Dépouillements

Conceptualizing and describing autistic language: Moving on from 'verbal", 'minimally verbal" and 'nonverbal" / Alyssa Hillary ZISK ; Jordyn ZIMMERMAN ; Betty YU in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1367-1373 Titre : Conceptualizing and describing autistic language: Moving on from 'verbal", 'minimally verbal" and 'nonverbal" Type de document : Texte imprimé et/ou numérique Auteurs : Alyssa Hillary ZISK, Auteur ; Jordyn ZIMMERMAN, Auteur ; Betty YU, Auteur Article en page(s) : p.1367-1373 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251332573 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Conceptualizing and describing autistic language: Moving on from 'verbal", 'minimally verbal" and 'nonverbal" [Texte imprimé et/ou numérique] / Alyssa Hillary ZISK, Auteur ; Jordyn ZIMMERMAN, Auteur ; Betty YU, Auteur . - p.1367-1373. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1367-1373 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251332573 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

A systematic review of ecological momentary assessment in autism research / Zhenyang XI ; Talya GREENE ; Will MANDY in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1374-1389 Titre : A systematic review of ecological momentary assessment in autism research Type de document : Texte imprimé et/ou numérique Auteurs : Zhenyang XI, Auteur ; Talya GREENE, Auteur ; Will MANDY, Auteur Article en page(s) : p.1374-1389 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  ecological momentary assessment  experience sampling method  systematic review Index. décimale : PER Périodiques Résumé : Ecological momentary assessment has been increasingly used in autism studies over the last decade to capture and understand autistic people?s behaviours, thoughts, feelings and daily experiences. This systematic review synthesised previous autism ecological momentary assessment studies to learn about the feasibility of ecological momentary assessment with autistic people and derive ideas to optimise the applicability of ecological momentary assessment in autism studies. Five databases (MEDLINE, PsycINFO, Web of Science, EMBASE and CINAHL) were searched, covering the time between January 1990 and October 2024, for studies using ecological momentary assessment with autistic participants. We identified 32 studies with 930 autistic participants. These studies supported the acceptability and feasibility of ecological momentary assessment with young and middle-aged autistic adults with average or above-average intelligence and language skills. Previous researchers and autistic participants in the reviewed literature suggested considering adaptations in the design of sampling schedules, ecological momentary assessment questionnaires and the implementation of incentive strategies, to improve the applicability of ecological momentary assessment with the autistic population. Future ecological momentary assessment studies could address the limitations in the extant literature, for example, lack of evidence from youth and older autistic people and a wider range of study topics.Lay abstract Ecological momentary assessments assess people?s in-the-moment thoughts and behaviours in their daily lives in natural environments. The number of ecological momentary assessment studies with autistic people has increased over the last decade. For the first time, this review (1) summarises how well ecological momentary assessment works for allowing autistic people to describe and express their thoughts, emotions and experiences, and (2) provides suggestions for the design of ecological momentary assessment to make this research method more accessible to future autistic participants. In total, we synthesised participation experiences from 930 autistic people. Overall, ecological momentary assessment is generally acceptable for autistic adults aged from 18 to 60 and with average or above-average intelligence and language. We also identified several issues in the ecological momentary assessment procedure and suggested researchers consider these when designing future ecological momentary assessment studies with autistic people. The findings of this review provide evidence that ecological momentary assessment can be used to investigate many different questions with autistic people and suggest a wider application of ecological momentary assessment in future studies with autistic people. En ligne : https://dx.doi.org/10.1177/13623613241305722 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] A systematic review of ecological momentary assessment in autism research [Texte imprimé et/ou numérique] / Zhenyang XI, Auteur ; Talya GREENE, Auteur ; Will MANDY, Auteur . - p.1374-1389. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1374-1389 Mots-clés : autism spectrum disorders  ecological momentary assessment  experience sampling method  systematic review Index. décimale : PER Périodiques Résumé : Ecological momentary assessment has been increasingly used in autism studies over the last decade to capture and understand autistic people?s behaviours, thoughts, feelings and daily experiences. This systematic review synthesised previous autism ecological momentary assessment studies to learn about the feasibility of ecological momentary assessment with autistic people and derive ideas to optimise the applicability of ecological momentary assessment in autism studies. Five databases (MEDLINE, PsycINFO, Web of Science, EMBASE and CINAHL) were searched, covering the time between January 1990 and October 2024, for studies using ecological momentary assessment with autistic participants. We identified 32 studies with 930 autistic participants. These studies supported the acceptability and feasibility of ecological momentary assessment with young and middle-aged autistic adults with average or above-average intelligence and language skills. Previous researchers and autistic participants in the reviewed literature suggested considering adaptations in the design of sampling schedules, ecological momentary assessment questionnaires and the implementation of incentive strategies, to improve the applicability of ecological momentary assessment with the autistic population. Future ecological momentary assessment studies could address the limitations in the extant literature, for example, lack of evidence from youth and older autistic people and a wider range of study topics.Lay abstract Ecological momentary assessments assess people?s in-the-moment thoughts and behaviours in their daily lives in natural environments. The number of ecological momentary assessment studies with autistic people has increased over the last decade. For the first time, this review (1) summarises how well ecological momentary assessment works for allowing autistic people to describe and express their thoughts, emotions and experiences, and (2) provides suggestions for the design of ecological momentary assessment to make this research method more accessible to future autistic participants. In total, we synthesised participation experiences from 930 autistic people. Overall, ecological momentary assessment is generally acceptable for autistic adults aged from 18 to 60 and with average or above-average intelligence and language. We also identified several issues in the ecological momentary assessment procedure and suggested researchers consider these when designing future ecological momentary assessment studies with autistic people. The findings of this review provide evidence that ecological momentary assessment can be used to investigate many different questions with autistic people and suggest a wider application of ecological momentary assessment in future studies with autistic people. En ligne : https://dx.doi.org/10.1177/13623613241305722 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

A systematic review of pre-registration in autism research journals / Audrey LINDEN ; Felicity SEDGEWICK ; Oliver ALLCHIN ; Hannah HOBSON in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1390-1402 Titre : A systematic review of pre-registration in autism research journals Type de document : Texte imprimé et/ou numérique Auteurs : Audrey LINDEN, Auteur ; Felicity SEDGEWICK, Auteur ; Oliver ALLCHIN, Auteur ; Hannah HOBSON, Auteur Article en page(s) : p.1390-1402 Langues : Anglais (eng) Mots-clés : autism  autism research  meta-research  pre-registration Index. décimale : PER Périodiques Résumé : Pre-registration refers to the practice of researchers preparing a time-stamped document describing the plans for a study. This open research tool is used to improve transparency, so that readers can evaluate the extent to which the researcher adhered to their original plans and tested their theory appropriately. In the current study, we conducted an audit of pre-registration in autism research through a review of manuscripts published across six autism research journals between 2011 and 2022. We found that 192 publications were pre-registered, approximately 2.23% of publications in autism journals during this time frame. We also conducted a quality assessment of a sample of the pre-registrations, finding that specificity in the pre-registrations was low, particularly in the design and analysis components of the pre-registration. In addition, only 28% of sampled manuscripts adhered to their analysis plan or transparently disclosed all deviations. Autism researchers conducting confirmatory, quantitative research should consider pre-registering their work, reporting any changes in plans transparently in the published manuscript. We outline recommendations for researchers and journals to improve the transparency and robustness of the field.Lay abstract When researchers write down their plans for a study ahead of time and make this public, this is called pre-registration. Pre-registration allows others to see if the researchers stuck to their original plan or changed as they went along. Pre-registration is growing in popularity but we do not know how widely it is used in autism research. In this study, we looked at papers published in six major autism journals between 2011 and 2022. We found that only 2.23% of papers published in autism journals had been pre-registered. We also took a close look at a selection of the pre-registrations to check how good they were and if researchers stuck to their plans. We found that the pre-registrations generally lacked specifics, particularly about how the study was designed and the data would be analysed. We also found that only 28% of the papers closely followed the pre-registered plans or reported the changes.Based on these findings, we recommend that autism researchers consider pre-registering their work and transparently report any changes from their original plans. We have provided some recommendations for researchers and journals on how pre-registration could be better used in autism research. En ligne : https://dx.doi.org/10.1177/13623613241308312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] A systematic review of pre-registration in autism research journals [Texte imprimé et/ou numérique] / Audrey LINDEN, Auteur ; Felicity SEDGEWICK, Auteur ; Oliver ALLCHIN, Auteur ; Hannah HOBSON, Auteur . - p.1390-1402. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1390-1402 Mots-clés : autism  autism research  meta-research  pre-registration Index. décimale : PER Périodiques Résumé : Pre-registration refers to the practice of researchers preparing a time-stamped document describing the plans for a study. This open research tool is used to improve transparency, so that readers can evaluate the extent to which the researcher adhered to their original plans and tested their theory appropriately. In the current study, we conducted an audit of pre-registration in autism research through a review of manuscripts published across six autism research journals between 2011 and 2022. We found that 192 publications were pre-registered, approximately 2.23% of publications in autism journals during this time frame. We also conducted a quality assessment of a sample of the pre-registrations, finding that specificity in the pre-registrations was low, particularly in the design and analysis components of the pre-registration. In addition, only 28% of sampled manuscripts adhered to their analysis plan or transparently disclosed all deviations. Autism researchers conducting confirmatory, quantitative research should consider pre-registering their work, reporting any changes in plans transparently in the published manuscript. We outline recommendations for researchers and journals to improve the transparency and robustness of the field.Lay abstract When researchers write down their plans for a study ahead of time and make this public, this is called pre-registration. Pre-registration allows others to see if the researchers stuck to their original plan or changed as they went along. Pre-registration is growing in popularity but we do not know how widely it is used in autism research. In this study, we looked at papers published in six major autism journals between 2011 and 2022. We found that only 2.23% of papers published in autism journals had been pre-registered. We also took a close look at a selection of the pre-registrations to check how good they were and if researchers stuck to their plans. We found that the pre-registrations generally lacked specifics, particularly about how the study was designed and the data would be analysed. We also found that only 28% of the papers closely followed the pre-registered plans or reported the changes.Based on these findings, we recommend that autism researchers consider pre-registering their work and transparently report any changes from their original plans. We have provided some recommendations for researchers and journals on how pre-registration could be better used in autism research. En ligne : https://dx.doi.org/10.1177/13623613241308312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Health care transition for autistic adolescents and young adults: A pilot rural and urban comparison survey study / Makenna SNYDER ; Wafaa ALDURAIDI ; Ezra KAISER ; Spencer HUNLEY ; Lacy WRIGHT ; Rebecca SWINBURNE ROMINE ; Eve-Lynn NELSON ; Nancy CHEAK-ZAMORA in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1403-1414 Titre : Health care transition for autistic adolescents and young adults: A pilot rural and urban comparison survey study Type de document : Texte imprimé et/ou numérique Auteurs : Makenna SNYDER, Auteur ; Wafaa ALDURAIDI, Auteur ; Ezra KAISER, Auteur ; Spencer HUNLEY, Auteur ; Lacy WRIGHT, Auteur ; Rebecca SWINBURNE ROMINE, Auteur ; Eve-Lynn NELSON, Auteur ; Nancy CHEAK-ZAMORA, Auteur Article en page(s) : p.1403-1414 Langues : Anglais (eng) Mots-clés : adolescents and young adults  autism spectrum disorder  health care transition  rural  urban Index. décimale : PER Périodiques Résumé : Autistic adolescents and young adults in rural areas often experience more unmet medical needs than their urban peers, particularly during the health care transition, the process of moving from pediatric to adult health care. This study aimed to understand the health care transition experiences of autistic adolescents and young adults (14-25?years old) across rural and urban settings through a structured survey assessing demographics, health care transition experiences, and future health care decision-making planning. Of 180 participants (urban: 96; rural: 84), the average age was 19.67?years. Slightly over half (53.3%) reported completing health care transition at an average age of 18.02?years. Only 40 participants had health care transition discussions with their doctors, typically starting at 17.78?years. Regarding future medical decision-making, autistic adolescents and young adults who completed the survey independently had significantly higher odds of anticipating future independent medical decision-making compared to those who had parental assistance in survey completion (odds ratio = 6.601, 95% confidence interval: 2.857-15.250, p < .001). These results emphasize the need for enhanced health care transition support for autistic adolescents and young adults, suggesting that health care transition should be integrated into broader transition planning, and tailored interventions should be developed to improve health care transition outcomes for adolescents and young adults, their caregivers, and providers.Lay abstract Autistic adolescents and young adults in rural areas face significant challenges in health care transition compared to their urban counterparts. Health care transition, the process of moving from pediatric to adult health care, is crucial for the long-term health outcomes of adolescents and young adults. Previous research indicates rural adolescents and young adults often have greater unmet medical and financial needs, affecting their transition experiences, but there was no study focusing on rural autistic adolescents and young adults" health care transition experiences. This pilot study provides a comparative analysis of the health care transition experiences of rural and urban autistic adolescents and young adults. Ninety-six urban and 84 rural participants (14-25?years old) participated in the study. Their average age was 19.67?years. Just over half of the participants had completed the transition to adult care, typically reporting finishing this process at around 18?years old. A majority had limited discussions with their doctors about transitioning, and those who had discussions often started these conversations late. It also reveals that the responses completed by or with parents of autistic adolescents and young adults tend to indicate that the adolescents and young adults would not make future medical decisions or are uncertain about it. The findings underscore the necessity for targeted support for autistic adolescents and young adults during their health care transition process, regardless of their residence. There is a clear need for targeted health care transition interventions for adolescents and young adults, parents, and health care providers to ensure autistic adolescents and young adults and their families receive adequate support during the health care transition process. En ligne : https://dx.doi.org/10.1177/13623613241304495 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Health care transition for autistic adolescents and young adults: A pilot rural and urban comparison survey study [Texte imprimé et/ou numérique] / Makenna SNYDER, Auteur ; Wafaa ALDURAIDI, Auteur ; Ezra KAISER, Auteur ; Spencer HUNLEY, Auteur ; Lacy WRIGHT, Auteur ; Rebecca SWINBURNE ROMINE, Auteur ; Eve-Lynn NELSON, Auteur ; Nancy CHEAK-ZAMORA, Auteur . - p.1403-1414. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1403-1414 Mots-clés : adolescents and young adults  autism spectrum disorder  health care transition  rural  urban Index. décimale : PER Périodiques Résumé : Autistic adolescents and young adults in rural areas often experience more unmet medical needs than their urban peers, particularly during the health care transition, the process of moving from pediatric to adult health care. This study aimed to understand the health care transition experiences of autistic adolescents and young adults (14-25?years old) across rural and urban settings through a structured survey assessing demographics, health care transition experiences, and future health care decision-making planning. Of 180 participants (urban: 96; rural: 84), the average age was 19.67?years. Slightly over half (53.3%) reported completing health care transition at an average age of 18.02?years. Only 40 participants had health care transition discussions with their doctors, typically starting at 17.78?years. Regarding future medical decision-making, autistic adolescents and young adults who completed the survey independently had significantly higher odds of anticipating future independent medical decision-making compared to those who had parental assistance in survey completion (odds ratio = 6.601, 95% confidence interval: 2.857-15.250, p < .001). These results emphasize the need for enhanced health care transition support for autistic adolescents and young adults, suggesting that health care transition should be integrated into broader transition planning, and tailored interventions should be developed to improve health care transition outcomes for adolescents and young adults, their caregivers, and providers.Lay abstract Autistic adolescents and young adults in rural areas face significant challenges in health care transition compared to their urban counterparts. Health care transition, the process of moving from pediatric to adult health care, is crucial for the long-term health outcomes of adolescents and young adults. Previous research indicates rural adolescents and young adults often have greater unmet medical and financial needs, affecting their transition experiences, but there was no study focusing on rural autistic adolescents and young adults" health care transition experiences. This pilot study provides a comparative analysis of the health care transition experiences of rural and urban autistic adolescents and young adults. Ninety-six urban and 84 rural participants (14-25?years old) participated in the study. Their average age was 19.67?years. Just over half of the participants had completed the transition to adult care, typically reporting finishing this process at around 18?years old. A majority had limited discussions with their doctors about transitioning, and those who had discussions often started these conversations late. It also reveals that the responses completed by or with parents of autistic adolescents and young adults tend to indicate that the adolescents and young adults would not make future medical decisions or are uncertain about it. The findings underscore the necessity for targeted support for autistic adolescents and young adults during their health care transition process, regardless of their residence. There is a clear need for targeted health care transition interventions for adolescents and young adults, parents, and health care providers to ensure autistic adolescents and young adults and their families receive adequate support during the health care transition process. En ligne : https://dx.doi.org/10.1177/13623613241304495 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Material hardship and sources of support for autistic adolescents and their families / Melissa RADEY ; Lauren BISHOP ; Nahime G AGUIRRE MTANOUS ; Jamie KOENIG ; Lindsay SHEA in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1415-1430 Titre : Material hardship and sources of support for autistic adolescents and their families Type de document : Texte imprimé et/ou numérique Auteurs : Melissa RADEY, Auteur ; Lauren BISHOP, Auteur ; Nahime G AGUIRRE MTANOUS, Auteur ; Jamie KOENIG, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.1415-1430 Langues : Anglais (eng) Mots-clés : financial well-being  material hardship  quality of life  safety net Index. décimale : PER Périodiques Résumé : This exploratory study used the Future of Families and Child Wellbeing Study (FFCWS) to compare the financial well-being of families of adolescents with and without autism. Recognizing the gap in autism research, which predominantly measures financial well-being through household income, this study employed a multidimensional approach, including indicators of assets, material hardships, and both formal and informal safety net access. We found that families with autistic adolescents experienced greater financial instability, including a higher likelihood of substantial income drops and bankruptcy. Despite similar access to food assistance programs, food insecurity was notably higher among these families, especially in the lowest income brackets where nearly all families utilized food assistance. Furthermore, material hardship prevalence (46.4%) exceeded income poverty (29.8%), among families with autistic adolescents. A substantial proportion of middle- to high-income families also experienced hardships, had no assets, and lacked connection to safety net programs, suggesting that income-based metrics may not fully capture the financial challenges families face. The findings highlight the need for policies that acknowledge the broader financial needs of families with autistic adolescents, underscoring the inadequacies of current support systems.Lay abstract Our study looks at how families with autistic teenagers manage financially compared with families with teenagers who do not have autism. We know that money matters are a big part of life?s overall quality and that autistic individuals and their families often face more financial challenges. These challenges can affect their health, social connections, and access to needed services. What our research adds is a closer look at these financial difficulties by considering not just how much money a family has but also what they own, their struggles to meet basic needs, and the help they get from both government programs and their own social circles. We found that families with autistic teenagers often deal with more financial problems, including not having enough food, even though they might be using available support programs. This is important because it shows us that the current ways of helping may not be enough. Our findings suggest we need to think more broadly about how to support these families. This could mean making policies that better address their unique needs or coming up with new ways to help them that go beyond just looking at income. Understanding these challenges better can help us make life better for autistic individuals and their families. En ligne : https://dx.doi.org/10.1177/13623613241304503 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Material hardship and sources of support for autistic adolescents and their families [Texte imprimé et/ou numérique] / Melissa RADEY, Auteur ; Lauren BISHOP, Auteur ; Nahime G AGUIRRE MTANOUS, Auteur ; Jamie KOENIG, Auteur ; Lindsay SHEA, Auteur . - p.1415-1430. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1415-1430 Mots-clés : financial well-being  material hardship  quality of life  safety net Index. décimale : PER Périodiques Résumé : This exploratory study used the Future of Families and Child Wellbeing Study (FFCWS) to compare the financial well-being of families of adolescents with and without autism. Recognizing the gap in autism research, which predominantly measures financial well-being through household income, this study employed a multidimensional approach, including indicators of assets, material hardships, and both formal and informal safety net access. We found that families with autistic adolescents experienced greater financial instability, including a higher likelihood of substantial income drops and bankruptcy. Despite similar access to food assistance programs, food insecurity was notably higher among these families, especially in the lowest income brackets where nearly all families utilized food assistance. Furthermore, material hardship prevalence (46.4%) exceeded income poverty (29.8%), among families with autistic adolescents. A substantial proportion of middle- to high-income families also experienced hardships, had no assets, and lacked connection to safety net programs, suggesting that income-based metrics may not fully capture the financial challenges families face. The findings highlight the need for policies that acknowledge the broader financial needs of families with autistic adolescents, underscoring the inadequacies of current support systems.Lay abstract Our study looks at how families with autistic teenagers manage financially compared with families with teenagers who do not have autism. We know that money matters are a big part of life?s overall quality and that autistic individuals and their families often face more financial challenges. These challenges can affect their health, social connections, and access to needed services. What our research adds is a closer look at these financial difficulties by considering not just how much money a family has but also what they own, their struggles to meet basic needs, and the help they get from both government programs and their own social circles. We found that families with autistic teenagers often deal with more financial problems, including not having enough food, even though they might be using available support programs. This is important because it shows us that the current ways of helping may not be enough. Our findings suggest we need to think more broadly about how to support these families. This could mean making policies that better address their unique needs or coming up with new ways to help them that go beyond just looking at income. Understanding these challenges better can help us make life better for autistic individuals and their families. En ligne : https://dx.doi.org/10.1177/13623613241304503 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis / Tim ZIERMANS ; Iris RAPOPORT ; Kim JONKMAN ; Hilde M GEURTS in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1431-1445 Titre : Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis Type de document : Texte imprimé et/ou numérique Auteurs : Tim ZIERMANS, Auteur ; Iris RAPOPORT, Auteur ; Kim JONKMAN, Auteur ; Hilde M GEURTS, Auteur Article en page(s) : p.1431-1445 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  interventions  pharmacologic  psychiatric comorbidity  psychosocial/behavioral Index. décimale : PER Périodiques Résumé : To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use of 445 autistic adults (18-87?years) across at least five consecutive measurements (2015-2021) was collected to identify clusters using sequence analysis and hierarchical clustering. Sensitivity analyses and cross-method validation (group-based multivariate trajectory modeling) were used to verify the obtained clusters. Four out of five obtained clusters had sufficient internal consistency and were replicated. These four clusters had distinct intervention trajectories (least intervention, mostly counseling, mostly medication, mixed use) and differed on several demographic variables. Most notably, the "mixed cluster" contained relatively more females and individuals with self-reported co-occurring psychiatric conditions. Many autistic adults used interventions, although they varied in type and duration of intervention use. This reflects the clinical complexity of tailoring intervention approaches and highlights that accessible and multidisciplinary care is essential to adequately support autistic adults. An important next step is to investigate whether available interventions sufficiently support autistic females and those with co-occurring psychiatric conditions.Lay abstract Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87?years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions. En ligne : https://dx.doi.org/10.1177/13623613241304513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Mental health care use of autistic adults: Identifying longitudinal patterns using sequence analysis [Texte imprimé et/ou numérique] / Tim ZIERMANS, Auteur ; Iris RAPOPORT, Auteur ; Kim JONKMAN, Auteur ; Hilde M GEURTS, Auteur . - p.1431-1445. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1431-1445 Mots-clés : autism spectrum disorders  health services  interventions  pharmacologic  psychiatric comorbidity  psychosocial/behavioral Index. décimale : PER Périodiques Résumé : To improve mental health care for autistic adults, a better understanding of their real-world intervention use is required. The aim of this study is to investigate individual differences in the intervention trajectories of autistic adults, by examining longitudinal patterns of therapy, counseling, and medication use. Self-reported intervention use of 445 autistic adults (18-87?years) across at least five consecutive measurements (2015-2021) was collected to identify clusters using sequence analysis and hierarchical clustering. Sensitivity analyses and cross-method validation (group-based multivariate trajectory modeling) were used to verify the obtained clusters. Four out of five obtained clusters had sufficient internal consistency and were replicated. These four clusters had distinct intervention trajectories (least intervention, mostly counseling, mostly medication, mixed use) and differed on several demographic variables. Most notably, the "mixed cluster" contained relatively more females and individuals with self-reported co-occurring psychiatric conditions. Many autistic adults used interventions, although they varied in type and duration of intervention use. This reflects the clinical complexity of tailoring intervention approaches and highlights that accessible and multidisciplinary care is essential to adequately support autistic adults. An important next step is to investigate whether available interventions sufficiently support autistic females and those with co-occurring psychiatric conditions.Lay abstract Many autistic adults experience co-occurring mental health problems, which have a negative effect on their well-being and result in increased use of mental health services. To improve mental healthcare for autistic adults, a better understanding is needed of what type of support they use in real life. Clinical guidelines recommend three kinds of mental health interventions: therapy, counseling, and medication. We investigated the use of these types of interventions in a sample of 445 autistic adults (aged 18-87?years) across a 5-to-7-year period. We found evidence for four different patterns of intervention use, or so-called subgroups: (1) least intervention use, (2) mostly counseling, (3) mostly medication, and (4) mixed intervention use. The group with mixed intervention use consisted of relatively more females and individuals with co-occurring psychiatric conditions, especially compared to the subgroup with the least intervention use. It appeared that many, but not all, autistic individuals used mental health services for an extended period. However, there was considerable variability in the type, combination, and duration of intervention use. This means that determining the optimal support for autistic adults is often a complex task, which requires collaboration of clinical experts and autistic individuals themselves, to make informed decisions. En ligne : https://dx.doi.org/10.1177/13623613241304513 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Design, methodology, and early findings of an autism registry program: ABBILAR project / Ayyoub MALEK ; Sanaz NOROUZI ; Shahrokh AMIRI ; Seyed Gholamreza NOORAZAR ; Seifollah HEIDARABADI ; Ali BAHARI GHAREHGOZ ; Saeed DASTGIRI ; Mahsa ZALI ; Kamal GHOLIPOUR ; Mohammad BARZEGAR ; Raha SHAHROKHI ; Sahand BROUMAND ; Shabnam IEZADI in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1446-1457 Titre : Design, methodology, and early findings of an autism registry program: ABBILAR project Type de document : Texte imprimé et/ou numérique Auteurs : Ayyoub MALEK, Auteur ; Sanaz NOROUZI, Auteur ; Shahrokh AMIRI, Auteur ; Seyed Gholamreza NOORAZAR, Auteur ; Seifollah HEIDARABADI, Auteur ; Ali BAHARI GHAREHGOZ, Auteur ; Saeed DASTGIRI, Auteur ; Mahsa ZALI, Auteur ; Kamal GHOLIPOUR, Auteur ; Mohammad BARZEGAR, Auteur ; Raha SHAHROKHI, Auteur ; Sahand BROUMAND, Auteur ; Shabnam IEZADI, Auteur Article en page(s) : p.1446-1457 Langues : Anglais (eng) Mots-clés : autism  diagnosis  Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders  Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders  registry  statistics Index. décimale : PER Périodiques Résumé : This study aims to outline the establishment of an autism registry program in the East Azerbaijan province of Iran, delineate its components, present the initial descriptive analysis results of the registered cases, and outline potential opportunities for further utilization of registry data. The children and adolescents of age??18?years, who met the Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders or Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders criteria for autism spectrum disorder, were eligible for inclusion in the autism spectrum disorder registry program. A total of 1120 cases were registered from January 2015 to December 2023. The majority of the participants were male (81.60%), diagnosed with autism spectrum disorder between the ages of 3 and 7?years (41.90%), born through cesarean delivery (73.56%), and received their primary diagnosis from a psychiatrist (85.49%). According to the Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders criteria, approximately 83% of the cases were diagnosed with autistic disorder, 3% with Asperger?s disorder, and 13% with pervasive developmental disorder not otherwise specified. The autism spectrum disorder registry has the potential to contribute significantly to the development of effective policies for diagnosis and treatment services. By linking children?s clinical and treatment data, it can help shape healthcare policies and services on a broader scale.Lay abstract The autism spectrum disorder (ASD) registry program presents a unique opportunity to facilitate advanced research in various aspects of ASD, particularly in low-resource countries like Iran. Given the international significance of autism research, registry programs play a critical role in data sharing. ASD registry programs have been effectively established in high-income countries over a few decades; however, there are limited examples from low- and middle-income countries. This study presents a firsthand description of the design and primary findings of a 9-year established ASD registry program from the northwest of Iran. It elucidates the program?s feasibility for other low-income settings, providing valuable insights for researchers and policymakers. En ligne : https://dx.doi.org/10.1177/13623613241305723 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Design, methodology, and early findings of an autism registry program: ABBILAR project [Texte imprimé et/ou numérique] / Ayyoub MALEK, Auteur ; Sanaz NOROUZI, Auteur ; Shahrokh AMIRI, Auteur ; Seyed Gholamreza NOORAZAR, Auteur ; Seifollah HEIDARABADI, Auteur ; Ali BAHARI GHAREHGOZ, Auteur ; Saeed DASTGIRI, Auteur ; Mahsa ZALI, Auteur ; Kamal GHOLIPOUR, Auteur ; Mohammad BARZEGAR, Auteur ; Raha SHAHROKHI, Auteur ; Sahand BROUMAND, Auteur ; Shabnam IEZADI, Auteur . - p.1446-1457. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1446-1457 Mots-clés : autism  diagnosis  Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders  Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders  registry  statistics Index. décimale : PER Périodiques Résumé : This study aims to outline the establishment of an autism registry program in the East Azerbaijan province of Iran, delineate its components, present the initial descriptive analysis results of the registered cases, and outline potential opportunities for further utilization of registry data. The children and adolescents of age??18?years, who met the Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders or Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders criteria for autism spectrum disorder, were eligible for inclusion in the autism spectrum disorder registry program. A total of 1120 cases were registered from January 2015 to December 2023. The majority of the participants were male (81.60%), diagnosed with autism spectrum disorder between the ages of 3 and 7?years (41.90%), born through cesarean delivery (73.56%), and received their primary diagnosis from a psychiatrist (85.49%). According to the Fourth Edition of the Diagnostic and Statistical Manual of Mental Disorders criteria, approximately 83% of the cases were diagnosed with autistic disorder, 3% with Asperger?s disorder, and 13% with pervasive developmental disorder not otherwise specified. The autism spectrum disorder registry has the potential to contribute significantly to the development of effective policies for diagnosis and treatment services. By linking children?s clinical and treatment data, it can help shape healthcare policies and services on a broader scale.Lay abstract The autism spectrum disorder (ASD) registry program presents a unique opportunity to facilitate advanced research in various aspects of ASD, particularly in low-resource countries like Iran. Given the international significance of autism research, registry programs play a critical role in data sharing. ASD registry programs have been effectively established in high-income countries over a few decades; however, there are limited examples from low- and middle-income countries. This study presents a firsthand description of the design and primary findings of a 9-year established ASD registry program from the northwest of Iran. It elucidates the program?s feasibility for other low-income settings, providing valuable insights for researchers and policymakers. En ligne : https://dx.doi.org/10.1177/13623613241305723 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Identifying the unique determinants influencing rural families" engagement with an existing tele-assessment approach for autism identification: A qualitative study / Tori FOSTER ; Kemberlee BONNET ; Anna Kathleen SPITLER ; David SCHLUNDT ; Zachary WARREN in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1458-1468 Titre : Identifying the unique determinants influencing rural families" engagement with an existing tele-assessment approach for autism identification: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Tori FOSTER, Auteur ; Kemberlee BONNET, Auteur ; Anna Kathleen SPITLER, Auteur ; David SCHLUNDT, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.1458-1468 Langues : Anglais (eng) Mots-clés : autism  health disparities  rural  tele-assessment Index. décimale : PER Périodiques Résumé : Accurate identification of autism is a pressing challenge for rural, medically underserved communities. Tele-assessment could address some barriers to care by increasing access to expert diagnosticians, but questions remain regarding how best to implement these approaches. To gather community input regarding rural families" perceptions and use of tele-assessment for autism identification, we conducted four focus groups with caregivers of children with autism (n = 22) and community service providers (n = 10) living and working in rural areas in the Southeast region of the United States. An iterative inductive/deductive approach guided qualitative data analysis. Coding reflected four core attitudes central to community perceptions, including (1) questions surrounding the validity (scientific legitimacy) of tele-mediated autism assessment; (2) level of trust in the evaluation process in general (and tele-assessment specifically); (3) beliefs about the feasibility of tele-assessment; and (4) concerns related to privacy. These attitudes and beliefs are influenced by determinants at multiple levels and stages, highlighting the need to adapt the existing tele-assessment approach by embedding implementation strategies that support multiple actors at each stage. This work identifies important targets for ensuring equitable access to tele-assessment for rural families.Lay abstract It is often difficult for families in rural communities to access autism evaluations for their children when they have concerns. Tele-assessment could make it easier for them to see specialists who give autism diagnoses, but we still need to figure out the best way to carry out these approaches. To understand how rural families view tele-assessment, as well as barriers they may face, we held focus groups with caregivers of children with autism and local service providers in the Southeastern United States. We met with 22 caregivers and 10 providers. We analyzed the discussions and found four key attitudes: (1) questions about whether autism assessment can really be done online; (2) level of trust in the evaluation process, especially tele-assessment; (3) beliefs about whether tele-assessment is practical for families; and (4) worries about privacy. These attitudes and beliefs are shaped by various factors at different stages, indicating that we need to improve tele-assessment by better supporting everyone involved at different stages of the tele-assessment process. This research highlights important areas for improvement to provide fair access to tele-assessment for rural families (e.g. creating education materials, conducting barrier counseling). En ligne : https://dx.doi.org/10.1177/13623613241307078 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Identifying the unique determinants influencing rural families" engagement with an existing tele-assessment approach for autism identification: A qualitative study [Texte imprimé et/ou numérique] / Tori FOSTER, Auteur ; Kemberlee BONNET, Auteur ; Anna Kathleen SPITLER, Auteur ; David SCHLUNDT, Auteur ; Zachary WARREN, Auteur . - p.1458-1468. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1458-1468 Mots-clés : autism  health disparities  rural  tele-assessment Index. décimale : PER Périodiques Résumé : Accurate identification of autism is a pressing challenge for rural, medically underserved communities. Tele-assessment could address some barriers to care by increasing access to expert diagnosticians, but questions remain regarding how best to implement these approaches. To gather community input regarding rural families" perceptions and use of tele-assessment for autism identification, we conducted four focus groups with caregivers of children with autism (n = 22) and community service providers (n = 10) living and working in rural areas in the Southeast region of the United States. An iterative inductive/deductive approach guided qualitative data analysis. Coding reflected four core attitudes central to community perceptions, including (1) questions surrounding the validity (scientific legitimacy) of tele-mediated autism assessment; (2) level of trust in the evaluation process in general (and tele-assessment specifically); (3) beliefs about the feasibility of tele-assessment; and (4) concerns related to privacy. These attitudes and beliefs are influenced by determinants at multiple levels and stages, highlighting the need to adapt the existing tele-assessment approach by embedding implementation strategies that support multiple actors at each stage. This work identifies important targets for ensuring equitable access to tele-assessment for rural families.Lay abstract It is often difficult for families in rural communities to access autism evaluations for their children when they have concerns. Tele-assessment could make it easier for them to see specialists who give autism diagnoses, but we still need to figure out the best way to carry out these approaches. To understand how rural families view tele-assessment, as well as barriers they may face, we held focus groups with caregivers of children with autism and local service providers in the Southeastern United States. We met with 22 caregivers and 10 providers. We analyzed the discussions and found four key attitudes: (1) questions about whether autism assessment can really be done online; (2) level of trust in the evaluation process, especially tele-assessment; (3) beliefs about whether tele-assessment is practical for families; and (4) worries about privacy. These attitudes and beliefs are shaped by various factors at different stages, indicating that we need to improve tele-assessment by better supporting everyone involved at different stages of the tele-assessment process. This research highlights important areas for improvement to provide fair access to tele-assessment for rural families (e.g. creating education materials, conducting barrier counseling). En ligne : https://dx.doi.org/10.1177/13623613241307078 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

'Like it?s making my heart run": A strengths-based understanding of the play of autistic children / Sinéad MCNALLY in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1469-1482 Titre : 'Like it?s making my heart run": A strengths-based understanding of the play of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Sinéad MCNALLY, Auteur Article en page(s) : p.1469-1482 Langues : Anglais (eng) Mots-clés : Autism  autistic perspectives  neurodiversity  participatory research  play Index. décimale : PER Périodiques Résumé : Play is a central feature of childhood and a fundamental right of all children. Currently, our understanding of autistic play is based on a deficit perspective, most often framed in comparison to neurotypical 'norms" and assumptions where the views of the players themselves have been overlooked. In moving towards a strengths-based neuroaffirmative understanding of autistic play, this study consulted with 19 autistic children (aged 5 to 13?years) using a series of semi-structured interviews and a range of creative and participatory methods. Reflexive thematic analysis generated three themes where children conceptualised: (1) enjoyment and pleasure as central to the definition of play, (2) social connections as fundamental to play and (3) play as engagement with meaningful materials and activities. Children?s autonomy and agency in play was important to all themes. These findings challenge long-standing deficit-oriented assumptions that have persisted throughout the literature for decades and have implications for future programmes of research, theory and practice, in particular on the importance of providing and facilitating authentic play experiences for autistic children in education and care contexts.Lay abstract Autistic play is generally described from a deficit perspective where the players themselves have been overlooked. It is important to consult with autistic children themselves about their understanding of play. We asked autistic children about their views on play using many different creative ways that were chosen by the children themselves. We analysed findings using reflexive thematic analysis. Autistic children in this research described play as involving feelings and emotions of pleasure and joy, autonomy and agency, playing by themselves and with others and engagement with materials and activities as meaningful. It is very important that we ask the players themselves what they think about play rather than relying on deficit framed, non-autistic definitions of autistic play. In this article, we will discuss how these findings will help develop future research, theory and practice in respecting children?s right to authentic play experiences. En ligne : https://dx.doi.org/10.1177/13623613251315985 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] 'Like it?s making my heart run": A strengths-based understanding of the play of autistic children [Texte imprimé et/ou numérique] / Sinéad MCNALLY, Auteur . - p.1469-1482. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1469-1482 Mots-clés : Autism  autistic perspectives  neurodiversity  participatory research  play Index. décimale : PER Périodiques Résumé : Play is a central feature of childhood and a fundamental right of all children. Currently, our understanding of autistic play is based on a deficit perspective, most often framed in comparison to neurotypical 'norms" and assumptions where the views of the players themselves have been overlooked. In moving towards a strengths-based neuroaffirmative understanding of autistic play, this study consulted with 19 autistic children (aged 5 to 13?years) using a series of semi-structured interviews and a range of creative and participatory methods. Reflexive thematic analysis generated three themes where children conceptualised: (1) enjoyment and pleasure as central to the definition of play, (2) social connections as fundamental to play and (3) play as engagement with meaningful materials and activities. Children?s autonomy and agency in play was important to all themes. These findings challenge long-standing deficit-oriented assumptions that have persisted throughout the literature for decades and have implications for future programmes of research, theory and practice, in particular on the importance of providing and facilitating authentic play experiences for autistic children in education and care contexts.Lay abstract Autistic play is generally described from a deficit perspective where the players themselves have been overlooked. It is important to consult with autistic children themselves about their understanding of play. We asked autistic children about their views on play using many different creative ways that were chosen by the children themselves. We analysed findings using reflexive thematic analysis. Autistic children in this research described play as involving feelings and emotions of pleasure and joy, autonomy and agency, playing by themselves and with others and engagement with materials and activities as meaningful. It is very important that we ask the players themselves what they think about play rather than relying on deficit framed, non-autistic definitions of autistic play. In this article, we will discuss how these findings will help develop future research, theory and practice in respecting children?s right to authentic play experiences. En ligne : https://dx.doi.org/10.1177/13623613251315985 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

I was hanging in the air and holding on tight. It?s exhausting: An autistic perspective on their journey through the general school system / Mati ZAKAI-MASHIACH in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1483-1496 Titre : I was hanging in the air and holding on tight. It?s exhausting: An autistic perspective on their journey through the general school system Type de document : Texte imprimé et/ou numérique Auteurs : Mati ZAKAI-MASHIACH, Auteur Article en page(s) : p.1483-1496 Langues : Anglais (eng) Mots-clés : autistic individual  general schools  retrospective study Index. décimale : PER Périodiques Résumé : Enrollment of autistic children in general schools has increased significantly in the past decade. However, having access to school does not mean being included in school. Autistic individuals" perspectives regarding their general school experience are limited, with most research focusing on the middle-school stage. This study examines the retrospective experiences of 10 autistic individuals, aged 19-25?years, who attended general schools from elementary through high school. Using semi-structured interviews and the pictorial 'Blob Tree" technique as a visual method to elicit self-narratives, the research revealed recurring themes associated with each educational level. Elementary school was marked by feelings of difference and ambiguity. Middle school was characterised by the impact of the autism diagnosis and emotions of instability. It was found, however, that high school represented a turning point, marked by increased self-assurance, acceptance of their autism and a sense of fulfilment. These findings underscore the importance of offering autistic individuals opportunities to share their narratives and to provide insights into their longitudinal experience in general schools. This emphasises the developmental journey of these students, highlighting the challenges they face at each stage and the growing need for increased inclusivity in general schools to better support autistic students.Lay abstract In the past decade, autistic children have increasingly enrolled in general schools worldwide. However, most insights into their educational experiences come from educators and parents. There is a gap in understanding autistic children?s perspectives on their educational experiences. The limited evidence from autistic children primarily focuses on middle school and reveals complex feelings of loneliness, anxiety and being misunderstood by teachers and peers. Moreover, research to date has not examined the full-time period of general education, which is needed to understand the cumulative developmental trajectory from elementary through high school. To address these gaps, this study investigated the lived experiences of 10 autistic individuals (ages 19-25?years) who had completed their entire school journey in general education settings. This study utilised in-depth interviews and a visual technique called the 'Blob Tree" to elicit their stories. The findings indicated that during primary school, participants felt overwhelmed and confused by the school environment. The transition to middle school, where they received an autism diagnosis, marked a period of significant instability, social insecurity and loneliness. Interestingly, the participants gained confidence during high school, accepted their autism and developed a more positive self-image. These findings emphasise the importance of learning the longitudinal self-perspective of autistic individuals through creative methods like the 'Blob Tree" technique. Furthermore, the study highlights the crucial role of effective support services during school transitions, particularly from experts in inclusive education. It underscores the need to create environments within general schools that are more inclusive to support autistic students better. En ligne : https://dx.doi.org/10.1177/13623613241310295 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] I was hanging in the air and holding on tight. It?s exhausting: An autistic perspective on their journey through the general school system [Texte imprimé et/ou numérique] / Mati ZAKAI-MASHIACH, Auteur . - p.1483-1496. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1483-1496 Mots-clés : autistic individual  general schools  retrospective study Index. décimale : PER Périodiques Résumé : Enrollment of autistic children in general schools has increased significantly in the past decade. However, having access to school does not mean being included in school. Autistic individuals" perspectives regarding their general school experience are limited, with most research focusing on the middle-school stage. This study examines the retrospective experiences of 10 autistic individuals, aged 19-25?years, who attended general schools from elementary through high school. Using semi-structured interviews and the pictorial 'Blob Tree" technique as a visual method to elicit self-narratives, the research revealed recurring themes associated with each educational level. Elementary school was marked by feelings of difference and ambiguity. Middle school was characterised by the impact of the autism diagnosis and emotions of instability. It was found, however, that high school represented a turning point, marked by increased self-assurance, acceptance of their autism and a sense of fulfilment. These findings underscore the importance of offering autistic individuals opportunities to share their narratives and to provide insights into their longitudinal experience in general schools. This emphasises the developmental journey of these students, highlighting the challenges they face at each stage and the growing need for increased inclusivity in general schools to better support autistic students.Lay abstract In the past decade, autistic children have increasingly enrolled in general schools worldwide. However, most insights into their educational experiences come from educators and parents. There is a gap in understanding autistic children?s perspectives on their educational experiences. The limited evidence from autistic children primarily focuses on middle school and reveals complex feelings of loneliness, anxiety and being misunderstood by teachers and peers. Moreover, research to date has not examined the full-time period of general education, which is needed to understand the cumulative developmental trajectory from elementary through high school. To address these gaps, this study investigated the lived experiences of 10 autistic individuals (ages 19-25?years) who had completed their entire school journey in general education settings. This study utilised in-depth interviews and a visual technique called the 'Blob Tree" to elicit their stories. The findings indicated that during primary school, participants felt overwhelmed and confused by the school environment. The transition to middle school, where they received an autism diagnosis, marked a period of significant instability, social insecurity and loneliness. Interestingly, the participants gained confidence during high school, accepted their autism and developed a more positive self-image. These findings emphasise the importance of learning the longitudinal self-perspective of autistic individuals through creative methods like the 'Blob Tree" technique. Furthermore, the study highlights the crucial role of effective support services during school transitions, particularly from experts in inclusive education. It underscores the need to create environments within general schools that are more inclusive to support autistic students better. En ligne : https://dx.doi.org/10.1177/13623613241310295 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Food selectivity and eating difficulties in adults with autism and/or ADHD / Ashley HALKETT ; Meghan MILLER ; Stephen P. HINSHAW in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1497-1509 Titre : Food selectivity and eating difficulties in adults with autism and/or ADHD Type de document : Texte imprimé et/ou numérique Auteurs : Ashley HALKETT, Auteur ; Meghan MILLER, Auteur ; Stephen P. HINSHAW, Auteur Article en page(s) : p.1497-1509 Langues : Anglais (eng) Mots-clés : ADHD  adults  autism  eating  feeding  insistence on sameness  sensory sensitivity Index. décimale : PER Périodiques Résumé : Children with autism or attention-deficit/hyperactivity disorder (ADHD) are more likely than neurotypical children to experience eating difficulties, such as picky/selective eating, slow eating, and over/under-eating. Recent studies show that eating difficulties can persist into adulthood for autistic individuals. Yet little is known about the mechanisms involved and whether adults with ADHD also experience such challenges. We (1) compare eating difficulties among adults with autism, ADHD, autism/ADHD, and neither condition and (2) identify predictors of overall eating pathology and of food selectivity. The sample was 50% female and 78% White, consisting of 961 adults aged 19-57 who self-reported their diagnostic status: 184 with autism, 416 with ADHD, 292 with autism/ADHD, and 69 comparisons. Eating difficulties were assessed via self-report survey using the Swedish Eating Assessment for Autism (SWEAA) and Food Preferences Questionnaire. Autistic adults, with or without ADHD, reported significantly more eating difficulties than all other groups. Total eating difficulties were associated with increased insistence on sameness, other autistic features, food selectivity, and hyperactivity-impulsivity. Food selectivity was predicted by increased insistence on sameness, sensory sensitivity, and other core features of autism, and lower hyperactivity-impulsivity. The high degree of eating difficulties in autistic adults warrants clinical attention on this topic.Lay Abstract Some people do not like many foods, eat very quickly or slowly, or eat too much or too little. These problems are more common in children with autism or ADHD and may continue for a long time, but we do not know much about these problems in adults. Our goal was to understand how eating difficulties are similar and different in adults with autism, ADHD, both autism/ADHD, and neither condition. We also wanted to understand factors that relate to picky eating and overall eating difficulties. We found that autistic adults had the most problems with eating compared to all other groups. Adults with ADHD had more eating problems than adults with neither condition. Adults with autism and/or ADHD were more sensitive to taste and texture of foods, had difficulty with spilling food, and found it hard to tell whether they are hungry or full compared to people without these conditions. We also found that autism and ADHD traits were linked to picky eating and having more eating problems. The results show that many autistic adults and some with ADHD might need support with eating. Doctors should pay attention to eating problems to help people get the care they need. Results also show that wanting things to stay the same may be more related to eating problems than researchers previously thought. We need more research to understand how to support adults with eating difficulties. En ligne : https://dx.doi.org/10.1177/13623613251314223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Food selectivity and eating difficulties in adults with autism and/or ADHD [Texte imprimé et/ou numérique] / Ashley HALKETT, Auteur ; Meghan MILLER, Auteur ; Stephen P. HINSHAW, Auteur . - p.1497-1509. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1497-1509 Mots-clés : ADHD  adults  autism  eating  feeding  insistence on sameness  sensory sensitivity Index. décimale : PER Périodiques Résumé : Children with autism or attention-deficit/hyperactivity disorder (ADHD) are more likely than neurotypical children to experience eating difficulties, such as picky/selective eating, slow eating, and over/under-eating. Recent studies show that eating difficulties can persist into adulthood for autistic individuals. Yet little is known about the mechanisms involved and whether adults with ADHD also experience such challenges. We (1) compare eating difficulties among adults with autism, ADHD, autism/ADHD, and neither condition and (2) identify predictors of overall eating pathology and of food selectivity. The sample was 50% female and 78% White, consisting of 961 adults aged 19-57 who self-reported their diagnostic status: 184 with autism, 416 with ADHD, 292 with autism/ADHD, and 69 comparisons. Eating difficulties were assessed via self-report survey using the Swedish Eating Assessment for Autism (SWEAA) and Food Preferences Questionnaire. Autistic adults, with or without ADHD, reported significantly more eating difficulties than all other groups. Total eating difficulties were associated with increased insistence on sameness, other autistic features, food selectivity, and hyperactivity-impulsivity. Food selectivity was predicted by increased insistence on sameness, sensory sensitivity, and other core features of autism, and lower hyperactivity-impulsivity. The high degree of eating difficulties in autistic adults warrants clinical attention on this topic.Lay Abstract Some people do not like many foods, eat very quickly or slowly, or eat too much or too little. These problems are more common in children with autism or ADHD and may continue for a long time, but we do not know much about these problems in adults. Our goal was to understand how eating difficulties are similar and different in adults with autism, ADHD, both autism/ADHD, and neither condition. We also wanted to understand factors that relate to picky eating and overall eating difficulties. We found that autistic adults had the most problems with eating compared to all other groups. Adults with ADHD had more eating problems than adults with neither condition. Adults with autism and/or ADHD were more sensitive to taste and texture of foods, had difficulty with spilling food, and found it hard to tell whether they are hungry or full compared to people without these conditions. We also found that autism and ADHD traits were linked to picky eating and having more eating problems. The results show that many autistic adults and some with ADHD might need support with eating. Doctors should pay attention to eating problems to help people get the care they need. Results also show that wanting things to stay the same may be more related to eating problems than researchers previously thought. We need more research to understand how to support adults with eating difficulties. En ligne : https://dx.doi.org/10.1177/13623613251314223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Atypical development of sequential manual motor planning and visuomotor integration in children with autism at early school-age: A longitudinal kinematic study / Anna-Maria Johansson ; Thomas Rudolfsson ; Louise RONNQVIST ; Claes VON HOFSTEN ; Kerstin ROSANDER ; Erik DOMELLÖF in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1510-1523 Titre : Atypical development of sequential manual motor planning and visuomotor integration in children with autism at early school-age: A longitudinal kinematic study Type de document : Texte imprimé et/ou numérique Auteurs : Anna-Maria Johansson, Auteur ; Thomas Rudolfsson, Auteur ; Louise RONNQVIST, Auteur ; Claes VON HOFSTEN, Auteur ; Kerstin ROSANDER, Auteur ; Erik DOMELLÖF, Auteur Article en page(s) : p.1510-1523 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  development  kinematics  longitudinal  motor planning  school-age children  visuomotor integration Index. décimale : PER Périodiques Résumé : Sensorimotor difficulties are common in children with autism spectrum disorder, and it has been suggested that motor planning problems underlie their atypical movements. At early school-age, motor planning development typically involves changes in visuomotor integration, a function known to be affected in autism spectrum disorder. However, there is a lack of detailed characterization of typical motor planning development during this stage, and how motor planning develops in children with autism spectrum disorder is largely unknown. This longitudinal kinematic study examined goal-directed sequential manual movements in children with autism spectrum disorder and in typically developing children across ages 7, 8, and 9?years. We manipulated goal-difficulty and availability of initial visual information to investigate visuomotor integration and chaining of subparts during movement performance. The results revealed emerging group differences at older age, suggesting atypical motor planning development in children with autism spectrum disorder. Notably, unlike the typically developing group, availability of initial visual information did not facilitate motor planning for the autism spectrum disorder group. The results show that motor planning differences in autism spectrum disorder appear related to atypical visuomotor integration and global processing of sensorimotor information. The findings also emphasize the importance of considering developmental aspects in research and practice related to motor problems in children with autism spectrum disorder.Lay abstract Many children with autism struggle with movement difficulties, yet the causes of these difficulties remain unclear. One possible explanation is atypical motor planning and integration of visual and motoric information. Before performing a goal-directed movement, the brain creates a prediction of the movement based on visual and sensory information and previous experience, forming a "blueprint" of the motor steps needed to achieve the goal. This process is called motor planning. During movement, adjustments to the plan can be made through feedback mechanisms. This longitudinal study aimed to examine the development of motor planning in children with autism and typically developing children over early school-age (7-9?years). The children performed a sequential manual peg-rotation task, which involved grasping, rotating, and placing a peg, while detailed measures of movement were collected. Task end-goal difficulty varied, and the goal was either initially occluded or fully visible. The results revealed that children with autism showed atypical motor planning development compared with typically developing peers, and these differences became more pronounced as the children grew older. As the typically developing children matured, they appeared to rely more on initial visual information, which assisted them in motor planning. However, this facilitation did not occur for children with autism. These findings suggest that the differences in motor planning seen in children with autism may be linked to atypical visuomotor integration, highlighting the need for individualized interventions. Furthermore, it is crucial to consider developmental aspects to fully understand motor planning in children with autism. En ligne : https://dx.doi.org/10.1177/13623613241311333 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Atypical development of sequential manual motor planning and visuomotor integration in children with autism at early school-age: A longitudinal kinematic study [Texte imprimé et/ou numérique] / Anna-Maria Johansson, Auteur ; Thomas Rudolfsson, Auteur ; Louise RONNQVIST, Auteur ; Claes VON HOFSTEN, Auteur ; Kerstin ROSANDER, Auteur ; Erik DOMELLÖF, Auteur . - p.1510-1523. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1510-1523 Mots-clés : autism spectrum disorders  development  kinematics  longitudinal  motor planning  school-age children  visuomotor integration Index. décimale : PER Périodiques Résumé : Sensorimotor difficulties are common in children with autism spectrum disorder, and it has been suggested that motor planning problems underlie their atypical movements. At early school-age, motor planning development typically involves changes in visuomotor integration, a function known to be affected in autism spectrum disorder. However, there is a lack of detailed characterization of typical motor planning development during this stage, and how motor planning develops in children with autism spectrum disorder is largely unknown. This longitudinal kinematic study examined goal-directed sequential manual movements in children with autism spectrum disorder and in typically developing children across ages 7, 8, and 9?years. We manipulated goal-difficulty and availability of initial visual information to investigate visuomotor integration and chaining of subparts during movement performance. The results revealed emerging group differences at older age, suggesting atypical motor planning development in children with autism spectrum disorder. Notably, unlike the typically developing group, availability of initial visual information did not facilitate motor planning for the autism spectrum disorder group. The results show that motor planning differences in autism spectrum disorder appear related to atypical visuomotor integration and global processing of sensorimotor information. The findings also emphasize the importance of considering developmental aspects in research and practice related to motor problems in children with autism spectrum disorder.Lay abstract Many children with autism struggle with movement difficulties, yet the causes of these difficulties remain unclear. One possible explanation is atypical motor planning and integration of visual and motoric information. Before performing a goal-directed movement, the brain creates a prediction of the movement based on visual and sensory information and previous experience, forming a "blueprint" of the motor steps needed to achieve the goal. This process is called motor planning. During movement, adjustments to the plan can be made through feedback mechanisms. This longitudinal study aimed to examine the development of motor planning in children with autism and typically developing children over early school-age (7-9?years). The children performed a sequential manual peg-rotation task, which involved grasping, rotating, and placing a peg, while detailed measures of movement were collected. Task end-goal difficulty varied, and the goal was either initially occluded or fully visible. The results revealed that children with autism showed atypical motor planning development compared with typically developing peers, and these differences became more pronounced as the children grew older. As the typically developing children matured, they appeared to rely more on initial visual information, which assisted them in motor planning. However, this facilitation did not occur for children with autism. These findings suggest that the differences in motor planning seen in children with autism may be linked to atypical visuomotor integration, highlighting the need for individualized interventions. Furthermore, it is crucial to consider developmental aspects to fully understand motor planning in children with autism. En ligne : https://dx.doi.org/10.1177/13623613241311333 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Effects of an acceptance and commitment-based parenting program for parents of children with autism spectrum disorder on parenting stress and other parent and children health outcomes: A pilot randomized controlled trial / Chien WAI TONG ; Lam KAM KI STANLEY in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1524-1539 Titre : Effects of an acceptance and commitment-based parenting program for parents of children with autism spectrum disorder on parenting stress and other parent and children health outcomes: A pilot randomized controlled trial Type de document : Texte imprimé et/ou numérique Auteurs : Chien WAI TONG, Auteur ; Lam KAM KI STANLEY, Auteur Article en page(s) : p.1524-1539 Langues : Anglais (eng) Mots-clés : acceptance and commitment therapy  autism spectrum disorder  emotional and behavioral problems  mental health  parental stress Index. décimale : PER Périodiques Résumé : This study aimed to investigate the feasibility, acceptability, and preliminary effects of an acceptance and commitment therapy (ACT)-based parenting program for parents of autistic children. A pilot randomized controlled trial (RCT) was conducted, with 40 parents randomly assigned to either the eight-session ACT-based parenting program or usual care. Feasibility was assessed by the rates of recruitment, attritions, and adherence to the intervention. Acceptability was evaluated through participant satisfaction surveys and semi-structured group interviews. Intervention feasibility was established with very satisfactory recruitment, attrition, and intervention completion rates. Both participant satisfaction survey and qualitative interviews suggested that the intervention was acceptable and beneficial for parents of autistic children. Compared to the usual-care-only group, participants in the ACT-based parenting program showed significant improvements in parental stress, depressive symptoms, anxiety symptoms, psychological flexibility, self-efficacy, and reductions in emotional and behavioral problems in their children at the immediate post-intervention assessment. These findings support the feasibility, acceptability, and preliminary effectiveness of the ACT-based parenting program for parents of autistic children. Future larger-scale RCTs can be conducted with longer-term follow-ups and more comprehensive assessment of its effectiveness for family caregivers of diverse groups of autistic children and/or other neurodevelopmental conditions.Lay abstract This study aimed to examine whether an acceptance and commitment therapy (ACT)-based parenting program, incorporating topics of emotional and stress management, parenting skills training, autism-related education, and self-care learning, could be successfully implemented, well-received, and beneficial for parents of children with autism. We randomly assigned 40 parents to either participate in the eight-session ACT-based parenting program or receive usual care only. The program was found to be feasible, with many parents willing to participate and complete the sessions. The parents also reported high satisfaction with the program and found it beneficial, according to satisfaction surveys and interviews. The results showed that parents who participated in the ACT-based parenting program had significant improvements in several outcomes compared to parents in usual-care-only group, including reduced parenting stress, decreased depressive and anxiety symptoms, and increased confident in their parenting abilities. Their autistic children showed fewer emotional and behavioral problems after the intervention. Based on these findings, we conclude that the ACT-based parenting program is feasible and acceptable and has promising effects for parents of autistic children. In the future, larger studies should be conducted to further explore its effectiveness for different groups of parents caring for children with autism or other neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613241311323 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Effects of an acceptance and commitment-based parenting program for parents of children with autism spectrum disorder on parenting stress and other parent and children health outcomes: A pilot randomized controlled trial [Texte imprimé et/ou numérique] / Chien WAI TONG, Auteur ; Lam KAM KI STANLEY, Auteur . - p.1524-1539. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1524-1539 Mots-clés : acceptance and commitment therapy  autism spectrum disorder  emotional and behavioral problems  mental health  parental stress Index. décimale : PER Périodiques Résumé : This study aimed to investigate the feasibility, acceptability, and preliminary effects of an acceptance and commitment therapy (ACT)-based parenting program for parents of autistic children. A pilot randomized controlled trial (RCT) was conducted, with 40 parents randomly assigned to either the eight-session ACT-based parenting program or usual care. Feasibility was assessed by the rates of recruitment, attritions, and adherence to the intervention. Acceptability was evaluated through participant satisfaction surveys and semi-structured group interviews. Intervention feasibility was established with very satisfactory recruitment, attrition, and intervention completion rates. Both participant satisfaction survey and qualitative interviews suggested that the intervention was acceptable and beneficial for parents of autistic children. Compared to the usual-care-only group, participants in the ACT-based parenting program showed significant improvements in parental stress, depressive symptoms, anxiety symptoms, psychological flexibility, self-efficacy, and reductions in emotional and behavioral problems in their children at the immediate post-intervention assessment. These findings support the feasibility, acceptability, and preliminary effectiveness of the ACT-based parenting program for parents of autistic children. Future larger-scale RCTs can be conducted with longer-term follow-ups and more comprehensive assessment of its effectiveness for family caregivers of diverse groups of autistic children and/or other neurodevelopmental conditions.Lay abstract This study aimed to examine whether an acceptance and commitment therapy (ACT)-based parenting program, incorporating topics of emotional and stress management, parenting skills training, autism-related education, and self-care learning, could be successfully implemented, well-received, and beneficial for parents of children with autism. We randomly assigned 40 parents to either participate in the eight-session ACT-based parenting program or receive usual care only. The program was found to be feasible, with many parents willing to participate and complete the sessions. The parents also reported high satisfaction with the program and found it beneficial, according to satisfaction surveys and interviews. The results showed that parents who participated in the ACT-based parenting program had significant improvements in several outcomes compared to parents in usual-care-only group, including reduced parenting stress, decreased depressive and anxiety symptoms, and increased confident in their parenting abilities. Their autistic children showed fewer emotional and behavioral problems after the intervention. Based on these findings, we conclude that the ACT-based parenting program is feasible and acceptable and has promising effects for parents of autistic children. In the future, larger studies should be conducted to further explore its effectiveness for different groups of parents caring for children with autism or other neurodevelopmental conditions. En ligne : https://dx.doi.org/10.1177/13623613241311323 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

How can we make therapy better for autistic adults? Autistic adults" ratings of helpfulness of adaptations to therapy / Kristyn SOMMER ; Amanda COOK in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1540-1553 Titre : How can we make therapy better for autistic adults? Autistic adults" ratings of helpfulness of adaptations to therapy Type de document : Texte imprimé et/ou numérique Auteurs : Kristyn SOMMER, Auteur ; Amanda COOK, Auteur Article en page(s) : p.1540-1553 Langues : Anglais (eng) Mots-clés : accommodations  adaptations  autism  mental health  therapy Index. décimale : PER Périodiques Résumé : Autistic people are at elevated risk of mental health conditions and experience significant barriers to effective support. While adaptations to therapy for autistic people have been proposed by clinicians, there is limited research on how helpful autistic people themselves rate these. We aimed to address this gap. Participants were 130 autistic adults aged 18 to 64?years (85.4% female) who completed an online survey of the helpfulness of 55 therapy adaptations. Overall, we found positive ratings of helpfulness for approximately half of the adaptations. However, significant variability was found at an individual level with most adaptations rated from not helpful through to extremely helpful. Neurodiversity-affirming adaptations were rated highest overall. Participants shared additional adaptations including general good practice, financial, modality, neurodiversity-affirming practices, practical, sensory/environmental, structure, and therapy style/techniques. Findings highlight similarities and differences between clinician and autistic people?s perspectives, underscoring the need to include autistic people. Limitations of the restricted sample and generalizability are acknowledged. Future research including more diverse samples would be of value to expand on this research. The need to understand general preferences of autistic people and to individualize to the specific client is underscored by findings to begin bridging the mental health support gap for autistic people.Lay Abstract Autistic people experience more mental health conditions like depression or anxiety than non-autistic people. They are also more likely to experience difficulties in accessing mental health supports Clinicians have published suggestions on how to improve therapy for autistic people. However, whether these ways to adapt (i.e. adaptations) therapy for autistic people are seen as helpful by autistic people themselves has not been investigated. We recruited 130 autistic adults to complete an online survey. They rated 55 adaptations to therapy from "Not at all helpful" to "Extremely helpful." We also asked for ideas of additional adaptations. Adaptations classified as neurodiversity affirming (e.g. having a therapist that embraces differences in brains and provides support to affirm neurodivergent identity) were rated highest. Approximately half of adaptations were rated positively at a group level. However, for almost every adaptation at least one person rated it as not at all helpful and at least one rated it as extremely helpful. Additional adaptations were around general good practice, financial cost, neurodiversity-affirming practices, practical, sensory/environmental, structure, and therapy style/techniques. Our findings add how helpful autistic people themselves rate adaptations to therapy and similarities and differences to clinicians. This is important to consider how these perspectives can differ. Findings also identify additional suggestions that clinicians could use in their practice and ideas for future research. Findings can help autistic adults in advocating for adaptations to therapy that address their needs by providing a list of possible adaptations. Furthermore, findings may help clinicians to better support their autistic clients. En ligne : https://dx.doi.org/10.1177/13623613251313569 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] How can we make therapy better for autistic adults? Autistic adults" ratings of helpfulness of adaptations to therapy [Texte imprimé et/ou numérique] / Kristyn SOMMER, Auteur ; Amanda COOK, Auteur . - p.1540-1553. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1540-1553 Mots-clés : accommodations  adaptations  autism  mental health  therapy Index. décimale : PER Périodiques Résumé : Autistic people are at elevated risk of mental health conditions and experience significant barriers to effective support. While adaptations to therapy for autistic people have been proposed by clinicians, there is limited research on how helpful autistic people themselves rate these. We aimed to address this gap. Participants were 130 autistic adults aged 18 to 64?years (85.4% female) who completed an online survey of the helpfulness of 55 therapy adaptations. Overall, we found positive ratings of helpfulness for approximately half of the adaptations. However, significant variability was found at an individual level with most adaptations rated from not helpful through to extremely helpful. Neurodiversity-affirming adaptations were rated highest overall. Participants shared additional adaptations including general good practice, financial, modality, neurodiversity-affirming practices, practical, sensory/environmental, structure, and therapy style/techniques. Findings highlight similarities and differences between clinician and autistic people?s perspectives, underscoring the need to include autistic people. Limitations of the restricted sample and generalizability are acknowledged. Future research including more diverse samples would be of value to expand on this research. The need to understand general preferences of autistic people and to individualize to the specific client is underscored by findings to begin bridging the mental health support gap for autistic people.Lay Abstract Autistic people experience more mental health conditions like depression or anxiety than non-autistic people. They are also more likely to experience difficulties in accessing mental health supports Clinicians have published suggestions on how to improve therapy for autistic people. However, whether these ways to adapt (i.e. adaptations) therapy for autistic people are seen as helpful by autistic people themselves has not been investigated. We recruited 130 autistic adults to complete an online survey. They rated 55 adaptations to therapy from "Not at all helpful" to "Extremely helpful." We also asked for ideas of additional adaptations. Adaptations classified as neurodiversity affirming (e.g. having a therapist that embraces differences in brains and provides support to affirm neurodivergent identity) were rated highest. Approximately half of adaptations were rated positively at a group level. However, for almost every adaptation at least one person rated it as not at all helpful and at least one rated it as extremely helpful. Additional adaptations were around general good practice, financial cost, neurodiversity-affirming practices, practical, sensory/environmental, structure, and therapy style/techniques. Our findings add how helpful autistic people themselves rate adaptations to therapy and similarities and differences to clinicians. This is important to consider how these perspectives can differ. Findings also identify additional suggestions that clinicians could use in their practice and ideas for future research. Findings can help autistic adults in advocating for adaptations to therapy that address their needs by providing a list of possible adaptations. Furthermore, findings may help clinicians to better support their autistic clients. En ligne : https://dx.doi.org/10.1177/13623613251313569 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Psychosocial factors associated with the trajectories of interparental conflict for Australian fathers of autistic children: A longitudinal study across 10 years of child development / Grace MCMAHON ; Ali FOGARTY ; Bridget O?CONNOR ; Mark FEINBERG ; Rob HOCK ; Rebecca GIALLO in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1554-1568 Titre : Psychosocial factors associated with the trajectories of interparental conflict for Australian fathers of autistic children: A longitudinal study across 10 years of child development Type de document : Texte imprimé et/ou numérique Auteurs : Grace MCMAHON, Auteur ; Ali FOGARTY, Auteur ; Bridget O?CONNOR, Auteur ; Mark FEINBERG, Auteur ; Rob HOCK, Auteur ; Rebecca GIALLO, Auteur Article en page(s) : p.1554-1568 Langues : Anglais (eng) Mots-clés : autism  fathers  interparental conflict  psychosocial factors  trajectory Index. décimale : PER Périodiques Résumé : Limited research exists on fathers" experiences of interparental conflict (IPC) in families with autistic children. We aimed to identify: (1) the extent to which these fathers report IPC across 10?years of child development (4-14?years) and how this compares to fathers of non-autistic children; (2) distinct trajectories of IPC for fathers of autistic children and (3) factors associated with trajectories of IPC among fathers of autistic children. This is a retrospective study using a national dataset. Participants were 281 fathers of autistic children and 7046 fathers of non-autistic children. Although small effect sizes, fathers of autistic children, on average, reported significantly higher IPC when their child was 4-5, 6-7, 8-9 and 10-12?years of age, compared to fathers of non-autistic children. For fathers of autistic children, longitudinal latent class analysis revealed three profiles reflecting 'low and stable", 'moderate and stable" and 'persistently elevated" levels of IPC over time. Regression analysis revealed a range of predictors (e.g. co-parenting support, father age) for fathers of autistic children experiencing 'moderate and stable" and 'persistently elevated" IPC as compared to fathers who experienced low levels of IPC. There is a significant portion of fathers of autistic children who experience ongoing and heightened IPC, highlighting the need for targeted support.Lay Abstract Not much is known about how fathers experience conflict with their partners (either verbal or physical) while raising an autistic child. This study focused on understanding these experiences over 10?years, following children from the age of 4 to 14?years. The study had two main goals: (1) to track how fathers experience conflict with their partners over this time and identify different patterns to these experiences; and (2) to find psychosocial factors in early childhood that might impact these patterns. The study included 281 fathers of autistic children and 7046 fathers of non-autistic children who took part in 'Growing Up in Australia: Longitudinal Study of Australian Children". Using a statistical method to group fathers based on the partner conflict they reported over the 10?years, results showed that there were three groups: (1) 'low and stable", (2) 'moderate and stable" and (3) 'persistently elevated" experiences of partner conflict. Additional analysis showed that fathers" confidence in their parenting, perceived support from their partners and concerns about their child?s language skills were associated with ongoing moderate levels of partner conflict. On the other hand, fathers who were older, had lower perceived support from their partners, partners experiencing psychological distress and higher parent-reported child social functioning were more likely to experience consistently high levels of conflict over time. In our study, we described different levels of conflict with their partners reported by fathers of autistic children. We also identified some of the factors that were associated with different levels of conflict. These might be used to inform interventions to reduce parental conflict in the future. En ligne : https://dx.doi.org/10.1177/13623613251316014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Psychosocial factors associated with the trajectories of interparental conflict for Australian fathers of autistic children: A longitudinal study across 10 years of child development [Texte imprimé et/ou numérique] / Grace MCMAHON, Auteur ; Ali FOGARTY, Auteur ; Bridget O?CONNOR, Auteur ; Mark FEINBERG, Auteur ; Rob HOCK, Auteur ; Rebecca GIALLO, Auteur . - p.1554-1568. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1554-1568 Mots-clés : autism  fathers  interparental conflict  psychosocial factors  trajectory Index. décimale : PER Périodiques Résumé : Limited research exists on fathers" experiences of interparental conflict (IPC) in families with autistic children. We aimed to identify: (1) the extent to which these fathers report IPC across 10?years of child development (4-14?years) and how this compares to fathers of non-autistic children; (2) distinct trajectories of IPC for fathers of autistic children and (3) factors associated with trajectories of IPC among fathers of autistic children. This is a retrospective study using a national dataset. Participants were 281 fathers of autistic children and 7046 fathers of non-autistic children. Although small effect sizes, fathers of autistic children, on average, reported significantly higher IPC when their child was 4-5, 6-7, 8-9 and 10-12?years of age, compared to fathers of non-autistic children. For fathers of autistic children, longitudinal latent class analysis revealed three profiles reflecting 'low and stable", 'moderate and stable" and 'persistently elevated" levels of IPC over time. Regression analysis revealed a range of predictors (e.g. co-parenting support, father age) for fathers of autistic children experiencing 'moderate and stable" and 'persistently elevated" IPC as compared to fathers who experienced low levels of IPC. There is a significant portion of fathers of autistic children who experience ongoing and heightened IPC, highlighting the need for targeted support.Lay Abstract Not much is known about how fathers experience conflict with their partners (either verbal or physical) while raising an autistic child. This study focused on understanding these experiences over 10?years, following children from the age of 4 to 14?years. The study had two main goals: (1) to track how fathers experience conflict with their partners over this time and identify different patterns to these experiences; and (2) to find psychosocial factors in early childhood that might impact these patterns. The study included 281 fathers of autistic children and 7046 fathers of non-autistic children who took part in 'Growing Up in Australia: Longitudinal Study of Australian Children". Using a statistical method to group fathers based on the partner conflict they reported over the 10?years, results showed that there were three groups: (1) 'low and stable", (2) 'moderate and stable" and (3) 'persistently elevated" experiences of partner conflict. Additional analysis showed that fathers" confidence in their parenting, perceived support from their partners and concerns about their child?s language skills were associated with ongoing moderate levels of partner conflict. On the other hand, fathers who were older, had lower perceived support from their partners, partners experiencing psychological distress and higher parent-reported child social functioning were more likely to experience consistently high levels of conflict over time. In our study, we described different levels of conflict with their partners reported by fathers of autistic children. We also identified some of the factors that were associated with different levels of conflict. These might be used to inform interventions to reduce parental conflict in the future. En ligne : https://dx.doi.org/10.1177/13623613251316014 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Self-compassion as an antidote to self-stigma and shame in autistic adults / Raven BUREAU ; Odile ROHMER ; Céline CLEMENT ; Luisa WEINER in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1569-1584 Titre : Self-compassion as an antidote to self-stigma and shame in autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Raven BUREAU, Auteur ; Odile ROHMER, Auteur ; Céline CLEMENT, Auteur ; Luisa WEINER, Auteur Article en page(s) : p.1569-1584 Langues : Anglais (eng) Mots-clés : autism  camouflaging  depression  self-compassion  self-stigma  shame Index. décimale : PER Périodiques Résumé : Autistic individuals are frequently exposed to stigmatizing attitudes and discrimination. Through the lived experience of stigmatizing attitudes, autistic people can internalize the negative stereotypes associated with autism. This phenomenon is known as self-stigma. In non-autistic populations, self-stigma is associated with shame and negative mental health outcomes. In this study, we aim to better understand the mental health outcomes associated with self-stigma in autism and to investigate whether and how self-compassion compared to camouflaging may protect from self-stigma in autistic individuals. For this purpose, 689 adults who reported a diagnosis of autism were recruited online and completed self-reported questionnaires for self-stigma (Internalized Stigma of Mental Illness Scale-9 items), self-compassion (Self-Compassion Scale-short form), depression (Depression, Anxiety and Stress Scale-21) and camouflaging (Camouflaging Autistic Traits Questionnaire). We conducted mediation analysis and moderated mediation analysis. Our results indicate that self-stigma is highly prevalent in autistic adults (45.5%), correlated to depression (? (687) = 0.437, p < 0.001) and that internalized shame mediates the relationship between self-stigma and depressive symptoms (b = 1.48, 95% confidence interval = (1.11, 1.94)). Self-compassion moderates this mediation (Indirect Effect, IE = ?0.305, 95% confidence interval = (0.601, 0.014), ? = 0.183, z = 2.012, p = 0.044), whereas camouflaging does not (IE = 0.003, 95% confidence interval = (0.009, 0.015), ? = 0.0531, z = 0.514, p = 0.607). These results highlight the protective effect of self-compassion on the negative impacts of self-stigma in autistic individuals. Future research should explore how to adapt existing compassion-focused interventions and evaluate their feasibility and efficacy to reduce self-stigma and shame in autistic populations.Lay abstract What is already known about the topic?Autistic individuals are frequently exposed to stigmatizing attitudes and discrimination. Negative stereotypes about autism, such as dangerousness or inability to work, are very frequent in our societies. Through exposure to these stigmatizing ideas, autistic people can internalize these ideas and begin to believe them to be true about themselves. This is self-stigma. Past research conducted with non-autistic individuals indicate that self-stigma can lead people to feel ashamed of who they are and deteriorate their mental health.What this paper adds?In this paper, we found that self-stigma in autistic people increases depressive symptoms through feelings of shame. We then showed that relating to self with compassion - that is, to be friendly towards oneself (kindness), be aware of one?s feelings and thoughts (mindful awareness) and realize that everyone feels pain and makes mistakes (common humanity) - helps reducing the negatives consequences of self-stigma on mental health. We also demonstrated that camouflaging does not modify the impact of self-stigma on mental health.Implications for practice, research or policy?Because self-compassion can protect from the negative effects of self-stigma, future research should explore how to adapt existing compassion-focused interventions and evaluate their feasibility and efficacy to reduce self-stigma and shame in autistic people. En ligne : https://dx.doi.org/10.1177/13623613251316965 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Self-compassion as an antidote to self-stigma and shame in autistic adults [Texte imprimé et/ou numérique] / Raven BUREAU, Auteur ; Odile ROHMER, Auteur ; Céline CLEMENT, Auteur ; Luisa WEINER, Auteur . - p.1569-1584. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1569-1584 Mots-clés : autism  camouflaging  depression  self-compassion  self-stigma  shame Index. décimale : PER Périodiques Résumé : Autistic individuals are frequently exposed to stigmatizing attitudes and discrimination. Through the lived experience of stigmatizing attitudes, autistic people can internalize the negative stereotypes associated with autism. This phenomenon is known as self-stigma. In non-autistic populations, self-stigma is associated with shame and negative mental health outcomes. In this study, we aim to better understand the mental health outcomes associated with self-stigma in autism and to investigate whether and how self-compassion compared to camouflaging may protect from self-stigma in autistic individuals. For this purpose, 689 adults who reported a diagnosis of autism were recruited online and completed self-reported questionnaires for self-stigma (Internalized Stigma of Mental Illness Scale-9 items), self-compassion (Self-Compassion Scale-short form), depression (Depression, Anxiety and Stress Scale-21) and camouflaging (Camouflaging Autistic Traits Questionnaire). We conducted mediation analysis and moderated mediation analysis. Our results indicate that self-stigma is highly prevalent in autistic adults (45.5%), correlated to depression (? (687) = 0.437, p < 0.001) and that internalized shame mediates the relationship between self-stigma and depressive symptoms (b = 1.48, 95% confidence interval = (1.11, 1.94)). Self-compassion moderates this mediation (Indirect Effect, IE = ?0.305, 95% confidence interval = (0.601, 0.014), ? = 0.183, z = 2.012, p = 0.044), whereas camouflaging does not (IE = 0.003, 95% confidence interval = (0.009, 0.015), ? = 0.0531, z = 0.514, p = 0.607). These results highlight the protective effect of self-compassion on the negative impacts of self-stigma in autistic individuals. Future research should explore how to adapt existing compassion-focused interventions and evaluate their feasibility and efficacy to reduce self-stigma and shame in autistic populations.Lay abstract What is already known about the topic?Autistic individuals are frequently exposed to stigmatizing attitudes and discrimination. Negative stereotypes about autism, such as dangerousness or inability to work, are very frequent in our societies. Through exposure to these stigmatizing ideas, autistic people can internalize these ideas and begin to believe them to be true about themselves. This is self-stigma. Past research conducted with non-autistic individuals indicate that self-stigma can lead people to feel ashamed of who they are and deteriorate their mental health.What this paper adds?In this paper, we found that self-stigma in autistic people increases depressive symptoms through feelings of shame. We then showed that relating to self with compassion - that is, to be friendly towards oneself (kindness), be aware of one?s feelings and thoughts (mindful awareness) and realize that everyone feels pain and makes mistakes (common humanity) - helps reducing the negatives consequences of self-stigma on mental health. We also demonstrated that camouflaging does not modify the impact of self-stigma on mental health.Implications for practice, research or policy?Because self-compassion can protect from the negative effects of self-stigma, future research should explore how to adapt existing compassion-focused interventions and evaluate their feasibility and efficacy to reduce self-stigma and shame in autistic people. En ligne : https://dx.doi.org/10.1177/13623613251316965 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Experiences of interoception and anxiety in autistic adolescents: A reflexive thematic analysis / Smith JONAHS ; Brown MARY ; Bird GEOFFREY ; Waite POLLY in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1585-1596 Titre : Experiences of interoception and anxiety in autistic adolescents: A reflexive thematic analysis Type de document : Texte imprimé et/ou numérique Auteurs : Smith JONAHS, Auteur ; Brown MARY, Auteur ; Bird GEOFFREY, Auteur ; Waite POLLY, Auteur Article en page(s) : p.1585-1596 Langues : Anglais (eng) Mots-clés : adolescents  anxiety  interoception  mental health  qualitative research Index. décimale : PER Périodiques Résumé : Most autistic adolescents experience anxiety. Interoception, defined as one?s ability to detect and interpret bodily signals, might contribute to this. The aim of this exploratory, qualitative study was to gain a better understanding of interoceptive experiences in autistic adolescents and how this relates to anxiety. Semi-structured 1:1 interviews were conducted with 13 UK-based, autistic adolescents, aged 14-17 years, who reported experiencing significant, day-to-day anxiety. Interviews were analysed using a reflexive thematic analysis approach. Interoception appeared relevant to experiences of anxiety in most participants, although this influence was exerted through various routes. While hypoawareness of interoceptive signals led to a reduced ability to detect and regulate anxiety, hyperawareness became overwhelming and anxiety-inducing. Overly negative evaluations of interoceptive signals, including catastrophising about the signals indicating danger, also triggered anxiety. Relationships between interoception and anxiety appeared bidirectional, with anxiety also affecting interoceptive awareness and evaluation. Interoceptive experiences were variable both across and within participants, with factors such as arousal and cognitive overload affecting experiences. Future research should focus on assessing the feasibility of interventions based on the mechanisms identified here.Lay abstract Anxiety is common in autistic adolescents. The detection and interpretation of signals coming from inside the body (e.g. heartbeat and hunger) is assumed to be related to both anxiety and autism. We interviewed 13 autistic 14- to 17-year-olds who reported experiencing significant anxiety, to explore the role that bodily signals played in their experiences of anxiety. Across most participants, there did appear to be a relationship, although the exact way it was related varied. When participants were very aware of bodily signals, they could become overwhelming, but if they were not aware at all, then it was difficult for them to notice themselves getting anxious until it was too late. If participants interpreted these signals negatively, for example, assuming the signals meant something was wrong with their body, they were also more likely to feel anxious. Whether participants were aware or negatively evaluated these signals was very variable and appeared to be context-dependent. En ligne : https://dx.doi.org/10.1177/13623613251314595 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Experiences of interoception and anxiety in autistic adolescents: A reflexive thematic analysis [Texte imprimé et/ou numérique] / Smith JONAHS, Auteur ; Brown MARY, Auteur ; Bird GEOFFREY, Auteur ; Waite POLLY, Auteur . - p.1585-1596. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1585-1596 Mots-clés : adolescents  anxiety  interoception  mental health  qualitative research Index. décimale : PER Périodiques Résumé : Most autistic adolescents experience anxiety. Interoception, defined as one?s ability to detect and interpret bodily signals, might contribute to this. The aim of this exploratory, qualitative study was to gain a better understanding of interoceptive experiences in autistic adolescents and how this relates to anxiety. Semi-structured 1:1 interviews were conducted with 13 UK-based, autistic adolescents, aged 14-17 years, who reported experiencing significant, day-to-day anxiety. Interviews were analysed using a reflexive thematic analysis approach. Interoception appeared relevant to experiences of anxiety in most participants, although this influence was exerted through various routes. While hypoawareness of interoceptive signals led to a reduced ability to detect and regulate anxiety, hyperawareness became overwhelming and anxiety-inducing. Overly negative evaluations of interoceptive signals, including catastrophising about the signals indicating danger, also triggered anxiety. Relationships between interoception and anxiety appeared bidirectional, with anxiety also affecting interoceptive awareness and evaluation. Interoceptive experiences were variable both across and within participants, with factors such as arousal and cognitive overload affecting experiences. Future research should focus on assessing the feasibility of interventions based on the mechanisms identified here.Lay abstract Anxiety is common in autistic adolescents. The detection and interpretation of signals coming from inside the body (e.g. heartbeat and hunger) is assumed to be related to both anxiety and autism. We interviewed 13 autistic 14- to 17-year-olds who reported experiencing significant anxiety, to explore the role that bodily signals played in their experiences of anxiety. Across most participants, there did appear to be a relationship, although the exact way it was related varied. When participants were very aware of bodily signals, they could become overwhelming, but if they were not aware at all, then it was difficult for them to notice themselves getting anxious until it was too late. If participants interpreted these signals negatively, for example, assuming the signals meant something was wrong with their body, they were also more likely to feel anxious. Whether participants were aware or negatively evaluated these signals was very variable and appeared to be context-dependent. En ligne : https://dx.doi.org/10.1177/13623613251314595 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Understanding decision-making in autistic children and adolescents: Insights from deliberative processes and behavioral economic paradigms / Manuel PEREA ; Marta LIZARÁN ; Melanie LABUSCH ; Alba Moreno-Giménez ; Rosa SAHUQUILLO-LEAL ; Belén ALMANSA ; Julia BUESA ; Laura CAMPOS ; Juan A. PÉREZ ; Ana GARCÍA-BLANCO in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1597-1611 Titre : Understanding decision-making in autistic children and adolescents: Insights from deliberative processes and behavioral economic paradigms Type de document : Texte imprimé et/ou numérique Auteurs : Manuel PEREA, Auteur ; Marta LIZARÁN, Auteur ; Melanie LABUSCH, Auteur ; Alba Moreno-Giménez, Auteur ; Rosa SAHUQUILLO-LEAL, Auteur ; Belén ALMANSA, Auteur ; Julia BUESA, Auteur ; Laura CAMPOS, Auteur ; Juan A. PÉREZ, Auteur ; Ana GARCÍA-BLANCO, Auteur Article en page(s) : p.1597-1611 Langues : Anglais (eng) Mots-clés : cooperation  decision-making  dictator game  executive function  fairness  prosocial behavior  selfish  social functioning  ultimatum game Index. décimale : PER Périodiques Résumé : Prior research has shown conflicting findings on decision-making differences between autistic and non-autistic individuals. To address this issue, we applied the Ultimatum and Dictator Games to examine explicit measures (probability of endorsing monetary offers) and implicit measures (response times) associated with decision-making behaviors. By analyzing response times, we aimed to determine whether decisions were intuitive (rapid) or deliberative (slower) reasoning processes. In addition, we administered an executive functions questionnaire to explore how cognitive skills correlate with implicit and explicit decision-making behaviors. The study included 24 autistic and 24 non-autistic children and adolescents aged 8-18?years. Results showed that autistic participants were less likely to propose selfish offers in the Dictator Game than their non-autistic peers. Among autistic participants, this lower tendency to propose selfish offers correlated with better executive function skills. Regarding response times, autistic participants exhibited slower responses than non-autistic participants when accepting and proposing selfish offers in both games. These findings reveal differences in selfish offer tendencies and deliberative reasoning among participants, suggesting that slower decision-making in autistic participants reflects a focus on fairness and sociomoral reasoning. Future research can explore how this reasoning style influences social interactions in various scenarios.Lay Abstract Autistic kids and teens often have unique ways of communicating and socializing with others. Making decisions is important in how we behave daily and how we socialize. To study if autistic participants tend to make more cooperative or selfish choices, we used two games where participants had to share money between themselves and another player. Previous results were not consistent and that is why general assumptions could not be established. Also, previous results focused on the final decisions and did not consider the process that leads to making decisions. To fill the gap in what we know, this study dug deeper by evaluating how quickly or slowly participants made decisions and explored executive functions needed for daily decisions. The study found that autistic participants, with better executive functions, made less selfish offers (where they could keep more money than their peers) than non-autistic participants. Also, autistic participants took more time to decide than non-autistic participants, only when they could earn more money than the other player. Interestingly, these results are consistent with studies indicating that autistic children distribute resources without a primary focus on personal gains. These findings reshape how we view social exchanges and recognize that slow, deliberate thinking can lead to less selfish decisions in autistic children and adolescents. Future research could explore how this reasoning style influences social interactions in varied contexts. En ligne : https://dx.doi.org/10.1177/13623613251323493 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Understanding decision-making in autistic children and adolescents: Insights from deliberative processes and behavioral economic paradigms [Texte imprimé et/ou numérique] / Manuel PEREA, Auteur ; Marta LIZARÁN, Auteur ; Melanie LABUSCH, Auteur ; Alba Moreno-Giménez, Auteur ; Rosa SAHUQUILLO-LEAL, Auteur ; Belén ALMANSA, Auteur ; Julia BUESA, Auteur ; Laura CAMPOS, Auteur ; Juan A. PÉREZ, Auteur ; Ana GARCÍA-BLANCO, Auteur . - p.1597-1611. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1597-1611 Mots-clés : cooperation  decision-making  dictator game  executive function  fairness  prosocial behavior  selfish  social functioning  ultimatum game Index. décimale : PER Périodiques Résumé : Prior research has shown conflicting findings on decision-making differences between autistic and non-autistic individuals. To address this issue, we applied the Ultimatum and Dictator Games to examine explicit measures (probability of endorsing monetary offers) and implicit measures (response times) associated with decision-making behaviors. By analyzing response times, we aimed to determine whether decisions were intuitive (rapid) or deliberative (slower) reasoning processes. In addition, we administered an executive functions questionnaire to explore how cognitive skills correlate with implicit and explicit decision-making behaviors. The study included 24 autistic and 24 non-autistic children and adolescents aged 8-18?years. Results showed that autistic participants were less likely to propose selfish offers in the Dictator Game than their non-autistic peers. Among autistic participants, this lower tendency to propose selfish offers correlated with better executive function skills. Regarding response times, autistic participants exhibited slower responses than non-autistic participants when accepting and proposing selfish offers in both games. These findings reveal differences in selfish offer tendencies and deliberative reasoning among participants, suggesting that slower decision-making in autistic participants reflects a focus on fairness and sociomoral reasoning. Future research can explore how this reasoning style influences social interactions in various scenarios.Lay Abstract Autistic kids and teens often have unique ways of communicating and socializing with others. Making decisions is important in how we behave daily and how we socialize. To study if autistic participants tend to make more cooperative or selfish choices, we used two games where participants had to share money between themselves and another player. Previous results were not consistent and that is why general assumptions could not be established. Also, previous results focused on the final decisions and did not consider the process that leads to making decisions. To fill the gap in what we know, this study dug deeper by evaluating how quickly or slowly participants made decisions and explored executive functions needed for daily decisions. The study found that autistic participants, with better executive functions, made less selfish offers (where they could keep more money than their peers) than non-autistic participants. Also, autistic participants took more time to decide than non-autistic participants, only when they could earn more money than the other player. Interestingly, these results are consistent with studies indicating that autistic children distribute resources without a primary focus on personal gains. These findings reshape how we view social exchanges and recognize that slow, deliberate thinking can lead to less selfish decisions in autistic children and adolescents. Future research could explore how this reasoning style influences social interactions in varied contexts. En ligne : https://dx.doi.org/10.1177/13623613251323493 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Exploring lie frequency and emotional experiences of deceptive decision-making in autistic adults / Lara WARMELINK ; Amanda ROESTORF ; Calum HARTLEY in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1612-1626 Titre : Exploring lie frequency and emotional experiences of deceptive decision-making in autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Lara WARMELINK, Auteur ; Amanda ROESTORF, Auteur ; Calum HARTLEY, Auteur Article en page(s) : p.1612-1626 Langues : Anglais (eng) Mots-clés : autism  emotion  lie frequency  motivation  orientation Index. décimale : PER Périodiques Résumé : Deception is a multi-faceted social behaviour that is pervasive in human communication. Due to differences in social communication and experiences, autistic and non-autistic adults may contrast in how they respond to situations that elicit deceptive decision-making. This study examined whether autistic and non-autistic adults differed in their general lie frequency, their inclination to produce different lie types, and their emotional experiences of lying. Fifty-eight non-autistic and fifty-six autistic university students matched on age and gender completed self-report measures of their general lying patterns, how often they lied in the past 24 hours, and whether they would lie across hypothetical scenarios with differing beneficiaries (self, other, group) and motivations (protective, beneficial). The groups did not significantly differ in their general lying behaviour or frequency of lies told over 24 hours. Yet, autistic adults indicated that they would be significantly less likely to lie in group scenarios and would experience increased difficulty, more guilt, and greater concerns about their believability when lying. These results advance theoretical understanding by suggesting that autistic adults" deceptive decision-making may be context-dependent. Future research may benefit from examining autistic deception across numerous social situations as more general lie frequency measures may be insensitive to nuanced population differences.Lay Abstract Lying, a universal social behaviour, is frequent in everyday communication. Due to differences in social communication and experiences, autistic and non-autistic adults may react differently in situations where they must decide whether to lie or tell the truth. We investigated whether autistic and non-autistic adults differ in their general lying behaviour (e.g. how often they lie) and their likelihood of lying in a range of hypothetical social scenarios with different motivations (why people lie - to benefit or protect) and orientations (who people lie for; themselves, other, a group). We also examined participants" emotional experiences of lying and truth-telling. We found that autistic and non-autistic adults" general lying frequencies and emotional experiences were similar. However, the social scenario responses revealed that autistic adults would be less likely to lie to benefit or protect a social group they are part of. Moreover, autistic adults indicated that they would find lying more difficult across all social scenarios, experience more guilt, and would be less confident that their lie would be believed. This research highlights how autistic adults" lying may be context-dependent and considers how a reduction in the likelihood of lying for their social group could increase strain on autistic adults" social relationships. En ligne : https://dx.doi.org/10.1177/13623613251315892 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Exploring lie frequency and emotional experiences of deceptive decision-making in autistic adults [Texte imprimé et/ou numérique] / Lara WARMELINK, Auteur ; Amanda ROESTORF, Auteur ; Calum HARTLEY, Auteur . - p.1612-1626. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1612-1626 Mots-clés : autism  emotion  lie frequency  motivation  orientation Index. décimale : PER Périodiques Résumé : Deception is a multi-faceted social behaviour that is pervasive in human communication. Due to differences in social communication and experiences, autistic and non-autistic adults may contrast in how they respond to situations that elicit deceptive decision-making. This study examined whether autistic and non-autistic adults differed in their general lie frequency, their inclination to produce different lie types, and their emotional experiences of lying. Fifty-eight non-autistic and fifty-six autistic university students matched on age and gender completed self-report measures of their general lying patterns, how often they lied in the past 24 hours, and whether they would lie across hypothetical scenarios with differing beneficiaries (self, other, group) and motivations (protective, beneficial). The groups did not significantly differ in their general lying behaviour or frequency of lies told over 24 hours. Yet, autistic adults indicated that they would be significantly less likely to lie in group scenarios and would experience increased difficulty, more guilt, and greater concerns about their believability when lying. These results advance theoretical understanding by suggesting that autistic adults" deceptive decision-making may be context-dependent. Future research may benefit from examining autistic deception across numerous social situations as more general lie frequency measures may be insensitive to nuanced population differences.Lay Abstract Lying, a universal social behaviour, is frequent in everyday communication. Due to differences in social communication and experiences, autistic and non-autistic adults may react differently in situations where they must decide whether to lie or tell the truth. We investigated whether autistic and non-autistic adults differ in their general lying behaviour (e.g. how often they lie) and their likelihood of lying in a range of hypothetical social scenarios with different motivations (why people lie - to benefit or protect) and orientations (who people lie for; themselves, other, a group). We also examined participants" emotional experiences of lying and truth-telling. We found that autistic and non-autistic adults" general lying frequencies and emotional experiences were similar. However, the social scenario responses revealed that autistic adults would be less likely to lie to benefit or protect a social group they are part of. Moreover, autistic adults indicated that they would find lying more difficult across all social scenarios, experience more guilt, and would be less confident that their lie would be believed. This research highlights how autistic adults" lying may be context-dependent and considers how a reduction in the likelihood of lying for their social group could increase strain on autistic adults" social relationships. En ligne : https://dx.doi.org/10.1177/13623613251315892 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Type, content, and triggers for self-injurious thoughts and behaviors in autistic youth and their disclosure to caregivers / Alex RUBIN ; Kathryn R. FOX ; Darren HEDLEY ; Alexandra H BETTIS in Autism, 29-6 (June 2025)  

Public ISBD [article]  inAutism > 29-6 (June 2025) . - p.1627-1635 Titre : Type, content, and triggers for self-injurious thoughts and behaviors in autistic youth and their disclosure to caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Alex RUBIN, Auteur ; Kathryn R. FOX, Auteur ; Darren HEDLEY, Auteur ; Alexandra H BETTIS, Auteur Article en page(s) : p.1627-1635 Langues : Anglais (eng) Mots-clés : adolescents  autism  disclosure  self-injurious thoughts and behaviors  suicide Index. décimale : PER Périodiques Résumé : Rates of self-injurious thoughts and behaviors are elevated among autistic youth, yet research is limited to caregiver report or single-item questionnaires. Investigation of specific suicidal thoughts, triggers, and disclosure is needed to improve risk assessment and interventions. The current study characterized self-injurious thoughts and behaviors in a sample of autistic youth without intellectual disability presenting for outpatient psychological services. The Columbia-Suicide Severity Rating Scale and qualitative follow-up questions were administered to 103 autistic youth (10-17?years of age). Most autistic youth (n = 86; 83.5%) reported lifetime suicidal thoughts. Suicide thought content most commonly included abstract thoughts of dying/suicide (n = 20; 23.3%) and death by cutting (n = 13; 15.1%). Half of youth experiencing suicidal thoughts (n = 43; 50.0%) denied disclosure to their caregiver. Nearly one in four youth attempted suicide (n = 25; 24.3%), and some youth (n = 16; 15.5%) sought help from caregivers to prevent an attempt. Sadness/depression and bullying/teasing were the most commonly reported triggers of suicidal behaviors. Among autistic youth with lifetime nonsuicidal self-injury (n = 52; 50.5%), head hitting (n = 28; 45.2%) and cutting (n = 20; 32.3%) were the most reported types. Findings underscore the importance of targeted prevention and intervention to address self-injurious thoughts and behaviors in autistic youth and continued research to understand barriers and modifiable factors to facilitate self-injurious thoughts and behaviors disclosure.Lay abstract Self-injurious thoughts and behaviors are high among autistic youth, yet research most often relies on caregiver reports and does not include youth perspectives. Relatedly, specific characteristics of self-injurious thoughts and behaviors (e.g. type of behavior, thought content, triggers), and choices to share these thoughts and behaviors with caregivers/parents (or not), have not been studied in autistic youth. With limited information on self-injurious thoughts and behaviors in autistic youth, clinicians and families supporting autistic youth in crisis continue to experience major challenges to best assess and support youth. Therefore, to begin to understand youth perspectives of self-injurious thoughts and behaviors, we administered a self-injurious thoughts and behaviors clinical interview (Columbia-Suicide Severity Rating Scale; C-SSRS) to 103 autistic youth without intellectual disability (10-17?years of age) at a clinic for outpatient mental health services. We added follow-up questions to the interview about suicide to better understand what youth think about when it comes to suicide, what triggers them to feel suicidal, and whether they let their caregiver know about what they are thinking and feeling. Results show that most autistic youth reported suicidal thoughts at some point in their life (n = 86; 83.5%), with thoughts of dying/suicide (n = 20; 23.3%) and death by cutting (n = 13; 15.1%) as common thought content. Half of youth experiencing suicidal thoughts (n = 43; 50.0%) did not share this with their caregiver. Nearly one in four youth had attempted suicide at some point in their life (n = 25; 24.3%), while some youth (n = 16; 15.5%) sought help from caregivers to prevent an attempt. Sadness/depression and bullying/teasing were the most common triggers of suicidal behaviors, while anger/frustration was the leading trigger for nonsuicidal self-injury. Findings can be used to improve current assessment tools and prevention approaches for autistic youth to create better support for autistic youth in crisis. En ligne : https://dx.doi.org/10.1177/13623613241308327 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Type, content, and triggers for self-injurious thoughts and behaviors in autistic youth and their disclosure to caregivers [Texte imprimé et/ou numérique] / Alex RUBIN, Auteur ; Kathryn R. FOX, Auteur ; Darren HEDLEY, Auteur ; Alexandra H BETTIS, Auteur . - p.1627-1635. Langues : Anglais (eng) in Autism > 29-6 (June 2025) . - p.1627-1635 Mots-clés : adolescents  autism  disclosure  self-injurious thoughts and behaviors  suicide Index. décimale : PER Périodiques Résumé : Rates of self-injurious thoughts and behaviors are elevated among autistic youth, yet research is limited to caregiver report or single-item questionnaires. Investigation of specific suicidal thoughts, triggers, and disclosure is needed to improve risk assessment and interventions. The current study characterized self-injurious thoughts and behaviors in a sample of autistic youth without intellectual disability presenting for outpatient psychological services. The Columbia-Suicide Severity Rating Scale and qualitative follow-up questions were administered to 103 autistic youth (10-17?years of age). Most autistic youth (n = 86; 83.5%) reported lifetime suicidal thoughts. Suicide thought content most commonly included abstract thoughts of dying/suicide (n = 20; 23.3%) and death by cutting (n = 13; 15.1%). Half of youth experiencing suicidal thoughts (n = 43; 50.0%) denied disclosure to their caregiver. Nearly one in four youth attempted suicide (n = 25; 24.3%), and some youth (n = 16; 15.5%) sought help from caregivers to prevent an attempt. Sadness/depression and bullying/teasing were the most commonly reported triggers of suicidal behaviors. Among autistic youth with lifetime nonsuicidal self-injury (n = 52; 50.5%), head hitting (n = 28; 45.2%) and cutting (n = 20; 32.3%) were the most reported types. Findings underscore the importance of targeted prevention and intervention to address self-injurious thoughts and behaviors in autistic youth and continued research to understand barriers and modifiable factors to facilitate self-injurious thoughts and behaviors disclosure.Lay abstract Self-injurious thoughts and behaviors are high among autistic youth, yet research most often relies on caregiver reports and does not include youth perspectives. Relatedly, specific characteristics of self-injurious thoughts and behaviors (e.g. type of behavior, thought content, triggers), and choices to share these thoughts and behaviors with caregivers/parents (or not), have not been studied in autistic youth. With limited information on self-injurious thoughts and behaviors in autistic youth, clinicians and families supporting autistic youth in crisis continue to experience major challenges to best assess and support youth. Therefore, to begin to understand youth perspectives of self-injurious thoughts and behaviors, we administered a self-injurious thoughts and behaviors clinical interview (Columbia-Suicide Severity Rating Scale; C-SSRS) to 103 autistic youth without intellectual disability (10-17?years of age) at a clinic for outpatient mental health services. We added follow-up questions to the interview about suicide to better understand what youth think about when it comes to suicide, what triggers them to feel suicidal, and whether they let their caregiver know about what they are thinking and feeling. Results show that most autistic youth reported suicidal thoughts at some point in their life (n = 86; 83.5%), with thoughts of dying/suicide (n = 20; 23.3%) and death by cutting (n = 13; 15.1%) as common thought content. Half of youth experiencing suicidal thoughts (n = 43; 50.0%) did not share this with their caregiver. Nearly one in four youth had attempted suicide at some point in their life (n = 25; 24.3%), while some youth (n = 16; 15.5%) sought help from caregivers to prevent an attempt. Sadness/depression and bullying/teasing were the most common triggers of suicidal behaviors, while anger/frustration was the leading trigger for nonsuicidal self-injury. Findings can be used to improve current assessment tools and prevention approaches for autistic youth to create better support for autistic youth in crisis. En ligne : https://dx.doi.org/10.1177/13623613241308327 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558