Commentary: 'Camouflaging' in autistic people - reflection on Fombonne (2020) / Meng-Chuan LAI in Journal of Child Psychology and Psychiatry, 62-8 (August 2021)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 62-8 (August 2021) Titre : Commentary: 'Camouflaging' in autistic people - reflection on Fombonne (2020) Type de document : Texte imprimé et/ou numérique Auteurs : Meng-Chuan LAI, Auteur ; L. HULL, Auteur ; W. MANDY, Auteur ; Bhismadev CHAKRABARTI, Auteur ; Christine W. NORDAHL, Auteur ; M. V. LOMBARDO, Auteur ; Stephanie H. AMEIS, Auteur ; P. SZATMARI, Auteur ; Simon BARON-COHEN, Auteur ; Francesca HAPPE, Auteur ; L. A. LIVINGSTON, Auteur Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Adult  Autistic Disorder  Female  Humans Index. décimale : PER Périodiques Résumé : Fombonne's (2020) editorial is a thought-provoking appraisal of the literature on 'camouflaging', whereby some autistic people mask or compensate for their autistic characteristics as an attempt to fit in and to cope with disabilities under neurotypical social norms. Fombonne (2020) highlights three issues of contention: (a) construct validity and measurement of camouflaging; (b) camouflaging as a reason for late autism diagnosis in adolescence/adulthood; and (c) camouflaging as a feature of the 'female autism phenotype'. Here, we argue that (a) establishing construct validity and measurement of different aspects of camouflaging is warranted; (b) subjective experiences are important for the differential diagnosis of autism in adolescence/adulthood; and (c) camouflaging is not necessarily a feature of autism in female individuals - nevertheless, taking into account sex and gender influences in development is crucial to understand behavioural manifestations of autism. Future research and clinical directions should involve clarification of associated constructs and measurements, demography, mechanisms, impact (including harms and benefits) and tailored support. En ligne : http://dx.doi.org/10.1111/jcpp.13344 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=456 [article] Commentary: 'Camouflaging' in autistic people - reflection on Fombonne (2020) [Texte imprimé et/ou numérique] / Meng-Chuan LAI, Auteur ; L. HULL, Auteur ; W. MANDY, Auteur ; Bhismadev CHAKRABARTI, Auteur ; Christine W. NORDAHL, Auteur ; M. V. LOMBARDO, Auteur ; Stephanie H. AMEIS, Auteur ; P. SZATMARI, Auteur ; Simon BARON-COHEN, Auteur ; Francesca HAPPE, Auteur ; L. A. LIVINGSTON, Auteur. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 62-8 (August 2021) Mots-clés : Adaptation, Psychological  Adult  Autistic Disorder  Female  Humans Index. décimale : PER Périodiques Résumé : Fombonne's (2020) editorial is a thought-provoking appraisal of the literature on 'camouflaging', whereby some autistic people mask or compensate for their autistic characteristics as an attempt to fit in and to cope with disabilities under neurotypical social norms. Fombonne (2020) highlights three issues of contention: (a) construct validity and measurement of camouflaging; (b) camouflaging as a reason for late autism diagnosis in adolescence/adulthood; and (c) camouflaging as a feature of the 'female autism phenotype'. Here, we argue that (a) establishing construct validity and measurement of different aspects of camouflaging is warranted; (b) subjective experiences are important for the differential diagnosis of autism in adolescence/adulthood; and (c) camouflaging is not necessarily a feature of autism in female individuals - nevertheless, taking into account sex and gender influences in development is crucial to understand behavioural manifestations of autism. Future research and clinical directions should involve clarification of associated constructs and measurements, demography, mechanisms, impact (including harms and benefits) and tailored support. En ligne : http://dx.doi.org/10.1111/jcpp.13344 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=456

Common psychiatric comorbidities and their assessment / Stephanie H. AMEIS

Public ISBD in Clinician's Manual on Autism Spectrum Disorder / Evdokia ANAGNOSTOU Titre : Common psychiatric comorbidities and their assessment Type de document : Texte imprimé et/ou numérique Auteurs : Stephanie H. AMEIS, Auteur ; Peter SZATMARI, Auteur Année de publication : 2015 Importance : p.19-32 Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=271 in Clinician's Manual on Autism Spectrum Disorder / Evdokia ANAGNOSTOU Common psychiatric comorbidities and their assessment [Texte imprimé et/ou numérique] / Stephanie H. AMEIS, Auteur ; Peter SZATMARI, Auteur . - 2015 . - p.19-32. Langues : Anglais (eng) Index. décimale : AUT-B AUT-B - L'Autisme - Ouvrages généraux et scientifiques Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=271

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Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond / Stephanie H. AMEIS in Molecular Autism, 11 (2020)  

Public ISBD [article]  inMolecular Autism > 11 (2020) . - 61 p. Titre : Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond Type de document : Texte imprimé et/ou numérique Auteurs : Stephanie H. AMEIS, Auteur ; Meng-Chuan LAI, Auteur ; Benoit H. MULSANT, Auteur ; Peter SZATMARI, Auteur Article en page(s) : 61 p. Langues : Anglais (eng) Mots-clés : Adaptation, Psychological  Autistic Disorder/psychology  Coronavirus Infections/therapy  Health Services Accessibility  Humans  Online Social Networking  Pandemics  Pneumonia, Viral/therapy  Resilience, Psychological  Socioeconomic Factors  Telemedicine/statistics & numerical data  Vulnerable Populations/psychology  Autism  covid-19  Equity  Health services  Pandemic  Resilience  SARS-CoV-2 virus  Telehealth Index. décimale : PER Périodiques Résumé : The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts. En ligne : http://dx.doi.org/10.1186/s13229-020-00365-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433 [article] Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond [Texte imprimé et/ou numérique] / Stephanie H. AMEIS, Auteur ; Meng-Chuan LAI, Auteur ; Benoit H. MULSANT, Auteur ; Peter SZATMARI, Auteur . - 61 p. Langues : Anglais (eng) in Molecular Autism > 11 (2020) . - 61 p. Mots-clés : Adaptation, Psychological  Autistic Disorder/psychology  Coronavirus Infections/therapy  Health Services Accessibility  Humans  Online Social Networking  Pandemics  Pneumonia, Viral/therapy  Resilience, Psychological  Socioeconomic Factors  Telemedicine/statistics & numerical data  Vulnerable Populations/psychology  Autism  covid-19  Equity  Health services  Pandemic  Resilience  SARS-CoV-2 virus  Telehealth Index. décimale : PER Périodiques Résumé : The new coronavirus disease (COVID-19) pandemic is changing how society operates. Environmental changes, disrupted routines, and reduced access to services and social networks will have a unique impact on autistic individuals and their families and will contribute to significant deterioration in some. Access to support is crucial to address vulnerability factors, guide adjustments in home environments, and apply mitigation strategies to improve coping. The current crisis highlights that our regular care systems are not sufficient to meet the needs of the autism communities. In many parts of the world, people have shifted to online school and increased use of remote delivery of healthcare and autism supports. Access to these services needs to be increased to mitigate the negative impact of COVID-19 and future epidemics/pandemics. The rapid expansion in the use of telehealth platforms can have a positive impact on both care and research. It can help to address key priorities for the autism communities including long waitlists for assessment and care, access to services in remote locations, and restricted hours of service. However, system-level changes are urgently needed to ensure equitable access and flexible care models, especially for families and individuals who are socioeconomically disadvantaged. COVID-19 mandates the use of technology to support a broader range of care options and better meet the diverse needs of autistic people and their families. It behooves us to use this crisis as an opportunity to foster resilience not only for a given individual or their family, but also the system: to drive enduring and autism-friendly changes in healthcare, social systems, and the broader socio-ecological contexts. En ligne : http://dx.doi.org/10.1186/s13229-020-00365-y Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=433

Middle-childhood executive functioning mediates associations between early-childhood autism symptoms and adolescent mental health, academic and functional outcomes in autistic children / Stephanie H. AMEIS in Journal of Child Psychology and Psychiatry, 63-5 (May 2022)  

Public ISBD [article]  inJournal of Child Psychology and Psychiatry > 63-5 (May 2022) . - p.553-562 Titre : Middle-childhood executive functioning mediates associations between early-childhood autism symptoms and adolescent mental health, academic and functional outcomes in autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Stephanie H. AMEIS, Auteur ; John D. HALTIGAN, Auteur ; Rachael E. LYON, Auteur ; Amanda SAWYER, Auteur ; Pat MIRENDA, Auteur ; Connor M. KERNS, Auteur ; Isabel M. SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Joanne VOLDEN, Auteur ; Charlotte WADDELL, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Mayada ELSABBAGH, Auteur ; Stelios GEORGIADES, Auteur ; Wendy J. UNGAR, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Meng-Chuan LAI, Auteur ; Peter SZATMARI, Auteur Article en page(s) : p.553-562 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder/complications  Child  Executive Function  Humans  Mental Health  Parents  academic performance  adaptive functioning  internalizing/externalizing behavior  longitudinal studies Index. décimale : PER Périodiques Résumé : BACKGROUND: Executive functioning (EF) varies in children with autism spectrum disorder (ASD) and is associated with clinical symptoms, academic, and adaptive functioning. Here, we examined whether middle-childhood EF mediates associations between early-childhood autism symptoms and adolescent outcomes in children with ASD. METHODS: The Pathways in ASD Cohort comprising children recruited at the time of ASD diagnosis (at 2-4?years-of-age) and followed prospectively across eight subsequent timepoints over ~10?years was used. A subset of Pathways participants (n=250) with Behavior Rating Inventory of Executive Function (BRIEF)-Parent Form data from at least one timepoint when participants were school-aged was analyzed. A mediation framework was used to examine whether BRIEF-measured EF across age 7-10?years (middle-childhood) mediated associations between early-childhood autism symptoms (measured using the parent-report Social Responsiveness Scale across age 2-6?years) and clinical, academic, and functional outcomes, indexed at age >10-11.8?years (early-adolescence) using the Child Behavior Checklist (CBCL)-Internalizing and Externalizing Scales, Academic Performance from the Teacher's Report Form, and Vineland Adaptive Behavior Scales. Models were rerun substituting clinician-rated and teacher-rated measures, where possible. RESULTS: Mediation models indicated a significant indirect effect of middle-childhood EF on associations between early-childhood autism symptoms and externalizing behavior, academic performance, or adaptive functioning in early adolescence; kappa squared (?(2) ) effect sizes ranged from large to small. Model findings were stable across raters. Middle-childhood EF did not mediate associations between early-childhood autism symptoms and adolescent internalizing behavior. CONCLUSIONS: Among children with an ASD diagnosis, middle-childhood EF may be one pathway through which early-childhood autism symptoms influence a variety of outcomes in early-adolescence. An experimental study targeting middle-childhood EF to improve adolescent academic, emotional/behavioral, and adaptive functioning is needed to evaluate the clinical meaningfulness of these findings. En ligne : http://dx.doi.org/10.1111/jcpp.13493 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476 [article] Middle-childhood executive functioning mediates associations between early-childhood autism symptoms and adolescent mental health, academic and functional outcomes in autistic children [Texte imprimé et/ou numérique] / Stephanie H. AMEIS, Auteur ; John D. HALTIGAN, Auteur ; Rachael E. LYON, Auteur ; Amanda SAWYER, Auteur ; Pat MIRENDA, Auteur ; Connor M. KERNS, Auteur ; Isabel M. SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Joanne VOLDEN, Auteur ; Charlotte WADDELL, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Mayada ELSABBAGH, Auteur ; Stelios GEORGIADES, Auteur ; Wendy J. UNGAR, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Meng-Chuan LAI, Auteur ; Peter SZATMARI, Auteur . - p.553-562. Langues : Anglais (eng) in Journal of Child Psychology and Psychiatry > 63-5 (May 2022) . - p.553-562 Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder/complications  Child  Executive Function  Humans  Mental Health  Parents  academic performance  adaptive functioning  internalizing/externalizing behavior  longitudinal studies Index. décimale : PER Périodiques Résumé : BACKGROUND: Executive functioning (EF) varies in children with autism spectrum disorder (ASD) and is associated with clinical symptoms, academic, and adaptive functioning. Here, we examined whether middle-childhood EF mediates associations between early-childhood autism symptoms and adolescent outcomes in children with ASD. METHODS: The Pathways in ASD Cohort comprising children recruited at the time of ASD diagnosis (at 2-4?years-of-age) and followed prospectively across eight subsequent timepoints over ~10?years was used. A subset of Pathways participants (n=250) with Behavior Rating Inventory of Executive Function (BRIEF)-Parent Form data from at least one timepoint when participants were school-aged was analyzed. A mediation framework was used to examine whether BRIEF-measured EF across age 7-10?years (middle-childhood) mediated associations between early-childhood autism symptoms (measured using the parent-report Social Responsiveness Scale across age 2-6?years) and clinical, academic, and functional outcomes, indexed at age >10-11.8?years (early-adolescence) using the Child Behavior Checklist (CBCL)-Internalizing and Externalizing Scales, Academic Performance from the Teacher's Report Form, and Vineland Adaptive Behavior Scales. Models were rerun substituting clinician-rated and teacher-rated measures, where possible. RESULTS: Mediation models indicated a significant indirect effect of middle-childhood EF on associations between early-childhood autism symptoms and externalizing behavior, academic performance, or adaptive functioning in early adolescence; kappa squared (?(2) ) effect sizes ranged from large to small. Model findings were stable across raters. Middle-childhood EF did not mediate associations between early-childhood autism symptoms and adolescent internalizing behavior. CONCLUSIONS: Among children with an ASD diagnosis, middle-childhood EF may be one pathway through which early-childhood autism symptoms influence a variety of outcomes in early-adolescence. An experimental study targeting middle-childhood EF to improve adolescent academic, emotional/behavioral, and adaptive functioning is needed to evaluate the clinical meaningfulness of these findings. En ligne : http://dx.doi.org/10.1111/jcpp.13493 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=476

Parent Outcomes Following Participation in Cognitive Behavior Therapy for Autistic Children in a Community Setting: Parent Mental Health, Mindful Parenting, and Parenting Practices / Alaa T. IBRAHIM in Autism Research, 18-3 (March 2025)  

Public ISBD [article]  inAutism Research > 18-3 (March 2025) . - p.570-582 Titre : Parent Outcomes Following Participation in Cognitive Behavior Therapy for Autistic Children in a Community Setting: Parent Mental Health, Mindful Parenting, and Parenting Practices Type de document : Texte imprimé et/ou numérique Auteurs : Alaa T. IBRAHIM, Auteur ; Vivian LEE, Auteur ; Nisha VASHI, Auteur ; Flora ROUDBARANI, Auteur ; Paula TABLON MODICA, Auteur ; Ava POUYANDEH, Auteur ; Teresa SELLITTO, Auteur ; Stephanie H. AMEIS, Auteur ; Alex ELKADER, Auteur ; Kylie M. GRAY, Auteur ; Connor M. KERNS, Auteur ; Meng-Chuan LAI, Auteur ; Johanna LAKE, Auteur ; Kendra THOMSON, Auteur ; Jonathan A. WEISS, Auteur Article en page(s) : p.570-582 Langues : Anglais (eng) Mots-clés : autism  cognitive behavior therapy  community intervention  mental health  mindful parenting  parenting practices Index. décimale : PER Périodiques Résumé : ABSTRACT Parents of autistic children are at a higher risk for mental health problems, including anxiety, depression, and stress. Cognitive behavior therapy (CBT) that targets children's emotion regulation may have an indirect influence on parent outcomes, especially if they play a supporting role in their child's intervention. However, most CBT interventions have been carried out in highly controlled research settings and there are a few studies that examined parental outcomes after participating in autistic child-focused CBT within a community setting. The current study examined parent outcomes (i.e., mental health problems, mindful parenting, and parenting practices) following a community-based CBT program with concurrent parent involvement for autistic children, as well as associations between changes in parent and child outcomes (i.e., autism symptoms and emotion dysregulation). Participants included 77 parent?child dyads across seven community organizations in Ontario, Canada. Parents reported improved mindful parenting and positive parenting practices post-intervention, and no significant changes in their mental health. Multiple mediation analyses revealed that positive changes in parent outcomes (i.e., mindful parenting and parenting practices) were associated with positive changes in child emotion regulation. These positive changes in parenting practices mediated the relationship between mindful parenting and child emotion regulation. Results suggest that participating in community-based CBT is mutually beneficial for autistic children and their parents, particularly in improving parenting behaviors. En ligne : https://doi.org/10.1002/aur.70001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550 [article] Parent Outcomes Following Participation in Cognitive Behavior Therapy for Autistic Children in a Community Setting: Parent Mental Health, Mindful Parenting, and Parenting Practices [Texte imprimé et/ou numérique] / Alaa T. IBRAHIM, Auteur ; Vivian LEE, Auteur ; Nisha VASHI, Auteur ; Flora ROUDBARANI, Auteur ; Paula TABLON MODICA, Auteur ; Ava POUYANDEH, Auteur ; Teresa SELLITTO, Auteur ; Stephanie H. AMEIS, Auteur ; Alex ELKADER, Auteur ; Kylie M. GRAY, Auteur ; Connor M. KERNS, Auteur ; Meng-Chuan LAI, Auteur ; Johanna LAKE, Auteur ; Kendra THOMSON, Auteur ; Jonathan A. WEISS, Auteur . - p.570-582. Langues : Anglais (eng) in Autism Research > 18-3 (March 2025) . - p.570-582 Mots-clés : autism  cognitive behavior therapy  community intervention  mental health  mindful parenting  parenting practices Index. décimale : PER Périodiques Résumé : ABSTRACT Parents of autistic children are at a higher risk for mental health problems, including anxiety, depression, and stress. Cognitive behavior therapy (CBT) that targets children's emotion regulation may have an indirect influence on parent outcomes, especially if they play a supporting role in their child's intervention. However, most CBT interventions have been carried out in highly controlled research settings and there are a few studies that examined parental outcomes after participating in autistic child-focused CBT within a community setting. The current study examined parent outcomes (i.e., mental health problems, mindful parenting, and parenting practices) following a community-based CBT program with concurrent parent involvement for autistic children, as well as associations between changes in parent and child outcomes (i.e., autism symptoms and emotion dysregulation). Participants included 77 parent?child dyads across seven community organizations in Ontario, Canada. Parents reported improved mindful parenting and positive parenting practices post-intervention, and no significant changes in their mental health. Multiple mediation analyses revealed that positive changes in parent outcomes (i.e., mindful parenting and parenting practices) were associated with positive changes in child emotion regulation. These positive changes in parenting practices mediated the relationship between mindful parenting and child emotion regulation. Results suggest that participating in community-based CBT is mutually beneficial for autistic children and their parents, particularly in improving parenting behaviors. En ligne : https://doi.org/10.1002/aur.70001 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=550

Physical health of autistic girls and women: a scoping review / Caroline KASSEE in Molecular Autism, 11 (2020)  

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Practitioner Review: Pharmacological treatment of attention-deficit/hyperactivity disorder symptoms in children and youth with autism spectrum disorder: a systematic review and meta-analysis / R. RODRIGUES in Journal of Child Psychology and Psychiatry, 62-6 (June 2021)  

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Task-based functional neural correlates of social cognition across autism and schizophrenia spectrum disorders / Lindsay D. OLIVER in Molecular Autism, 15 (2024)  

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Young Women on the Autism Spectrum / Meng-Chuan LAI

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