Dépouillements

Social camouflaging in autism: Is it time to lose the mask? / W. MANDY in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1879-1881 Titre : Social camouflaging in autism: Is it time to lose the mask? Type de document : Texte imprimé et/ou numérique Auteurs : W. MANDY, Auteur Article en page(s) : p.1879-1881 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361319878559 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Social camouflaging in autism: Is it time to lose the mask? [Texte imprimé et/ou numérique] / W. MANDY, Auteur . - p.1879-1881. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1879-1881 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361319878559 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities / R. TESFAYE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1882-1896 Titre : Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities Type de document : Texte imprimé et/ou numérique Auteurs : R. TESFAYE, Auteur ; V. COURCHESNE, Auteur ; A. YUSUF, Auteur ; T. SAVION-LEMIEUX, Auteur ; I. SINGH, Auteur ; K. SHIKAKO-THOMAS, Auteur ; P. MIRENDA, Auteur ; C. WADDELL, Auteur ; I. M. SMITH, Auteur ; David B NICHOLAS, Auteur ; P. SZATMARI, Auteur ; Teresa BENNETT, Auteur ; E. DUKU, Auteur ; S. GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; T. VAILLANCOURT, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; M. ELSABBAGH, Auteur Article en page(s) : p.1882-1896 Langues : Anglais (eng) Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities [Texte imprimé et/ou numérique] / R. TESFAYE, Auteur ; V. COURCHESNE, Auteur ; A. YUSUF, Auteur ; T. SAVION-LEMIEUX, Auteur ; I. SINGH, Auteur ; K. SHIKAKO-THOMAS, Auteur ; P. MIRENDA, Auteur ; C. WADDELL, Auteur ; I. M. SMITH, Auteur ; David B NICHOLAS, Auteur ; P. SZATMARI, Auteur ; Teresa BENNETT, Auteur ; E. DUKU, Auteur ; S. GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; T. VAILLANCOURT, Auteur ; A. ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; M. ELSABBAGH, Auteur . - p.1882-1896. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1882-1896 Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder: A systematic review of the qualitative evidence / H. LEGG in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1897-1910 Titre : UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder: A systematic review of the qualitative evidence Type de document : Texte imprimé et/ou numérique Auteurs : H. LEGG, Auteur ; A. TICKLE, Auteur Article en page(s) : p.1897-1910 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  diagnosis  metasynthesis  parents  qualitative research  systematic literature review Index. décimale : PER Périodiques Résumé : The purpose of this article is to systematically identify, appraise and synthesise qualitative research concerning UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder. In total, 11 articles were located through a systematic search of five databases, reference lists, citations and grey literature. These were critically appraised and their results synthesised using meta-ethnography. The quality scores given to included studies were variable, so suggestions are made to improve reporting of future research. Three third-order constructs were developed: (1) emotional needs, (2) informational needs and (3) relational needs. Each relates to parents' needs as they navigate the process of making sense of their child by seeking and adjusting to a diagnosis of autism spectrum disorder. Parents' experiences of assessment and diagnosis of their children varied, but these needs were evident across the course of the process. Fathers seemed to find it more difficult than mothers to reconcile having a child with autism spectrum disorder, which may have been grounded in a sense of exclusion from the assessment process. The findings should be considered by professionals working with children, particularly those directly involved in diagnosing autism spectrum disorder. Clinical implications emphasise the need for consideration of parents' emotional needs, provision of information to aid understanding, and strong relationships with professionals. Future clinical research, which should be informed by quality standards, might develop and evaluate standards of assessment and diagnosis, including post-diagnostic support. En ligne : http://dx.doi.org/10.1177/1362361319841488 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder: A systematic review of the qualitative evidence [Texte imprimé et/ou numérique] / H. LEGG, Auteur ; A. TICKLE, Auteur . - p.1897-1910. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1897-1910 Mots-clés : autism spectrum disorder  diagnosis  metasynthesis  parents  qualitative research  systematic literature review Index. décimale : PER Périodiques Résumé : The purpose of this article is to systematically identify, appraise and synthesise qualitative research concerning UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder. In total, 11 articles were located through a systematic search of five databases, reference lists, citations and grey literature. These were critically appraised and their results synthesised using meta-ethnography. The quality scores given to included studies were variable, so suggestions are made to improve reporting of future research. Three third-order constructs were developed: (1) emotional needs, (2) informational needs and (3) relational needs. Each relates to parents' needs as they navigate the process of making sense of their child by seeking and adjusting to a diagnosis of autism spectrum disorder. Parents' experiences of assessment and diagnosis of their children varied, but these needs were evident across the course of the process. Fathers seemed to find it more difficult than mothers to reconcile having a child with autism spectrum disorder, which may have been grounded in a sense of exclusion from the assessment process. The findings should be considered by professionals working with children, particularly those directly involved in diagnosing autism spectrum disorder. Clinical implications emphasise the need for consideration of parents' emotional needs, provision of information to aid understanding, and strong relationships with professionals. Future clinical research, which should be informed by quality standards, might develop and evaluate standards of assessment and diagnosis, including post-diagnostic support. En ligne : http://dx.doi.org/10.1177/1362361319841488 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Longitudinal stability of reading profiles in individuals with higher functioning autism / E. J. SOLARI in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1911-1926 Titre : Longitudinal stability of reading profiles in individuals with higher functioning autism Type de document : Texte imprimé et/ou numérique Auteurs : E. J. SOLARI, Auteur ; R. P. GRIMM, Auteur ; N. S. MCINTYRE, Auteur ; Matthew ZAJIC, Auteur ; Peter C. MUNDY, Auteur Article en page(s) : p.1911-1926 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  reading profiles Index. décimale : PER Périodiques Résumé : The reading difficulties of individuals with autism spectrum disorders have been established in the literature, with particular attention drawn toward reading comprehension difficulties. Recent papers have highlighted the heterogeneous nature of reading abilities in this population by utilizing statistical methods that allow for investigations of unique reading profiles. This article extends this literature by investigating reading profiles longitudinally, to investigate the stability of reader profiles across time. Latent profile and transition analyses were conducted to establish categorically distinct reading profiles at two time points, 30 months apart. This study also examined whether age and autism symptom severity were related to the profiles at each time point. Finally, transitions between profiles at each time point were identified. Age did not predict profile membership, but there were significant differences in symptom severity that were largely stable over time. Results indicate that heterogeneous reading profiles exist within the autism population, ranging from average reading ability to severe difficulties across different reading subskills. The data from this study demonstrate that reading profiles of children and adolescents with autism spectrum disorders shift when examined across time. En ligne : http://dx.doi.org/10.1177/1362361318812423 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Longitudinal stability of reading profiles in individuals with higher functioning autism [Texte imprimé et/ou numérique] / E. J. SOLARI, Auteur ; R. P. GRIMM, Auteur ; N. S. MCINTYRE, Auteur ; Matthew ZAJIC, Auteur ; Peter C. MUNDY, Auteur . - p.1911-1926. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1911-1926 Mots-clés : autism spectrum disorders  reading profiles Index. décimale : PER Périodiques Résumé : The reading difficulties of individuals with autism spectrum disorders have been established in the literature, with particular attention drawn toward reading comprehension difficulties. Recent papers have highlighted the heterogeneous nature of reading abilities in this population by utilizing statistical methods that allow for investigations of unique reading profiles. This article extends this literature by investigating reading profiles longitudinally, to investigate the stability of reader profiles across time. Latent profile and transition analyses were conducted to establish categorically distinct reading profiles at two time points, 30 months apart. This study also examined whether age and autism symptom severity were related to the profiles at each time point. Finally, transitions between profiles at each time point were identified. Age did not predict profile membership, but there were significant differences in symptom severity that were largely stable over time. Results indicate that heterogeneous reading profiles exist within the autism population, ranging from average reading ability to severe difficulties across different reading subskills. The data from this study demonstrate that reading profiles of children and adolescents with autism spectrum disorders shift when examined across time. En ligne : http://dx.doi.org/10.1177/1362361318812423 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system / P. IMM in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1927-1935 Titre : Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system Type de document : Texte imprimé et/ou numérique Auteurs : P. IMM, Auteur ; T. WHITE, Auteur ; M. S. DURKIN, Auteur Article en page(s) : p.1927-1935 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  epidemiology  health disparities  prevalence Index. décimale : PER Périodiques Résumé : This study assessed potential under-ascertainment of autism spectrum disorder due to missing administrative information for Hispanic and non-Hispanic Black children within the Autism and Developmental Disabilities Monitoring Network. We analyzed data from two Network sites (Colorado and Wisconsin) for surveillance years 2012 and 2014 to determine whether children excluded from autism spectrum disorder prevalence estimates due to missing residency and other information differed from those included by race and ethnicity. We used multiple approaches to impute missing information to evaluate impacts on racial and ethnic disparities in autism spectrum disorder prevalence. Compared with confirmed autism spectrum disorder cases, those excluded due to missing residency were more than twice as likely to be Hispanic (19% vs 44%; p < 0.002), yet the number of cases excluded due to missing residency information was too small to account for prevalence differences. Confirmation of autism spectrum disorder case status was more likely for children with relevant health records than for those with school records only. Moreover, relevant health records were more likely to be missing for Black and Hispanic children than for White children. Observed disparities in autism spectrum disorder prevalence were not accounted for by missing demographic data, but may reflect disparities in healthcare access for developmental evaluations. En ligne : http://dx.doi.org/10.1177/1362361319827510 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Assessment of racial and ethnic bias in autism spectrum disorder prevalence estimates from a US surveillance system [Texte imprimé et/ou numérique] / P. IMM, Auteur ; T. WHITE, Auteur ; M. S. DURKIN, Auteur . - p.1927-1935. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1927-1935 Mots-clés : autism spectrum disorders  epidemiology  health disparities  prevalence Index. décimale : PER Périodiques Résumé : This study assessed potential under-ascertainment of autism spectrum disorder due to missing administrative information for Hispanic and non-Hispanic Black children within the Autism and Developmental Disabilities Monitoring Network. We analyzed data from two Network sites (Colorado and Wisconsin) for surveillance years 2012 and 2014 to determine whether children excluded from autism spectrum disorder prevalence estimates due to missing residency and other information differed from those included by race and ethnicity. We used multiple approaches to impute missing information to evaluate impacts on racial and ethnic disparities in autism spectrum disorder prevalence. Compared with confirmed autism spectrum disorder cases, those excluded due to missing residency were more than twice as likely to be Hispanic (19% vs 44%; p < 0.002), yet the number of cases excluded due to missing residency information was too small to account for prevalence differences. Confirmation of autism spectrum disorder case status was more likely for children with relevant health records than for those with school records only. Moreover, relevant health records were more likely to be missing for Black and Hispanic children than for White children. Observed disparities in autism spectrum disorder prevalence were not accounted for by missing demographic data, but may reflect disparities in healthcare access for developmental evaluations. En ligne : http://dx.doi.org/10.1177/1362361319827510 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis / G. K. LEE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1936-1947 Titre : Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis Type de document : Texte imprimé et/ou numérique Auteurs : G. K. LEE, Auteur ; K. KRIZOVA, Auteur ; C. M. SHIVERS, Auteur Article en page(s) : p.1936-1947 Langues : Anglais (eng) Mots-clés : caregiving strain  coping  mental health  service needs Index. décimale : PER Périodiques Résumé : This study investigated the relationships among caregiving strain, coping, and mental health among caregivers of individuals with autism spectrum disorder (ASD) and the mediational moderation of caregiver needs. One hundred and ninety-three caregivers of individuals with ASD completed an online survey. Results showed that maladaptive coping behaviors were significant in mediating the relationship between strain and mental health. Professional service and emotional caregiving needs moderated the relationship between maladaptive coping and mental health at times of high caregiving strain, but not involvement, health information, and instrumental support needs. Results highlighted the negative effect of maladaptive coping, as well as professional service and emotional support needs were salient in moderating coping and mental health in times of high caregiving strain. En ligne : http://dx.doi.org/10.1177/1362361319833678 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Needs, strain, coping, and mental health among caregivers of individuals with autism spectrum disorder: A moderated mediation analysis [Texte imprimé et/ou numérique] / G. K. LEE, Auteur ; K. KRIZOVA, Auteur ; C. M. SHIVERS, Auteur . - p.1936-1947. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1936-1947 Mots-clés : caregiving strain  coping  mental health  service needs Index. décimale : PER Périodiques Résumé : This study investigated the relationships among caregiving strain, coping, and mental health among caregivers of individuals with autism spectrum disorder (ASD) and the mediational moderation of caregiver needs. One hundred and ninety-three caregivers of individuals with ASD completed an online survey. Results showed that maladaptive coping behaviors were significant in mediating the relationship between strain and mental health. Professional service and emotional caregiving needs moderated the relationship between maladaptive coping and mental health at times of high caregiving strain, but not involvement, health information, and instrumental support needs. Results highlighted the negative effect of maladaptive coping, as well as professional service and emotional support needs were salient in moderating coping and mental health in times of high caregiving strain. En ligne : http://dx.doi.org/10.1177/1362361319833678 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Familial confounding on the ability to read minds: A co-twin control study / J. ISAKSSON in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1948-1956 Titre : Familial confounding on the ability to read minds: A co-twin control study Type de document : Texte imprimé et/ou numérique Auteurs : J. ISAKSSON, Auteur ; M. J. TAYLOR, Auteur ; K. LUNDIN, Auteur ; J. NEUFELD, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.1948-1956 Langues : Anglais (eng) Mots-clés : attention-deficit/hyperactivity disorder  autism spectrum disorders  environmental factors  genetics  psychiatric comorbidity  social cognition and social behavior Index. décimale : PER Périodiques Résumé : Alterations in social cognition are hypothesized to underlie social communication challenges in autism spectrum disorder. However, the etiologic underpinnings driving this association, as well as the impact of other psychiatric conditions on the association, remain unclear. Using a co-twin control design, we examined n = 308 twins (mean age = 16.63; 46% females) with autism spectrum disorder, attention-deficit/hyperactivity disorder, affective disorders, or typical development using the Reading the Mind in the Eyes Test to operationalize social cognition ability. Clinical diagnosis of autism spectrum disorder, as well as the extent of quantitative autistic traits, as measured by parental reports using the Social Responsiveness Scale-2, predicted fewer expected responses on the Reading the Mind in the Eyes Test across the pairs. The association remained when adjusting for other diagnoses and IQ. In addition, male sex, lower age, and lower IQ predicted poorer performance on the Reading the Mind in the Eyes Test. The associations between autism and social cognition ability were lost within pairs in both the full sample and the monozygotic subsample. We conclude that the association between autism and social cognition across the sample highlights the importance of social cognition alterations in autism spectrum disorder when compared with other conditions. The attenuation of the association in the within-pair models indicate familial confounding, such as genes and shared environment, influencing both autism and social cognition. En ligne : http://dx.doi.org/10.1177/1362361319836380 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Familial confounding on the ability to read minds: A co-twin control study [Texte imprimé et/ou numérique] / J. ISAKSSON, Auteur ; M. J. TAYLOR, Auteur ; K. LUNDIN, Auteur ; J. NEUFELD, Auteur ; Sven BÖLTE, Auteur . - p.1948-1956. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1948-1956 Mots-clés : attention-deficit/hyperactivity disorder  autism spectrum disorders  environmental factors  genetics  psychiatric comorbidity  social cognition and social behavior Index. décimale : PER Périodiques Résumé : Alterations in social cognition are hypothesized to underlie social communication challenges in autism spectrum disorder. However, the etiologic underpinnings driving this association, as well as the impact of other psychiatric conditions on the association, remain unclear. Using a co-twin control design, we examined n = 308 twins (mean age = 16.63; 46% females) with autism spectrum disorder, attention-deficit/hyperactivity disorder, affective disorders, or typical development using the Reading the Mind in the Eyes Test to operationalize social cognition ability. Clinical diagnosis of autism spectrum disorder, as well as the extent of quantitative autistic traits, as measured by parental reports using the Social Responsiveness Scale-2, predicted fewer expected responses on the Reading the Mind in the Eyes Test across the pairs. The association remained when adjusting for other diagnoses and IQ. In addition, male sex, lower age, and lower IQ predicted poorer performance on the Reading the Mind in the Eyes Test. The associations between autism and social cognition ability were lost within pairs in both the full sample and the monozygotic subsample. We conclude that the association between autism and social cognition across the sample highlights the importance of social cognition alterations in autism spectrum disorder when compared with other conditions. The attenuation of the association in the within-pair models indicate familial confounding, such as genes and shared environment, influencing both autism and social cognition. En ligne : http://dx.doi.org/10.1177/1362361319836380 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Leadership profiles associated with the implementation of behavioral health evidence-based practices for autism spectrum disorder in schools / N. A. STADNICK in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1957-1968 Titre : Leadership profiles associated with the implementation of behavioral health evidence-based practices for autism spectrum disorder in schools Type de document : Texte imprimé et/ou numérique Auteurs : N. A. STADNICK, Auteur ; R. D. MEZA, Auteur ; J. SUHRHEINRICH, Auteur ; G. A. AARONS, Auteur ; Lauren BROOKMAN-FRAZEE, Auteur ; A. R. LYON, Auteur ; D. S. MANDELL, Auteur ; J. LOCKE, Auteur Article en page(s) : p.1957-1968 Langues : Anglais (eng) Mots-clés : EPIS framework  autism spectrum disorder  evidence-based practices  implementation science  leadership  principal  schools Index. décimale : PER Périodiques Résumé : Implementation of evidence-based practice (EBP) for autism spectrum disorder (ASD) in the education system is a public health priority. Leadership is a critical driver of EBP implementation but little is known about the types of leadership behaviors exhibited by school leaders and how this influences the context of EBP implementation, particularly for students with ASD. The objectives of this study were to determine (1) the leadership profiles of principals involved in EBP implementation for students with ASD and (2) how these leadership profiles related to school characteristics and implementation climate. The Exploration, Preparation, Implementation, Sustainment (EPIS) framework was used to guide the design and analysis of this study. Participants (n = 296) included principals, teachers, and classroom support staff. They provided demographic information and completed the Multifactor Leadership Questionnaire and Implementation Climate Scale. Using latent profile analysis, a three-pattern solution was identified: Disengaged (6% of sample), Undifferentiated (23% of sample), and Optimal (71% of sample). Principals in schools with higher proportions of students with an individualized education program were more likely to be classified as Undifferentiated than Optimal. The Optimal group was associated with more positive implementation climate than the Undifferentiated or Disengaged groups. Findings suggest that leadership behaviors rated by principals and their staff involved in implementation of common autism EBPs can be meaningfully clustered into three discernible profiles that are shaped by organizational context and linked to strategic implementation climate. Our study findings have implications for leadership training and service delivery in schools by underscoring the critical nature of school leadership during implementation of EBPs for children with autism and the interplay between specific leadership behaviors and strategic implementation climate. En ligne : http://dx.doi.org/10.1177/1362361319834398 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Leadership profiles associated with the implementation of behavioral health evidence-based practices for autism spectrum disorder in schools [Texte imprimé et/ou numérique] / N. A. STADNICK, Auteur ; R. D. MEZA, Auteur ; J. SUHRHEINRICH, Auteur ; G. A. AARONS, Auteur ; Lauren BROOKMAN-FRAZEE, Auteur ; A. R. LYON, Auteur ; D. S. MANDELL, Auteur ; J. LOCKE, Auteur . - p.1957-1968. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1957-1968 Mots-clés : EPIS framework  autism spectrum disorder  evidence-based practices  implementation science  leadership  principal  schools Index. décimale : PER Périodiques Résumé : Implementation of evidence-based practice (EBP) for autism spectrum disorder (ASD) in the education system is a public health priority. Leadership is a critical driver of EBP implementation but little is known about the types of leadership behaviors exhibited by school leaders and how this influences the context of EBP implementation, particularly for students with ASD. The objectives of this study were to determine (1) the leadership profiles of principals involved in EBP implementation for students with ASD and (2) how these leadership profiles related to school characteristics and implementation climate. The Exploration, Preparation, Implementation, Sustainment (EPIS) framework was used to guide the design and analysis of this study. Participants (n = 296) included principals, teachers, and classroom support staff. They provided demographic information and completed the Multifactor Leadership Questionnaire and Implementation Climate Scale. Using latent profile analysis, a three-pattern solution was identified: Disengaged (6% of sample), Undifferentiated (23% of sample), and Optimal (71% of sample). Principals in schools with higher proportions of students with an individualized education program were more likely to be classified as Undifferentiated than Optimal. The Optimal group was associated with more positive implementation climate than the Undifferentiated or Disengaged groups. Findings suggest that leadership behaviors rated by principals and their staff involved in implementation of common autism EBPs can be meaningfully clustered into three discernible profiles that are shaped by organizational context and linked to strategic implementation climate. Our study findings have implications for leadership training and service delivery in schools by underscoring the critical nature of school leadership during implementation of EBPs for children with autism and the interplay between specific leadership behaviors and strategic implementation climate. En ligne : http://dx.doi.org/10.1177/1362361319834398 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Parents' views and experiences of talking about autism with their children / L. CRANE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1969-1981 Titre : Parents' views and experiences of talking about autism with their children Type de document : Texte imprimé et/ou numérique Auteurs : L. CRANE, Auteur ; L. JONES, Auteur ; R. PROSSER, Auteur ; M. TAGHRIZI, Auteur ; E. PELLICANO, Auteur Article en page(s) : p.1969-1981 Langues : Anglais (eng) Mots-clés : acceptance  autism  awareness  diagnosis  disclosure  parents Index. décimale : PER Périodiques Résumé : The way an autism diagnosis is disclosed to parents has been found to play a crucial role in their acceptance of, and the way they cope with, their child's diagnosis. Yet, research into parents' subsequent experiences of disclosing a diagnosis to their children, and talking to their families about autism more generally, is limited. Using an online survey, the current study examined 558 parents' experiences of talking about autism with their autistic and non-autistic children. Results demonstrated that most parents (n = 379, 67.9%) had told their autistic children about their diagnosis. Despite few parents (n = 163, 20.4%) receiving advice or support regarding the disclosure of the diagnosis, those that had disclosed felt satisfied with the process (n = 319, 84.2%) and felt confident in talking about autism with their children (n = 339, 92.4%). Those who had not told their autistic children about the diagnosis largely planned to discuss this with their child in the future (n = 100, 73.5%), felt confident in doing so (n = 95, 70.9%) and were satisfied with their decision (n = 95, 70.4%). Analysis of open-ended data, using thematic analysis, highlighted the importance of openness and the need to tailor explanations to individual children's needs, while acknowledging that disclosure could often be challenging for parents. En ligne : http://dx.doi.org/10.1177/1362361319836257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Parents' views and experiences of talking about autism with their children [Texte imprimé et/ou numérique] / L. CRANE, Auteur ; L. JONES, Auteur ; R. PROSSER, Auteur ; M. TAGHRIZI, Auteur ; E. PELLICANO, Auteur . - p.1969-1981. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1969-1981 Mots-clés : acceptance  autism  awareness  diagnosis  disclosure  parents Index. décimale : PER Périodiques Résumé : The way an autism diagnosis is disclosed to parents has been found to play a crucial role in their acceptance of, and the way they cope with, their child's diagnosis. Yet, research into parents' subsequent experiences of disclosing a diagnosis to their children, and talking to their families about autism more generally, is limited. Using an online survey, the current study examined 558 parents' experiences of talking about autism with their autistic and non-autistic children. Results demonstrated that most parents (n = 379, 67.9%) had told their autistic children about their diagnosis. Despite few parents (n = 163, 20.4%) receiving advice or support regarding the disclosure of the diagnosis, those that had disclosed felt satisfied with the process (n = 319, 84.2%) and felt confident in talking about autism with their children (n = 339, 92.4%). Those who had not told their autistic children about the diagnosis largely planned to discuss this with their child in the future (n = 100, 73.5%), felt confident in doing so (n = 95, 70.9%) and were satisfied with their decision (n = 95, 70.4%). Analysis of open-ended data, using thematic analysis, highlighted the importance of openness and the need to tailor explanations to individual children's needs, while acknowledging that disclosure could often be challenging for parents. En ligne : http://dx.doi.org/10.1177/1362361319836257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Social (Pragmatic) Communication Disorder: Another name for the Broad Autism Phenotype? / J. FLAX in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1982-1992 Titre : Social (Pragmatic) Communication Disorder: Another name for the Broad Autism Phenotype? Type de document : Texte imprimé et/ou numérique Auteurs : J. FLAX, Auteur ; C. GWIN, Auteur ; S. WILSON, Auteur ; Y. FRADKIN, Auteur ; Steven BUYSKE, Auteur ; L. M. BRZUSTOWICZ, Auteur Article en page(s) : p.1982-1992 Langues : Anglais (eng) Mots-clés : autism spectrum disorder and Diagnostic and Statistical Manual of Mental  Disorders (5th ed.)  broad autism phenotype  language disorder  social communication  social pragmatic communication disorder Index. décimale : PER Périodiques Résumé : The Diagnostic and Statistical Manual of Mental Disorders' (5th ed.) Social (Pragmatic) Communication Disorder is meant to capture the social elements of communication dysfunction in children who do not meet autism spectrum disorder criteria. It is unclear whether Social (Pragmatic) Communication Disorder captures these elements without overlapping with Autism Spectrum Disorder or the Diagnostic and Statistical Manual of Mental Disorders' (5th ed.) Language Disorder. Standardized behavioral assessments administered during a family genetics study were used to evaluate the social communication impairment and the restricted interests and repetitive behaviors in persons with autism spectrum disorder, language impairment, or neither. Social communication impairment and restricted interests and repetitive behavior were significantly correlated in all family members regardless of affection status. Rates of social communication impairment and restricted interests and repetitive behavior were highest in individuals with autism spectrum disorder. One-third of family members with language impairment presented with at least mild/moderate levels of social communication impairment (36.6%) and restricted interests and repetitive behavior (43.3%). A subset of unaffected members also presented with mild/moderate levels of social communication impairment (parents = 10.1%, siblings 11.6%) and restricted interests and repetitive behavior (parents = 14.0%, siblings = 22.1%). The majority of child family members with mild/moderate levels of social communication impairment had similar restricted interest and repetitive behavior levels reflecting criteria representing the Broad Autism Phenotype. These data suggest that social pragmatic communication disorder does not capture the profiles of children who have both social communication impairment and restricted interests and repetitive behavior but are in need of clinical services. En ligne : http://dx.doi.org/10.1177/1362361318822503 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Social (Pragmatic) Communication Disorder: Another name for the Broad Autism Phenotype? [Texte imprimé et/ou numérique] / J. FLAX, Auteur ; C. GWIN, Auteur ; S. WILSON, Auteur ; Y. FRADKIN, Auteur ; Steven BUYSKE, Auteur ; L. M. BRZUSTOWICZ, Auteur . - p.1982-1992. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1982-1992 Mots-clés : autism spectrum disorder and Diagnostic and Statistical Manual of Mental  Disorders (5th ed.)  broad autism phenotype  language disorder  social communication  social pragmatic communication disorder Index. décimale : PER Périodiques Résumé : The Diagnostic and Statistical Manual of Mental Disorders' (5th ed.) Social (Pragmatic) Communication Disorder is meant to capture the social elements of communication dysfunction in children who do not meet autism spectrum disorder criteria. It is unclear whether Social (Pragmatic) Communication Disorder captures these elements without overlapping with Autism Spectrum Disorder or the Diagnostic and Statistical Manual of Mental Disorders' (5th ed.) Language Disorder. Standardized behavioral assessments administered during a family genetics study were used to evaluate the social communication impairment and the restricted interests and repetitive behaviors in persons with autism spectrum disorder, language impairment, or neither. Social communication impairment and restricted interests and repetitive behavior were significantly correlated in all family members regardless of affection status. Rates of social communication impairment and restricted interests and repetitive behavior were highest in individuals with autism spectrum disorder. One-third of family members with language impairment presented with at least mild/moderate levels of social communication impairment (36.6%) and restricted interests and repetitive behavior (43.3%). A subset of unaffected members also presented with mild/moderate levels of social communication impairment (parents = 10.1%, siblings 11.6%) and restricted interests and repetitive behavior (parents = 14.0%, siblings = 22.1%). The majority of child family members with mild/moderate levels of social communication impairment had similar restricted interest and repetitive behavior levels reflecting criteria representing the Broad Autism Phenotype. These data suggest that social pragmatic communication disorder does not capture the profiles of children who have both social communication impairment and restricted interests and repetitive behavior but are in need of clinical services. En ligne : http://dx.doi.org/10.1177/1362361318822503 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Factors underlying cross-cultural differences in stigma toward autism among college students in Lebanon and the United States / K. GILLESPIE-LYNCH in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1993-2006 Titre : Factors underlying cross-cultural differences in stigma toward autism among college students in Lebanon and the United States Type de document : Texte imprimé et/ou numérique Auteurs : K. GILLESPIE-LYNCH, Auteur ; N. DAOU, Auteur ; M. J. SANCHEZ-RUIZ, Auteur ; Steven K. KAPP, Auteur ; R. OBEID, Auteur ; Patricia J. BROOKS, Auteur ; F. SOMEKI, Auteur ; N. SILTON, Auteur ; R. ABI-HABIB, Auteur Article en page(s) : p.1993-2006 Langues : Anglais (eng) Mots-clés : autism  contact  cross-cultural  knowledge  stigma  training Index. décimale : PER Périodiques Résumé : Although stigma negatively impacts autistic people globally, the degree of stigma varies across cultures. Prior research suggests that stigma may be higher in cultures with more collectivistic orientations. This study aimed to identify cultural values and other individual differences that contribute to cross-cultural differences in autism stigma (assessed with a social distance scale) between college students in Lebanon (n = 556) and those in the United States (n = 520). Replicating prior work, stigma was lower in women than men and in the United States relative to Lebanon. Heightened autism knowledge, quality of contact with autistic people, openness to experience, and reduced acceptance of inequality predicted lower stigma. Collectivism was not associated with heightened stigma. Findings highlight the need to address structural inequalities, combat harmful misconceptions, and foster positive contact to combat stigma. En ligne : http://dx.doi.org/10.1177/1362361318823550 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Factors underlying cross-cultural differences in stigma toward autism among college students in Lebanon and the United States [Texte imprimé et/ou numérique] / K. GILLESPIE-LYNCH, Auteur ; N. DAOU, Auteur ; M. J. SANCHEZ-RUIZ, Auteur ; Steven K. KAPP, Auteur ; R. OBEID, Auteur ; Patricia J. BROOKS, Auteur ; F. SOMEKI, Auteur ; N. SILTON, Auteur ; R. ABI-HABIB, Auteur . - p.1993-2006. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1993-2006 Mots-clés : autism  contact  cross-cultural  knowledge  stigma  training Index. décimale : PER Périodiques Résumé : Although stigma negatively impacts autistic people globally, the degree of stigma varies across cultures. Prior research suggests that stigma may be higher in cultures with more collectivistic orientations. This study aimed to identify cultural values and other individual differences that contribute to cross-cultural differences in autism stigma (assessed with a social distance scale) between college students in Lebanon (n = 556) and those in the United States (n = 520). Replicating prior work, stigma was lower in women than men and in the United States relative to Lebanon. Heightened autism knowledge, quality of contact with autistic people, openness to experience, and reduced acceptance of inequality predicted lower stigma. Collectivism was not associated with heightened stigma. Findings highlight the need to address structural inequalities, combat harmful misconceptions, and foster positive contact to combat stigma. En ligne : http://dx.doi.org/10.1177/1362361318823550 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants / C. NICOLAIDIS in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2007-2019 Titre : The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants Type de document : Texte imprimé et/ou numérique Auteurs : C. NICOLAIDIS, Auteur ; D. RAYMAKER, Auteur ; Steven K. KAPP, Auteur ; A. BAGGS, Auteur ; Elesia ASHKENAZY, Auteur ; K. MCDONALD, Auteur ; M. WEINER, Auteur ; J. MASLAK, Auteur ; M. HUNTER, Auteur ; A. JOYCE, Auteur Article en page(s) : p.2007-2019 Langues : Anglais (eng) Mots-clés : adults  autism  participatory research  qualitative research  research ethics  survey adaptation Index. décimale : PER Périodiques Résumé : As interest in autism in adulthood grows, so does the need for methods to promote the inclusion of autistic adults in research. Our objective was to create practice-based guidelines for the inclusion of autistic adults, both as research team members and as study participants. We conducted an institutional ethnography of three closely related research partnerships that used participatory methods with autistic adults over the years 2006-2018. We used an iterative approach which combined discussions with community and academic partners and artifact review. Guidelines to promote the inclusion of autistic adults as co-researchers focus on being transparent about partnership goals, clearly defining roles and choosing partners, creating processes for effective communication and power-sharing, building and maintaining trust, disseminating findings, encouraging community capacitation, and fairly compensating partners. Guidelines to promote the inclusion of autistic adults as study participants focus on maximizing autonomy and inclusion, creating an accessible consent process, offering multiple modes of participation, adapting survey instruments for use with autistic adults, creating accessible qualitative interview guides, and handling data from proxy reporters. Although these practice-based guidelines may not apply to all research teams, we hope that other researchers can capitalize on these practical lessons when including autistic adults in research. En ligne : http://dx.doi.org/10.1177/1362361319830523 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants [Texte imprimé et/ou numérique] / C. NICOLAIDIS, Auteur ; D. RAYMAKER, Auteur ; Steven K. KAPP, Auteur ; A. BAGGS, Auteur ; Elesia ASHKENAZY, Auteur ; K. MCDONALD, Auteur ; M. WEINER, Auteur ; J. MASLAK, Auteur ; M. HUNTER, Auteur ; A. JOYCE, Auteur . - p.2007-2019. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2007-2019 Mots-clés : adults  autism  participatory research  qualitative research  research ethics  survey adaptation Index. décimale : PER Périodiques Résumé : As interest in autism in adulthood grows, so does the need for methods to promote the inclusion of autistic adults in research. Our objective was to create practice-based guidelines for the inclusion of autistic adults, both as research team members and as study participants. We conducted an institutional ethnography of three closely related research partnerships that used participatory methods with autistic adults over the years 2006-2018. We used an iterative approach which combined discussions with community and academic partners and artifact review. Guidelines to promote the inclusion of autistic adults as co-researchers focus on being transparent about partnership goals, clearly defining roles and choosing partners, creating processes for effective communication and power-sharing, building and maintaining trust, disseminating findings, encouraging community capacitation, and fairly compensating partners. Guidelines to promote the inclusion of autistic adults as study participants focus on maximizing autonomy and inclusion, creating an accessible consent process, offering multiple modes of participation, adapting survey instruments for use with autistic adults, creating accessible qualitative interview guides, and handling data from proxy reporters. Although these practice-based guidelines may not apply to all research teams, we hope that other researchers can capitalize on these practical lessons when including autistic adults in research. En ligne : http://dx.doi.org/10.1177/1362361319830523 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Use, costs, and predictors of psychiatric healthcare services following an autism spectrum diagnosis: Population-based cohort study / C. CROTEAU in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2020-2030 Titre : Use, costs, and predictors of psychiatric healthcare services following an autism spectrum diagnosis: Population-based cohort study Type de document : Texte imprimé et/ou numérique Auteurs : C. CROTEAU, Auteur ; Laurent MOTTRON, Auteur ; M. DORAIS, Auteur ; J. E. TARRIDE, Auteur ; S. PERREAULT, Auteur Article en page(s) : p.2020-2030 Langues : Anglais (eng) Mots-clés : age variation  autism spectrum disorder  economic costs  health services  healthcare utilization  interventions-pharmacologic  predictors  psychiatric costs  psychoactive drugs Index. décimale : PER Périodiques Résumé : A number of cross-sectional studies report extensive use of psychiatric services and high healthcare costs in autistic youths. However, little is known about how the use of these services evolves from the time of diagnosis, as children grow up. Our objectives were to investigate the use, costs, and predictors of psychiatric services following autism spectrum diagnosis. We built a cohort of 1227 newly diagnosed autism spectrum individuals identified in the Quebec (Canada) Regie de l'assurance maladie du Quebec administrative database (January 1998 to December 2010). Mean number and cost per individual of psychiatric healthcare use (hospitalizations, medical visits, psychoactive drug use) were calculated yearly for 5 years following autism spectrum diagnosis. Mean number of psychiatric visits decreased over time by more than threefold (7.5 vs 2.1 visits) from year 1 to year 5, whereas psychoactive drug use increased from 16.0 to 25.2 claims. Psychiatric hospitalizations decreased during follow-up, but still represented the greatest costs per individual (CAD9820 for year 1; CAD4628 for year 5). Antipsychotics represented over 50% of drug costs. Mixed-effect model with repeated measures showed that previous psychoactive drug use was the strongest predictor of greater psychiatric healthcare cost during follow-up (odds ratio: 9.96; 95% confidence interval: 7.58-13.10). These trends contrast with guidelines advocating cautious prescribing of antipsychotics with periodical re-assessment of their benefit. En ligne : http://dx.doi.org/10.1177/1362361319840229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Use, costs, and predictors of psychiatric healthcare services following an autism spectrum diagnosis: Population-based cohort study [Texte imprimé et/ou numérique] / C. CROTEAU, Auteur ; Laurent MOTTRON, Auteur ; M. DORAIS, Auteur ; J. E. TARRIDE, Auteur ; S. PERREAULT, Auteur . - p.2020-2030. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2020-2030 Mots-clés : age variation  autism spectrum disorder  economic costs  health services  healthcare utilization  interventions-pharmacologic  predictors  psychiatric costs  psychoactive drugs Index. décimale : PER Périodiques Résumé : A number of cross-sectional studies report extensive use of psychiatric services and high healthcare costs in autistic youths. However, little is known about how the use of these services evolves from the time of diagnosis, as children grow up. Our objectives were to investigate the use, costs, and predictors of psychiatric services following autism spectrum diagnosis. We built a cohort of 1227 newly diagnosed autism spectrum individuals identified in the Quebec (Canada) Regie de l'assurance maladie du Quebec administrative database (January 1998 to December 2010). Mean number and cost per individual of psychiatric healthcare use (hospitalizations, medical visits, psychoactive drug use) were calculated yearly for 5 years following autism spectrum diagnosis. Mean number of psychiatric visits decreased over time by more than threefold (7.5 vs 2.1 visits) from year 1 to year 5, whereas psychoactive drug use increased from 16.0 to 25.2 claims. Psychiatric hospitalizations decreased during follow-up, but still represented the greatest costs per individual (CAD9820 for year 1; CAD4628 for year 5). Antipsychotics represented over 50% of drug costs. Mixed-effect model with repeated measures showed that previous psychoactive drug use was the strongest predictor of greater psychiatric healthcare cost during follow-up (odds ratio: 9.96; 95% confidence interval: 7.58-13.10). These trends contrast with guidelines advocating cautious prescribing of antipsychotics with periodical re-assessment of their benefit. En ligne : http://dx.doi.org/10.1177/1362361319840229 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

The therapeutic alliance in cognitive-behavioral therapy for school-aged children with autism and clinical anxiety / S. M. KLEBANOFF in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2031-2042 Titre : The therapeutic alliance in cognitive-behavioral therapy for school-aged children with autism and clinical anxiety Type de document : Texte imprimé et/ou numérique Auteurs : S. M. KLEBANOFF, Auteur ; K. A. ROSENAU, Auteur ; J. J. WOOD, Auteur Article en page(s) : p.2031-2042 Langues : Anglais (eng) Mots-clés : alliance  anxiety  autism  cognitive behavioral therapy  predictors of treatment outcome Index. décimale : PER Périodiques Résumé : Little is known about the alliance between therapists and children with autism spectrum disorder who are receiving psychological therapies in outpatient treatment settings. This study examined the therapeutic alliance in children with autism spectrum disorder and clinical anxiety, who were receiving cognitive behavioral therapy in a randomized, controlled trial. The Therapeutic Alliance Scale for Children was administered to a sample of children and youth with autism spectrum disorder and anxiety (N = 64; aged 7-14) as well as to their parents and therapists. A comparison sample of typically developing youth with clinical anxiety (N = 36; aged 5-12) was included. The child-therapist alliance was more positive among typically developing children than among children with autism spectrum disorder; correspondingly, the parent-therapist alliance was also more positive among parents of typically developing children. Therapist reports of positive child-therapist alliance predicted post-treatment reductions in anxiety among children with autism spectrum disorder, although child reports of this alliance did not. Parent reports of positive parent-therapist alliance also predicted post-treatment reductions in the child's anxiety in the group with autism spectrum disorder. A strong therapeutic alliance appears to be associated with better treatment outcomes in children with autism spectrum disorder receiving cognitive behavioral therapy, although a thoughtful and diagnostically sensitive approach is advisable to promote a positive alliance with children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319841197 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] The therapeutic alliance in cognitive-behavioral therapy for school-aged children with autism and clinical anxiety [Texte imprimé et/ou numérique] / S. M. KLEBANOFF, Auteur ; K. A. ROSENAU, Auteur ; J. J. WOOD, Auteur . - p.2031-2042. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2031-2042 Mots-clés : alliance  anxiety  autism  cognitive behavioral therapy  predictors of treatment outcome Index. décimale : PER Périodiques Résumé : Little is known about the alliance between therapists and children with autism spectrum disorder who are receiving psychological therapies in outpatient treatment settings. This study examined the therapeutic alliance in children with autism spectrum disorder and clinical anxiety, who were receiving cognitive behavioral therapy in a randomized, controlled trial. The Therapeutic Alliance Scale for Children was administered to a sample of children and youth with autism spectrum disorder and anxiety (N = 64; aged 7-14) as well as to their parents and therapists. A comparison sample of typically developing youth with clinical anxiety (N = 36; aged 5-12) was included. The child-therapist alliance was more positive among typically developing children than among children with autism spectrum disorder; correspondingly, the parent-therapist alliance was also more positive among parents of typically developing children. Therapist reports of positive child-therapist alliance predicted post-treatment reductions in anxiety among children with autism spectrum disorder, although child reports of this alliance did not. Parent reports of positive parent-therapist alliance also predicted post-treatment reductions in the child's anxiety in the group with autism spectrum disorder. A strong therapeutic alliance appears to be associated with better treatment outcomes in children with autism spectrum disorder receiving cognitive behavioral therapy, although a thoughtful and diagnostically sensitive approach is advisable to promote a positive alliance with children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319841197 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

International comparisons of autism spectrum disorder behaviors in preschoolers rated by parents and caregivers/teachers / L. A. RESCORLA in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2043-2054 Titre : International comparisons of autism spectrum disorder behaviors in preschoolers rated by parents and caregivers/teachers Type de document : Texte imprimé et/ou numérique Auteurs : L. A. RESCORLA, Auteur ; C. GIVEN, Auteur ; S. GLYNN, Auteur ; Masha Y. IVANOVA, Auteur ; Thomas M. ACHENBACH, Auteur Article en page(s) : p.2043-2054 Langues : Anglais (eng) Mots-clés : Caregiver-Teacher Report Form  Child Behavior Checklist for Ages 1(1/2)-5  autism spectrum disorder  international comparisons  preschoolers Index. décimale : PER Périodiques Résumé : This study tested international similarities and differences in scores on a scale comprising 12 items identified by international mental health experts as being very consistent with the Diagnostic and Statistical Manual of Mental Disorders (5th ed.) category of autism spectrum disorder. Participants were 19,850 preschoolers in 24 societies rated by parents on the Child Behavior Checklist for Ages 1(1/2)-5; 10,521 preschoolers from 15 societies rated by caregivers/teachers on the Caregiver-Teacher Report Form, and 7380 children from 13 societies rated by both types of informant. Rank ordering of the items with respect to base rates and mean ratings was more similar across societies for parent ratings than caregiver/teacher ratings, especially with respect to the items tapping restricted interests and repetitive behaviors. Items 80. Strange behavior; 63. Repeatedly rocks head or body; 67. Seems unresponsive to affection; and 98. Withdrawn, doesn't get involved with others had low base rates in these population samples across societies and types of informants, suggesting that they may be particularly discriminating for identifying autism spectrum disorder in young children. Cross-informant agreement was stronger for the items tapping social communication and interaction problems than restricted interests and repetitive behaviors. The findings support the feasibility of international use of the scale for autism spectrum disorder screening in population samples. En ligne : http://dx.doi.org/10.1177/1362361319839151 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] International comparisons of autism spectrum disorder behaviors in preschoolers rated by parents and caregivers/teachers [Texte imprimé et/ou numérique] / L. A. RESCORLA, Auteur ; C. GIVEN, Auteur ; S. GLYNN, Auteur ; Masha Y. IVANOVA, Auteur ; Thomas M. ACHENBACH, Auteur . - p.2043-2054. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2043-2054 Mots-clés : Caregiver-Teacher Report Form  Child Behavior Checklist for Ages 1(1/2)-5  autism spectrum disorder  international comparisons  preschoolers Index. décimale : PER Périodiques Résumé : This study tested international similarities and differences in scores on a scale comprising 12 items identified by international mental health experts as being very consistent with the Diagnostic and Statistical Manual of Mental Disorders (5th ed.) category of autism spectrum disorder. Participants were 19,850 preschoolers in 24 societies rated by parents on the Child Behavior Checklist for Ages 1(1/2)-5; 10,521 preschoolers from 15 societies rated by caregivers/teachers on the Caregiver-Teacher Report Form, and 7380 children from 13 societies rated by both types of informant. Rank ordering of the items with respect to base rates and mean ratings was more similar across societies for parent ratings than caregiver/teacher ratings, especially with respect to the items tapping restricted interests and repetitive behaviors. Items 80. Strange behavior; 63. Repeatedly rocks head or body; 67. Seems unresponsive to affection; and 98. Withdrawn, doesn't get involved with others had low base rates in these population samples across societies and types of informants, suggesting that they may be particularly discriminating for identifying autism spectrum disorder in young children. Cross-informant agreement was stronger for the items tapping social communication and interaction problems than restricted interests and repetitive behaviors. The findings support the feasibility of international use of the scale for autism spectrum disorder screening in population samples. En ligne : http://dx.doi.org/10.1177/1362361319839151 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Altered bodily self-consciousness and peripersonal space in autism / C. L. MUL in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2055-2067 Titre : Altered bodily self-consciousness and peripersonal space in autism Type de document : Texte imprimé et/ou numérique Auteurs : C. L. MUL, Auteur ; F. CARDINI, Auteur ; Steven D. STAGG, Auteur ; S. SADEGHI ESFAHLANI, Auteur ; D. KIOURTSOGLOU, Auteur ; P. CARDELLICCHIO, Auteur ; J. E. ASPELL, Auteur Article en page(s) : p.2055-2067 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  bodily self-consciousness  full body illusion  multisensory integration  peripersonal space Index. décimale : PER Périodiques Résumé : There is some evidence that disordered self-processing in autism spectrum disorders is linked to the social impairments characteristic of the condition. To investigate whether bodily self-consciousness is altered in autism spectrum disorders as a result of multisensory processing differences, we tested responses to the full body illusion and measured peripersonal space in 22 adults with autism spectrum disorders and 29 neurotypical adults. In the full body illusion set-up, participants wore a head-mounted display showing a view of their 'virtual body' being stroked synchronously or asynchronously with respect to felt stroking on their back. After stroking, we measured the drift in perceived self-location and self-identification with the virtual body. To assess the peripersonal space boundary we employed an audiotactile reaction time task. The results showed that participants with autism spectrum disorders are markedly less susceptible to the full body illusion, not demonstrating the illusory self-identification and self-location drift. Strength of self-identification was negatively correlated with severity of autistic traits and contributed positively to empathy scores. The results also demonstrated a significantly smaller peripersonal space, with a sharper (steeper) boundary, in autism spectrum disorders participants. These results suggest that bodily self-consciousness is altered in participants with autism spectrum disorders due to differences in multisensory integration, and this may be linked to deficits in social functioning. En ligne : http://dx.doi.org/10.1177/1362361319838950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Altered bodily self-consciousness and peripersonal space in autism [Texte imprimé et/ou numérique] / C. L. MUL, Auteur ; F. CARDINI, Auteur ; Steven D. STAGG, Auteur ; S. SADEGHI ESFAHLANI, Auteur ; D. KIOURTSOGLOU, Auteur ; P. CARDELLICCHIO, Auteur ; J. E. ASPELL, Auteur . - p.2055-2067. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2055-2067 Mots-clés : autism spectrum disorders  bodily self-consciousness  full body illusion  multisensory integration  peripersonal space Index. décimale : PER Périodiques Résumé : There is some evidence that disordered self-processing in autism spectrum disorders is linked to the social impairments characteristic of the condition. To investigate whether bodily self-consciousness is altered in autism spectrum disorders as a result of multisensory processing differences, we tested responses to the full body illusion and measured peripersonal space in 22 adults with autism spectrum disorders and 29 neurotypical adults. In the full body illusion set-up, participants wore a head-mounted display showing a view of their 'virtual body' being stroked synchronously or asynchronously with respect to felt stroking on their back. After stroking, we measured the drift in perceived self-location and self-identification with the virtual body. To assess the peripersonal space boundary we employed an audiotactile reaction time task. The results showed that participants with autism spectrum disorders are markedly less susceptible to the full body illusion, not demonstrating the illusory self-identification and self-location drift. Strength of self-identification was negatively correlated with severity of autistic traits and contributed positively to empathy scores. The results also demonstrated a significantly smaller peripersonal space, with a sharper (steeper) boundary, in autism spectrum disorders participants. These results suggest that bodily self-consciousness is altered in participants with autism spectrum disorders due to differences in multisensory integration, and this may be linked to deficits in social functioning. En ligne : http://dx.doi.org/10.1177/1362361319838950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Broader autism phenotype and couple interactions in parents of children with autism / S. L. HARTLEY in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2068-2079 Titre : Broader autism phenotype and couple interactions in parents of children with autism Type de document : Texte imprimé et/ou numérique Auteurs : S. L. HARTLEY, Auteur ; E. J. HICKEY, Auteur ; Leann S. DAWALT, Auteur ; G. RODRIGUEZ, Auteur Article en page(s) : p.2068-2079 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  broader autism phenotype  couple  family functioning and support  marital Index. décimale : PER Périodiques Résumé : The broader autism phenotype refers to sub-clinical autism spectrum disorder characteristics involving socially and emotionally aloof and rigid personality traits and social communication difficulties. Relatives of individuals with autism spectrum disorder, including parents, evidence an increased rate of broader autism phenotype. The goal of this study was to evaluate the association between actor (one's own) and partner (their partner's) broader autism phenotype and the self-reported, observed, and physiological (i.e. electrodermal reactivity) markers of the quality of videotaped couple problem-solving interactions in 158 couples, who had a child with autism spectrum disorder (aged 5-12 years). The mean age of mothers was 39.79 (standard deviation = 5.06) years and the mean age of fathers was 41.77 (standard deviation = 6.02) years for fathers, and 36.6% of parents did not have a college degree. Actor-partner interdependence models, using structural equation modeling in analysis of moment structures, were conducted. Results indicated that parent broader autism phenotype was positively related to adverse couple problem-solving interactions across all measurement methods (observed codes, self-reported affect, and electrodermal reactivity). These effects were independent of child-related challenges. The effect of parent broader autism phenotype occurred through both actor and partner pathways and was strongest for father broader autism phenotype. En ligne : http://dx.doi.org/10.1177/1362361319841312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Broader autism phenotype and couple interactions in parents of children with autism [Texte imprimé et/ou numérique] / S. L. HARTLEY, Auteur ; E. J. HICKEY, Auteur ; Leann S. DAWALT, Auteur ; G. RODRIGUEZ, Auteur . - p.2068-2079. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2068-2079 Mots-clés : autism spectrum disorders  broader autism phenotype  couple  family functioning and support  marital Index. décimale : PER Périodiques Résumé : The broader autism phenotype refers to sub-clinical autism spectrum disorder characteristics involving socially and emotionally aloof and rigid personality traits and social communication difficulties. Relatives of individuals with autism spectrum disorder, including parents, evidence an increased rate of broader autism phenotype. The goal of this study was to evaluate the association between actor (one's own) and partner (their partner's) broader autism phenotype and the self-reported, observed, and physiological (i.e. electrodermal reactivity) markers of the quality of videotaped couple problem-solving interactions in 158 couples, who had a child with autism spectrum disorder (aged 5-12 years). The mean age of mothers was 39.79 (standard deviation = 5.06) years and the mean age of fathers was 41.77 (standard deviation = 6.02) years for fathers, and 36.6% of parents did not have a college degree. Actor-partner interdependence models, using structural equation modeling in analysis of moment structures, were conducted. Results indicated that parent broader autism phenotype was positively related to adverse couple problem-solving interactions across all measurement methods (observed codes, self-reported affect, and electrodermal reactivity). These effects were independent of child-related challenges. The effect of parent broader autism phenotype occurred through both actor and partner pathways and was strongest for father broader autism phenotype. En ligne : http://dx.doi.org/10.1177/1362361319841312 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Meta-analysis of naturalistic developmental behavioral interventions for young children with autism spectrum disorder / G. TIEDE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2080-2095 Titre : Meta-analysis of naturalistic developmental behavioral interventions for young children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : G. TIEDE, Auteur ; Katherine M. WALTON, Auteur Article en page(s) : p.2080-2095 Langues : Anglais (eng) Mots-clés : autism  meta-analysis  naturalistic developmental behavioral intervention Index. décimale : PER Périodiques Résumé : Naturalistic developmental behavioral intervention is an emerging class of interventions for young children with autism spectrum disorder. The present article is a meta-analysis of outcomes of group-design studies (n = 27) testing interventions using naturalistic developmental behavioral intervention strategies. Small, significant positive effects of naturalistic developmental behavioral intervention were found for expressive language (g = 0.32), reduction in symptoms of autism spectrum disorder (g = -0.38), and play skills (g = 0.23). Larger effects were found for social engagement (g = 0.65) and overall cognitive development (g = 0.48). A marginal effect was found for joint attention (g = 0.14) and receptive language (g = 0.28). For joint attention, improvement was moderated by hours of professional involvement. Evidence of publication and reporting bias was present for language outcomes. This meta-analysis grows the evidence base for naturalistic developmental behavioral interventions, particularly in the key areas of social engagement and cognition. En ligne : http://dx.doi.org/10.1177/1362361319836371 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Meta-analysis of naturalistic developmental behavioral interventions for young children with autism spectrum disorder [Texte imprimé et/ou numérique] / G. TIEDE, Auteur ; Katherine M. WALTON, Auteur . - p.2080-2095. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2080-2095 Mots-clés : autism  meta-analysis  naturalistic developmental behavioral intervention Index. décimale : PER Périodiques Résumé : Naturalistic developmental behavioral intervention is an emerging class of interventions for young children with autism spectrum disorder. The present article is a meta-analysis of outcomes of group-design studies (n = 27) testing interventions using naturalistic developmental behavioral intervention strategies. Small, significant positive effects of naturalistic developmental behavioral intervention were found for expressive language (g = 0.32), reduction in symptoms of autism spectrum disorder (g = -0.38), and play skills (g = 0.23). Larger effects were found for social engagement (g = 0.65) and overall cognitive development (g = 0.48). A marginal effect was found for joint attention (g = 0.14) and receptive language (g = 0.28). For joint attention, improvement was moderated by hours of professional involvement. Evidence of publication and reporting bias was present for language outcomes. This meta-analysis grows the evidence base for naturalistic developmental behavioral interventions, particularly in the key areas of social engagement and cognition. En ligne : http://dx.doi.org/10.1177/1362361319836371 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Efficacy and safety of memantine in children with autism spectrum disorder: Results from three phase 2 multicenter studies / A. Y. HARDAN in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2096-2111 Titre : Efficacy and safety of memantine in children with autism spectrum disorder: Results from three phase 2 multicenter studies Type de document : Texte imprimé et/ou numérique Auteurs : A. Y. HARDAN, Auteur ; R. L. HENDREN, Auteur ; Michael G. AMAN, Auteur ; A. ROBB, Auteur ; R. D. MELMED, Auteur ; K. A. ANDERSEN, Auteur ; R. LUCHINI, Auteur ; R. RAHMAN, Auteur ; S. ALI, Auteur ; X. D. JIA, Auteur ; M. MALLICK, Auteur ; J. E. LATEINER, Auteur ; Rohan H. C. PALMER, Auteur ; S. M. GRAHAM, Auteur Article en page(s) : p.2096-2111 Langues : Anglais (eng) Mots-clés : Asperger's disorder  Social Responsiveness Scale  autism spectrum disorders  clinical trial  medication  memantine  pervasive developmental disorder-not otherwise specified  randomized withdrawal  school-age children Index. décimale : PER Périodiques Résumé : Three phase 2 trials were conducted to assess the efficacy and long-term safety of weight-based memantine extended release (ER) treatment in children with autism spectrum disorder. MEM-MD-91, a 50-week open-label trial, identified memantine extended-release treatment responders for enrollment into MEM-MD-68, a 12-week randomized, double-blind, placebo-controlled withdrawal trial. MEM-MD-69 was an open-label extension trial in which participants from MEM-MD-68, MEM-MD-91, and open-label trial MEM-MD-67 were treated 48 weeks with memantine extended release. In MEM-MD-91, 517 (59.6%) participants were confirmed Social Responsiveness Scale responders at week 12; mean Social Responsiveness Scale total raw scores improved two to three times a minimal clinically important difference of 10 points. In MEM-MD-68, there was no difference between memantine and placebo on the primary efficacy parameter, the proportion of patients with a loss of therapeutic response (defined as 10-point increase from baseline in Social Responsiveness Scale total raw score). MEM-MD-69 exploratory analyses revealed mean standard deviation improvement in Social Responsiveness Scale total raw score of 32.4 (26.4) from baseline of the first lead-in study. No new safety concerns were evident. While the a priori-defined efficacy results of the double-blind trial were not achieved, the considerable improvements in mean Social Responsiveness Scale scores from baseline in the open-label trials were presumed to be clinically important. En ligne : http://dx.doi.org/10.1177/1362361318824103 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Efficacy and safety of memantine in children with autism spectrum disorder: Results from three phase 2 multicenter studies [Texte imprimé et/ou numérique] / A. Y. HARDAN, Auteur ; R. L. HENDREN, Auteur ; Michael G. AMAN, Auteur ; A. ROBB, Auteur ; R. D. MELMED, Auteur ; K. A. ANDERSEN, Auteur ; R. LUCHINI, Auteur ; R. RAHMAN, Auteur ; S. ALI, Auteur ; X. D. JIA, Auteur ; M. MALLICK, Auteur ; J. E. LATEINER, Auteur ; Rohan H. C. PALMER, Auteur ; S. M. GRAHAM, Auteur . - p.2096-2111. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2096-2111 Mots-clés : Asperger's disorder  Social Responsiveness Scale  autism spectrum disorders  clinical trial  medication  memantine  pervasive developmental disorder-not otherwise specified  randomized withdrawal  school-age children Index. décimale : PER Périodiques Résumé : Three phase 2 trials were conducted to assess the efficacy and long-term safety of weight-based memantine extended release (ER) treatment in children with autism spectrum disorder. MEM-MD-91, a 50-week open-label trial, identified memantine extended-release treatment responders for enrollment into MEM-MD-68, a 12-week randomized, double-blind, placebo-controlled withdrawal trial. MEM-MD-69 was an open-label extension trial in which participants from MEM-MD-68, MEM-MD-91, and open-label trial MEM-MD-67 were treated 48 weeks with memantine extended release. In MEM-MD-91, 517 (59.6%) participants were confirmed Social Responsiveness Scale responders at week 12; mean Social Responsiveness Scale total raw scores improved two to three times a minimal clinically important difference of 10 points. In MEM-MD-68, there was no difference between memantine and placebo on the primary efficacy parameter, the proportion of patients with a loss of therapeutic response (defined as 10-point increase from baseline in Social Responsiveness Scale total raw score). MEM-MD-69 exploratory analyses revealed mean standard deviation improvement in Social Responsiveness Scale total raw score of 32.4 (26.4) from baseline of the first lead-in study. No new safety concerns were evident. While the a priori-defined efficacy results of the double-blind trial were not achieved, the considerable improvements in mean Social Responsiveness Scale scores from baseline in the open-label trials were presumed to be clinically important. En ligne : http://dx.doi.org/10.1177/1362361318824103 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Parent/caregiver perspectives of functioning in autism spectrum disorders: A comparative study in Sweden and South Africa / M. VILJOEN in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2112-2130 Titre : Parent/caregiver perspectives of functioning in autism spectrum disorders: A comparative study in Sweden and South Africa Type de document : Texte imprimé et/ou numérique Auteurs : M. VILJOEN, Auteur ; S. MAHDI, Auteur ; D. GRIESSEL, Auteur ; Sven BÖLTE, Auteur ; P. J. DE VRIES, Auteur Article en page(s) : p.2112-2130 Langues : Anglais (eng) Mots-clés : Disability and Health  Icf  International Classification of Functioning  autism spectrum disorder  caregiver  disability  functioning  parent Index. décimale : PER Périodiques Résumé : Functional outcomes in autism spectrum disorder can be highly variable given the heterogeneous nature of autism spectrum disorder and its interaction with environmental factors. We set out to compare parent/caregiver perceptions of functioning in two divergent countries that participated in the International Classification of Functioning Disability and Health (ICF) Core Set for Autism Spectrum Disorder development study. We focused on the frequency and content of items reported, and hypothesized that environmental factors would most frequently be reported as barriers to functioning in low-resource settings. Using frequency and qualitative content analysis, we compared data from South Africa (n = 22) and Sweden (n = 13). Frequency agreement was seen in three activities and participation categories, and one environmental factor. Obvious frequency differences were observed in one environmental factors category, six body functions categories and three activities and participation categories. Only three ICF categories (immediate family, attention functions, products and technology for personal use) differed in content. Contrary to our hypotheses, few differences in perspectives about environmental factors emerged. The universality of our findings supports the global usefulness of the recently developed ICF Core Sets for Autism Spectrum Disorder. We recommend that more comparative studies on autism spectrum disorder and functioning should be conducted, and that similar comparisons in other disorders where Core Sets have been developed may be valuable. En ligne : http://dx.doi.org/10.1177/1362361319829868 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Parent/caregiver perspectives of functioning in autism spectrum disorders: A comparative study in Sweden and South Africa [Texte imprimé et/ou numérique] / M. VILJOEN, Auteur ; S. MAHDI, Auteur ; D. GRIESSEL, Auteur ; Sven BÖLTE, Auteur ; P. J. DE VRIES, Auteur . - p.2112-2130. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2112-2130 Mots-clés : Disability and Health  Icf  International Classification of Functioning  autism spectrum disorder  caregiver  disability  functioning  parent Index. décimale : PER Périodiques Résumé : Functional outcomes in autism spectrum disorder can be highly variable given the heterogeneous nature of autism spectrum disorder and its interaction with environmental factors. We set out to compare parent/caregiver perceptions of functioning in two divergent countries that participated in the International Classification of Functioning Disability and Health (ICF) Core Set for Autism Spectrum Disorder development study. We focused on the frequency and content of items reported, and hypothesized that environmental factors would most frequently be reported as barriers to functioning in low-resource settings. Using frequency and qualitative content analysis, we compared data from South Africa (n = 22) and Sweden (n = 13). Frequency agreement was seen in three activities and participation categories, and one environmental factor. Obvious frequency differences were observed in one environmental factors category, six body functions categories and three activities and participation categories. Only three ICF categories (immediate family, attention functions, products and technology for personal use) differed in content. Contrary to our hypotheses, few differences in perspectives about environmental factors emerged. The universality of our findings supports the global usefulness of the recently developed ICF Core Sets for Autism Spectrum Disorder. We recommend that more comparative studies on autism spectrum disorder and functioning should be conducted, and that similar comparisons in other disorders where Core Sets have been developed may be valuable. En ligne : http://dx.doi.org/10.1177/1362361319829868 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes? / D. PLESA SKWERER in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.2131-2144 Titre : Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes? Type de document : Texte imprimé et/ou numérique Auteurs : D. PLESA SKWERER, Auteur ; Brianna BRUKILACCHIO, Auteur ; A. CHU, Auteur ; B. EGGLESTON, Auteur ; S. MEYER, Auteur ; Helen TAGER-FLUSBERG, Auteur Article en page(s) : p.2131-2144 Langues : Anglais (eng) Mots-clés : dynamic scene  eye tracking  minimally verbal autism spectrum disorder  visual social attention Index. décimale : PER Périodiques Résumé : Attending preferentially to social information in the environment is important in developing socio-communicative skills and language. Research using eye tracking to explore how individuals with autism spectrum disorder deploy visual attention has increased exponentially in the past decade; however, studies have typically not included minimally verbal participants. In this study, we compared 37 minimally verbal children and adolescents with autism spectrum disorder with 34 age-matched verbally fluent individuals with autism spectrum disorder in how they viewed a brief video in which a young woman, surrounded by interesting objects, engages the viewer, and later reacts with expected or unexpected gaze-shifts toward the objects. While both groups spent comparable amounts of time looking at different parts of the scene and looked longer at the person than at the objects, the minimally verbal autism spectrum disorder group spent significantly less time looking at the person's face during the episodes where gaze following-a precursor of joint attention-was critical for interpreting her behavior. Proportional looking-time toward key areas of interest in some episodes correlated with receptive language measures. These findings underscore the connections between social attention and the development of communicative abilities in autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319845563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Do minimally verbal and verbally fluent individuals with autism spectrum disorder differ in their viewing patterns of dynamic social scenes? [Texte imprimé et/ou numérique] / D. PLESA SKWERER, Auteur ; Brianna BRUKILACCHIO, Auteur ; A. CHU, Auteur ; B. EGGLESTON, Auteur ; S. MEYER, Auteur ; Helen TAGER-FLUSBERG, Auteur . - p.2131-2144. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.2131-2144 Mots-clés : dynamic scene  eye tracking  minimally verbal autism spectrum disorder  visual social attention Index. décimale : PER Périodiques Résumé : Attending preferentially to social information in the environment is important in developing socio-communicative skills and language. Research using eye tracking to explore how individuals with autism spectrum disorder deploy visual attention has increased exponentially in the past decade; however, studies have typically not included minimally verbal participants. In this study, we compared 37 minimally verbal children and adolescents with autism spectrum disorder with 34 age-matched verbally fluent individuals with autism spectrum disorder in how they viewed a brief video in which a young woman, surrounded by interesting objects, engages the viewer, and later reacts with expected or unexpected gaze-shifts toward the objects. While both groups spent comparable amounts of time looking at different parts of the scene and looked longer at the person than at the objects, the minimally verbal autism spectrum disorder group spent significantly less time looking at the person's face during the episodes where gaze following-a precursor of joint attention-was critical for interpreting her behavior. Proportional looking-time toward key areas of interest in some episodes correlated with receptive language measures. These findings underscore the connections between social attention and the development of communicative abilities in autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361319845563 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407