteur ; Maria Stella VALLE, Auteur ; Antonino CASABONA, Auteur ; Martina RANDAZZO, Auteur ; Francesca La BRUNA, Auteur ; Fabio PETTINATO, Auteur ; Antonio NARZISI, Auteur ; Renata RIZZO, Auteur ; Rita BARONE, Auteur . - p.2418-2418. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 54-6 (June 2024) . - p.2418-2418 Index. décimale : PER Périodiques En ligne : https://doi.org/10.1007/s10803-024-06274-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=530

Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives / Álvaro BEJARANO-MARTÍN in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3395-3396 Titre : Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives Type de document : Texte imprimé et/ou numérique Auteurs : Álvaro BEJARANO-MARTÍN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; María MAGÁN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; María Victoria MARTIN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigríður LOA JÓNSDÓTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Bernadette ROGE, Auteur ; Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Johanna Xenia KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur Article en page(s) : p.3395-3396 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained a mistake in one of the co-author's family name. The correct name should be María Victoria Martín-Cilleros instead of María Victoria Cilleros-Martín. En ligne : http://dx.doi.org/10.1007/s10803-019-04303-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430 [article] Correction to: Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives [Texte imprimé et/ou numérique] / Álvaro BEJARANO-MARTÍN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; María MAGÁN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; María Victoria MARTIN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigríður LOA JÓNSDÓTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Bernadette ROGE, Auteur ; Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Johanna Xenia KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur . - p.3395-3396. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3395-3396 Index. décimale : PER Périodiques Résumé : The original version of this article unfortunately contained a mistake in one of the co-author's family name. The correct name should be María Victoria Martín-Cilleros instead of María Victoria Cilleros-Martín. En ligne : http://dx.doi.org/10.1007/s10803-019-04303-7 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430

CRISIS AFAR: an international collaborative study of the impact of the COVID-19 pandemic on mental health and service access in youth with autism and neurodevelopmental conditions / Patricia SEGURA ; Louise GALLAGHER ; Stelios GEORGIADES ; Panagiota PERVANIDOU ; Audrey THURM ; Lindsay ALEXANDER ; Evdokia ANAGNOSTOU ; Yuta AOKI ; Catherine S. BIRKEN ; Somer L. BISHOP ; Jessica BOI ; Carmela BRAVACCIO ; Helena BRENTANI ; Paola CANEVINI ; Alessandra CARTA ; Alice CHARACH ; Antonella COSTANTINO ; Katherine T. COST ; Elaine A. CRAVO ; Jennifer CROSBIE ; Chiara DAVICO ; Federica DONNO ; Junya FUJINO ; Alessandra GABELLONE ; Cristiane T. GEYER ; Tomoya HIROTA ; Stephen KANNE ; Makiko KAWASHIMA ; Elizabeth KELLEY ; Hosanna KIM ; Young Shin KIM ; So Hyun KIM ; Daphne J. KORCZAK ; Meng-Chuan LAI ; Lucia MARGARI ; Lucia MARZULLI ; Gabriele MASI ; Luigi MAZZONE ; Jane MCGRATH ; Suneeta MONGA ; Paola MOROSINI ; Shinichiro NAKAJIMA ; Antonio NARZISI ; Rob NICOLSON ; Aki NIKOLAIDIS ; Yoshihiro NODA ; Kerri NOWELL ; Miriam POLIZZI ; Joana PORTOLESE ; Maria Pia RICCIO ; Manabu SAITO ; Ida SCHWARTZ ; Anish K. SIMHAL ; Martina SIRACUSANO ; Stefano SOTGIU ; Jacob STROUD ; Fernando SUMIYA ; Yoshiyuki TACHIBANA ; Nicole TAKAHASHI ; Riina TAKAHASHI ; Hiroki TAMON ; Raffaella TANCREDI ; Benedetto VITIELLO ; Alessandro ZUDDAS ; Bennett LEVENTHAL ; Kathleen MERIKANGAS ; Michael P. MILHAM ; Adriana DI MARTINO in Molecular Autism, 14 (2023)  

Public ISBD [article]  inMolecular Autism > 14 (2023) . - 7 p. Titre : CRISIS AFAR: an international collaborative study of the impact of the COVID-19 pandemic on mental health and service access in youth with autism and neurodevelopmental conditions Type de document : Texte imprimé et/ou numérique Auteurs : Patricia SEGURA, Auteur ; Louise GALLAGHER, Auteur ; Stelios GEORGIADES, Auteur ; Panagiota PERVANIDOU, Auteur ; Audrey THURM, Auteur ; Lindsay ALEXANDER, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Yuta AOKI, Auteur ; Catherine S. BIRKEN, Auteur ; Somer L. BISHOP, Auteur ; Jessica BOI, Auteur ; Carmela BRAVACCIO, Auteur ; Helena BRENTANI, Auteur ; Paola CANEVINI, Auteur ; Alessandra CARTA, Auteur ; Alice CHARACH, Auteur ; Antonella COSTANTINO, Auteur ; Katherine T. COST, Auteur ; Elaine A. CRAVO, Auteur ; Jennifer CROSBIE, Auteur ; Chiara DAVICO, Auteur ; Federica DONNO, Auteur ; Junya FUJINO, Auteur ; Alessandra GABELLONE, Auteur ; Cristiane T. GEYER, Auteur ; Tomoya HIROTA, Auteur ; Stephen KANNE, Auteur ; Makiko KAWASHIMA, Auteur ; Elizabeth KELLEY, Auteur ; Hosanna KIM, Auteur ; Young Shin KIM, Auteur ; So Hyun KIM, Auteur ; Daphne J. KORCZAK, Auteur ; Meng-Chuan LAI, Auteur ; Lucia MARGARI, Auteur ; Lucia MARZULLI, Auteur ; Gabriele MASI, Auteur ; Luigi MAZZONE, Auteur ; Jane MCGRATH, Auteur ; Suneeta MONGA, Auteur ; Paola MOROSINI, Auteur ; Shinichiro NAKAJIMA, Auteur ; Antonio NARZISI, Auteur ; Rob NICOLSON, Auteur ; Aki NIKOLAIDIS, Auteur ; Yoshihiro NODA, Auteur ; Kerri NOWELL, Auteur ; Miriam POLIZZI, Auteur ; Joana PORTOLESE, Auteur ; Maria Pia RICCIO, Auteur ; Manabu SAITO, Auteur ; Ida SCHWARTZ, Auteur ; Anish K. SIMHAL, Auteur ; Martina SIRACUSANO, Auteur ; Stefano SOTGIU, Auteur ; Jacob STROUD, Auteur ; Fernando SUMIYA, Auteur ; Yoshiyuki TACHIBANA, Auteur ; Nicole TAKAHASHI, Auteur ; Riina TAKAHASHI, Auteur ; Hiroki TAMON, Auteur ; Raffaella TANCREDI, Auteur ; Benedetto VITIELLO, Auteur ; Alessandro ZUDDAS, Auteur ; Bennett LEVENTHAL, Auteur ; Kathleen MERIKANGAS, Auteur ; Michael P. MILHAM, Auteur ; Adriana DI MARTINO, Auteur Article en page(s) : 7 p. Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : BACKGROUND: Heterogeneous mental health outcomes during the COVID-19 pandemic are documented in the general population. Such heterogeneity has not been systematically assessed in youth with autism spectrum disorder (ASD) and related neurodevelopmental disorders (NDD). To identify distinct patterns of the pandemic impact and their predictors in ASD/NDD youth, we focused on pandemic-related changes in symptoms and access to services. METHODS: Using a naturalistic observational design, we assessed parent responses on the Coronavirus Health and Impact Survey Initiative (CRISIS) Adapted For Autism and Related neurodevelopmental conditions (AFAR). Cross-sectional AFAR data were aggregated across 14 European and North American sites yielding a clinically well-characterized sample of N=1275 individuals with ASD/NDD (age=11.0?+?3.6 years; n females=277). To identify subgroups with differential outcomes, we applied hierarchical clustering across eleven variables measuring changes in symptoms and access to services. Then, random forest classification assessed the importance of socio-demographics, pre-pandemic service rates, clinical severity of ASD-associated symptoms, and COVID-19 pandemic experiences/environments in predicting the outcome subgroups. RESULTS: Clustering revealed four subgroups. One subgroup-broad symptom worsening only (20%)-included youth with worsening across a range of symptoms but with service disruptions similar to the average of the aggregate sample. The other three subgroups were, relatively, clinically stable but differed in service access: primarily modified services (23%), primarily lost services (6%), and average services/symptom changes (53%). Distinct combinations of a set of pre-pandemic services, pandemic environment (e.g., COVID-19 new cases, restrictions), experiences (e.g., COVID-19 Worries), and age predicted each outcome subgroup. LIMITATIONS: Notable limitations of the study are its cross-sectional nature and focus on the first six months of the pandemic. CONCLUSIONS: Concomitantly assessing variation in changes of symptoms and service access during the first phase of the pandemic revealed differential outcome profiles in ASD/NDD youth. Subgroups were characterized by distinct prediction patterns across a set of pre- and pandemic-related experiences/contexts. Results may inform recovery efforts and preparedness in future crises; they also underscore the critical value of international data-sharing and collaborations to address the needs of those most vulnerable in times of crisis. En ligne : http://dx.doi.org/10.1186/s13229-022-00536-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513 [article] CRISIS AFAR: an international collaborative study of the impact of the COVID-19 pandemic on mental health and service access in youth with autism and neurodevelopmental conditions [Texte imprimé et/ou numérique] / Patricia SEGURA, Auteur ; Louise GALLAGHER, Auteur ; Stelios GEORGIADES, Auteur ; Panagiota PERVANIDOU, Auteur ; Audrey THURM, Auteur ; Lindsay ALEXANDER, Auteur ; Evdokia ANAGNOSTOU, Auteur ; Yuta AOKI, Auteur ; Catherine S. BIRKEN, Auteur ; Somer L. BISHOP, Auteur ; Jessica BOI, Auteur ; Carmela BRAVACCIO, Auteur ; Helena BRENTANI, Auteur ; Paola CANEVINI, Auteur ; Alessandra CARTA, Auteur ; Alice CHARACH, Auteur ; Antonella COSTANTINO, Auteur ; Katherine T. COST, Auteur ; Elaine A. CRAVO, Auteur ; Jennifer CROSBIE, Auteur ; Chiara DAVICO, Auteur ; Federica DONNO, Auteur ; Junya FUJINO, Auteur ; Alessandra GABELLONE, Auteur ; Cristiane T. GEYER, Auteur ; Tomoya HIROTA, Auteur ; Stephen KANNE, Auteur ; Makiko KAWASHIMA, Auteur ; Elizabeth KELLEY, Auteur ; Hosanna KIM, Auteur ; Young Shin KIM, Auteur ; So Hyun KIM, Auteur ; Daphne J. KORCZAK, Auteur ; Meng-Chuan LAI, Auteur ; Lucia MARGARI, Auteur ; Lucia MARZULLI, Auteur ; Gabriele MASI, Auteur ; Luigi MAZZONE, Auteur ; Jane MCGRATH, Auteur ; Suneeta MONGA, Auteur ; Paola MOROSINI, Auteur ; Shinichiro NAKAJIMA, Auteur ; Antonio NARZISI, Auteur ; Rob NICOLSON, Auteur ; Aki NIKOLAIDIS, Auteur ; Yoshihiro NODA, Auteur ; Kerri NOWELL, Auteur ; Miriam POLIZZI, Auteur ; Joana PORTOLESE, Auteur ; Maria Pia RICCIO, Auteur ; Manabu SAITO, Auteur ; Ida SCHWARTZ, Auteur ; Anish K. SIMHAL, Auteur ; Martina SIRACUSANO, Auteur ; Stefano SOTGIU, Auteur ; Jacob STROUD, Auteur ; Fernando SUMIYA, Auteur ; Yoshiyuki TACHIBANA, Auteur ; Nicole TAKAHASHI, Auteur ; Riina TAKAHASHI, Auteur ; Hiroki TAMON, Auteur ; Raffaella TANCREDI, Auteur ; Benedetto VITIELLO, Auteur ; Alessandro ZUDDAS, Auteur ; Bennett LEVENTHAL, Auteur ; Kathleen MERIKANGAS, Auteur ; Michael P. MILHAM, Auteur ; Adriana DI MARTINO, Auteur . - 7 p. Langues : Anglais (eng) in Molecular Autism > 14 (2023) . - 7 p. Index. décimale : PER Périodiques Résumé : BACKGROUND: Heterogeneous mental health outcomes during the COVID-19 pandemic are documented in the general population. Such heterogeneity has not been systematically assessed in youth with autism spectrum disorder (ASD) and related neurodevelopmental disorders (NDD). To identify distinct patterns of the pandemic impact and their predictors in ASD/NDD youth, we focused on pandemic-related changes in symptoms and access to services. METHODS: Using a naturalistic observational design, we assessed parent responses on the Coronavirus Health and Impact Survey Initiative (CRISIS) Adapted For Autism and Related neurodevelopmental conditions (AFAR). Cross-sectional AFAR data were aggregated across 14 European and North American sites yielding a clinically well-characterized sample of N=1275 individuals with ASD/NDD (age=11.0?+?3.6 years; n females=277). To identify subgroups with differential outcomes, we applied hierarchical clustering across eleven variables measuring changes in symptoms and access to services. Then, random forest classification assessed the importance of socio-demographics, pre-pandemic service rates, clinical severity of ASD-associated symptoms, and COVID-19 pandemic experiences/environments in predicting the outcome subgroups. RESULTS: Clustering revealed four subgroups. One subgroup-broad symptom worsening only (20%)-included youth with worsening across a range of symptoms but with service disruptions similar to the average of the aggregate sample. The other three subgroups were, relatively, clinically stable but differed in service access: primarily modified services (23%), primarily lost services (6%), and average services/symptom changes (53%). Distinct combinations of a set of pre-pandemic services, pandemic environment (e.g., COVID-19 new cases, restrictions), experiences (e.g., COVID-19 Worries), and age predicted each outcome subgroup. LIMITATIONS: Notable limitations of the study are its cross-sectional nature and focus on the first six months of the pandemic. CONCLUSIONS: Concomitantly assessing variation in changes of symptoms and service access during the first phase of the pandemic revealed differential outcome profiles in ASD/NDD youth. Subgroups were characterized by distinct prediction patterns across a set of pre- and pandemic-related experiences/contexts. Results may inform recovery efforts and preparedness in future crises; they also underscore the critical value of international data-sharing and collaborations to address the needs of those most vulnerable in times of crisis. En ligne : http://dx.doi.org/10.1186/s13229-022-00536-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=513

Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study / Quentin GUILLON in Autism, 26-8 (November 2022)  

Public ISBD [article]  inAutism > 26-8 (November 2022) . - p.2136-2150 Titre : Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study Type de document : Texte imprimé et/ou numérique Auteurs : Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur Article en page(s) : p.2136-2150 Langues : Anglais (eng) Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder/diagnosis/psychology  Personal Satisfaction  Autism Spectrum Disorder/diagnosis/psychology  Parents/psychology  Family  autism  early detection  parents’ experiences  satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488 [article] Determinants of satisfaction with the detection process of autism in Europe: Results from the ASDEU study [Texte imprimé et/ou numérique] / Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Alvaro BEJARANO-MARTIN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; Maria MAGAN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; Maria Victoria MARTAN-CILLEROS, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine Kloster WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigrídur Lóa JONSDOTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Johanna XENIA KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur ; Bernadette ROGE, Auteur . - p.2136-2150. Langues : Anglais (eng) in Autism > 26-8 (November 2022) . - p.2136-2150 Mots-clés : Child  Humans  Child, Preschool  Autistic Disorder/diagnosis/psychology  Personal Satisfaction  Autism Spectrum Disorder/diagnosis/psychology  Parents/psychology  Family  autism  early detection  parents’ experiences  satisfaction Index. décimale : PER Périodiques Résumé : Professional guidance and support in response to first concerns appears to be an important predictor of the level of satisfaction with the detection process of autism in young children. In this study, we analyzed the views of 1342 family members, including 1278 parents, who completed an online survey form collecting information about their experience and satisfaction with the early detection of autism in their child. Specifically, we were interested in how specific experiences with the detection process relate to the satisfaction with it and whether we could identify important predictors of satisfaction. The detection process is an emotionally charged period for parents, often described as painful, chaotic, and lengthy. A better understanding of their experiences is important to take appropriate action to improve the detection process. In our sample, the level of satisfaction with the detection process varied greatly from one respondent to another. Among the different experiences we considered, whether or not respondents received professional guidance and support in response to first concerns explained most of this variation. We also found that difficulty finding information about detection services, lack of professional guidance and support in response to first concerns, having to find a diagnostic service on one's own, and longer delays between confirmation of concerns and first appointment with a specialist were experiences associated with a greater likelihood of being unsatisfied. The findings of this study highlight the importance of the parent-professional relationship in the detection process and have important practical implications for health administrations to improve the detection process. En ligne : http://dx.doi.org/10.1177/13623613221080318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=488

Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives / Álvaro BEJARANO-MARTÍN in Journal of Autism and Developmental Disorders, 50-9 (September 2020)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3380-3394 Titre : Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives Type de document : Texte imprimé et/ou numérique Auteurs : Álvaro BEJARANO-MARTÍN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; María MAGÁN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; María Victoria CILLEROS-MARTÍN, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigríður LOA JÓNSDÓTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Bernadette ROGE, Auteur ; Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Johanna Xenia KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur Article en page(s) : p.3380-3394 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Diagnosis  Early detection  Mental health services  Patient satisfaction  Survey Index. décimale : PER Périodiques Résumé : Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents' opinions were more negative (mean?=?4.6; SD 2.2) compared to those of professionals (mean?=?4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child's age, delays in accessing services, and active stakeholders' participation when looking to improve services. En ligne : http://dx.doi.org/10.1007/s10803-019-04253-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430 [article] Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives [Texte imprimé et/ou numérique] / Álvaro BEJARANO-MARTÍN, Auteur ; Ricardo CANAL-BEDIA, Auteur ; María MAGÁN-MAGANTO, Auteur ; Clara FERNÁNDEZ-ÁLVAREZ, Auteur ; María Victoria CILLEROS-MARTÍN, Auteur ; María Cruz SÁNCHEZ-GÓMEZ, Auteur ; Patricia GARCÍA PRIMO, Auteur ; Mary ROSE-SWEENEY, Auteur ; Andrew Martin BOILSON, Auteur ; Renata LINERTOVÁ, Auteur ; Herbert ROEYERS, Auteur ; Sara VAN DER PAELT, Auteur ; Diana SCHENDEL, Auteur ; Christine WARBERG, Auteur ; Susanne CRAMER, Auteur ; Antonio NARZISI, Auteur ; Filippo MURATORI, Auteur ; Maria Luisa SCATTONI, Auteur ; Irma MOILANEN, Auteur ; Anneli YLIHERVA, Auteur ; Evald SAEMUNDSEN, Auteur ; Sigríður LOA JÓNSDÓTTIR, Auteur ; Magdalena EFRIM-BUDISTEANU, Auteur ; Aurora ARGHIR, Auteur ; Sorina Mihaela PAPUC, Auteur ; Astrid VICENTE, Auteur ; Célia RASGA, Auteur ; Bernadette ROGE, Auteur ; Quentin GUILLON, Auteur ; Sophie BADUEL, Auteur ; Johanna Xenia KAFKA, Auteur ; Luise POUSTKA, Auteur ; Oswald D. KOTHGASSNER, Auteur ; Rafal KAWA, Auteur ; Ewa PISULA, Auteur ; Tracey SELLERS, Auteur ; Manuel POSADA DE LA PAZ, Auteur . - p.3380-3394. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 50-9 (September 2020) . - p.3380-3394 Mots-clés : Autism spectrum disorder  Diagnosis  Early detection  Mental health services  Patient satisfaction  Survey Index. décimale : PER Périodiques Résumé : Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents' opinions were more negative (mean?=?4.6; SD 2.2) compared to those of professionals (mean?=?4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child's age, delays in accessing services, and active stakeholders' participation when looking to improve services. En ligne : http://dx.doi.org/10.1007/s10803-019-04253-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=430

Erratum to: Olfactory Processing in Male Children with Autism: Atypical Odor Threshold and Identification / Filippo MURATORI in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

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Olfactory Processing in Male Children with Autism: Atypical Odor Threshold and Identification / Filippo MURATORI in Journal of Autism and Developmental Disorders, 47-10 (October 2017)  

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Tracing back to the onset of abnormal head circumference growth in Italian children with autism spectrum disorder / Filippo MURATORI in Research in Autism Spectrum Disorders, 6-1 (January-March 2012)  

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Use of early intervention for young children with autism spectrum disorder across Europe / Erica SALOMONE in Autism, 20-2 (February 2016)  

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