Dépouillements

Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children / Tyler C. MCFAYDEN ; Jessica E. GOLDBLUM ; Stephanie BRISTOL ; Clare HARROP in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202576 Titre : Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur Article en page(s) : 202576 Langues : Anglais (eng) Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children?s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Frustration in healthcare: Sex differences in parental perceptions of medical visits for autistic children [Texte imprimé et/ou numérique] / Tyler C. MCFAYDEN, Auteur ; Jessica E. GOLDBLUM, Auteur ; Stephanie BRISTOL, Auteur ; Clare HARROP, Auteur . - 202576. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202576 Mots-clés : Autism  Females  Frustration  Sex differences  Healthcare  Access to care Index. décimale : PER Périodiques Résumé : Background Historical conceptualization of autism as male-dominant has contributed to sex disparities in accessing diagnosis and intervention services for autistic females (McDonnell et al., 2021). These disparities can have a profound impact on parental stress and child outcomes. However, little work has evaluated sex disparities in accessing healthcare. Accordingly, this study sought to evaluate sex differences in frustration accessing healthcare for parents of autistic youth. Method Utilizing the National Survey on Children?s Health (NSCH) data spanning 2016-2022, this study analyzed a nationally representative sample (N = 7740, Mage=10.61, 21.4 % female) to determine sex differences in risk of frustration with healthcare services. Ten domains of frustration were evaluated using relative risk ratios comparing parents of autistic females to parents of autistic males. Risk ratios > 1.0 indicated an increase in risk among females, whereas a risk ratio < 1.0 indicated a decrease in risk for females. Results Compared to parents of autistic males, parents of autistic females were more likely to endorse frustration in 5 out of 10 domains, including feeling listened to by providers, providers spending enough time with them, feeling like a partner in their child?s health-decision making, feeling like the provider was sensitive to their cultural considerations, and having been provided with relevant information. Discussion Parents of autistic females were at an elevated risk of experiencing frustration compared to parents of autistic males. Elevated frustration experienced by parents of autistic females has implications for the continued access to healthcare for autistic females across their lifespan. En ligne : https://doi.org/10.1016/j.reia.2025.202576 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Comparing shared book reading practices in autistic and neurotypical preschoolers / Prerna SHANKAR ; Keerti DAESETY ; Julia CORNWALL ; Lauren DEBOYES ; Helen TAGER-FLUSBERG in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202577 Titre : Comparing shared book reading practices in autistic and neurotypical preschoolers Type de document : Texte imprimé et/ou numérique Auteurs : Prerna SHANKAR, Auteur ; Keerti DAESETY, Auteur ; Julia CORNWALL, Auteur ; Lauren DEBOYES, Auteur ; Helen TAGER-FLUSBERG, Auteur Article en page(s) : 202577 Langues : Anglais (eng) Mots-clés : Autism  Shared book reading  Language  Literacy  Preschool Index. décimale : PER Périodiques Résumé : Background While the developmental benefits of shared book reading in neurotypical children are well-established, little is known about whether autistic and neurotypical children experience similar shared book reading practices at home, and whether these practices are associated with autistic children?s language skills. Methods In well-matched groups of 32 autistic and neurotypical preschoolers, we compared different measures of shared book reading practices - parent-reported quantity and quality of shared book reading at home, parent-reported child engagement and enjoyment during shared book reading at home, and behaviorally observed parent language use during lab-based parent-child shared book reading interactions. In a larger sample of 47 preschoolers (22 autism, 25 neurotypical), we explored the associations between shared book reading practices and child language skills. Results Between groups, parents reported similar quantity and quality of shared book reading and used similar language during parent-child shared book reading interactions. Parents of autistic children reported having to work hard to keep their child engaged during shared book reading more often than parents of neurotypical children. Parents of autistic children also reported lower child enjoyment during shared book reading. Child language skills, engagement, and enjoyment were significantly correlated with quantity and quality of shared book reading in the autism group. Conclusions Shared book reading may have a positive impact on autistic children?s language development, although further longitudinal research is needed. Clinically, findings suggest that autistic children, especially those with lower language skills, may benefit from interventions that support child engagement and enjoyment during shared book reading. En ligne : https://doi.org/10.1016/j.reia.2025.202577 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Comparing shared book reading practices in autistic and neurotypical preschoolers [Texte imprimé et/ou numérique] / Prerna SHANKAR, Auteur ; Keerti DAESETY, Auteur ; Julia CORNWALL, Auteur ; Lauren DEBOYES, Auteur ; Helen TAGER-FLUSBERG, Auteur . - 202577. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202577 Mots-clés : Autism  Shared book reading  Language  Literacy  Preschool Index. décimale : PER Périodiques Résumé : Background While the developmental benefits of shared book reading in neurotypical children are well-established, little is known about whether autistic and neurotypical children experience similar shared book reading practices at home, and whether these practices are associated with autistic children?s language skills. Methods In well-matched groups of 32 autistic and neurotypical preschoolers, we compared different measures of shared book reading practices - parent-reported quantity and quality of shared book reading at home, parent-reported child engagement and enjoyment during shared book reading at home, and behaviorally observed parent language use during lab-based parent-child shared book reading interactions. In a larger sample of 47 preschoolers (22 autism, 25 neurotypical), we explored the associations between shared book reading practices and child language skills. Results Between groups, parents reported similar quantity and quality of shared book reading and used similar language during parent-child shared book reading interactions. Parents of autistic children reported having to work hard to keep their child engaged during shared book reading more often than parents of neurotypical children. Parents of autistic children also reported lower child enjoyment during shared book reading. Child language skills, engagement, and enjoyment were significantly correlated with quantity and quality of shared book reading in the autism group. Conclusions Shared book reading may have a positive impact on autistic children?s language development, although further longitudinal research is needed. Clinically, findings suggest that autistic children, especially those with lower language skills, may benefit from interventions that support child engagement and enjoyment during shared book reading. En ligne : https://doi.org/10.1016/j.reia.2025.202577 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Autistic traits, depression and suicide risk: The mediating role of self-compassion in medical students / Mustafa Cemil KARADURAN ; Buket KOPARAL in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202578 Titre : Autistic traits, depression and suicide risk: The mediating role of self-compassion in medical students Type de document : Texte imprimé et/ou numérique Auteurs : Mustafa Cemil KARADURAN, Auteur ; Buket KOPARAL, Auteur Article en page(s) : 202578 Langues : Anglais (eng) Mots-clés : Autistic traits  Depression  Self-compassion  Suicide Index. décimale : PER Périodiques Résumé : Depression and suicidal ideation are increasingly prevalent among medical students. Autistic traits and self-compassion may be potential factors related to these issues. This study aimed to examine whether autistic traits and self-compassion are associated with suicidal ideation among medical students during clinical internships. The study was designed as a cross-sectional investigation, including 304 medical students undergoing clinical internships. Participants completed the Autism Spectrum Quotient (AQ), Self-Compassion Scale (SCS), Patient Health Questionnaire-9 (PHQ-9), and Suicidal Behaviors Questionnaire (SBQ). Serial mediation analyses were conducted to explore how autistic traits affect suicidal ideation through recent depressive symptoms and self-compassion. According to the findings, 47 % of the medical students reported recent depressive symptoms, and 24 % had experienced suicidal ideation at some point in their lives. Autistic traits were associated with lower self-compassion, increased depressive symptoms, and suicidal ideation. Mediation analyses revealed that depressive symptoms mediated the relationship between autistic traits and suicidal ideation, while self-compassion had a protective effect (indirect effect = 0.044, SE = 0.010, 95 % CI = [0.027, 0.064]). Investigating autistic traits and self-compassion in medical students and developing targeted intervention plans may serve as mechanisms to reduce the risk of depression and suicide. En ligne : https://doi.org/10.1016/j.reia.2025.202578 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Autistic traits, depression and suicide risk: The mediating role of self-compassion in medical students [Texte imprimé et/ou numérique] / Mustafa Cemil KARADURAN, Auteur ; Buket KOPARAL, Auteur . - 202578. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202578 Mots-clés : Autistic traits  Depression  Self-compassion  Suicide Index. décimale : PER Périodiques Résumé : Depression and suicidal ideation are increasingly prevalent among medical students. Autistic traits and self-compassion may be potential factors related to these issues. This study aimed to examine whether autistic traits and self-compassion are associated with suicidal ideation among medical students during clinical internships. The study was designed as a cross-sectional investigation, including 304 medical students undergoing clinical internships. Participants completed the Autism Spectrum Quotient (AQ), Self-Compassion Scale (SCS), Patient Health Questionnaire-9 (PHQ-9), and Suicidal Behaviors Questionnaire (SBQ). Serial mediation analyses were conducted to explore how autistic traits affect suicidal ideation through recent depressive symptoms and self-compassion. According to the findings, 47 % of the medical students reported recent depressive symptoms, and 24 % had experienced suicidal ideation at some point in their lives. Autistic traits were associated with lower self-compassion, increased depressive symptoms, and suicidal ideation. Mediation analyses revealed that depressive symptoms mediated the relationship between autistic traits and suicidal ideation, while self-compassion had a protective effect (indirect effect = 0.044, SE = 0.010, 95 % CI = [0.027, 0.064]). Investigating autistic traits and self-compassion in medical students and developing targeted intervention plans may serve as mechanisms to reduce the risk of depression and suicide. En ligne : https://doi.org/10.1016/j.reia.2025.202578 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

The role of zinc dysregulation in Autism Spectrum Disorder: A systematic review of genetic and environmental influences and therapeutic potential / Mohammed Rushdhi IRFAN ; Ali RAJA ; Mohamed Akram SATTAR ; Alzahra?a AL MATAIRI ; Rushdan Mohamed FIRDOUS ; Aksh SHARMA ; Jamil ALGHANEM ; Adel KALOU ; Youmna Hassan Hashim ABDALGADER ; Wael KALOU ; Ahmed YAQINUDDIN in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202579 Titre : The role of zinc dysregulation in Autism Spectrum Disorder: A systematic review of genetic and environmental influences and therapeutic potential Type de document : Texte imprimé et/ou numérique Auteurs : Mohammed Rushdhi IRFAN, Auteur ; Ali RAJA, Auteur ; Mohamed Akram SATTAR, Auteur ; Alzahra?a AL MATAIRI, Auteur ; Rushdan Mohamed FIRDOUS, Auteur ; Aksh SHARMA, Auteur ; Jamil ALGHANEM, Auteur ; Adel KALOU, Auteur ; Youmna Hassan Hashim ABDALGADER, Auteur ; Wael KALOU, Auteur ; Ahmed YAQINUDDIN, Auteur Article en page(s) : 202579 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Zinc dysregulation  Neurodevelopment  Genetic factors  Environmental factors  Zinc supplementation  Synaptic function Index. décimale : PER Périodiques Résumé : This systematic review examines the role of zinc (Zn) dysregulation in the development and management of Autism Spectrum Disorder (ASD), focusing on genetic and environmental factors, as well as the therapeutic potential of Zn supplementation. Zn is crucial for neurodevelopmental processes, and disruptions in Zn homeostasis have been associated with ASD symptoms. Genetic factors, such as mutations in Zn transporter genes (such as, SLC39A8, SHANK3), impact Zn regulation and synaptic function, contributing to ASD pathophysiology. Additionally, prenatal and early-life environmental exposures (such as, maternal diet, heavy metal exposure) can exacerbate Zn dysregulation. This review synthesizes data from both human and animal studies to explore these mechanisms and evaluates clinical trials on Zn supplementation, which show mixed results in symptom management. The findings highlight the need for standardized Zn assessment and intervention protocols to further investigate Zn?s role as a therapeutic target for ASD. En ligne : https://doi.org/10.1016/j.reia.2025.202579 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] The role of zinc dysregulation in Autism Spectrum Disorder: A systematic review of genetic and environmental influences and therapeutic potential [Texte imprimé et/ou numérique] / Mohammed Rushdhi IRFAN, Auteur ; Ali RAJA, Auteur ; Mohamed Akram SATTAR, Auteur ; Alzahra?a AL MATAIRI, Auteur ; Rushdan Mohamed FIRDOUS, Auteur ; Aksh SHARMA, Auteur ; Jamil ALGHANEM, Auteur ; Adel KALOU, Auteur ; Youmna Hassan Hashim ABDALGADER, Auteur ; Wael KALOU, Auteur ; Ahmed YAQINUDDIN, Auteur . - 202579. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202579 Mots-clés : Autism Spectrum Disorder  Zinc dysregulation  Neurodevelopment  Genetic factors  Environmental factors  Zinc supplementation  Synaptic function Index. décimale : PER Périodiques Résumé : This systematic review examines the role of zinc (Zn) dysregulation in the development and management of Autism Spectrum Disorder (ASD), focusing on genetic and environmental factors, as well as the therapeutic potential of Zn supplementation. Zn is crucial for neurodevelopmental processes, and disruptions in Zn homeostasis have been associated with ASD symptoms. Genetic factors, such as mutations in Zn transporter genes (such as, SLC39A8, SHANK3), impact Zn regulation and synaptic function, contributing to ASD pathophysiology. Additionally, prenatal and early-life environmental exposures (such as, maternal diet, heavy metal exposure) can exacerbate Zn dysregulation. This review synthesizes data from both human and animal studies to explore these mechanisms and evaluates clinical trials on Zn supplementation, which show mixed results in symptom management. The findings highlight the need for standardized Zn assessment and intervention protocols to further investigate Zn?s role as a therapeutic target for ASD. En ligne : https://doi.org/10.1016/j.reia.2025.202579 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Lost opportunities for young people with ASC under early intervention: A service evaluation from a central London Forensic CAMHS service / J. G. SMITH ; M. SANDIFORD ; D. MORAN ; B. ROSS-MICHAELIDES ; C. BENN ; E. CURTIS ; H. HALES in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202580 Titre : Lost opportunities for young people with ASC under early intervention: A service evaluation from a central London Forensic CAMHS service Type de document : Texte imprimé et/ou numérique Auteurs : J. G. SMITH, Auteur ; M. SANDIFORD, Auteur ; D. MORAN, Auteur ; B. ROSS-MICHAELIDES, Auteur ; C. BENN, Auteur ; E. CURTIS, Auteur ; H. HALES, Auteur Article en page(s) : 202580 Langues : Anglais (eng) Mots-clés : ASC  Autism  Child  Young person  CAMHS  F-CAMHS  Risk  Offending Index. décimale : PER Périodiques Résumé : Background Little is known about the needs and risk behaviours of children and young people (CYP) with Autistic Spectrum Condition (ASC) referred to Community Forensic Child and Adolescent Mental Health Services (C-FCAMHS). Methods A retrospective service evaluation considering all CYP (n = 444) referred to a C-FCAMHS in London from mid-2018 to December 2022. We considered demographic and family background data, comorbid diagnoses, service involvement and reasons for North West London Community Forensic Child and Adolescent Mental Health Services (NWLFCAMHS) referral and NWLFCAMHS input and risk assessment of CYP with and without ASC. Results At referral, close to one-quarter (22.8 %; male n = 88, 25.7 %; females n = 8, 18.9 %) of referred CYP had a diagnosis of ASC; a third of these had a co-occurring neurodevelopmental disorder. A further 25 CYP were awaiting ASC assessment, of which six CYP individuals were subsequently given an ASC diagnosis. Of the CYP with ASC, close to four-fifths were open to CAMHS (78.1 %) and social care (79.2 %) on referral. Over two-fifths (42.5 %) of CYP with ASC were referred due to violent behaviours and 59.2 % were considered at moderate risk to others. Conclusion There are higher prevalence rates of ASC in referrals to our C-FCAMHS than in the general adolescent population, with disproportionally higher rates in girls and those from racialised backgrounds. Missed opportunities for support to reduce development of risk behaviours were noted, including insufficient individual support plans in education, social care and CAMHS. There is much need to support early identification of ASC across all demographically diverse groups to enable early support from services and prevent escalation to high-risk behaviours. En ligne : https://doi.org/10.1016/j.reia.2025.202580 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Lost opportunities for young people with ASC under early intervention: A service evaluation from a central London Forensic CAMHS service [Texte imprimé et/ou numérique] / J. G. SMITH, Auteur ; M. SANDIFORD, Auteur ; D. MORAN, Auteur ; B. ROSS-MICHAELIDES, Auteur ; C. BENN, Auteur ; E. CURTIS, Auteur ; H. HALES, Auteur . - 202580. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202580 Mots-clés : ASC  Autism  Child  Young person  CAMHS  F-CAMHS  Risk  Offending Index. décimale : PER Périodiques Résumé : Background Little is known about the needs and risk behaviours of children and young people (CYP) with Autistic Spectrum Condition (ASC) referred to Community Forensic Child and Adolescent Mental Health Services (C-FCAMHS). Methods A retrospective service evaluation considering all CYP (n = 444) referred to a C-FCAMHS in London from mid-2018 to December 2022. We considered demographic and family background data, comorbid diagnoses, service involvement and reasons for North West London Community Forensic Child and Adolescent Mental Health Services (NWLFCAMHS) referral and NWLFCAMHS input and risk assessment of CYP with and without ASC. Results At referral, close to one-quarter (22.8 %; male n = 88, 25.7 %; females n = 8, 18.9 %) of referred CYP had a diagnosis of ASC; a third of these had a co-occurring neurodevelopmental disorder. A further 25 CYP were awaiting ASC assessment, of which six CYP individuals were subsequently given an ASC diagnosis. Of the CYP with ASC, close to four-fifths were open to CAMHS (78.1 %) and social care (79.2 %) on referral. Over two-fifths (42.5 %) of CYP with ASC were referred due to violent behaviours and 59.2 % were considered at moderate risk to others. Conclusion There are higher prevalence rates of ASC in referrals to our C-FCAMHS than in the general adolescent population, with disproportionally higher rates in girls and those from racialised backgrounds. Missed opportunities for support to reduce development of risk behaviours were noted, including insufficient individual support plans in education, social care and CAMHS. There is much need to support early identification of ASC across all demographically diverse groups to enable early support from services and prevent escalation to high-risk behaviours. En ligne : https://doi.org/10.1016/j.reia.2025.202580 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Using visual aid during caregiver interviews to screen for autism spectrum disorder in toddlers: Developing the Behavior Development Screening for Toddlers-Video (BeDevel-V) / Da-Yea SONG ; Dabin KIM ; Guiyoung BONG ; Ye Rim KIM ; Yoo-jeong LEE ; Jae Hyun HAN ; Seok Joon SEO ; Hyunjoo KIM ; Hee Jeong YOO in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202581 Titre : Using visual aid during caregiver interviews to screen for autism spectrum disorder in toddlers: Developing the Behavior Development Screening for Toddlers-Video (BeDevel-V) Type de document : Texte imprimé et/ou numérique Auteurs : Da-Yea SONG, Auteur ; Dabin KIM, Auteur ; Guiyoung BONG, Auteur ; Ye Rim KIM, Auteur ; Yoo-jeong LEE, Auteur ; Jae Hyun HAN, Auteur ; Seok Joon SEO, Auteur ; Hyunjoo KIM, Auteur ; Hee Jeong YOO, Auteur Article en page(s) : 202581 Langues : Anglais (eng) Mots-clés : Autism  Screening  Visual aids  Caregiver interview  Early detection Index. décimale : PER Périodiques Résumé : Caregiver interviews are a valuable means of gathering information about a child?s daily behavior. However, the interviewee?s biases may affect the accuracy of the information obtained from such interviews. To address this, certain items from the autism screening instrument, the Behavior Development Screening for Toddlers (BeDevel), were converted into a video (BeDevel-V) as a visual reference during caregiver interviews to provide a clear understanding of the child?s social behaviors. Data from 139 children aged 12-42 months (79.9 % boys, mean age 35.53 months) were included in the study, of whom 106 were autistic and 33 were non-autistic. This study evaluated the predictability and agreement of the BeDevel-V items with clinical estimates and compared the BeDevel-V to the standard interview (BeDevel-I). Most BeDevel-V items moderately predicted the clinical diagnosis. Although several items were better measured using the BeDevel-V, using it in combination with the BeDevel-I was more effective than using either tool individually. The BeDevel-V was more effective in measuring serial and nuanced items. Combining the BeDevel-V and BeDevel-I with other screening measures may be useful for autism screening, especially in regions with limited resources. En ligne : https://doi.org/10.1016/j.reia.2025.202581 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Using visual aid during caregiver interviews to screen for autism spectrum disorder in toddlers: Developing the Behavior Development Screening for Toddlers-Video (BeDevel-V) [Texte imprimé et/ou numérique] / Da-Yea SONG, Auteur ; Dabin KIM, Auteur ; Guiyoung BONG, Auteur ; Ye Rim KIM, Auteur ; Yoo-jeong LEE, Auteur ; Jae Hyun HAN, Auteur ; Seok Joon SEO, Auteur ; Hyunjoo KIM, Auteur ; Hee Jeong YOO, Auteur . - 202581. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202581 Mots-clés : Autism  Screening  Visual aids  Caregiver interview  Early detection Index. décimale : PER Périodiques Résumé : Caregiver interviews are a valuable means of gathering information about a child?s daily behavior. However, the interviewee?s biases may affect the accuracy of the information obtained from such interviews. To address this, certain items from the autism screening instrument, the Behavior Development Screening for Toddlers (BeDevel), were converted into a video (BeDevel-V) as a visual reference during caregiver interviews to provide a clear understanding of the child?s social behaviors. Data from 139 children aged 12-42 months (79.9 % boys, mean age 35.53 months) were included in the study, of whom 106 were autistic and 33 were non-autistic. This study evaluated the predictability and agreement of the BeDevel-V items with clinical estimates and compared the BeDevel-V to the standard interview (BeDevel-I). Most BeDevel-V items moderately predicted the clinical diagnosis. Although several items were better measured using the BeDevel-V, using it in combination with the BeDevel-I was more effective than using either tool individually. The BeDevel-V was more effective in measuring serial and nuanced items. Combining the BeDevel-V and BeDevel-I with other screening measures may be useful for autism screening, especially in regions with limited resources. En ligne : https://doi.org/10.1016/j.reia.2025.202581 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Mental health hospitalization and readmission in autistic adults in a national U.S. sample / Joseph WRIGHT ; Samuelle VOLTAIRE ; Tamara GARFIELD ; Anne M. ROUX in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202582 Titre : Mental health hospitalization and readmission in autistic adults in a national U.S. sample Type de document : Texte imprimé et/ou numérique Auteurs : Joseph WRIGHT, Auteur ; Samuelle VOLTAIRE, Auteur ; Tamara GARFIELD, Auteur ; Anne M. ROUX, Auteur Article en page(s) : 202582 Langues : Anglais (eng) Mots-clés : Mental health hospitalization  Readmission  Autism  Adults Index. décimale : PER Périodiques Résumé : Objective The objectives of this study were to, 1) estimate U.S. national rates of mental health hospitalization (MHH) and all-cause readmission, and 2) explore characteristics associated with readmissions for autistic and non-autistic adults. Methods This study used the National Readmission Database (NRD) 2019 to examine 30-day all-cause readmissions following MHH in adults with autism, intellectual disability, ADHD, and mental health conditions. Analysis estimated rates of MHH by group, rates and odds of readmission, and factors associated with readmission. Results More than one-third (36 %) of all admissions for autistic adults in 2019 were MHH, with schizophrenia the most common reason. Of all MHH index events in autistic adults, 17 % had a 30-day all-cause readmission. Readmissions were more common in autistic adults with ID (25 %) than in autistic adults without ID (15 %). Readmission was also slightly more common in female autistic adults (20 %) than male autistic adults (16 %), and autistic females had greater odds of readmission (OR 1.30, 95 % CI 1.09, 1.55) than autistic males, which was not true in non-autistic adults. Initial admission for schizophrenia was associated with increased odds of readmission for all groups (OR 1.37, 95 % CI 1.32, 1.42). Conclusions The complexity of mental health conditions and their care in autistic adults underscores the urgent need for accessible and tailored mental health care services. Addressing these challenges will require collaborative efforts across healthcare sectors to create comprehensive, inclusive, and person-centered approaches to mental health care delivery for autistic adults across often disjointed service sectors. En ligne : https://doi.org/10.1016/j.reia.2025.202582 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Mental health hospitalization and readmission in autistic adults in a national U.S. sample [Texte imprimé et/ou numérique] / Joseph WRIGHT, Auteur ; Samuelle VOLTAIRE, Auteur ; Tamara GARFIELD, Auteur ; Anne M. ROUX, Auteur . - 202582. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202582 Mots-clés : Mental health hospitalization  Readmission  Autism  Adults Index. décimale : PER Périodiques Résumé : Objective The objectives of this study were to, 1) estimate U.S. national rates of mental health hospitalization (MHH) and all-cause readmission, and 2) explore characteristics associated with readmissions for autistic and non-autistic adults. Methods This study used the National Readmission Database (NRD) 2019 to examine 30-day all-cause readmissions following MHH in adults with autism, intellectual disability, ADHD, and mental health conditions. Analysis estimated rates of MHH by group, rates and odds of readmission, and factors associated with readmission. Results More than one-third (36 %) of all admissions for autistic adults in 2019 were MHH, with schizophrenia the most common reason. Of all MHH index events in autistic adults, 17 % had a 30-day all-cause readmission. Readmissions were more common in autistic adults with ID (25 %) than in autistic adults without ID (15 %). Readmission was also slightly more common in female autistic adults (20 %) than male autistic adults (16 %), and autistic females had greater odds of readmission (OR 1.30, 95 % CI 1.09, 1.55) than autistic males, which was not true in non-autistic adults. Initial admission for schizophrenia was associated with increased odds of readmission for all groups (OR 1.37, 95 % CI 1.32, 1.42). Conclusions The complexity of mental health conditions and their care in autistic adults underscores the urgent need for accessible and tailored mental health care services. Addressing these challenges will require collaborative efforts across healthcare sectors to create comprehensive, inclusive, and person-centered approaches to mental health care delivery for autistic adults across often disjointed service sectors. En ligne : https://doi.org/10.1016/j.reia.2025.202582 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Scoping review: Psychological treatments for service-users with Autism Spectrum Disorder, and complex emotional needs consistent with a diagnosis of personality disorder / Ethan BARR ; Jesse HARLEY ; Ella MATHER in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202583 Titre : Scoping review: Psychological treatments for service-users with Autism Spectrum Disorder, and complex emotional needs consistent with a diagnosis of personality disorder Type de document : Texte imprimé et/ou numérique Auteurs : Ethan BARR, Auteur ; Jesse HARLEY, Auteur ; Ella MATHER, Auteur Article en page(s) : 202583 Langues : Anglais (eng) Mots-clés : Autism  Personality disorder  ASD  BPD  Treatment  Adaptations Index. décimale : PER Périodiques Résumé : Background There are existing psychological treatments for Complex Emotional Needs (CEN), or difficulties consistent with a diagnosis of personality disorder, but it is unclear how effective these are for service-users who also have Autism Spectrum Disorder (ASD). This co-occurrence appears increasingly common, and it was identified that a scoping review could usefully explore and synthesise existing research in this area. Methods Structured search and review, then narrative synthesis of 28 texts. Results There were no large-scale, robust trials, in this area. Several small-scale studies were found, and other related literature was also reviewed, towards treatment recommendations for this client group. In particular, potential adaptations to existing CEN treatments are suggested, that could be implemented following comprehensive formulation of any given service-user?s strengths and difficulties. Conclusion Research in this area is very much in its infancy; but there are some promising preliminary suggestions for best practice that currently exist, and that should be put to further empirical testing. En ligne : https://doi.org/10.1016/j.reia.2025.202583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Scoping review: Psychological treatments for service-users with Autism Spectrum Disorder, and complex emotional needs consistent with a diagnosis of personality disorder [Texte imprimé et/ou numérique] / Ethan BARR, Auteur ; Jesse HARLEY, Auteur ; Ella MATHER, Auteur . - 202583. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202583 Mots-clés : Autism  Personality disorder  ASD  BPD  Treatment  Adaptations Index. décimale : PER Périodiques Résumé : Background There are existing psychological treatments for Complex Emotional Needs (CEN), or difficulties consistent with a diagnosis of personality disorder, but it is unclear how effective these are for service-users who also have Autism Spectrum Disorder (ASD). This co-occurrence appears increasingly common, and it was identified that a scoping review could usefully explore and synthesise existing research in this area. Methods Structured search and review, then narrative synthesis of 28 texts. Results There were no large-scale, robust trials, in this area. Several small-scale studies were found, and other related literature was also reviewed, towards treatment recommendations for this client group. In particular, potential adaptations to existing CEN treatments are suggested, that could be implemented following comprehensive formulation of any given service-user?s strengths and difficulties. Conclusion Research in this area is very much in its infancy; but there are some promising preliminary suggestions for best practice that currently exist, and that should be put to further empirical testing. En ligne : https://doi.org/10.1016/j.reia.2025.202583 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Mental health in autistic adults: Key stages in the journey from experiencing psychological distress to recovery / Beatriz LOPEZ in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202584 Titre : Mental health in autistic adults: Key stages in the journey from experiencing psychological distress to recovery Type de document : Texte imprimé et/ou numérique Auteurs : Beatriz LOPEZ, Auteur Article en page(s) : 202584 Langues : Anglais (eng) Mots-clés : Quality of life  Qualitative research  Depression  Anxiety  Health services  Adults Index. décimale : PER Périodiques Résumé : Background Autistic people are more likely to experience mental health difficulties than non-autistic people, yet they are less likely to access formal support. This study explored autistic adults' experiences of poor mental health at three key stages: at onset; at the stage of seeking and obtaining support; and after recovery. Methods Twelve autistic adults who had experienced, but were no longer experiencing, poor mental health, participated in a semi-structured interview. Their responses were analysed using thematic analysis clustered around the three stages of this journey. Results In terms of participants' first experience of poor mental health, findings confirm previous research highlighting social isolation as the main trigger for poor mental health, and also as a consequence. Participants also reported having difficulty recognising the symptoms and using self-help strategies. When seeking support participants reported not knowing how to seek support, seeking support from family, having difficulty communicating their need for support or not knowing what support to ask for, and having to ask for support more than once. After recovery, participants felt more confident and experienced improved psychological awareness. However, some participants still felt uncertain of what support they would seek if they experienced poor mental health again. Conclusions This study identifies the need to develop tailored interventions at key stages in the journey to poor mental health. We propose a multifaceted approach that focuses on the prevention of social isolation, the promotion of mental health literacy for autistic adults and their families, and improving recognition of symptoms and nonverbal communication of poor mental health in families and professionals. En ligne : https://doi.org/10.1016/j.reia.2025.202584 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Mental health in autistic adults: Key stages in the journey from experiencing psychological distress to recovery [Texte imprimé et/ou numérique] / Beatriz LOPEZ, Auteur . - 202584. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202584 Mots-clés : Quality of life  Qualitative research  Depression  Anxiety  Health services  Adults Index. décimale : PER Périodiques Résumé : Background Autistic people are more likely to experience mental health difficulties than non-autistic people, yet they are less likely to access formal support. This study explored autistic adults' experiences of poor mental health at three key stages: at onset; at the stage of seeking and obtaining support; and after recovery. Methods Twelve autistic adults who had experienced, but were no longer experiencing, poor mental health, participated in a semi-structured interview. Their responses were analysed using thematic analysis clustered around the three stages of this journey. Results In terms of participants' first experience of poor mental health, findings confirm previous research highlighting social isolation as the main trigger for poor mental health, and also as a consequence. Participants also reported having difficulty recognising the symptoms and using self-help strategies. When seeking support participants reported not knowing how to seek support, seeking support from family, having difficulty communicating their need for support or not knowing what support to ask for, and having to ask for support more than once. After recovery, participants felt more confident and experienced improved psychological awareness. However, some participants still felt uncertain of what support they would seek if they experienced poor mental health again. Conclusions This study identifies the need to develop tailored interventions at key stages in the journey to poor mental health. We propose a multifaceted approach that focuses on the prevention of social isolation, the promotion of mental health literacy for autistic adults and their families, and improving recognition of symptoms and nonverbal communication of poor mental health in families and professionals. En ligne : https://doi.org/10.1016/j.reia.2025.202584 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Specialized interventions for individuals at risk of violent extremism: Autistic clients' experiences and perspectives / Anna BONNEL ; Christian SAVARD ; Janique JOHNSON-LAFLEUR ; Cécile ROUSSEAU in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202585 Titre : Specialized interventions for individuals at risk of violent extremism: Autistic clients' experiences and perspectives Type de document : Texte imprimé et/ou numérique Auteurs : Anna BONNEL, Auteur ; Christian SAVARD, Auteur ; Janique JOHNSON-LAFLEUR, Auteur ; Cécile ROUSSEAU, Auteur Article en page(s) : 202585 Langues : Anglais (eng) Mots-clés : Violent extremism  Specialized clinic  Patient perspective  Autism  Mental health intervention Index. décimale : PER Périodiques Résumé : Background Knowledge on the experiences of autistic individuals at risk of violent extremism is emerging, but pathways towards radicalization are still unclear and even less is known about pathways towards desistance and the role of mental health practitioners in the process. Method Through interview and survey data, this study presents the perspectives of seven autistic clients enrolled in a specialized clinic for individuals at risk of violent extremism. Results Results highlight the subjective suffering of autistic participants and show that they use the proposed intervention to improve their wellbeing and their relational network. They feel that their use of the services is associated with a relative disengagement in their radical ideas. Mental health and violent extremism services are generally appreciated and perceived as useful when they are available and adapted but accessing them is difficult and non-adapted interventions may be harmful. Conclusions It is therefore essential to include autistic clients in the therapeutic process and to deliver specialized training to clinicians to increase awareness of adapted tools, develop stronger therapeutic alliance, and create a non-judgemental space for autistic clients. En ligne : https://doi.org/10.1016/j.reia.2025.202585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Specialized interventions for individuals at risk of violent extremism: Autistic clients' experiences and perspectives [Texte imprimé et/ou numérique] / Anna BONNEL, Auteur ; Christian SAVARD, Auteur ; Janique JOHNSON-LAFLEUR, Auteur ; Cécile ROUSSEAU, Auteur . - 202585. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202585 Mots-clés : Violent extremism  Specialized clinic  Patient perspective  Autism  Mental health intervention Index. décimale : PER Périodiques Résumé : Background Knowledge on the experiences of autistic individuals at risk of violent extremism is emerging, but pathways towards radicalization are still unclear and even less is known about pathways towards desistance and the role of mental health practitioners in the process. Method Through interview and survey data, this study presents the perspectives of seven autistic clients enrolled in a specialized clinic for individuals at risk of violent extremism. Results Results highlight the subjective suffering of autistic participants and show that they use the proposed intervention to improve their wellbeing and their relational network. They feel that their use of the services is associated with a relative disengagement in their radical ideas. Mental health and violent extremism services are generally appreciated and perceived as useful when they are available and adapted but accessing them is difficult and non-adapted interventions may be harmful. Conclusions It is therefore essential to include autistic clients in the therapeutic process and to deliver specialized training to clinicians to increase awareness of adapted tools, develop stronger therapeutic alliance, and create a non-judgemental space for autistic clients. En ligne : https://doi.org/10.1016/j.reia.2025.202585 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Do I enjoy my friends? Friendship and enjoyment during recess in autistic and non-autistic children / Boya LI ; Yung-Ting TSOU ; Mitra BARATCHI ; Els BLIJD-HOOGEWYS ; Özgür GÜLEN ; Carolien RIEFFE in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202586 Titre : Do I enjoy my friends? Friendship and enjoyment during recess in autistic and non-autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Boya LI, Auteur ; Yung-Ting TSOU, Auteur ; Mitra BARATCHI, Auteur ; Els BLIJD-HOOGEWYS, Auteur ; Özgür GÜLEN, Auteur ; Carolien RIEFFE, Auteur Article en page(s) : 202586 Langues : Anglais (eng) Mots-clés : Peer contact  Social Functioning  School environment  RFID data  Schoolyard Index. décimale : PER Périodiques Résumé : Friendships play a crucial role in children?s well-being and school experiences. This study aimed to gain a better understanding of how autistic and non-autistic children's friendships are related to their enjoyment of the school time spent with peers, i.e. at recess time (school break time). A multi-method approach, including self-reports, peer nominations, and objective measures based on sensor data was used. Forty-five autistic children and 45 non-autistic children from two special education schools participated, aged between 8 to 14 years. Outcomes showed that autistic and non-autistic children did not differ regarding the number of reciprocal and non-reciprocated friends. Yet, autistic children spent less time in contact with their reciprocal friends during recess at the schoolyard compared to their non-autistic peers. Also, while non-autistic pupils spent more time with reciprocal friends than with non-reciprocated ones, this difference was not found among autistic pupils. Notably, spending more time with non-reciprocated friends during recess was related to lower levels of enjoyment in both autistic and non-autistic children. Our findings suggest that autistic children may approach friendships with different priorities. Furthermore, this study underscores the need to consider broader factors beyond reciprocity when assessing children?s social experience at school. En ligne : https://doi.org/10.1016/j.reia.2025.202586 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Do I enjoy my friends? Friendship and enjoyment during recess in autistic and non-autistic children [Texte imprimé et/ou numérique] / Boya LI, Auteur ; Yung-Ting TSOU, Auteur ; Mitra BARATCHI, Auteur ; Els BLIJD-HOOGEWYS, Auteur ; Özgür GÜLEN, Auteur ; Carolien RIEFFE, Auteur . - 202586. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202586 Mots-clés : Peer contact  Social Functioning  School environment  RFID data  Schoolyard Index. décimale : PER Périodiques Résumé : Friendships play a crucial role in children?s well-being and school experiences. This study aimed to gain a better understanding of how autistic and non-autistic children's friendships are related to their enjoyment of the school time spent with peers, i.e. at recess time (school break time). A multi-method approach, including self-reports, peer nominations, and objective measures based on sensor data was used. Forty-five autistic children and 45 non-autistic children from two special education schools participated, aged between 8 to 14 years. Outcomes showed that autistic and non-autistic children did not differ regarding the number of reciprocal and non-reciprocated friends. Yet, autistic children spent less time in contact with their reciprocal friends during recess at the schoolyard compared to their non-autistic peers. Also, while non-autistic pupils spent more time with reciprocal friends than with non-reciprocated ones, this difference was not found among autistic pupils. Notably, spending more time with non-reciprocated friends during recess was related to lower levels of enjoyment in both autistic and non-autistic children. Our findings suggest that autistic children may approach friendships with different priorities. Furthermore, this study underscores the need to consider broader factors beyond reciprocity when assessing children?s social experience at school. En ligne : https://doi.org/10.1016/j.reia.2025.202586 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Cognitive mechanisms underlying deception detection in neurodiverse sample of autistic and non-autistic young adults / Julie A. TRAPANI ; Paula ARGUETA ; Timothy R. LEVINE ; Kim B. SEROTA ; Rajesh K. KANA in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202587 Titre : Cognitive mechanisms underlying deception detection in neurodiverse sample of autistic and non-autistic young adults Type de document : Texte imprimé et/ou numérique Auteurs : Julie A. TRAPANI, Auteur ; Paula ARGUETA, Auteur ; Timothy R. LEVINE, Auteur ; Kim B. SEROTA, Auteur ; Rajesh K. KANA, Auteur Article en page(s) : 202587 Langues : Anglais (eng) Mots-clés : ASD  Deception detection  Executive functioning  Lying Index. décimale : PER Périodiques Résumé : Relatively limited research on deception detection in autism spectrum disorder (ASD) highlights the need to understand the mechanisms underlying this nuanced form of social interaction. The current study investigates the extent to which autistic symptoms may impact deception detection in a neurodiverse sample of autistic and non-autistic adults (n = 77, ages 18-29 years). Participants were assessed for general cognitive ability, executive functioning (EF) skills, self-reported autism symptomatology. In addition, they completed a deception detection task, which involved watching video interviews and judging whether the protagonists in the video were truthful or lying. Interviews represented veracity matched (demeanor aligns with their verbal responses) and veracity mismatched (demeanor does not align with their verbal responses) conditions. Results indicate that while controlling for age, gender, and FSIQ, and the autism spectrum quotient uniquely impacted deception detection ability in the veracity mismatched condition but not in the matched condition. This relationship was moderated by EF skills, such that as the autism symptoms increased in participants with better EF, their accuracy on the mismatched condition also increased significantly. Although weaker, this was also true for participants with poorer EF. These findings suggest that individuals with increased autistic symptoms may have an advantage in some aspects of lie-detection, as they may be less likely to be influenced by misleading social cues. These results provide insights into the mechanisms underlying deception detection in ASD and related weaknesses in social communication. En ligne : https://doi.org/10.1016/j.reia.2025.202587 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Cognitive mechanisms underlying deception detection in neurodiverse sample of autistic and non-autistic young adults [Texte imprimé et/ou numérique] / Julie A. TRAPANI, Auteur ; Paula ARGUETA, Auteur ; Timothy R. LEVINE, Auteur ; Kim B. SEROTA, Auteur ; Rajesh K. KANA, Auteur . - 202587. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202587 Mots-clés : ASD  Deception detection  Executive functioning  Lying Index. décimale : PER Périodiques Résumé : Relatively limited research on deception detection in autism spectrum disorder (ASD) highlights the need to understand the mechanisms underlying this nuanced form of social interaction. The current study investigates the extent to which autistic symptoms may impact deception detection in a neurodiverse sample of autistic and non-autistic adults (n = 77, ages 18-29 years). Participants were assessed for general cognitive ability, executive functioning (EF) skills, self-reported autism symptomatology. In addition, they completed a deception detection task, which involved watching video interviews and judging whether the protagonists in the video were truthful or lying. Interviews represented veracity matched (demeanor aligns with their verbal responses) and veracity mismatched (demeanor does not align with their verbal responses) conditions. Results indicate that while controlling for age, gender, and FSIQ, and the autism spectrum quotient uniquely impacted deception detection ability in the veracity mismatched condition but not in the matched condition. This relationship was moderated by EF skills, such that as the autism symptoms increased in participants with better EF, their accuracy on the mismatched condition also increased significantly. Although weaker, this was also true for participants with poorer EF. These findings suggest that individuals with increased autistic symptoms may have an advantage in some aspects of lie-detection, as they may be less likely to be influenced by misleading social cues. These results provide insights into the mechanisms underlying deception detection in ASD and related weaknesses in social communication. En ligne : https://doi.org/10.1016/j.reia.2025.202587 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

"As immigrants we are all lost in our autism journey": Experiences of raising children with autism, barriers to equal access, and facilitators to accessing autism services among immigrant fathers / Amy MCGEHEE ; Darcy Jones MCMAUGHAN in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202588 Titre : "As immigrants we are all lost in our autism journey": Experiences of raising children with autism, barriers to equal access, and facilitators to accessing autism services among immigrant fathers Type de document : Texte imprimé et/ou numérique Auteurs : Amy MCGEHEE, Auteur ; Darcy Jones MCMAUGHAN, Auteur Article en page(s) : 202588 Langues : Anglais (eng) Mots-clés : Immigrant fathers  Autism  Barriers  Facilitators Index. décimale : PER Périodiques Résumé : Background Immigrant families with autistic children face barriers to autism-related services and supports in the United States. The experiences of immigrant fathers, who play a crucial role in caregiving and decision-making for children with autism, have been largely ignored. This study aims to explore the experiences of immigrant fathers as they navigate autism-related supports and services in the United States. We alternate between identity-first and person-first language to honor the preferences of the autism and autistic community. Methods We used a qualitative interpretive approach and semi-structured interviews to collect and analyze data from 25 first-generation Afghan and Iranian immigrant fathers of autistic children living in the United States. Results Our research revealed stories from immigrant fathers of autistic children who faced stressors related to parenting, bonding with their children, and cultural stigma. These immigrant fathers encountered barriers in accessing autism services, attributed to a lack of social support and the U.S. health care system?s complexities. They emphasized the importance of culturally and linguistically tailored services, which could promote access to necessary supports, suggesting that acculturation plays a role in improving service accessibility. Conclusions In the development and execution of services for autistic children, it is imperative to incorporate considerations for the unique needs of immigrant families, including fathers. Tailoring services to address the cultural and linguistic requirements of these families is crucial. En ligne : https://doi.org/10.1016/j.reia.2025.202588 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] "As immigrants we are all lost in our autism journey": Experiences of raising children with autism, barriers to equal access, and facilitators to accessing autism services among immigrant fathers [Texte imprimé et/ou numérique] / Amy MCGEHEE, Auteur ; Darcy Jones MCMAUGHAN, Auteur . - 202588. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202588 Mots-clés : Immigrant fathers  Autism  Barriers  Facilitators Index. décimale : PER Périodiques Résumé : Background Immigrant families with autistic children face barriers to autism-related services and supports in the United States. The experiences of immigrant fathers, who play a crucial role in caregiving and decision-making for children with autism, have been largely ignored. This study aims to explore the experiences of immigrant fathers as they navigate autism-related supports and services in the United States. We alternate between identity-first and person-first language to honor the preferences of the autism and autistic community. Methods We used a qualitative interpretive approach and semi-structured interviews to collect and analyze data from 25 first-generation Afghan and Iranian immigrant fathers of autistic children living in the United States. Results Our research revealed stories from immigrant fathers of autistic children who faced stressors related to parenting, bonding with their children, and cultural stigma. These immigrant fathers encountered barriers in accessing autism services, attributed to a lack of social support and the U.S. health care system?s complexities. They emphasized the importance of culturally and linguistically tailored services, which could promote access to necessary supports, suggesting that acculturation plays a role in improving service accessibility. Conclusions In the development and execution of services for autistic children, it is imperative to incorporate considerations for the unique needs of immigrant families, including fathers. Tailoring services to address the cultural and linguistic requirements of these families is crucial. En ligne : https://doi.org/10.1016/j.reia.2025.202588 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Investigating sex differences in narrative production of autistic pre-adolescents and adolescents / Charlotte DUMONT ; Philippine GEELHAND ; Mikhail KISSINE in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202589 Titre : Investigating sex differences in narrative production of autistic pre-adolescents and adolescents Type de document : Texte imprimé et/ou numérique Auteurs : Charlotte DUMONT, Auteur ; Philippine GEELHAND, Auteur ; Mikhail KISSINE, Auteur Article en page(s) : 202589 Langues : Anglais (eng) Mots-clés : Autism  Adolescents  Narratives  Sex differences  Coherence  Discourse analysis Index. décimale : PER Périodiques Résumé : Autism is less frequently diagnosed in females, and autistic females are often diagnosed later in life than males. The sex imbalance in autism could be partly due to a communicative advantage in autistic females. To better understand sex differences in language of autistic individuals in late-childhood and adolescence, we compared narrative coherence of autistic females, autistic males, non-autistic females and non-autistic males. Narrative production was elicited from a total of 113 participants (mean age 12.32), based on a wordless picture book. Relying on a thorough coding scheme, we analysed the following categories: story grammar, connectives, references to characters and internal state language. Independently of sex, autistic individuals produced less coherent narratives than non-autistic individuals. Narratives by autistic adolescents included more comments unrelated to the story and more image descriptions, less causal connectives, less internal state language and fewer mentions of main characters. Autistic participants also used more indefinite expressions to refer to story characters than their non-autistic peers. No significant sex differences were found between autistic males and females. Based on a sex-balanced sample, this study confirms prior results on narrative production by autistic individuals and provides new insights into referential expression choices. Importantly, this study finds no evidence for lower atypicality of communicative profiles of autistic females, as measured by a narrative task. En ligne : https://doi.org/10.1016/j.reia.2025.202589 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Investigating sex differences in narrative production of autistic pre-adolescents and adolescents [Texte imprimé et/ou numérique] / Charlotte DUMONT, Auteur ; Philippine GEELHAND, Auteur ; Mikhail KISSINE, Auteur . - 202589. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202589 Mots-clés : Autism  Adolescents  Narratives  Sex differences  Coherence  Discourse analysis Index. décimale : PER Périodiques Résumé : Autism is less frequently diagnosed in females, and autistic females are often diagnosed later in life than males. The sex imbalance in autism could be partly due to a communicative advantage in autistic females. To better understand sex differences in language of autistic individuals in late-childhood and adolescence, we compared narrative coherence of autistic females, autistic males, non-autistic females and non-autistic males. Narrative production was elicited from a total of 113 participants (mean age 12.32), based on a wordless picture book. Relying on a thorough coding scheme, we analysed the following categories: story grammar, connectives, references to characters and internal state language. Independently of sex, autistic individuals produced less coherent narratives than non-autistic individuals. Narratives by autistic adolescents included more comments unrelated to the story and more image descriptions, less causal connectives, less internal state language and fewer mentions of main characters. Autistic participants also used more indefinite expressions to refer to story characters than their non-autistic peers. No significant sex differences were found between autistic males and females. Based on a sex-balanced sample, this study confirms prior results on narrative production by autistic individuals and provides new insights into referential expression choices. Importantly, this study finds no evidence for lower atypicality of communicative profiles of autistic females, as measured by a narrative task. En ligne : https://doi.org/10.1016/j.reia.2025.202589 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Brief Report: Do autistic traits explain lower levels of psychological well-being in non-binary individuals? / Agata GASIOROWSKA ; Magdalena KRÓL in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202590 Titre : Brief Report: Do autistic traits explain lower levels of psychological well-being in non-binary individuals? Type de document : Texte imprimé et/ou numérique Auteurs : Agata GASIOROWSKA, Auteur ; Magdalena KRÓL, Auteur Article en page(s) : 202590 Langues : Anglais (eng) Mots-clés : Non-binary gender identity  Autistic traits  Well-being  Depression  Life satisfaction Index. décimale : PER Périodiques Résumé : The link between autistic traits and gender diversity is well established and it is also known that both autistic and non-binary individuals may demonstrate lower levels of mental health. In this preregistered study, we tested whether autistic traits account for the lower psychological well-being of non-binary people. We compared a group of 135 non-binary individuals with 126 cisgender participants of similar age. We measured their level of autistic traits using the Autism Spectrum Quotient (AQ) questionnaire. We treated psychological well-being as a latent variable constructed from the life satisfaction (SWL, cognitive component) and depression (CESD-R, affective component) scales. We found significantly lower psychological well-being, which included both significantly lower life satisfaction and significantly higher levels of depression, and significantly higher levels of autistic traits in non-binary participants compared to cisgender participants. Further analysis of the indirect effect showed that higher levels of autistic traits accounted for the association between non-binary gender identification and lower psychological well-being, confirming the hypothesis. This finding demonstrates the importance of autism screening in the non-binary population. Furthermore, interventions to improve well-being of the non-binary population should not be limited to working with gender dysphoria, but should also consider areas of functioning typically associated with autism. En ligne : https://doi.org/10.1016/j.reia.2025.202590 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Brief Report: Do autistic traits explain lower levels of psychological well-being in non-binary individuals? [Texte imprimé et/ou numérique] / Agata GASIOROWSKA, Auteur ; Magdalena KRÓL, Auteur . - 202590. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202590 Mots-clés : Non-binary gender identity  Autistic traits  Well-being  Depression  Life satisfaction Index. décimale : PER Périodiques Résumé : The link between autistic traits and gender diversity is well established and it is also known that both autistic and non-binary individuals may demonstrate lower levels of mental health. In this preregistered study, we tested whether autistic traits account for the lower psychological well-being of non-binary people. We compared a group of 135 non-binary individuals with 126 cisgender participants of similar age. We measured their level of autistic traits using the Autism Spectrum Quotient (AQ) questionnaire. We treated psychological well-being as a latent variable constructed from the life satisfaction (SWL, cognitive component) and depression (CESD-R, affective component) scales. We found significantly lower psychological well-being, which included both significantly lower life satisfaction and significantly higher levels of depression, and significantly higher levels of autistic traits in non-binary participants compared to cisgender participants. Further analysis of the indirect effect showed that higher levels of autistic traits accounted for the association between non-binary gender identification and lower psychological well-being, confirming the hypothesis. This finding demonstrates the importance of autism screening in the non-binary population. Furthermore, interventions to improve well-being of the non-binary population should not be limited to working with gender dysphoria, but should also consider areas of functioning typically associated with autism. En ligne : https://doi.org/10.1016/j.reia.2025.202590 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

The two-edged sword of playing a role in daily life: Social camouflaging among adults on the autism spectrum. A thematic analysis / Ari NOWACKI ; Franciszek STEFANEK in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202597 Titre : The two-edged sword of playing a role in daily life: Social camouflaging among adults on the autism spectrum. A thematic analysis Type de document : Texte imprimé et/ou numérique Auteurs : Ari NOWACKI, Auteur ; Franciszek STEFANEK, Auteur Article en page(s) : 202597 Langues : Anglais (eng) Mots-clés : Camouflaging  Overload  Masking  Mimicking  Identity  Self-care Index. décimale : PER Périodiques Résumé : Background Social camouflaging, exhibited by masking or mimicking others, is an autistic individual?s strategy to blend into an environment, often deriving from motivations to "pass" as non-autistic. Many autistic individuals declare camouflaging as source of positive social outcomes and negative internal reactions (e.g., exhaustion, identity confusion). The current study focused on camouflaging?s consequences on one?s biopsychosocial well-being as the research in this area is scarce. Methods The research was conducted based on a qualitative interview, consisting of four thematic areas (imitation, playing a role, sensory overload, internal resources). Participants were enrolled online through groups and neurodivergent communities in Poland, and stationary mental health facilities. 152 adult autistic individuals participated in the study (including 112 women). The data was analyzed using reflexive thematic analysis method, allowing the participants to describe their lived experiences. Results Thematic analysis revealed four recurring themes regarding camouflaging experiences: 1) "camouflage as social blessing", 2) "camouflage as a reason for self-care", 3) "camouflage as a barrier", 4) "camouflage as pushing boundaries". Conclusions The findings suggest a dualistic approach to camouflaging, considered as a two-edged sword: it was reported as helpful in developing a positive image among peers and navigating in a non-autistic world, but also was costly and exhausting, often resulting in diminished self-understanding and internalized stigma. These results may be beneficial in clinical practice as studying functions of camouflaging - not the behavior per se - would allow for its better understanding and help in choosing most adaptive strategies while conducting psychoeducation in this area, including self-care strategies. En ligne : https://doi.org/10.1016/j.reia.2025.202597 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] The two-edged sword of playing a role in daily life: Social camouflaging among adults on the autism spectrum. A thematic analysis [Texte imprimé et/ou numérique] / Ari NOWACKI, Auteur ; Franciszek STEFANEK, Auteur . - 202597. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202597 Mots-clés : Camouflaging  Overload  Masking  Mimicking  Identity  Self-care Index. décimale : PER Périodiques Résumé : Background Social camouflaging, exhibited by masking or mimicking others, is an autistic individual?s strategy to blend into an environment, often deriving from motivations to "pass" as non-autistic. Many autistic individuals declare camouflaging as source of positive social outcomes and negative internal reactions (e.g., exhaustion, identity confusion). The current study focused on camouflaging?s consequences on one?s biopsychosocial well-being as the research in this area is scarce. Methods The research was conducted based on a qualitative interview, consisting of four thematic areas (imitation, playing a role, sensory overload, internal resources). Participants were enrolled online through groups and neurodivergent communities in Poland, and stationary mental health facilities. 152 adult autistic individuals participated in the study (including 112 women). The data was analyzed using reflexive thematic analysis method, allowing the participants to describe their lived experiences. Results Thematic analysis revealed four recurring themes regarding camouflaging experiences: 1) "camouflage as social blessing", 2) "camouflage as a reason for self-care", 3) "camouflage as a barrier", 4) "camouflage as pushing boundaries". Conclusions The findings suggest a dualistic approach to camouflaging, considered as a two-edged sword: it was reported as helpful in developing a positive image among peers and navigating in a non-autistic world, but also was costly and exhausting, often resulting in diminished self-understanding and internalized stigma. These results may be beneficial in clinical practice as studying functions of camouflaging - not the behavior per se - would allow for its better understanding and help in choosing most adaptive strategies while conducting psychoeducation in this area, including self-care strategies. En ligne : https://doi.org/10.1016/j.reia.2025.202597 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Black and White caregivers' experiences with the autism diagnostic process / James D. Lynch ; Kayva KANDARPA ; Suma KOLLA ; Maggie MICHAEL ; Waleia LARKIN ; Lisa L. HUNTER in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202598 Titre : Black and White caregivers' experiences with the autism diagnostic process Type de document : Texte imprimé et/ou numérique Auteurs : James D. Lynch, Auteur ; Kayva KANDARPA, Auteur ; Suma KOLLA, Auteur ; Maggie MICHAEL, Auteur ; Waleia LARKIN, Auteur ; Lisa L. HUNTER, Auteur Article en page(s) : 202598 Langues : Anglais (eng) Mots-clés : Autism spectrum disorders  Qualitative research  Patient satisfaction  Cultural competency  Parents  Racial groups  Diagnosis Index. décimale : PER Périodiques Résumé : Introduction Families commonly report dissatisfaction with the autism diagnostic process, including long waits and lack of follow-up care. Dissatisfaction may be amplified for Black families, who experience racism in the healthcare system and have less access to culturally responsive care. Methods We assessed open text box responses to a survey about caregivers' satisfaction with the diagnostic process of autism spectrum disorder. We recruited Black and White caregivers of children with autism who participated in a developmental evaluation in 2018 at a large midwestern hospital. Out of 174 who completed the satisfaction survey, 71 (46.6 %) caregivers gave one or more qualitative responses in open text boxes (17 [34.0 %] Black families, 54 [43.5 %] White families). Researchers analyzed themes using inductive methods for Black and White families. Results Families who expanded on their Likert responses in open text boxes were less satisfied with the diagnostic process than those who did not. Caregivers described mixed feedback about wait times, their providers, and the information they received. Black families specifically described a power differential between providers and themselves. Discussion Though not representative of all families' experiences, caregivers' qualitative feedback sheds light on important changes that could be implemented to improve families' experiences with the diagnostic process. We highlight several recommendations including family navigation, training in culturally responsive care, and shared decision making. En ligne : https://doi.org/10.1016/j.reia.2025.202598 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Black and White caregivers' experiences with the autism diagnostic process [Texte imprimé et/ou numérique] / James D. Lynch, Auteur ; Kayva KANDARPA, Auteur ; Suma KOLLA, Auteur ; Maggie MICHAEL, Auteur ; Waleia LARKIN, Auteur ; Lisa L. HUNTER, Auteur . - 202598. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202598 Mots-clés : Autism spectrum disorders  Qualitative research  Patient satisfaction  Cultural competency  Parents  Racial groups  Diagnosis Index. décimale : PER Périodiques Résumé : Introduction Families commonly report dissatisfaction with the autism diagnostic process, including long waits and lack of follow-up care. Dissatisfaction may be amplified for Black families, who experience racism in the healthcare system and have less access to culturally responsive care. Methods We assessed open text box responses to a survey about caregivers' satisfaction with the diagnostic process of autism spectrum disorder. We recruited Black and White caregivers of children with autism who participated in a developmental evaluation in 2018 at a large midwestern hospital. Out of 174 who completed the satisfaction survey, 71 (46.6 %) caregivers gave one or more qualitative responses in open text boxes (17 [34.0 %] Black families, 54 [43.5 %] White families). Researchers analyzed themes using inductive methods for Black and White families. Results Families who expanded on their Likert responses in open text boxes were less satisfied with the diagnostic process than those who did not. Caregivers described mixed feedback about wait times, their providers, and the information they received. Black families specifically described a power differential between providers and themselves. Discussion Though not representative of all families' experiences, caregivers' qualitative feedback sheds light on important changes that could be implemented to improve families' experiences with the diagnostic process. We highlight several recommendations including family navigation, training in culturally responsive care, and shared decision making. En ligne : https://doi.org/10.1016/j.reia.2025.202598 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

Intact representation of vocal smile in autism: A reverse correlation approach / Zoé RANTY ; Aynaz ADL ZARRABI ; Frédérique BONNET-BRILHAULT ; Emmanuelle HOUY-DURAND ; Jean-Julien AUCOUTURIER ; Marie GOMOT in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202599 Titre : Intact representation of vocal smile in autism: A reverse correlation approach Type de document : Texte imprimé et/ou numérique Auteurs : Zoé RANTY, Auteur ; Aynaz ADL ZARRABI, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; Emmanuelle HOUY-DURAND, Auteur ; Jean-Julien AUCOUTURIER, Auteur ; Marie GOMOT, Auteur Article en page(s) : 202599 Langues : Anglais (eng) Mots-clés : Autism  Prosody  Vocal smile  Reverse correlation  Internal noise Index. décimale : PER Périodiques Résumé : Atypical emotional prosody production and perception have been reported in autism. However, it is unclear whether these particularities are associated with unusual mental representations of vocal emotions. The objective of the current study was to explore the mental representation of vocal smile in autistic adults. Twenty-nine autistic (ASD) and 29 neurotypical (NT) adults performed an auditory reverse correlation task, that affords the opportunity to extract acoustic features of mental representation and their variability. Most ASD participants (17) based their representation of vocal smile on similar acoustic features as NT participants and no difference in the level of internal noise was observed. However, comparisons between groups revealed a more typical representation in NT than in ASD. Subsequent cluster analysis revealed that the difference of typicality was explained by a small subset of ASD participants displaying different representations. A correlation analysis also revealed that the typicality was positively correlated with the empathetic level within both groups. While most autistic adults have a preserved mental representation of vocal smiles, a subset shows less robust and typical representations, which is linked to lower levels of empathy. This study highlights that the perception of vocal smiles in autism is more nuanced than previously reported, with empathy playing a substantial role in shaping these mental representations. En ligne : https://doi.org/10.1016/j.reia.2025.202599 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] Intact representation of vocal smile in autism: A reverse correlation approach [Texte imprimé et/ou numérique] / Zoé RANTY, Auteur ; Aynaz ADL ZARRABI, Auteur ; Frédérique BONNET-BRILHAULT, Auteur ; Emmanuelle HOUY-DURAND, Auteur ; Jean-Julien AUCOUTURIER, Auteur ; Marie GOMOT, Auteur . - 202599. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202599 Mots-clés : Autism  Prosody  Vocal smile  Reverse correlation  Internal noise Index. décimale : PER Périodiques Résumé : Atypical emotional prosody production and perception have been reported in autism. However, it is unclear whether these particularities are associated with unusual mental representations of vocal emotions. The objective of the current study was to explore the mental representation of vocal smile in autistic adults. Twenty-nine autistic (ASD) and 29 neurotypical (NT) adults performed an auditory reverse correlation task, that affords the opportunity to extract acoustic features of mental representation and their variability. Most ASD participants (17) based their representation of vocal smile on similar acoustic features as NT participants and no difference in the level of internal noise was observed. However, comparisons between groups revealed a more typical representation in NT than in ASD. Subsequent cluster analysis revealed that the difference of typicality was explained by a small subset of ASD participants displaying different representations. A correlation analysis also revealed that the typicality was positively correlated with the empathetic level within both groups. While most autistic adults have a preserved mental representation of vocal smiles, a subset shows less robust and typical representations, which is linked to lower levels of empathy. This study highlights that the perception of vocal smiles in autism is more nuanced than previously reported, with empathy playing a substantial role in shaping these mental representations. En ligne : https://doi.org/10.1016/j.reia.2025.202599 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556

The hidden struggle: Caregivers' commitment, hope, and support needs in toilet training autistic children in Malaysia and Morocco / M. DE VRIES ; N. PETERS-SCHEFFER ; N. A. BINTI ZULFAKER ; N. CHEKKOUH ; M. V. DE JONGE in Research in Autism, 124 (June 2025)  

Public ISBD [article]  inResearch in Autism > 124 (June 2025) . - 202600 Titre : The hidden struggle: Caregivers' commitment, hope, and support needs in toilet training autistic children in Malaysia and Morocco Type de document : Texte imprimé et/ou numérique Auteurs : M. DE VRIES, Auteur ; N. PETERS-SCHEFFER, Auteur ; N. A. BINTI ZULFAKER, Auteur ; N. CHEKKOUH, Auteur ; M. V. DE JONGE, Auteur Article en page(s) : 202600 Langues : Anglais (eng) Mots-clés : Toilet training  Morocco  Malaysia  Autism Index. décimale : PER Périodiques Résumé : Toilet training is challenging for autistic children. This is often overlooked and understudied. This invisible problem comes with challenges for parents, particularly in low-resource countries. This study aimed to address the toilet training practices of autistic children in Malaysia and Morocco. Caregivers' needs, challenges, strategies to overcome these challenges, and cultural factors that might play a role were explored in seven focus groups in Malaysia and Morocco with parents of autistic children. Five key themes emerged from these focus groups: parents' motivation for toilet training, prerequisites for successful toilet training, environmental factors (including cultural aspects), training techniques, and the impact on caregivers. The results showed that toilet training in Malaysia and Morocco was influenced by cultural norms and environmental factors. The experienced challenges impacted parents' mental health. Stigma discouraged but also motivated parents to continue toilet training. Strategies included seeking advice, cultural adaptations, and support from extended family members. For these parents, culturally relevant resources could be tailored and enhanced to improve the toilet training experience. En ligne : https://doi.org/10.1016/j.reia.2025.202600 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556 [article] The hidden struggle: Caregivers' commitment, hope, and support needs in toilet training autistic children in Malaysia and Morocco [Texte imprimé et/ou numérique] / M. DE VRIES, Auteur ; N. PETERS-SCHEFFER, Auteur ; N. A. BINTI ZULFAKER, Auteur ; N. CHEKKOUH, Auteur ; M. V. DE JONGE, Auteur . - 202600. Langues : Anglais (eng) in Research in Autism > 124 (June 2025) . - 202600 Mots-clés : Toilet training  Morocco  Malaysia  Autism Index. décimale : PER Périodiques Résumé : Toilet training is challenging for autistic children. This is often overlooked and understudied. This invisible problem comes with challenges for parents, particularly in low-resource countries. This study aimed to address the toilet training practices of autistic children in Malaysia and Morocco. Caregivers' needs, challenges, strategies to overcome these challenges, and cultural factors that might play a role were explored in seven focus groups in Malaysia and Morocco with parents of autistic children. Five key themes emerged from these focus groups: parents' motivation for toilet training, prerequisites for successful toilet training, environmental factors (including cultural aspects), training techniques, and the impact on caregivers. The results showed that toilet training in Malaysia and Morocco was influenced by cultural norms and environmental factors. The experienced challenges impacted parents' mental health. Stigma discouraged but also motivated parents to continue toilet training. Strategies included seeking advice, cultural adaptations, and support from extended family members. For these parents, culturally relevant resources could be tailored and enhanced to improve the toilet training experience. En ligne : https://doi.org/10.1016/j.reia.2025.202600 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=556