Age at Autism Diagnosis in the Norwegian Mother, Father, and Child Cohort Study (MoBa): Exploring the Association With Family Well-Being / Bernt Damian GLASER in Autism, 30-10 (October 2026)  

Public ISBD [article]  inAutism > 30-10 (October 2026) . - p.2596-2609 Titre : Age at Autism Diagnosis in the Norwegian Mother, Father, and Child Cohort Study (MoBa): Exploring the Association With Family Well-Being Type de document : texte imprimé Auteurs : Bernt Damian GLASER, Auteur ; Meseret Mamo BAZEZEW, Auteur ; Daniela BRAGANTINI, Auteur ; Laura Elizabeth HEGEMANN, Auteur ; Stian ORM, Auteur ; Morgan James MORGAN, Auteur ; Somer L. BISHOP, Auteur ; Stian Barbo VALAND, Auteur ; Laurie John HANNIGAN, Auteur ; Alexandra HAVDAHL, Auteur Article en page(s) : p.2596-2609 Langues : Anglais (eng) Mots-clés : autism  diagnosis  well-being  family functioning and support  school-age children  adolescents  parents  MoBa  the Norwegian Mother  Father and Child Cohort Study Index. décimale : PER Périodiques Résumé : For many autistic individuals, close family members represent a crucial source of support throughout their lifetime. Early autism diagnosis is thought to benefit both autistic individuals and their family members by facilitating early access to services and information. However, little research has empirically studied the relationship between age at diagnosis and well-being among autistic individuals and their family members. In this study, we examined predictors of age at autism diagnosis and its relationship with family well-being using the population-based Norwegian Mother, Father, and Child Cohort Study (MoBa). We found that the most important factors associated with a later age at diagnosis were fewer social communication difficulties at age three, fewer maternal concerns about development in early childhood, absence of a co-occurring intellectual disability diagnosis, female sex, and having older siblings. While a later age at diagnosis was associated with higher well-being for mothers and children during childhood, it was associated with lower well-being for children during adolescence. All associations were substantially attenuated after adjustment for various clinical, demographic, and genetic factors – reflecting complex patterns of confounding. We argue that future research should aim to leverage public awareness campaigns, screening programmes, or changes in clinical practice to understand the causal mechanisms underlying these relationships.Lay abstract Family members of autistic people are often an important source of support for their well-being. An earlier autism diagnosis might be helpful for autistic individuals and their families, because families might receive professional support sooner. However, the impact of an earlier diagnosis is difficult to study, because many child and family characteristics that lead to an earlier autism diagnosis may have their own influence on well-being in autistic individuals and their families. In this study, we look at how age at diagnosis and family well-being are related and how they both relate to different child and family characteristics. We find that children, on average, receive a later autism diagnosis when they have fewer social communication difficulties and fewer maternal concerns in early childhood, do not also have an intellectual disability diagnosis, are a girl, or have older siblings. We also found that a later autism diagnosis was associated with higher well-being for children and mothers in childhood but with lower well-being for children in adolescence. When we compared families with similar child and family characteristics, we no longer saw such clear links between age at diagnosis and well-being. This might be because of the complex mixture of influences child and family characteristics have on both age at diagnosis and well-being and suggests that other types of study may be better for investigating the impact of age at diagnosis on well-being in families. En ligne : https://dx.doi.org/10.1177/13623613261474929 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=593 [article] Age at Autism Diagnosis in the Norwegian Mother, Father, and Child Cohort Study (MoBa): Exploring the Association With Family Well-Being [texte imprimé] / Bernt Damian GLASER, Auteur ; Meseret Mamo BAZEZEW, Auteur ; Daniela BRAGANTINI, Auteur ; Laura Elizabeth HEGEMANN, Auteur ; Stian ORM, Auteur ; Morgan James MORGAN, Auteur ; Somer L. BISHOP, Auteur ; Stian Barbo VALAND, Auteur ; Laurie John HANNIGAN, Auteur ; Alexandra HAVDAHL, Auteur . - p.2596-2609. Langues : Anglais (eng) in Autism > 30-10 (October 2026) . - p.2596-2609 Mots-clés : autism  diagnosis  well-being  family functioning and support  school-age children  adolescents  parents  MoBa  the Norwegian Mother  Father and Child Cohort Study Index. décimale : PER Périodiques Résumé : For many autistic individuals, close family members represent a crucial source of support throughout their lifetime. Early autism diagnosis is thought to benefit both autistic individuals and their family members by facilitating early access to services and information. However, little research has empirically studied the relationship between age at diagnosis and well-being among autistic individuals and their family members. In this study, we examined predictors of age at autism diagnosis and its relationship with family well-being using the population-based Norwegian Mother, Father, and Child Cohort Study (MoBa). We found that the most important factors associated with a later age at diagnosis were fewer social communication difficulties at age three, fewer maternal concerns about development in early childhood, absence of a co-occurring intellectual disability diagnosis, female sex, and having older siblings. While a later age at diagnosis was associated with higher well-being for mothers and children during childhood, it was associated with lower well-being for children during adolescence. All associations were substantially attenuated after adjustment for various clinical, demographic, and genetic factors – reflecting complex patterns of confounding. We argue that future research should aim to leverage public awareness campaigns, screening programmes, or changes in clinical practice to understand the causal mechanisms underlying these relationships.Lay abstract Family members of autistic people are often an important source of support for their well-being. An earlier autism diagnosis might be helpful for autistic individuals and their families, because families might receive professional support sooner. However, the impact of an earlier diagnosis is difficult to study, because many child and family characteristics that lead to an earlier autism diagnosis may have their own influence on well-being in autistic individuals and their families. In this study, we look at how age at diagnosis and family well-being are related and how they both relate to different child and family characteristics. We find that children, on average, receive a later autism diagnosis when they have fewer social communication difficulties and fewer maternal concerns in early childhood, do not also have an intellectual disability diagnosis, are a girl, or have older siblings. We also found that a later autism diagnosis was associated with higher well-being for children and mothers in childhood but with lower well-being for children in adolescence. When we compared families with similar child and family characteristics, we no longer saw such clear links between age at diagnosis and well-being. This might be because of the complex mixture of influences child and family characteristics have on both age at diagnosis and well-being and suggests that other types of study may be better for investigating the impact of age at diagnosis on well-being in families. En ligne : https://dx.doi.org/10.1177/13623613261474929 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=593

Brief report: Autism spectrum disorder diagnostic persistence in a 10-year longitudinal study / Stian ORM in Research in Autism Spectrum Disorders, 97 (September 2022)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 97 (September 2022) . - 102007 Titre : Brief report: Autism spectrum disorder diagnostic persistence in a 10-year longitudinal study Type de document : texte imprimé Auteurs : Stian ORM, Auteur ; Per Normann ANDERSEN, Auteur ; Ingrid Nesdal FOSSUM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur Article en page(s) : 102007 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Longitudinal study  Diagnostic stability  Diagnostic persistence  Childhood predictors Index. décimale : PER Périodiques Résumé : Background The aim was to examine diagnostic persistence of Autism Spectrum Disorder (ASD) in individuals without intellectual disability from childhood to emerging adulthood. Method We assessed 38 children with estimated full-scale intelligence quotient (IQ)70 who were diagnosed with ASD at baseline (Mage=12.0, SD=2.3, 84% male), and re-assessed two (n=37, Mage=14.2, SD=2.4, 84% male) and 10 years (n=23, Mage=21.7, SD=2.4, 78% male) later. Results At two-year follow-up, all participants still met diagnostic criteria for ASD according to the Diagnostic and Statistical Manual for Mental Disorders “ fourth version (DSM-IV). At 10-year follow-up, 65% met diagnostic criteria for ASD according to DSM-IV, 48% met diagnostic criteria according to the Diagnostic and Statistical Manual for Mental Disorders “ fifth version (DSM-5), 57% met the ASD cut-off on the Autism Spectrum Quotient 10-item (AQ-10), and 78% met either DSM-IV criteria or cut-off on the AQ-10. Higher IQ in childhood predicted loss of ASD diagnosis according to DSM-IV criteria (Hedges g = 1.30). A higher proportion of girls compared to boys displayed loss of ASD diagnosis according to DSM-IV criteria. Conclusions These findings suggest that ASD traits among individuals without intellectual disability may wane into emerging adulthood and that loss of ASD diagnosis is associated with higher IQ and being a girl. Diagnostic re-evaluations may be warranted for some individuals diagnosed with ASD as children or adolescents. En ligne : https://doi.org/10.1016/j.rasd.2022.102007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486 [article] Brief report: Autism spectrum disorder diagnostic persistence in a 10-year longitudinal study [texte imprimé] / Stian ORM, Auteur ; Per Normann ANDERSEN, Auteur ; Ingrid Nesdal FOSSUM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur . - 102007. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 97 (September 2022) . - 102007 Mots-clés : Autism Spectrum Disorder  Longitudinal study  Diagnostic stability  Diagnostic persistence  Childhood predictors Index. décimale : PER Périodiques Résumé : Background The aim was to examine diagnostic persistence of Autism Spectrum Disorder (ASD) in individuals without intellectual disability from childhood to emerging adulthood. Method We assessed 38 children with estimated full-scale intelligence quotient (IQ)70 who were diagnosed with ASD at baseline (Mage=12.0, SD=2.3, 84% male), and re-assessed two (n=37, Mage=14.2, SD=2.4, 84% male) and 10 years (n=23, Mage=21.7, SD=2.4, 78% male) later. Results At two-year follow-up, all participants still met diagnostic criteria for ASD according to the Diagnostic and Statistical Manual for Mental Disorders “ fourth version (DSM-IV). At 10-year follow-up, 65% met diagnostic criteria for ASD according to DSM-IV, 48% met diagnostic criteria according to the Diagnostic and Statistical Manual for Mental Disorders “ fifth version (DSM-5), 57% met the ASD cut-off on the Autism Spectrum Quotient 10-item (AQ-10), and 78% met either DSM-IV criteria or cut-off on the AQ-10. Higher IQ in childhood predicted loss of ASD diagnosis according to DSM-IV criteria (Hedges g = 1.30). A higher proportion of girls compared to boys displayed loss of ASD diagnosis according to DSM-IV criteria. Conclusions These findings suggest that ASD traits among individuals without intellectual disability may wane into emerging adulthood and that loss of ASD diagnosis is associated with higher IQ and being a girl. Diagnostic re-evaluations may be warranted for some individuals diagnosed with ASD as children or adolescents. En ligne : https://doi.org/10.1016/j.rasd.2022.102007 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=486

Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders / Trude FREDRIKSEN in Journal of Autism and Developmental Disorders, 56-7 (July 2026)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 56-7 (July 2026) . - p.2803-2814 Titre : Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders Type de document : texte imprimé Auteurs : Trude FREDRIKSEN, Auteur ; Stian ORM, Auteur ; Caitlin M. PRENTICE, Auteur ; Solveig KIRCHHOFER, Auteur ; Erica ZAHL, Auteur ; Matteo BOTTA, Auteur ; Torun M. VATNE, Auteur ; Krister W. FJERMESTAD, Auteur Article en page(s) : p.2803-2814 Langues : Anglais (eng) Index. décimale : PER Périodiques Résumé : Siblings of children with chronic disorders are at risk of developing mental health problems. Studies are inconclusive about whether sibling mental health is best predicted by the specific diagnoses of the child with disorder or by transdiagnostic factors. The aims of the present study were (1) to examine if specific diagnoses predicted sibling mental health, and (2) to examine if disorder severity in the child with the chronic disorder predicted sibling mental health. Baseline data from a randomized controlled trial were used. Siblings (aged 8 – 16 years) of children with chronic disorders and their parents were recruited from eight municipality and hospital clinics (N = 288). The children with chronic disorders were placed in ICD-10 diagnostic categories based on combined parent report and clinical records. Regression analyses with the most frequent primary diagnoses (ADHD, Asperger syndrome, autism, down syndrome, rare disorders) and a measure of disorder severity as predictors of sibling mental health were run. Father-reported disorder severity predicted sibling-reported internalizing problems and father-reported internalizing and externalizing problems in siblings. Mother-reported disorder severity predicted mother-reported sibling internalizing problems. No single primary diagnosis predicted sibling internalizing or externalizing problems. Disorder severity does to an extent predict sibling mental health, whereas single diagnostic categories do not. Disorder severity may be used to identify siblings at risk and/or in need of interventions. Fathers should be included in assessment and health care for siblings as their reports seem to predict sibling mental health better than the mothers. En ligne : https://doi.org/10.1007/s10803-025-06771-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591 [article] Disorder Type and Severity as Predictors of Mental Health in Siblings of Children with Chronic Disorders [texte imprimé] / Trude FREDRIKSEN, Auteur ; Stian ORM, Auteur ; Caitlin M. PRENTICE, Auteur ; Solveig KIRCHHOFER, Auteur ; Erica ZAHL, Auteur ; Matteo BOTTA, Auteur ; Torun M. VATNE, Auteur ; Krister W. FJERMESTAD, Auteur . - p.2803-2814. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 56-7 (July 2026) . - p.2803-2814 Index. décimale : PER Périodiques Résumé : Siblings of children with chronic disorders are at risk of developing mental health problems. Studies are inconclusive about whether sibling mental health is best predicted by the specific diagnoses of the child with disorder or by transdiagnostic factors. The aims of the present study were (1) to examine if specific diagnoses predicted sibling mental health, and (2) to examine if disorder severity in the child with the chronic disorder predicted sibling mental health. Baseline data from a randomized controlled trial were used. Siblings (aged 8 – 16 years) of children with chronic disorders and their parents were recruited from eight municipality and hospital clinics (N = 288). The children with chronic disorders were placed in ICD-10 diagnostic categories based on combined parent report and clinical records. Regression analyses with the most frequent primary diagnoses (ADHD, Asperger syndrome, autism, down syndrome, rare disorders) and a measure of disorder severity as predictors of sibling mental health were run. Father-reported disorder severity predicted sibling-reported internalizing problems and father-reported internalizing and externalizing problems in siblings. Mother-reported disorder severity predicted mother-reported sibling internalizing problems. No single primary diagnosis predicted sibling internalizing or externalizing problems. Disorder severity does to an extent predict sibling mental health, whereas single diagnostic categories do not. Disorder severity may be used to identify siblings at risk and/or in need of interventions. Fathers should be included in assessment and health care for siblings as their reports seem to predict sibling mental health better than the mothers. En ligne : https://doi.org/10.1007/s10803-025-06771-6 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=591

"I have to charge my social battery": Perspectives from autistic young adults on Quality of Life / Elisabeth ØVERLAND in Autism, 28-6 (June 2024)  

Public ISBD [article]  inAutism > 28-6 (June 2024) . - p.1369-1381 Titre : "I have to charge my social battery": Perspectives from autistic young adults on Quality of Life Type de document : texte imprimé Auteurs : Elisabeth ØVERLAND, Auteur ; Ã…shild Lappegard HAUGE, Auteur ; Stian ORM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur ; Elizabeth PELLICANO, Auteur ; Per Normann ANDERSEN, Auteur Article en page(s) : p.1369-1381 Langues : Anglais (eng) Mots-clés : autism  emerging adulthood  quality of life  reflexive thematic analysis Index. décimale : PER Périodiques Résumé : Several studies report on lower quality of life for autistic people when compared to non-autistic people. However, there are ongoing discussions about the conceptualization of quality of life for the autistic population. This qualitative study investigated self-perceived quality of life in the context of autistic young adults' everyday lives. Participants (age range 21-29 years) were recruited from a 10-year follow-up study, Lillehammer Neurodevelopmental Follow-up Study, all diagnosed in childhood and adolescence. Fourteen individual in-depth interviews were conducted. When asked about what was important for having a good quality of life, our autistic participants described relationships to people and pets as important, as well as having meaningful activities. Specific interests had guided many to their choice of both academic and work career. Many also described obstacles in their environment that had influenced their quality of life negatively, such as being misunderstood by teachers and other professionals, being bullied, and sensory and emotional overload. Our findings indicate that those in supportive roles should provide help with establishing connections to activities and people/animals, as this seems to be essential for creating a good quality of life. Taking advantage of passions and interests can create opportunities for autistic people. Findings suggest that future research should address the communication barriers between autistic people and professionals that can lead to misunderstandings. Lay abstract In this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved. En ligne : https://dx.doi.org/10.1177/13623613241245578 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529 [article] "I have to charge my social battery": Perspectives from autistic young adults on Quality of Life [texte imprimé] / Elisabeth ØVERLAND, Auteur ; Ã…shild Lappegard HAUGE, Auteur ; Stian ORM, Auteur ; Merete Glenne ØIE, Auteur ; Erik Winther SKOGLI, Auteur ; Elizabeth PELLICANO, Auteur ; Per Normann ANDERSEN, Auteur . - p.1369-1381. Langues : Anglais (eng) in Autism > 28-6 (June 2024) . - p.1369-1381 Mots-clés : autism  emerging adulthood  quality of life  reflexive thematic analysis Index. décimale : PER Périodiques Résumé : Several studies report on lower quality of life for autistic people when compared to non-autistic people. However, there are ongoing discussions about the conceptualization of quality of life for the autistic population. This qualitative study investigated self-perceived quality of life in the context of autistic young adults' everyday lives. Participants (age range 21-29 years) were recruited from a 10-year follow-up study, Lillehammer Neurodevelopmental Follow-up Study, all diagnosed in childhood and adolescence. Fourteen individual in-depth interviews were conducted. When asked about what was important for having a good quality of life, our autistic participants described relationships to people and pets as important, as well as having meaningful activities. Specific interests had guided many to their choice of both academic and work career. Many also described obstacles in their environment that had influenced their quality of life negatively, such as being misunderstood by teachers and other professionals, being bullied, and sensory and emotional overload. Our findings indicate that those in supportive roles should provide help with establishing connections to activities and people/animals, as this seems to be essential for creating a good quality of life. Taking advantage of passions and interests can create opportunities for autistic people. Findings suggest that future research should address the communication barriers between autistic people and professionals that can lead to misunderstandings. Lay abstract In this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved. En ligne : https://dx.doi.org/10.1177/13623613241245578 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=529

Virtual and Augmented Reality in Social Skills Interventions for Individuals with Autism Spectrum Disorder: A Scoping Review / Anders DECHSLING in Journal of Autism and Developmental Disorders, 52-11 (November 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4692-4707 Titre : Virtual and Augmented Reality in Social Skills Interventions for Individuals with Autism Spectrum Disorder: A Scoping Review Type de document : texte imprimé Auteurs : Anders DECHSLING, Auteur ; Stian ORM, Auteur ; Tamara KALANDADZE, Auteur ; Stefan SUTTERLIN, Auteur ; Roald A. ØIEN, Auteur ; Frederick SHIC, Auteur ; Anders NORDAHL-HANSEN, Auteur Article en page(s) : p.4692-4707 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Augmented Reality  Autism Spectrum Disorder/therapy  Child  Child, Preschool  Female  Humans  Social Skills  Technology  Virtual Reality  Augmented reality  Autism spectrum disorder  Virtual reality Index. décimale : PER Périodiques Résumé : In the last decade, there has been an increase in publications on technology-based interventions for autism spectrum disorder (ASD). Virtual reality based assessments and intervention tools are promising and have shown to be acceptable amongst individuals with ASD. This scoping review reports on 49 studies utilizing virtual reality and augmented reality technology in social skills interventions for individuals with ASD. The included studies mostly targeted children and adolescents, but few targeted very young children or adults. Our findings show that the mode number of participants with ASD is low, and that female participants are underrepresented. Our review suggests that there is need for studies that apply virtual and augmented realty with more rigorous designs involving established and evidenced-based intervention strategies. En ligne : http://dx.doi.org/10.1007/s10803-021-05338-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Virtual and Augmented Reality in Social Skills Interventions for Individuals with Autism Spectrum Disorder: A Scoping Review [texte imprimé] / Anders DECHSLING, Auteur ; Stian ORM, Auteur ; Tamara KALANDADZE, Auteur ; Stefan SUTTERLIN, Auteur ; Roald A. ØIEN, Auteur ; Frederick SHIC, Auteur ; Anders NORDAHL-HANSEN, Auteur . - p.4692-4707. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-11 (November 2022) . - p.4692-4707 Mots-clés : Adolescent  Adult  Augmented Reality  Autism Spectrum Disorder/therapy  Child  Child, Preschool  Female  Humans  Social Skills  Technology  Virtual Reality  Augmented reality  Autism spectrum disorder  Virtual reality Index. décimale : PER Périodiques Résumé : In the last decade, there has been an increase in publications on technology-based interventions for autism spectrum disorder (ASD). Virtual reality based assessments and intervention tools are promising and have shown to be acceptable amongst individuals with ASD. This scoping review reports on 49 studies utilizing virtual reality and augmented reality technology in social skills interventions for individuals with ASD. The included studies mostly targeted children and adolescents, but few targeted very young children or adults. Our findings show that the mode number of participants with ASD is low, and that female participants are underrepresented. Our review suggests that there is need for studies that apply virtual and augmented realty with more rigorous designs involving established and evidenced-based intervention strategies. En ligne : http://dx.doi.org/10.1007/s10803-021-05338-5 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

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