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Assessing general and autism-relevant quality of life in autistic adults: A psychometric investigation using item response theory / Z. J. WILLIAMS in Autism Research, 14-8 (August 2021)
[article]
Titre : Assessing general and autism-relevant quality of life in autistic adults: A psychometric investigation using item response theory Type de document : Texte imprimé et/ou numérique Auteurs : Z. J. WILLIAMS, Auteur ; K. O. GOTHAM, Auteur Article en page(s) : p.1633-1644 Langues : Anglais (eng) Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Female Humans Male Psychometrics Quality of Life Sexism Surveys and Questionnaires ASQoL autism differential item functioning item response theory measurement invariance quality of life reliability sex differences validity well-being Roche. He also serves on the family advisory committee of the Autism Speaks Autism Treatment Network Vanderbilt site and the autistic researcher review board of the Autism Intervention Research Network on Physical Health (AIR-P). Katherine Gotham has no conflicts of interest to disclose. Index. décimale : PER Périodiques Résumé : Although many interventions and services for autistic people have the ultimate goal of improving quality of life (QoL), there is relatively little research on how best to assess this construct in the autistic population, and existing scales designed for non-autistic individuals may not assess all meaningful facets of QoL in the autistic population. To address this need, the autism spectrum QoL form (ASQoL) was recently developed as a measure of the autism-relevant quality of life. However, the psychometrics of the ASQoL have not been examined beyond the authors' initial validation study, and important properties such as measurement invariance/differential item functioning (DIF) have not yet been tested. Using data from 700 autistic adults recruited from the Simons Foundation's SPARK cohort, the current study sought to perform a comprehensive independent psychometric evaluation of the ASQoL using item response theory, comparing its performance to a newly-proposed brief measure of general QoL (the WHOQOL-4). Our models revealed substantial DIF by sex and gender in the ASQoL, which caused ASQoL scores to grossly underestimate the self-reported QoL of autistic women. Based on a comparison of latent variable means, we demonstrated that observed sex/gender differences in manifest ASQoL scores were the result of statistical artifacts, a claim that was further supported by the lack of significant group differences on the sex/gender-invariant WHOQOL-4. Our findings indicate that the ASQoL composite score is psychometrically problematic in its current form, and substantial revisions may be necessary before valid and meaningful inferences can be made regarding autism-relevant aspects of QoL. LAY SUMMARY: Quality of life (QoL) is an extremely important outcome for autistic people, but many of the tools that are used to measure it does not take into account how QoL may be different for autistic people. Using data from 700 autistic adults, we examined the measurement properties of the autism spectrum quality of life form (ASQoL), a new measure of QoL designed specifically for autistic people. Our results indicate that the ASQoL shows a pronounced sex/gender bias, which causes it to underestimate QoL in autistic women. This bias needs to be eliminated before the ASQoL can be successfully used to measure QoL in the autistic population. En ligne : http://dx.doi.org/10.1002/aur.2519 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449
in Autism Research > 14-8 (August 2021) . - p.1633-1644[article] Assessing general and autism-relevant quality of life in autistic adults: A psychometric investigation using item response theory [Texte imprimé et/ou numérique] / Z. J. WILLIAMS, Auteur ; K. O. GOTHAM, Auteur . - p.1633-1644.
Langues : Anglais (eng)
in Autism Research > 14-8 (August 2021) . - p.1633-1644
Mots-clés : Adult Autism Spectrum Disorder Autistic Disorder Female Humans Male Psychometrics Quality of Life Sexism Surveys and Questionnaires ASQoL autism differential item functioning item response theory measurement invariance quality of life reliability sex differences validity well-being Roche. He also serves on the family advisory committee of the Autism Speaks Autism Treatment Network Vanderbilt site and the autistic researcher review board of the Autism Intervention Research Network on Physical Health (AIR-P). Katherine Gotham has no conflicts of interest to disclose. Index. décimale : PER Périodiques Résumé : Although many interventions and services for autistic people have the ultimate goal of improving quality of life (QoL), there is relatively little research on how best to assess this construct in the autistic population, and existing scales designed for non-autistic individuals may not assess all meaningful facets of QoL in the autistic population. To address this need, the autism spectrum QoL form (ASQoL) was recently developed as a measure of the autism-relevant quality of life. However, the psychometrics of the ASQoL have not been examined beyond the authors' initial validation study, and important properties such as measurement invariance/differential item functioning (DIF) have not yet been tested. Using data from 700 autistic adults recruited from the Simons Foundation's SPARK cohort, the current study sought to perform a comprehensive independent psychometric evaluation of the ASQoL using item response theory, comparing its performance to a newly-proposed brief measure of general QoL (the WHOQOL-4). Our models revealed substantial DIF by sex and gender in the ASQoL, which caused ASQoL scores to grossly underestimate the self-reported QoL of autistic women. Based on a comparison of latent variable means, we demonstrated that observed sex/gender differences in manifest ASQoL scores were the result of statistical artifacts, a claim that was further supported by the lack of significant group differences on the sex/gender-invariant WHOQOL-4. Our findings indicate that the ASQoL composite score is psychometrically problematic in its current form, and substantial revisions may be necessary before valid and meaningful inferences can be made regarding autism-relevant aspects of QoL. LAY SUMMARY: Quality of life (QoL) is an extremely important outcome for autistic people, but many of the tools that are used to measure it does not take into account how QoL may be different for autistic people. Using data from 700 autistic adults, we examined the measurement properties of the autism spectrum quality of life form (ASQoL), a new measure of QoL designed specifically for autistic people. Our results indicate that the ASQoL shows a pronounced sex/gender bias, which causes it to underestimate QoL in autistic women. This bias needs to be eliminated before the ASQoL can be successfully used to measure QoL in the autistic population. En ligne : http://dx.doi.org/10.1002/aur.2519 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=449 Characterizing social communication among minimally verbal children with autism: An application of item response theory / Connie KASARI in Autism Research, 17-9 (September 2024)
[article]
Titre : Characterizing social communication among minimally verbal children with autism: An application of item response theory Type de document : Texte imprimé et/ou numérique Auteurs : Connie KASARI, Auteur Article en page(s) : p.1830-1843 Langues : Anglais (eng) Mots-clés : autism spectrum disorder item response theory minimally verbal social communication Index. décimale : PER Périodiques Résumé : Abstract Minimally verbal children constitute a portion of the autism spectrum. The paucity of proper measurement tools that sensitively and accurately assess behaviors has been one limiting factor in the improved knowledge of these children. Short of creating and validating a new measurement tool for this subpopulation, this study took an alternative and more immediate approach: conduct a secondary data analysis and examine an existing social communication measure, the Early Social Communication Scales (ESCS), with item response theory. The final sample consisted of 453 minimally verbal children culled from four different completed studies. The IRT models analyzed the frequency of social communication gestures from the ESCS and returned an objective difficulty hierarchy regarding initiations of joint attention and behavior regulation gestures. The best-fitting and final model was a zero-inflated negative binomial model (ZINBM), which determined that joint attention gestures were, on average, more difficult than behavior regulation gestures. Joint attentional shows and gives were essentially absent in the children's repertoire, and behavior regulation reaches were the easiest gestures for this sample. The ZINBM separately modeled children with some gestures and children who did not present with any gestures and determined that behavior regulation reaches and gives were likely the first gestures a child will eventually exhibit among children with no gestures. Methodological contributions and potential future applications of IRT are discussed. En ligne : https://doi.org/10.1002/aur.3218 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535
in Autism Research > 17-9 (September 2024) . - p.1830-1843[article] Characterizing social communication among minimally verbal children with autism: An application of item response theory [Texte imprimé et/ou numérique] / Connie KASARI, Auteur . - p.1830-1843.
Langues : Anglais (eng)
in Autism Research > 17-9 (September 2024) . - p.1830-1843
Mots-clés : autism spectrum disorder item response theory minimally verbal social communication Index. décimale : PER Périodiques Résumé : Abstract Minimally verbal children constitute a portion of the autism spectrum. The paucity of proper measurement tools that sensitively and accurately assess behaviors has been one limiting factor in the improved knowledge of these children. Short of creating and validating a new measurement tool for this subpopulation, this study took an alternative and more immediate approach: conduct a secondary data analysis and examine an existing social communication measure, the Early Social Communication Scales (ESCS), with item response theory. The final sample consisted of 453 minimally verbal children culled from four different completed studies. The IRT models analyzed the frequency of social communication gestures from the ESCS and returned an objective difficulty hierarchy regarding initiations of joint attention and behavior regulation gestures. The best-fitting and final model was a zero-inflated negative binomial model (ZINBM), which determined that joint attention gestures were, on average, more difficult than behavior regulation gestures. Joint attentional shows and gives were essentially absent in the children's repertoire, and behavior regulation reaches were the easiest gestures for this sample. The ZINBM separately modeled children with some gestures and children who did not present with any gestures and determined that behavior regulation reaches and gives were likely the first gestures a child will eventually exhibit among children with no gestures. Methodological contributions and potential future applications of IRT are discussed. En ligne : https://doi.org/10.1002/aur.3218 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 Examination of the Korean Modified Checklist of Autism in Toddlers: Item Response Theory / Hye Kyeung SEUNG in Journal of Autism and Developmental Disorders, 45-9 (September 2015)
[article]
Titre : Examination of the Korean Modified Checklist of Autism in Toddlers: Item Response Theory Type de document : Texte imprimé et/ou numérique Auteurs : Hye Kyeung SEUNG, Auteur ; Juye JI, Auteur ; Soo-Jin KIM, Auteur ; Inkyung SUNG, Auteur ; Young-Ah YOUN, Auteur ; Gyunghun HONG, Auteur ; Hyeonjin LEE, Auteur ; Young Hwan LEE, Auteur ; Hyunsuk LEE, Auteur ; Hyun Kyung YOUM, Auteur Article en page(s) : p.2744-2757 Langues : Anglais (eng) Mots-clés : ASD screening Korean M-CHAT Item response theory Population screening Index. décimale : PER Périodiques Résumé : The study examined the clinical utility and psychometric properties of the Korean Modified Checklist of Autism in Toddlers (K-M-CHAT)-2. A sample of 2300 parents of 16- to 36-month-old children was recruited across South Korea. A phone interview was utilized to follow up with participants who initially screened positive for autism spectrum disorder (ASD). Item response theory was applied to assess the psychometric properties of the K-M-CHAT-2. Parents’ responses were substantially changed after the follow-up, and the final screen-positive rate was 2.3 %. Results indicated that the psychometric properties of items 1, 3, 11, 18 and 22 were not as strong as the other items. The K-M-CHAT-2 is a useful ASD screening test when implemented with a follow-up. En ligne : http://dx.doi.org/10.1007/s10803-015-2439-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267
in Journal of Autism and Developmental Disorders > 45-9 (September 2015) . - p.2744-2757[article] Examination of the Korean Modified Checklist of Autism in Toddlers: Item Response Theory [Texte imprimé et/ou numérique] / Hye Kyeung SEUNG, Auteur ; Juye JI, Auteur ; Soo-Jin KIM, Auteur ; Inkyung SUNG, Auteur ; Young-Ah YOUN, Auteur ; Gyunghun HONG, Auteur ; Hyeonjin LEE, Auteur ; Young Hwan LEE, Auteur ; Hyunsuk LEE, Auteur ; Hyun Kyung YOUM, Auteur . - p.2744-2757.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 45-9 (September 2015) . - p.2744-2757
Mots-clés : ASD screening Korean M-CHAT Item response theory Population screening Index. décimale : PER Périodiques Résumé : The study examined the clinical utility and psychometric properties of the Korean Modified Checklist of Autism in Toddlers (K-M-CHAT)-2. A sample of 2300 parents of 16- to 36-month-old children was recruited across South Korea. A phone interview was utilized to follow up with participants who initially screened positive for autism spectrum disorder (ASD). Item response theory was applied to assess the psychometric properties of the K-M-CHAT-2. Parents’ responses were substantially changed after the follow-up, and the final screen-positive rate was 2.3 %. Results indicated that the psychometric properties of items 1, 3, 11, 18 and 22 were not as strong as the other items. The K-M-CHAT-2 is a useful ASD screening test when implemented with a follow-up. En ligne : http://dx.doi.org/10.1007/s10803-015-2439-0 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=267 Improving the measurement of alexithymia in autistic adults: a psychometric investigation of the 20-item Toronto Alexithymia Scale and generation of a general alexithymia factor score using item response theory / Z. J. WILLIAMS in Molecular Autism, 12 (2021)
[article]
Titre : Improving the measurement of alexithymia in autistic adults: a psychometric investigation of the 20-item Toronto Alexithymia Scale and generation of a general alexithymia factor score using item response theory Type de document : Texte imprimé et/ou numérique Auteurs : Z. J. WILLIAMS, Auteur ; K. O. GOTHAM, Auteur Article en page(s) : 56 p. Langues : Anglais (eng) Mots-clés : Alexithymia Autism Bayesian statistics Differential item functioning Emotion Factor analysis Item response theory Measurement Psychometric Reliability Validity site and a member of the autistic researcher review board of the Autism Intervention Network for Physical Health (AIR-P). ZJW also serves as a consultant to Roche. KOG has no competing interests. Index. décimale : PER Périodiques Résumé : BACKGROUND: Alexithymia, a personality trait characterized by difficulties interpreting emotional states, is commonly elevated in autistic adults, and a growing body of literature suggests that this trait underlies several cognitive and emotional differences previously attributed to autism. Although questionnaires such as the 20-item Toronto Alexithymia Scale (TAS-20) are frequently used to measure alexithymia in the autistic population, few studies have investigated the psychometric properties of these questionnaires in autistic adults, including whether differential item functioning (I-DIF) exists between autistic and general population adults. METHODS: This study is a revised version of a previous article that was retracted due to copyright concerns (Williams and Gotham in Mol Autism 12:1-40). We conducted an in-depth psychometric analysis of the TAS-20 in a large sample of 743 cognitively able autistic adults recruited from the Simons Foundation SPARK participant pool and 721 general population controls enrolled in a large international psychological study. The factor structure of the TAS-20 was examined using confirmatory factor analysis, and item response theory was used to generate a subset of the items that were strong indicators of a "general alexithymia" factor. Correlations between alexithymia and other clinical outcomes were used to assess the nomological validity of the new alexithymia score in the SPARK sample. RESULTS: The TAS-20 did not exhibit adequate model fit in either the autistic or general population samples. Empirically driven item reduction was undertaken, resulting in an 8-item general alexithymia factor score (GAFS-8, with "TAS" no longer referenced due to copyright) with sound psychometric properties and practically ignorable I-DIF between diagnostic groups. Correlational analyses indicated that GAFS-8 scores, as derived from the TAS-20, meaningfully predict autistic trait levels, repetitive behaviors, and depression symptoms, even after controlling for trait neuroticism. The GAFS-8 also presented no meaningful decrement in nomological validity over the full TAS-20 in autistic participants. LIMITATIONS: Limitations of the current study include a sample of autistic adults that was majority female, later diagnosed, and well educated; clinical and control groups drawn from different studies with variable measures; only 16 of the TAS-20 items being administered to the non-autistic sample; and an inability to test several other important psychometric characteristics of the GAFS-8, including sensitivity to change and I-DIF across multiple administrations. CONCLUSIONS: These results indicate the potential of the GAFS-8 to robustly measure alexithymia in both autistic and non-autistic adults. A free online score calculator has been created to facilitate the use of norm-referenced GAFS-8 latent trait scores in research applications (available at https://asdmeasures.shinyapps.io/alexithymia ). En ligne : http://dx.doi.org/10.1186/s13229-021-00463-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459
in Molecular Autism > 12 (2021) . - 56 p.[article] Improving the measurement of alexithymia in autistic adults: a psychometric investigation of the 20-item Toronto Alexithymia Scale and generation of a general alexithymia factor score using item response theory [Texte imprimé et/ou numérique] / Z. J. WILLIAMS, Auteur ; K. O. GOTHAM, Auteur . - 56 p.
Langues : Anglais (eng)
in Molecular Autism > 12 (2021) . - 56 p.
Mots-clés : Alexithymia Autism Bayesian statistics Differential item functioning Emotion Factor analysis Item response theory Measurement Psychometric Reliability Validity site and a member of the autistic researcher review board of the Autism Intervention Network for Physical Health (AIR-P). ZJW also serves as a consultant to Roche. KOG has no competing interests. Index. décimale : PER Périodiques Résumé : BACKGROUND: Alexithymia, a personality trait characterized by difficulties interpreting emotional states, is commonly elevated in autistic adults, and a growing body of literature suggests that this trait underlies several cognitive and emotional differences previously attributed to autism. Although questionnaires such as the 20-item Toronto Alexithymia Scale (TAS-20) are frequently used to measure alexithymia in the autistic population, few studies have investigated the psychometric properties of these questionnaires in autistic adults, including whether differential item functioning (I-DIF) exists between autistic and general population adults. METHODS: This study is a revised version of a previous article that was retracted due to copyright concerns (Williams and Gotham in Mol Autism 12:1-40). We conducted an in-depth psychometric analysis of the TAS-20 in a large sample of 743 cognitively able autistic adults recruited from the Simons Foundation SPARK participant pool and 721 general population controls enrolled in a large international psychological study. The factor structure of the TAS-20 was examined using confirmatory factor analysis, and item response theory was used to generate a subset of the items that were strong indicators of a "general alexithymia" factor. Correlations between alexithymia and other clinical outcomes were used to assess the nomological validity of the new alexithymia score in the SPARK sample. RESULTS: The TAS-20 did not exhibit adequate model fit in either the autistic or general population samples. Empirically driven item reduction was undertaken, resulting in an 8-item general alexithymia factor score (GAFS-8, with "TAS" no longer referenced due to copyright) with sound psychometric properties and practically ignorable I-DIF between diagnostic groups. Correlational analyses indicated that GAFS-8 scores, as derived from the TAS-20, meaningfully predict autistic trait levels, repetitive behaviors, and depression symptoms, even after controlling for trait neuroticism. The GAFS-8 also presented no meaningful decrement in nomological validity over the full TAS-20 in autistic participants. LIMITATIONS: Limitations of the current study include a sample of autistic adults that was majority female, later diagnosed, and well educated; clinical and control groups drawn from different studies with variable measures; only 16 of the TAS-20 items being administered to the non-autistic sample; and an inability to test several other important psychometric characteristics of the GAFS-8, including sensitivity to change and I-DIF across multiple administrations. CONCLUSIONS: These results indicate the potential of the GAFS-8 to robustly measure alexithymia in both autistic and non-autistic adults. A free online score calculator has been created to facilitate the use of norm-referenced GAFS-8 latent trait scores in research applications (available at https://asdmeasures.shinyapps.io/alexithymia ). En ligne : http://dx.doi.org/10.1186/s13229-021-00463-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=459 Investigating diagnostic bias in autism spectrum conditions: An item response theory analysis of sex bias in the AQ-10 / Aja Louise MURRAY in Autism Research, 10-5 (May 2017)
[article]
Titre : Investigating diagnostic bias in autism spectrum conditions: An item response theory analysis of sex bias in the AQ-10 Type de document : Texte imprimé et/ou numérique Auteurs : Aja Louise MURRAY, Auteur ; Carrie ALLISON, Auteur ; Paula L. SMITH, Auteur ; Simon BARON-COHEN, Auteur ; Tom BOOTH, Auteur ; Bonnie AUYEUNG, Auteur Article en page(s) : p.790-800 Langues : Anglais (eng) Mots-clés : sex differences autism screening autism spectrum quotient AQ-10 item response theory differential item functioning differential test functioning Index. décimale : PER Périodiques Résumé : Diagnostic bias is a concern in autism spectrum conditions (ASC) where prevalence and presentation differ by sex. To ensure that females with ASC are not under-identified, it is important that ASC screening tools do not systematically underestimate autistic traits in females relative to males. We evaluated whether the AQ-10, a brief screen for ASC recommended by the National Institute of Clinical Excellence in cases of suspected ASC, exhibits such a bias. Using an item response theory approach, we evaluated differential item functioning and differential test functioning. We found that although individual items showed some sex bias, these biases at times favored males and at other times favored females. Thus, at the level of test scores the item-level biases cancelled out to give an unbiased overall score. Results support the continued use of the AQ-10 sum score in its current form; however, suggest that caution should be exercised when interpreting responses to individual items. The nature of the item level biases could serve as a guide for future research into how ASC affects males and females differently. En ligne : http://dx.doi.org/10.1002/aur.1724 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=307
in Autism Research > 10-5 (May 2017) . - p.790-800[article] Investigating diagnostic bias in autism spectrum conditions: An item response theory analysis of sex bias in the AQ-10 [Texte imprimé et/ou numérique] / Aja Louise MURRAY, Auteur ; Carrie ALLISON, Auteur ; Paula L. SMITH, Auteur ; Simon BARON-COHEN, Auteur ; Tom BOOTH, Auteur ; Bonnie AUYEUNG, Auteur . - p.790-800.
Langues : Anglais (eng)
in Autism Research > 10-5 (May 2017) . - p.790-800
Mots-clés : sex differences autism screening autism spectrum quotient AQ-10 item response theory differential item functioning differential test functioning Index. décimale : PER Périodiques Résumé : Diagnostic bias is a concern in autism spectrum conditions (ASC) where prevalence and presentation differ by sex. To ensure that females with ASC are not under-identified, it is important that ASC screening tools do not systematically underestimate autistic traits in females relative to males. We evaluated whether the AQ-10, a brief screen for ASC recommended by the National Institute of Clinical Excellence in cases of suspected ASC, exhibits such a bias. Using an item response theory approach, we evaluated differential item functioning and differential test functioning. We found that although individual items showed some sex bias, these biases at times favored males and at other times favored females. Thus, at the level of test scores the item-level biases cancelled out to give an unbiased overall score. Results support the continued use of the AQ-10 sum score in its current form; however, suggest that caution should be exercised when interpreting responses to individual items. The nature of the item level biases could serve as a guide for future research into how ASC affects males and females differently. En ligne : http://dx.doi.org/10.1002/aur.1724 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=307 The emotion dysregulation inventory: Psychometric properties and item response theory calibration in an autism spectrum disorder sample / C. A. MAZEFSKY in Autism Research, 11-6 (June 2018)
PermalinkImproving the measurement of alexithymia in autistic adults: a psychometric investigation and refinement of the twenty-item Toronto Alexithymia Scale / Z. J. WILLIAMS in Molecular Autism, 12 (2021)
PermalinkMeasuring subjective quality of life in autistic adults with the PROMIS global-10: Psychometric study and development of an autism-specific scoring method / Zachary J. WILLIAMS in Autism, 27-1 (January 2023)
PermalinkPsychometric Properties of the Mandarin Version of the Childhood Autism Spectrum Test (CAST): An Exploratory Study / Xiang SUN in Journal of Autism and Developmental Disorders, 44-7 (July 2014)
PermalinkPsychometric Study of the Social Responsiveness Scale in Phelan-McDermid Syndrome / Kellie GERGOUDIS in Autism Research, 13-8 (August 2020)
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