Dépouillements

The vaccine-autism connection: No link, still debate, and we are failing to learn the lessons / Indar Kumar SHARAWAT ; Prateek Kumar PANDA ; Sanjeev V KOTHARE in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1639-1645 Titre : The vaccine-autism connection: No link, still debate, and we are failing to learn the lessons Type de document : Texte imprimé et/ou numérique Auteurs : Indar Kumar SHARAWAT, Auteur ; Prateek Kumar PANDA, Auteur ; Sanjeev V KOTHARE, Auteur Article en page(s) : p.1639-1645 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251345281 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] The vaccine-autism connection: No link, still debate, and we are failing to learn the lessons [Texte imprimé et/ou numérique] / Indar Kumar SHARAWAT, Auteur ; Prateek Kumar PANDA, Auteur ; Sanjeev V KOTHARE, Auteur . - p.1639-1645. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1639-1645 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251345281 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China / Yujiao HAN ; Meiyu JIN ; Wei XIE ; Chuang SHANG ; Tiantian LI ; Liwen FENG ; Caihong SUN ; Saisai ZHANG ; Lijie WU in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1646-1660 Titre : Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China Type de document : Texte imprimé et/ou numérique Auteurs : Yujiao HAN, Auteur ; Meiyu JIN, Auteur ; Wei XIE, Auteur ; Chuang SHANG, Auteur ; Tiantian LI, Auteur ; Liwen FENG, Auteur ; Caihong SUN, Auteur ; Saisai ZHANG, Auteur ; Lijie WU, Auteur Article en page(s) : p.1646-1660 Langues : Anglais (eng) Mots-clés : autism-associated policies  China  scoping review Index. décimale : PER Périodiques Résumé : The study was designed to review autism-associated policies, describe policy characteristics, and determine potential policy gaps compared with the recommendations set by the World Health Organization. Autism-associated policies in 15 government agencies and public institutions were thoroughly searched on ministry websites up to December 2022, where 81 of 2504 were retained. And 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking, yet fewer than one third of the policy documents were jointly issued by multiple ministries, which are crucial for the effective implementation of autism-associated policies. Compared with the World Health Organization recommendations (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas showed a strong policy commitment, including leadership and governance, service delivery, and access to medicines and facility. Several potential gaps remained, including a relative lack of emphasis on health information and the health workforce, and insufficient attention to the community. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.Lay abstract Policies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism. En ligne : https://dx.doi.org/10.1177/13623613241311736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Supporting access to comprehensive services: A scoping review of national policies related to autism in mainland China [Texte imprimé et/ou numérique] / Yujiao HAN, Auteur ; Meiyu JIN, Auteur ; Wei XIE, Auteur ; Chuang SHANG, Auteur ; Tiantian LI, Auteur ; Liwen FENG, Auteur ; Caihong SUN, Auteur ; Saisai ZHANG, Auteur ; Lijie WU, Auteur . - p.1646-1660. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1646-1660 Mots-clés : autism-associated policies  China  scoping review Index. décimale : PER Périodiques Résumé : The study was designed to review autism-associated policies, describe policy characteristics, and determine potential policy gaps compared with the recommendations set by the World Health Organization. Autism-associated policies in 15 government agencies and public institutions were thoroughly searched on ministry websites up to December 2022, where 81 of 2504 were retained. And 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking, yet fewer than one third of the policy documents were jointly issued by multiple ministries, which are crucial for the effective implementation of autism-associated policies. Compared with the World Health Organization recommendations (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas showed a strong policy commitment, including leadership and governance, service delivery, and access to medicines and facility. Several potential gaps remained, including a relative lack of emphasis on health information and the health workforce, and insufficient attention to the community. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism.Lay abstract Policies have been found to play a crucial role in supporting the health and well-being of individuals with autism. Yet, relatively few policy reviews are related to autism, and the current level of autism-associated policies and potential gaps in comparison with the World Health Organization recommendations remain unclear. Our study reviewed autism-associated policies, described policy characteristics, and determined potential policy gaps in mainland China. We conducted a comprehensive search of autism-associated policies from 15 websites of government agencies and public institutions up to December 2022, where 81 of 2504 were retained. We found that 42 of the 81 policies were issued in 2021 and 2022. Twelve of the 15 included ministries were involved in policymaking and fewer than one third of the policy documents were issued by two or more ministries. With respect to recommendations proposed by the World Health Organization (the Comprehensive Mental Health Action Plan 2013-2030 and the Six Building Blocks of Health System), several areas received extensive national attention, including leadership and governance, service delivery, and access to medicines and facility, while there was limited policy attention on the other components. Despite these potential gaps, encouragingly, the nation has increasingly focused on autism groups. This study can provide a basis for future policymaking to provide more comprehensive and better services for individuals with autism. En ligne : https://dx.doi.org/10.1177/13623613241311736 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Sleep disturbances in autistic children and adolescents: A systematic review and meta-analysis of randomized controlled trials / Daniela PAOLETTI ; Simona DE STASIO ; Carmen BERENGUER in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1661-1673 Titre : Sleep disturbances in autistic children and adolescents: A systematic review and meta-analysis of randomized controlled trials Type de document : Texte imprimé et/ou numérique Auteurs : Daniela PAOLETTI, Auteur ; Simona DE STASIO, Auteur ; Carmen BERENGUER, Auteur Article en page(s) : p.1661-1673 Langues : Anglais (eng) Mots-clés : autism  behavioral/psychological interventions  meta-analysis  physical activity interventions  sleep problems  somatosensory interventions  systematic review Index. décimale : PER Périodiques Résumé : Sleep disturbances are one of the most common comorbidities in autistic children and adolescence. Considering the impact of sleep disorders on development and daily functioning, it is important to know which treatments are considered effective in literature. This systematic review and meta-analysis study specifically aimed to investigate the effectiveness of non-pharmacological interventions for the treatment of sleep disorders in autistic children and adolescents without intellectual disability. Search across PubMed, PsycINFO, Scopus, and Web of Science were identified 11 randomized controlled trial studies published between 2012 and 2024 that met the inclusion criteria. The results indicate that the interventions considered (Behavioral/psychological, Physical activity, and Somatosensory sleep interventions) significantly improve sleep parameters in this population (p < 0.05). Objective data from actigraphy show an increase in total sleep time and sleep efficiency and a reduction in sleep onset latency. The results also show an improvement in sleep quality assessed through the Children?s Sleep Habits Questionnaire filled out by parents. This study is one of the first to examine through a meta-analysis the positive impact of non-pharmacological therapies in the treatment of sleep disorders in autistic children and adolescents without intellectual disability. Alternative treatments are essential, particularly for those who are intolerant to medication, as it allows clinicians to provide effective interventions tailored to this population.Lay Abstract Sleep disorders are common in people on the autistic spectrum and can affect their development, daily function, and overall well-being. This study examined the effectiveness of non-pharmacological intervention to improve sleep in autistic children and adolescents without intellectual disability. We considered 11 studies of non-pharmacological treatments for autistic children and adolescents. The results indicate that these interventions help to improve several sleep parameters, either by increasing, for example, the total time and quality of sleep, or by reducing the time needed for falling asleep. These approaches offer important treatment options especially for those cases where medication is not feasible, allowing physicians and specialists to propose more targeted and safer solutions for managing sleep difficulties in this population. En ligne : https://dx.doi.org/10.1177/13623613251319391 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Sleep disturbances in autistic children and adolescents: A systematic review and meta-analysis of randomized controlled trials [Texte imprimé et/ou numérique] / Daniela PAOLETTI, Auteur ; Simona DE STASIO, Auteur ; Carmen BERENGUER, Auteur . - p.1661-1673. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1661-1673 Mots-clés : autism  behavioral/psychological interventions  meta-analysis  physical activity interventions  sleep problems  somatosensory interventions  systematic review Index. décimale : PER Périodiques Résumé : Sleep disturbances are one of the most common comorbidities in autistic children and adolescence. Considering the impact of sleep disorders on development and daily functioning, it is important to know which treatments are considered effective in literature. This systematic review and meta-analysis study specifically aimed to investigate the effectiveness of non-pharmacological interventions for the treatment of sleep disorders in autistic children and adolescents without intellectual disability. Search across PubMed, PsycINFO, Scopus, and Web of Science were identified 11 randomized controlled trial studies published between 2012 and 2024 that met the inclusion criteria. The results indicate that the interventions considered (Behavioral/psychological, Physical activity, and Somatosensory sleep interventions) significantly improve sleep parameters in this population (p < 0.05). Objective data from actigraphy show an increase in total sleep time and sleep efficiency and a reduction in sleep onset latency. The results also show an improvement in sleep quality assessed through the Children?s Sleep Habits Questionnaire filled out by parents. This study is one of the first to examine through a meta-analysis the positive impact of non-pharmacological therapies in the treatment of sleep disorders in autistic children and adolescents without intellectual disability. Alternative treatments are essential, particularly for those who are intolerant to medication, as it allows clinicians to provide effective interventions tailored to this population.Lay Abstract Sleep disorders are common in people on the autistic spectrum and can affect their development, daily function, and overall well-being. This study examined the effectiveness of non-pharmacological intervention to improve sleep in autistic children and adolescents without intellectual disability. We considered 11 studies of non-pharmacological treatments for autistic children and adolescents. The results indicate that these interventions help to improve several sleep parameters, either by increasing, for example, the total time and quality of sleep, or by reducing the time needed for falling asleep. These approaches offer important treatment options especially for those cases where medication is not feasible, allowing physicians and specialists to propose more targeted and safer solutions for managing sleep difficulties in this population. En ligne : https://dx.doi.org/10.1177/13623613251319391 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Comparing the prevalence of substance use disorders between persons with and without autism spectrum disorders / Steven MARCUS ; Sha TAO ; Malitta ENGSTROM ; Anne ROUX ; Lindsay SHEA in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1674-1687 Titre : Comparing the prevalence of substance use disorders between persons with and without autism spectrum disorders Type de document : Texte imprimé et/ou numérique Auteurs : Steven MARCUS, Auteur ; Sha TAO, Auteur ; Malitta ENGSTROM, Auteur ; Anne ROUX, Auteur ; Lindsay SHEA, Auteur Article en page(s) : p.1674-1687 Langues : Anglais (eng) Mots-clés : autism  social determinants of health  substance use disorders Index. décimale : PER Périodiques Résumé : Recent research has suggested that people with autism spectrum disorder may be disproportionately at risk of substance use disorders. This study analyzed national-level Medicaid Claims data to compare substance use disorder prevalence among Medicaid enrollees with autism spectrum disorder (N = 388,426) and a random sample of enrollees without autism spectrum disorder (n = 745,699) and to examine whether this association differs across sex and age groups and changes after adjusting for co-occurring mental health conditions. We also examined how the association between autism spectrum disorder and substance use disorder is moderated by co-occurring non-autism spectrum disorder mental health conditions and by community-level social determinants of health by merging Medicaid Claims data with zip code-level US Census data on socioeconomic deprivation. By 2016, 7% of Medicaid beneficiaries with autism spectrum disorder and no intellectual disability had at least one substance use disorder diagnosis, up from 1.75% USD prevalence among enrollees with autism spectrum disorder (no intellectual disability) in 2012 Medicaid data. Individuals with autism spectrum disorder aged 30-64?years were at an elevated risk of cannabis and hallucinogen disorders; this risk is likely compounded by co-occurring mental health conditions, which affect a half of all individuals with autism spectrum disorder and only 23% of individuals without autism spectrum disorder. Research and policy implications are discussed in turn.Lay abstract Recent research has suggested that people with autism spectrum disorder may be disproportionately at risk of substance use disorders. The present study analyzed national-level Medicaid Claims data to compare substance use disorder prevalence among Medicaid beneficiaries with autism spectrum disorder and without autism spectrum disorder and to examine whether this association differs across sex and age groups and depends on mental health conditions besides autism. We also examined how the association between autism spectrum disorder and substance use disorder is moderated by co-occurring non-autism spectrum disorder mental health conditions and by community-level social determinants of health. For the latter purpose, Medicaid Claims data were merged with zip code-level US Census data on socioeconomic deprivation. Our analyses demonstrated that, by 2016, 7% of Medicaid enrollees with autism spectrum disorder and no intellectual disability had at least one substance use disorder diagnosis, up from 1.75% USD prevalence among enrollees with autism spectrum disorder (no intellectual disability) in 2012 Medicaid data. Individuals with autism spectrum disorder aged 30-64?years are at an elevated risk of cannabis and hallucinogen use disorders, while this risk is likely compounded by co-occurring mental health conditions, which affect a half of all individuals with autism spectrum disorder and only 23% of individuals without autism spectrum disorder. Research and policy implications are discussed in turn. En ligne : https://dx.doi.org/10.1177/13623613251325282 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Comparing the prevalence of substance use disorders between persons with and without autism spectrum disorders [Texte imprimé et/ou numérique] / Steven MARCUS, Auteur ; Sha TAO, Auteur ; Malitta ENGSTROM, Auteur ; Anne ROUX, Auteur ; Lindsay SHEA, Auteur . - p.1674-1687. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1674-1687 Mots-clés : autism  social determinants of health  substance use disorders Index. décimale : PER Périodiques Résumé : Recent research has suggested that people with autism spectrum disorder may be disproportionately at risk of substance use disorders. This study analyzed national-level Medicaid Claims data to compare substance use disorder prevalence among Medicaid enrollees with autism spectrum disorder (N = 388,426) and a random sample of enrollees without autism spectrum disorder (n = 745,699) and to examine whether this association differs across sex and age groups and changes after adjusting for co-occurring mental health conditions. We also examined how the association between autism spectrum disorder and substance use disorder is moderated by co-occurring non-autism spectrum disorder mental health conditions and by community-level social determinants of health by merging Medicaid Claims data with zip code-level US Census data on socioeconomic deprivation. By 2016, 7% of Medicaid beneficiaries with autism spectrum disorder and no intellectual disability had at least one substance use disorder diagnosis, up from 1.75% USD prevalence among enrollees with autism spectrum disorder (no intellectual disability) in 2012 Medicaid data. Individuals with autism spectrum disorder aged 30-64?years were at an elevated risk of cannabis and hallucinogen disorders; this risk is likely compounded by co-occurring mental health conditions, which affect a half of all individuals with autism spectrum disorder and only 23% of individuals without autism spectrum disorder. Research and policy implications are discussed in turn.Lay abstract Recent research has suggested that people with autism spectrum disorder may be disproportionately at risk of substance use disorders. The present study analyzed national-level Medicaid Claims data to compare substance use disorder prevalence among Medicaid beneficiaries with autism spectrum disorder and without autism spectrum disorder and to examine whether this association differs across sex and age groups and depends on mental health conditions besides autism. We also examined how the association between autism spectrum disorder and substance use disorder is moderated by co-occurring non-autism spectrum disorder mental health conditions and by community-level social determinants of health. For the latter purpose, Medicaid Claims data were merged with zip code-level US Census data on socioeconomic deprivation. Our analyses demonstrated that, by 2016, 7% of Medicaid enrollees with autism spectrum disorder and no intellectual disability had at least one substance use disorder diagnosis, up from 1.75% USD prevalence among enrollees with autism spectrum disorder (no intellectual disability) in 2012 Medicaid data. Individuals with autism spectrum disorder aged 30-64?years are at an elevated risk of cannabis and hallucinogen use disorders, while this risk is likely compounded by co-occurring mental health conditions, which affect a half of all individuals with autism spectrum disorder and only 23% of individuals without autism spectrum disorder. Research and policy implications are discussed in turn. En ligne : https://dx.doi.org/10.1177/13623613251325282 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Gaming in the intervention and support process: A realist evaluation of a gaming-based programme / Abi LILFORD ; Vy NGUYEN ; Erin WALKER ; Haw Huei WEE ; Olov FALKMER ; Sarah MCGARRY in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1688-1699 Titre : Gaming in the intervention and support process: A realist evaluation of a gaming-based programme Type de document : Texte imprimé et/ou numérique Auteurs : Abi LILFORD, Auteur ; Vy NGUYEN, Auteur ; Erin WALKER, Auteur ; Haw Huei WEE, Auteur ; Olov FALKMER, Auteur ; Sarah MCGARRY, Auteur Article en page(s) : p.1688-1699 Langues : Anglais (eng) Mots-clés : autism  social connection  strengths-based  video-games Index. décimale : PER Périodiques Résumé : Using games as part of the intervention and support process (sometimes referred to as 'gaming therapy") is an increasingly popular method of supporting autistic youth to develop social competencies and other skills because they are believed to be inherently motivating and fun for youth. Some emerging research has indicated that intervention programmes using games can be beneficial for autistic youth, but little is currently known about why, how and for whom they work. This study conducted a realist evaluation of a programme using the video game "Minecraft" for autistic youth, comprising interviews and observations with autistic youth (n = 4), facilitators (n = 2) and caregivers (n = 6). Findings from interviews and observations suggest that leveraging strengths, sharing power by placing youth in the 'expert role" and learning in a naturalistic and motivating environment provided youth with the opportunities to develop social competencies in communicating their wants and needs and supported the development of social connections, independence and emotion regulation. The results of this realist evaluation may provide a framework for future intervention and support programmes using video games.Lay abstract Using games as part of the intervention and support process (sometimes called 'gaming therapy") is increasingly used with autistic youth. Gaming is believed to be fun, motivating, and helpful in supporting autistic youth to develop social connections and skills, but very little research has explored this. In this study, we looked at a gaming-based programme that uses Minecraft. We did interviews and observations with youth, facilitators and caregivers of youth to find out why, how and for whom it works. We found that the gaming-based programme could be particularly motivating for youth interested in video games. Facilitators shared the interests of the youth and shared power by placing youth in the 'expert role", while providing youth with opportunities to learn and develop in their own way. Feedback from youth, their caregivers and facilitators suggests that the gaming-based programme might help youth develop social connections, independence and emotion regulation. The results of this realist evaluation may provide a framework for future gaming-based programmes. En ligne : https://dx.doi.org/10.1177/13623613251320542 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Gaming in the intervention and support process: A realist evaluation of a gaming-based programme [Texte imprimé et/ou numérique] / Abi LILFORD, Auteur ; Vy NGUYEN, Auteur ; Erin WALKER, Auteur ; Haw Huei WEE, Auteur ; Olov FALKMER, Auteur ; Sarah MCGARRY, Auteur . - p.1688-1699. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1688-1699 Mots-clés : autism  social connection  strengths-based  video-games Index. décimale : PER Périodiques Résumé : Using games as part of the intervention and support process (sometimes referred to as 'gaming therapy") is an increasingly popular method of supporting autistic youth to develop social competencies and other skills because they are believed to be inherently motivating and fun for youth. Some emerging research has indicated that intervention programmes using games can be beneficial for autistic youth, but little is currently known about why, how and for whom they work. This study conducted a realist evaluation of a programme using the video game "Minecraft" for autistic youth, comprising interviews and observations with autistic youth (n = 4), facilitators (n = 2) and caregivers (n = 6). Findings from interviews and observations suggest that leveraging strengths, sharing power by placing youth in the 'expert role" and learning in a naturalistic and motivating environment provided youth with the opportunities to develop social competencies in communicating their wants and needs and supported the development of social connections, independence and emotion regulation. The results of this realist evaluation may provide a framework for future intervention and support programmes using video games.Lay abstract Using games as part of the intervention and support process (sometimes called 'gaming therapy") is increasingly used with autistic youth. Gaming is believed to be fun, motivating, and helpful in supporting autistic youth to develop social connections and skills, but very little research has explored this. In this study, we looked at a gaming-based programme that uses Minecraft. We did interviews and observations with youth, facilitators and caregivers of youth to find out why, how and for whom it works. We found that the gaming-based programme could be particularly motivating for youth interested in video games. Facilitators shared the interests of the youth and shared power by placing youth in the 'expert role", while providing youth with opportunities to learn and develop in their own way. Feedback from youth, their caregivers and facilitators suggests that the gaming-based programme might help youth develop social connections, independence and emotion regulation. The results of this realist evaluation may provide a framework for future gaming-based programmes. En ligne : https://dx.doi.org/10.1177/13623613251320542 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Rapport in same and mixed neurotype groups of autistic and non-autistic adults / Robert A ACKERMAN ; Charlotte EH WILKS ; Michelle DODD ; Rachel CALDERON ; Danielle ROPAR ; Sue FLETCHER-WATSON ; Catherine J CROMPTON ; Noah J SASSON in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1700-1710 Titre : Rapport in same and mixed neurotype groups of autistic and non-autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Robert A ACKERMAN, Auteur ; Charlotte EH WILKS, Auteur ; Michelle DODD, Auteur ; Rachel CALDERON, Auteur ; Danielle ROPAR, Auteur ; Sue FLETCHER-WATSON, Auteur ; Catherine J CROMPTON, Auteur ; Noah J SASSON, Auteur Article en page(s) : p.1700-1710 Langues : Anglais (eng) Mots-clés : autism  double empathy  group interaction  neurotype  rapport Index. décimale : PER Périodiques Résumé : Although autistic adults may establish better dyadic rapport with autistic relative to non-autistic partners, it is unclear whether this extends to group settings. The current study examined whether rapport differs between autistic groups, non-autistic groups, and mixed groups of autistic and non-autistic adults, and whether differing diagnostically from the rest of the group results in lower rapport. One hundred and forty-three adults were assigned to one of four group types of four participants each: all-autistic, all-non-autistic, non-autistic majority (three non-autistic, one autistic), and autistic majority (three autistic, one non-autistic). Groups participated in a 5-minute building activity and afterwards completed a 5-item rapport measure assessing their experience. The all-autistic groups did not differ on overall rapport from the all-non-autistic groups and had significantly higher rapport on two items (enjoying the interaction and friendliness of the group) than both types of mixed groups. At the individual level, autistic participants expressed more ease and enjoyment when interacting with other autistic adults relative to non-autistic adults, and their rapport declined as more non-autistic participants were included in the group. In contrast, rapport for non-autistic participants remained relatively consistent regardless of group composition. We discuss potential reasons why autistic participants were more affected by group composition than non-autistic participants.Lay abstract Autistic adults sometimes get along better with other autistic people compared to non-autistic people, but so far this has only been studied in two-person interactions. This study examined how well autistic and non-autistic people develop rapport in a group setting and whether rapport differs when group members share or do not share a diagnosis. We assigned 143 adults to 36 groups of four adults each. Some groups only had autistic members, some only had non-autistic members, and some were "mixed" groups of autistic and non-autistic members. Groups participated in a tower-building task for 5 minutes and afterwards completed a survey about rapport with the group. The groups of all-autistic participants expressed that their interactions were more enjoyable and friendly than the mixed groups. Autistic participants reported lower rapport when interacting with non-autistic adults, while non-autistic participants reported similar rapport whether interacting with autistic or non-autistic group members. Overall, findings are not consistent with a social deficit model of autism, as autistic adults often established rapport with partners in a group setting. Their level of rapport, however, depended strongly on the social context, particularly whether other autistic people were also in the group. En ligne : https://dx.doi.org/10.1177/13623613251320444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Rapport in same and mixed neurotype groups of autistic and non-autistic adults [Texte imprimé et/ou numérique] / Robert A ACKERMAN, Auteur ; Charlotte EH WILKS, Auteur ; Michelle DODD, Auteur ; Rachel CALDERON, Auteur ; Danielle ROPAR, Auteur ; Sue FLETCHER-WATSON, Auteur ; Catherine J CROMPTON, Auteur ; Noah J SASSON, Auteur . - p.1700-1710. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1700-1710 Mots-clés : autism  double empathy  group interaction  neurotype  rapport Index. décimale : PER Périodiques Résumé : Although autistic adults may establish better dyadic rapport with autistic relative to non-autistic partners, it is unclear whether this extends to group settings. The current study examined whether rapport differs between autistic groups, non-autistic groups, and mixed groups of autistic and non-autistic adults, and whether differing diagnostically from the rest of the group results in lower rapport. One hundred and forty-three adults were assigned to one of four group types of four participants each: all-autistic, all-non-autistic, non-autistic majority (three non-autistic, one autistic), and autistic majority (three autistic, one non-autistic). Groups participated in a 5-minute building activity and afterwards completed a 5-item rapport measure assessing their experience. The all-autistic groups did not differ on overall rapport from the all-non-autistic groups and had significantly higher rapport on two items (enjoying the interaction and friendliness of the group) than both types of mixed groups. At the individual level, autistic participants expressed more ease and enjoyment when interacting with other autistic adults relative to non-autistic adults, and their rapport declined as more non-autistic participants were included in the group. In contrast, rapport for non-autistic participants remained relatively consistent regardless of group composition. We discuss potential reasons why autistic participants were more affected by group composition than non-autistic participants.Lay abstract Autistic adults sometimes get along better with other autistic people compared to non-autistic people, but so far this has only been studied in two-person interactions. This study examined how well autistic and non-autistic people develop rapport in a group setting and whether rapport differs when group members share or do not share a diagnosis. We assigned 143 adults to 36 groups of four adults each. Some groups only had autistic members, some only had non-autistic members, and some were "mixed" groups of autistic and non-autistic members. Groups participated in a tower-building task for 5 minutes and afterwards completed a survey about rapport with the group. The groups of all-autistic participants expressed that their interactions were more enjoyable and friendly than the mixed groups. Autistic participants reported lower rapport when interacting with non-autistic adults, while non-autistic participants reported similar rapport whether interacting with autistic or non-autistic group members. Overall, findings are not consistent with a social deficit model of autism, as autistic adults often established rapport with partners in a group setting. Their level of rapport, however, depended strongly on the social context, particularly whether other autistic people were also in the group. En ligne : https://dx.doi.org/10.1177/13623613251320444 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Synapse: A co-designed neurodivergent peer support programme for higher education settings / Liam O?HARE ; Devon RAMEY in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1711-1726 Titre : Synapse: A co-designed neurodivergent peer support programme for higher education settings Type de document : Texte imprimé et/ou numérique Auteurs : Liam O?HARE, Auteur ; Devon RAMEY, Auteur Article en page(s) : p.1711-1726 Langues : Anglais (eng) Mots-clés : co-design study  connectedness  empowerment  higher education  neurodiversity  specialist peer mentoring programme Index. décimale : PER Périodiques Résumé : Transitioning to higher education can be challenging for neurodivergent students and they can be particularly vulnerable to experiencing stress in this new environment, resulting in higher levels of non-completion. To address this issue, this study details the co-design of a support programme for neurodivergent students in higher education. It used logic modelling workshop methodology to identify the short-term and long-term outcomes, activities and resources required for implementation. The logic model was produced during a workshop that involved a range of stakeholders, including researchers, neurodivergent and neurotypical students and disability service staff at an Irish university. The qualitative data were analysed through thematic analysis and three key outcomes were generated from the logic modelling process: 'connectedness", 'knowledge and awareness of neurodiversity" and 'empowerment". The main activities desired by stakeholders included one-to-one mentoring and group-based mentoring, which would allow neurodivergent students to establish new friendships and develop a sense of belonging within the university. The implementation factors identified were providing a dedicated space and mentor pairing. A key finding was that stakeholders did not favour traditional peer mentoring labels of 'mentor" and 'mentee". Instead, students preferred the development of a symbiotic co-mentoring relationship between peers, with both participants being referred to as 'mentors".Lay abstract Neurodivergent students may require support with the social aspects of university life. Peer mentoring describes a relationship where a more experienced student helps a less experienced student by providing advice, support and knowledge. It is an effective way to support students" transition to higher education. This study involved a wide range of stakeholders including neurodivergent students, neurotypical students, disability service staff and researchers in the design of a peer mentoring programme called Synapse. A visual representation of the proposed programme (i.e. logic model) was produced during a workshop with the stakeholders. This visual showed the key outcomes or aims of the programme that was agreed upon by the stakeholders. The workshop was audio recorded and the transcripts were analysed to highlight the main conversation themes. Stakeholders stated that neurodivergent students wanted to feel more connected to others at the university to develop a sense of belonging, they also wanted people to learn more about neurodiversity to reduce stigma and finally, they wanted to feel empowered to take control of their lives and have a voice in decision-making. The two preferred activities of the programme were one-to-one and group mentoring. Uniquely, the participants were concerned with traditional terminology around peer mentoring, in particular the terms mentor and mentee, as it inferred an unequal power dynamic in a relationship. The stakeholders believed that students in the Synapse programme should be valued and treated equally, regardless of diagnosis or experience. Therefore, all members of the Synapse programme were paired within a co-mentoring relationship. En ligne : https://dx.doi.org/10.1177/13623613251320448 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Synapse: A co-designed neurodivergent peer support programme for higher education settings [Texte imprimé et/ou numérique] / Liam O?HARE, Auteur ; Devon RAMEY, Auteur . - p.1711-1726. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1711-1726 Mots-clés : co-design study  connectedness  empowerment  higher education  neurodiversity  specialist peer mentoring programme Index. décimale : PER Périodiques Résumé : Transitioning to higher education can be challenging for neurodivergent students and they can be particularly vulnerable to experiencing stress in this new environment, resulting in higher levels of non-completion. To address this issue, this study details the co-design of a support programme for neurodivergent students in higher education. It used logic modelling workshop methodology to identify the short-term and long-term outcomes, activities and resources required for implementation. The logic model was produced during a workshop that involved a range of stakeholders, including researchers, neurodivergent and neurotypical students and disability service staff at an Irish university. The qualitative data were analysed through thematic analysis and three key outcomes were generated from the logic modelling process: 'connectedness", 'knowledge and awareness of neurodiversity" and 'empowerment". The main activities desired by stakeholders included one-to-one mentoring and group-based mentoring, which would allow neurodivergent students to establish new friendships and develop a sense of belonging within the university. The implementation factors identified were providing a dedicated space and mentor pairing. A key finding was that stakeholders did not favour traditional peer mentoring labels of 'mentor" and 'mentee". Instead, students preferred the development of a symbiotic co-mentoring relationship between peers, with both participants being referred to as 'mentors".Lay abstract Neurodivergent students may require support with the social aspects of university life. Peer mentoring describes a relationship where a more experienced student helps a less experienced student by providing advice, support and knowledge. It is an effective way to support students" transition to higher education. This study involved a wide range of stakeholders including neurodivergent students, neurotypical students, disability service staff and researchers in the design of a peer mentoring programme called Synapse. A visual representation of the proposed programme (i.e. logic model) was produced during a workshop with the stakeholders. This visual showed the key outcomes or aims of the programme that was agreed upon by the stakeholders. The workshop was audio recorded and the transcripts were analysed to highlight the main conversation themes. Stakeholders stated that neurodivergent students wanted to feel more connected to others at the university to develop a sense of belonging, they also wanted people to learn more about neurodiversity to reduce stigma and finally, they wanted to feel empowered to take control of their lives and have a voice in decision-making. The two preferred activities of the programme were one-to-one and group mentoring. Uniquely, the participants were concerned with traditional terminology around peer mentoring, in particular the terms mentor and mentee, as it inferred an unequal power dynamic in a relationship. The stakeholders believed that students in the Synapse programme should be valued and treated equally, regardless of diagnosis or experience. Therefore, all members of the Synapse programme were paired within a co-mentoring relationship. En ligne : https://dx.doi.org/10.1177/13623613251320448 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Sex-typical toy, activity, and playmate preferences in autistic and non-autistic children / Karson T F KUNG in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1727-1739 Titre : Sex-typical toy, activity, and playmate preferences in autistic and non-autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Karson T F KUNG, Auteur Article en page(s) : p.1727-1739 Langues : Anglais (eng) Mots-clés : autism  gender  play  sex Index. décimale : PER Périodiques Résumé : Play, in particular sex-typical play, is important for affective, cognitive, and social development. There is limited research on sex-typical play in autistic children. The few prior studies on this topic relied heavily on reports or involvement of caregivers/parents, did not assess cognitive abilities, and examined a limited number of sex-typical play outcomes. The present study examined sex-typical play in 120 children without intellectual disability (30 autistic boys, 35 non-autistic boys, 20 autistic girls, 35 non-autistic girls) aged 4-11?years. Vocabulary and abstract reasoning were also assessed. Consistently across all five play measures (parent-reported composite play, self-reported activity preferences, self-reported toy preferences, self-reported playmate preferences, and observed toy play), there were medium or large, and mostly significant, differences between autistic and non-autistic boys, suggesting less male-typical/more female-typical play in autistic boys. Autistic and non-autistic boys did not differ in vocabulary, abstract reasoning, or age. No consistent, clear, or significant patterns emerged in comparisons of autistic and non-autistic girls. The more non-conforming play in autistic boys concurs with certain prior findings suggesting that the autistic community is not confined to social norms and shows increased gender diversity. The potential link between the unaltered play in autistic girls and camouflaging is considered.Lay abstract In the non-autistic community, boys and girls tend to play differently, although these average differences do not apply to all the boys and girls. Little is known about similarities and differences in sex-typical play (e.g. playing with cars, playing with dolls, rough-and-tumble play, playing house) between autistic and non-autistic children. We looked at different aspects of sex-typical play such as toy, activity, and playmate preferences in autistic and non-autistic children without intellectual disability. Different methods including parent reports, self-reports, and play observation were used. We found some average differences between autistic and non-autistic boys. On average, compared with non-autistic boys, autistic boys played in a more non-conforming manner (less male-typical/more female-typical toy, activity, and playmate preferences). These findings are consistent with observations from other research studies suggesting that autistic individuals may defy social norms and express themselves in diverse ways. There were no differences between autistic and non-autistic girls. One possibility is that autistic girls may camouflage, or mask, their non-conforming play preferences, but further research is needed to test this possibility. The findings from this study can help families, professionals, and schools better understand how autistic boys and girls develop. En ligne : https://dx.doi.org/10.1177/13623613251321207 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Sex-typical toy, activity, and playmate preferences in autistic and non-autistic children [Texte imprimé et/ou numérique] / Karson T F KUNG, Auteur . - p.1727-1739. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1727-1739 Mots-clés : autism  gender  play  sex Index. décimale : PER Périodiques Résumé : Play, in particular sex-typical play, is important for affective, cognitive, and social development. There is limited research on sex-typical play in autistic children. The few prior studies on this topic relied heavily on reports or involvement of caregivers/parents, did not assess cognitive abilities, and examined a limited number of sex-typical play outcomes. The present study examined sex-typical play in 120 children without intellectual disability (30 autistic boys, 35 non-autistic boys, 20 autistic girls, 35 non-autistic girls) aged 4-11?years. Vocabulary and abstract reasoning were also assessed. Consistently across all five play measures (parent-reported composite play, self-reported activity preferences, self-reported toy preferences, self-reported playmate preferences, and observed toy play), there were medium or large, and mostly significant, differences between autistic and non-autistic boys, suggesting less male-typical/more female-typical play in autistic boys. Autistic and non-autistic boys did not differ in vocabulary, abstract reasoning, or age. No consistent, clear, or significant patterns emerged in comparisons of autistic and non-autistic girls. The more non-conforming play in autistic boys concurs with certain prior findings suggesting that the autistic community is not confined to social norms and shows increased gender diversity. The potential link between the unaltered play in autistic girls and camouflaging is considered.Lay abstract In the non-autistic community, boys and girls tend to play differently, although these average differences do not apply to all the boys and girls. Little is known about similarities and differences in sex-typical play (e.g. playing with cars, playing with dolls, rough-and-tumble play, playing house) between autistic and non-autistic children. We looked at different aspects of sex-typical play such as toy, activity, and playmate preferences in autistic and non-autistic children without intellectual disability. Different methods including parent reports, self-reports, and play observation were used. We found some average differences between autistic and non-autistic boys. On average, compared with non-autistic boys, autistic boys played in a more non-conforming manner (less male-typical/more female-typical toy, activity, and playmate preferences). These findings are consistent with observations from other research studies suggesting that autistic individuals may defy social norms and express themselves in diverse ways. There were no differences between autistic and non-autistic girls. One possibility is that autistic girls may camouflage, or mask, their non-conforming play preferences, but further research is needed to test this possibility. The findings from this study can help families, professionals, and schools better understand how autistic boys and girls develop. En ligne : https://dx.doi.org/10.1177/13623613251321207 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Who Tweets for the autistic community? A natural language processing-driven investigation / Geoffrey BIRD in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1740-1753 Titre : Who Tweets for the autistic community? A natural language processing-driven investigation Type de document : Texte imprimé et/ou numérique Auteurs : Geoffrey BIRD, Auteur Article en page(s) : p.1740-1753 Langues : Anglais (eng) Mots-clés : advocacy  autism  natural language processing  Twitter Index. décimale : PER Périodiques Résumé : The formation of autism advocacy organisations led by family members of autistic individuals led to intense criticism from some parts of the autistic community. In response to what was perceived as a misrepresentation of their interests, autistic individuals formed autistic self-advocacy groups, adopting the philosophy that autism advocacy should be led 'by" autistic people 'for" autistic people. However, recent claims that self-advocacy organisations represent only a narrow subset of the autistic community have prompted renewed debate surrounding the role of organisations in autism advocacy. While many individuals and groups have outlined their views, the debate has yet to be studied through computational means. In this study, we apply machine learning and natural language processing techniques to a large-scale collection of Tweets from organisations and individuals in autism advocacy. We conduct a specification curve analysis on the similarity of language across organisations and individuals, and find evidence to support claims of partial representation relevant to both self-advocacy groups and organisations led by non-autistic people. In introducing a novel approach to studying the long-standing conflict between different groups in the autism advocacy community, we hope to provide both organisations and individuals with new tools to help ground discussions of representation in empirical insight.Lay Abstract Some autism advocacy organisations are run by family members of autistic people, and claim to speak on behalf of autistic people. These organisations have been criticised by autistic people, who feel like autism charities do not adequately represent their true interests. In response to these organisations, autistic people have come together to form autistic self-advocacy organisations, or groups in which activists can spread awareness of autism from an autistic point-of-view. However, some people say that autistic self-advocacy organisations do not sufficiently represent the needs of all autistic people. These tensions between organisations and individuals have made it difficult to determine which organisations can make the claim that they represent all autism advocates individuals equally, instead of showing preference to a sub-group within the autism community. In this study, we try to approach this issue using computational tools to see if, in their Twitter posts, both kinds of organisations show a preference for the interests of autistic people or parents of autistic children. We do so by comparing a large body of Tweets by organisations to Tweets by autistic people and parents of autistic children. We find that both kinds of organisations match the interests of one group of autism advocates better than the other. The insight we provide has the potential to inspire new conversations and solutions to a long-standing conflict in autism advocacy. En ligne : https://dx.doi.org/10.1177/13623613251325934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Who Tweets for the autistic community? A natural language processing-driven investigation [Texte imprimé et/ou numérique] / Geoffrey BIRD, Auteur . - p.1740-1753. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1740-1753 Mots-clés : advocacy  autism  natural language processing  Twitter Index. décimale : PER Périodiques Résumé : The formation of autism advocacy organisations led by family members of autistic individuals led to intense criticism from some parts of the autistic community. In response to what was perceived as a misrepresentation of their interests, autistic individuals formed autistic self-advocacy groups, adopting the philosophy that autism advocacy should be led 'by" autistic people 'for" autistic people. However, recent claims that self-advocacy organisations represent only a narrow subset of the autistic community have prompted renewed debate surrounding the role of organisations in autism advocacy. While many individuals and groups have outlined their views, the debate has yet to be studied through computational means. In this study, we apply machine learning and natural language processing techniques to a large-scale collection of Tweets from organisations and individuals in autism advocacy. We conduct a specification curve analysis on the similarity of language across organisations and individuals, and find evidence to support claims of partial representation relevant to both self-advocacy groups and organisations led by non-autistic people. In introducing a novel approach to studying the long-standing conflict between different groups in the autism advocacy community, we hope to provide both organisations and individuals with new tools to help ground discussions of representation in empirical insight.Lay Abstract Some autism advocacy organisations are run by family members of autistic people, and claim to speak on behalf of autistic people. These organisations have been criticised by autistic people, who feel like autism charities do not adequately represent their true interests. In response to these organisations, autistic people have come together to form autistic self-advocacy organisations, or groups in which activists can spread awareness of autism from an autistic point-of-view. However, some people say that autistic self-advocacy organisations do not sufficiently represent the needs of all autistic people. These tensions between organisations and individuals have made it difficult to determine which organisations can make the claim that they represent all autism advocates individuals equally, instead of showing preference to a sub-group within the autism community. In this study, we try to approach this issue using computational tools to see if, in their Twitter posts, both kinds of organisations show a preference for the interests of autistic people or parents of autistic children. We do so by comparing a large body of Tweets by organisations to Tweets by autistic people and parents of autistic children. We find that both kinds of organisations match the interests of one group of autism advocates better than the other. The insight we provide has the potential to inspire new conversations and solutions to a long-standing conflict in autism advocacy. En ligne : https://dx.doi.org/10.1177/13623613251325934 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Sacrifice, uncertainty, and resilience: Qualitative study of U.S./Mexico border mothers of autistic children / Ana DUEÑAS ; Paul LUELMO in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1754-1768 Titre : Sacrifice, uncertainty, and resilience: Qualitative study of U.S./Mexico border mothers of autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Ana DUEÑAS, Auteur ; Paul LUELMO, Auteur Article en page(s) : p.1754-1768 Langues : Anglais (eng) Mots-clés : autism services  autism spectrum disorder (ASD)  Community-Based Participatory Research (CBPR)  Mexican mothers  U.S./Mexico border Index. décimale : PER Périodiques Résumé : The purpose of this study was to explore and document the migratory motivations and reasonings of Mexican mothers of autistic children pursuing autism services in the United States. The study was guided by the overarching research question, "What are the experiences of mothers living in the U.S./Mexico border while seeking services for their autistic children, and what social and financial resources influence their decisions?". Following a Community-Based Participatory Research approach, we collaborated with organizations and stakeholders in the development of qualitative research materials while also supporting the purposeful recruitment of caregivers who: (1) had lived in the U.S./Mexico border and moved to the United States to pursue autism services, or (2) were currently living in the U.S./Mexico border and were looking to pursue autism services in the United States. Eleven mothers participated in a two-part semi-structured interview protocol alongside a demographic form. Findings outline three global themes that describe the dynamic process of pursuing autism services and migrating to the United States: (1) stage of constant contrast between Mexico and the United States, (2) active pursuit of autism services in the United States, and (3) potential pathways to immigration. The global themes provide a systemic analysis and reflection of the current autism service system in Mexico while also highlighting the gaps in service coordination for first-generation immigrant families.Lay abstract This study aimed to understand why Mexican mothers of autistic children move to the United States to seek autism services. Using a method that involved the community, we worked with local partners to create research materials and find caregivers for the study. We focused on mothers who had either moved from the U.S./Mexico border to the United States for autism services or were planning to do so. Eleven mothers participated by completing a two-part interview and a demographic form. The results highlight three main themes that explain the complex reasons and motivations behind their decision to seek autism services in the United States: (1) stage of constant contrast between Mexico and the United States, (2) active pursuit of autism services in the United States, and (3) potential pathways to immigration. These findings also highlight the differences in autism services between the United States and Mexico and the challenges faced by immigrant families trying to get the care their children need. En ligne : https://dx.doi.org/10.1177/13623613251322059 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Sacrifice, uncertainty, and resilience: Qualitative study of U.S./Mexico border mothers of autistic children [Texte imprimé et/ou numérique] / Ana DUEÑAS, Auteur ; Paul LUELMO, Auteur . - p.1754-1768. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1754-1768 Mots-clés : autism services  autism spectrum disorder (ASD)  Community-Based Participatory Research (CBPR)  Mexican mothers  U.S./Mexico border Index. décimale : PER Périodiques Résumé : The purpose of this study was to explore and document the migratory motivations and reasonings of Mexican mothers of autistic children pursuing autism services in the United States. The study was guided by the overarching research question, "What are the experiences of mothers living in the U.S./Mexico border while seeking services for their autistic children, and what social and financial resources influence their decisions?". Following a Community-Based Participatory Research approach, we collaborated with organizations and stakeholders in the development of qualitative research materials while also supporting the purposeful recruitment of caregivers who: (1) had lived in the U.S./Mexico border and moved to the United States to pursue autism services, or (2) were currently living in the U.S./Mexico border and were looking to pursue autism services in the United States. Eleven mothers participated in a two-part semi-structured interview protocol alongside a demographic form. Findings outline three global themes that describe the dynamic process of pursuing autism services and migrating to the United States: (1) stage of constant contrast between Mexico and the United States, (2) active pursuit of autism services in the United States, and (3) potential pathways to immigration. The global themes provide a systemic analysis and reflection of the current autism service system in Mexico while also highlighting the gaps in service coordination for first-generation immigrant families.Lay abstract This study aimed to understand why Mexican mothers of autistic children move to the United States to seek autism services. Using a method that involved the community, we worked with local partners to create research materials and find caregivers for the study. We focused on mothers who had either moved from the U.S./Mexico border to the United States for autism services or were planning to do so. Eleven mothers participated by completing a two-part interview and a demographic form. The results highlight three main themes that explain the complex reasons and motivations behind their decision to seek autism services in the United States: (1) stage of constant contrast between Mexico and the United States, (2) active pursuit of autism services in the United States, and (3) potential pathways to immigration. These findings also highlight the differences in autism services between the United States and Mexico and the challenges faced by immigrant families trying to get the care their children need. En ligne : https://dx.doi.org/10.1177/13623613251322059 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Caregiver-identified strengths in children attending their first neurodevelopmental assessment: Findings from the Sydney child development research registry and development of a child strengths checklist / Lorna HANKIN ; Marie-Antoinette HODGE ; Natalie ONG ; Natalie SILOVE ; Adam J GUASTELLA in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1769-1781 Titre : Caregiver-identified strengths in children attending their first neurodevelopmental assessment: Findings from the Sydney child development research registry and development of a child strengths checklist Type de document : Texte imprimé et/ou numérique Auteurs : Lorna HANKIN, Auteur ; Marie-Antoinette HODGE, Auteur ; Natalie ONG, Auteur ; Natalie SILOVE, Auteur ; Adam J GUASTELLA, Auteur Article en page(s) : p.1769-1781 Langues : Anglais (eng) Mots-clés : assessment  autism spectrum disorders  neurodevelopment  ADHD  communication disorders  strengths Index. décimale : PER Périodiques Résumé : There has been a growing focus on the importance of understanding strengths in children with neurodevelopmental conditions and how such knowledge can support clinical practices. However, limited research has explored systematic reports of strengths from caregivers of children with neurodevelopmental conditions, most commonly autism. In this study, we explored caregiver-identified strengths in children attending their first neurodevelopmental assessment. Caregivers of 686 children attending a tertiary assessment service answered a survey question about their children?s strengths. Content analysis identified 61 unique categories of strengths, which were grouped into six themes: cognitive and intellectual, social and interpersonal, hobbies and passions, character and personality, physical, and behavioural. The most frequently reported specific strengths were kind caring, and compassionate, social and friendly, loving and affectionate, music singing and dancing, and good memory recall. The breadth of positive strengths identified here may reflect the larger population sampled or the diversity of presentations in this cohort. We then present a caregiver checklist, the Child Autism and Neurodevelopment Strengths (CANS) Checklist, that was developed with community representatives, to inform assessment and feedback of child strengths. We discuss what is required to use this knowledge to inform strengths-based practices that can support clinical practice and inform on child development and family well-being.Lay Abstract There has been a growing focus on the importance of understanding strengths in children with neurodevelopmental conditions, but there is little research exploring caregiver-reported strengths at the time of diagnostic assessment. In this study, we explored caregiver-identified strengths in 686 children who were attending a neurodevelopmental assessment. Content analysis identified 61 unique categories of strengths, which we grouped into six main themes. These six themes were cognitive and intellectual, social and interpersonal, hobbies and passions, character and personality, physical, and behavioural. The most common strengths identified by caregivers were 'kind, caring, and compassionate", 'social and friendly", 'loving and affectionate", 'music, singing, and dancing", and 'good memory recall". Based on these strengths, we present a checklist that was developed with community representatives, to make sure a strengths-based framework can be used during the diagnostic process. We discuss how we can use this knowledge to develop strengths-based practices that can support clinical practice and inform on child development and family well-being. En ligne : https://dx.doi.org/10.1177/13623613251325287 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Caregiver-identified strengths in children attending their first neurodevelopmental assessment: Findings from the Sydney child development research registry and development of a child strengths checklist [Texte imprimé et/ou numérique] / Lorna HANKIN, Auteur ; Marie-Antoinette HODGE, Auteur ; Natalie ONG, Auteur ; Natalie SILOVE, Auteur ; Adam J GUASTELLA, Auteur . - p.1769-1781. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1769-1781 Mots-clés : assessment  autism spectrum disorders  neurodevelopment  ADHD  communication disorders  strengths Index. décimale : PER Périodiques Résumé : There has been a growing focus on the importance of understanding strengths in children with neurodevelopmental conditions and how such knowledge can support clinical practices. However, limited research has explored systematic reports of strengths from caregivers of children with neurodevelopmental conditions, most commonly autism. In this study, we explored caregiver-identified strengths in children attending their first neurodevelopmental assessment. Caregivers of 686 children attending a tertiary assessment service answered a survey question about their children?s strengths. Content analysis identified 61 unique categories of strengths, which were grouped into six themes: cognitive and intellectual, social and interpersonal, hobbies and passions, character and personality, physical, and behavioural. The most frequently reported specific strengths were kind caring, and compassionate, social and friendly, loving and affectionate, music singing and dancing, and good memory recall. The breadth of positive strengths identified here may reflect the larger population sampled or the diversity of presentations in this cohort. We then present a caregiver checklist, the Child Autism and Neurodevelopment Strengths (CANS) Checklist, that was developed with community representatives, to inform assessment and feedback of child strengths. We discuss what is required to use this knowledge to inform strengths-based practices that can support clinical practice and inform on child development and family well-being.Lay Abstract There has been a growing focus on the importance of understanding strengths in children with neurodevelopmental conditions, but there is little research exploring caregiver-reported strengths at the time of diagnostic assessment. In this study, we explored caregiver-identified strengths in 686 children who were attending a neurodevelopmental assessment. Content analysis identified 61 unique categories of strengths, which we grouped into six main themes. These six themes were cognitive and intellectual, social and interpersonal, hobbies and passions, character and personality, physical, and behavioural. The most common strengths identified by caregivers were 'kind, caring, and compassionate", 'social and friendly", 'loving and affectionate", 'music, singing, and dancing", and 'good memory recall". Based on these strengths, we present a checklist that was developed with community representatives, to make sure a strengths-based framework can be used during the diagnostic process. We discuss how we can use this knowledge to develop strengths-based practices that can support clinical practice and inform on child development and family well-being. En ligne : https://dx.doi.org/10.1177/13623613251325287 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Trajectories of autism symptom severity for boys and girls across childhood / Emilio FERRER ; Meghan MILLER ; Brianna HEATH ; Derek S ANDREWS ; Sally J ROGERS ; Christine Wu NORDAHL ; Marjorie SOLOMON ; David G AMARAL in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1782-1794 Titre : Trajectories of autism symptom severity for boys and girls across childhood Type de document : Texte imprimé et/ou numérique Auteurs : Emilio FERRER, Auteur ; Meghan MILLER, Auteur ; Brianna HEATH, Auteur ; Derek S ANDREWS, Auteur ; Sally J ROGERS, Auteur ; Christine Wu NORDAHL, Auteur ; Marjorie SOLOMON, Auteur ; David G AMARAL, Auteur Article en page(s) : p.1782-1794 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  behavioral measurement  communication and language  development  diagnosis  preschool children  repetitive behaviors and interests  social cognition and social behavior  sex differences Index. décimale : PER Périodiques Résumé : Girls, more than boys, experience a decrease in the severity of autism symptoms during childhood. It is unclear, however, which specific autistic behaviors change more for girls than for boys. Trajectories of autism symptoms were evaluated using the Autism Diagnostic Observation Schedule-calibrated severity scores (ADOS-CSS). Change in the specific behavioral characteristics of autism was assessed by studying individual ADOS items for 183 children (55 girls) from age 3-to-11?years. Girls decreased in total autism symptom severity (ADOS-CSS) and restricted/repetitive behavior severity (RRB-CSS) across childhood, while boys remained stable in both. Girls showed decreasing-severity trajectories for seven ADOS items and an increasing-trajectory for one item. Boys showed decreasing-severity trajectories for six items and increasing-severity trajectories for three items. Girls with higher ADOS-CSS at age 3 were more likely to decrease in total symptom severity than other girls. Girls in our study mostly improved or remained stable in autism symptom severity and its specific behaviors during childhood, especially behaviors related to being socially engaged and responsive. Boys" symptom change was variable over time and included both improvement and worsening, especially in social behaviors that are key to interaction. Girls with high early severity levels can potentially decrease substantially in severity during childhood.Lay Abstract The severity of overall autism symptoms tend to decrease more in autistic girls than in autistic boys during childhood, but we do not know which specific behaviors drive this difference. We studied how specific behaviors characteristic of autism change for girls and boys across childhood. We found that girls mostly improve or remain stable in the severity level of their autism symptoms and its specific behaviors during childhood. They improved mostly in behaviors related to being socially engaged and responsive to others. Furthermore, we found that it is possible for girls with high early autism symptoms to show major improvement during childhood. Boys improved in some specific behaviors but worsened in others. Boys worsened in some behaviors that are key to engaging in social interactions. En ligne : https://dx.doi.org/10.1177/13623613251325317 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Trajectories of autism symptom severity for boys and girls across childhood [Texte imprimé et/ou numérique] / Emilio FERRER, Auteur ; Meghan MILLER, Auteur ; Brianna HEATH, Auteur ; Derek S ANDREWS, Auteur ; Sally J ROGERS, Auteur ; Christine Wu NORDAHL, Auteur ; Marjorie SOLOMON, Auteur ; David G AMARAL, Auteur . - p.1782-1794. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1782-1794 Mots-clés : autism spectrum disorders  behavioral measurement  communication and language  development  diagnosis  preschool children  repetitive behaviors and interests  social cognition and social behavior  sex differences Index. décimale : PER Périodiques Résumé : Girls, more than boys, experience a decrease in the severity of autism symptoms during childhood. It is unclear, however, which specific autistic behaviors change more for girls than for boys. Trajectories of autism symptoms were evaluated using the Autism Diagnostic Observation Schedule-calibrated severity scores (ADOS-CSS). Change in the specific behavioral characteristics of autism was assessed by studying individual ADOS items for 183 children (55 girls) from age 3-to-11?years. Girls decreased in total autism symptom severity (ADOS-CSS) and restricted/repetitive behavior severity (RRB-CSS) across childhood, while boys remained stable in both. Girls showed decreasing-severity trajectories for seven ADOS items and an increasing-trajectory for one item. Boys showed decreasing-severity trajectories for six items and increasing-severity trajectories for three items. Girls with higher ADOS-CSS at age 3 were more likely to decrease in total symptom severity than other girls. Girls in our study mostly improved or remained stable in autism symptom severity and its specific behaviors during childhood, especially behaviors related to being socially engaged and responsive. Boys" symptom change was variable over time and included both improvement and worsening, especially in social behaviors that are key to interaction. Girls with high early severity levels can potentially decrease substantially in severity during childhood.Lay Abstract The severity of overall autism symptoms tend to decrease more in autistic girls than in autistic boys during childhood, but we do not know which specific behaviors drive this difference. We studied how specific behaviors characteristic of autism change for girls and boys across childhood. We found that girls mostly improve or remain stable in the severity level of their autism symptoms and its specific behaviors during childhood. They improved mostly in behaviors related to being socially engaged and responsive to others. Furthermore, we found that it is possible for girls with high early autism symptoms to show major improvement during childhood. Boys improved in some specific behaviors but worsened in others. Boys worsened in some behaviors that are key to engaging in social interactions. En ligne : https://dx.doi.org/10.1177/13623613251325317 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Effects of micronutrients on neurodevelopmental disorders through the mediation of brain structure and function: A two-step Mendelian randomization analysis / Jiatong DENG ; Weiyan HUANG ; Wanling CHEN ; Lijuan WEI ; Guanghui RAN ; Lili LIU ; Zhongyi LI ; Meiliang LIU ; Dongping HUANG ; Shun LIU ; Xiaoyun ZENG ; Lijun WANG in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1795-1806 Titre : Effects of micronutrients on neurodevelopmental disorders through the mediation of brain structure and function: A two-step Mendelian randomization analysis Type de document : Texte imprimé et/ou numérique Auteurs : Jiatong DENG, Auteur ; Weiyan HUANG, Auteur ; Wanling CHEN, Auteur ; Lijuan WEI, Auteur ; Guanghui RAN, Auteur ; Lili LIU, Auteur ; Zhongyi LI, Auteur ; Meiliang LIU, Auteur ; Dongping HUANG, Auteur ; Shun LIU, Auteur ; Xiaoyun ZENG, Auteur ; Lijun WANG, Auteur Article en page(s) : p.1795-1806 Langues : Anglais (eng) Mots-clés : brain imaging-derived phenotypes  mediation analysis  Mendelian randomization  micronutrients  neurodevelopmental disorders Index. décimale : PER Périodiques Résumé : The physiological functions of micronutrients in neurodevelopment are well documented, but their protective effects on neurodevelopmental disorders remain controversial. We assessed the associations between micronutrients and three main neurodevelopmental disorders, that is, autism spectrum disorder (18,381 cases), attention-deficit/hyperactivity disorder (38,691 cases), and Tourette?s syndrome (4,819 cases), using two-sample Mendelian randomization analyses. In addition, we estimated the mediation role of brain imaging-derived phenotypes (n = 33,224) in these associations. Each 1 SD (0.08 mmol/L) increase in serum magnesium concentration was associated with a 16% reduced risk of autism spectrum disorder (odds ratio 0.84, 95% confidence interval 0.72-0.98). Each 1 SD (65??mol/L) increase in blood erythrocyte zinc concentration was associated with an 8% reduced risk of attention-deficit/hyperactivity disorder (0.92, 0.86-0.98). Each 1 SD (173?pmol/L) increase in serum vitamin B12 concentration was associated with a 19% reduced risk of Tourette?s syndrome (0.81, 0.68-0.97). These effects were partly mediated by alterations in multiple brain imaging-derived phenotypes, with mediated proportions ranging from 5.84% to 32.66%. Our results suggested that interventions targeting micronutrient deficiencies could be a practical and effective strategy for preventing neurodevelopmental disorders, especially in populations at high risk of malnutrition.Lay abstract Increasing evidence highlights the critical role of micronutrients in neurodevelopment. However, the causal relationship between micronutrients and neurodevelopmental disorders remains unclear. Using genetic variants associated with micronutrient levels and neurodevelopmental disorders, our study revealed the protective effects of magnesium on autism spectrum disorders, zinc on attention-deficit/hyperactivity disorder, and vitamin B12 on Tourette?s syndrome. These protective effects were partially mediated through alterations in brain structure, function, and connectivity. Our findings emphasize the importance of adequate micronutrient intake for healthy neurodevelopment and may support the development of intervention strategies aimed at preventing neurodevelopmental disorders by addressing micronutrient deficiencies. En ligne : https://dx.doi.org/10.1177/13623613251326702 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Effects of micronutrients on neurodevelopmental disorders through the mediation of brain structure and function: A two-step Mendelian randomization analysis [Texte imprimé et/ou numérique] / Jiatong DENG, Auteur ; Weiyan HUANG, Auteur ; Wanling CHEN, Auteur ; Lijuan WEI, Auteur ; Guanghui RAN, Auteur ; Lili LIU, Auteur ; Zhongyi LI, Auteur ; Meiliang LIU, Auteur ; Dongping HUANG, Auteur ; Shun LIU, Auteur ; Xiaoyun ZENG, Auteur ; Lijun WANG, Auteur . - p.1795-1806. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1795-1806 Mots-clés : brain imaging-derived phenotypes  mediation analysis  Mendelian randomization  micronutrients  neurodevelopmental disorders Index. décimale : PER Périodiques Résumé : The physiological functions of micronutrients in neurodevelopment are well documented, but their protective effects on neurodevelopmental disorders remain controversial. We assessed the associations between micronutrients and three main neurodevelopmental disorders, that is, autism spectrum disorder (18,381 cases), attention-deficit/hyperactivity disorder (38,691 cases), and Tourette?s syndrome (4,819 cases), using two-sample Mendelian randomization analyses. In addition, we estimated the mediation role of brain imaging-derived phenotypes (n = 33,224) in these associations. Each 1 SD (0.08 mmol/L) increase in serum magnesium concentration was associated with a 16% reduced risk of autism spectrum disorder (odds ratio 0.84, 95% confidence interval 0.72-0.98). Each 1 SD (65??mol/L) increase in blood erythrocyte zinc concentration was associated with an 8% reduced risk of attention-deficit/hyperactivity disorder (0.92, 0.86-0.98). Each 1 SD (173?pmol/L) increase in serum vitamin B12 concentration was associated with a 19% reduced risk of Tourette?s syndrome (0.81, 0.68-0.97). These effects were partly mediated by alterations in multiple brain imaging-derived phenotypes, with mediated proportions ranging from 5.84% to 32.66%. Our results suggested that interventions targeting micronutrient deficiencies could be a practical and effective strategy for preventing neurodevelopmental disorders, especially in populations at high risk of malnutrition.Lay abstract Increasing evidence highlights the critical role of micronutrients in neurodevelopment. However, the causal relationship between micronutrients and neurodevelopmental disorders remains unclear. Using genetic variants associated with micronutrient levels and neurodevelopmental disorders, our study revealed the protective effects of magnesium on autism spectrum disorders, zinc on attention-deficit/hyperactivity disorder, and vitamin B12 on Tourette?s syndrome. These protective effects were partially mediated through alterations in brain structure, function, and connectivity. Our findings emphasize the importance of adequate micronutrient intake for healthy neurodevelopment and may support the development of intervention strategies aimed at preventing neurodevelopmental disorders by addressing micronutrient deficiencies. En ligne : https://dx.doi.org/10.1177/13623613251326702 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Correlates of self-reported life satisfaction among autistic youth with and without intellectual disability / Leann SMITH DAWALT ; Meghan M BURKE ; Julie Lounds TAYLOR in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1807-1818 Titre : Correlates of self-reported life satisfaction among autistic youth with and without intellectual disability Type de document : Texte imprimé et/ou numérique Auteurs : Leann SMITH DAWALT, Auteur ; Meghan M BURKE, Auteur ; Julie Lounds TAYLOR, Auteur Article en page(s) : p.1807-1818 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  Satisfaction with Life Scale  subjective well-being  transition-aged youth Index. décimale : PER Périodiques Résumé : Compared to their nonautistic peers, lower levels of life satisfaction have been reported by autistic individuals. It is unclear, however, whether autistic individuals with intellectual disability report similar levels of life satisfaction as autistic individuals without intellectual disability or which characteristics are associated with life satisfaction. This study sought to examine differences in levels of self-reported life satisfaction across those with and without intellectual disability and explore correlates of life satisfaction in a sample of 35 autistic youth with intellectual disability and 99 autistic youth without intellectual disability. No difference in self-reported life satisfaction was detected between autistic youth with and without intellectual disability. Greater self-reported life satisfaction was associated with higher self-determination for autistic youth without intellectual disability. For autistic youth with intellectual disability, greater self-reported life satisfaction was related to more frequent social participation, lower parent stress, and fewer unmet service needs. Unmet service needs and parent stress were significantly stronger correlates of life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Although the sample size of autistic youth with intellectual disability was small, these findings suggest the importance of considering heterogeneity among individuals on the autism spectrum when seeking to understand their well-being.Lay abstract Autistic people report lower life satisfaction compared to people without autism. It is unclear whether autistic people with intellectual disability report similar levels of life satisfaction to autistic people without intellectual disability. In this study, we did not find a difference in levels of life satisfaction for autistic youth with intellectual disability compared to autistic youth without intellectual disability. We also identified factors that might promote better life satisfaction. Higher self-determination was related to higher life satisfaction for autistic youth without intellectual disability. For autistic youth with intellectual disability, more frequent social participation, lower parent stress, and fewer unmet service needs were associated with higher life satisfaction. Unmet service needs and parent stress were more strongly related to life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Our findings suggest that taking a more individualized approach to support the well-being of autistic youth is important. En ligne : https://dx.doi.org/10.1177/13623613251327347 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Correlates of self-reported life satisfaction among autistic youth with and without intellectual disability [Texte imprimé et/ou numérique] / Leann SMITH DAWALT, Auteur ; Meghan M BURKE, Auteur ; Julie Lounds TAYLOR, Auteur . - p.1807-1818. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1807-1818 Mots-clés : autism spectrum disorder  Satisfaction with Life Scale  subjective well-being  transition-aged youth Index. décimale : PER Périodiques Résumé : Compared to their nonautistic peers, lower levels of life satisfaction have been reported by autistic individuals. It is unclear, however, whether autistic individuals with intellectual disability report similar levels of life satisfaction as autistic individuals without intellectual disability or which characteristics are associated with life satisfaction. This study sought to examine differences in levels of self-reported life satisfaction across those with and without intellectual disability and explore correlates of life satisfaction in a sample of 35 autistic youth with intellectual disability and 99 autistic youth without intellectual disability. No difference in self-reported life satisfaction was detected between autistic youth with and without intellectual disability. Greater self-reported life satisfaction was associated with higher self-determination for autistic youth without intellectual disability. For autistic youth with intellectual disability, greater self-reported life satisfaction was related to more frequent social participation, lower parent stress, and fewer unmet service needs. Unmet service needs and parent stress were significantly stronger correlates of life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Although the sample size of autistic youth with intellectual disability was small, these findings suggest the importance of considering heterogeneity among individuals on the autism spectrum when seeking to understand their well-being.Lay abstract Autistic people report lower life satisfaction compared to people without autism. It is unclear whether autistic people with intellectual disability report similar levels of life satisfaction to autistic people without intellectual disability. In this study, we did not find a difference in levels of life satisfaction for autistic youth with intellectual disability compared to autistic youth without intellectual disability. We also identified factors that might promote better life satisfaction. Higher self-determination was related to higher life satisfaction for autistic youth without intellectual disability. For autistic youth with intellectual disability, more frequent social participation, lower parent stress, and fewer unmet service needs were associated with higher life satisfaction. Unmet service needs and parent stress were more strongly related to life satisfaction for youth with intellectual disability compared to youth without intellectual disability. Our findings suggest that taking a more individualized approach to support the well-being of autistic youth is important. En ligne : https://dx.doi.org/10.1177/13623613251327347 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Motor and socio-cognitive mechanisms explaining peers" synchronization of joint action across development in autistic and non-autistic children / Yael ESTRUGO ; Shahar BAR YEHUDA ; Nirit BAUMINGER-ZVIELY in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1819-1834 Titre : Motor and socio-cognitive mechanisms explaining peers" synchronization of joint action across development in autistic and non-autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Yael ESTRUGO, Auteur ; Shahar BAR YEHUDA, Auteur ; Nirit BAUMINGER-ZVIELY, Auteur Article en page(s) : p.1819-1834 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  developmental patterns  joint action  motor abilities  motor coordination  theory of mind Index. décimale : PER Périodiques Résumé : When partners coordinate their movement in time and space to reach a goal, they perform joint action, an important part of every interaction. Joint action involves motor abilities and socio-cognitive skills like theory of mind. Autistic children?s lower joint motor coordination (joint action) abilities as well as their motor functioning and theory of mind difficulties may interfere with efficient peer interaction. However, the shared contribution of motor and theory of mind to partners" joint action was not yet explored. This study investigated those contributors (motor and theory of mind) along with group and age differences in 84 autistic children ages 6-16?years and 64 non-autistic children matched by age, sex, and IQ across three age-groups: early-childhood, preadolescence, and adolescence. Basic and advanced theory of mind skills and most motor tasks were higher among adolescents versus early-childhood. However, the autistic group consistently underperformed the non-autistic group in basic and advanced theory of mind levels and in all gross- and fine-motor tasks across all age-groups, revealing unique motor development characteristics in autism. A significant joint full mediation effect emerged for motor and theory of mind skills on joint action performance in both study groups. Understanding that motor and theory of mind skills together underlie joint action opens up a new channel of intervention to facilitate peer interaction.Lay abstract When two or more people move together in a coordinated way at the same time and in the same place, they perform "joint action," which is an important part of everyday social interaction. Joint action involves the activation of both motor skills and the social-cognitive understanding of others" thoughts, feelings, and desires-their ability to hold "Theory of Mind." Motor functioning and Theory of Mind may be challenging for autistic individuals. We wanted to investigate how motor skills and the ability to understand others" minds develop in autistic and non-autistic children and adolescents and to explore how these skills contribute to joint action performance. We compared 84 autistic children with 64 non-autistic children matched by age, sex, and IQ. Among these 6- to 16-year-olds, we examined three age-groups: early-childhood, preadolescence, and adolescence. We found that older participants, both in the autistic and non-autistic groups, showed better abilities than younger participants in basic and advanced Theory of Mind skills and in most motor tasks. However, non-autistic children outperformed autistic children in Theory of Mind (at basic and advanced levels) and also in all gross-motor and fine-motor tasks, across all age-groups. The autistic group?s motor patterns were characterized by greater variability in tasks" rated difficulty levels compared to their non-autistic peers, who showed more intact, uniform patterns. Both motor and Theory of Mind skills were found to significantly impact joint action performance in both study groups. These findings are important for understanding joint action?s underlying mechanisms and for refining social intervention programs for autistic individuals. En ligne : https://dx.doi.org/10.1177/13623613251328437 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Motor and socio-cognitive mechanisms explaining peers" synchronization of joint action across development in autistic and non-autistic children [Texte imprimé et/ou numérique] / Yael ESTRUGO, Auteur ; Shahar BAR YEHUDA, Auteur ; Nirit BAUMINGER-ZVIELY, Auteur . - p.1819-1834. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1819-1834 Mots-clés : autism spectrum disorder  developmental patterns  joint action  motor abilities  motor coordination  theory of mind Index. décimale : PER Périodiques Résumé : When partners coordinate their movement in time and space to reach a goal, they perform joint action, an important part of every interaction. Joint action involves motor abilities and socio-cognitive skills like theory of mind. Autistic children?s lower joint motor coordination (joint action) abilities as well as their motor functioning and theory of mind difficulties may interfere with efficient peer interaction. However, the shared contribution of motor and theory of mind to partners" joint action was not yet explored. This study investigated those contributors (motor and theory of mind) along with group and age differences in 84 autistic children ages 6-16?years and 64 non-autistic children matched by age, sex, and IQ across three age-groups: early-childhood, preadolescence, and adolescence. Basic and advanced theory of mind skills and most motor tasks were higher among adolescents versus early-childhood. However, the autistic group consistently underperformed the non-autistic group in basic and advanced theory of mind levels and in all gross- and fine-motor tasks across all age-groups, revealing unique motor development characteristics in autism. A significant joint full mediation effect emerged for motor and theory of mind skills on joint action performance in both study groups. Understanding that motor and theory of mind skills together underlie joint action opens up a new channel of intervention to facilitate peer interaction.Lay abstract When two or more people move together in a coordinated way at the same time and in the same place, they perform "joint action," which is an important part of everyday social interaction. Joint action involves the activation of both motor skills and the social-cognitive understanding of others" thoughts, feelings, and desires-their ability to hold "Theory of Mind." Motor functioning and Theory of Mind may be challenging for autistic individuals. We wanted to investigate how motor skills and the ability to understand others" minds develop in autistic and non-autistic children and adolescents and to explore how these skills contribute to joint action performance. We compared 84 autistic children with 64 non-autistic children matched by age, sex, and IQ. Among these 6- to 16-year-olds, we examined three age-groups: early-childhood, preadolescence, and adolescence. We found that older participants, both in the autistic and non-autistic groups, showed better abilities than younger participants in basic and advanced Theory of Mind skills and in most motor tasks. However, non-autistic children outperformed autistic children in Theory of Mind (at basic and advanced levels) and also in all gross-motor and fine-motor tasks, across all age-groups. The autistic group?s motor patterns were characterized by greater variability in tasks" rated difficulty levels compared to their non-autistic peers, who showed more intact, uniform patterns. Both motor and Theory of Mind skills were found to significantly impact joint action performance in both study groups. These findings are important for understanding joint action?s underlying mechanisms and for refining social intervention programs for autistic individuals. En ligne : https://dx.doi.org/10.1177/13623613251328437 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Caregiver behavioral changes mediate the effects of naturalistic developmental behavioral interventions: Combining evidence from three randomized controlled trials / Ji Eun HAN ; Hallie BROWN ; Catherine LORD ; Sally ROGERS ; Annette ESTES ; Connie KASARI ; Andrew PICKLES ; So Hyun KIM in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1835-1848 Titre : Caregiver behavioral changes mediate the effects of naturalistic developmental behavioral interventions: Combining evidence from three randomized controlled trials Type de document : Texte imprimé et/ou numérique Auteurs : Ji Eun HAN, Auteur ; Hallie BROWN, Auteur ; Catherine LORD, Auteur ; Sally ROGERS, Auteur ; Annette ESTES, Auteur ; Connie KASARI, Auteur ; Andrew PICKLES, Auteur ; So Hyun KIM, Auteur Article en page(s) : p.1835-1848 Langues : Anglais (eng) Mots-clés : autism  naturalistic developmental behavioral interventions  treatment mechanisms Index. décimale : PER Périodiques Résumé : Naturalistic developmental behavioral interventions target developmentally appropriate skills in young children with autism spectrum disorders using behavioral techniques in naturalistic interactions. Naturalistic developmental behavioral interventions demonstrate strong empirical support and frequently utilize caregiver training of intervention strategies. However, our understanding of the mechanisms of change linked to naturalistic developmental behavioral interventions remains limited. Based on retrospective, secondary data analyses from three previously conducted randomized controlled trials of caregiver-mediated naturalistic developmental behavioral interventions, this study examined the direct effect of intervention on caregiver naturalistic developmental behavioral intervention strategy use and how caregiver changes mediate intervention effects on children?s social communication. A total of 419 videos from 229 dyads consisting of autistic children (M = 32.5?months/ages 1-5 years) and caregivers were included in analyses using the masked ratings of the measure of naturalistic developmental behavioral intervention strategy implementation-caregiver changes (MONSI-CC) and brief observation of social communication change (BOSCC-SC). Using longitudinal mediation analyses, we examined the mediation effect of caregiver behavioral changes on children?s outcomes. Results demonstrated a significant intervention effect on changes of caregiver naturalistic developmental behavioral intervention strategy use (MONSI-CC) and of changeds of caregiver strategy use (MONSI-CC) on child social communication change (BOSCC-SC) scores, but no overall total effect of intervention on changes of child social communication (BOSCC-SC). This study demonstrates the mediating role of caregiver behavior on the child intervention response, a first step toward better understanding underlying mechanisms in naturalistic developmental behavioral interventions.Lay Abstract Naturalistic developmental behavioral interventions use behavioral techniques in naturalistic interactions and settings. Naturalistic developmental behavioral interventions also teach caregivers to use strategies to enhance social communication in their children with autism spectrum disorder. Naturalistic developmental behavioral interventions are effective in supporting young autistic children but how naturalistic developmental behavioral interventions work ("underlying mechanisms") is not known yet. Therefore, by applying new instruments to videos already collected from the three previously conducted randomized controlled trials of caregiver-mediated naturalistic developmental behavioral interventions, we examined how caregivers change in their strategy use over the course of intervention and how that relates to changes in social communication in their autistic children. A total of 419 videos from 229 dyads consisting of autistic children (M = 32.5?months/ages 1-5 years) and caregivers were included in analyses using two measures, one for the caregiver behavioral changes (the measure of naturalistic developmental behavioral intervention strategy implementation-caregiver changes [MONSI-CC]), and another for the children?s social communication (the brief observation of social communication change [BOSCC-SC]). We found that naturalistic developmental behavioral interventions were effective in leading to increased mastery of caregiver naturalistic developmental behavioral intervention strategy use, which then affected the changes in child?s social communication skills. However, we found no direct effect of treatment for child social communication skills. This study highlights the mediating role of caregiver behavior on the child intervention response, supporting the importance of involving caregivers as partners in the intervention for young autistic children. En ligne : https://dx.doi.org/10.1177/13623613251328463 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Caregiver behavioral changes mediate the effects of naturalistic developmental behavioral interventions: Combining evidence from three randomized controlled trials [Texte imprimé et/ou numérique] / Ji Eun HAN, Auteur ; Hallie BROWN, Auteur ; Catherine LORD, Auteur ; Sally ROGERS, Auteur ; Annette ESTES, Auteur ; Connie KASARI, Auteur ; Andrew PICKLES, Auteur ; So Hyun KIM, Auteur . - p.1835-1848. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1835-1848 Mots-clés : autism  naturalistic developmental behavioral interventions  treatment mechanisms Index. décimale : PER Périodiques Résumé : Naturalistic developmental behavioral interventions target developmentally appropriate skills in young children with autism spectrum disorders using behavioral techniques in naturalistic interactions. Naturalistic developmental behavioral interventions demonstrate strong empirical support and frequently utilize caregiver training of intervention strategies. However, our understanding of the mechanisms of change linked to naturalistic developmental behavioral interventions remains limited. Based on retrospective, secondary data analyses from three previously conducted randomized controlled trials of caregiver-mediated naturalistic developmental behavioral interventions, this study examined the direct effect of intervention on caregiver naturalistic developmental behavioral intervention strategy use and how caregiver changes mediate intervention effects on children?s social communication. A total of 419 videos from 229 dyads consisting of autistic children (M = 32.5?months/ages 1-5 years) and caregivers were included in analyses using the masked ratings of the measure of naturalistic developmental behavioral intervention strategy implementation-caregiver changes (MONSI-CC) and brief observation of social communication change (BOSCC-SC). Using longitudinal mediation analyses, we examined the mediation effect of caregiver behavioral changes on children?s outcomes. Results demonstrated a significant intervention effect on changes of caregiver naturalistic developmental behavioral intervention strategy use (MONSI-CC) and of changeds of caregiver strategy use (MONSI-CC) on child social communication change (BOSCC-SC) scores, but no overall total effect of intervention on changes of child social communication (BOSCC-SC). This study demonstrates the mediating role of caregiver behavior on the child intervention response, a first step toward better understanding underlying mechanisms in naturalistic developmental behavioral interventions.Lay Abstract Naturalistic developmental behavioral interventions use behavioral techniques in naturalistic interactions and settings. Naturalistic developmental behavioral interventions also teach caregivers to use strategies to enhance social communication in their children with autism spectrum disorder. Naturalistic developmental behavioral interventions are effective in supporting young autistic children but how naturalistic developmental behavioral interventions work ("underlying mechanisms") is not known yet. Therefore, by applying new instruments to videos already collected from the three previously conducted randomized controlled trials of caregiver-mediated naturalistic developmental behavioral interventions, we examined how caregivers change in their strategy use over the course of intervention and how that relates to changes in social communication in their autistic children. A total of 419 videos from 229 dyads consisting of autistic children (M = 32.5?months/ages 1-5 years) and caregivers were included in analyses using two measures, one for the caregiver behavioral changes (the measure of naturalistic developmental behavioral intervention strategy implementation-caregiver changes [MONSI-CC]), and another for the children?s social communication (the brief observation of social communication change [BOSCC-SC]). We found that naturalistic developmental behavioral interventions were effective in leading to increased mastery of caregiver naturalistic developmental behavioral intervention strategy use, which then affected the changes in child?s social communication skills. However, we found no direct effect of treatment for child social communication skills. This study highlights the mediating role of caregiver behavior on the child intervention response, supporting the importance of involving caregivers as partners in the intervention for young autistic children. En ligne : https://dx.doi.org/10.1177/13623613251328463 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Mindfulness and parenting stress among parents of autistic children: The mediation of resilience and psychological flexibility / Dali LU ; Tsz Ying Christine NG ; Pui Hing CHAU ; Lily Man Lee CHAN ; Jojo Yan Yan KWOK in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1849-1863 Titre : Mindfulness and parenting stress among parents of autistic children: The mediation of resilience and psychological flexibility Type de document : Texte imprimé et/ou numérique Auteurs : Dali LU, Auteur ; Tsz Ying Christine NG, Auteur ; Pui Hing CHAU, Auteur ; Lily Man Lee CHAN, Auteur ; Jojo Yan Yan KWOK, Auteur Article en page(s) : p.1849-1863 Langues : Anglais (eng) Mots-clés : Autism spectrum disorder  mediation analysis  mindfulness  parenting stress  psychological flexibility  resilience Index. décimale : PER Périodiques Résumé : High parenting stress is associated with diminished quality of life in parents and more problem behaviors in autistic children. Mindfulness-based interventions have demonstrated efficacy in mitigating parenting stress. Psychological flexibility and resilience have been recognized as protective factors against psychological distress. However, the extent to which psychological flexibility and resilience mediate the effect of mindfulness on parenting stress among parents of autistic children remains unclear. This cross-sectional study examined the mediating roles of psychological flexibility and resilience in the relationship between mindfulness and parenting stress. We recruited a convenience sample of 181 Chinese parents of autistic children from Shenzhen Longhua Maternity and Child Healthcare Hospital in Shenzhen, China. This study assessed characteristics, parents" mindfulness, psychological flexibility, resilience, and parenting stress. Results indicated that parents experienced considerable parenting stress. Correlation analysis found that higher mindfulness, psychological flexibility, and resilience were associated with lower parenting stress. After controlling for children?s age, gender, core symptom severity, parents" age, gender, marital status, and education levels, psychological flexibility and resilience completely mediated the relationship between mindfulness and parenting stress. These findings suggest that multicomponent psychological interventions may enhance the mental health of parents of children with autism, warranting further investigation.Lay Abstract Raising a child with autism spectrum disorder can be very stressful for parents, and this stress can lead to serious problems, like diminished quality of life in parents and more challenging behaviors in autistic children. But there?s something called mindfulness that can help parents feel less stressed. Mindfulness is like training your mind to stay calm and focused. It?s like learning to take a deep breath and find calm in a busy day. Our study in China investigated 181 parents of children with autism from Shenzhen Longhua Maternity and Child Healthcare Hospital in Shenzhen, China. We wanted to see if two things-being able to bounce back from hard times (resilience) and being flexible in how you think and act (psychological flexibility)-help mindfulness work its magic in easing stress. We found that more mindful parents also felt less stressed. Moreover, having psychological flexibility and resilience seemed to be the reason why mindfulness was so helpful. After controlling for covariates including children?s age, gender, core symptom severity, parents" age, gender, marital status, occupational status, and education levels, the effects of mindfulness on stress still existed. This tells us that programs that teach mindfulness, along with how to build resilience and be more flexible in thinking, could make a difference for parents of children with autism. It could help them feel less stressed and more at peace. En ligne : https://dx.doi.org/10.1177/13623613251328465 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Mindfulness and parenting stress among parents of autistic children: The mediation of resilience and psychological flexibility [Texte imprimé et/ou numérique] / Dali LU, Auteur ; Tsz Ying Christine NG, Auteur ; Pui Hing CHAU, Auteur ; Lily Man Lee CHAN, Auteur ; Jojo Yan Yan KWOK, Auteur . - p.1849-1863. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1849-1863 Mots-clés : Autism spectrum disorder  mediation analysis  mindfulness  parenting stress  psychological flexibility  resilience Index. décimale : PER Périodiques Résumé : High parenting stress is associated with diminished quality of life in parents and more problem behaviors in autistic children. Mindfulness-based interventions have demonstrated efficacy in mitigating parenting stress. Psychological flexibility and resilience have been recognized as protective factors against psychological distress. However, the extent to which psychological flexibility and resilience mediate the effect of mindfulness on parenting stress among parents of autistic children remains unclear. This cross-sectional study examined the mediating roles of psychological flexibility and resilience in the relationship between mindfulness and parenting stress. We recruited a convenience sample of 181 Chinese parents of autistic children from Shenzhen Longhua Maternity and Child Healthcare Hospital in Shenzhen, China. This study assessed characteristics, parents" mindfulness, psychological flexibility, resilience, and parenting stress. Results indicated that parents experienced considerable parenting stress. Correlation analysis found that higher mindfulness, psychological flexibility, and resilience were associated with lower parenting stress. After controlling for children?s age, gender, core symptom severity, parents" age, gender, marital status, and education levels, psychological flexibility and resilience completely mediated the relationship between mindfulness and parenting stress. These findings suggest that multicomponent psychological interventions may enhance the mental health of parents of children with autism, warranting further investigation.Lay Abstract Raising a child with autism spectrum disorder can be very stressful for parents, and this stress can lead to serious problems, like diminished quality of life in parents and more challenging behaviors in autistic children. But there?s something called mindfulness that can help parents feel less stressed. Mindfulness is like training your mind to stay calm and focused. It?s like learning to take a deep breath and find calm in a busy day. Our study in China investigated 181 parents of children with autism from Shenzhen Longhua Maternity and Child Healthcare Hospital in Shenzhen, China. We wanted to see if two things-being able to bounce back from hard times (resilience) and being flexible in how you think and act (psychological flexibility)-help mindfulness work its magic in easing stress. We found that more mindful parents also felt less stressed. Moreover, having psychological flexibility and resilience seemed to be the reason why mindfulness was so helpful. After controlling for covariates including children?s age, gender, core symptom severity, parents" age, gender, marital status, occupational status, and education levels, the effects of mindfulness on stress still existed. This tells us that programs that teach mindfulness, along with how to build resilience and be more flexible in thinking, could make a difference for parents of children with autism. It could help them feel less stressed and more at peace. En ligne : https://dx.doi.org/10.1177/13623613251328465 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Pilot randomized controlled trial of MINDful TIME, a novel telehealth mindfulness-based intervention for autistic adolescents and their caregivers / Melissa M MITCHELL ; Hannah Honda ; Amanda MALLIGO ; Summer BOYD ; Broc A PAGNI ; B BLAIR BRADEN in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1864-1882 Titre : Pilot randomized controlled trial of MINDful TIME, a novel telehealth mindfulness-based intervention for autistic adolescents and their caregivers Type de document : Texte imprimé et/ou numérique Auteurs : Melissa M MITCHELL, Auteur ; Hannah Honda, Auteur ; Amanda MALLIGO, Auteur ; Summer BOYD, Auteur ; Broc A PAGNI, Auteur ; B BLAIR BRADEN, Auteur Article en page(s) : p.1864-1882 Langues : Anglais (eng) Mots-clés : adolescents  autism  caregivers  mindfulness-based intervention  mobile app  telehealth Index. décimale : PER Périodiques Résumé : A growing body of research suggests that mindfulness-based interventions may be a valuable method for reducing internalizing symptoms in autistic individuals. The current study extends this work using an effectiveness-implementation hybrid type 1 study. In this parallel randomized controlled trial, we examined a novel telehealth intervention for autistic adolescents and their caregivers. MINDful TIME includes eight weekly group meetings and regular use of a commercially available mindfulness meditation app. Participants were 42 adolescent-parent dyads randomized to the treatment or delayed treatment control (DTC) group. The program was implemented with fidelity (91.24%-94.78%), and 90% of treatment group dyads completed the program. On average, participants attended?>90% of sessions and reported high acceptability. Treatment group adolescents demonstrated statistically and clinically significant reductions in parent-reported depression symptoms relative to DTC (F(1, 34) = 7.31, p = 0.01, ?p2 = 0.18). Female adolescents in the treatment group showed significant reductions in parent-reported anxiety symptoms (F(1, 34) = 4.22, p = 0.05, ?p2 = 0.11). Exploratory analyses indicated treatment-related improvements in adolescent executive functioning, parent mindfulness and well-being, and adolescent-parent relationship dysfunction. Findings warrant future examination of MINDful TIME to address well-documented challenges with mental health in this population. This trial was registered on clinicaltrials.gov (NCT05685589).Lay abstract Previous research studies have found that mindfulness (i.e. focused attention on, and acceptance of, the present moment) training programs can reduce stress, depression, and anxiety. However, more research is needed to understand whether mindfulness strategies are helpful for autistic teens. We examined a new telehealth intervention for autistic teens and their caregivers. MINDful TIME is an 8-week group program that meets weekly through Zoom meetings. Participants learn mindfulness strategies through didactic lessons and using a commercially available mindfulness meditation mobile app. We randomly assigned 42 teens (ages 13-18?years) with an autism diagnosis and their parents to complete MINDful TIME or an 8-week wait period before beginning the program. Ninety percent of teens and parents assigned to MINDful TIME completed the program and reported that they found the program to be acceptable. Teens who completed MINDful TIME showed large reductions in depression symptoms, whereas teens in the wait period group did not. Females who completed MINDful TIME also showed reductions in anxiety symptoms, whereas males who completed MINDful TIME and females and males in the wait period group did not. Parents who completed MINDful TIME with their teens showed increased mindfulness traits, well-being, and adolescent-parent relationship functioning. Findings suggest that MINDful TIME is a promising program that may improve accessibility of mindfulness strategies for autistic teens and their caregivers. Future research with a larger sample size is needed to fully understand the benefits of the program. En ligne : https://dx.doi.org/10.1177/13623613251328484 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Pilot randomized controlled trial of MINDful TIME, a novel telehealth mindfulness-based intervention for autistic adolescents and their caregivers [Texte imprimé et/ou numérique] / Melissa M MITCHELL, Auteur ; Hannah Honda, Auteur ; Amanda MALLIGO, Auteur ; Summer BOYD, Auteur ; Broc A PAGNI, Auteur ; B BLAIR BRADEN, Auteur . - p.1864-1882. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1864-1882 Mots-clés : adolescents  autism  caregivers  mindfulness-based intervention  mobile app  telehealth Index. décimale : PER Périodiques Résumé : A growing body of research suggests that mindfulness-based interventions may be a valuable method for reducing internalizing symptoms in autistic individuals. The current study extends this work using an effectiveness-implementation hybrid type 1 study. In this parallel randomized controlled trial, we examined a novel telehealth intervention for autistic adolescents and their caregivers. MINDful TIME includes eight weekly group meetings and regular use of a commercially available mindfulness meditation app. Participants were 42 adolescent-parent dyads randomized to the treatment or delayed treatment control (DTC) group. The program was implemented with fidelity (91.24%-94.78%), and 90% of treatment group dyads completed the program. On average, participants attended?>90% of sessions and reported high acceptability. Treatment group adolescents demonstrated statistically and clinically significant reductions in parent-reported depression symptoms relative to DTC (F(1, 34) = 7.31, p = 0.01, ?p2 = 0.18). Female adolescents in the treatment group showed significant reductions in parent-reported anxiety symptoms (F(1, 34) = 4.22, p = 0.05, ?p2 = 0.11). Exploratory analyses indicated treatment-related improvements in adolescent executive functioning, parent mindfulness and well-being, and adolescent-parent relationship dysfunction. Findings warrant future examination of MINDful TIME to address well-documented challenges with mental health in this population. This trial was registered on clinicaltrials.gov (NCT05685589).Lay abstract Previous research studies have found that mindfulness (i.e. focused attention on, and acceptance of, the present moment) training programs can reduce stress, depression, and anxiety. However, more research is needed to understand whether mindfulness strategies are helpful for autistic teens. We examined a new telehealth intervention for autistic teens and their caregivers. MINDful TIME is an 8-week group program that meets weekly through Zoom meetings. Participants learn mindfulness strategies through didactic lessons and using a commercially available mindfulness meditation mobile app. We randomly assigned 42 teens (ages 13-18?years) with an autism diagnosis and their parents to complete MINDful TIME or an 8-week wait period before beginning the program. Ninety percent of teens and parents assigned to MINDful TIME completed the program and reported that they found the program to be acceptable. Teens who completed MINDful TIME showed large reductions in depression symptoms, whereas teens in the wait period group did not. Females who completed MINDful TIME also showed reductions in anxiety symptoms, whereas males who completed MINDful TIME and females and males in the wait period group did not. Parents who completed MINDful TIME with their teens showed increased mindfulness traits, well-being, and adolescent-parent relationship functioning. Findings suggest that MINDful TIME is a promising program that may improve accessibility of mindfulness strategies for autistic teens and their caregivers. Future research with a larger sample size is needed to fully understand the benefits of the program. En ligne : https://dx.doi.org/10.1177/13623613251328484 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Beyond individual support: Employment experiences of autistic Korean designers receiving strength-based organizational support / So Yoon KIM ; Kwinam LEE ; Sehwa SIM ; Hyesung PARK in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1883-1897 Titre : Beyond individual support: Employment experiences of autistic Korean designers receiving strength-based organizational support Type de document : Texte imprimé et/ou numérique Auteurs : So Yoon KIM, Auteur ; Kwinam LEE, Auteur ; Sehwa SIM, Auteur ; Hyesung PARK, Auteur Article en page(s) : p.1883-1897 Langues : Anglais (eng) Mots-clés : autism  employment  neurodiversity  organizational level  strength-based Index. décimale : PER Périodiques Résumé : This study qualitatively examined the employment experiences of autistic designers in a South Korean company providing strength-based support at the organizational level. The experiences of 12 autistic employees (mean age = 27?years old, 83.3% male), 12 parents, and 5 non-autistic employees were examined using semi-structured interviews and multi-perspective interpretive phenomenological analysis. Four superordinate themes emerged: the impact of inclusive support systems, views on autistic characteristics, empowering employment experiences, and associated outcomes. Results emphasized the importance of organization- and individual-level support in shaping the employment experiences of autistic and non-autistic employees. While autistic characteristics served as facilitators and challenges of autistic employees" employment experiences, they contributed to the company?s overall success. A sense of belonging, competency, and agency motivated autistic employees; their employment outcomes involved perceived changes in autistic characteristics, enhanced quality of life, and positive autistic self-identity. The findings suggest that the implementation of neurodiversity-based support at the organizational level allows autistic employees to leverage their unique characteristics as strengths regardless of support needs and benefits all employees. Future research should explore cultural influences, assess generalizability to other vocational contexts, and investigate the impacts of adopting neurodiversity in the workplace to create inclusive environments that maximize the career potential of autistic employees.Lay Abstract Autistic people have difficulties obtaining and maintaining jobs. This study looked at the experiences of autistic designers working in a South Korean company that supports autistic people at the company level. We wanted to understand how the autistic individuals" jobs and the support they received influenced their lives. We interviewed autistic employees, their parents, and non-autistic coworkers. We found four important themes: how they felt about the support systems, their thoughts on being autistic, the experiences they had at work, and their employment outcomes. Both company and individual support were crucial for the company. Autistic characteristics sometimes created challenges, but overall, they contributed to the company?s success. Feeling like they belonged, being good at their jobs, and having control over their work made autistic employees feel empowered. Working at this company led to positive changes such as reducing certain autism-related challenges, improving their quality of life, and feeling good about being autistic. These findings suggest that companies should support autistic employees not only on a personal level but also as part of the company?s culture. Thus, autistic characteristics can be seen as strengths that benefit the individuals and the whole company. Future research should explore how different cultures influence these experiences and evaluate whether similar findings apply to other jobs. We also need to study how embracing neurodiversity in the workplace can create environments that help autistic individuals do well in their careers. En ligne : https://dx.doi.org/10.1177/13623613251329605 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Beyond individual support: Employment experiences of autistic Korean designers receiving strength-based organizational support [Texte imprimé et/ou numérique] / So Yoon KIM, Auteur ; Kwinam LEE, Auteur ; Sehwa SIM, Auteur ; Hyesung PARK, Auteur . - p.1883-1897. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1883-1897 Mots-clés : autism  employment  neurodiversity  organizational level  strength-based Index. décimale : PER Périodiques Résumé : This study qualitatively examined the employment experiences of autistic designers in a South Korean company providing strength-based support at the organizational level. The experiences of 12 autistic employees (mean age = 27?years old, 83.3% male), 12 parents, and 5 non-autistic employees were examined using semi-structured interviews and multi-perspective interpretive phenomenological analysis. Four superordinate themes emerged: the impact of inclusive support systems, views on autistic characteristics, empowering employment experiences, and associated outcomes. Results emphasized the importance of organization- and individual-level support in shaping the employment experiences of autistic and non-autistic employees. While autistic characteristics served as facilitators and challenges of autistic employees" employment experiences, they contributed to the company?s overall success. A sense of belonging, competency, and agency motivated autistic employees; their employment outcomes involved perceived changes in autistic characteristics, enhanced quality of life, and positive autistic self-identity. The findings suggest that the implementation of neurodiversity-based support at the organizational level allows autistic employees to leverage their unique characteristics as strengths regardless of support needs and benefits all employees. Future research should explore cultural influences, assess generalizability to other vocational contexts, and investigate the impacts of adopting neurodiversity in the workplace to create inclusive environments that maximize the career potential of autistic employees.Lay Abstract Autistic people have difficulties obtaining and maintaining jobs. This study looked at the experiences of autistic designers working in a South Korean company that supports autistic people at the company level. We wanted to understand how the autistic individuals" jobs and the support they received influenced their lives. We interviewed autistic employees, their parents, and non-autistic coworkers. We found four important themes: how they felt about the support systems, their thoughts on being autistic, the experiences they had at work, and their employment outcomes. Both company and individual support were crucial for the company. Autistic characteristics sometimes created challenges, but overall, they contributed to the company?s success. Feeling like they belonged, being good at their jobs, and having control over their work made autistic employees feel empowered. Working at this company led to positive changes such as reducing certain autism-related challenges, improving their quality of life, and feeling good about being autistic. These findings suggest that companies should support autistic employees not only on a personal level but also as part of the company?s culture. Thus, autistic characteristics can be seen as strengths that benefit the individuals and the whole company. Future research should explore how different cultures influence these experiences and evaluate whether similar findings apply to other jobs. We also need to study how embracing neurodiversity in the workplace can create environments that help autistic individuals do well in their careers. En ligne : https://dx.doi.org/10.1177/13623613251329605 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Short report: Associations of family characteristics and clinicians" use of caregiver coaching in early intervention / Diondra STRAITON ; David S MANDELL ; Brooke INGERSOLL ; Samantha CRABBE ; Sarah RIETH ; Melanie PELLECCHIA in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1898-1906 Titre : Short report: Associations of family characteristics and clinicians" use of caregiver coaching in early intervention Type de document : Texte imprimé et/ou numérique Auteurs : Diondra STRAITON, Auteur ; David S MANDELL, Auteur ; Brooke INGERSOLL, Auteur ; Samantha CRABBE, Auteur ; Sarah RIETH, Auteur ; Melanie PELLECCHIA, Auteur Article en page(s) : p.1898-1906 Langues : Anglais (eng) Mots-clés : autism services  caregiver-mediated intervention  community-based implementation  early intervention  family characteristics Index. décimale : PER Périodiques Résumé : There is a great demand for quality early intervention services for autistic children and their families. Caregiver-mediated interventions are critical components of evidence-based early intervention. However, their implementation in publicly funded systems is often done with poor fidelity. Qualitative evidence suggests that family characteristics impact clinicians" use of caregiver-mediated intervention coaching strategies. We estimated associations between family characteristics and clinicians" use of a caregiver-mediated intervention in a publicly funded early intervention system, leveraging data from a pilot randomized trial. Data were collected from 12 clinicians and 34 families. We used multiple linear regression models to estimate associations. The association between household income and clinicians" overall coaching fidelity demonstrated a quadratic trend (b = ?10.4, standard error = 4.1, p < 0.05) with low fidelity for low- and high-income families relative to middle-income families. Use of in vivo feedback, one component of coaching, was similarly associated with income (b = ?0.5, standard error = 0.2, p < 0.05). Clinicians" coaching fidelity was lower among families in exclusively English-speaking homes than for families who speak other languages (b = 18.4, standard error = 8.8, p < 0.05). Results suggest that associations between family characteristics and clinician behavior may be more nuanced than previously understood.Lay abstract There is a high demand for quality early intervention services for autistic children and their families. A key part of effective early intervention is teaching caregivers how to support their child?s development through caregiver-mediated interventions. However, in publicly funded programs, these strategies are often not followed correctly. Some studies suggest that family characteristics may influence how well clinicians apply these coaching methods. In this study, we explored the connection between family factors, like household income and language spoken at home, and the way clinicians coached families. We found that clinicians used coaching strategies less consistently with both lower- and higher-income families compared to middle-income ones. In addition, families that spoke only English at home received less consistent coaching than those who spoke other languages. These findings highlight the complex relationship between family background and how early intervention services are delivered, suggesting a need for further research. En ligne : https://dx.doi.org/10.1177/13623613251317780 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Short report: Associations of family characteristics and clinicians" use of caregiver coaching in early intervention [Texte imprimé et/ou numérique] / Diondra STRAITON, Auteur ; David S MANDELL, Auteur ; Brooke INGERSOLL, Auteur ; Samantha CRABBE, Auteur ; Sarah RIETH, Auteur ; Melanie PELLECCHIA, Auteur . - p.1898-1906. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1898-1906 Mots-clés : autism services  caregiver-mediated intervention  community-based implementation  early intervention  family characteristics Index. décimale : PER Périodiques Résumé : There is a great demand for quality early intervention services for autistic children and their families. Caregiver-mediated interventions are critical components of evidence-based early intervention. However, their implementation in publicly funded systems is often done with poor fidelity. Qualitative evidence suggests that family characteristics impact clinicians" use of caregiver-mediated intervention coaching strategies. We estimated associations between family characteristics and clinicians" use of a caregiver-mediated intervention in a publicly funded early intervention system, leveraging data from a pilot randomized trial. Data were collected from 12 clinicians and 34 families. We used multiple linear regression models to estimate associations. The association between household income and clinicians" overall coaching fidelity demonstrated a quadratic trend (b = ?10.4, standard error = 4.1, p < 0.05) with low fidelity for low- and high-income families relative to middle-income families. Use of in vivo feedback, one component of coaching, was similarly associated with income (b = ?0.5, standard error = 0.2, p < 0.05). Clinicians" coaching fidelity was lower among families in exclusively English-speaking homes than for families who speak other languages (b = 18.4, standard error = 8.8, p < 0.05). Results suggest that associations between family characteristics and clinician behavior may be more nuanced than previously understood.Lay abstract There is a high demand for quality early intervention services for autistic children and their families. A key part of effective early intervention is teaching caregivers how to support their child?s development through caregiver-mediated interventions. However, in publicly funded programs, these strategies are often not followed correctly. Some studies suggest that family characteristics may influence how well clinicians apply these coaching methods. In this study, we explored the connection between family factors, like household income and language spoken at home, and the way clinicians coached families. We found that clinicians used coaching strategies less consistently with both lower- and higher-income families compared to middle-income ones. In addition, families that spoke only English at home received less consistent coaching than those who spoke other languages. These findings highlight the complex relationship between family background and how early intervention services are delivered, suggesting a need for further research. En ligne : https://dx.doi.org/10.1177/13623613251317780 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558

Prevalence of discrimination experienced by autistic youth as compared to neurotypical youth and youth with other neurodevelopmental diagnoses / Jessica PAPPAGIANOPOULOS ; Jessica V SMITH ; Mya HOWARD ; Sophie BRUNT ; Lauren WITTE ; Sydney ANDERSON ; Brian A BOYD ; Micah O MAZUREK in Autism, 29-7 (July 2025)  

Public ISBD [article]  inAutism > 29-7 (July 2025) . - p.1907-1912 Titre : Prevalence of discrimination experienced by autistic youth as compared to neurotypical youth and youth with other neurodevelopmental diagnoses Type de document : Texte imprimé et/ou numérique Auteurs : Jessica PAPPAGIANOPOULOS, Auteur ; Jessica V SMITH, Auteur ; Mya HOWARD, Auteur ; Sophie BRUNT, Auteur ; Lauren WITTE, Auteur ; Sydney ANDERSON, Auteur ; Brian A BOYD, Auteur ; Micah O MAZUREK, Auteur Article en page(s) : p.1907-1912 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  discrimination  school-age children Index. décimale : PER Périodiques Résumé : Autistic adults have reported experiencing discrimination across settings. Nonetheless, population-based research examining the prevalence of discrimination against autistic individuals has been more limited. Therefore, this study aimed to examine the prevalence of types of discrimination (i.e., due to race or ethnicity, due to sexual orientation or gender identity, and due to health condition or disability) experienced by autistic youth (n = 2339) compared to youth with other neurodevelopmental diagnoses (i.e. attention-deficit/hyperactivity disorder, learning disability, and speech or other language disorder; n = 10,325) and neurotypical youth (n = 44,781) 6-17?years of age utilizing a large, population-based sample. Data for this study were acquired from the 2021-2022 National Survey of Children?s Health, a nationally distributed caregiver-report questionnaire. Results found that the prevalence of discrimination due to race or ethnicity and sexual orientation or gender identity was higher among autistic youth than neurotypical youth. Notably, results also found that discrimination due to health condition or disability was far more prevalent among autistic youth than neurotypical youth and youth with other neurodevelopmental diagnoses. Findings highlight the increased prevalence of discrimination experienced by autistic youth and should prompt researchers, policymakers, and vested community members to action to address this problem.Lay abstract Autistic individuals have described facing unfair or discriminatory treatment across settings, such as in school and at work. However, there have been few studies examining how widespread or prevalent discrimination is against autistic individuals. We aimed to fill that gap by examining how prevalent or common it is for autistic youth to experience discrimination based on race or ethnicity, sexual orientation or gender identity, and health condition or disability. We compared rates of discrimination against autistic youth to youth without developmental differences/diagnoses and youth with other developmental differences (i.e. youth diagnosed with attention-deficit/hyperactivity disorder [ADHD], learning disability, and speech/language disorders). We analyzed data from the 2021-2022 National Survey of Children?s Health, which is a nationwide survey on which parents report about aspects of their children?s lives. We found that autistic youth experience higher rates of discrimination based on race or ethnicity and sexual orientation or gender identity compared to youth who are typically developing and do not have a diagnosis (such as a speech or language disorder). Importantly, they also face significantly more discrimination due to their disability than youth with other diagnoses, such as ADHD, and youth without a developmental diagnosis. These results show that autistic youth are at risk for experiencing discriminatory treatment. Our study should motivate researchers, policymakers, and community members to address this critical issue. En ligne : https://dx.doi.org/10.1177/13623613241312445 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558 [article] Prevalence of discrimination experienced by autistic youth as compared to neurotypical youth and youth with other neurodevelopmental diagnoses [Texte imprimé et/ou numérique] / Jessica PAPPAGIANOPOULOS, Auteur ; Jessica V SMITH, Auteur ; Mya HOWARD, Auteur ; Sophie BRUNT, Auteur ; Lauren WITTE, Auteur ; Sydney ANDERSON, Auteur ; Brian A BOYD, Auteur ; Micah O MAZUREK, Auteur . - p.1907-1912. Langues : Anglais (eng) in Autism > 29-7 (July 2025) . - p.1907-1912 Mots-clés : autism spectrum disorders  discrimination  school-age children Index. décimale : PER Périodiques Résumé : Autistic adults have reported experiencing discrimination across settings. Nonetheless, population-based research examining the prevalence of discrimination against autistic individuals has been more limited. Therefore, this study aimed to examine the prevalence of types of discrimination (i.e., due to race or ethnicity, due to sexual orientation or gender identity, and due to health condition or disability) experienced by autistic youth (n = 2339) compared to youth with other neurodevelopmental diagnoses (i.e. attention-deficit/hyperactivity disorder, learning disability, and speech or other language disorder; n = 10,325) and neurotypical youth (n = 44,781) 6-17?years of age utilizing a large, population-based sample. Data for this study were acquired from the 2021-2022 National Survey of Children?s Health, a nationally distributed caregiver-report questionnaire. Results found that the prevalence of discrimination due to race or ethnicity and sexual orientation or gender identity was higher among autistic youth than neurotypical youth. Notably, results also found that discrimination due to health condition or disability was far more prevalent among autistic youth than neurotypical youth and youth with other neurodevelopmental diagnoses. Findings highlight the increased prevalence of discrimination experienced by autistic youth and should prompt researchers, policymakers, and vested community members to action to address this problem.Lay abstract Autistic individuals have described facing unfair or discriminatory treatment across settings, such as in school and at work. However, there have been few studies examining how widespread or prevalent discrimination is against autistic individuals. We aimed to fill that gap by examining how prevalent or common it is for autistic youth to experience discrimination based on race or ethnicity, sexual orientation or gender identity, and health condition or disability. We compared rates of discrimination against autistic youth to youth without developmental differences/diagnoses and youth with other developmental differences (i.e. youth diagnosed with attention-deficit/hyperactivity disorder [ADHD], learning disability, and speech/language disorders). We analyzed data from the 2021-2022 National Survey of Children?s Health, which is a nationwide survey on which parents report about aspects of their children?s lives. We found that autistic youth experience higher rates of discrimination based on race or ethnicity and sexual orientation or gender identity compared to youth who are typically developing and do not have a diagnosis (such as a speech or language disorder). Importantly, they also face significantly more discrimination due to their disability than youth with other diagnoses, such as ADHD, and youth without a developmental diagnosis. These results show that autistic youth are at risk for experiencing discriminatory treatment. Our study should motivate researchers, policymakers, and community members to address this critical issue. En ligne : https://dx.doi.org/10.1177/13623613241312445 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=558