Dépouillements

They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum / Micah O. MAZUREK in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101862 Titre : They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Micah O. MAZUREK, Auteur ; Eleonora SADIKOVA, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Amber HARDIN, Auteur ; Isabel HUERTA, Auteur ; Kristin SOHL, Auteur ; Beth A. MALOW, Auteur Article en page(s) : 101862 Langues : Anglais (eng) Mots-clés : Autism  Adult  Healthcare  Primary care  Mental health  Access to care Index. décimale : PER Périodiques Résumé : Background Adults on the autism spectrum are at high risk for co-occurring conditions and poor health outcomes, yet they often experience significant unmet healthcare needs. A better understanding of potential gaps and barriers is essential for improving the healthcare system. This mixed-methods study was conducted to better understand the healthcare needs and experiences of adults on the autism spectrum from the perspective of parents and caregivers. Method Twenty-four caregivers of adults on the autism spectrum (21 mothers, 2 fathers, 1 non-parent caregiver) completed surveys and participated in one of seven focus group interviews to share their perspectives regarding healthcare needs, experiences, and suggestions for improvement. Results Survey responses indicated general satisfaction with primary care; however, in-depth qualitative data analyses revealed four primary themes and 10 subthemes. The first theme focused on barriers to healthcare access and included insurance coverage, geographic distance, waitlists, and provider shortages. Caregivers also expressed dissatisfaction with healthcare quality (Theme 2), particularly a lack of provider knowledge resulting in inadequate treatment. Participants also emphasized the need for comprehensive and coordinated healthcare services (Theme 3), and described pressure on parents to advocate and coordinate care. Finally, caregivers stressed the importance of person-centered care (Theme 4), particularly the need for accommodations and rapport for adults on the spectrum. Conclusions These results indicate that the nature and quality of current healthcare services may not be adequate to meet the needs of adults on the autism spectrum. The suggestions provided by caregivers should be used to inform strategies for healthcare improvement. En ligne : https://doi.org/10.1016/j.rasd.2021.101862 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] They deserve the “same level of care that any other person deserves”: Caregiver perspectives on healthcare for adults on the autism spectrum [Texte imprimé et/ou numérique] / Micah O. MAZUREK, Auteur ; Eleonora SADIKOVA, Auteur ; Nancy C. CHEAK-ZAMORA, Auteur ; Amber HARDIN, Auteur ; Isabel HUERTA, Auteur ; Kristin SOHL, Auteur ; Beth A. MALOW, Auteur . - 101862. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101862 Mots-clés : Autism  Adult  Healthcare  Primary care  Mental health  Access to care Index. décimale : PER Périodiques Résumé : Background Adults on the autism spectrum are at high risk for co-occurring conditions and poor health outcomes, yet they often experience significant unmet healthcare needs. A better understanding of potential gaps and barriers is essential for improving the healthcare system. This mixed-methods study was conducted to better understand the healthcare needs and experiences of adults on the autism spectrum from the perspective of parents and caregivers. Method Twenty-four caregivers of adults on the autism spectrum (21 mothers, 2 fathers, 1 non-parent caregiver) completed surveys and participated in one of seven focus group interviews to share their perspectives regarding healthcare needs, experiences, and suggestions for improvement. Results Survey responses indicated general satisfaction with primary care; however, in-depth qualitative data analyses revealed four primary themes and 10 subthemes. The first theme focused on barriers to healthcare access and included insurance coverage, geographic distance, waitlists, and provider shortages. Caregivers also expressed dissatisfaction with healthcare quality (Theme 2), particularly a lack of provider knowledge resulting in inadequate treatment. Participants also emphasized the need for comprehensive and coordinated healthcare services (Theme 3), and described pressure on parents to advocate and coordinate care. Finally, caregivers stressed the importance of person-centered care (Theme 4), particularly the need for accommodations and rapport for adults on the spectrum. Conclusions These results indicate that the nature and quality of current healthcare services may not be adequate to meet the needs of adults on the autism spectrum. The suggestions provided by caregivers should be used to inform strategies for healthcare improvement. En ligne : https://doi.org/10.1016/j.rasd.2021.101862 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Selection bias induced by reproductive stoppage in estimates of recurrence risk for autism spectrum disorders / Michael BEENSTOCK in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101863 Titre : Selection bias induced by reproductive stoppage in estimates of recurrence risk for autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Michael BEENSTOCK, Auteur Article en page(s) : 101863 Langues : Anglais (eng) Mots-clés : Recurrence risk of ASD  Reproductive stoppage  Selection bias  Incidental truncation method  Inverse probability weighting Index. décimale : PER Périodiques Résumé : Background In observational studies it is implicitly assumed that the data are representative of the general population. Self-selection by individuals may undermine this assumption, inducing sample selection bias. In studies of recurrence risk of autism spectrum disorder (ASD) it is implicitly assumed that parents who had no further children face the same recurrence risk as parents who had further children. If this assumption is false, estimates of recurrence risk may be too high or too low. Method Two canonical statistical methods for detecting and correcting for sample selection bias, including incidental truncation and inverse probability weighting, are applied to population cohort data for Israel. The data comprise 8205 younger siblings of 9117 children diagnosed with ASD, among which there were 371 recurrences. Reproductive stoppage occurred in 4216 out of 9117 families. Participants are distinguished by demographics (gender, age), ethnicity (Jews and Arabs), religiosity, birth cohort and socioeconomic status. Results Correcting for selection bias using the incidental truncation method, the average risk of recurrence is 3.83 (95 %CI: 3.41 %–4.24 %) instead of 4.53 % (95 %CI: 4.08 %–4.98 %). The bias has p-value 0.082. Since the incidental truncation method may be sensitive to parametric assumptions regarding the joint distribution of unobserved heterogeneity in stoppage and recurrence risk, robustness tests are carried out using alternative parametric assumptions, including copulas. Results using the method of inverse probability weighting were unsatisfactory because they were sensitive to hidden confounders. Conclusions Studies of recurrent risk of ASD should take account of potential selection bias induced by reproductive stoppage. En ligne : https://doi.org/10.1016/j.rasd.2021.101863 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Selection bias induced by reproductive stoppage in estimates of recurrence risk for autism spectrum disorders [Texte imprimé et/ou numérique] / Michael BEENSTOCK, Auteur . - 101863. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101863 Mots-clés : Recurrence risk of ASD  Reproductive stoppage  Selection bias  Incidental truncation method  Inverse probability weighting Index. décimale : PER Périodiques Résumé : Background In observational studies it is implicitly assumed that the data are representative of the general population. Self-selection by individuals may undermine this assumption, inducing sample selection bias. In studies of recurrence risk of autism spectrum disorder (ASD) it is implicitly assumed that parents who had no further children face the same recurrence risk as parents who had further children. If this assumption is false, estimates of recurrence risk may be too high or too low. Method Two canonical statistical methods for detecting and correcting for sample selection bias, including incidental truncation and inverse probability weighting, are applied to population cohort data for Israel. The data comprise 8205 younger siblings of 9117 children diagnosed with ASD, among which there were 371 recurrences. Reproductive stoppage occurred in 4216 out of 9117 families. Participants are distinguished by demographics (gender, age), ethnicity (Jews and Arabs), religiosity, birth cohort and socioeconomic status. Results Correcting for selection bias using the incidental truncation method, the average risk of recurrence is 3.83 (95 %CI: 3.41 %–4.24 %) instead of 4.53 % (95 %CI: 4.08 %–4.98 %). The bias has p-value 0.082. Since the incidental truncation method may be sensitive to parametric assumptions regarding the joint distribution of unobserved heterogeneity in stoppage and recurrence risk, robustness tests are carried out using alternative parametric assumptions, including copulas. Results using the method of inverse probability weighting were unsatisfactory because they were sensitive to hidden confounders. Conclusions Studies of recurrent risk of ASD should take account of potential selection bias induced by reproductive stoppage. En ligne : https://doi.org/10.1016/j.rasd.2021.101863 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

“It feels like holding back something you need to say”: Autistic and Non-Autistic Adults accounts of sensory experiences and stimming / Rebecca A. CHARLTON in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101864 Titre : “It feels like holding back something you need to say”: Autistic and Non-Autistic Adults accounts of sensory experiences and stimming Type de document : Texte imprimé et/ou numérique Auteurs : Rebecca A. CHARLTON, Auteur ; Timothy ENTECOTT, Auteur ; Evelina BELOVA, Auteur ; Gabrielle NWAORDU, Auteur Article en page(s) : 101864 Langues : Anglais (eng) Mots-clés : Adulthood  autism  repetitive behaviours  sensory sensitivity  stimming  qualitative analysis Index. décimale : PER Périodiques Résumé : Background Restricted repetitive behaviours and sensory sensitivities are core features of autism and have been explored in childhood. However, few studies have examined adult experiences. Autistic adults have begun reframing repetitive behaviours (which often have negative connotations) as “stimming”, and emphasising the benefits of stimming and need for acceptance. Few studies have examined stimming in non-autistic adults. Method An online survey examined sensory and stimming experiences of 340 adults (160 with an autism diagnosis, 139 suspected autistic, 41 non-autistic). Group differences were examined on categorical responses. A thematic analysis was performed on open-text responses. Results Autistic (diagnosed and suspected) individuals reported greater sensory sensitivity and more stimming than non-autistic adults. Stimming is also performed by some non-autistic adults. Thematic analysis produced three themes. 1) Sensory sensitivity had negative physical, emotional and cognitive effects on individuals. 2) Stimming was a self-regulatory mechanism that allowed for positive and negative emotional expression, and cognitive distraction. 3) Social pressure was a reason for suppressing stimming but this had a negative effect on emotions and cognition. Conclusions This study describes the links between sensory sensitivities and stimming behaviours among autistic and non-autistic adults. Autistic adults describe the positive effects of stimming and the negative effect of social pressure to suppress stims, this challenges the prevailing view (largely from studies in childhood) that stimming is a negative behaviour. The views of autistic adults should be incorporated to assure an understanding of associations between sensory sensitivities and stimming, and to understand how stimming may have beneficial effects. En ligne : https://doi.org/10.1016/j.rasd.2021.101864 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] “It feels like holding back something you need to say”: Autistic and Non-Autistic Adults accounts of sensory experiences and stimming [Texte imprimé et/ou numérique] / Rebecca A. CHARLTON, Auteur ; Timothy ENTECOTT, Auteur ; Evelina BELOVA, Auteur ; Gabrielle NWAORDU, Auteur . - 101864. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101864 Mots-clés : Adulthood  autism  repetitive behaviours  sensory sensitivity  stimming  qualitative analysis Index. décimale : PER Périodiques Résumé : Background Restricted repetitive behaviours and sensory sensitivities are core features of autism and have been explored in childhood. However, few studies have examined adult experiences. Autistic adults have begun reframing repetitive behaviours (which often have negative connotations) as “stimming”, and emphasising the benefits of stimming and need for acceptance. Few studies have examined stimming in non-autistic adults. Method An online survey examined sensory and stimming experiences of 340 adults (160 with an autism diagnosis, 139 suspected autistic, 41 non-autistic). Group differences were examined on categorical responses. A thematic analysis was performed on open-text responses. Results Autistic (diagnosed and suspected) individuals reported greater sensory sensitivity and more stimming than non-autistic adults. Stimming is also performed by some non-autistic adults. Thematic analysis produced three themes. 1) Sensory sensitivity had negative physical, emotional and cognitive effects on individuals. 2) Stimming was a self-regulatory mechanism that allowed for positive and negative emotional expression, and cognitive distraction. 3) Social pressure was a reason for suppressing stimming but this had a negative effect on emotions and cognition. Conclusions This study describes the links between sensory sensitivities and stimming behaviours among autistic and non-autistic adults. Autistic adults describe the positive effects of stimming and the negative effect of social pressure to suppress stims, this challenges the prevailing view (largely from studies in childhood) that stimming is a negative behaviour. The views of autistic adults should be incorporated to assure an understanding of associations between sensory sensitivities and stimming, and to understand how stimming may have beneficial effects. En ligne : https://doi.org/10.1016/j.rasd.2021.101864 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

COVID-19 vaccination among individuals with autism spectrum disorder: A population-based study / Orly WEINSTEIN in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101865 Titre : COVID-19 vaccination among individuals with autism spectrum disorder: A population-based study Type de document : Texte imprimé et/ou numérique Auteurs : Orly WEINSTEIN, Auteur ; Israel KRIEGER, Auteur ; Arnon Dov COHEN, Auteur ; Dana TZUR BITAN, Auteur Article en page(s) : 101865 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  COVID-19  Vaccination  Cohort Index. décimale : PER Périodiques Résumé : Background Individuals with autistic spectrum disorder (ASD) are more susceptible to COVID-19 morbidity and should therefore be prioritized for vaccination. Although individuals with neurodevelopmental disabilities are given some priority in Israel, it is unclear to what extent individuals with ASD are being vaccinated relative to that of the general population. This study was aimed to assess vaccination prevalence among individuals with ASD. Method Individuals with ASD, and age- and sex-matched controls (total n = 11,080), were assessed for prevalence of COVID-19 vaccination by February 2021, approximately a month and a half after the national vaccination distribution plan was launched in Israel. Data were obtained from the database of Clalit Health Services (CHS), the largest healthcare organization in Israel. Results Individuals with ASD were more likely to be vaccinated for COVID-19 (OR = 2.55, 95 %CI 2.35–2.75, p < .001) across both sexes, but only in the 16–20 (OR = 2.04, 95 %CI 1.79–2.32, p < .001) and 21?40 (OR = 3.95, 95 %CI 3.52–4.43, p < .001) age groups. After adjusting for chronic illnesses, ASD remained significant in predicting the uptake of COVID-19 vaccination. Conclusions Efforts to prioritize ASD patients may improve vaccination prevalence among individuals with ASD, especially among younger individuals. Healthcare providers worldwide should therefore consider prioritization policies so as to increase vaccination rates among this vulnerable population. En ligne : https://doi.org/10.1016/j.rasd.2021.101865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] COVID-19 vaccination among individuals with autism spectrum disorder: A population-based study [Texte imprimé et/ou numérique] / Orly WEINSTEIN, Auteur ; Israel KRIEGER, Auteur ; Arnon Dov COHEN, Auteur ; Dana TZUR BITAN, Auteur . - 101865. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101865 Mots-clés : Autism spectrum disorder  COVID-19  Vaccination  Cohort Index. décimale : PER Périodiques Résumé : Background Individuals with autistic spectrum disorder (ASD) are more susceptible to COVID-19 morbidity and should therefore be prioritized for vaccination. Although individuals with neurodevelopmental disabilities are given some priority in Israel, it is unclear to what extent individuals with ASD are being vaccinated relative to that of the general population. This study was aimed to assess vaccination prevalence among individuals with ASD. Method Individuals with ASD, and age- and sex-matched controls (total n = 11,080), were assessed for prevalence of COVID-19 vaccination by February 2021, approximately a month and a half after the national vaccination distribution plan was launched in Israel. Data were obtained from the database of Clalit Health Services (CHS), the largest healthcare organization in Israel. Results Individuals with ASD were more likely to be vaccinated for COVID-19 (OR = 2.55, 95 %CI 2.35–2.75, p < .001) across both sexes, but only in the 16–20 (OR = 2.04, 95 %CI 1.79–2.32, p < .001) and 21?40 (OR = 3.95, 95 %CI 3.52–4.43, p < .001) age groups. After adjusting for chronic illnesses, ASD remained significant in predicting the uptake of COVID-19 vaccination. Conclusions Efforts to prioritize ASD patients may improve vaccination prevalence among individuals with ASD, especially among younger individuals. Healthcare providers worldwide should therefore consider prioritization policies so as to increase vaccination rates among this vulnerable population. En ligne : https://doi.org/10.1016/j.rasd.2021.101865 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates / Vicki GIBBS in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101866 Titre : Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates Type de document : Texte imprimé et/ou numérique Auteurs : Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : 101866 Langues : Anglais (eng) Mots-clés : Autistic  Sexual violence  Physical violence  Victimisation  Autistic traits  Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Experiences of physical and sexual violence as reported by autistic adults without intellectual disability: Rate, gender patterns and clinical correlates [Texte imprimé et/ou numérique] / Vicki GIBBS, Auteur ; Jennie HUDSON, Auteur ; Ye In HWANG, Auteur ; Sam ARNOLD, Auteur ; Julian TROLLOR, Auteur ; Elizabeth PELLICANO, Auteur . - 101866. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101866 Mots-clés : Autistic  Sexual violence  Physical violence  Victimisation  Autistic traits  Emotion regulation Index. décimale : PER Périodiques Résumé : Background Research has repeatedly demonstrated that people with disabilities, particularly intellectual disabilities, experience violence at higher rates compared to people without disabilities. There have been fewer studies of violence amongst Autistic people with most focused on abuse and peer victimisation during childhood. Many of these studies include large numbers of children with intellectual disability making it difficult to infer whether autistic traits confer any increased risk for violence. Method A cross-sectional survey design was employed to compare rates of reported childhood and recent physical and sexual violence, degree of traumatic impact, and tendency to confide in others amongst 245 Autistic adults without intellectual disability and 49 non-Autistic adults. We also examined whether autistic traits and emotion regulation were associated with experiences of reported violence. Results A higher proportion of Autistic adults reported experiencing sexual and physical violence during childhood. There was no difference in recent violence or traumatic impact, however Autistic adults were more likely to report they had never confided in anyone about their experience/s. Autistic traits (but not emotion regulation difficulties) were a significant predictor of experiencing violence. Conclusions The findings provide further evidence that Autistic people experience higher rates of physical and sexual violence and this cannot be attributed solely to the risk that is conferred by co-occurring intellectual disability. This information is important for policy makers and service providers so that steps can be taken to protect Autistic people from exposure to violence however further research is needed to better understand the extent and nature of violence experienced by Autistic people. En ligne : https://doi.org/10.1016/j.rasd.2021.101866 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Comparison of the Factor Structure of the Child Behavior Checklist 1.5–5 between Children with ASD and Children with DD / Yi-Ling CHENG in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101867 Titre : Comparison of the Factor Structure of the Child Behavior Checklist 1.5–5 between Children with ASD and Children with DD Type de document : Texte imprimé et/ou numérique Auteurs : Yi-Ling CHENG, Auteur ; Lai-Sang IAO, Auteur ; Chin-Chin WU, Auteur Article en page(s) : 101867 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  developmental delay  CBCL1.5–5  measurement invariance Index. décimale : PER Périodiques Résumé : Background The Child Behavior Checklist 1.5–5 (CBCL 1.5–5) has been applied to identify emotional and behavioral problems on children with autism spectrum disorder (ASD). However, few studies explored whether the established factor model may be suitable for children with ASD and those with developmental delay (DD). Method To locate the potential sources of variations between these two groups, we tested measurement invariance multiple groups factor analysis. Results All subscales achieved the basic level of invariance (configural invariance). The findings suggested similar factor structures across these two groups. However, Withdrawn, Aggressive Behavior, and Sleep Problems did not achieve metric invariance. The findings suggested the relations between items and latent constructs are not similar across groups in these three scales. Conclusions Overall, there are different levels of invariances across subscales of the CBCL1.5–5. The attempt of using the CBCL1.5–5 to separate the profile of children with ASD and children with DD might be helpful, but only on particular aspects. En ligne : https://doi.org/10.1016/j.rasd.2021.101867 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Comparison of the Factor Structure of the Child Behavior Checklist 1.5–5 between Children with ASD and Children with DD [Texte imprimé et/ou numérique] / Yi-Ling CHENG, Auteur ; Lai-Sang IAO, Auteur ; Chin-Chin WU, Auteur . - 101867. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101867 Mots-clés : autism spectrum disorder  developmental delay  CBCL1.5–5  measurement invariance Index. décimale : PER Périodiques Résumé : Background The Child Behavior Checklist 1.5–5 (CBCL 1.5–5) has been applied to identify emotional and behavioral problems on children with autism spectrum disorder (ASD). However, few studies explored whether the established factor model may be suitable for children with ASD and those with developmental delay (DD). Method To locate the potential sources of variations between these two groups, we tested measurement invariance multiple groups factor analysis. Results All subscales achieved the basic level of invariance (configural invariance). The findings suggested similar factor structures across these two groups. However, Withdrawn, Aggressive Behavior, and Sleep Problems did not achieve metric invariance. The findings suggested the relations between items and latent constructs are not similar across groups in these three scales. Conclusions Overall, there are different levels of invariances across subscales of the CBCL1.5–5. The attempt of using the CBCL1.5–5 to separate the profile of children with ASD and children with DD might be helpful, but only on particular aspects. En ligne : https://doi.org/10.1016/j.rasd.2021.101867 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Using neurotypical siblings as intervention agents to guide individuals with Autism Spectrum Disorders: A systematic review / Yuemei LU in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101868 Titre : Using neurotypical siblings as intervention agents to guide individuals with Autism Spectrum Disorders: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Yuemei LU, Auteur ; Sarah N. DOUGLAS, Auteur ; Atikah BAGAWAN, Auteur ; Janet L. HAUCK, Auteur Article en page(s) : 101868 Langues : Anglais (eng) Mots-clés : ASD  Sibling  Intervention  Support  Training  Review Index. décimale : PER Périodiques Résumé : Background Siblings share a unique and long-lasting relationship. Their involvement in the upbringing of an individual with a disability may lead to long-term positive developmental outcomes. The purpose of this systematic review is to summarize existing interventions where neurotypical (NT) siblings served as intervention agents to guide their brothers/sisters with Autism Spectrum Disorder (ASD). Methods Within this review we describe the training provided to NT siblings and how they delivered interventions to their brothers/sisters with ASD. We also summarize social validity outcomes to understand the social importance of the goals and effects as well as the social appropriateness of the intervention procedures from the perspectives of parents, siblings, and naïve observers. Results The 16 included studies provided training of intervention strategies/skills (e.g., Stay-Play-Talk curriculum, delivering prompts and reinforcers, and giving play instructions) to NT siblings. After training, NT siblings implemented the intervention through play or other interactions with their siblings with ASD. Social validity outcomes from raters indicated the agreement on the intervention goals, appropriateness and acceptance of the procedures, and satisfaction of the behavioral changes of the included studies. Conclusion Findings from this systematic review should be used to guide the development of appropriate training for NT siblings and inform the procedures within interventions delivery. Limitations of existing studies and areas for future consideration are discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101868 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Using neurotypical siblings as intervention agents to guide individuals with Autism Spectrum Disorders: A systematic review [Texte imprimé et/ou numérique] / Yuemei LU, Auteur ; Sarah N. DOUGLAS, Auteur ; Atikah BAGAWAN, Auteur ; Janet L. HAUCK, Auteur . - 101868. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101868 Mots-clés : ASD  Sibling  Intervention  Support  Training  Review Index. décimale : PER Périodiques Résumé : Background Siblings share a unique and long-lasting relationship. Their involvement in the upbringing of an individual with a disability may lead to long-term positive developmental outcomes. The purpose of this systematic review is to summarize existing interventions where neurotypical (NT) siblings served as intervention agents to guide their brothers/sisters with Autism Spectrum Disorder (ASD). Methods Within this review we describe the training provided to NT siblings and how they delivered interventions to their brothers/sisters with ASD. We also summarize social validity outcomes to understand the social importance of the goals and effects as well as the social appropriateness of the intervention procedures from the perspectives of parents, siblings, and naïve observers. Results The 16 included studies provided training of intervention strategies/skills (e.g., Stay-Play-Talk curriculum, delivering prompts and reinforcers, and giving play instructions) to NT siblings. After training, NT siblings implemented the intervention through play or other interactions with their siblings with ASD. Social validity outcomes from raters indicated the agreement on the intervention goals, appropriateness and acceptance of the procedures, and satisfaction of the behavioral changes of the included studies. Conclusion Findings from this systematic review should be used to guide the development of appropriate training for NT siblings and inform the procedures within interventions delivery. Limitations of existing studies and areas for future consideration are discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101868 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Trajectories of adverse childhood experiences among children with autism / Bethany RIGLES in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101876 Titre : Trajectories of adverse childhood experiences among children with autism Type de document : Texte imprimé et/ou numérique Auteurs : Bethany RIGLES, Auteur Article en page(s) : 101876 Langues : Anglais (eng) Mots-clés : Autism  Adverse childhood experiences  Well-being  Health  Trajectory models Index. décimale : PER Périodiques Résumé : Background Children with autism experience more adverse childhood experiences (ACEs) compared to their peers. Little is known about how the timing of ACES may be associated with the timing of autism diagnosis, which types of children experience the most ACEs, or how one’s ACE trajectory affects current well-being. This study aims to address these gaps. Methods An online survey was distributed to parents of children with autism (N = 902). Group-based trajectory models were created and analyzed using multiple regression techniques. Results Three ACE trajectory groups were identified, with children in the highest ACE group diagnosed at a significantly later age and significantly more likely to be Hispanic, less resourced, and female compared to their peers. Children in the high ACE group were also significantly more likely to report poorer current well-being compared to their peers. Conclusion Interventions to reduce family stress around the time of autism diagnosis that target high-risk groups are critical for improving well-being in this population. En ligne : https://doi.org/10.1016/j.rasd.2021.101876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Trajectories of adverse childhood experiences among children with autism [Texte imprimé et/ou numérique] / Bethany RIGLES, Auteur . - 101876. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101876 Mots-clés : Autism  Adverse childhood experiences  Well-being  Health  Trajectory models Index. décimale : PER Périodiques Résumé : Background Children with autism experience more adverse childhood experiences (ACEs) compared to their peers. Little is known about how the timing of ACES may be associated with the timing of autism diagnosis, which types of children experience the most ACEs, or how one’s ACE trajectory affects current well-being. This study aims to address these gaps. Methods An online survey was distributed to parents of children with autism (N = 902). Group-based trajectory models were created and analyzed using multiple regression techniques. Results Three ACE trajectory groups were identified, with children in the highest ACE group diagnosed at a significantly later age and significantly more likely to be Hispanic, less resourced, and female compared to their peers. Children in the high ACE group were also significantly more likely to report poorer current well-being compared to their peers. Conclusion Interventions to reduce family stress around the time of autism diagnosis that target high-risk groups are critical for improving well-being in this population. En ligne : https://doi.org/10.1016/j.rasd.2021.101876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Personalization of social narratives for students with Autism Spectrum Disorder: Brief experimental analysis / Kelly A. M. EDWARDS in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101877 Titre : Personalization of social narratives for students with Autism Spectrum Disorder: Brief experimental analysis Type de document : Texte imprimé et/ou numérique Auteurs : Kelly A. M. EDWARDS, Auteur ; Elizabeth L. W. MCKENNEY, Auteur ; Nick NIEKRA, Auteur ; Stephen D. A. HUPP, Auteur ; Gregory E. EVERETT, Auteur Article en page(s) : 101877 Langues : Anglais (eng) Mots-clés : Social narrative (s)  Social Stories™  Brief experimental analysis  School-based intervention  Personalization  Adaptation Index. décimale : PER Périodiques Résumé : Individuals with ASD display deficits in social interaction and communication across multiple contexts, making social communication a primary intervention target in school and community-based settings. Social narratives (SN) are designed to be implemented easily and flexibly by numerous caregivers and interventionists, provided that correct training is given. However, research findings regarding the efficacy of SN have been mixed. Much previous research has used generic forms of SN, in which pictures are not individualized to the child and the setting in which change is desired. In addition, the presumed mechanism of change in most social narrative research has been that narratives are skill-building, thus resulting in long-term and persistent effects. However, little research has supported or examined that assumption. The present study examined the efficacy of SN presented via various delivery methods, including written narratives with generic pictures, written narratives with personalized pictures, and written narratives with personalized pictures plus role play. Brief experimental analysis followed by extended analysis facilitated an examination of whether SN resulted in rapid generalization, or may function more similarly to antecedent interventions, such as prompts. Findings with three children with ASD whose special education teacher implemented SN indicate that some degree of personalization is more effective than generic presentation of SN. While SN appeared to sometimes produce generalizable gains, such effects were neither immediate nor as strong as when SN was used immediately prior to observation. Implications and future directions are discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101877 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Personalization of social narratives for students with Autism Spectrum Disorder: Brief experimental analysis [Texte imprimé et/ou numérique] / Kelly A. M. EDWARDS, Auteur ; Elizabeth L. W. MCKENNEY, Auteur ; Nick NIEKRA, Auteur ; Stephen D. A. HUPP, Auteur ; Gregory E. EVERETT, Auteur . - 101877. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101877 Mots-clés : Social narrative (s)  Social Stories™  Brief experimental analysis  School-based intervention  Personalization  Adaptation Index. décimale : PER Périodiques Résumé : Individuals with ASD display deficits in social interaction and communication across multiple contexts, making social communication a primary intervention target in school and community-based settings. Social narratives (SN) are designed to be implemented easily and flexibly by numerous caregivers and interventionists, provided that correct training is given. However, research findings regarding the efficacy of SN have been mixed. Much previous research has used generic forms of SN, in which pictures are not individualized to the child and the setting in which change is desired. In addition, the presumed mechanism of change in most social narrative research has been that narratives are skill-building, thus resulting in long-term and persistent effects. However, little research has supported or examined that assumption. The present study examined the efficacy of SN presented via various delivery methods, including written narratives with generic pictures, written narratives with personalized pictures, and written narratives with personalized pictures plus role play. Brief experimental analysis followed by extended analysis facilitated an examination of whether SN resulted in rapid generalization, or may function more similarly to antecedent interventions, such as prompts. Findings with three children with ASD whose special education teacher implemented SN indicate that some degree of personalization is more effective than generic presentation of SN. While SN appeared to sometimes produce generalizable gains, such effects were neither immediate nor as strong as when SN was used immediately prior to observation. Implications and future directions are discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101877 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

A pilot RCT of virtual reality job interview training in transition-age youth on the autism spectrum / Helen M. GENOVA in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101878 Titre : A pilot RCT of virtual reality job interview training in transition-age youth on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Helen M. GENOVA, Auteur ; Katie LANCASTER, Auteur ; James MORECRAFT, Auteur ; Mikayla HAAS, Auteur ; Alexandra EDWARDS, Auteur ; Michael DIBENEDETTO, Auteur ; Denise KRCH, Auteur ; John DELUCA, Auteur ; Matthew J. SMITH, Auteur Article en page(s) : 101878 Langues : Anglais (eng) Mots-clés : Autism  Transition age youth  Adolescents  Job interview  Virtual reality  RCT Index. décimale : PER Périodiques Résumé : Background Adolescents on the autism spectrum may have difficulty obtaining and maintaining employment. One particular obstacle for adolescents on the autism spectrum is the job interview. The purpose of the current pilot randomized controlled trial is to examine the preliminary effectiveness and feasibility of a virtual reality job interview tool (VR-JIT) in improving job interview performance in adolescents on the autism spectrum. Method The study was implemented in a high school setting. Fourteen adolescents on the autism spectrum were randomly divided into two groups: an experimental group (n = 7) and a services as usual (SAU) control group (n = 7). The intervention group received 10 h of VR-JIT, which includes interviewing with a virtual human and receiving feedback. All participants performed a video-recorded mock job interview at pre-test and post-test, which was rated by blinded assessors to track interview skills. Students filled out questionnaires related to job interviewing anxiety and self-efficacy pre- and post- intervention. Feasibility metrics were recorded as well. Results Repeated Measures ANOVA revealed improved a metric of job interview performance in the experimental group following the intervention compared to the control group, indicated by medium to large effect sizes. However, perceptions of anxiety and self-efficacy did not improve following the intervention. Students reported that the intervention was easy to use and enjoyable. Conclusions The current pilot study indicates preliminary evidence of the VR-JIT’s effectiveness in improving measures of job interview performance in adolescents on the autism spectrum, even though their own perceptions did not improve. Importantly, the VR-JIT intervention was implemented in a school setting, demonstrating feasibility in its adoption as part of curriculum to help improve employment outcomes in transition age youth on the autism spectrum. En ligne : https://doi.org/10.1016/j.rasd.2021.101878 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] A pilot RCT of virtual reality job interview training in transition-age youth on the autism spectrum [Texte imprimé et/ou numérique] / Helen M. GENOVA, Auteur ; Katie LANCASTER, Auteur ; James MORECRAFT, Auteur ; Mikayla HAAS, Auteur ; Alexandra EDWARDS, Auteur ; Michael DIBENEDETTO, Auteur ; Denise KRCH, Auteur ; John DELUCA, Auteur ; Matthew J. SMITH, Auteur . - 101878. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101878 Mots-clés : Autism  Transition age youth  Adolescents  Job interview  Virtual reality  RCT Index. décimale : PER Périodiques Résumé : Background Adolescents on the autism spectrum may have difficulty obtaining and maintaining employment. One particular obstacle for adolescents on the autism spectrum is the job interview. The purpose of the current pilot randomized controlled trial is to examine the preliminary effectiveness and feasibility of a virtual reality job interview tool (VR-JIT) in improving job interview performance in adolescents on the autism spectrum. Method The study was implemented in a high school setting. Fourteen adolescents on the autism spectrum were randomly divided into two groups: an experimental group (n = 7) and a services as usual (SAU) control group (n = 7). The intervention group received 10 h of VR-JIT, which includes interviewing with a virtual human and receiving feedback. All participants performed a video-recorded mock job interview at pre-test and post-test, which was rated by blinded assessors to track interview skills. Students filled out questionnaires related to job interviewing anxiety and self-efficacy pre- and post- intervention. Feasibility metrics were recorded as well. Results Repeated Measures ANOVA revealed improved a metric of job interview performance in the experimental group following the intervention compared to the control group, indicated by medium to large effect sizes. However, perceptions of anxiety and self-efficacy did not improve following the intervention. Students reported that the intervention was easy to use and enjoyable. Conclusions The current pilot study indicates preliminary evidence of the VR-JIT’s effectiveness in improving measures of job interview performance in adolescents on the autism spectrum, even though their own perceptions did not improve. Importantly, the VR-JIT intervention was implemented in a school setting, demonstrating feasibility in its adoption as part of curriculum to help improve employment outcomes in transition age youth on the autism spectrum. En ligne : https://doi.org/10.1016/j.rasd.2021.101878 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Direct observation in a large-scale randomized trial of parent training in children with autism spectrum disorder and disruptive behavior / Naomi SWIEZY in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101879 Titre : Direct observation in a large-scale randomized trial of parent training in children with autism spectrum disorder and disruptive behavior Type de document : Texte imprimé et/ou numérique Auteurs : Naomi SWIEZY, Auteur ; Tristam SMITH, Auteur ; Cindy R. JOHNSON, Auteur ; Karen E. BEARSS, Auteur ; Luc LECAVALIER, Auteur ; Rochelle DRILL, Auteur ; Danielle WARNER, Auteur ; Yanhong DENG, Auteur ; Yunshan XU, Auteur ; James DZIURA, Auteur ; Ben HANDEN, Auteur ; Lawrence SCAHILL, Auteur Article en page(s) : 101879 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder (ASD)  Direct observation  Behavioral assessment  Behavioral intervention  Randomized Control Trial (RCT)  Parent and caregiver training Index. décimale : PER Périodiques Résumé : A direct observation strategy (Standardized Observation Analogue Procedure, SOAP) was used in a large-scale randomized trial of parent training versus parent education in young children with autism spectrum disorder (ASD) and disruptive behavior. The 16-minute SOAP, modified from an earlier version of this same measure, included parentchild interaction to assess child behavior in a clinical laboratory setting. Despite study entry criteria for all child participants requiring moderate levels of disruptive behavior in this project, 126 of 168 children with complete SOAP data at baseline showed no disruptive behavior on this measure. Although the primary purpose of the study was to determine whether the SOAP could detect differences between the two conditions (i.e.,parent training (PT) and parent education (PE)), baseline observation data was not consistent with parent ratings at baseline or subsequent follow up visits, leaving little room to demonstrate improvement with this observation measure. This and the challenging, time-consuming and resource intensive effort involved in using such a measure in a large randomized scale trial, raises fundamental questions about the validity of the SOAP as an outcome measure in such a study. Further consideration related to the feasibility and practicality of using direct observation as a primary measure in larger scale efforts overall are also discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101879 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Direct observation in a large-scale randomized trial of parent training in children with autism spectrum disorder and disruptive behavior [Texte imprimé et/ou numérique] / Naomi SWIEZY, Auteur ; Tristam SMITH, Auteur ; Cindy R. JOHNSON, Auteur ; Karen E. BEARSS, Auteur ; Luc LECAVALIER, Auteur ; Rochelle DRILL, Auteur ; Danielle WARNER, Auteur ; Yanhong DENG, Auteur ; Yunshan XU, Auteur ; James DZIURA, Auteur ; Ben HANDEN, Auteur ; Lawrence SCAHILL, Auteur . - 101879. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101879 Mots-clés : Autism spectrum disorder (ASD)  Direct observation  Behavioral assessment  Behavioral intervention  Randomized Control Trial (RCT)  Parent and caregiver training Index. décimale : PER Périodiques Résumé : A direct observation strategy (Standardized Observation Analogue Procedure, SOAP) was used in a large-scale randomized trial of parent training versus parent education in young children with autism spectrum disorder (ASD) and disruptive behavior. The 16-minute SOAP, modified from an earlier version of this same measure, included parentchild interaction to assess child behavior in a clinical laboratory setting. Despite study entry criteria for all child participants requiring moderate levels of disruptive behavior in this project, 126 of 168 children with complete SOAP data at baseline showed no disruptive behavior on this measure. Although the primary purpose of the study was to determine whether the SOAP could detect differences between the two conditions (i.e.,parent training (PT) and parent education (PE)), baseline observation data was not consistent with parent ratings at baseline or subsequent follow up visits, leaving little room to demonstrate improvement with this observation measure. This and the challenging, time-consuming and resource intensive effort involved in using such a measure in a large randomized scale trial, raises fundamental questions about the validity of the SOAP as an outcome measure in such a study. Further consideration related to the feasibility and practicality of using direct observation as a primary measure in larger scale efforts overall are also discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101879 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Risk of migraine development among children and adolescents with autism spectrum disorder: A nationwide longitudinal study / Ting-Yi LEE in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101880 Titre : Risk of migraine development among children and adolescents with autism spectrum disorder: A nationwide longitudinal study Type de document : Texte imprimé et/ou numérique Auteurs : Ting-Yi LEE, Auteur ; Shih-Jen TSAI, Auteur ; Tzeng-Ji CHEN, Auteur ; Mu-Hong CHEN, Auteur Article en page(s) : 101880 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Migraine  Comorbidity Index. décimale : PER Périodiques Résumé : Objective Studies have suggested that impaired sensory processing is a shared characteristic of autism spectrum disorder (ASD) and migraine. However, the association between ASD and migraine remains unclear. Methods We examined 18,035 children and adolescents with ASD and 18,035 age- and sex-matched controls whose data were recorded in the Taiwan National Health Insurance Research Database between 2001 and 2011. We monitored the individuals until the end of 2011 and identified those who developed migraine during the follow-up period. Results After adjustment for medical and psychiatric comorbidities, children and adolescents with ASD had a significantly higher risk of developing migraine than did those without ASD (hazard ratio [HR]: 2.71, 95 % confidence interval [CI]: 1.63–4.51). Sensitivity analysis after the exclusion of the first year of the observation period (HR: 2.31, 95 % CI: 1.38–3.89) or medical and psychiatric comorbidities (HR: 2.38, 95 % CI: 1.11–5.15) revealed comparable between-group results. Conclusions Children and adolescents with ASD were more likely to develop migraine later in life compared with those without ASD. ASD is an independent risk factor for migraine, regardless of the psychiatric and medical comorbidities involved. Research on the mechanisms underlying the association between ASD and migraine is warranted. En ligne : https://doi.org/10.1016/j.rasd.2021.101880 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Risk of migraine development among children and adolescents with autism spectrum disorder: A nationwide longitudinal study [Texte imprimé et/ou numérique] / Ting-Yi LEE, Auteur ; Shih-Jen TSAI, Auteur ; Tzeng-Ji CHEN, Auteur ; Mu-Hong CHEN, Auteur . - 101880. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101880 Mots-clés : Autism spectrum disorder  Migraine  Comorbidity Index. décimale : PER Périodiques Résumé : Objective Studies have suggested that impaired sensory processing is a shared characteristic of autism spectrum disorder (ASD) and migraine. However, the association between ASD and migraine remains unclear. Methods We examined 18,035 children and adolescents with ASD and 18,035 age- and sex-matched controls whose data were recorded in the Taiwan National Health Insurance Research Database between 2001 and 2011. We monitored the individuals until the end of 2011 and identified those who developed migraine during the follow-up period. Results After adjustment for medical and psychiatric comorbidities, children and adolescents with ASD had a significantly higher risk of developing migraine than did those without ASD (hazard ratio [HR]: 2.71, 95 % confidence interval [CI]: 1.63–4.51). Sensitivity analysis after the exclusion of the first year of the observation period (HR: 2.31, 95 % CI: 1.38–3.89) or medical and psychiatric comorbidities (HR: 2.38, 95 % CI: 1.11–5.15) revealed comparable between-group results. Conclusions Children and adolescents with ASD were more likely to develop migraine later in life compared with those without ASD. ASD is an independent risk factor for migraine, regardless of the psychiatric and medical comorbidities involved. Research on the mechanisms underlying the association between ASD and migraine is warranted. En ligne : https://doi.org/10.1016/j.rasd.2021.101880 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Associations between sensory processing and depression in autistic girls / Vicki BITSIKA in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101881 Titre : Associations between sensory processing and depression in autistic girls Type de document : Texte imprimé et/ou numérique Auteurs : Vicki BITSIKA, Auteur ; Christopher F. SHARPLEY, Auteur ; Richard MILLS, Auteur Article en page(s) : 101881 Langues : Anglais (eng) Mots-clés : Autism  Girls  Sensory features  Depression  Depressed mood Index. décimale : PER Périodiques Résumé : Background Autistic youth often experience depression, which can confound their social interactions as well as contribute to decreased quality of life. One of the possible correlates of depression in these youth is their sensitivity to sensory stimuli, which can be of several kinds, and is often referred to as Sensory Features (SF). Methods The association between SF (using the Sensory Profile (SPr)) and Major Depressive Disorder (MDD) (as measured by the Child and Adolescent Symptom Inventory MDD subscale (CASI-D)) was investigated in 53 autistic girls and adolescents aged 6–17 yr, using total MDD scores and also the underlying components of MDD identified via Factor Analysis. Data were collected from the autistic females as well as one of their parents to compare these sources for their association between SF and MDD. Results Data from the SPr and the CASI-D revealed a significant correlation between SP and total scores from the CASI-D, although that association was not uniform across all four Quadrants of the SPr. Examination of the factor structure of the CASI-D revealed two major components, only one of which (Depressed Mood) was significantly associated with aspects of SPr. The data fitted a model of depression as a behavioural withdrawal from chronic stress as an attempted adaptation to that stress. Only the girls’ own evaluations of their SF made significant contributions to their Depressed Mood. Conclusions The link between SF and MDD in these girls may need to be based upon their own evaluations of their SF-related behaviour. Implications for assessment and treatment of SP-related MDD are discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101881 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Associations between sensory processing and depression in autistic girls [Texte imprimé et/ou numérique] / Vicki BITSIKA, Auteur ; Christopher F. SHARPLEY, Auteur ; Richard MILLS, Auteur . - 101881. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101881 Mots-clés : Autism  Girls  Sensory features  Depression  Depressed mood Index. décimale : PER Périodiques Résumé : Background Autistic youth often experience depression, which can confound their social interactions as well as contribute to decreased quality of life. One of the possible correlates of depression in these youth is their sensitivity to sensory stimuli, which can be of several kinds, and is often referred to as Sensory Features (SF). Methods The association between SF (using the Sensory Profile (SPr)) and Major Depressive Disorder (MDD) (as measured by the Child and Adolescent Symptom Inventory MDD subscale (CASI-D)) was investigated in 53 autistic girls and adolescents aged 6–17 yr, using total MDD scores and also the underlying components of MDD identified via Factor Analysis. Data were collected from the autistic females as well as one of their parents to compare these sources for their association between SF and MDD. Results Data from the SPr and the CASI-D revealed a significant correlation between SP and total scores from the CASI-D, although that association was not uniform across all four Quadrants of the SPr. Examination of the factor structure of the CASI-D revealed two major components, only one of which (Depressed Mood) was significantly associated with aspects of SPr. The data fitted a model of depression as a behavioural withdrawal from chronic stress as an attempted adaptation to that stress. Only the girls’ own evaluations of their SF made significant contributions to their Depressed Mood. Conclusions The link between SF and MDD in these girls may need to be based upon their own evaluations of their SF-related behaviour. Implications for assessment and treatment of SP-related MDD are discussed. En ligne : https://doi.org/10.1016/j.rasd.2021.101881 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Brain-computer interface based attention and social cognition training programme for children with ASD and co-occurring ADHD: A feasibility trial / Sze-Hui Jane TEO in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101882 Titre : Brain-computer interface based attention and social cognition training programme for children with ASD and co-occurring ADHD: A feasibility trial Type de document : Texte imprimé et/ou numérique Auteurs : Sze-Hui Jane TEO, Auteur ; Xue Wei Wendy POH, Auteur ; Tih Shih LEE, Auteur ; Cuntai GUAN, Auteur ; Yin Bun CHEUNG, Auteur ; Daniel Shuen Sheng FUNG, Auteur ; Hai Hong ZHANG, Auteur ; Zheng Yang CHIN, Auteur ; Chuan Chu WANG, Auteur ; Min SUNG, Auteur ; Tze Jui GOH, Auteur ; Shih Jen WENG, Auteur ; Xin Jie Jordon TNG, Auteur ; Choon Guan LIM, Auteur Article en page(s) : 101882 Langues : Anglais (eng) Mots-clés : ASD  ADHD  Social cognition  Technology  Children  Repetitive behaviours and interests Index. décimale : PER Périodiques Résumé : Background Current treatment practices for comorbid conditions of autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD) remain limited. This study examined the feasibility of an EEG brain-computer interface (BCI) programme for children with ASD and co-occurring ADHD. Method Twenty children were randomised to the intervention or waitlist-control group. Intervention consisted of thrice-weekly sessions of BCI-based training over 8 weeks. Both groups were followed up 4 weeks later. The BCI-based programme comprised of a series of attention and gaze-modulated games aimed to train social cognitive skills. Results All participants completed at least 20 training sessions and none dropped out of the study. No severe adverse events were reported. Side effects included mild headaches, fatigue, irritability and self-injurious behaviours. All were addressed within the same session. Feedback from therapists indicated that participants’ interest and motivation could be sustained with appropriate supports. Change scores indicated greater improvement in the intervention group compared to the waitlist-control on ADHD symptoms as measured on the ADHD rating scale; no significant differences were observed on social deficits on the Social Responsiveness Scale (SRS). Pooled data suggests that pre-post improvements could be maintained. Conclusions Findings indicate the BCI-based program is tolerable for most participants. Positive effects were also reported for ADHD symptoms. A future large clinical trial will incorporate appropriate controls to ascertain the efficacy of our training programme. En ligne : https://doi.org/10.1016/j.rasd.2021.101882 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Brain-computer interface based attention and social cognition training programme for children with ASD and co-occurring ADHD: A feasibility trial [Texte imprimé et/ou numérique] / Sze-Hui Jane TEO, Auteur ; Xue Wei Wendy POH, Auteur ; Tih Shih LEE, Auteur ; Cuntai GUAN, Auteur ; Yin Bun CHEUNG, Auteur ; Daniel Shuen Sheng FUNG, Auteur ; Hai Hong ZHANG, Auteur ; Zheng Yang CHIN, Auteur ; Chuan Chu WANG, Auteur ; Min SUNG, Auteur ; Tze Jui GOH, Auteur ; Shih Jen WENG, Auteur ; Xin Jie Jordon TNG, Auteur ; Choon Guan LIM, Auteur . - 101882. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101882 Mots-clés : ASD  ADHD  Social cognition  Technology  Children  Repetitive behaviours and interests Index. décimale : PER Périodiques Résumé : Background Current treatment practices for comorbid conditions of autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD) remain limited. This study examined the feasibility of an EEG brain-computer interface (BCI) programme for children with ASD and co-occurring ADHD. Method Twenty children were randomised to the intervention or waitlist-control group. Intervention consisted of thrice-weekly sessions of BCI-based training over 8 weeks. Both groups were followed up 4 weeks later. The BCI-based programme comprised of a series of attention and gaze-modulated games aimed to train social cognitive skills. Results All participants completed at least 20 training sessions and none dropped out of the study. No severe adverse events were reported. Side effects included mild headaches, fatigue, irritability and self-injurious behaviours. All were addressed within the same session. Feedback from therapists indicated that participants’ interest and motivation could be sustained with appropriate supports. Change scores indicated greater improvement in the intervention group compared to the waitlist-control on ADHD symptoms as measured on the ADHD rating scale; no significant differences were observed on social deficits on the Social Responsiveness Scale (SRS). Pooled data suggests that pre-post improvements could be maintained. Conclusions Findings indicate the BCI-based program is tolerable for most participants. Positive effects were also reported for ADHD symptoms. A future large clinical trial will incorporate appropriate controls to ascertain the efficacy of our training programme. En ligne : https://doi.org/10.1016/j.rasd.2021.101882 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Autistic undergraduate students’ transition and adjustment to higher education institutions / So Yoon KIM in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101883 Titre : Autistic undergraduate students’ transition and adjustment to higher education institutions Type de document : Texte imprimé et/ou numérique Auteurs : So Yoon KIM, Auteur ; Shannon CROWLEY, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur Article en page(s) : 101883 Langues : Anglais (eng) Mots-clés : Autism  Postsecondary  Special education  Transition  Adjustment  Higher education Index. décimale : PER Périodiques Résumé : Background Only a limited number of studies have specifically examined autistic undergraduate students’ perspectives on transition. Positive experiences during the initial transition from high school to college lead to long-term success in college. Method This study examined the transition and adjustment experiences of 27 autistic undergraduate students attending higher education institutions (HEIs) in the United States. Semi-structured interviews were analyzed using qualitative content analysis. Results The majority (66.7 %) of participants described the transition experience in negative terms. They also reported that geographical proximity to home and family support, social relationships, transition programs, structural changes from their high school experiences, and logistic difficulties were important aspects of their transition experiences during the first few months of HEI. All participants indicated they felt adjusted to college life at the time of the interview, and adjustment was facilitated by familiarity with campus routines, academic achievement, and positive social experiences. Conclusions Themes associated with autistic students’ transition and adjustment experiences should be followed-up in future quantitative research. Careful transition planning that informs autistic students about expectations associated with HEI, familiarizes them with college life, helps them gain practical skills needed in colleges (e.g., transportation), and helps them find a balance between parental support and independence is needed to support autistic students through transition and adjustment. En ligne : https://doi.org/10.1016/j.rasd.2021.101883 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Autistic undergraduate students’ transition and adjustment to higher education institutions [Texte imprimé et/ou numérique] / So Yoon KIM, Auteur ; Shannon CROWLEY, Auteur ; Kristen BOTTEMA-BEUTEL, Auteur . - 101883. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101883 Mots-clés : Autism  Postsecondary  Special education  Transition  Adjustment  Higher education Index. décimale : PER Périodiques Résumé : Background Only a limited number of studies have specifically examined autistic undergraduate students’ perspectives on transition. Positive experiences during the initial transition from high school to college lead to long-term success in college. Method This study examined the transition and adjustment experiences of 27 autistic undergraduate students attending higher education institutions (HEIs) in the United States. Semi-structured interviews were analyzed using qualitative content analysis. Results The majority (66.7 %) of participants described the transition experience in negative terms. They also reported that geographical proximity to home and family support, social relationships, transition programs, structural changes from their high school experiences, and logistic difficulties were important aspects of their transition experiences during the first few months of HEI. All participants indicated they felt adjusted to college life at the time of the interview, and adjustment was facilitated by familiarity with campus routines, academic achievement, and positive social experiences. Conclusions Themes associated with autistic students’ transition and adjustment experiences should be followed-up in future quantitative research. Careful transition planning that informs autistic students about expectations associated with HEI, familiarizes them with college life, helps them gain practical skills needed in colleges (e.g., transportation), and helps them find a balance between parental support and independence is needed to support autistic students through transition and adjustment. En ligne : https://doi.org/10.1016/j.rasd.2021.101883 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458

Community participation patterns among autistic adults and associated characteristics: A latent class analysis / Wei SONG in Research in Autism Spectrum Disorders, 89 (November 2021)  

Public ISBD [article]  inResearch in Autism Spectrum Disorders > 89 (November 2021) . - 101884 Titre : Community participation patterns among autistic adults and associated characteristics: A latent class analysis Type de document : Texte imprimé et/ou numérique Auteurs : Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur Article en page(s) : 101884 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  Adults  Community participation  Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458 [article] Community participation patterns among autistic adults and associated characteristics: A latent class analysis [Texte imprimé et/ou numérique] / Wei SONG, Auteur ; Mark S. SALZER, Auteur ; Stacy L. NONNEMACHER, Auteur ; Lindsay L. SHEA, Auteur . - 101884. Langues : Anglais (eng) in Research in Autism Spectrum Disorders > 89 (November 2021) . - 101884 Mots-clés : Autism spectrum disorder  Adults  Community participation  Latent class analysis Index. décimale : PER Périodiques Résumé : Background Community participation can buffer stress and anxiety and improve quality of life for autistic adults. While the participation of autistic adults is known to be lower than the general population, it is not known if subgroups exist based on the degree of interest in participation or amounts of participation among those who are interested. Method This study uses Latent Class Analysis to identify subgroups based on the number of important areas and engagement in important activities, and the demographic, clinical, social, and environmental features of these subgroups. Cross-sectional data from 816 autistic adults aged 18–72 from a large, statewide survey were used. Results Latent Class Analysis resulted in a good-fitting four class solution: Low Importance of Participation (33%); High Importance-Low Participation (16%); High Importance-Moderate Participation (22%); High Importance-High Participation (29%). Autistic adults in the Low Importance group were more likely to have fewer years of education, live with family members, and less likely to have an intellectual disability. Among the classes where participation was important, compared to adults in the Moderate Participation class, those in the Low Participation class were more likely to live in an isolated environment, such as rural areas or supported living facilities, and those in the High Participation class had more satisfying relationships and fewer unmet service needs. Conclusions Study findings have implications for more efficient and effective service planning and delivery that enhances participation interests and amount of community participation to align with interests. En ligne : https://doi.org/10.1016/j.rasd.2021.101884 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=458