Dépouillements

Conducting Meaningful Participatory Autism Research in Latin America: An Example of Contextual Challenges Identified and Lessons Learned from the Indigenous Support Network In Brazil / Tally LICHTENSZTEJN TAFLA in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1393-1397 Titre : Conducting Meaningful Participatory Autism Research in Latin America: An Example of Contextual Challenges Identified and Lessons Learned from the Indigenous Support Network In Brazil Type de document : texte imprimé Auteurs : Tally LICHTENSZTEJN TAFLA, Auteur ; Paula RASIA LIRA, Auteur ; Priscilla BRANDI GOMES GODOY, Auteur ; Elizabeth SHEPHARD, Auteur Article en page(s) : p.1393-1397 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613261434813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Conducting Meaningful Participatory Autism Research in Latin America: An Example of Contextual Challenges Identified and Lessons Learned from the Indigenous Support Network In Brazil [texte imprimé] / Tally LICHTENSZTEJN TAFLA, Auteur ; Paula RASIA LIRA, Auteur ; Priscilla BRANDI GOMES GODOY, Auteur ; Elizabeth SHEPHARD, Auteur . - p.1393-1397. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1393-1397 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613261434813 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Autistic Traits and Camouflaging: A Meta-Analysis / Lachlan GREIG in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1398-1415 Titre : Autistic Traits and Camouflaging: A Meta-Analysis Type de document : texte imprimé Auteurs : Lachlan GREIG, Auteur ; Sarah P. COUNDOURIS, Auteur ; Julie D. HENRY, Auteur Article en page(s) : p.1398-1415 Langues : Anglais (eng) Mots-clés : autism  camouflaging  masking  mental health Index. décimale : PER Périodiques Résumé : Autistic people sometimes camouflage their behaviour to appear non-autistic. This meta-analysis rigorously tests the relationship between autistic traits and camouflaging, examining contributing person- and study-level variables. Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, we searched PubMED, PsycINFO, Web of Science, and ProQuest Dissertations in April 2025. All quantitative designs examining autistic traits and camouflaging on a continuum were included. Fifty papers (N = 16,895; ages 10–90) contributed to a three-level meta-analysis (accounting for dependent effect sizes). Study quality was medium to high with no evidence of publication bias. Results revealed a moderate association between autistic traits and camouflaging (r = 0.34, 95% CI: 0.30–0.39), comparable across sexes. Depression, but not anxiety or social anxiety, moderated the relationship. Age was not a moderator, but the association was stronger in general population samples (vs diagnosed), with self-reported autism measures (vs observational), and when using the discrepancy method for camouflaging (vs self-report). Among camouflaging subdomains, assimilation showed the strongest effect, followed by compensation and masking. Limited sample diversity constrains inferences across the full spectrum. This meta-analysis provides a clearer understanding of when, why, and how autistic traits are related to camouflaging, with important research and clinical implications. No funding was obtained for this study. Registration: https://osf.io/uswtr/?view_only=277aec07cdfc402dae75f4900f291253Lay Abstract Understanding the autistic trait and camouflaging relationship is critical to identify who is most vulnerable to camouflaging and the way in which autism and camouflaging measurement may influence our understanding of this phenomenon. This directly impacts clinical diagnosis and support, as camouflaging contributes to diagnostic delay and poorer mental health outcomes, creating a cycle of continued camouflaging. Our findings may help to establish the foundation needed to develop targeted interventions.We completed a systematic search to identify all studies that assessed the relationship between autistic traits and camouflaging. In total, 50 studies met all inclusion criteria. The first author extracted data related to participant characteristics (age, gender, diagnostic status, mental health), autistic trait characteristics, and the camouflaging measurement characteristics.The 50 contributing studies included a total of 16,895 participants (61% female). These data show that the more autistic traits a person has, the more camouflaging they engage in; this relationship is evident for both males and females, and the strength of this relationship does not vary across the adult lifespan. People from the general population show an increase in the strength of this relationship, compared to those diagnosed, and the relationship changes based on how autistic traits and camouflaging are measured and conceptualised. Mental health did not have a clear impact on the overall relationship.There is a nuanced relationship between autistic traits and camouflaging, the strength of which is dependent on specific person-related (diagnostic status and depression) and study-related factors (autistic trait measurement type, camouflaging measurement type, and camouflaging subdomain). Autistic traits are most strongly linked to behaviours that help people to assimilate (try to fit in and appear ‘normal’), followed by strategies to compensate for social differences. The act of hiding autistic traits was the least related. Because the relationship between autistic traits and camouflaging was weaker for diagnosed autistic people, further work is needed to test why this occurs. In addition, clinicians must be aware of the potential for camouflaging to disrupt the diagnostic process, and campaigns that aim to reduce stereotypes of autism and promote acceptance of neurodiversity may help to reduce the stigma that drives camoufla ing. En ligne : https://dx.doi.org/10.1177/13623613261437500 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Autistic Traits and Camouflaging: A Meta-Analysis [texte imprimé] / Lachlan GREIG, Auteur ; Sarah P. COUNDOURIS, Auteur ; Julie D. HENRY, Auteur . - p.1398-1415. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1398-1415 Mots-clés : autism  camouflaging  masking  mental health Index. décimale : PER Périodiques Résumé : Autistic people sometimes camouflage their behaviour to appear non-autistic. This meta-analysis rigorously tests the relationship between autistic traits and camouflaging, examining contributing person- and study-level variables. Following Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, we searched PubMED, PsycINFO, Web of Science, and ProQuest Dissertations in April 2025. All quantitative designs examining autistic traits and camouflaging on a continuum were included. Fifty papers (N = 16,895; ages 10–90) contributed to a three-level meta-analysis (accounting for dependent effect sizes). Study quality was medium to high with no evidence of publication bias. Results revealed a moderate association between autistic traits and camouflaging (r = 0.34, 95% CI: 0.30–0.39), comparable across sexes. Depression, but not anxiety or social anxiety, moderated the relationship. Age was not a moderator, but the association was stronger in general population samples (vs diagnosed), with self-reported autism measures (vs observational), and when using the discrepancy method for camouflaging (vs self-report). Among camouflaging subdomains, assimilation showed the strongest effect, followed by compensation and masking. Limited sample diversity constrains inferences across the full spectrum. This meta-analysis provides a clearer understanding of when, why, and how autistic traits are related to camouflaging, with important research and clinical implications. No funding was obtained for this study. Registration: https://osf.io/uswtr/?view_only=277aec07cdfc402dae75f4900f291253Lay Abstract Understanding the autistic trait and camouflaging relationship is critical to identify who is most vulnerable to camouflaging and the way in which autism and camouflaging measurement may influence our understanding of this phenomenon. This directly impacts clinical diagnosis and support, as camouflaging contributes to diagnostic delay and poorer mental health outcomes, creating a cycle of continued camouflaging. Our findings may help to establish the foundation needed to develop targeted interventions.We completed a systematic search to identify all studies that assessed the relationship between autistic traits and camouflaging. In total, 50 studies met all inclusion criteria. The first author extracted data related to participant characteristics (age, gender, diagnostic status, mental health), autistic trait characteristics, and the camouflaging measurement characteristics.The 50 contributing studies included a total of 16,895 participants (61% female). These data show that the more autistic traits a person has, the more camouflaging they engage in; this relationship is evident for both males and females, and the strength of this relationship does not vary across the adult lifespan. People from the general population show an increase in the strength of this relationship, compared to those diagnosed, and the relationship changes based on how autistic traits and camouflaging are measured and conceptualised. Mental health did not have a clear impact on the overall relationship.There is a nuanced relationship between autistic traits and camouflaging, the strength of which is dependent on specific person-related (diagnostic status and depression) and study-related factors (autistic trait measurement type, camouflaging measurement type, and camouflaging subdomain). Autistic traits are most strongly linked to behaviours that help people to assimilate (try to fit in and appear ‘normal’), followed by strategies to compensate for social differences. The act of hiding autistic traits was the least related. Because the relationship between autistic traits and camouflaging was weaker for diagnosed autistic people, further work is needed to test why this occurs. In addition, clinicians must be aware of the potential for camouflaging to disrupt the diagnostic process, and campaigns that aim to reduce stereotypes of autism and promote acceptance of neurodiversity may help to reduce the stigma that drives camoufla ing. En ligne : https://dx.doi.org/10.1177/13623613261437500 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Priorities and Perspectives Regarding Goals and Outcomes of Support for Autistic Children Under 12 Years: A Systematic Review / Phoebe JORDAN in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1416-1429 Titre : Priorities and Perspectives Regarding Goals and Outcomes of Support for Autistic Children Under 12 Years: A Systematic Review Type de document : texte imprimé Auteurs : Phoebe JORDAN, Auteur ; Hannah WADDINGTON, Auteur ; Matt HAMMOND, Auteur ; Mirko ULJAREVIĆ, Auteur ; Willow J. SAINSBURY, Auteur ; Jessica TUPOU, Auteur Article en page(s) : p.1416-1429 Langues : Anglais (eng) Mots-clés : autism  goal setting  neurodiversity-affirming  stakeholder perspectives  support priorities Index. décimale : PER Périodiques Résumé : Autistic individuals, family members, and professionals often hold differing perspectives on the goals and outcomes of supports for autistic children under 12 years. While traditional approaches prioritise the acquisition of neurotypical behaviours, emerging frameworks emphasise autonomy, self-determination, and well-being. This systematic review synthesised findings from 15 studies using qualitative, quantitative, and mixed-methods designs, which were assessed for methodological quality using the Joanna Briggs Institute checklists. Communication, social inclusion, and child well-being emerged as shared priorities. Notable differences were observed; professionals tended to focus on normative developmental goals such as skill acquisition and behavioural compliance, while autistic individuals and family members more often valued flexibility, self-advocacy, and strengths-based approaches. Tensions persist between medicalised and neurodiversity-affirming paradigms. To ensure supports align with what matters to autistic people, future research should prioritise co-design with autistic individuals and families, embrace cultural responsiveness, and develop tools that can flexibly but consistently assess neurodiversity-affirming outcomes. These steps will support more ethical, inclusive, and meaningful goal-setting practices in autism research and support.Lay Abstract Autistic children, their families, and the people who support them often want different things from autism services. Some approaches still focus on teaching autistic children to behave more like non-autistic children, such as making eye contact or using spoken language. However, many autistic people and families are calling for support that values autistic ways of being and prioritises well-being, comfort, and meaningful participation. This systematic review brought together findings from 15 research studies published in the last 10 years. These studies explored what goals matter most to autistic adults, parents, and professionals when supporting autistic children aged 0–12. We reviewed studies that used interviews, surveys, or mixed methods and assessed their quality using standard research checklists. Across studies, several shared priorities emerged. Communication was important to everyone, but in broad terms supporting children to express themselves in the ways that work best for them, including through alternative augmentative communication or non-spoken communication. Stakeholders also consistently valued children’s emotional well-being, mental health, and feeling safe and understood. Many studies highlighted the importance of autonomy, including supporting children to make choices, develop a sense of identity, and have control in their daily lives. Traditional goals such as reducing autistic traits, encouraging eye contact, or teaching neurotypical social skills were often rated as less important. There was strong agreement that supports should help children build comfort, confidence, and inclusion rather than force conformity. En ligne : https://dx.doi.org/10.1177/13623613261433132 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Priorities and Perspectives Regarding Goals and Outcomes of Support for Autistic Children Under 12 Years: A Systematic Review [texte imprimé] / Phoebe JORDAN, Auteur ; Hannah WADDINGTON, Auteur ; Matt HAMMOND, Auteur ; Mirko ULJAREVIĆ, Auteur ; Willow J. SAINSBURY, Auteur ; Jessica TUPOU, Auteur . - p.1416-1429. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1416-1429 Mots-clés : autism  goal setting  neurodiversity-affirming  stakeholder perspectives  support priorities Index. décimale : PER Périodiques Résumé : Autistic individuals, family members, and professionals often hold differing perspectives on the goals and outcomes of supports for autistic children under 12 years. While traditional approaches prioritise the acquisition of neurotypical behaviours, emerging frameworks emphasise autonomy, self-determination, and well-being. This systematic review synthesised findings from 15 studies using qualitative, quantitative, and mixed-methods designs, which were assessed for methodological quality using the Joanna Briggs Institute checklists. Communication, social inclusion, and child well-being emerged as shared priorities. Notable differences were observed; professionals tended to focus on normative developmental goals such as skill acquisition and behavioural compliance, while autistic individuals and family members more often valued flexibility, self-advocacy, and strengths-based approaches. Tensions persist between medicalised and neurodiversity-affirming paradigms. To ensure supports align with what matters to autistic people, future research should prioritise co-design with autistic individuals and families, embrace cultural responsiveness, and develop tools that can flexibly but consistently assess neurodiversity-affirming outcomes. These steps will support more ethical, inclusive, and meaningful goal-setting practices in autism research and support.Lay Abstract Autistic children, their families, and the people who support them often want different things from autism services. Some approaches still focus on teaching autistic children to behave more like non-autistic children, such as making eye contact or using spoken language. However, many autistic people and families are calling for support that values autistic ways of being and prioritises well-being, comfort, and meaningful participation. This systematic review brought together findings from 15 research studies published in the last 10 years. These studies explored what goals matter most to autistic adults, parents, and professionals when supporting autistic children aged 0–12. We reviewed studies that used interviews, surveys, or mixed methods and assessed their quality using standard research checklists. Across studies, several shared priorities emerged. Communication was important to everyone, but in broad terms supporting children to express themselves in the ways that work best for them, including through alternative augmentative communication or non-spoken communication. Stakeholders also consistently valued children’s emotional well-being, mental health, and feeling safe and understood. Many studies highlighted the importance of autonomy, including supporting children to make choices, develop a sense of identity, and have control in their daily lives. Traditional goals such as reducing autistic traits, encouraging eye contact, or teaching neurotypical social skills were often rated as less important. There was strong agreement that supports should help children build comfort, confidence, and inclusion rather than force conformity. En ligne : https://dx.doi.org/10.1177/13623613261433132 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Community Perceptions of the Causes of Autism and Help-Seeking Responses: A Multi-Site Qualitative Study Across Northern Uganda / Jonathan VINCENT in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1430-1442 Titre : Community Perceptions of the Causes of Autism and Help-Seeking Responses: A Multi-Site Qualitative Study Across Northern Uganda Type de document : texte imprimé Auteurs : Jonathan VINCENT, Auteur ; Diana KAJJUMBA, Auteur ; Richard AMONE, Auteur ; Edward John ESTLIN, Auteur ; Kennedy Kosko OKELLO, Auteur ; Franceska AKELLO, Auteur ; James OKELLO, Auteur ; Richard IDRO, Auteur ; Catherine ABBO, Auteur ; Simple OUMA, Auteur Article en page(s) : p.1430-1442 Langues : Anglais (eng) Mots-clés : Africa  autism  causes  disability  qualitative research  Uganda Index. décimale : PER Périodiques Résumé : Understanding the causes of autism in sub-Saharan Africa remains limited, contributing to stigma and delayed identification. This multi-site qualitative study examined community explanatory models of autism and related help-seeking practices in Northern Uganda. Data were generated through 25 semi-structured interviews and 4 focus group discussions (N = 64) across 1 urban and 2 rural districts in the Acholi sub-region. Participants included autistic young people, caregivers, health and education professionals, community, cultural and religious leaders, and government representatives. Data were analysed inductively. Four interrelated themes were identified: unknown causes, supernatural explanations, biopsychosocial attributions, and help-seeking pathways. Autism was frequently misunderstood and conflated with ‘mental illness’ or general learning difficulties. Supernatural accounts, such as witchcraft, curses, and divine punishment, were prevalent and often gendered, with mothers disproportionately blamed. Biopsychosocial explanations included contraceptive use, obstetric complications, genetic factors, and post-conflict trauma. These causal beliefs shaped different help-seeking trajectories, typically prioritising religious and traditional interventions before biomedical care. Stigmatising interpretations were linked to social exclusion, neglect, physical abuse, and, in extreme cases, infanticide. Findings highlight the entanglement of cultural, spiritual, and biomedical models in a post-conflict, low-resource context. Interventions addressing misconceptions and maternal blame may reduce stigma, support earlier identification, and prevent avoidable harms.Lay Abstract This study looked at how people in Northern Uganda think about autism and what they believe causes it. Researchers spoke with 25 people through one-on-one interviews and 4 group discussions (with 8–10 people per group for a total of 39 people) in 3 districts of the Acholi region of Uganda, covering both urban and rural areas. The data were transcribed and interpreted to understand what seemed most important across all the participants from the interviews and focus groups. Four main themes were identified: (1) Unknown causes, (2) Supernatural causes, (3) Biopsychosocial causes, and (4) Help-seeking responses. Overall, the study found that autism is often poorly understood. Many participants linked it to supernatural explanations, such as witchcraft or punishment from God. Mothers were often blamed and seen as responsible for their child’s condition. People also pointed to wider influences, including modern medical interventions and the long-term effects of war and displacement, as possible causes. These beliefs led to traditional, religious, and modern medical help-seeking responses. Where families followed traditional responses, this could have serious consequences, including harm or even death for the child. This study highlights the importance of working with communities in culturally respectful ways to better understand their perspectives. This can lead to earlier recognition, reduced stigmatisation, better education, and stronger support. En ligne : https://dx.doi.org/10.1177/13623613261434571 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Community Perceptions of the Causes of Autism and Help-Seeking Responses: A Multi-Site Qualitative Study Across Northern Uganda [texte imprimé] / Jonathan VINCENT, Auteur ; Diana KAJJUMBA, Auteur ; Richard AMONE, Auteur ; Edward John ESTLIN, Auteur ; Kennedy Kosko OKELLO, Auteur ; Franceska AKELLO, Auteur ; James OKELLO, Auteur ; Richard IDRO, Auteur ; Catherine ABBO, Auteur ; Simple OUMA, Auteur . - p.1430-1442. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1430-1442 Mots-clés : Africa  autism  causes  disability  qualitative research  Uganda Index. décimale : PER Périodiques Résumé : Understanding the causes of autism in sub-Saharan Africa remains limited, contributing to stigma and delayed identification. This multi-site qualitative study examined community explanatory models of autism and related help-seeking practices in Northern Uganda. Data were generated through 25 semi-structured interviews and 4 focus group discussions (N = 64) across 1 urban and 2 rural districts in the Acholi sub-region. Participants included autistic young people, caregivers, health and education professionals, community, cultural and religious leaders, and government representatives. Data were analysed inductively. Four interrelated themes were identified: unknown causes, supernatural explanations, biopsychosocial attributions, and help-seeking pathways. Autism was frequently misunderstood and conflated with ‘mental illness’ or general learning difficulties. Supernatural accounts, such as witchcraft, curses, and divine punishment, were prevalent and often gendered, with mothers disproportionately blamed. Biopsychosocial explanations included contraceptive use, obstetric complications, genetic factors, and post-conflict trauma. These causal beliefs shaped different help-seeking trajectories, typically prioritising religious and traditional interventions before biomedical care. Stigmatising interpretations were linked to social exclusion, neglect, physical abuse, and, in extreme cases, infanticide. Findings highlight the entanglement of cultural, spiritual, and biomedical models in a post-conflict, low-resource context. Interventions addressing misconceptions and maternal blame may reduce stigma, support earlier identification, and prevent avoidable harms.Lay Abstract This study looked at how people in Northern Uganda think about autism and what they believe causes it. Researchers spoke with 25 people through one-on-one interviews and 4 group discussions (with 8–10 people per group for a total of 39 people) in 3 districts of the Acholi region of Uganda, covering both urban and rural areas. The data were transcribed and interpreted to understand what seemed most important across all the participants from the interviews and focus groups. Four main themes were identified: (1) Unknown causes, (2) Supernatural causes, (3) Biopsychosocial causes, and (4) Help-seeking responses. Overall, the study found that autism is often poorly understood. Many participants linked it to supernatural explanations, such as witchcraft or punishment from God. Mothers were often blamed and seen as responsible for their child’s condition. People also pointed to wider influences, including modern medical interventions and the long-term effects of war and displacement, as possible causes. These beliefs led to traditional, religious, and modern medical help-seeking responses. Where families followed traditional responses, this could have serious consequences, including harm or even death for the child. This study highlights the importance of working with communities in culturally respectful ways to better understand their perspectives. This can lead to earlier recognition, reduced stigmatisation, better education, and stronger support. En ligne : https://dx.doi.org/10.1177/13623613261434571 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Falls and Fall-Related Injuries and Hospitalizations in Autistic Older Adults: A Medicare Data Study / Lauren BISHOP in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1443-1451 Titre : Falls and Fall-Related Injuries and Hospitalizations in Autistic Older Adults: A Medicare Data Study Type de document : texte imprimé Auteurs : Lauren BISHOP, Auteur ; Madison BLAKE, Auteur ; Melica NIKAHD, Auteur ; J Madison HYER, Auteur ; Brian W. PATTERSON, Auteur ; Bethany J. WOLF, Auteur ; Brittany N. HAND, Auteur Article en page(s) : p.1443-1451 Langues : Anglais (eng) Mots-clés : aging  autism  falls  frailty  Medicare Index. décimale : PER Périodiques Résumé : Fall-related injuries are a major public health issue for older adults, contributing to mortality, morbidity, decreased functional ability, loss of independence, and increased healthcare costs. Autistic older adults may be at greater risk for falls due to motor coordination difficulties and antipsychotic medication use. This cohort study used multivariable logistic regression to compare the odds of falling and negative binomial regression to compare the rate of fall-related injuries. Data from Medicare Standard Analytical Files (2013–2021) for autistic and non-autistic older adults aged 65+ were analyzed. The sample included 13,732 autistic and 25,497 matched non-autistic older adults. Our dependent variables were (1) falls, (2) unique fall-related injuries, and (3) fall-related hospitalizations. Overall, 47.4% of autistic older adults had a fall compared to 31.5% of non-autistic older adults. Autistic older adults also had more fall-related injuries and hospitalizations. Accounting for duration of observation, autistic older adults had significantly higher odds of any fall (odds ratio = 1.99; 95% confidence interval = 1.89–2.08), rate of fall-related injuries (incidence rate ratio = 1.93; 95% confidence interval = 1.86–2.01), and rate of fall-related hospitalizations (incidence rate ratio = 1.43; 95% confidence interval = 1.35–1.51) than non-autistic older adults. These findings highlight the need for targeted fall prevention strategies for autistic older adults to reduce morbidity and mortality.Lay Abstract Falls are a big problem for older adults, often causing injuries and making it hard for them to live independently. Autistic older adults might be at higher risk of falling because of movement difficulties. However, no one has studied how often autistic older adults fall. Our study looked at the difference in fall rates, injuries, and hospitalizations between autistic and non-autistic older adults. We used Medicare data from 2013 to 2021 and included people aged 65 and older. We had 13,732 autistic older adults and 25,497 non-autistic older adults in our study. We matched them based on factors like sex, race, and health status to make sure the comparison was fair. We found that almost half (47.4%) of autistic older adults had a fall, compared to only 31.5% of non-autistic older adults. Autistic older adults also had more injuries and hospitalizations from falls. They had about double the likelihood of falling than non-autistic older adults. The rates of injuries and hospitalizations from falls were more about double for autistic older adults compared to non-autistic older adults. These results suggest that we need special programs to help prevent falls and support the health of autistic older adults. En ligne : https://dx.doi.org/10.1177/13623613261433988 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Falls and Fall-Related Injuries and Hospitalizations in Autistic Older Adults: A Medicare Data Study [texte imprimé] / Lauren BISHOP, Auteur ; Madison BLAKE, Auteur ; Melica NIKAHD, Auteur ; J Madison HYER, Auteur ; Brian W. PATTERSON, Auteur ; Bethany J. WOLF, Auteur ; Brittany N. HAND, Auteur . - p.1443-1451. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1443-1451 Mots-clés : aging  autism  falls  frailty  Medicare Index. décimale : PER Périodiques Résumé : Fall-related injuries are a major public health issue for older adults, contributing to mortality, morbidity, decreased functional ability, loss of independence, and increased healthcare costs. Autistic older adults may be at greater risk for falls due to motor coordination difficulties and antipsychotic medication use. This cohort study used multivariable logistic regression to compare the odds of falling and negative binomial regression to compare the rate of fall-related injuries. Data from Medicare Standard Analytical Files (2013–2021) for autistic and non-autistic older adults aged 65+ were analyzed. The sample included 13,732 autistic and 25,497 matched non-autistic older adults. Our dependent variables were (1) falls, (2) unique fall-related injuries, and (3) fall-related hospitalizations. Overall, 47.4% of autistic older adults had a fall compared to 31.5% of non-autistic older adults. Autistic older adults also had more fall-related injuries and hospitalizations. Accounting for duration of observation, autistic older adults had significantly higher odds of any fall (odds ratio = 1.99; 95% confidence interval = 1.89–2.08), rate of fall-related injuries (incidence rate ratio = 1.93; 95% confidence interval = 1.86–2.01), and rate of fall-related hospitalizations (incidence rate ratio = 1.43; 95% confidence interval = 1.35–1.51) than non-autistic older adults. These findings highlight the need for targeted fall prevention strategies for autistic older adults to reduce morbidity and mortality.Lay Abstract Falls are a big problem for older adults, often causing injuries and making it hard for them to live independently. Autistic older adults might be at higher risk of falling because of movement difficulties. However, no one has studied how often autistic older adults fall. Our study looked at the difference in fall rates, injuries, and hospitalizations between autistic and non-autistic older adults. We used Medicare data from 2013 to 2021 and included people aged 65 and older. We had 13,732 autistic older adults and 25,497 non-autistic older adults in our study. We matched them based on factors like sex, race, and health status to make sure the comparison was fair. We found that almost half (47.4%) of autistic older adults had a fall, compared to only 31.5% of non-autistic older adults. Autistic older adults also had more injuries and hospitalizations from falls. They had about double the likelihood of falling than non-autistic older adults. The rates of injuries and hospitalizations from falls were more about double for autistic older adults compared to non-autistic older adults. These results suggest that we need special programs to help prevent falls and support the health of autistic older adults. En ligne : https://dx.doi.org/10.1177/13623613261433988 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Understanding Social Camouflaging in Autistic Adults: Integrating Cognitive and Psychosocial Predictors / Capucine REBOURS in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1452-1464 Titre : Understanding Social Camouflaging in Autistic Adults: Integrating Cognitive and Psychosocial Predictors Type de document : texte imprimé Auteurs : Capucine REBOURS, Auteur ; Viviane KOSTRUBIEC, Auteur ; Jeanne KRUCK, Auteur Article en page(s) : p.1452-1464 Langues : Anglais (eng) Mots-clés : adults  autism acceptance  camouflaging  executive functioning  predictors Index. décimale : PER Périodiques Résumé : Camouflaging refers to strategies used by autistic individuals to mask traits and adapt to neurotypical norms. Beyond socio-cognitive abilities, recent work suggests that camouflaging is also shaped by psychosocial factors. This study tested an integrative, prediction-oriented model of camouflaging. We hypothesized that higher levels of camouflaging would be associated with socio-cognitive functioning, perceived social misfit, mental health, and lower autism acceptance, and that an integrative model combining these factors would predict individual differences in camouflaging. Participants were 120 autistic adults (M = 37.4 years, SD = 10.4), mostly officially diagnosed and predominantly assigned female at birth. Self-report measures assessed camouflaging, executive functioning, perceived social-cognition differences, autism acceptance, social support, and mental health. Partial least squares structural equation modeling was used to estimate the contribution of each predictor to camouflaging. The final model explained a moderate proportion of variance in camouflaging (R² = 0.27; standardized root mean squared residual = 0.05). Executive dysfunction, perceived social-cognition differences, and personal acceptance showed positive associations with camouflaging, whereas intellectual functioning, perceived acceptance, and social support did not contribute meaningfully. Camouflaging reflects a dynamic interplay between perceived social misfit, executive demands, and identity-related processes rather than a fixed cognitive ability, highlighting the importance of affirming social environments.Lay Abstract Camouflaging refers to the strategies autistic people use to hide their autistic personality in order to fit into social expectations. While camouflaging can sometimes help in social situations, it often comes with serious costs, including stress, anxiety, depression, and autistic burnout. Many autistic adults report feeling pressure to camouflage because of stigma and how society views autism. Understanding what drives camouflaging is important to reduce its harmful effects and to better support autistic people. This study explored which factors are most strongly linked to camouflaging in autistic adults. Instead of looking only at thinking skills such as intelligence, we included measures of executive functioning (everyday planning), social experiences, autism acceptance, and mental health. A total of 120 autistic adults completed online questionnaires. We used statistical models to test which factors predicted camouflaging. We found that camouflaging was most strongly linked to three factors: difficulties with executive functioning, feeling like a misfit in social situations, and how much participants personally accepted their autistic identity. Intelligence, general social support, and feeling accepted by others as autistic played little role. These findings show that camouflaging is not simply about cognitive skills, but also about self-perception and social pressure. Creating more accepting environments and supporting autistic identity may reduce the need to camouflage and protect mental health. En ligne : https://dx.doi.org/10.1177/13623613261433985 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Understanding Social Camouflaging in Autistic Adults: Integrating Cognitive and Psychosocial Predictors [texte imprimé] / Capucine REBOURS, Auteur ; Viviane KOSTRUBIEC, Auteur ; Jeanne KRUCK, Auteur . - p.1452-1464. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1452-1464 Mots-clés : adults  autism acceptance  camouflaging  executive functioning  predictors Index. décimale : PER Périodiques Résumé : Camouflaging refers to strategies used by autistic individuals to mask traits and adapt to neurotypical norms. Beyond socio-cognitive abilities, recent work suggests that camouflaging is also shaped by psychosocial factors. This study tested an integrative, prediction-oriented model of camouflaging. We hypothesized that higher levels of camouflaging would be associated with socio-cognitive functioning, perceived social misfit, mental health, and lower autism acceptance, and that an integrative model combining these factors would predict individual differences in camouflaging. Participants were 120 autistic adults (M = 37.4 years, SD = 10.4), mostly officially diagnosed and predominantly assigned female at birth. Self-report measures assessed camouflaging, executive functioning, perceived social-cognition differences, autism acceptance, social support, and mental health. Partial least squares structural equation modeling was used to estimate the contribution of each predictor to camouflaging. The final model explained a moderate proportion of variance in camouflaging (R² = 0.27; standardized root mean squared residual = 0.05). Executive dysfunction, perceived social-cognition differences, and personal acceptance showed positive associations with camouflaging, whereas intellectual functioning, perceived acceptance, and social support did not contribute meaningfully. Camouflaging reflects a dynamic interplay between perceived social misfit, executive demands, and identity-related processes rather than a fixed cognitive ability, highlighting the importance of affirming social environments.Lay Abstract Camouflaging refers to the strategies autistic people use to hide their autistic personality in order to fit into social expectations. While camouflaging can sometimes help in social situations, it often comes with serious costs, including stress, anxiety, depression, and autistic burnout. Many autistic adults report feeling pressure to camouflage because of stigma and how society views autism. Understanding what drives camouflaging is important to reduce its harmful effects and to better support autistic people. This study explored which factors are most strongly linked to camouflaging in autistic adults. Instead of looking only at thinking skills such as intelligence, we included measures of executive functioning (everyday planning), social experiences, autism acceptance, and mental health. A total of 120 autistic adults completed online questionnaires. We used statistical models to test which factors predicted camouflaging. We found that camouflaging was most strongly linked to three factors: difficulties with executive functioning, feeling like a misfit in social situations, and how much participants personally accepted their autistic identity. Intelligence, general social support, and feeling accepted by others as autistic played little role. These findings show that camouflaging is not simply about cognitive skills, but also about self-perception and social pressure. Creating more accepting environments and supporting autistic identity may reduce the need to camouflage and protect mental health. En ligne : https://dx.doi.org/10.1177/13623613261433985 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Associations Between Autism and Self-Reported Dimensions of Interoception / Kiera Louise ADAMS in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1465-1477 Titre : Associations Between Autism and Self-Reported Dimensions of Interoception Type de document : texte imprimé Auteurs : Kiera Louise ADAMS, Auteur ; Caroline CATMUR, Auteur ; Geoffrey BIRD, Auteur Article en page(s) : p.1465-1477 Langues : Anglais (eng) Mots-clés : interoception  interoceptive accuracy  interoceptive attention  interoceptive evaluation  mental health Index. décimale : PER Périodiques Résumé : Despite a wealth of research on autism and interoception, there is not a clear consensus about which dimensions of interoception (if any) are related to autism. This study explored whether self-reported interoceptive accuracy, attention and evaluation are related to autism diagnosis and autistic traits. We analysed questionnaire responses from 519 participants, including 232 autistic participants. We found that people with an autism diagnosis had more negative interpretations of their bodily signals than people without an autism diagnosis, and increasing autistic traits in a general population sample were associated with higher interoceptive attention, lower interoceptive accuracy and higher negative interoceptive evaluation. Our findings suggest that interoceptive evaluation should be a priority for future research.Lay Abstract Autism is thought to be linked to differences in the way people notice, process and understand signals coming from inside of their bodies. This study explored how both autistic traits and autism diagnoses are associated with the processing of bodily signals. We found that among 519 participants, having more autistic traits meant that people paid more attention to body signals, reported lower accuracy at detecting them and had more negative interpretations of those signals. Autism diagnoses were associated with more negative interpretations of bodily signals. En ligne : https://dx.doi.org/10.1177/13623613261434431 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Associations Between Autism and Self-Reported Dimensions of Interoception [texte imprimé] / Kiera Louise ADAMS, Auteur ; Caroline CATMUR, Auteur ; Geoffrey BIRD, Auteur . - p.1465-1477. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1465-1477 Mots-clés : interoception  interoceptive accuracy  interoceptive attention  interoceptive evaluation  mental health Index. décimale : PER Périodiques Résumé : Despite a wealth of research on autism and interoception, there is not a clear consensus about which dimensions of interoception (if any) are related to autism. This study explored whether self-reported interoceptive accuracy, attention and evaluation are related to autism diagnosis and autistic traits. We analysed questionnaire responses from 519 participants, including 232 autistic participants. We found that people with an autism diagnosis had more negative interpretations of their bodily signals than people without an autism diagnosis, and increasing autistic traits in a general population sample were associated with higher interoceptive attention, lower interoceptive accuracy and higher negative interoceptive evaluation. Our findings suggest that interoceptive evaluation should be a priority for future research.Lay Abstract Autism is thought to be linked to differences in the way people notice, process and understand signals coming from inside of their bodies. This study explored how both autistic traits and autism diagnoses are associated with the processing of bodily signals. We found that among 519 participants, having more autistic traits meant that people paid more attention to body signals, reported lower accuracy at detecting them and had more negative interpretations of those signals. Autism diagnoses were associated with more negative interpretations of bodily signals. En ligne : https://dx.doi.org/10.1177/13623613261434431 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Expanding Training Capacity for the Group-Based Social ABCs Program: Evaluation of Coaching Models and French-Language Implementation in a Pediatric Hospital / Renee BAYSAROWICH in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1478-1487 Titre : Expanding Training Capacity for the Group-Based Social ABCs Program: Evaluation of Coaching Models and French-Language Implementation in a Pediatric Hospital Type de document : texte imprimé Auteurs : Renee BAYSAROWICH, Auteur ; Jessica REMEDIOS, Auteur ; Kelly KING, Auteur ; Martine BRUNET, Auteur ; Nicholas DENOMEY, Auteur ; Justyna LITWINSKA, Auteur ; Taylor JOHANSEN, Auteur ; Sarah RAZA, Auteur Article en page(s) : p.1478-1487 Langues : Anglais (eng) Mots-clés : Autism  bilingual accessibility  caregiver-mediated intervention  early intervention  group-based intervention  implementation science  service capacity  social ABCs  social communication  training pathways Index. décimale : PER Périodiques Résumé : Autism is the fastest growing neurodevelopmental condition in Canada. Caregiver-mediated interventions, such as the Social ABCs, improve early social communication and caregiver empowerment. To enhance accessibility, Social ABCs was adapted into a condensed, group-based model. This study evaluated its implementation and sustainability at a large pediatric hospital, examining child and caregiver outcomes across multiple coach training pathways and French-language delivery. A retrospective chart review included 361 families (children 12–42 months with suspected or confirmed autism) who completed six weekly group sessions and nine individual caregiver coaching sessions between 2020 and 2024. Coaches were trained via expert-led, hybrid, or site-led pathways. Caregiver implementation fidelity improved from 33.6% to 70.0% (p < 0.001), with similar gains in English and French. Child vocal responsivity increased from 5.7% to 43.2% (p < 0.001), and post-intervention caregiver fidelity correlated with child responsivity (r = 0.25, p < 0.001). Fidelity and responsivity outcomes did not differ by training pathway, supporting site-led training. Multiple pathways expanded clinician capacity, increasing children served by ~86% within 2 years. These findings suggest that group-based Social ABCs may improve caregiver and child outcomes, increase service capacity, and enhance accessibility for French‑speaking families, supporting feasibility of multi‑pathway training models for scaling early autism interventions.Lay Abstract Autism is being identified in more young children in Canada, increasing the need for early supports that families can access in a timely way. The Social ABCs is a caregiver-mediated program that helps caregivers support their child’s early social communication, and it was adapted into a shorter, group-based format to improve accessibility. This study reviewed clinical records from 361 families of children aged 12–42 months with suspected or confirmed autism who participated in the group-based Social ABCs program at a large pediatric hospital between 2020 and 2024. Caregivers attended group sessions and individual coaching, and clinicians were trained using different approaches, including expert-led and hospital-based training. Results showed that caregivers became more consistent and confident in using the strategies they learned, and children showed meaningful improvements in social communication. These improvements were similar for English- and French-speaking families and did not differ based on how clinicians were trained. Using multiple training pathways also allowed the program to serve many more families. Overall, the group-based Social ABCs improved outcomes for caregivers and children while increasing service capacity and access to early autism supports. En ligne : https://dx.doi.org/10.1177/13623613261434573 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Expanding Training Capacity for the Group-Based Social ABCs Program: Evaluation of Coaching Models and French-Language Implementation in a Pediatric Hospital [texte imprimé] / Renee BAYSAROWICH, Auteur ; Jessica REMEDIOS, Auteur ; Kelly KING, Auteur ; Martine BRUNET, Auteur ; Nicholas DENOMEY, Auteur ; Justyna LITWINSKA, Auteur ; Taylor JOHANSEN, Auteur ; Sarah RAZA, Auteur . - p.1478-1487. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1478-1487 Mots-clés : Autism  bilingual accessibility  caregiver-mediated intervention  early intervention  group-based intervention  implementation science  service capacity  social ABCs  social communication  training pathways Index. décimale : PER Périodiques Résumé : Autism is the fastest growing neurodevelopmental condition in Canada. Caregiver-mediated interventions, such as the Social ABCs, improve early social communication and caregiver empowerment. To enhance accessibility, Social ABCs was adapted into a condensed, group-based model. This study evaluated its implementation and sustainability at a large pediatric hospital, examining child and caregiver outcomes across multiple coach training pathways and French-language delivery. A retrospective chart review included 361 families (children 12–42 months with suspected or confirmed autism) who completed six weekly group sessions and nine individual caregiver coaching sessions between 2020 and 2024. Coaches were trained via expert-led, hybrid, or site-led pathways. Caregiver implementation fidelity improved from 33.6% to 70.0% (p < 0.001), with similar gains in English and French. Child vocal responsivity increased from 5.7% to 43.2% (p < 0.001), and post-intervention caregiver fidelity correlated with child responsivity (r = 0.25, p < 0.001). Fidelity and responsivity outcomes did not differ by training pathway, supporting site-led training. Multiple pathways expanded clinician capacity, increasing children served by ~86% within 2 years. These findings suggest that group-based Social ABCs may improve caregiver and child outcomes, increase service capacity, and enhance accessibility for French‑speaking families, supporting feasibility of multi‑pathway training models for scaling early autism interventions.Lay Abstract Autism is being identified in more young children in Canada, increasing the need for early supports that families can access in a timely way. The Social ABCs is a caregiver-mediated program that helps caregivers support their child’s early social communication, and it was adapted into a shorter, group-based format to improve accessibility. This study reviewed clinical records from 361 families of children aged 12–42 months with suspected or confirmed autism who participated in the group-based Social ABCs program at a large pediatric hospital between 2020 and 2024. Caregivers attended group sessions and individual coaching, and clinicians were trained using different approaches, including expert-led and hospital-based training. Results showed that caregivers became more consistent and confident in using the strategies they learned, and children showed meaningful improvements in social communication. These improvements were similar for English- and French-speaking families and did not differ based on how clinicians were trained. Using multiple training pathways also allowed the program to serve many more families. Overall, the group-based Social ABCs improved outcomes for caregivers and children while increasing service capacity and access to early autism supports. En ligne : https://dx.doi.org/10.1177/13623613261434573 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Over-Time Estimates of Sociodemographic Disparities in Autism Identification in U.S. Elementary Schools / Paul L. MORGAN in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1488-1503 Titre : Over-Time Estimates of Sociodemographic Disparities in Autism Identification in U.S. Elementary Schools Type de document : texte imprimé Auteurs : Paul L. MORGAN, Auteur ; Eric HENGYU HU, Auteur Article en page(s) : p.1488-1503 Langues : Anglais (eng) Mots-clés : autism  disparities  elementary school  multilingual learners  students of color Index. décimale : PER Périodiques Résumé : Whether and to what extent sociodemographic disparities in school-based autism identification have been occurring in U.S. elementary schools is currently unclear. We investigated for disparities attributable to race, ethnicity, biological sex, family income, and language use by analyzing repeated cross-sectional data collected on very large samples of U.S. fourth graders participating in the National Assessment of Educational Progress from 2003 to 2022 (ns = 103,150–205,860). Multivariable logistic regression models accounting for potential confounds including student-level academic achievement and school-level resources repeatedly indicated that students of color, females, students from low-income families, and multilingual learners (MLs) are less likely to be identified with autism while attending U.S. elementary schools. These disparities have been largely stable over time, particularly for Black students, females, and MLs. Health and educational policies that ensure equal access to autism supports and services in U.S. elementary schools including by students from historically marginalized communities are warranted.Plain Language SummaryStudents of Color, Females, Students from Low-income Families, and Multilingual Learners Are Less Likely to be Identified with Autism While Attending U.S. Elementary SchoolsWhether students who are Black or Hispanic, females, from low-income families, or who are multilingual learners have been less likely to be identified with autism while attending U.S. elementary schools is currently unclear. Prior work reports conflicting findings and has often been unable to approximate contrasts between similarly situated students including those displaying the same levels of academic achievement and who are attending the same schools. Such contrasts of similarly situated students are necessary to better evaluate for the possibility of differential treatment due to biased or discriminatory practices. We used statistical methods to account for potential alternative explanatory factors (e.g. differences in family income, language use, or academic achievement) to better approximate contrasts between similarly situated students. Doing so provides stronger evidence of disparities in school-based autism identification attributable to race, ethnicity, biological sex, family income, and language use and not instead to alternative explanatory factors. To investigate how these disparities have changed across time, we analyzed very large cross-sectional samples of fourth-grade students from 2003 to 2022. These analyses repeatedly indicated that students who are White, boys, those from higher-income families, or students who are English-speaking are more likely to be identified with autism than students of color, females, those from low-income families, or students who are multilingual learners including among those who are displaying similar levels of academic achievement and who are attending the same schools. Although autism prevalence rates have increased for students from historically marginalized communities, students from these communities are still less likely to be identified with autism while attending U.S. elementary schools. Efforts are needed to ensure equal access to autism services and supports among students attending U.S. elementary schools. En ligne : https://dx.doi.org/10.1177/13623613261434432 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Over-Time Estimates of Sociodemographic Disparities in Autism Identification in U.S. Elementary Schools [texte imprimé] / Paul L. MORGAN, Auteur ; Eric HENGYU HU, Auteur . - p.1488-1503. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1488-1503 Mots-clés : autism  disparities  elementary school  multilingual learners  students of color Index. décimale : PER Périodiques Résumé : Whether and to what extent sociodemographic disparities in school-based autism identification have been occurring in U.S. elementary schools is currently unclear. We investigated for disparities attributable to race, ethnicity, biological sex, family income, and language use by analyzing repeated cross-sectional data collected on very large samples of U.S. fourth graders participating in the National Assessment of Educational Progress from 2003 to 2022 (ns = 103,150–205,860). Multivariable logistic regression models accounting for potential confounds including student-level academic achievement and school-level resources repeatedly indicated that students of color, females, students from low-income families, and multilingual learners (MLs) are less likely to be identified with autism while attending U.S. elementary schools. These disparities have been largely stable over time, particularly for Black students, females, and MLs. Health and educational policies that ensure equal access to autism supports and services in U.S. elementary schools including by students from historically marginalized communities are warranted.Plain Language SummaryStudents of Color, Females, Students from Low-income Families, and Multilingual Learners Are Less Likely to be Identified with Autism While Attending U.S. Elementary SchoolsWhether students who are Black or Hispanic, females, from low-income families, or who are multilingual learners have been less likely to be identified with autism while attending U.S. elementary schools is currently unclear. Prior work reports conflicting findings and has often been unable to approximate contrasts between similarly situated students including those displaying the same levels of academic achievement and who are attending the same schools. Such contrasts of similarly situated students are necessary to better evaluate for the possibility of differential treatment due to biased or discriminatory practices. We used statistical methods to account for potential alternative explanatory factors (e.g. differences in family income, language use, or academic achievement) to better approximate contrasts between similarly situated students. Doing so provides stronger evidence of disparities in school-based autism identification attributable to race, ethnicity, biological sex, family income, and language use and not instead to alternative explanatory factors. To investigate how these disparities have changed across time, we analyzed very large cross-sectional samples of fourth-grade students from 2003 to 2022. These analyses repeatedly indicated that students who are White, boys, those from higher-income families, or students who are English-speaking are more likely to be identified with autism than students of color, females, those from low-income families, or students who are multilingual learners including among those who are displaying similar levels of academic achievement and who are attending the same schools. Although autism prevalence rates have increased for students from historically marginalized communities, students from these communities are still less likely to be identified with autism while attending U.S. elementary schools. Efforts are needed to ensure equal access to autism services and supports among students attending U.S. elementary schools. En ligne : https://dx.doi.org/10.1177/13623613261434432 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Social Isolation or Autistic Homophily: An Exploration of the Social Networks of Autistic College Students / George W. WOLFORD in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1504-1518 Titre : Social Isolation or Autistic Homophily: An Exploration of the Social Networks of Autistic College Students Type de document : texte imprimé Auteurs : George W. WOLFORD, Auteur ; Gabriel VARELA, Auteur ; Robert E. FREELAND, Auteur ; Monica L. BELLON-HARN, Auteur Article en page(s) : p.1504-1518 Langues : Anglais (eng) Mots-clés : adults  friendship  network models  social interactions Index. décimale : PER Périodiques Résumé : Our understanding of autistic socialization using social network analysis has focused on autistic children and understanding support systems. The purpose of this study is to examine autistic friendship networks in adulthood without focusing on support systems. We broadly recruited autistic and nonautistic college students (n = 592 students). Students provided ego-network information, including demographics, satisfaction with their social relationships, and perceptions of their friends (e.g. perceived neurotype and demographics). Autistic college students reported similar network structure metrics (e.g. density, number of friends) as nonautistic college students. Participants of all neurotypes reported similar friendship closeness, social satisfaction, and close mixed-neurotype friendships. However, on average, autistic college students had a higher proportion of autistic and neurodivergent friends than nonautistic college students. To a lesser extent, nonautistic students reported a greater preference for neurotypical friendships. These quantitative results suggest that autistic college students prefer building friendships with other autistic or neurodivergent peers (i.e. autistic or neurodivergent homophily). This preference suggests that authentically autistic (social) spaces and the availability of neurodivergent peers would be beneficial for autistic college students. Overall, these findings contradict the pathologizing “lack of interest in friendships” narrative surrounding autism.Lay Abstract Past research on autistic friendships has either recruited children or has focused on support services. We were interested in autistic adults who might not be enrolled in support services. So, we asked college students to fill out an interview form that included information about their traits and the traits of their friends. Based on answers to questions, participants were considered not autistic (n = 325), not sure but possibly autistic (n = 166), autistic-self-identified but not diagnosed (n = 67), or autistic-diagnosed (n = 34). Overall, all the groups reported similar degrees of social satisfaction (e.g. quality of friendships). On average, the two autistic groups had the most autistic friends and the fewest neurotypical friends. The “not-autistic” group had fewer autistic friends but the most neurotypical friends. However, all groups reported close “cross-neurotype” friendships (e.g. “not-autistic” people being close friends with autistic people). We concluded that autistic college students probably like friendships with other autistic or neurodivergent people, though college students build friendships with all neurotypes.These findings contradict stereotypes about autistic people preferring to be isolated. This study shows that autistic college students do build close friendships with others. It is important to note that we focused on autistic college students rather than all autistic people. We do not know if these findings apply to other groups of autistic individuals. We also relied on what people told us. It is possible that what people are reporting about their friends is not the same thing their friends would say. En ligne : https://dx.doi.org/10.1177/13623613261435994 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Social Isolation or Autistic Homophily: An Exploration of the Social Networks of Autistic College Students [texte imprimé] / George W. WOLFORD, Auteur ; Gabriel VARELA, Auteur ; Robert E. FREELAND, Auteur ; Monica L. BELLON-HARN, Auteur . - p.1504-1518. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1504-1518 Mots-clés : adults  friendship  network models  social interactions Index. décimale : PER Périodiques Résumé : Our understanding of autistic socialization using social network analysis has focused on autistic children and understanding support systems. The purpose of this study is to examine autistic friendship networks in adulthood without focusing on support systems. We broadly recruited autistic and nonautistic college students (n = 592 students). Students provided ego-network information, including demographics, satisfaction with their social relationships, and perceptions of their friends (e.g. perceived neurotype and demographics). Autistic college students reported similar network structure metrics (e.g. density, number of friends) as nonautistic college students. Participants of all neurotypes reported similar friendship closeness, social satisfaction, and close mixed-neurotype friendships. However, on average, autistic college students had a higher proportion of autistic and neurodivergent friends than nonautistic college students. To a lesser extent, nonautistic students reported a greater preference for neurotypical friendships. These quantitative results suggest that autistic college students prefer building friendships with other autistic or neurodivergent peers (i.e. autistic or neurodivergent homophily). This preference suggests that authentically autistic (social) spaces and the availability of neurodivergent peers would be beneficial for autistic college students. Overall, these findings contradict the pathologizing “lack of interest in friendships” narrative surrounding autism.Lay Abstract Past research on autistic friendships has either recruited children or has focused on support services. We were interested in autistic adults who might not be enrolled in support services. So, we asked college students to fill out an interview form that included information about their traits and the traits of their friends. Based on answers to questions, participants were considered not autistic (n = 325), not sure but possibly autistic (n = 166), autistic-self-identified but not diagnosed (n = 67), or autistic-diagnosed (n = 34). Overall, all the groups reported similar degrees of social satisfaction (e.g. quality of friendships). On average, the two autistic groups had the most autistic friends and the fewest neurotypical friends. The “not-autistic” group had fewer autistic friends but the most neurotypical friends. However, all groups reported close “cross-neurotype” friendships (e.g. “not-autistic” people being close friends with autistic people). We concluded that autistic college students probably like friendships with other autistic or neurodivergent people, though college students build friendships with all neurotypes.These findings contradict stereotypes about autistic people preferring to be isolated. This study shows that autistic college students do build close friendships with others. It is important to note that we focused on autistic college students rather than all autistic people. We do not know if these findings apply to other groups of autistic individuals. We also relied on what people told us. It is possible that what people are reporting about their friends is not the same thing their friends would say. En ligne : https://dx.doi.org/10.1177/13623613261435994 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Beyond Exhaustion: Shame, Identity Disruption, and Functional Collapse in Autistic Burnout / Megan M. CLAREY in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1519-1531 Titre : Beyond Exhaustion: Shame, Identity Disruption, and Functional Collapse in Autistic Burnout Type de document : texte imprimé Auteurs : Megan M. CLAREY, Auteur ; Michael J. IRELAND, Auteur ; Susan ABEL, Auteur ; Charlotte BROWNLOW, Auteur Article en page(s) : p.1519-1531 Langues : Anglais (eng) Mots-clés : autistic burnout  dual-masking  gentle re-engagement  people-adjacent  shame Index. décimale : PER Périodiques Résumé : Autistic burnout is typically defined as chronic exhaustion with functional impacts on everyday life. It appears common across work, study, and relationships, yet its emotional and relational dimensions remain underexamined. To document lived experiences of autistic burnout among autistic adults and to identify emotional and relational processes (e.g. shame and masking) that may shape onset, maintenance, and recovery. Eleven autistic adults participated in semi-structured interviews or written responses conducted online between July 2023 and November 2024. Data were analysed using template analysis, combining a priori codes from prior research with inductive coding. Participants described profound exhaustion, sensory overload, and executive dysfunction that disrupted daily life. A prominent emergent theme was shame, which shaped interpretations of functional limits, masking efforts, and help-seeking. Many reported dual-masking, concealing both autistic traits and signs of burnout, which intensified strain, delayed recognition, and undermined recovery. Withdrawal and “gentle re-engagement” through low-demand, people-adjacent activities were described as recovery strategies. Autistic burnout involves physical and cognitive challenges alongside relational and emotional processes that can precipitate and sustain it and complicate recovery. Shame and masking shape how burnout is interpreted and disclosed, underscoring the need for shame-aware, low-demand supports.Lay Abstract Autistic burnout is a period of overwhelming exhaustion and reduced ability to cope with everyday life. Although autistic people have spoken about burnout for many years, there is still little research describing what it actually feels like. In this study, 11 autistic adults shared their experiences of burnout through online interviews or written responses. We analysed their words to look for common patterns and individual differences. Participants described extreme tiredness, difficulty starting and completing everyday tasks, and increased sensitivity to noise, light, or smells. Many withdrew from friends, family, or work to protect their limited energy. A key pattern was shame, feeling embarrassed, inadequate, or like a burden, which shaped how people made sense of their burnout and whether they felt able to ask for help. Several described “dual-masking,” meaning they hid both their autistic traits and the signs of burnout itself. This added pressure often made burnout last longer and delayed access to support. Recovery was often slow. Gentle steps, such as spending quiet time near others without having to talk (“people-adjacent” activities), helped them reconnect without pressure. These findings suggest that supportive environments, where autistic people feel safe to be themselves, may reduce the impact and length of burnout episodes. En ligne : https://dx.doi.org/10.1177/13623613261444797 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Beyond Exhaustion: Shame, Identity Disruption, and Functional Collapse in Autistic Burnout [texte imprimé] / Megan M. CLAREY, Auteur ; Michael J. IRELAND, Auteur ; Susan ABEL, Auteur ; Charlotte BROWNLOW, Auteur . - p.1519-1531. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1519-1531 Mots-clés : autistic burnout  dual-masking  gentle re-engagement  people-adjacent  shame Index. décimale : PER Périodiques Résumé : Autistic burnout is typically defined as chronic exhaustion with functional impacts on everyday life. It appears common across work, study, and relationships, yet its emotional and relational dimensions remain underexamined. To document lived experiences of autistic burnout among autistic adults and to identify emotional and relational processes (e.g. shame and masking) that may shape onset, maintenance, and recovery. Eleven autistic adults participated in semi-structured interviews or written responses conducted online between July 2023 and November 2024. Data were analysed using template analysis, combining a priori codes from prior research with inductive coding. Participants described profound exhaustion, sensory overload, and executive dysfunction that disrupted daily life. A prominent emergent theme was shame, which shaped interpretations of functional limits, masking efforts, and help-seeking. Many reported dual-masking, concealing both autistic traits and signs of burnout, which intensified strain, delayed recognition, and undermined recovery. Withdrawal and “gentle re-engagement” through low-demand, people-adjacent activities were described as recovery strategies. Autistic burnout involves physical and cognitive challenges alongside relational and emotional processes that can precipitate and sustain it and complicate recovery. Shame and masking shape how burnout is interpreted and disclosed, underscoring the need for shame-aware, low-demand supports.Lay Abstract Autistic burnout is a period of overwhelming exhaustion and reduced ability to cope with everyday life. Although autistic people have spoken about burnout for many years, there is still little research describing what it actually feels like. In this study, 11 autistic adults shared their experiences of burnout through online interviews or written responses. We analysed their words to look for common patterns and individual differences. Participants described extreme tiredness, difficulty starting and completing everyday tasks, and increased sensitivity to noise, light, or smells. Many withdrew from friends, family, or work to protect their limited energy. A key pattern was shame, feeling embarrassed, inadequate, or like a burden, which shaped how people made sense of their burnout and whether they felt able to ask for help. Several described “dual-masking,” meaning they hid both their autistic traits and the signs of burnout itself. This added pressure often made burnout last longer and delayed access to support. Recovery was often slow. Gentle steps, such as spending quiet time near others without having to talk (“people-adjacent” activities), helped them reconnect without pressure. These findings suggest that supportive environments, where autistic people feel safe to be themselves, may reduce the impact and length of burnout episodes. En ligne : https://dx.doi.org/10.1177/13623613261444797 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Extending the Minority Stress Model of Autism: Internalized Stigma and Loneliness as Predictors of Stress and Life Satisfaction / Alvin VAN ASSELT in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1532-1547 Titre : Extending the Minority Stress Model of Autism: Internalized Stigma and Loneliness as Predictors of Stress and Life Satisfaction Type de document : texte imprimé Auteurs : Alvin VAN ASSELT, Auteur ; Yvette ROKE, Auteur ; Sander BEGEER, Auteur ; Anke M. SCHEEREN, Auteur Article en page(s) : p.1532-1547 Langues : Anglais (eng) Mots-clés : autism  minority stress  psychological mediation framework  internalized stigma  loneliness  stress  life satisfaction Index. décimale : PER Périodiques Résumé : Autistic people’s minority status makes them more vulnerable to minority stressors, such as stigmatization and victimization, which are linked to greater stress and lower life satisfaction. The Psychological Mediation Framework (PMF) proposes that cognitive, affective, and social-psychological processes help explain the relationships between these stressors and adverse outcomes. This cross-sectional study tested the PMF in autistic adults by examining how two of its key processes, internalized stigma and loneliness, are associated with stress and life satisfaction. Using self-report survey data from 831 autistic participants enrolled in the Netherlands Autism Register (NAR), aged 18–87 years (Mage = 47.5; SD = 12.5; 408 women, 309 men, and 114 gender-diverse individuals), multiple regression analyses showed that internalized autism-related stigma, emotional loneliness, and social loneliness were each positively associated with stress and negatively associated with life satisfaction. Mediation analyses indicated that both types of loneliness partially mediated the relationship between internalized autism-related stigma and these outcomes. Supporting the PMF, the findings suggest that autism-related stigmas may become internalized and be associated with loneliness, which is linked to greater stress and lower life satisfaction. Future studies should build upon the PMF and explore strategies to mitigate underlying minority stressors.Lay Abstract Understanding stress and life satisfaction in autistic adults with the psychological mediation frameworkWhy was this study done?Autistic adults often experience higher levels of stress and lower life satisfaction than non-autistic adults. Recently, research has suggested that these experiences are linked to them being part of a minority group—autistic people. Minorities often experience extra stress from experiences like stigma, sometimes called minority stressors. A theoretical model, the Psychological Mediation Framework (PMF), describes how minority stressors are linked to differences in people’s thoughts, emotions, and feelings. This study examined whether the PMF can also help explain the stress and life satisfaction of autistic adults. We did this by testing whether two important parts of the PMF, internalized autism-related stigma (negative beliefs about being autistic) and loneliness, were linked to their stress and life satisfaction (how content people feel with their lives overall).What did we do?We analyzed data from 831 autistic adults who filled out a survey. In our statistical models (mathematical analyses that test how variables are related), we took into account other factors that are more commonly used to examine which factors were statistically associated with stress and life satisfaction in autistic adults, such as the level of characteristics related to autism and education level. By doing this, we increased the chance that any relationships we found could be attributed to minority stressors.What did we find?Autistic adults who experienced more internalized autism-related stigma, emotional loneliness (feeling disconnected from close relationships), and social loneliness (lacking a broader social network) reported higher stress levels and lower life satisfaction. We also found that autistic adults with more internalized stigma felt lonelier, and this loneliness was linked to higher stress and lower life satisfaction.What do the findings mean?The results suggest that autistic adults may internalize autism-related stigmas, which are linked to greater loneliness, higher stress, and lower life satisfaction. As these findings align with the PMF, we believe future studies should continue using this model. Also, we recommend that researchers should study ways to reduce minority stressors and improve the mental health of autistic adults. En ligne : https://dx.doi.org/10.1177/13623613261446876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Extending the Minority Stress Model of Autism: Internalized Stigma and Loneliness as Predictors of Stress and Life Satisfaction [texte imprimé] / Alvin VAN ASSELT, Auteur ; Yvette ROKE, Auteur ; Sander BEGEER, Auteur ; Anke M. SCHEEREN, Auteur . - p.1532-1547. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1532-1547 Mots-clés : autism  minority stress  psychological mediation framework  internalized stigma  loneliness  stress  life satisfaction Index. décimale : PER Périodiques Résumé : Autistic people’s minority status makes them more vulnerable to minority stressors, such as stigmatization and victimization, which are linked to greater stress and lower life satisfaction. The Psychological Mediation Framework (PMF) proposes that cognitive, affective, and social-psychological processes help explain the relationships between these stressors and adverse outcomes. This cross-sectional study tested the PMF in autistic adults by examining how two of its key processes, internalized stigma and loneliness, are associated with stress and life satisfaction. Using self-report survey data from 831 autistic participants enrolled in the Netherlands Autism Register (NAR), aged 18–87 years (Mage = 47.5; SD = 12.5; 408 women, 309 men, and 114 gender-diverse individuals), multiple regression analyses showed that internalized autism-related stigma, emotional loneliness, and social loneliness were each positively associated with stress and negatively associated with life satisfaction. Mediation analyses indicated that both types of loneliness partially mediated the relationship between internalized autism-related stigma and these outcomes. Supporting the PMF, the findings suggest that autism-related stigmas may become internalized and be associated with loneliness, which is linked to greater stress and lower life satisfaction. Future studies should build upon the PMF and explore strategies to mitigate underlying minority stressors.Lay Abstract Understanding stress and life satisfaction in autistic adults with the psychological mediation frameworkWhy was this study done?Autistic adults often experience higher levels of stress and lower life satisfaction than non-autistic adults. Recently, research has suggested that these experiences are linked to them being part of a minority group—autistic people. Minorities often experience extra stress from experiences like stigma, sometimes called minority stressors. A theoretical model, the Psychological Mediation Framework (PMF), describes how minority stressors are linked to differences in people’s thoughts, emotions, and feelings. This study examined whether the PMF can also help explain the stress and life satisfaction of autistic adults. We did this by testing whether two important parts of the PMF, internalized autism-related stigma (negative beliefs about being autistic) and loneliness, were linked to their stress and life satisfaction (how content people feel with their lives overall).What did we do?We analyzed data from 831 autistic adults who filled out a survey. In our statistical models (mathematical analyses that test how variables are related), we took into account other factors that are more commonly used to examine which factors were statistically associated with stress and life satisfaction in autistic adults, such as the level of characteristics related to autism and education level. By doing this, we increased the chance that any relationships we found could be attributed to minority stressors.What did we find?Autistic adults who experienced more internalized autism-related stigma, emotional loneliness (feeling disconnected from close relationships), and social loneliness (lacking a broader social network) reported higher stress levels and lower life satisfaction. We also found that autistic adults with more internalized stigma felt lonelier, and this loneliness was linked to higher stress and lower life satisfaction.What do the findings mean?The results suggest that autistic adults may internalize autism-related stigmas, which are linked to greater loneliness, higher stress, and lower life satisfaction. As these findings align with the PMF, we believe future studies should continue using this model. Also, we recommend that researchers should study ways to reduce minority stressors and improve the mental health of autistic adults. En ligne : https://dx.doi.org/10.1177/13623613261446876 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Longitudinal Association Between Social Support and Quality of Life Among Middle-Aged and Older Autistic Adults / Wei SONG in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1548-1561 Titre : Longitudinal Association Between Social Support and Quality of Life Among Middle-Aged and Older Autistic Adults Type de document : texte imprimé Auteurs : Wei SONG, Auteur ; Goldie A. MCQUAID, Auteur ; Rebecca A. CHARLTON, Auteur ; Gregory L. WALLACE, Auteur Article en page(s) : p.1548-1561 Langues : Anglais (eng) Mots-clés : autism  social support  quality of life  adult  midlife  old age  longitudinal Index. décimale : PER Périodiques Résumé : Social support is positively associated with quality of life (QoL) in autistic people, yet almost all evidence is cross-sectional and focused on younger adults. We examined 2-year longitudinal survey data from 209 autistic adults aged ⩾40 years living in the United States, all recruited via the Research Match service of Simons Powering Autism Research for Knowledge. Participants self-reported their general QoL, autism-specific QoL, and social support (subjective support, instrumental support, and social interaction). Cross-lagged panel models tested bidirectional associations. Mean scores increased from Time 1 to Time 2 for the general QoL and autism-specific QoL, while social support was mostly stable. Higher baseline general QoL predicted greater subjective support later, whereas baseline subjective support did not predict later general QoL. A reciprocal relationship emerged between autism-specific QoL and subjective support. Unexpectedly, baseline instrumental support predicted lower subsequent general QoL. Among autistic adults in mid-to-later life, QoL appears to drive subsequent social support more strongly than support drives QoL, with the clearest reciprocity observed for autism-specific QoL and subjective support. Future multiwave studies with more diverse samples are needed to chart long-term trajectories and determine how tailored support can optimize aging outcomes in individuals with autism.Lay Abstract We know little about how autistic people’s perceived social support and quality of life (QoL) influence each other as they age. We surveyed 209 40+-year-old autistic adults living in the United States at two timepoints 2 years apart. They answered questions about their general QoL, QoL specific to their autistic experiences, and three types of social support (subjective support, instrumental support, and social interaction). The first survey was in late 2019/early 2020, and the second was 2 years later – late 2021/early 2022. We found that, on average, middle-aged and older autistic adults reported better QoL after 2 years, while the amount of practical help and the number of social interactions did not change. People who started out with better QoL reported more subjective support later. Reporting better autism-specific QoL at the beginning led to more emotional and practical support later and vice versa – feeling well-supported emotionally initially led to better autism-specific QoL later. Surprisingly, getting more initial practical support was linked to lower overall QoL 2 years later. Our results suggest that helping autistic adults feel comfortable with their identity, manage sensory needs, and navigate services may not only improve their QoL but also strengthen the emotional and practical support they receive from others. Practical help is still important, but it should match the person’s goals and preferences, so that it boosts, rather than harms, life satisfaction. Programs that check in regularly about changing needs, especially around significant life events like retirement or health changes, could make a real difference as autistic adults grow older. En ligne : https://dx.doi.org/10.1177/13623613261446878 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Longitudinal Association Between Social Support and Quality of Life Among Middle-Aged and Older Autistic Adults [texte imprimé] / Wei SONG, Auteur ; Goldie A. MCQUAID, Auteur ; Rebecca A. CHARLTON, Auteur ; Gregory L. WALLACE, Auteur . - p.1548-1561. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1548-1561 Mots-clés : autism  social support  quality of life  adult  midlife  old age  longitudinal Index. décimale : PER Périodiques Résumé : Social support is positively associated with quality of life (QoL) in autistic people, yet almost all evidence is cross-sectional and focused on younger adults. We examined 2-year longitudinal survey data from 209 autistic adults aged ⩾40 years living in the United States, all recruited via the Research Match service of Simons Powering Autism Research for Knowledge. Participants self-reported their general QoL, autism-specific QoL, and social support (subjective support, instrumental support, and social interaction). Cross-lagged panel models tested bidirectional associations. Mean scores increased from Time 1 to Time 2 for the general QoL and autism-specific QoL, while social support was mostly stable. Higher baseline general QoL predicted greater subjective support later, whereas baseline subjective support did not predict later general QoL. A reciprocal relationship emerged between autism-specific QoL and subjective support. Unexpectedly, baseline instrumental support predicted lower subsequent general QoL. Among autistic adults in mid-to-later life, QoL appears to drive subsequent social support more strongly than support drives QoL, with the clearest reciprocity observed for autism-specific QoL and subjective support. Future multiwave studies with more diverse samples are needed to chart long-term trajectories and determine how tailored support can optimize aging outcomes in individuals with autism.Lay Abstract We know little about how autistic people’s perceived social support and quality of life (QoL) influence each other as they age. We surveyed 209 40+-year-old autistic adults living in the United States at two timepoints 2 years apart. They answered questions about their general QoL, QoL specific to their autistic experiences, and three types of social support (subjective support, instrumental support, and social interaction). The first survey was in late 2019/early 2020, and the second was 2 years later – late 2021/early 2022. We found that, on average, middle-aged and older autistic adults reported better QoL after 2 years, while the amount of practical help and the number of social interactions did not change. People who started out with better QoL reported more subjective support later. Reporting better autism-specific QoL at the beginning led to more emotional and practical support later and vice versa – feeling well-supported emotionally initially led to better autism-specific QoL later. Surprisingly, getting more initial practical support was linked to lower overall QoL 2 years later. Our results suggest that helping autistic adults feel comfortable with their identity, manage sensory needs, and navigate services may not only improve their QoL but also strengthen the emotional and practical support they receive from others. Practical help is still important, but it should match the person’s goals and preferences, so that it boosts, rather than harms, life satisfaction. Programs that check in regularly about changing needs, especially around significant life events like retirement or health changes, could make a real difference as autistic adults grow older. En ligne : https://dx.doi.org/10.1177/13623613261446878 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

How can we improve the timeliness and quality of diagnostic assessment for children with possible autism? Qualitative findings and recommendations from a Realist Evaluation of Autism Service delivery in the United Kingdom / Ian MALE in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1562-1575 Titre : How can we improve the timeliness and quality of diagnostic assessment for children with possible autism? Qualitative findings and recommendations from a Realist Evaluation of Autism Service delivery in the United Kingdom Type de document : texte imprimé Auteurs : Ian MALE, Auteur ; William FARR, Auteur ; Sophie MCGREVEY, Auteur ; Vanessa ABRAHAMSON, Auteur ; Sarah WIGHAM, Auteur ; Venkat REDDY, Auteur ; Amanda ALLARD, Auteur ; Victoria GRAHAME, Auteur ; Jessica MAXWELL, Auteur ; Grainne SAUNDERS, Auteur ; Anna WALKER, Auteur ; Nic KING, Auteur ; Seema ISLAM, Auteur ; Zamir AKHTAR, Auteur ; Jeremy PARR, Auteur ; Patricia WILSON, Auteur Article en page(s) : p.1562-1575 Langues : Anglais (eng) Mots-clés : autism  children  diagnosis Index. décimale : PER Périodiques Résumé : Families face long waits for their child to undergo a diagnostic assessment for possible autism. This study explored the experiences of parents and children/young people (CYP) accessing and professionals providing autism diagnostic assessments in the United Kingdom. This realist evaluation was conducted in three phases: (1) interviews and focus groups with parents, CYP and professionals from six U.K. National Health Service (NHS) childhood autism assessment and diagnosis services; (2) resulting qualitative data were analysed, and programme theories (PTs) explaining how, why and in what contexts childhood autism assessment and diagnosis pathways work well were tested and refined; and (3) recommendations for change were developed by the research team and presented to delegates at six dissemination events including 250 clinicians, managers, parents/carers, commissioners and academics involved in autism assessment and diagnosis. Delegates were invited to select and rank the most important recommendations. There were 121 participants in Phase 1 (18 CYP, 34 parents, 69 professionals). In Phase 2, both families and clinicians confirmed challenges in the assessment and diagnostic process, including increased demand for assessments and insufficient numbers of specialist multidisciplinary team (MDT) practitioners to provide adequately skilled workforces. The need to support families across the whole assessment and diagnostic process was seen as key to providing a quality service but was often not possible. Steps taken to improve the process were identified, and seven PTs covered: improving recognition of children needing referral, referral processes, service organisation, professional skill mix, assessment, feedback/report writing and training/service evaluation. In Phase 3, during consultation, 12 recommendations were selected as most important for change. Several strategies for improving services were identified that may reduce waiting times and increase acceptability and quality of childhood autism assessment and diagnosis services.Lay Abstract Waiting lists for childhood autism assessments are lengthy, meaning families wait a long time for their child to undergo a diagnostic assessment for possible autism. In this study, we explored the experiences of children, young people and parents who have gone through the assessment and diagnosis process in the United Kingdom. We also explored the views of professionals who deliver childhood autism diagnostic assessments. We conducted interviews and focus groups with children, young people, parents and professionals. We recruited participants from six U.K. National Health Service (NHS) assessment and diagnosis services. We wanted to find out how childhood autism assessment and diagnosis processes could be improved. We asked the research participants about their experiences of the autism assessment and diagnosis process to find out what worked well, who it worked well for and under what circumstances. Recommendations for change were developed by the research team and presented to delegates at six dissemination events. Delegates (including 250 clinicians, managers, parents/carers, commissioners and academics involved in autism assessment and diagnosis) were invited to select and rank the most important recommendations. In total, 121 people took part including 18 children and young people, 34 parents and 69 professionals. Participants described their experiences of the assessment and diagnosis process and challenges in the system including increased demand for assessments and there not being enough specialist skilled practitioners available to conduct assessments. Participants also described ways the childhood assessment and diagnosis process could be improved, including better information gathering during referral. The need to support families throughout the whole assessment process (and not just on receiving a diagnosis) was seen as very important. Seven key areas for improvement were identified: accurately recognising when to refer children, the referral process, service organisation, skill mix of autism assessment teams, the diagnostic assessment, feedback and report writing, and training for staff. Twelve recommendations for change were identified by delegates at the dissemination events. The findings can be used to help make recommendations for service development, reduce waiting times and improve the quality of childhood autism assessment services for children, young people and families. En ligne : https://dx.doi.org/10.1177/13623613261430914 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] How can we improve the timeliness and quality of diagnostic assessment for children with possible autism? Qualitative findings and recommendations from a Realist Evaluation of Autism Service delivery in the United Kingdom [texte imprimé] / Ian MALE, Auteur ; William FARR, Auteur ; Sophie MCGREVEY, Auteur ; Vanessa ABRAHAMSON, Auteur ; Sarah WIGHAM, Auteur ; Venkat REDDY, Auteur ; Amanda ALLARD, Auteur ; Victoria GRAHAME, Auteur ; Jessica MAXWELL, Auteur ; Grainne SAUNDERS, Auteur ; Anna WALKER, Auteur ; Nic KING, Auteur ; Seema ISLAM, Auteur ; Zamir AKHTAR, Auteur ; Jeremy PARR, Auteur ; Patricia WILSON, Auteur . - p.1562-1575. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1562-1575 Mots-clés : autism  children  diagnosis Index. décimale : PER Périodiques Résumé : Families face long waits for their child to undergo a diagnostic assessment for possible autism. This study explored the experiences of parents and children/young people (CYP) accessing and professionals providing autism diagnostic assessments in the United Kingdom. This realist evaluation was conducted in three phases: (1) interviews and focus groups with parents, CYP and professionals from six U.K. National Health Service (NHS) childhood autism assessment and diagnosis services; (2) resulting qualitative data were analysed, and programme theories (PTs) explaining how, why and in what contexts childhood autism assessment and diagnosis pathways work well were tested and refined; and (3) recommendations for change were developed by the research team and presented to delegates at six dissemination events including 250 clinicians, managers, parents/carers, commissioners and academics involved in autism assessment and diagnosis. Delegates were invited to select and rank the most important recommendations. There were 121 participants in Phase 1 (18 CYP, 34 parents, 69 professionals). In Phase 2, both families and clinicians confirmed challenges in the assessment and diagnostic process, including increased demand for assessments and insufficient numbers of specialist multidisciplinary team (MDT) practitioners to provide adequately skilled workforces. The need to support families across the whole assessment and diagnostic process was seen as key to providing a quality service but was often not possible. Steps taken to improve the process were identified, and seven PTs covered: improving recognition of children needing referral, referral processes, service organisation, professional skill mix, assessment, feedback/report writing and training/service evaluation. In Phase 3, during consultation, 12 recommendations were selected as most important for change. Several strategies for improving services were identified that may reduce waiting times and increase acceptability and quality of childhood autism assessment and diagnosis services.Lay Abstract Waiting lists for childhood autism assessments are lengthy, meaning families wait a long time for their child to undergo a diagnostic assessment for possible autism. In this study, we explored the experiences of children, young people and parents who have gone through the assessment and diagnosis process in the United Kingdom. We also explored the views of professionals who deliver childhood autism diagnostic assessments. We conducted interviews and focus groups with children, young people, parents and professionals. We recruited participants from six U.K. National Health Service (NHS) assessment and diagnosis services. We wanted to find out how childhood autism assessment and diagnosis processes could be improved. We asked the research participants about their experiences of the autism assessment and diagnosis process to find out what worked well, who it worked well for and under what circumstances. Recommendations for change were developed by the research team and presented to delegates at six dissemination events. Delegates (including 250 clinicians, managers, parents/carers, commissioners and academics involved in autism assessment and diagnosis) were invited to select and rank the most important recommendations. In total, 121 people took part including 18 children and young people, 34 parents and 69 professionals. Participants described their experiences of the assessment and diagnosis process and challenges in the system including increased demand for assessments and there not being enough specialist skilled practitioners available to conduct assessments. Participants also described ways the childhood assessment and diagnosis process could be improved, including better information gathering during referral. The need to support families throughout the whole assessment process (and not just on receiving a diagnosis) was seen as very important. Seven key areas for improvement were identified: accurately recognising when to refer children, the referral process, service organisation, skill mix of autism assessment teams, the diagnostic assessment, feedback and report writing, and training for staff. Twelve recommendations for change were identified by delegates at the dissemination events. The findings can be used to help make recommendations for service development, reduce waiting times and improve the quality of childhood autism assessment services for children, young people and families. En ligne : https://dx.doi.org/10.1177/13623613261430914 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Daily Mindfulness and Depressive Symptoms Among Parents of Autistic Children: A Dynamic Structural Equation Modelling Study / Lin WANG in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1576-1592 Titre : Daily Mindfulness and Depressive Symptoms Among Parents of Autistic Children: A Dynamic Structural Equation Modelling Study Type de document : texte imprimé Auteurs : Lin WANG, Auteur ; Meng HUA, Auteur ; Xinyi HU, Auteur ; Yifan WANG, Auteur ; Qinxing XIE, Auteur ; Guang YANG, Auteur ; Yuan CHEN, Auteur Article en page(s) : p.1576-1592 Langues : Anglais (eng) Mots-clés : child externalising problems  daily diary study  depressive symptoms  dynamic structural equation modelling  mindfulness  parents of autistic children  perceived social support Index. décimale : PER Périodiques Résumé : Elevated depressive symptoms among parents of autistic children are well documented and associated with poorer mental health. Mindfulness has been identified as a protective factor against mental health difficulties, but its day-to-day associations with depressive symptoms in this population remain unclear. A total of 210 Chinese parents of autistic children participated in this 15-day diary study, during which they completed daily measures of mindfulness and depressive symptoms. The data were analysed using dynamic structural equation modelling. Results indicated that (1) parents’ daily mindfulness and depressive symptoms exhibited autoregressive stability and showed significant negative reciprocal cross-lagged associations at the within-person level. At the between-person level, (2) higher perceived social support was associated with lower mean depressive symptoms and higher mean mindfulness, and it strengthened the negative cross-lagged effect of daily mindfulness on next-day depressive symptoms; and (3) child externalising problems were positively associated with parents’ overall mean depressive symptoms and negatively associated with both parents’ overall mean daily mindfulness and the autoregressive effects of daily mindfulness and depressive symptoms. Findings underscore the importance of fostering daily mindfulness within a supportive resource context and highlight the need to maintain the day-to-day persistence of mindfulness in families of autistic children with higher externalising problems.Lay Abstract Parents of autistic children tended to feel fewer depressive symptoms on the day after they felt more mindful; likewise, they tended to feel less mindful the day after they felt more depressed. We asked 210 parents in China to complete a short daily questionnaire for 15 days about their daily mindfulness and depressive symptoms. We also looked at two factors that might affect day-to-day mindfulness and depressive symptoms: the level of perceived social support and children’s challenging externalising behaviours directed towards parents. We focused on how parents’ mindfulness and depressive symptoms shift from one day to the next to identify practical ways to improve parents’ mental well-being. We found that more perceived social support was linked to a stronger next-day connection between feeling more mindful and feeling less depressed, whereas more frequent behavioural challenges were linked to more ups and downs from one day to the next in both mindfulness and mood. The findings of this work can guide researchers and practitioners to design simple, everyday actions, such as brief mindfulness moments and better support for families, that help parents feel less low from one day to the next. En ligne : https://dx.doi.org/10.1177/13623613261439930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Daily Mindfulness and Depressive Symptoms Among Parents of Autistic Children: A Dynamic Structural Equation Modelling Study [texte imprimé] / Lin WANG, Auteur ; Meng HUA, Auteur ; Xinyi HU, Auteur ; Yifan WANG, Auteur ; Qinxing XIE, Auteur ; Guang YANG, Auteur ; Yuan CHEN, Auteur . - p.1576-1592. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1576-1592 Mots-clés : child externalising problems  daily diary study  depressive symptoms  dynamic structural equation modelling  mindfulness  parents of autistic children  perceived social support Index. décimale : PER Périodiques Résumé : Elevated depressive symptoms among parents of autistic children are well documented and associated with poorer mental health. Mindfulness has been identified as a protective factor against mental health difficulties, but its day-to-day associations with depressive symptoms in this population remain unclear. A total of 210 Chinese parents of autistic children participated in this 15-day diary study, during which they completed daily measures of mindfulness and depressive symptoms. The data were analysed using dynamic structural equation modelling. Results indicated that (1) parents’ daily mindfulness and depressive symptoms exhibited autoregressive stability and showed significant negative reciprocal cross-lagged associations at the within-person level. At the between-person level, (2) higher perceived social support was associated with lower mean depressive symptoms and higher mean mindfulness, and it strengthened the negative cross-lagged effect of daily mindfulness on next-day depressive symptoms; and (3) child externalising problems were positively associated with parents’ overall mean depressive symptoms and negatively associated with both parents’ overall mean daily mindfulness and the autoregressive effects of daily mindfulness and depressive symptoms. Findings underscore the importance of fostering daily mindfulness within a supportive resource context and highlight the need to maintain the day-to-day persistence of mindfulness in families of autistic children with higher externalising problems.Lay Abstract Parents of autistic children tended to feel fewer depressive symptoms on the day after they felt more mindful; likewise, they tended to feel less mindful the day after they felt more depressed. We asked 210 parents in China to complete a short daily questionnaire for 15 days about their daily mindfulness and depressive symptoms. We also looked at two factors that might affect day-to-day mindfulness and depressive symptoms: the level of perceived social support and children’s challenging externalising behaviours directed towards parents. We focused on how parents’ mindfulness and depressive symptoms shift from one day to the next to identify practical ways to improve parents’ mental well-being. We found that more perceived social support was linked to a stronger next-day connection between feeling more mindful and feeling less depressed, whereas more frequent behavioural challenges were linked to more ups and downs from one day to the next in both mindfulness and mood. The findings of this work can guide researchers and practitioners to design simple, everyday actions, such as brief mindfulness moments and better support for families, that help parents feel less low from one day to the next. En ligne : https://dx.doi.org/10.1177/13623613261439930 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Participatory Development and Psychometric Evaluation of the Introspective Predictive Processing Inventory: A Self-Report Measure for Autistic and Non-Autistic Adults / Marik ROOS in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1593-1607 Titre : Participatory Development and Psychometric Evaluation of the Introspective Predictive Processing Inventory: A Self-Report Measure for Autistic and Non-Autistic Adults Type de document : texte imprimé Auteurs : Marik ROOS, Auteur ; Hannah STORM, Auteur ; Lucie ZIMMER, Auteur ; Tobias SCHUWERK, Auteur Article en page(s) : p.1593-1607 Langues : Anglais (eng) Mots-clés : autism  predictive processing  self-report measure  psychometric validation  participatory research Index. décimale : PER Périodiques Résumé : Traditional self-report autism measures are often constructed from an “outside view” by non-autistic researchers rather than reflecting authentic autistic experiences. Predictive processing theory offers a framework for understanding autism, but comprehensive tools assessing the subjective manifestations of predictive processing differences and associated challenges have been lacking. This study aimed to develop and validate the Introspective Predictive Processing Inventory (IPPI), a self-report measure assessing predictive processing characteristics and their subjective consequences in everyday life. Through community-led, participatory research, we developed an initial 65-item version in German and English, and employed a five-stage validation approach across three samples (N = 790). We used network-based item optimization, exploratory and confirmatory factor analyses, measurement invariance testing, and convergent validity assessment. Network optimization reduced the scale to 18 items while maintaining excellent reliability and improved discriminative power. Exploratory factor analysis revealed a stable two-factor structure: “Prediction Integration and Interpretation” and “Prediction Error Sensitivity and Stability Needs”. The IPPI demonstrated exceptional discriminative validity (area under the curve >0.97), strong convergent validity with established measures, measurement invariance across groups, and independence from general cognitive abilities. It provides a tool for assessing predictive processing experiences and their daily consequences, advancing autism research that bridges predictive processing theory with lived experiences.Lay Abstract Most questionnaires used to understand autism are created by non-autistic researchers who imagine what autism might be like, rather than capturing what autistic people actually experience. Scientists have a theory called “predictive processing” that suggests our brains are constantly trying to predict what will happen next in our environment. When these predictions don’t match reality, it can cause stress and difficulties in daily life. However, there was no good way to measure these internal experiences and daily challenges that autistic people face. To address this gap, an autistic researcher worked with autistic community members and non-autistic researchers to create a questionnaire called the Introspective Predictive Processing Inventory (IPPI). They started with 65 questions, developed both German and English versions, and tested it with 790 autistic and non-autistic adults from mostly Germany and the United Kingdom. Using advanced statistical methods, they refined it down to 18 key questions that capture two main areas: difficulties understanding and integrating information from social situations and the environment, and sensitivity to unexpected changes with strong needs for predictability, causing distress when things don’t go as expected. The final 18-question IPPI was highly reliable and could accurately distinguish between autistic and non-autistic people 97% of the time. Importantly, these differences were not related to intelligence levels. These findings provide researchers and clinicians with a new tool to understand the internal experiences of autistic people from their own perspective. This could help develop better support strategies, improve quality of life, and advance autism research that truly reflects autistic experiences rather than outside assumptions about autism. En ligne : https://dx.doi.org/10.1177/13623613261443728 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Participatory Development and Psychometric Evaluation of the Introspective Predictive Processing Inventory: A Self-Report Measure for Autistic and Non-Autistic Adults [texte imprimé] / Marik ROOS, Auteur ; Hannah STORM, Auteur ; Lucie ZIMMER, Auteur ; Tobias SCHUWERK, Auteur . - p.1593-1607. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1593-1607 Mots-clés : autism  predictive processing  self-report measure  psychometric validation  participatory research Index. décimale : PER Périodiques Résumé : Traditional self-report autism measures are often constructed from an “outside view” by non-autistic researchers rather than reflecting authentic autistic experiences. Predictive processing theory offers a framework for understanding autism, but comprehensive tools assessing the subjective manifestations of predictive processing differences and associated challenges have been lacking. This study aimed to develop and validate the Introspective Predictive Processing Inventory (IPPI), a self-report measure assessing predictive processing characteristics and their subjective consequences in everyday life. Through community-led, participatory research, we developed an initial 65-item version in German and English, and employed a five-stage validation approach across three samples (N = 790). We used network-based item optimization, exploratory and confirmatory factor analyses, measurement invariance testing, and convergent validity assessment. Network optimization reduced the scale to 18 items while maintaining excellent reliability and improved discriminative power. Exploratory factor analysis revealed a stable two-factor structure: “Prediction Integration and Interpretation” and “Prediction Error Sensitivity and Stability Needs”. The IPPI demonstrated exceptional discriminative validity (area under the curve >0.97), strong convergent validity with established measures, measurement invariance across groups, and independence from general cognitive abilities. It provides a tool for assessing predictive processing experiences and their daily consequences, advancing autism research that bridges predictive processing theory with lived experiences.Lay Abstract Most questionnaires used to understand autism are created by non-autistic researchers who imagine what autism might be like, rather than capturing what autistic people actually experience. Scientists have a theory called “predictive processing” that suggests our brains are constantly trying to predict what will happen next in our environment. When these predictions don’t match reality, it can cause stress and difficulties in daily life. However, there was no good way to measure these internal experiences and daily challenges that autistic people face. To address this gap, an autistic researcher worked with autistic community members and non-autistic researchers to create a questionnaire called the Introspective Predictive Processing Inventory (IPPI). They started with 65 questions, developed both German and English versions, and tested it with 790 autistic and non-autistic adults from mostly Germany and the United Kingdom. Using advanced statistical methods, they refined it down to 18 key questions that capture two main areas: difficulties understanding and integrating information from social situations and the environment, and sensitivity to unexpected changes with strong needs for predictability, causing distress when things don’t go as expected. The final 18-question IPPI was highly reliable and could accurately distinguish between autistic and non-autistic people 97% of the time. Importantly, these differences were not related to intelligence levels. These findings provide researchers and clinicians with a new tool to understand the internal experiences of autistic people from their own perspective. This could help develop better support strategies, improve quality of life, and advance autism research that truly reflects autistic experiences rather than outside assumptions about autism. En ligne : https://dx.doi.org/10.1177/13623613261443728 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Sex-specific metrics for success: Gaps in social word use are bigger for autistic girls than boys / Meredith COLA in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1608-1614 Titre : Sex-specific metrics for success: Gaps in social word use are bigger for autistic girls than boys Type de document : texte imprimé Auteurs : Meredith COLA, Auteur ; Sarah SCHILLINGER, Auteur ; Margaret LYONS, Auteur ; Amanda LEE, Auteur ; Calliana FAULK, Auteur ; Maxine COVELLO, Auteur ; Nasya HOWARD, Auteur ; Hannah FRANKE, Auteur ; Alexandria MULQUEEN, Auteur ; Lizzy FULOP, Auteur ; Azia KNOX, Auteur ; Sunghye CHO, Auteur ; Mark Y. LIBERMAN, Auteur ; Juhi PANDEY, Auteur ; Ashlee YATES FLANAGAN, Auteur ; Joseph DONAHER, Auteur ; Robert T. SCHULTZ, Auteur ; Julia PARISH-MORRIS, Auteur Article en page(s) : p.1608-1614 Langues : Anglais (eng) Mots-clés : autism  communication and language  sex differences  social communication  social phenotype Index. décimale : PER Périodiques Résumé : Autistic girls are often diagnosed late, missed, or misdiagnosed, which can negatively impact quality of life and mental health. Although research shows the social profiles of autistic girls differ from boys in systematic ways that might explain gaps in diagnosis, little is known about how autistic girls’ social language compares to their same-sex non-autistic peers. This study investigated social words—words that make reference to other people—produced by 138 age- and IQ-matched autistic and non-autistic youth (ages 6–15) during one Autism Diagnostic Observation Schedule, Second Edition task. Girls used significantly more social words than boys across both diagnostic groups. There was a larger gap in social word production between autistic girls and non-autistic girls than autistic boys and non-autistic boys, with non-autistic girls using the most social words. Non-autistic girls’ social language behavior—including their social word production—sets an especially high bar for autistic girls, who often report trying to blend in with other girls. Growing evidence of the distinct social language profiles of autistic and non-autistic girls versus boys should guide researchers and clinicians to assess autism in ways that are sensitive to sex-associated differences and develop interventions that consider the norms of youth’s target social circles.Lay Abstract Autism is often diagnosed later in girls and women as compared to boys and men. More research is needed to understand how autism presents differently in girls. This study investigates how autistic and non-autistic youth aged 6 to 15 years use social words (e.g. “friend,” “mom,” “help,” “talk”) during an interview about friends, relationships, and marriage as part of an autism diagnostic assessment. Overall, girls used more social words compared to boys and talked more about friends. Specifically, non-autistic girls used the most social words in comparison with other groups. Highly social language produced by non-autistic girls may make it especially hard for autistic girls to blend in with other girls and could lead them to engage in more camouflaging behaviors to hide their autistic characteristics. With such different average social language behavior from girls and boys, researchers should consider adapting autism assessments and interventions to support the unique needs of autistic girls. En ligne : https://dx.doi.org/10.1177/13623613261417535 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586 [article] Sex-specific metrics for success: Gaps in social word use are bigger for autistic girls than boys [texte imprimé] / Meredith COLA, Auteur ; Sarah SCHILLINGER, Auteur ; Margaret LYONS, Auteur ; Amanda LEE, Auteur ; Calliana FAULK, Auteur ; Maxine COVELLO, Auteur ; Nasya HOWARD, Auteur ; Hannah FRANKE, Auteur ; Alexandria MULQUEEN, Auteur ; Lizzy FULOP, Auteur ; Azia KNOX, Auteur ; Sunghye CHO, Auteur ; Mark Y. LIBERMAN, Auteur ; Juhi PANDEY, Auteur ; Ashlee YATES FLANAGAN, Auteur ; Joseph DONAHER, Auteur ; Robert T. SCHULTZ, Auteur ; Julia PARISH-MORRIS, Auteur . - p.1608-1614. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1608-1614 Mots-clés : autism  communication and language  sex differences  social communication  social phenotype Index. décimale : PER Périodiques Résumé : Autistic girls are often diagnosed late, missed, or misdiagnosed, which can negatively impact quality of life and mental health. Although research shows the social profiles of autistic girls differ from boys in systematic ways that might explain gaps in diagnosis, little is known about how autistic girls’ social language compares to their same-sex non-autistic peers. This study investigated social words—words that make reference to other people—produced by 138 age- and IQ-matched autistic and non-autistic youth (ages 6–15) during one Autism Diagnostic Observation Schedule, Second Edition task. Girls used significantly more social words than boys across both diagnostic groups. There was a larger gap in social word production between autistic girls and non-autistic girls than autistic boys and non-autistic boys, with non-autistic girls using the most social words. Non-autistic girls’ social language behavior—including their social word production—sets an especially high bar for autistic girls, who often report trying to blend in with other girls. Growing evidence of the distinct social language profiles of autistic and non-autistic girls versus boys should guide researchers and clinicians to assess autism in ways that are sensitive to sex-associated differences and develop interventions that consider the norms of youth’s target social circles.Lay Abstract Autism is often diagnosed later in girls and women as compared to boys and men. More research is needed to understand how autism presents differently in girls. This study investigates how autistic and non-autistic youth aged 6 to 15 years use social words (e.g. “friend,” “mom,” “help,” “talk”) during an interview about friends, relationships, and marriage as part of an autism diagnostic assessment. Overall, girls used more social words compared to boys and talked more about friends. Specifically, non-autistic girls used the most social words in comparison with other groups. Highly social language produced by non-autistic girls may make it especially hard for autistic girls to blend in with other girls and could lead them to engage in more camouflaging behaviors to hide their autistic characteristics. With such different average social language behavior from girls and boys, researchers should consider adapting autism assessments and interventions to support the unique needs of autistic girls. En ligne : https://dx.doi.org/10.1177/13623613261417535 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=586

Short report: An examination of behavioral factors linked to picky eating in autistic children / Anna WALLISCH in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1615-1619 Titre : Short report: An examination of behavioral factors linked to picky eating in autistic children Type de document : texte imprimé Auteurs : Anna WALLISCH, Auteur ; Sallie NOWELL, Auteur ; E. ZHANG, Auteur ; Brian BOYD, Auteur ; Elena TENENBAUM, Auteur ; Nancy ZUCKER, Auteur ; Dana BAKULA, Auteur ; Ann DAVIS, Auteur Article en page(s) : p.1615-1619 Langues : Anglais (eng) Mots-clés : autism  eating behaviors  externalizing behavior  internalizing behavior Index. décimale : PER Périodiques Résumé : Eating difficulties are highly prevalent among autistic children and are linked to negative health consequences. While many mechanisms are thought to underly these behaviors, we know less about how internalizing and externalizing behaviors relate to eating difficulties in autism. The purpose of this study was to examine how internalizing and externalizing behaviors differ between autistic children (3–6 years of age) with parent-reported picky eating (n = 80) and without picky eating (n = 30). Data was drawn from intake paperwork and assessments completed as part of an autism diagnostic evaluation at a large medical center. Results suggested that picky eaters, when compared to non-picky eaters, had significantly more difficulties with aggression and withdrawal. Our study findings suggest that understanding the behavioral profiles associated with picky eating may be particularly useful when devising treatment plans. Furthermore, diagnosticians who may be the first to gather both eating and behavioral symptom data can initiate referrals to feeding specialists to help prevent some of the negative health consequences associated with these eating behaviors.Lay Abstract Many autistic children have trouble with eating (e.g. not eating a wide variety of foods) which can lead to later health issues. While there are many factors that are thought to relate to these eating issues, one factor we know less about are internalizing behaviors, or being worried, anxious, or sad, and externalizing behaviors, or issues with attending to a task or aggressive behaviors. In this study, we looked at differences in externalizing and internalizing behaviors in autistic children, who were 3–6 years of age, with picky eating (80 children with picky eating) and without picky eating (30 children without picky eating). Our results suggested that autistic children with picky eating had more issues with an externalizing and an internalizing behavior than autistic children without picky eating. Our findings are important because both externalizing and internalizing behaviors are likely important factors to consider when supporting an autistic child with eating difficulties and their family. Practitioners who diagnose autism may also be the first to gather both eating and behavioral information and may help to refer the child to a feeding specialist to prevent later issues. En ligne : https://dx.doi.org/10.1177/13623613261418948 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Short report: An examination of behavioral factors linked to picky eating in autistic children [texte imprimé] / Anna WALLISCH, Auteur ; Sallie NOWELL, Auteur ; E. ZHANG, Auteur ; Brian BOYD, Auteur ; Elena TENENBAUM, Auteur ; Nancy ZUCKER, Auteur ; Dana BAKULA, Auteur ; Ann DAVIS, Auteur . - p.1615-1619. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1615-1619 Mots-clés : autism  eating behaviors  externalizing behavior  internalizing behavior Index. décimale : PER Périodiques Résumé : Eating difficulties are highly prevalent among autistic children and are linked to negative health consequences. While many mechanisms are thought to underly these behaviors, we know less about how internalizing and externalizing behaviors relate to eating difficulties in autism. The purpose of this study was to examine how internalizing and externalizing behaviors differ between autistic children (3–6 years of age) with parent-reported picky eating (n = 80) and without picky eating (n = 30). Data was drawn from intake paperwork and assessments completed as part of an autism diagnostic evaluation at a large medical center. Results suggested that picky eaters, when compared to non-picky eaters, had significantly more difficulties with aggression and withdrawal. Our study findings suggest that understanding the behavioral profiles associated with picky eating may be particularly useful when devising treatment plans. Furthermore, diagnosticians who may be the first to gather both eating and behavioral symptom data can initiate referrals to feeding specialists to help prevent some of the negative health consequences associated with these eating behaviors.Lay Abstract Many autistic children have trouble with eating (e.g. not eating a wide variety of foods) which can lead to later health issues. While there are many factors that are thought to relate to these eating issues, one factor we know less about are internalizing behaviors, or being worried, anxious, or sad, and externalizing behaviors, or issues with attending to a task or aggressive behaviors. In this study, we looked at differences in externalizing and internalizing behaviors in autistic children, who were 3–6 years of age, with picky eating (80 children with picky eating) and without picky eating (30 children without picky eating). Our results suggested that autistic children with picky eating had more issues with an externalizing and an internalizing behavior than autistic children without picky eating. Our findings are important because both externalizing and internalizing behaviors are likely important factors to consider when supporting an autistic child with eating difficulties and their family. Practitioners who diagnose autism may also be the first to gather both eating and behavioral information and may help to refer the child to a feeding specialist to prevent later issues. En ligne : https://dx.doi.org/10.1177/13623613261418948 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587

Self-injurious behaviors with increased likelihood of injury in autistic youth: The role of distress linked to a strong preference for sameness / Emily F. FERGUSON in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1620-1631 Titre : Self-injurious behaviors with increased likelihood of injury in autistic youth: The role of distress linked to a strong preference for sameness Type de document : texte imprimé Auteurs : Emily F. FERGUSON, Auteur ; Emily SPACKMAN, Auteur ; Antonio Y. HARDAN, Auteur ; Mirko ULJAREVIĆ, Auteur Article en page(s) : p.1620-1631 Langues : Anglais (eng) Mots-clés : adolescents  autism spectrum disorders  emotion regulation  insistence on sameness  repetitive behaviors and interests  self-injury Index. décimale : PER Périodiques Résumé : Self-injurious behaviors in autistic youth vary widely in their form, intensity, and potential for physical injury. This study explored predictors of two categories of self-injurious behaviors that were delineated based on their potential for physical injury (self-injurious behavior-High Likelihood and self-injurious behavior-Low Likelihood), with a focus on the role of distress linked to a strong preference for routines (otherwise known as insistence on sameness). The sample included 1892 autistic youth (Mage = 10.82, SDage = 4.14; 22% females) across the United States. Distress associated with insistence on sameness was the strongest predictor of total self-injurious behavior scores, self-injurious behavior-Low Likelihood, and self-injurious behavior-High Likelihood, after controlling for demographic factors and speech level, and remained a unique predictor after accounting for variance explained by other restricted and repetitive behaviors. Sensory hypersensitivity and sensory-seeking were strong unique predictors of all self-injurious behaviors, while hyposensitivity was a weaker predictor of self-injurious behavior total and self-injurious behavior-Low Likelihood, and a non-significant predictor of self-injurious behavior-High Likelihood. Among demographic factors, lower household income was the strongest predictor of all self-injurious behaviors. Higher speech level was a positive predictor of self-injurious behavior-Low Likelihood but a negative predictor of self-injurious behavior-High Likelihood. These findings demonstrate the role of distress associated with insistence on sameness in manifestations of self-injurious behaviors and highlight the importance of exploring predictors at a more granular level to inform targeted interventions and support.Lay Abstract This study explored factors associated with repetitive self-injurious behaviors in autistic youth, focusing on emotional distress linked to a strong preference for routines (often referred to as insistence on sameness), a category of behaviors that includes difficulties with change and a strong preference for routines and/or rituals. We examined two categories of self-injurious behaviors: lower likelihood of physical injury (self-injurious behavior-Low Likelihood) and higher likelihood of physical injury (self-injurious behavior-High Likelihood). The study included 1892 autistic youth of varying ages and cognitive abilities. The main finding was that distress associated with disruptions to routines was the strongest predictor of all types of self-injurious behavior. Youth with greater sensitivity to sensory input or sensory-seeking behaviors were more likely to engage in self-injurious behaviors that could increase risk of physical injury. In contrast, those with reduced sensitivity to sensory input were less likely to engage in self-injurious behaviors. Demographic factors also played a role in the manifestation and severity of self-injurious behaviors. Lower household income was strongly associated with greater self-injurious behavior severity. In addition, higher speech production (e.g. speaking in full sentences) was associated with greater severity of self-injurious behavior-Low Likelihood and self-injurious behavior-High Likelihood. These findings highlight the complexity of self-injurious behaviors in autistic youth and the importance of understanding the different factors that contribute to these behaviors. This study may help to contribute to the development of more responsive, tailored interventions for self-injurious behaviors among autistic youth. En ligne : https://dx.doi.org/10.1177/13623613251396036 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Self-injurious behaviors with increased likelihood of injury in autistic youth: The role of distress linked to a strong preference for sameness [texte imprimé] / Emily F. FERGUSON, Auteur ; Emily SPACKMAN, Auteur ; Antonio Y. HARDAN, Auteur ; Mirko ULJAREVIĆ, Auteur . - p.1620-1631. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1620-1631 Mots-clés : adolescents  autism spectrum disorders  emotion regulation  insistence on sameness  repetitive behaviors and interests  self-injury Index. décimale : PER Périodiques Résumé : Self-injurious behaviors in autistic youth vary widely in their form, intensity, and potential for physical injury. This study explored predictors of two categories of self-injurious behaviors that were delineated based on their potential for physical injury (self-injurious behavior-High Likelihood and self-injurious behavior-Low Likelihood), with a focus on the role of distress linked to a strong preference for routines (otherwise known as insistence on sameness). The sample included 1892 autistic youth (Mage = 10.82, SDage = 4.14; 22% females) across the United States. Distress associated with insistence on sameness was the strongest predictor of total self-injurious behavior scores, self-injurious behavior-Low Likelihood, and self-injurious behavior-High Likelihood, after controlling for demographic factors and speech level, and remained a unique predictor after accounting for variance explained by other restricted and repetitive behaviors. Sensory hypersensitivity and sensory-seeking were strong unique predictors of all self-injurious behaviors, while hyposensitivity was a weaker predictor of self-injurious behavior total and self-injurious behavior-Low Likelihood, and a non-significant predictor of self-injurious behavior-High Likelihood. Among demographic factors, lower household income was the strongest predictor of all self-injurious behaviors. Higher speech level was a positive predictor of self-injurious behavior-Low Likelihood but a negative predictor of self-injurious behavior-High Likelihood. These findings demonstrate the role of distress associated with insistence on sameness in manifestations of self-injurious behaviors and highlight the importance of exploring predictors at a more granular level to inform targeted interventions and support.Lay Abstract This study explored factors associated with repetitive self-injurious behaviors in autistic youth, focusing on emotional distress linked to a strong preference for routines (often referred to as insistence on sameness), a category of behaviors that includes difficulties with change and a strong preference for routines and/or rituals. We examined two categories of self-injurious behaviors: lower likelihood of physical injury (self-injurious behavior-Low Likelihood) and higher likelihood of physical injury (self-injurious behavior-High Likelihood). The study included 1892 autistic youth of varying ages and cognitive abilities. The main finding was that distress associated with disruptions to routines was the strongest predictor of all types of self-injurious behavior. Youth with greater sensitivity to sensory input or sensory-seeking behaviors were more likely to engage in self-injurious behaviors that could increase risk of physical injury. In contrast, those with reduced sensitivity to sensory input were less likely to engage in self-injurious behaviors. Demographic factors also played a role in the manifestation and severity of self-injurious behaviors. Lower household income was strongly associated with greater self-injurious behavior severity. In addition, higher speech production (e.g. speaking in full sentences) was associated with greater severity of self-injurious behavior-Low Likelihood and self-injurious behavior-High Likelihood. These findings highlight the complexity of self-injurious behaviors in autistic youth and the importance of understanding the different factors that contribute to these behaviors. This study may help to contribute to the development of more responsive, tailored interventions for self-injurious behaviors among autistic youth. En ligne : https://dx.doi.org/10.1177/13623613251396036 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587

Why the Term ‘Virtual Autism’ Warrants Caution / Lisa J.G. KRIJNEN in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1632-1634 Titre : Why the Term ‘Virtual Autism’ Warrants Caution Type de document : texte imprimé Auteurs : Lisa J.G. KRIJNEN, Auteur ; Anke M. SCHEEREN, Auteur ; Alvin VAN ASSELT, Auteur ; Sander BEGEER, Auteur ; Rachel D PLAK, Auteur Article en page(s) : p.1632-1634 Langues : Anglais (eng) Mots-clés : autism  early childhood  language  screen time  virtual autism Index. décimale : PER Périodiques Résumé : The term virtual autism has recently been used to describe autism-like behaviors in young children following prolonged exposure to screens. The use of the word autism in this context raises conceptual and ethical concerns by reinforcing outdated ideas about parental blame, misrepresenting the nature of autism as we currently understand it, and causing misunderstanding about autism among the general public. We call for more precise and responsible language and advocate for an alternative term that better reflects the environmental basis of the phenomenon, such as screen-related developmental delay.Lay Abstract The term virtual autism has been used to describe autistic-like behaviors in young children that result from spending a lot of time using screens. Using the word autism in this context can cause confusion. It may lead people to wrongly believe that autism is caused by screen use and bring back outdated ideas that blame parents. We argue that this term can be misleading for parents, teachers, and the general public. Instead, we suggest using a clearer term like screen-related developmental delay to better reflect the environmental causes of these behaviors. En ligne : https://dx.doi.org/10.1177/13623613261434478 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Why the Term ‘Virtual Autism’ Warrants Caution [texte imprimé] / Lisa J.G. KRIJNEN, Auteur ; Anke M. SCHEEREN, Auteur ; Alvin VAN ASSELT, Auteur ; Sander BEGEER, Auteur ; Rachel D PLAK, Auteur . - p.1632-1634. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1632-1634 Mots-clés : autism  early childhood  language  screen time  virtual autism Index. décimale : PER Périodiques Résumé : The term virtual autism has recently been used to describe autism-like behaviors in young children following prolonged exposure to screens. The use of the word autism in this context raises conceptual and ethical concerns by reinforcing outdated ideas about parental blame, misrepresenting the nature of autism as we currently understand it, and causing misunderstanding about autism among the general public. We call for more precise and responsible language and advocate for an alternative term that better reflects the environmental basis of the phenomenon, such as screen-related developmental delay.Lay Abstract The term virtual autism has been used to describe autistic-like behaviors in young children that result from spending a lot of time using screens. Using the word autism in this context can cause confusion. It may lead people to wrongly believe that autism is caused by screen use and bring back outdated ideas that blame parents. We argue that this term can be misleading for parents, teachers, and the general public. Instead, we suggest using a clearer term like screen-related developmental delay to better reflect the environmental causes of these behaviors. En ligne : https://dx.doi.org/10.1177/13623613261434478 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587

Autism, dementia, and post-diagnostic support: A consensus report from the Second International Summit on Intellectual Disabilities and Dementia / Matthew P. JANICKI in Autism, 30-6 (June 2026)  

Public ISBD [article]  inAutism > 30-6 (June 2026) . - p.1635-1653 Titre : Autism, dementia, and post-diagnostic support: A consensus report from the Second International Summit on Intellectual Disabilities and Dementia Type de document : texte imprimé Auteurs : Matthew P. JANICKI, Auteur ; Philip MCCALLION, Auteur ; Nancy JOKINEN, Auteur ; Frode Kibsgaard LARSEN, Auteur ; Dawna T. MUGHAL, Auteur ; Kathryn P. SERVICE, Auteur ; Tiziano GOMIERO, Auteur ; Christina N. MARSACK-TOPOLEWSKI, Auteur ; Karen WATCHMAN, Auteur ; Flavia H. SANTOS, Auteur ; Seth M. KELLER, Auteur ; Shahin SHOOSHTARI, Auteur ; Anupam THAKUR, Auteur ; Vikram PALANISAMY, Auteur Article en page(s) : p.1635-1653 Langues : Anglais (eng) Mots-clés : ASD  autism  dementia  environmental adaptations  long-term care  non-pharmacological interventions  post-diagnostic supports Index. décimale : PER Périodiques Résumé : Post-diagnostic support is a critical yet underdeveloped aspect of dementia care, especially for autistic adults who present with distinct cognitive, sensory, and communication needs. Although interventions such as medication management, psychosocial support, environmental modifications, and carer training are known to improve outcomes, their relevance and accessibility for autistic individuals remain poorly understood. As part of the Second International Summit on Intellectual Disability and Dementia, an international working group examined the intersection of autism and dementia with a focus on post-diagnostic care. Drawing on interdisciplinary expertise, the group identified key barriers and opportunities in clinical practice, caregiving, and service delivery. Recommendations are organized across seven areas, including models of post-diagnostic support, caregiving contexts, pharmacological and non-pharmacological interventions, environmental adaptations, and care planning. The discussion emphasizes the complex needs of autistic adults—many of whom have co-occurring intellectual disabilities, psychiatric conditions, or chronic health issues—and the need for individualized approaches that account for sensory sensitivities and communication differences. Existing dementia care frameworks often fail to address these complexities, resulting in significant service gaps. The report calls for urgent investment in research, workforce training, and policy reform to promote equitable, autism-informed post-diagnostic support and improve quality of life for this underserved population.Lay Abstract Autistic adults who develop dementia often experience challenges that are not well addressed by current dementia care systems. After a dementia diagnosis, people may need help with memory, communication, behavior changes, and daily living. For autistic adults, these supports must be adapted to their individual sensory sensitivities, communication styles, and social differences. This article reports on the work of an international group of researchers, clinicians, and advocates who met during the Second International Summit on Intellectual Disability and Dementia. The group examined how post-diagnostic support for autistic adults with dementia could be improved. They reviewed existing evidence, identified key barriers to care, and proposed strategies to strengthen services in areas such as medication use, environmental design, caregiver training, and personalized care planning. The report emphasizes that many autistic adults also have intellectual disabilities, mental health conditions, or long-term physical health issues, which can make care more complex. Current dementia care frameworks often overlook these overlapping needs, resulting in limited or unsuitable supports. The authors call for more research, workforce training, and autism-informed policy changes to ensure that post-diagnostic care is equitable, individualized, and responsive. Enhancing understanding and adapting support can help autistic adults with dementia maintain dignity, comfort, and quality of life. En ligne : https://dx.doi.org/10.1177/13623613261416670 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587 [article] Autism, dementia, and post-diagnostic support: A consensus report from the Second International Summit on Intellectual Disabilities and Dementia [texte imprimé] / Matthew P. JANICKI, Auteur ; Philip MCCALLION, Auteur ; Nancy JOKINEN, Auteur ; Frode Kibsgaard LARSEN, Auteur ; Dawna T. MUGHAL, Auteur ; Kathryn P. SERVICE, Auteur ; Tiziano GOMIERO, Auteur ; Christina N. MARSACK-TOPOLEWSKI, Auteur ; Karen WATCHMAN, Auteur ; Flavia H. SANTOS, Auteur ; Seth M. KELLER, Auteur ; Shahin SHOOSHTARI, Auteur ; Anupam THAKUR, Auteur ; Vikram PALANISAMY, Auteur . - p.1635-1653. Langues : Anglais (eng) in Autism > 30-6 (June 2026) . - p.1635-1653 Mots-clés : ASD  autism  dementia  environmental adaptations  long-term care  non-pharmacological interventions  post-diagnostic supports Index. décimale : PER Périodiques Résumé : Post-diagnostic support is a critical yet underdeveloped aspect of dementia care, especially for autistic adults who present with distinct cognitive, sensory, and communication needs. Although interventions such as medication management, psychosocial support, environmental modifications, and carer training are known to improve outcomes, their relevance and accessibility for autistic individuals remain poorly understood. As part of the Second International Summit on Intellectual Disability and Dementia, an international working group examined the intersection of autism and dementia with a focus on post-diagnostic care. Drawing on interdisciplinary expertise, the group identified key barriers and opportunities in clinical practice, caregiving, and service delivery. Recommendations are organized across seven areas, including models of post-diagnostic support, caregiving contexts, pharmacological and non-pharmacological interventions, environmental adaptations, and care planning. The discussion emphasizes the complex needs of autistic adults—many of whom have co-occurring intellectual disabilities, psychiatric conditions, or chronic health issues—and the need for individualized approaches that account for sensory sensitivities and communication differences. Existing dementia care frameworks often fail to address these complexities, resulting in significant service gaps. The report calls for urgent investment in research, workforce training, and policy reform to promote equitable, autism-informed post-diagnostic support and improve quality of life for this underserved population.Lay Abstract Autistic adults who develop dementia often experience challenges that are not well addressed by current dementia care systems. After a dementia diagnosis, people may need help with memory, communication, behavior changes, and daily living. For autistic adults, these supports must be adapted to their individual sensory sensitivities, communication styles, and social differences. This article reports on the work of an international group of researchers, clinicians, and advocates who met during the Second International Summit on Intellectual Disability and Dementia. The group examined how post-diagnostic support for autistic adults with dementia could be improved. They reviewed existing evidence, identified key barriers to care, and proposed strategies to strengthen services in areas such as medication use, environmental design, caregiver training, and personalized care planning. The report emphasizes that many autistic adults also have intellectual disabilities, mental health conditions, or long-term physical health issues, which can make care more complex. Current dementia care frameworks often overlook these overlapping needs, resulting in limited or unsuitable supports. The authors call for more research, workforce training, and autism-informed policy changes to ensure that post-diagnostic care is equitable, individualized, and responsive. Enhancing understanding and adapting support can help autistic adults with dementia maintain dignity, comfort, and quality of life. En ligne : https://dx.doi.org/10.1177/13623613261416670 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=587