5 recherche sur le mot-clé 'phenomenology'

Phenomenology and Presentation of Anxiety in Autism Spectrum Disorder / Iliana MAGIATI  

Public ISBD in Anxiety in Children and Adolescents with Autism Spectrum Disorder / Connor M. KERNS Titre : Phenomenology and Presentation of Anxiety in Autism Spectrum Disorder Type de document : Texte imprimé et/ou numérique Auteurs : Iliana MAGIATI, Auteur ; Ann OZSIVADJIAN, Auteur ; Connor M. KERNS, Auteur Année de publication : 2017 Importance : p.33-54 Langues : Anglais (eng) Mots-clés : Anxiety  ASD  autism  phenomenology  presentation  symptomatology  typical/traditional  atypical/ASD-related Index. décimale : PAR-B PAR-B - Anxiété Résumé : Abstract Anxiety has been recognized as a significant presenting feature associated with autism spectrum disorder (ASD) since the first clinical descriptions of ASD, with more recent prevalence studies confirming elevated rates of anxiety in this population across the lifespan compared with the general population. However, elevated anxiety symptoms do not form part of the core ASD diagnostic criteria and clinically significant anxiety is not universally present in all individuals with ASD. Clinically, practitioners working with people with ASD and anxiety have often noted that aspects of their clients’ anxiety presentations appear to be distinct to ASD and often different to presenting symptoms typically seen in anxious individuals without ASD. However, systematic research in investigating this was until recently lacking, leaving key questions unanswered. For example, which anxiety presentations are more/less common in ASD, and to what extent do these mirror or differ from those typically seen in clinically anxious individuals without ASD? Further, how might these qualitative differences inform assessment, formulation, and treatment? In this chapter, we summarize and draw upon the growing empirical literature to consider the similar and distinct ways in which anxiety presents in ASD and make recommendations for clinical practice and future research. En ligne : http://dx.doi.org/10.1016/B978-0-12-805122-1.00003-X Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=300 in Anxiety in Children and Adolescents with Autism Spectrum Disorder / Connor M. KERNS Phenomenology and Presentation of Anxiety in Autism Spectrum Disorder [Texte imprimé et/ou numérique] / Iliana MAGIATI, Auteur ; Ann OZSIVADJIAN, Auteur ; Connor M. KERNS, Auteur . - 2017 . - p.33-54. Langues : Anglais (eng) Mots-clés : Anxiety  ASD  autism  phenomenology  presentation  symptomatology  typical/traditional  atypical/ASD-related Index. décimale : PAR-B PAR-B - Anxiété Résumé : Abstract Anxiety has been recognized as a significant presenting feature associated with autism spectrum disorder (ASD) since the first clinical descriptions of ASD, with more recent prevalence studies confirming elevated rates of anxiety in this population across the lifespan compared with the general population. However, elevated anxiety symptoms do not form part of the core ASD diagnostic criteria and clinically significant anxiety is not universally present in all individuals with ASD. Clinically, practitioners working with people with ASD and anxiety have often noted that aspects of their clients’ anxiety presentations appear to be distinct to ASD and often different to presenting symptoms typically seen in anxious individuals without ASD. However, systematic research in investigating this was until recently lacking, leaving key questions unanswered. For example, which anxiety presentations are more/less common in ASD, and to what extent do these mirror or differ from those typically seen in clinically anxious individuals without ASD? Further, how might these qualitative differences inform assessment, formulation, and treatment? In this chapter, we summarize and draw upon the growing empirical literature to consider the similar and distinct ways in which anxiety presents in ASD and make recommendations for clinical practice and future research. En ligne : http://dx.doi.org/10.1016/B978-0-12-805122-1.00003-X Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=300

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"Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations / L. F. LEWIS in Journal of Autism and Developmental Disorders, 51-7 (July 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2324-2337 Titre : "Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations Type de document : Texte imprimé et/ou numérique Auteurs : L. F. LEWIS, Auteur ; C. WARD, Auteur ; N. JARVIS, Auteur ; E. CAWLEY, Auteur Article en page(s) : p.2324-2337 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/psychology  Communication  Female  Humans  Interpersonal Relations  Male  Middle Aged  Qualitative Research  Self Concept  Sexual Behavior/psychology  Sexual and Gender Minorities/psychology  Social Isolation/psychology  Young Adult  Intimacy  Lgbtq?+?  Phenomenology  Qualitative  Sexual relationships Index. décimale : PER Périodiques Résumé : Autistics are more likely than neurotypicals to be gay, lesbian, bisexual, asexual, and other sexual orientations. Autistics and sexual minorities represent populations at high risk for depression, anxiety, and suicidality. Little is known about the experiences of individuals living at this intersection. In this phenomenology, 67 individuals who identified as autistic sexual minorities participated in online interviews to describe the meaning of their experiences. Six themes emerged, including: self-acceptance is a journey; autistic traits complicate self-identification of sexual orientation; social and sensory stressors affect sexual expression; feeling misunderstood and isolated; challenges finding mutually satisfying relationships; and difficulty recognizing and communicating sexual needs. Autistic sexual minorities experience a "double minority" status that complicates identity formation and increases vulnerability in sexual relationships. En ligne : http://dx.doi.org/10.1007/s10803-020-04696-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452 [article] "Straight Sex is Complicated Enough!": The Lived Experiences of Autistics Who are Gay, Lesbian, Bisexual, Asexual, or Other Sexual Orientations [Texte imprimé et/ou numérique] / L. F. LEWIS, Auteur ; C. WARD, Auteur ; N. JARVIS, Auteur ; E. CAWLEY, Auteur . - p.2324-2337. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-7 (July 2021) . - p.2324-2337 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder/psychology  Communication  Female  Humans  Interpersonal Relations  Male  Middle Aged  Qualitative Research  Self Concept  Sexual Behavior/psychology  Sexual and Gender Minorities/psychology  Social Isolation/psychology  Young Adult  Intimacy  Lgbtq?+?  Phenomenology  Qualitative  Sexual relationships Index. décimale : PER Périodiques Résumé : Autistics are more likely than neurotypicals to be gay, lesbian, bisexual, asexual, and other sexual orientations. Autistics and sexual minorities represent populations at high risk for depression, anxiety, and suicidality. Little is known about the experiences of individuals living at this intersection. In this phenomenology, 67 individuals who identified as autistic sexual minorities participated in online interviews to describe the meaning of their experiences. Six themes emerged, including: self-acceptance is a journey; autistic traits complicate self-identification of sexual orientation; social and sensory stressors affect sexual expression; feeling misunderstood and isolated; challenges finding mutually satisfying relationships; and difficulty recognizing and communicating sexual needs. Autistic sexual minorities experience a "double minority" status that complicates identity formation and increases vulnerability in sexual relationships. En ligne : http://dx.doi.org/10.1007/s10803-020-04696-w Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=452

Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics / Boon Yen LAU in Autism, 24-5 (July 2020)  

Public ISBD [article]  inAutism > 24-5 (July 2020) . - p.1111-1126 Titre : Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics Type de document : Texte imprimé et/ou numérique Auteurs : Boon Yen LAU, Auteur ; Ruth LEONG, Auteur ; Mirko ULJAREVIC, Auteur ; Jian Wei LERH, Auteur ; Jacqui RODGERS, Auteur ; Matthew J. HOLLOCKS, Auteur ; Mikle SOUTH, Auteur ; Helen MCCONACHIE, Auteur ; Ann OZSIVADJIAN, Auteur ; Amy VAN HECKE, Auteur ; Robin LIBOVE, Auteur ; Antonio HARDAN, Auteur ; Susan LEEKAM, Auteur ; Emily SIMONOFF, Auteur ; Iliana MAGIATI, Auteur Article en page(s) : p.1111-1126 Langues : Anglais (eng) Mots-clés : anxiety  assessment  autism spectrum disorder  children  comorbidity  measurement  phenomenology  presentation  young people Index. décimale : PER Périodiques Résumé : Anxiety is common in autism spectrum disorder. Many anxiety symptoms in autism spectrum disorder are consistent with Diagnostic and Statistical Manual of Mental Disorders (5th ed.) anxiety disorders (termed "common" anxieties), but others may be qualitatively different, likely relating to autism spectrum disorder traits (herein termed "autism-related" anxieties). To date, few studies have examined both "common" and "autism-related" anxiety experiences in autism spectrum disorder. We explored caregiver-reported Spence Children's Anxiety Scale-Parent version data from a multi-site (United Kingdom, Singapore, and United States) pooled database of 870 6- to 18-year-old participants with autism spectrum disorder, of whom 287 provided at least one written response to the optional open-ended Spence Children's Anxiety Scale-Parent item 39 ("Is there anything else your child is afraid of?"). Responses were thematically coded to explore (a) common and autism-related anxiety presentations and (b) their relationship with young people's characteristics. Nearly half of the responses were autism-related anxieties (mostly sensory, uncommon, or idiosyncratic specific phobias and worries about change and unpredictability). The other half described additional common anxieties not covered in the original measure (mostly social, weather and environmental disasters, and animals). Caregivers of participants who were more severely affected by autism spectrum disorder symptoms reported more autism-related, as compared to common, additional anxieties. Implications for the assessment and understanding of anxiety in autism are discussed. En ligne : http://dx.doi.org/10.1177/1362361319886246 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426 [article] Anxiety in young people with autism spectrum disorder: Common and autism-related anxiety experiences and their associations with individual characteristics [Texte imprimé et/ou numérique] / Boon Yen LAU, Auteur ; Ruth LEONG, Auteur ; Mirko ULJAREVIC, Auteur ; Jian Wei LERH, Auteur ; Jacqui RODGERS, Auteur ; Matthew J. HOLLOCKS, Auteur ; Mikle SOUTH, Auteur ; Helen MCCONACHIE, Auteur ; Ann OZSIVADJIAN, Auteur ; Amy VAN HECKE, Auteur ; Robin LIBOVE, Auteur ; Antonio HARDAN, Auteur ; Susan LEEKAM, Auteur ; Emily SIMONOFF, Auteur ; Iliana MAGIATI, Auteur . - p.1111-1126. Langues : Anglais (eng) in Autism > 24-5 (July 2020) . - p.1111-1126 Mots-clés : anxiety  assessment  autism spectrum disorder  children  comorbidity  measurement  phenomenology  presentation  young people Index. décimale : PER Périodiques Résumé : Anxiety is common in autism spectrum disorder. Many anxiety symptoms in autism spectrum disorder are consistent with Diagnostic and Statistical Manual of Mental Disorders (5th ed.) anxiety disorders (termed "common" anxieties), but others may be qualitatively different, likely relating to autism spectrum disorder traits (herein termed "autism-related" anxieties). To date, few studies have examined both "common" and "autism-related" anxiety experiences in autism spectrum disorder. We explored caregiver-reported Spence Children's Anxiety Scale-Parent version data from a multi-site (United Kingdom, Singapore, and United States) pooled database of 870 6- to 18-year-old participants with autism spectrum disorder, of whom 287 provided at least one written response to the optional open-ended Spence Children's Anxiety Scale-Parent item 39 ("Is there anything else your child is afraid of?"). Responses were thematically coded to explore (a) common and autism-related anxiety presentations and (b) their relationship with young people's characteristics. Nearly half of the responses were autism-related anxieties (mostly sensory, uncommon, or idiosyncratic specific phobias and worries about change and unpredictability). The other half described additional common anxieties not covered in the original measure (mostly social, weather and environmental disasters, and animals). Caregivers of participants who were more severely affected by autism spectrum disorder symptoms reported more autism-related, as compared to common, additional anxieties. Implications for the assessment and understanding of anxiety in autism are discussed. En ligne : http://dx.doi.org/10.1177/1362361319886246 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=426

Everyday executive function issues from the perspectives of autistic adolescents and their parents: Theoretical and empirical implications / Anna REMINGTON ; Elizabeth PELLICANO in Autism, 28-9 (September 2024)  

Public ISBD [article]  inAutism > 28-9 (September 2024) . - p.2204-2217 Titre : Everyday executive function issues from the perspectives of autistic adolescents and their parents: Theoretical and empirical implications Type de document : Texte imprimé et/ou numérique Auteurs : Anna REMINGTON, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.2204-2217 Langues : (en) Mots-clés : attention  monotropism  phenomenology Index. décimale : PER Périodiques Résumé : There is a long tradition of research into autistic people?s executive function skills. Yet, despite decades of research on EF in autism, the existing literature remains contradictory and 'confusing', with a large - and unresolved - discrepancy between small-to-moderate effect sizes demonstrated on laboratory-based EF tasks and large effect sizes on questionnaire-based everyday EF measures. We sought to understand this mismatch between 'lab and life' by inviting 12 autistic adolescents (12-19?years) and their mothers (n = 7) to convey their views and perspectives about their own, or their child?s, EF skills as they transition to adulthood. We followed Braun and Clarke?s method for reflexive thematic analysis using an inductive approach. Participants told us that their EF skills were highly variable, acutely dependent on the context in which they were deployed and potentially related to differences in the way that they process information more broadly. Participants' reports provided rare insights into their and their children?s executive control - insights that do not straightforwardly map onto traditional theoretical models of EF. Future work on EF needs to take seriously the perspectives and subjectivity of autistic people themselves, including by triangulating quantitative, objective assessments with qualitative, subjective reports in complementary (controlled, uncontrolled) settings. Lay abstract Autism researchers have a long-time interest in a set of skills called executive function. These skills include planning, inhibition, and switching between one activity and another. There was a theory that these skills explained the social and thinking difficulties autistic people might have. After years of study into this, the evidence is confusing and contradictory. Autistic people tend to report struggling quite a lot with these skills. Yet, when researchers test these skills, they do not tend to find such big difficulties. In this study, we spoke to 12 autistic teenagers and seven of their mothers about this. We asked them what they thought about their own, or their child?s, executive function skills. We wanted to know about things they were good at and things they struggled with. They told us that their skills were very changeable from one context to the next and from one time to the next. According to their reports, their skills depended on how motivated they were by doing the task. Another thing that influenced their skills were how anxious they felt at the time they needed to use the skill. Finally, they told us that sometimes they think differently about how best to perform a task. We discuss what these insights mean for autism researchers who study these skills. In future, research should ask people about their experiences alongside testing their abilities in different contexts. Combining these information sources will give us a better understanding of autistic people?s everyday skills as well as how best to support them. En ligne : https://dx.doi.org/10.1177/13623613231224093 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 [article] Everyday executive function issues from the perspectives of autistic adolescents and their parents: Theoretical and empirical implications [Texte imprimé et/ou numérique] / Anna REMINGTON, Auteur ; Elizabeth PELLICANO, Auteur . - p.2204-2217. Langues : (en) in Autism > 28-9 (September 2024) . - p.2204-2217 Mots-clés : attention  monotropism  phenomenology Index. décimale : PER Périodiques Résumé : There is a long tradition of research into autistic people?s executive function skills. Yet, despite decades of research on EF in autism, the existing literature remains contradictory and 'confusing', with a large - and unresolved - discrepancy between small-to-moderate effect sizes demonstrated on laboratory-based EF tasks and large effect sizes on questionnaire-based everyday EF measures. We sought to understand this mismatch between 'lab and life' by inviting 12 autistic adolescents (12-19?years) and their mothers (n = 7) to convey their views and perspectives about their own, or their child?s, EF skills as they transition to adulthood. We followed Braun and Clarke?s method for reflexive thematic analysis using an inductive approach. Participants told us that their EF skills were highly variable, acutely dependent on the context in which they were deployed and potentially related to differences in the way that they process information more broadly. Participants' reports provided rare insights into their and their children?s executive control - insights that do not straightforwardly map onto traditional theoretical models of EF. Future work on EF needs to take seriously the perspectives and subjectivity of autistic people themselves, including by triangulating quantitative, objective assessments with qualitative, subjective reports in complementary (controlled, uncontrolled) settings. Lay abstract Autism researchers have a long-time interest in a set of skills called executive function. These skills include planning, inhibition, and switching between one activity and another. There was a theory that these skills explained the social and thinking difficulties autistic people might have. After years of study into this, the evidence is confusing and contradictory. Autistic people tend to report struggling quite a lot with these skills. Yet, when researchers test these skills, they do not tend to find such big difficulties. In this study, we spoke to 12 autistic teenagers and seven of their mothers about this. We asked them what they thought about their own, or their child?s, executive function skills. We wanted to know about things they were good at and things they struggled with. They told us that their skills were very changeable from one context to the next and from one time to the next. According to their reports, their skills depended on how motivated they were by doing the task. Another thing that influenced their skills were how anxious they felt at the time they needed to use the skill. Finally, they told us that sometimes they think differently about how best to perform a task. We discuss what these insights mean for autism researchers who study these skills. In future, research should ask people about their experiences alongside testing their abilities in different contexts. Combining these information sources will give us a better understanding of autistic people?s everyday skills as well as how best to support them. En ligne : https://dx.doi.org/10.1177/13623613231224093 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535

'Let me tell you, I see echolalia as being a part of my son?s identity': Exploring echolalia as an expression of neurodiversity from a parental perspective / Eli G. COHN in Autism, 28-5 (May 2024)  

Public ISBD [article]  inAutism > 28-5 (May 2024) . - p.1245-1257 Titre : 'Let me tell you, I see echolalia as being a part of my son?s identity': Exploring echolalia as an expression of neurodiversity from a parental perspective Type de document : Texte imprimé et/ou numérique Auteurs : Eli G. COHN, Auteur ; Matthew J. HARRISON, Auteur ; Keith R. MCVILLY, Auteur Article en page(s) : p.1245-1257 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  communication and language  echolalia  family functioning and support  neurodiversity  parents  phenomenology Index. décimale : PER Périodiques Résumé : Echolalia has been described as the repetition of words, phrases, songs or other more elaborate dialogues uttered by another person, which may be immediate or delayed (International Classification of Diseases, 11th Revision; Diagnostic and Statistical Manual of Mental Disorders, 5th ed.). Some classify echolalia as a communication impairment reflective of delay, while others consider it a restricted, repetitive pattern of behaviours, without meaningful communicative function. Little attention is given to the experiences of non-clinicians, such as parents or teachers who may hold valuable insights to further our understanding of this phenomenon. This study forms part of a larger programme of inquiry which interviewed parents (N = 133) about their experiences of their sons' and daughters' echolalia. Using hermeneutic phenomenological analysis in an abductive framework, we present a perspective of echolalia that has largely remained silent in literature: echolalia as an expression of neurodiversity. Participants push back against the status quo of intervention, reclaiming echolalia as being a part of their child?s identity. Participants want their children to not only enjoy their echolalia but to fully embrace it as being a part of their individual identity. We propose alternatives to a purely clinical perspective of echolalia; alternatives that may place the neurodiversity-affirmative perspectives of our participants in a co-existing tension with clinicians. Lay abstract Echolalia is a commonly found speech and language condition in autistic children. Children with echolalia repeat words and phrases they previously hear in place of proving a non-repetitive response. In research and when visiting speech and language services, one of the common goals is to modify these repetitions so that these children may, more socially, engage with their surrounding environment. In our research, we identified that not all parents want their children?s echolalia to be modified. Some parents want their child to be able to enjoy echolalia and others don?t want anyone to intervene because they see it as something that makes their child unique and being unique is something to be celebrated. We believe that there might be a way for speech and language services who want to modify echolalia and the parents in our study who do not want their child?s echolalia to be modified, to be able to exist side-by-side. En ligne : https://dx.doi.org/10.1177/13623613231195795 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=527 [article] 'Let me tell you, I see echolalia as being a part of my son?s identity': Exploring echolalia as an expression of neurodiversity from a parental perspective [Texte imprimé et/ou numérique] / Eli G. COHN, Auteur ; Matthew J. HARRISON, Auteur ; Keith R. MCVILLY, Auteur . - p.1245-1257. Langues : Anglais (eng) in Autism > 28-5 (May 2024) . - p.1245-1257 Mots-clés : autism spectrum disorders  communication and language  echolalia  family functioning and support  neurodiversity  parents  phenomenology Index. décimale : PER Périodiques Résumé : Echolalia has been described as the repetition of words, phrases, songs or other more elaborate dialogues uttered by another person, which may be immediate or delayed (International Classification of Diseases, 11th Revision; Diagnostic and Statistical Manual of Mental Disorders, 5th ed.). Some classify echolalia as a communication impairment reflective of delay, while others consider it a restricted, repetitive pattern of behaviours, without meaningful communicative function. Little attention is given to the experiences of non-clinicians, such as parents or teachers who may hold valuable insights to further our understanding of this phenomenon. This study forms part of a larger programme of inquiry which interviewed parents (N = 133) about their experiences of their sons' and daughters' echolalia. Using hermeneutic phenomenological analysis in an abductive framework, we present a perspective of echolalia that has largely remained silent in literature: echolalia as an expression of neurodiversity. Participants push back against the status quo of intervention, reclaiming echolalia as being a part of their child?s identity. Participants want their children to not only enjoy their echolalia but to fully embrace it as being a part of their individual identity. We propose alternatives to a purely clinical perspective of echolalia; alternatives that may place the neurodiversity-affirmative perspectives of our participants in a co-existing tension with clinicians. Lay abstract Echolalia is a commonly found speech and language condition in autistic children. Children with echolalia repeat words and phrases they previously hear in place of proving a non-repetitive response. In research and when visiting speech and language services, one of the common goals is to modify these repetitions so that these children may, more socially, engage with their surrounding environment. In our research, we identified that not all parents want their children?s echolalia to be modified. Some parents want their child to be able to enjoy echolalia and others don?t want anyone to intervene because they see it as something that makes their child unique and being unique is something to be celebrated. We believe that there might be a way for speech and language services who want to modify echolalia and the parents in our study who do not want their child?s echolalia to be modified, to be able to exist side-by-side. En ligne : https://dx.doi.org/10.1177/13623613231195795 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=527