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Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model / Karl LUNDIN in Autism, 25-4 (May 2021)
[article]
Titre : Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model Type de document : Texte imprimé et/ou numérique Auteurs : Karl LUNDIN, Auteur ; Soheil MAHDI, Auteur ; Johan ISAKSSON, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.1020-1035 Langues : Anglais (eng) Mots-clés : Disability International Classification of Functioning and Health autism cross-cultural female autism phenotype functioning gender differences Index. décimale : PER Périodiques Résumé : In this study, we explored if professionals working with autistic people in different regions of the world perceive differences between females and males diagnosed with the condition. A total of 131 professionals responded to a survey that included an open question about gender differences in autism. Of these, 32 responded that they do not perceive gender differences in autism. The information provided by the other 99 experts was analyzed to identify common patterns. Three main differences were found, (1) Matching the clinical conceptualization of autism where professionals described differences in core symptoms of autism, and that autistic females were less similar to the conceptualization of autism. In (2) Co-existing problems, professionals described that autistic males display more apparent problems including hyperactivity, while autistic females were perceived as having more internalizing issues such as anxiety and eating disorders. In the last category, (3) Navigating the social environment, experts perceived autistic females as more socially motivated, and more inclined to camouflage social difficulties, making their challenges less evident. Professionals also perceived differences in the social environment, for example, that autistic girls receive more support from their peers while autistic boys are more often bullied. Our results suggest that professionals working in different parts of the world acknowledge gender differences in autism, but also that there might be some regional differences. Finally, we found that gender differences reported by the international professionals could largely be assessed with a shortened version of the International Classification of Functioning by the World Health Organization, specifically developed for autism. En ligne : http://dx.doi.org/10.1177/1362361320975311 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444
in Autism > 25-4 (May 2021) . - p.1020-1035[article] Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model [Texte imprimé et/ou numérique] / Karl LUNDIN, Auteur ; Soheil MAHDI, Auteur ; Johan ISAKSSON, Auteur ; Sven BÖLTE, Auteur . - p.1020-1035.
Langues : Anglais (eng)
in Autism > 25-4 (May 2021) . - p.1020-1035
Mots-clés : Disability International Classification of Functioning and Health autism cross-cultural female autism phenotype functioning gender differences Index. décimale : PER Périodiques Résumé : In this study, we explored if professionals working with autistic people in different regions of the world perceive differences between females and males diagnosed with the condition. A total of 131 professionals responded to a survey that included an open question about gender differences in autism. Of these, 32 responded that they do not perceive gender differences in autism. The information provided by the other 99 experts was analyzed to identify common patterns. Three main differences were found, (1) Matching the clinical conceptualization of autism where professionals described differences in core symptoms of autism, and that autistic females were less similar to the conceptualization of autism. In (2) Co-existing problems, professionals described that autistic males display more apparent problems including hyperactivity, while autistic females were perceived as having more internalizing issues such as anxiety and eating disorders. In the last category, (3) Navigating the social environment, experts perceived autistic females as more socially motivated, and more inclined to camouflage social difficulties, making their challenges less evident. Professionals also perceived differences in the social environment, for example, that autistic girls receive more support from their peers while autistic boys are more often bullied. Our results suggest that professionals working in different parts of the world acknowledge gender differences in autism, but also that there might be some regional differences. Finally, we found that gender differences reported by the international professionals could largely be assessed with a shortened version of the International Classification of Functioning by the World Health Organization, specifically developed for autism. En ligne : http://dx.doi.org/10.1177/1362361320975311 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets / Lovisa ALEHAGEN ; Melissa H. BLACK ; John HASSLINGER ; Elina WESSMAN ; Karl LUNDIN REMNÉLIUS ; Peter B. MARSCHIK ; Emily D?ARCY ; Susanna CROWSON ; Megan FREETH ; Andreas SEIDEL ; Sonya GIRDLER ; Eric ZANDER in Autism, 28-9 (September 2024)
[article]
Titre : The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets Type de document : Texte imprimé et/ou numérique Auteurs : Lovisa ALEHAGEN, Auteur ; Melissa H. BLACK, Auteur ; John HASSLINGER, Auteur ; Elina WESSMAN, Auteur ; Karl LUNDIN REMNÉLIUS, Auteur ; Peter B. MARSCHIK, Auteur ; Emily D?ARCY, Auteur ; Susanna CROWSON, Auteur ; Megan FREETH, Auteur ; Andreas SEIDEL, Auteur ; Sonya GIRDLER, Auteur ; Eric ZANDER, Auteur Article en page(s) : p.2394-2411 Langues : (en) Mots-clés : adolescents adults assessment autism children Core Sets functioning International Classification of Functioning Disability and Health participation revision validation World Health Organization Index. décimale : PER Périodiques Résumé : Functioning is a construct capturing how an individual?s engagement in everyday life emerges from the interaction between the individual and their environment. The World Health Organization?s International Classification of Functioning, Disability and Health (ICF) provides a biopsychosocial framework of functioning. Previously, the ICF was adapted for use in autism by developing Core Sets, a selection of ICF codes from the entire classification for specific conditions. Here, we present the first revision of the ICF of the Core sets for autism from a Delphi-like technique, based on evidence from Core Sets validation/linking studies, stakeholder feedback, and the development and piloting of the autism ICF Core Sets platform. Two ICF second-level codes were removed, and 12 were added to the comprehensive autism Core Set. The added codes reflect body functions in various sensory domains, fine hand use, and environmental factors. Changes were extensive for the age-appropriate brief Core Sets where ICF codes from the initial Core Sets were added or removed. The revisions conducted indicate a continued need for regularly updating Core Sets, based on empirical evidence and stakeholder involvement. We recommend the updated Core Sets for future use in autism research and practice in different age groups and contexts. Lay abstract Autistic people experience individual strengths and challenges as well as barriers and facilitators in their environment. All of these factors contribute to how well autistic people can cope in everyday life, fulfill the roles they choose, and meet their needs. The World Health Organization has developed a system aiming to capture the many factors within people (like how someone thinks and feels) and outside of people (things around a person) that influence their daily living, called the International Classification of Functioning, Disability and Health. The International Classification of Functioning, Disability and Health can be used for different purposes in research and practice to assess people?s situations and plan support measures. Previously in 2019, the International Classification of Functioning, Disability and Health was adapted to autism by developing so-called Core Sets, which are shorter International Classification of Functioning, Disability and Health versions for use in specific conditions. Here, we present the first revisions of the International Classification of Functioning, Disability and Health Core Sets for autism, based on research, development results, and community feedback. Some factors influencing daily life for autistic people were added to the Core Sets, and other factors deemed less relevant were removed. Changes were also made in Core Sets designed for different age groups (0-5, 6-16, and ?17?years). Particularly, contents for sensory processing (like smell, touch, seeing, hearing) were added. We recommend these updated Core Sets for future use in autism research and practice. These changes to the Core Sets after 4?years indicate that there should be ongoing updates based on research and experience from practice and involvement of stakeholders. En ligne : https://dx.doi.org/10.1177/13623613241228896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535
in Autism > 28-9 (September 2024) . - p.2394-2411[article] The Gestalt of functioning in autism revisited: First revision of the International Classification of Functioning, Disability and Health Core Sets [Texte imprimé et/ou numérique] / Lovisa ALEHAGEN, Auteur ; Melissa H. BLACK, Auteur ; John HASSLINGER, Auteur ; Elina WESSMAN, Auteur ; Karl LUNDIN REMNÉLIUS, Auteur ; Peter B. MARSCHIK, Auteur ; Emily D?ARCY, Auteur ; Susanna CROWSON, Auteur ; Megan FREETH, Auteur ; Andreas SEIDEL, Auteur ; Sonya GIRDLER, Auteur ; Eric ZANDER, Auteur . - p.2394-2411.
Langues : (en)
in Autism > 28-9 (September 2024) . - p.2394-2411
Mots-clés : adolescents adults assessment autism children Core Sets functioning International Classification of Functioning Disability and Health participation revision validation World Health Organization Index. décimale : PER Périodiques Résumé : Functioning is a construct capturing how an individual?s engagement in everyday life emerges from the interaction between the individual and their environment. The World Health Organization?s International Classification of Functioning, Disability and Health (ICF) provides a biopsychosocial framework of functioning. Previously, the ICF was adapted for use in autism by developing Core Sets, a selection of ICF codes from the entire classification for specific conditions. Here, we present the first revision of the ICF of the Core sets for autism from a Delphi-like technique, based on evidence from Core Sets validation/linking studies, stakeholder feedback, and the development and piloting of the autism ICF Core Sets platform. Two ICF second-level codes were removed, and 12 were added to the comprehensive autism Core Set. The added codes reflect body functions in various sensory domains, fine hand use, and environmental factors. Changes were extensive for the age-appropriate brief Core Sets where ICF codes from the initial Core Sets were added or removed. The revisions conducted indicate a continued need for regularly updating Core Sets, based on empirical evidence and stakeholder involvement. We recommend the updated Core Sets for future use in autism research and practice in different age groups and contexts. Lay abstract Autistic people experience individual strengths and challenges as well as barriers and facilitators in their environment. All of these factors contribute to how well autistic people can cope in everyday life, fulfill the roles they choose, and meet their needs. The World Health Organization has developed a system aiming to capture the many factors within people (like how someone thinks and feels) and outside of people (things around a person) that influence their daily living, called the International Classification of Functioning, Disability and Health. The International Classification of Functioning, Disability and Health can be used for different purposes in research and practice to assess people?s situations and plan support measures. Previously in 2019, the International Classification of Functioning, Disability and Health was adapted to autism by developing so-called Core Sets, which are shorter International Classification of Functioning, Disability and Health versions for use in specific conditions. Here, we present the first revisions of the International Classification of Functioning, Disability and Health Core Sets for autism, based on research, development results, and community feedback. Some factors influencing daily life for autistic people were added to the Core Sets, and other factors deemed less relevant were removed. Changes were also made in Core Sets designed for different age groups (0-5, 6-16, and ?17?years). Particularly, contents for sensory processing (like smell, touch, seeing, hearing) were added. We recommend these updated Core Sets for future use in autism research and practice. These changes to the Core Sets after 4?years indicate that there should be ongoing updates based on research and experience from practice and involvement of stakeholders. En ligne : https://dx.doi.org/10.1177/13623613241228896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=535 The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets / Sven BÖLTE in Autism, 23-2 (February 2019)
[article]
Titre : The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets Type de document : Texte imprimé et/ou numérique Auteurs : Sven BÖLTE, Auteur ; S. MAHDI, Auteur ; P. J. DE VRIES, Auteur ; M. GRANLUND, Auteur ; J. E. ROBISON, Auteur ; C. SHULMAN, Auteur ; Susan E. SWEDO, Auteur ; B. TONGE, Auteur ; V. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; W. SEGERER, Auteur ; M. SELB, Auteur Article en page(s) : p.449-467 Langues : Anglais (eng) Mots-clés : Disability and Health core sets International Classification of Functioning assessment autism spectrum disorder consensus conference disability functioning Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings. En ligne : http://dx.doi.org/10.1177/1362361318755522 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383
in Autism > 23-2 (February 2019) . - p.449-467[article] The Gestalt of functioning in autism spectrum disorder: Results of the international conference to develop final consensus International Classification of Functioning, Disability and Health core sets [Texte imprimé et/ou numérique] / Sven BÖLTE, Auteur ; S. MAHDI, Auteur ; P. J. DE VRIES, Auteur ; M. GRANLUND, Auteur ; J. E. ROBISON, Auteur ; C. SHULMAN, Auteur ; Susan E. SWEDO, Auteur ; B. TONGE, Auteur ; V. WONG, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; W. SEGERER, Auteur ; M. SELB, Auteur . - p.449-467.
Langues : Anglais (eng)
in Autism > 23-2 (February 2019) . - p.449-467
Mots-clés : Disability and Health core sets International Classification of Functioning assessment autism spectrum disorder consensus conference disability functioning Index. décimale : PER Périodiques Résumé : Autism spectrum disorder is associated with diverse social, educational, and occupational challenges. To date, no standardized, internationally accepted tools exist to assess autism spectrum disorder-related functioning. World Health Organization's International Classification of Functioning, Disability and Health can serve as foundation for developing such tools. This study aimed to identify a comprehensive, a common brief, and three age-appropriate brief autism spectrum disorder Core Sets. Four international preparatory studies yielded in total 164 second-level International Classification of Functioning, Disability and Health candidate categories. Based on this evidence, 20 international autism spectrum disorder experts applied an established iterative decision-making consensus process to select from the candidate categories the most relevant ones to constitute the autism spectrum disorder Core Sets. The consensus process generated 111 second-level International Classification of Functioning, Disability and Health categories in the Comprehensive Core Set for autism spectrum disorder-one body structure, 20 body functions, 59 activities and participation categories, and 31 environmental factors. The Common Brief Core Set comprised 60 categories, while the age-appropriate core sets included 73 categories in the preschool version (0- to 5-year-old children), 81 in the school-age version (6- to 16-year-old children and adolescents), and 79 in the older adolescent and adult version (17-year-old individuals). The autism spectrum disorder Core Sets mark a milestone toward the standardized assessment of autism spectrum disorder-related functioning in educational, administrative, clinical, and research settings. En ligne : http://dx.doi.org/10.1177/1362361318755522 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=383 Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism / Briano DI REZZE in Journal of Autism and Developmental Disorders, 52-12 (December 2022)
[article]
Titre : Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism Type de document : Texte imprimé et/ou numérique Auteurs : Briano DI REZZE, Auteur ; Stephen James GENTLES, Auteur ; Mary Jo Cooley HIDECKER, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Peter ROSENBAUM, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Caroline RONCADIN, Auteur ; Hanna FANG, Auteur ; Diana J. TAJIK-PARVINCHI, Auteur ; Helena VIVEIROS, Auteur Année de publication : 2022 Article en page(s) : p.5150-5161 Langues : Anglais (eng) Mots-clés : Child Adolescent Humans Aged Child, Preschool Autism Spectrum Disorder Autistic Disorder/diagnosis Reproducibility of Results Communication Parents Autism spectrum disorder Childhood Classification International classification of functioning Social communication Index. décimale : PER Périodiques Résumé : The Autism Classification System of Functioning: Social Communication (ACSF) describes social communication functioning levels. First developed for preschoolers with ASD, this study tests an expanded age range (2-to-18Â years). The ACFS rates the child's typical and best (i.e., capacity) performance. Qualitative methods tested parent and clinician perspectives of the ACSF age expansion using content analysis. The ACSF was used twice by parents and professionals for the same child/youth. Reliabilities were assessed using weighted kappa. Content validity supported the ACSF's applicability, clarity, and usability. The ACSF adaptations did not change its original construct. Reliability were calculated from 90 parent and professional Time-1 and Time-2 ratings for children/youth (2.1-15.6Â years). Results showed good-to-very good intra-rater agreement (typical) and good inter-rater agreement (capacity). En ligne : http://dx.doi.org/10.1007/s10803-022-05621-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5150-5161[article] Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism [Texte imprimé et/ou numérique] / Briano DI REZZE, Auteur ; Stephen James GENTLES, Auteur ; Mary Jo Cooley HIDECKER, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Peter ROSENBAUM, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Caroline RONCADIN, Auteur ; Hanna FANG, Auteur ; Diana J. TAJIK-PARVINCHI, Auteur ; Helena VIVEIROS, Auteur . - 2022 . - p.5150-5161.
Langues : Anglais (eng)
in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5150-5161
Mots-clés : Child Adolescent Humans Aged Child, Preschool Autism Spectrum Disorder Autistic Disorder/diagnosis Reproducibility of Results Communication Parents Autism spectrum disorder Childhood Classification International classification of functioning Social communication Index. décimale : PER Périodiques Résumé : The Autism Classification System of Functioning: Social Communication (ACSF) describes social communication functioning levels. First developed for preschoolers with ASD, this study tests an expanded age range (2-to-18Â years). The ACFS rates the child's typical and best (i.e., capacity) performance. Qualitative methods tested parent and clinician perspectives of the ACSF age expansion using content analysis. The ACSF was used twice by parents and professionals for the same child/youth. Reliabilities were assessed using weighted kappa. Content validity supported the ACSF's applicability, clarity, and usability. The ACSF adaptations did not change its original construct. Reliability were calculated from 90 parent and professional Time-1 and Time-2 ratings for children/youth (2.1-15.6Â years). Results showed good-to-very good intra-rater agreement (typical) and good inter-rater agreement (capacity). En ligne : http://dx.doi.org/10.1007/s10803-022-05621-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 Parent/caregiver perspectives of functioning in autism spectrum disorders: A comparative study in Sweden and South Africa / M. VILJOEN in Autism, 23-8 (November 2019)
[article]
Titre : Parent/caregiver perspectives of functioning in autism spectrum disorders: A comparative study in Sweden and South Africa Type de document : Texte imprimé et/ou numérique Auteurs : M. VILJOEN, Auteur ; S. MAHDI, Auteur ; D. GRIESSEL, Auteur ; Sven BÖLTE, Auteur ; P. J. DE VRIES, Auteur Article en page(s) : p.2112-2130 Langues : Anglais (eng) Mots-clés : Disability and Health Icf International Classification of Functioning autism spectrum disorder caregiver disability functioning parent Index. décimale : PER Périodiques Résumé : Functional outcomes in autism spectrum disorder can be highly variable given the heterogeneous nature of autism spectrum disorder and its interaction with environmental factors. We set out to compare parent/caregiver perceptions of functioning in two divergent countries that participated in the International Classification of Functioning Disability and Health (ICF) Core Set for Autism Spectrum Disorder development study. We focused on the frequency and content of items reported, and hypothesized that environmental factors would most frequently be reported as barriers to functioning in low-resource settings. Using frequency and qualitative content analysis, we compared data from South Africa (n = 22) and Sweden (n = 13). Frequency agreement was seen in three activities and participation categories, and one environmental factor. Obvious frequency differences were observed in one environmental factors category, six body functions categories and three activities and participation categories. Only three ICF categories (immediate family, attention functions, products and technology for personal use) differed in content. Contrary to our hypotheses, few differences in perspectives about environmental factors emerged. The universality of our findings supports the global usefulness of the recently developed ICF Core Sets for Autism Spectrum Disorder. We recommend that more comparative studies on autism spectrum disorder and functioning should be conducted, and that similar comparisons in other disorders where Core Sets have been developed may be valuable. En ligne : http://dx.doi.org/10.1177/1362361319829868 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407
in Autism > 23-8 (November 2019) . - p.2112-2130[article] Parent/caregiver perspectives of functioning in autism spectrum disorders: A comparative study in Sweden and South Africa [Texte imprimé et/ou numérique] / M. VILJOEN, Auteur ; S. MAHDI, Auteur ; D. GRIESSEL, Auteur ; Sven BÖLTE, Auteur ; P. J. DE VRIES, Auteur . - p.2112-2130.
Langues : Anglais (eng)
in Autism > 23-8 (November 2019) . - p.2112-2130
Mots-clés : Disability and Health Icf International Classification of Functioning autism spectrum disorder caregiver disability functioning parent Index. décimale : PER Périodiques Résumé : Functional outcomes in autism spectrum disorder can be highly variable given the heterogeneous nature of autism spectrum disorder and its interaction with environmental factors. We set out to compare parent/caregiver perceptions of functioning in two divergent countries that participated in the International Classification of Functioning Disability and Health (ICF) Core Set for Autism Spectrum Disorder development study. We focused on the frequency and content of items reported, and hypothesized that environmental factors would most frequently be reported as barriers to functioning in low-resource settings. Using frequency and qualitative content analysis, we compared data from South Africa (n = 22) and Sweden (n = 13). Frequency agreement was seen in three activities and participation categories, and one environmental factor. Obvious frequency differences were observed in one environmental factors category, six body functions categories and three activities and participation categories. Only three ICF categories (immediate family, attention functions, products and technology for personal use) differed in content. Contrary to our hypotheses, few differences in perspectives about environmental factors emerged. The universality of our findings supports the global usefulness of the recently developed ICF Core Sets for Autism Spectrum Disorder. We recommend that more comparative studies on autism spectrum disorder and functioning should be conducted, and that similar comparisons in other disorders where Core Sets have been developed may be valuable. En ligne : http://dx.doi.org/10.1177/1362361319829868 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 Parental perspectives of functioning in their children with autism spectrum disorder: A global scoping review / Marisa VILJOEN in Autism, 25-1 (January 2021)
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