Dépouillements

From humble beginnings: Reflections on 10?years of the Participatory Autism Research Collective / Damian MILTON in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.827-828 Titre : From humble beginnings: Reflections on 10?years of the Participatory Autism Research Collective Type de document : Texte imprimé et/ou numérique Auteurs : Damian MILTON, Auteur ; Allison MOORE, Auteur ; Nicola MARTIN, Auteur Article en page(s) : p.827-828 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251319887 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] From humble beginnings: Reflections on 10?years of the Participatory Autism Research Collective [Texte imprimé et/ou numérique] / Damian MILTON, Auteur ; Allison MOORE, Auteur ; Nicola MARTIN, Auteur . - p.827-828. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.827-828 Index. décimale : PER Périodiques En ligne : https://dx.doi.org/10.1177/13623613251319887 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Adaptive behavior and its differences between children with autism spectrum disorder and social communication disorder / Deepika JAIN in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.829-837 Titre : Adaptive behavior and its differences between children with autism spectrum disorder and social communication disorder Type de document : Texte imprimé et/ou numérique Auteurs : Deepika JAIN, Auteur ; Kawaljit Singh MULTANI, Auteur ; Anjali DODIYA, Auteur ; Urva BENANI, Auteur ; Anand IYER, Auteur Article en page(s) : p.829-837 Langues : Anglais (eng) Mots-clés : adaptive behavior  autism spectrum disorder  neurodevelopmental disorders  social communication disorder  Vineland Adaptive Behavior Scale-III Index. décimale : PER Périodiques Résumé : Adaptive behavior is paramount for independent living and is varyingly impaired in different neurodevelopmental disorders. This study aimed to investigate differences in adaptive behavior between children with autism spectrum disorder and social communication disorder, two conditions characterized by deficits in social communication. Data from 232 children with autism spectrum disorder and 90 children with social communication disorder were analyzed. Adaptive behavior was assessed using the Vineland Adaptive Behavior Scale-III. Diagnoses were made independently using the Diagnostic and Statistical Manual of Mental Disorders, fifth edition criteria and the AIIMS Modified INCLEN Diagnostic Tool-autism spectrum disorder Diagnostic Evaluation for autism spectrum disorder. Statistical analyses included non-parametric tests and generalized linear models to account for age and sex differences. The results showed that children with social communication disorder exhibited better adaptive behavior than those with autism spectrum disorder across all domains (p < 0.001). The most significant differences were observed in the Vineland Adaptive Behavior Scale-III standard scores in communication (autism spectrum disorder: 50.40?+?15.51; social communication disorder: 70.53?+?9.69) and socialization (autism spectrum disorder: 69.46?+?8.77; social communication disorder: 80.07?+?6.16) domains. Age and overall adaptive behavior scores correlated well with group membership (p < 0.001). These findings emphasize the importance of distinguishing between autism spectrum disorder and social communication disorder in clinical practice. The results support the use of adaptive behavior assessments in diagnostic evaluations, highlighting the need for tailored interventions.Lay abstract This study compared adaptive behavior skills between children with autism spectrum disorder and social communication disorder using the Vineland Adaptive Behavior Scale-III. The researchers analyzed data from 232 children with autism spectrum disorder and 90 with social communication disorder. Key findings showed that children with social communication disorder demonstrated significantly better adaptive functioning across all areas compared to those with autism spectrum disorder. The largest differences were seen in communication and social skills. However, both groups still showed impairments compared to typical development, especially in expressive language. The study also found that younger children with lower overall adaptive behavior scores were more likely to be diagnosed with autism spectrum disorder. In addition, there was a higher proportion of males in the social communication disorder group than the autism spectrum disorder group. These results highlight important differences between autism spectrum disorder and social communication disorder, supporting their classification as distinct disorders. The findings emphasize the need for comprehensive adaptive behavior assessment during diagnosis and tailored interventions for each condition. Early identification and targeted support may be particularly crucial for children with autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613251317787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Adaptive behavior and its differences between children with autism spectrum disorder and social communication disorder [Texte imprimé et/ou numérique] / Deepika JAIN, Auteur ; Kawaljit Singh MULTANI, Auteur ; Anjali DODIYA, Auteur ; Urva BENANI, Auteur ; Anand IYER, Auteur . - p.829-837. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.829-837 Mots-clés : adaptive behavior  autism spectrum disorder  neurodevelopmental disorders  social communication disorder  Vineland Adaptive Behavior Scale-III Index. décimale : PER Périodiques Résumé : Adaptive behavior is paramount for independent living and is varyingly impaired in different neurodevelopmental disorders. This study aimed to investigate differences in adaptive behavior between children with autism spectrum disorder and social communication disorder, two conditions characterized by deficits in social communication. Data from 232 children with autism spectrum disorder and 90 children with social communication disorder were analyzed. Adaptive behavior was assessed using the Vineland Adaptive Behavior Scale-III. Diagnoses were made independently using the Diagnostic and Statistical Manual of Mental Disorders, fifth edition criteria and the AIIMS Modified INCLEN Diagnostic Tool-autism spectrum disorder Diagnostic Evaluation for autism spectrum disorder. Statistical analyses included non-parametric tests and generalized linear models to account for age and sex differences. The results showed that children with social communication disorder exhibited better adaptive behavior than those with autism spectrum disorder across all domains (p < 0.001). The most significant differences were observed in the Vineland Adaptive Behavior Scale-III standard scores in communication (autism spectrum disorder: 50.40?+?15.51; social communication disorder: 70.53?+?9.69) and socialization (autism spectrum disorder: 69.46?+?8.77; social communication disorder: 80.07?+?6.16) domains. Age and overall adaptive behavior scores correlated well with group membership (p < 0.001). These findings emphasize the importance of distinguishing between autism spectrum disorder and social communication disorder in clinical practice. The results support the use of adaptive behavior assessments in diagnostic evaluations, highlighting the need for tailored interventions.Lay abstract This study compared adaptive behavior skills between children with autism spectrum disorder and social communication disorder using the Vineland Adaptive Behavior Scale-III. The researchers analyzed data from 232 children with autism spectrum disorder and 90 with social communication disorder. Key findings showed that children with social communication disorder demonstrated significantly better adaptive functioning across all areas compared to those with autism spectrum disorder. The largest differences were seen in communication and social skills. However, both groups still showed impairments compared to typical development, especially in expressive language. The study also found that younger children with lower overall adaptive behavior scores were more likely to be diagnosed with autism spectrum disorder. In addition, there was a higher proportion of males in the social communication disorder group than the autism spectrum disorder group. These results highlight important differences between autism spectrum disorder and social communication disorder, supporting their classification as distinct disorders. The findings emphasize the need for comprehensive adaptive behavior assessment during diagnosis and tailored interventions for each condition. Early identification and targeted support may be particularly crucial for children with autism spectrum disorder. En ligne : https://dx.doi.org/10.1177/13623613251317787 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Parent concerns prior to an assessment of autism spectrum disorder: A systematic review / Dominique SOLIA in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.838-849 Titre : Parent concerns prior to an assessment of autism spectrum disorder: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Dominique SOLIA, Auteur ; Loai ALBARQOUNI, Auteur ; Paulina STEHLIK, Auteur ; Antonia CONROY, Auteur ; Rae THOMAS, Auteur Article en page(s) : p.838-849 Langues : Anglais (eng) Mots-clés : assessment  autism spectrum disorder  child  development  diagnosis  parent concerns Index. décimale : PER Périodiques Résumé : Some parents experience concerns relating to their child?s development and seek clinical assessments for their child?s behaviour. We sought to understand the concerns that led parents to seek a general clinical assessment where some children were diagnosed with autism spectrum disorder. We conducted a systematic review to identify the types of parent concerns that drives parents to seek professional help for their child?s development. Database searching identified 7587 records, where 10 studies (9 cohorts) met our inclusion criteria. Parent reported concerns were categorised using the coding schemes of included studies described as autism spectrum disorder-specific (i.e. communication, social or stereotyped behaviour concerns) or non-autism spectrum disorder-specific concerns (i.e. behaviour/temperament, developmental, medical, sensory or motor concerns). The most reported parental concerns prior to an assessment were speech and language, social and behavioural. Concerns were also reported relating to parent understandings of an autism spectrum disorder diagnosis and the positive and negative implications surrounding the autism spectrum disorder diagnosis. Data were reported descriptively due to variations in study design and data analyses. Additional rigorous research on parent concerns prior to a diagnostic autism spectrum disorder assessment is required to capture what drives parents to seek professional help to support their child?s development.Prospero registration number: CRD42022307436Lay abstract When a parent has concerns about their child?s development, there is a lag between seeking and receiving health information. When waiting, parents may speculate about a possible diagnosis of autism spectrum disorder, but it is unclear what types of concerns might drive this speculation. To determine the types of concerns parents may have before their child is assessed, we conducted a systematic review that explored parent concerns before an autism spectrum disorder assessment. Our aim was to determine the types of concerns that might drive parents to seek medical help for their child?s development. Four online databases were searched and 10 articles reporting on 9 studies matched our inclusion criteria. In these cohorts, parents reported autism spectrum disorder-specific concerns (i.e. communication, social or stereotyped behaviour concerns) or non-autism spectrum disorder-specific concerns (i.e. behaviour/temperament, developmental, medical, sensory or motor concerns). Some parents also reported on their positive and negative thoughts of a potential autism spectrum disorder diagnosis and what the diagnosis would mean to them. The most reported parental concerns before an assessment were speech and language, social and behavioural. To understand the types of concerns parents have once they seek medical help, further research into how families speculated a possible autism spectrum disorder is recommended. En ligne : https://dx.doi.org/10.1177/13623613241287573 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Parent concerns prior to an assessment of autism spectrum disorder: A systematic review [Texte imprimé et/ou numérique] / Dominique SOLIA, Auteur ; Loai ALBARQOUNI, Auteur ; Paulina STEHLIK, Auteur ; Antonia CONROY, Auteur ; Rae THOMAS, Auteur . - p.838-849. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.838-849 Mots-clés : assessment  autism spectrum disorder  child  development  diagnosis  parent concerns Index. décimale : PER Périodiques Résumé : Some parents experience concerns relating to their child?s development and seek clinical assessments for their child?s behaviour. We sought to understand the concerns that led parents to seek a general clinical assessment where some children were diagnosed with autism spectrum disorder. We conducted a systematic review to identify the types of parent concerns that drives parents to seek professional help for their child?s development. Database searching identified 7587 records, where 10 studies (9 cohorts) met our inclusion criteria. Parent reported concerns were categorised using the coding schemes of included studies described as autism spectrum disorder-specific (i.e. communication, social or stereotyped behaviour concerns) or non-autism spectrum disorder-specific concerns (i.e. behaviour/temperament, developmental, medical, sensory or motor concerns). The most reported parental concerns prior to an assessment were speech and language, social and behavioural. Concerns were also reported relating to parent understandings of an autism spectrum disorder diagnosis and the positive and negative implications surrounding the autism spectrum disorder diagnosis. Data were reported descriptively due to variations in study design and data analyses. Additional rigorous research on parent concerns prior to a diagnostic autism spectrum disorder assessment is required to capture what drives parents to seek professional help to support their child?s development.Prospero registration number: CRD42022307436Lay abstract When a parent has concerns about their child?s development, there is a lag between seeking and receiving health information. When waiting, parents may speculate about a possible diagnosis of autism spectrum disorder, but it is unclear what types of concerns might drive this speculation. To determine the types of concerns parents may have before their child is assessed, we conducted a systematic review that explored parent concerns before an autism spectrum disorder assessment. Our aim was to determine the types of concerns that might drive parents to seek medical help for their child?s development. Four online databases were searched and 10 articles reporting on 9 studies matched our inclusion criteria. In these cohorts, parents reported autism spectrum disorder-specific concerns (i.e. communication, social or stereotyped behaviour concerns) or non-autism spectrum disorder-specific concerns (i.e. behaviour/temperament, developmental, medical, sensory or motor concerns). Some parents also reported on their positive and negative thoughts of a potential autism spectrum disorder diagnosis and what the diagnosis would mean to them. The most reported parental concerns before an assessment were speech and language, social and behavioural. To understand the types of concerns parents have once they seek medical help, further research into how families speculated a possible autism spectrum disorder is recommended. En ligne : https://dx.doi.org/10.1177/13623613241287573 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Symptoms of constipation in autistic adults: A systematic literature review on diagnostic methods and presence of actual symptoms / Wynn SMITH in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.850-858 Titre : Symptoms of constipation in autistic adults: A systematic literature review on diagnostic methods and presence of actual symptoms Type de document : Texte imprimé et/ou numérique Auteurs : Wynn SMITH, Auteur ; Charlotte DESPREZ, Auteur Article en page(s) : p.850-858 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorder  constipation  diagnosis  symptoms Index. décimale : PER Périodiques Résumé : Autism significantly impacts how individuals interact, communicate and perceive the world. Gastrointestinal disturbances, particularly constipation, are prevalent among autistic people, affecting their overall well-being. However, to the best of our knowledge, no specific guidelines are currently available regarding the diagnosis of constipation among this population. This systematic review investigates various diagnostic methods employed in studies addressing constipation among autistic adults. It aims to identify discrepancies between the symptoms reported based on diagnostic methods and the actual symptoms experienced by this population. Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines, nine studies conducted between 2012 and 2022 were included, revealing a predominance of non-prospective designs and an emphasis on children and adolescents. Diagnostic tools varied, including standardized criteria, questionnaires and observation. The prevalence of symptoms not outlined in the official criteria, such as sleep disorders and challenging behaviours, emerged as crucial aspects requiring comprehensive assessment in autistic people experiencing constipation. The study highlights the need for age-specific research in order to develop tailored assessment tools to improve diagnostic accuracy and enhance the overall management of constipation in autistic adults. Recognizing the diverse manifestations of constipation in this population is crucial for developing nuanced interventions and advancing healthcare strategies.Lay abstract Autistic people often experience gastrointestinal issues, with constipation being one of the most common concerns. However, there are currently no specific guidelines for diagnosing constipation in autistic adults. This makes it harder for healthcare providers to identify and treat the condition effectively. In this review, we analysed nine studies from 2012 to 2022 to understand the various methods used to diagnose constipation in autistic adults and their symptoms. We found that most studies used different approaches, such as questionnaires, standardized criteria, or observation. In addition, many studies focused on children and adolescents, leaving a gap in understanding symptoms in autistic adults. The studies highlighted symptoms that were not covered by official diagnostic criteria, such as sleep disturbances and challenging behaviours. This indicates a need for healthcare providers to consider a broader range of signs when diagnosing constipation in autistic people. Our review suggests that more research focusing on adults is needed to create tailored tools for diagnosing constipation in autistic adults. This will help improve accuracy and ensure better treatment outcomes. Understanding the unique ways constipation can present in autistic people is crucial for developing effective care strategies. For healthcare providers, this review emphasizes the importance of recognizing a wide range of symptoms when assessing constipation in autistic people. For policymakers, it highlights the need for age-specific guidelines to ensure that autistic adults receive the care and support they need. Further research will help refine these diagnostic tools and ultimately lead to better healthcare practices for autistic people. En ligne : https://dx.doi.org/10.1177/13623613241289114 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Symptoms of constipation in autistic adults: A systematic literature review on diagnostic methods and presence of actual symptoms [Texte imprimé et/ou numérique] / Wynn SMITH, Auteur ; Charlotte DESPREZ, Auteur . - p.850-858. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.850-858 Mots-clés : adults  autism spectrum disorder  constipation  diagnosis  symptoms Index. décimale : PER Périodiques Résumé : Autism significantly impacts how individuals interact, communicate and perceive the world. Gastrointestinal disturbances, particularly constipation, are prevalent among autistic people, affecting their overall well-being. However, to the best of our knowledge, no specific guidelines are currently available regarding the diagnosis of constipation among this population. This systematic review investigates various diagnostic methods employed in studies addressing constipation among autistic adults. It aims to identify discrepancies between the symptoms reported based on diagnostic methods and the actual symptoms experienced by this population. Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines, nine studies conducted between 2012 and 2022 were included, revealing a predominance of non-prospective designs and an emphasis on children and adolescents. Diagnostic tools varied, including standardized criteria, questionnaires and observation. The prevalence of symptoms not outlined in the official criteria, such as sleep disorders and challenging behaviours, emerged as crucial aspects requiring comprehensive assessment in autistic people experiencing constipation. The study highlights the need for age-specific research in order to develop tailored assessment tools to improve diagnostic accuracy and enhance the overall management of constipation in autistic adults. Recognizing the diverse manifestations of constipation in this population is crucial for developing nuanced interventions and advancing healthcare strategies.Lay abstract Autistic people often experience gastrointestinal issues, with constipation being one of the most common concerns. However, there are currently no specific guidelines for diagnosing constipation in autistic adults. This makes it harder for healthcare providers to identify and treat the condition effectively. In this review, we analysed nine studies from 2012 to 2022 to understand the various methods used to diagnose constipation in autistic adults and their symptoms. We found that most studies used different approaches, such as questionnaires, standardized criteria, or observation. In addition, many studies focused on children and adolescents, leaving a gap in understanding symptoms in autistic adults. The studies highlighted symptoms that were not covered by official diagnostic criteria, such as sleep disturbances and challenging behaviours. This indicates a need for healthcare providers to consider a broader range of signs when diagnosing constipation in autistic people. Our review suggests that more research focusing on adults is needed to create tailored tools for diagnosing constipation in autistic adults. This will help improve accuracy and ensure better treatment outcomes. Understanding the unique ways constipation can present in autistic people is crucial for developing effective care strategies. For healthcare providers, this review emphasizes the importance of recognizing a wide range of symptoms when assessing constipation in autistic people. For policymakers, it highlights the need for age-specific guidelines to ensure that autistic adults receive the care and support they need. Further research will help refine these diagnostic tools and ultimately lead to better healthcare practices for autistic people. En ligne : https://dx.doi.org/10.1177/13623613241289114 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Methods to reduce fraudulent participation and highlight autistic voices in research / Meghan E CAREY in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.859-867 Titre : Methods to reduce fraudulent participation and highlight autistic voices in research Type de document : Texte imprimé et/ou numérique Auteurs : Meghan E CAREY, Auteur ; Kiley J MCLEAN, Auteur ; Kyle CHVASTA, Auteur ; Ashley DE MARCHENA, Auteur ; Anne M ROUX, Auteur Article en page(s) : p.859-867 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  bot  fraud  methods  online research  qualitative research  research participation  scam Index. décimale : PER Périodiques Résumé : Alongside the rise in online qualitative research, fraudulent representation of research participants is increasing, and current strategies to address this issue within studies of non-neurodiverse samples may exclude autistic voices. Seeking to reduce fraudulent or "scammer" participation in our focus group study, and increase data validity and expenditure efficiency, we implemented strategies suggested in the literature and tested additional strategies. This research adds to the growing conversation around best practices for reducing scammers in autism research using online methods by (1) providing data evaluating the utility of existing strategies; (2) testing emerging strategies; and (3) discussing ethical dilemmas involved in addressing scammers in studies. We received over 200 expressions of interest and the established strategies suggested in the literature plus emerging strategies proved critical for mitigating the enrollment of scammers in focus groups. Protecting the integrity of data about human subjects from fraud is essential for rigorous autism research; trustworthy conclusions cannot be otherwise drawn from analysis. However, the strategies inherently require subjective decision-making that could systematically exclude participants with more limited or atypical communication and result in unfair subject selection. Procedures we recommend incur resources and are time consuming but are beneficial to ensure data integrity and inclusivity.Lay abstract Over the last decade, especially since the pandemic, more research has been happening online. Conducting research online can create opportunities to include autistic people across the world and make our studies more diverse. However, conducting research online had led to scammers, or people pretending to be autistic, participating in autism research studies. Strategies to stop scammers may accidentally leave out autistic people who have difficulty with processing time and open-ended questions. We tried out documented strategies to stop scammers from participating in autism research. We also tested new strategies to understand how helpful they are. Using these strategies, we suspected over 100 people who wanted to participate were scammers and did not invite them to participate. As researchers, we must ensure we stop scammers from participating in our studies. It?s important to highlight autistic voices and guarantee we get accurate results. However, the strategies to identify scammers may also leave out autistic people who have communication differences. This is unfair and could also make our results less reliable. The existing and new strategies to stop scammers take a lot of time and resources but they?re worth it to make sure our data are reliable, and include only autistic voices. En ligne : https://dx.doi.org/10.1177/13623613241298037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Methods to reduce fraudulent participation and highlight autistic voices in research [Texte imprimé et/ou numérique] / Meghan E CAREY, Auteur ; Kiley J MCLEAN, Auteur ; Kyle CHVASTA, Auteur ; Ashley DE MARCHENA, Auteur ; Anne M ROUX, Auteur . - p.859-867. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.859-867 Mots-clés : autism spectrum disorders  bot  fraud  methods  online research  qualitative research  research participation  scam Index. décimale : PER Périodiques Résumé : Alongside the rise in online qualitative research, fraudulent representation of research participants is increasing, and current strategies to address this issue within studies of non-neurodiverse samples may exclude autistic voices. Seeking to reduce fraudulent or "scammer" participation in our focus group study, and increase data validity and expenditure efficiency, we implemented strategies suggested in the literature and tested additional strategies. This research adds to the growing conversation around best practices for reducing scammers in autism research using online methods by (1) providing data evaluating the utility of existing strategies; (2) testing emerging strategies; and (3) discussing ethical dilemmas involved in addressing scammers in studies. We received over 200 expressions of interest and the established strategies suggested in the literature plus emerging strategies proved critical for mitigating the enrollment of scammers in focus groups. Protecting the integrity of data about human subjects from fraud is essential for rigorous autism research; trustworthy conclusions cannot be otherwise drawn from analysis. However, the strategies inherently require subjective decision-making that could systematically exclude participants with more limited or atypical communication and result in unfair subject selection. Procedures we recommend incur resources and are time consuming but are beneficial to ensure data integrity and inclusivity.Lay abstract Over the last decade, especially since the pandemic, more research has been happening online. Conducting research online can create opportunities to include autistic people across the world and make our studies more diverse. However, conducting research online had led to scammers, or people pretending to be autistic, participating in autism research studies. Strategies to stop scammers may accidentally leave out autistic people who have difficulty with processing time and open-ended questions. We tried out documented strategies to stop scammers from participating in autism research. We also tested new strategies to understand how helpful they are. Using these strategies, we suspected over 100 people who wanted to participate were scammers and did not invite them to participate. As researchers, we must ensure we stop scammers from participating in our studies. It?s important to highlight autistic voices and guarantee we get accurate results. However, the strategies to identify scammers may also leave out autistic people who have communication differences. This is unfair and could also make our results less reliable. The existing and new strategies to stop scammers take a lot of time and resources but they?re worth it to make sure our data are reliable, and include only autistic voices. En ligne : https://dx.doi.org/10.1177/13623613241298037 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Factors underlying differences in knowledge, explicit stigma and implicit biases towards autism across Hong Kong, the United Kingdom and the United States / Yulin CHENG in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.868-883 Titre : Factors underlying differences in knowledge, explicit stigma and implicit biases towards autism across Hong Kong, the United Kingdom and the United States Type de document : Texte imprimé et/ou numérique Auteurs : Yulin CHENG, Auteur ; Patrick DWYER, Auteur ; Connor Tom KEATING, Auteur Article en page(s) : p.868-883 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  collectivism  cross-cultural  culture  environmental factors  explicit attitudes  implicit biases  individualism  knowledge  stigma Index. décimale : PER Périodiques Résumé : A growing literature suggests that there is cross-cultural variation in levels of autism-related stigma, which may partially be explained by differences in cultural orientation or autism-related knowledge between countries. This literature has relied heavily on self-report measures of explicit attitudes towards autism; little research has examined implicit biases, and whether these implicit biases vary across cultures. Thus, here we had two aims: (1) to assess the contribution of knowledge and cultural orientation to both explicit stigma and implicit biases, and (2) to compare autism-related knowledge, explicit stigma, and implicit biases across university students in Hong Kong (n = 119), the United Kingdom (n = 120), and the United States (n = 122). Replicating prior work, we found that explicit stigma was predicted by less accurate knowledge, lower horizontal collectivism, greater vertical individualism, and higher implicit biases. Implicit biases were directly predicted by age and explicit stigma, and indirectly predicted by vertical individualism (positively) and horizontal collectivism (negatively) via explicit stigma. Knowledge and explicit stigma differed across countries, even after accounting for covariates: students in Hong Kong displayed less accurate knowledge, and higher explicit stigma towards autism, than those in the United Kingdom and United States. However, implicit biases did not differ between countries.Lay abstract Attitudes towards autism vary across countries. Some of this variation could reflect differences in cultural values across countries, or differences in how much people know about autism. Until now, most research on this topic has asked people directly about their attitudes towards interacting with autistic people. As a result, we understand little about why some people unconsciously hold negative attitudes towards autism, and whether these unconscious attitudes vary across countries. We studied explicit attitudes (willingness to interact), implicit attitudes (unconscious beliefs), knowledge about autism, and cultural values in university students from Hong Kong, the United Kingdom and the United States. We found that people were less willing to interact with autistic people if they knew less about autism, aligned with a competitive and hierarchical society ('vertical individualism'), did not see themselves as part of a collective whose members are equal (less 'horizontal collectivism'), and if they unconcsciously associated autism with negative attributes. Students in Hong Kong were less willing to interact with autistic people and had less understanding of autism compared to those in the United Kingdom and the United States. Unconscious biases did not differ across countries. Our findings highlight the need to combat misconceptions about autism to improve attitudes towards autistic people, especially in Hong Kong. Unfortunately, our results suggest that acquiring more accurate knowledge may not be sufficient to alter unconscious biases. Further research is needed to determine the factors underlying unconscious biases. En ligne : https://dx.doi.org/10.1177/13623613241290565 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Factors underlying differences in knowledge, explicit stigma and implicit biases towards autism across Hong Kong, the United Kingdom and the United States [Texte imprimé et/ou numérique] / Yulin CHENG, Auteur ; Patrick DWYER, Auteur ; Connor Tom KEATING, Auteur . - p.868-883. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.868-883 Mots-clés : autism spectrum disorders  collectivism  cross-cultural  culture  environmental factors  explicit attitudes  implicit biases  individualism  knowledge  stigma Index. décimale : PER Périodiques Résumé : A growing literature suggests that there is cross-cultural variation in levels of autism-related stigma, which may partially be explained by differences in cultural orientation or autism-related knowledge between countries. This literature has relied heavily on self-report measures of explicit attitudes towards autism; little research has examined implicit biases, and whether these implicit biases vary across cultures. Thus, here we had two aims: (1) to assess the contribution of knowledge and cultural orientation to both explicit stigma and implicit biases, and (2) to compare autism-related knowledge, explicit stigma, and implicit biases across university students in Hong Kong (n = 119), the United Kingdom (n = 120), and the United States (n = 122). Replicating prior work, we found that explicit stigma was predicted by less accurate knowledge, lower horizontal collectivism, greater vertical individualism, and higher implicit biases. Implicit biases were directly predicted by age and explicit stigma, and indirectly predicted by vertical individualism (positively) and horizontal collectivism (negatively) via explicit stigma. Knowledge and explicit stigma differed across countries, even after accounting for covariates: students in Hong Kong displayed less accurate knowledge, and higher explicit stigma towards autism, than those in the United Kingdom and United States. However, implicit biases did not differ between countries.Lay abstract Attitudes towards autism vary across countries. Some of this variation could reflect differences in cultural values across countries, or differences in how much people know about autism. Until now, most research on this topic has asked people directly about their attitudes towards interacting with autistic people. As a result, we understand little about why some people unconsciously hold negative attitudes towards autism, and whether these unconscious attitudes vary across countries. We studied explicit attitudes (willingness to interact), implicit attitudes (unconscious beliefs), knowledge about autism, and cultural values in university students from Hong Kong, the United Kingdom and the United States. We found that people were less willing to interact with autistic people if they knew less about autism, aligned with a competitive and hierarchical society ('vertical individualism'), did not see themselves as part of a collective whose members are equal (less 'horizontal collectivism'), and if they unconcsciously associated autism with negative attributes. Students in Hong Kong were less willing to interact with autistic people and had less understanding of autism compared to those in the United Kingdom and the United States. Unconscious biases did not differ across countries. Our findings highlight the need to combat misconceptions about autism to improve attitudes towards autistic people, especially in Hong Kong. Unfortunately, our results suggest that acquiring more accurate knowledge may not be sufficient to alter unconscious biases. Further research is needed to determine the factors underlying unconscious biases. En ligne : https://dx.doi.org/10.1177/13623613241290565 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Prevalence, incidence, and characteristics of autism spectrum disorder among children in Beijing, China / Yanan ZHAO in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.884-895 Titre : Prevalence, incidence, and characteristics of autism spectrum disorder among children in Beijing, China Type de document : Texte imprimé et/ou numérique Auteurs : Yanan ZHAO, Auteur ; Feng LU, Auteur ; Ruoxi DING, Auteur ; Dawei ZHU, Auteur ; Rong ZHANG, Auteur ; Siwei SUN, Auteur ; Ping HE, Auteur ; Xiaoying ZHENG, Auteur Article en page(s) : p.884-895 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  co-occurring conditions  pre-school children  prevalence Index. décimale : PER Périodiques Résumé : The prevalence of autism spectrum disorder in the world has increased over the last decade, but the prevalence, incidence, and characteristics of autism spectrum disorder in China were not well understood. Using administrative data, we aimed to estimate the prevalence and incidence of autism spectrum disorder and describe the co-occurring conditions in preschoolers in Beijing, China. The study focused on 0- to 6-year-old children with registered residence in Beijing, using cohorts derived from the Beijing Municipal Health Big Data and Policy Research Center. We conducted a detailed analysis of autism spectrum disorder prevalence among the cohorts, comparing estimates across 2 to 3?years for the same birth cohort (4?years, 5?years). For the 6-year-old cohort, we obtained 1-year prevalence estimates in 2021. Annual incidence rate was also calculated. The prevalence in 6-year-old children in 2021 was 10.5 per 1000 (95% confidence interval = 9.7-10.9). The male-to-female prevalence ratio was 4.3. Between 40% and 43% of preschool children had at least one co-occurring condition. The incidence for children 6?years old and under was 0.11% in 2019 and increased to 0.18% in 2021. Both the prevalence and incidence rates in Beijing were comparable to those reported in developed countries.Lay abstract It is the first study to explore the prevalence, incidence, and co-occurring conditions of autism spectrum disorder for the preschoolers in China. The prevalence and incidence of autism spectrum disorder has increased in recent decades. Autism spectrum disorder has become an important public concern worldwide. In this study, all hospital confirmed cases had an associated diagnosis (International Classification of Diseases, 10th revision (ICD-10) codes: F84.0, 84.5, F84.9). In total, 4457 children aged 4-6?years were identified as having autism spectrum disorder. In 2021, 1 in 95 children aged 6?years, 1 in 115 children aged 5?years, and 1 in 130 children aged 4?years were estimated to have autism spectrum disorder in Beijing. The incidence was 0.11% in 2019 and increased to 0.18% in 2021. There has been a great emphasis on the importance of early autism spectrum disorder diagnosis in large cities in China. En ligne : https://dx.doi.org/10.1177/13623613241290388 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Prevalence, incidence, and characteristics of autism spectrum disorder among children in Beijing, China [Texte imprimé et/ou numérique] / Yanan ZHAO, Auteur ; Feng LU, Auteur ; Ruoxi DING, Auteur ; Dawei ZHU, Auteur ; Rong ZHANG, Auteur ; Siwei SUN, Auteur ; Ping HE, Auteur ; Xiaoying ZHENG, Auteur . - p.884-895. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.884-895 Mots-clés : autism spectrum disorders  diagnosis  co-occurring conditions  pre-school children  prevalence Index. décimale : PER Périodiques Résumé : The prevalence of autism spectrum disorder in the world has increased over the last decade, but the prevalence, incidence, and characteristics of autism spectrum disorder in China were not well understood. Using administrative data, we aimed to estimate the prevalence and incidence of autism spectrum disorder and describe the co-occurring conditions in preschoolers in Beijing, China. The study focused on 0- to 6-year-old children with registered residence in Beijing, using cohorts derived from the Beijing Municipal Health Big Data and Policy Research Center. We conducted a detailed analysis of autism spectrum disorder prevalence among the cohorts, comparing estimates across 2 to 3?years for the same birth cohort (4?years, 5?years). For the 6-year-old cohort, we obtained 1-year prevalence estimates in 2021. Annual incidence rate was also calculated. The prevalence in 6-year-old children in 2021 was 10.5 per 1000 (95% confidence interval = 9.7-10.9). The male-to-female prevalence ratio was 4.3. Between 40% and 43% of preschool children had at least one co-occurring condition. The incidence for children 6?years old and under was 0.11% in 2019 and increased to 0.18% in 2021. Both the prevalence and incidence rates in Beijing were comparable to those reported in developed countries.Lay abstract It is the first study to explore the prevalence, incidence, and co-occurring conditions of autism spectrum disorder for the preschoolers in China. The prevalence and incidence of autism spectrum disorder has increased in recent decades. Autism spectrum disorder has become an important public concern worldwide. In this study, all hospital confirmed cases had an associated diagnosis (International Classification of Diseases, 10th revision (ICD-10) codes: F84.0, 84.5, F84.9). In total, 4457 children aged 4-6?years were identified as having autism spectrum disorder. In 2021, 1 in 95 children aged 6?years, 1 in 115 children aged 5?years, and 1 in 130 children aged 4?years were estimated to have autism spectrum disorder in Beijing. The incidence was 0.11% in 2019 and increased to 0.18% in 2021. There has been a great emphasis on the importance of early autism spectrum disorder diagnosis in large cities in China. En ligne : https://dx.doi.org/10.1177/13623613241290388 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

The Brief Observation of Symptoms of Autism: Validation study in a Latin American sample / Nora GRANANA in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.896-906 Titre : The Brief Observation of Symptoms of Autism: Validation study in a Latin American sample Type de document : Texte imprimé et/ou numérique Auteurs : Nora GRANANA, Auteur ; Francisco ASTORINO, Auteur ; Alba RICHAUDEAU, Auteur ; Lucas COSTA, Auteur ; Elena FERNANDEZ DE CARRERA, Auteur ; Valeria NANCLARES, Auteur ; Kristin SOHL, Auteur ; null NULL, Auteur Article en page(s) : p.896-906 Langues : Anglais (eng) Mots-clés : ADOS  American  assessment  autism  BOSA  diagnostic  Latin Index. décimale : PER Périodiques Résumé : Autism spectrum disorder presents as a multifaceted condition characterized by pronounced impairments in social communication and behavioral patterns. Diagnosis hinges upon the expertise of clinicians, comprehensive developmental history, and observation of specific behavioral markers. However, in low-income countries, access to screening tools and standardized diagnostic tests for autism spectrum disorder remains profoundly limited. Moreover, the COVID-19 pandemic has exacerbated these challenges, rendering diagnostic protocols impractical. In response to these barriers, the Brief Observation of Symptoms of Autism instrument was developed to facilitate assessments via telehealth during the pandemic. This study aims to validate the use of the Brief Observation of Symptoms of Autism within two Latin American countries, Argentina, and Chile. A cohort of 313 spanning various age groups underwent examination. Psychometric properties of each Brief Observation of Symptoms of Autism module were scrutinized, including sensitivity and specificity against the recommended University of California at Los Angeles cutoffs. Receiver operating characteristic curve analysis yielded credible sensitivity and specificity scores for each module. Confirmatory factor analysis supported a favorable fit across modules, employing a 2-factor model distinguishing Social Affect and Restricted, Repetitive Behaviors. Preliminary findings affirm the validity of the Brief Observation of Symptoms of Autism as an effective diagnostic tool within the Latin American population. Furthermore, its potential extends beyond the pandemic, promising support in the future.Lay abstract Autism spectrum disorder is a complex condition associated with significant impairments in social communication and behavioral functioning. Diagnosis is dependent on clinician expertise, gathering of developmental history, and observation of specific behaviors. The suggested protocols include tools rendered invalid during the pandemic, which created significant barriers for diagnostic assessments. Furthermore, there are additional barriers in low-income countries in access to screening tools and standardized diagnostic tests for autism spectrum disorders that were only exacerbated during COVID-19. The Brief Observation of Symptoms of Autism instrument was developed to improve access to diagnostic assessment via telehealth during this time. The current study sought to validate the use of the Brief Observation of Symptoms of Autism within two Latin American countries. A sample of 313 children and adults from Argentina and Chile were examined. Results showed valid sensitivity and specificity scores with good fit across modules using two factors (i.e. Social Affect and Restricted, Repetitive Behaviors). Preliminary results of the current study demonstrated that the Brief Observation of Symptoms of Autism is a valid instrument for Latin American population and shows promise to be used beyond the pandemic to ease the diagnostic process. This is a collaborative work with BRINCAR Parent Association, who defined the need in our country to run the validation of Brief Observation of Symptoms of Autism and gave us support as the stakeholders at Lancet Commission. En ligne : https://dx.doi.org/10.1177/13623613241291098 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] The Brief Observation of Symptoms of Autism: Validation study in a Latin American sample [Texte imprimé et/ou numérique] / Nora GRANANA, Auteur ; Francisco ASTORINO, Auteur ; Alba RICHAUDEAU, Auteur ; Lucas COSTA, Auteur ; Elena FERNANDEZ DE CARRERA, Auteur ; Valeria NANCLARES, Auteur ; Kristin SOHL, Auteur ; null NULL, Auteur . - p.896-906. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.896-906 Mots-clés : ADOS  American  assessment  autism  BOSA  diagnostic  Latin Index. décimale : PER Périodiques Résumé : Autism spectrum disorder presents as a multifaceted condition characterized by pronounced impairments in social communication and behavioral patterns. Diagnosis hinges upon the expertise of clinicians, comprehensive developmental history, and observation of specific behavioral markers. However, in low-income countries, access to screening tools and standardized diagnostic tests for autism spectrum disorder remains profoundly limited. Moreover, the COVID-19 pandemic has exacerbated these challenges, rendering diagnostic protocols impractical. In response to these barriers, the Brief Observation of Symptoms of Autism instrument was developed to facilitate assessments via telehealth during the pandemic. This study aims to validate the use of the Brief Observation of Symptoms of Autism within two Latin American countries, Argentina, and Chile. A cohort of 313 spanning various age groups underwent examination. Psychometric properties of each Brief Observation of Symptoms of Autism module were scrutinized, including sensitivity and specificity against the recommended University of California at Los Angeles cutoffs. Receiver operating characteristic curve analysis yielded credible sensitivity and specificity scores for each module. Confirmatory factor analysis supported a favorable fit across modules, employing a 2-factor model distinguishing Social Affect and Restricted, Repetitive Behaviors. Preliminary findings affirm the validity of the Brief Observation of Symptoms of Autism as an effective diagnostic tool within the Latin American population. Furthermore, its potential extends beyond the pandemic, promising support in the future.Lay abstract Autism spectrum disorder is a complex condition associated with significant impairments in social communication and behavioral functioning. Diagnosis is dependent on clinician expertise, gathering of developmental history, and observation of specific behaviors. The suggested protocols include tools rendered invalid during the pandemic, which created significant barriers for diagnostic assessments. Furthermore, there are additional barriers in low-income countries in access to screening tools and standardized diagnostic tests for autism spectrum disorders that were only exacerbated during COVID-19. The Brief Observation of Symptoms of Autism instrument was developed to improve access to diagnostic assessment via telehealth during this time. The current study sought to validate the use of the Brief Observation of Symptoms of Autism within two Latin American countries. A sample of 313 children and adults from Argentina and Chile were examined. Results showed valid sensitivity and specificity scores with good fit across modules using two factors (i.e. Social Affect and Restricted, Repetitive Behaviors). Preliminary results of the current study demonstrated that the Brief Observation of Symptoms of Autism is a valid instrument for Latin American population and shows promise to be used beyond the pandemic to ease the diagnostic process. This is a collaborative work with BRINCAR Parent Association, who defined the need in our country to run the validation of Brief Observation of Symptoms of Autism and gave us support as the stakeholders at Lancet Commission. En ligne : https://dx.doi.org/10.1177/13623613241291098 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Autism disproportionality in racially and ethnically minoritized and girl students in schools / Parker S BECKMAN in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.907-919 Titre : Autism disproportionality in racially and ethnically minoritized and girl students in schools Type de document : Texte imprimé et/ou numérique Auteurs : Parker S BECKMAN, Auteur ; Maryellen BRUNSON MCCLAIN, Auteur ; Bryn HARRIS, Auteur ; Alexa BROWNELL, Auteur ; Britany M BEAUCHESNE, Auteur ; Gwendolyn DAVIS, Auteur ; Jac?lyn BERA, Auteur ; Rabbiya SHAHID, Auteur Article en page(s) : p.907-919 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  disproportionality  prevalence  school-age children  special education Index. décimale : PER Périodiques Résumé : Special education services are crucial for enhancing outcomes and well-being among autistic students. Unfortunately, many racially and ethnically minoritized and girl autistic youth face challenges in timely and accurate identification. National-level data reveal autism prevalence rates differ across student gender, race, and ethnicity hindering access to services and appropriate education. As research focusing on autism disproportionality in schools is limited, we investigate autism identification disparities specific to racially and ethnically minoritized and girl students at the national and state levels in schools. State-level data from the 2019-2020 academic year were obtained from the United States Department of Education and analyzed to assess prevalence rate, relative risk, and systemic-level predictors of autism identification disparities. Girls were under-identified with autism in schools compared to their boy peers. The disproportionality risk of racially and ethnically minoritized students compared to White students had decreased in reference to prior reports, with the least improvement for Latine students. School locale proved significant in predicting the risk of autism identification for girl and Latine students. These findings can inform policy change, raise the collective consciousness, and encourage practitioners to seek out continued education regarding autism identification and girl students to reduce or eliminate these disparities.Lay abstract Special education services are important for helping autistic students succeed, but many racially and ethnically minoritized and girl students face difficulties in getting support because they are not identified appropriately in schools. This study looks at the identification of autism in racially and ethnically minoritized and girl students across schools in the United States during the 2019-2020 school year. We found that girls are less likely to be identified compared to boys, which means they might not get the help they need. The gap between racially and ethnically minoritized students and White students in autism identification has improved slightly, but Latinx students still face challenges. We also found that where students live (their locale) affects their chances of being identified, especially for girls and Latinx students. These findings show that there are disparities in school autism identification, and understanding them can help policymakers, educators, and communities make changes to ensure all autistic students get the support they need. En ligne : https://dx.doi.org/10.1177/13623613241293046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Autism disproportionality in racially and ethnically minoritized and girl students in schools [Texte imprimé et/ou numérique] / Parker S BECKMAN, Auteur ; Maryellen BRUNSON MCCLAIN, Auteur ; Bryn HARRIS, Auteur ; Alexa BROWNELL, Auteur ; Britany M BEAUCHESNE, Auteur ; Gwendolyn DAVIS, Auteur ; Jac?lyn BERA, Auteur ; Rabbiya SHAHID, Auteur . - p.907-919. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.907-919 Mots-clés : autism spectrum disorders  disproportionality  prevalence  school-age children  special education Index. décimale : PER Périodiques Résumé : Special education services are crucial for enhancing outcomes and well-being among autistic students. Unfortunately, many racially and ethnically minoritized and girl autistic youth face challenges in timely and accurate identification. National-level data reveal autism prevalence rates differ across student gender, race, and ethnicity hindering access to services and appropriate education. As research focusing on autism disproportionality in schools is limited, we investigate autism identification disparities specific to racially and ethnically minoritized and girl students at the national and state levels in schools. State-level data from the 2019-2020 academic year were obtained from the United States Department of Education and analyzed to assess prevalence rate, relative risk, and systemic-level predictors of autism identification disparities. Girls were under-identified with autism in schools compared to their boy peers. The disproportionality risk of racially and ethnically minoritized students compared to White students had decreased in reference to prior reports, with the least improvement for Latine students. School locale proved significant in predicting the risk of autism identification for girl and Latine students. These findings can inform policy change, raise the collective consciousness, and encourage practitioners to seek out continued education regarding autism identification and girl students to reduce or eliminate these disparities.Lay abstract Special education services are important for helping autistic students succeed, but many racially and ethnically minoritized and girl students face difficulties in getting support because they are not identified appropriately in schools. This study looks at the identification of autism in racially and ethnically minoritized and girl students across schools in the United States during the 2019-2020 school year. We found that girls are less likely to be identified compared to boys, which means they might not get the help they need. The gap between racially and ethnically minoritized students and White students in autism identification has improved slightly, but Latinx students still face challenges. We also found that where students live (their locale) affects their chances of being identified, especially for girls and Latinx students. These findings show that there are disparities in school autism identification, and understanding them can help policymakers, educators, and communities make changes to ensure all autistic students get the support they need. En ligne : https://dx.doi.org/10.1177/13623613241293046 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Investigating visual perspective taking and belief reasoning in autistic adults: A pre-registered online study / Rachel LARA GREEN in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.920-933 Titre : Investigating visual perspective taking and belief reasoning in autistic adults: A pre-registered online study Type de document : Texte imprimé et/ou numérique Auteurs : Rachel LARA GREEN, Auteur ; Sarah JOANNE CARRINGTON, Auteur ; Daniel Joel SHAW, Auteur ; Klaus KESSLER, Auteur Article en page(s) : p.920-933 Langues : Anglais (eng) Mots-clés : Adults  autism spectrum disorders  social cognition and social behaviour  Theory of Mind Index. décimale : PER Périodiques Résumé : As many autistic individuals report mentalizing difficulties into adulthood, the current pre-registered study investigated potential differences in belief reasoning and/or visual perspective taking between autistic and non-autistic adults. The Seeing-Believing task was administered to 121 gender-balanced participants online (57 with a self- reported diagnosis of an autism spectrum condition and 64 without), as well as Raven?s Progressive Matrices (on which the groups did not significantly differ) and the Autism Spectrum Quotient. Non-autistic adults replicated previous findings with this task, revealing slower responses to belief-reasoning than to perspective-taking trials. Autistic adults did not show significantly slower or more error-prone performance during perspective taking and/or belief reasoning. In fact, the autistic group committed significantly fewer mistakes, including fewer altercentric intrusions. The main group difference in response times was a steeper increase with increasing angular disparity between self and other in the autistic group. We discuss our findings in terms of differences in self-other control, but emphasise that our findings cannot be explained in terms of simplistic deficit-based notions of autism and suggest that autistic adults might favour slightly different strategies when judging another?s perspective or belief.Lay abstract Many autistic individuals report difficulties in social situations, where they are required to think about what goes on in others' minds. These states of the mind can include how others perceive the world around them, their beliefs, or their desires. While research has shown that autistic children could be delayed in developing their full capacity in this regard, less is known about how adults process others' experiences and beliefs. Here we used a novel task and asked adults to participate online. Participants self-reported whether they had been diagnosed with autism or not and we split them into two groups depending on their response. We also asked participants to fill in a self-report questionnaire about social preferences and habits and we also asked them to conduct a test of their nonverbal reasoning ability. Importantly, the autistic and the non-autistic groups did not differ in their nonverbal reasoning abilities, and on our task, we observed that the autistic group committed fewer mistakes than the non-autistic group. Autistic participants were particularly fast and made fewer mistakes on those responses that overlapped with their own view and belief of reality. In conclusion, our findings do not support a simple view of autism in terms of deficits in either social or more general thinking abilities. Instead, autistic adults might favour slightly different ways of thinking about other?s experiences and beliefs that is more firmly linked to their own experience and knowledge. En ligne : https://dx.doi.org/10.1177/13623613241290880 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Investigating visual perspective taking and belief reasoning in autistic adults: A pre-registered online study [Texte imprimé et/ou numérique] / Rachel LARA GREEN, Auteur ; Sarah JOANNE CARRINGTON, Auteur ; Daniel Joel SHAW, Auteur ; Klaus KESSLER, Auteur . - p.920-933. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.920-933 Mots-clés : Adults  autism spectrum disorders  social cognition and social behaviour  Theory of Mind Index. décimale : PER Périodiques Résumé : As many autistic individuals report mentalizing difficulties into adulthood, the current pre-registered study investigated potential differences in belief reasoning and/or visual perspective taking between autistic and non-autistic adults. The Seeing-Believing task was administered to 121 gender-balanced participants online (57 with a self- reported diagnosis of an autism spectrum condition and 64 without), as well as Raven?s Progressive Matrices (on which the groups did not significantly differ) and the Autism Spectrum Quotient. Non-autistic adults replicated previous findings with this task, revealing slower responses to belief-reasoning than to perspective-taking trials. Autistic adults did not show significantly slower or more error-prone performance during perspective taking and/or belief reasoning. In fact, the autistic group committed significantly fewer mistakes, including fewer altercentric intrusions. The main group difference in response times was a steeper increase with increasing angular disparity between self and other in the autistic group. We discuss our findings in terms of differences in self-other control, but emphasise that our findings cannot be explained in terms of simplistic deficit-based notions of autism and suggest that autistic adults might favour slightly different strategies when judging another?s perspective or belief.Lay abstract Many autistic individuals report difficulties in social situations, where they are required to think about what goes on in others' minds. These states of the mind can include how others perceive the world around them, their beliefs, or their desires. While research has shown that autistic children could be delayed in developing their full capacity in this regard, less is known about how adults process others' experiences and beliefs. Here we used a novel task and asked adults to participate online. Participants self-reported whether they had been diagnosed with autism or not and we split them into two groups depending on their response. We also asked participants to fill in a self-report questionnaire about social preferences and habits and we also asked them to conduct a test of their nonverbal reasoning ability. Importantly, the autistic and the non-autistic groups did not differ in their nonverbal reasoning abilities, and on our task, we observed that the autistic group committed fewer mistakes than the non-autistic group. Autistic participants were particularly fast and made fewer mistakes on those responses that overlapped with their own view and belief of reality. In conclusion, our findings do not support a simple view of autism in terms of deficits in either social or more general thinking abilities. Instead, autistic adults might favour slightly different ways of thinking about other?s experiences and beliefs that is more firmly linked to their own experience and knowledge. En ligne : https://dx.doi.org/10.1177/13623613241290880 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Unmet need for autism-aware care for gynaecological, menstrual and sexual wellbeing / Richard O DE VISSER in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.934-944 Titre : Unmet need for autism-aware care for gynaecological, menstrual and sexual wellbeing Type de document : Texte imprimé et/ou numérique Auteurs : Richard O DE VISSER, Auteur ; Rachel MOSELY, Auteur ; Julie GAMBLE-TURNER, Auteur ; Laura HULL, Auteur ; Felicity SEDGEWICK, Auteur ; Charlotte FEATHERSTONE, Auteur ; Chella QUINT OBE, Auteur ; Eloise FREEMAN, Auteur ; Marianna KARAVIDAS, Auteur Article en page(s) : p.934-944 Langues : Anglais (eng) Mots-clés : autism  health care  menopause  menstruation  sexual health Index. décimale : PER Périodiques Résumé : Autism can make menstruation and menopause and other aspects of reproductive and sexual health (RSH) more difficult. However, healthcare professionals (HCPs) often fail to provide autism-aware care, and often lack the skills or confidence to discuss RSH with patients. This study explored whether autistic people experience particular difficulties and have unmet needs when seeking RSH care. Online surveys consisting of forced-choice items and free-text boxes were completed by 136 autistic adults in the United Kingdom. Quantitative data were analysed using standard parametric and non-parametric tests. Qualitative data underwent thematic analysis. The data provide a clear picture of unmet needs for autism-aware healthcare for RSH. The quantitative data and qualitative analysis revealed that respondents felt: (a) uncomfortable discussing menstrual issues, menopause and sexual wellbeing; (b) that HCPs rarely accommodate their sensory needs and communication preferences; and (c) that HCPs rarely demonstrated awareness of how autism can affect RSH. This novel study highlighted widespread unmet needs for appropriate RSH care for autistic people. Effort is required to enhance HCPs' ability to provide autism-aware care for RSH. The findings could inform the development of resources and training to improve healthcare for autistic people.Lay abstract Autistic people often experience difficulties with healthcare, and are more likely than neurotypical people to have unmet healthcare needs. They may also be more likely to find menstruation and menopause more difficult than neurotypical women. Healthcare professionals (HCPs) often have insufficient training and support to work with autistic adults, and they often lack the skills or confidence to discuss reproductive and sexual health (RSH) with patients. When these two issues are combined, it would appear that autistic people may experience particular difficulties when seeking RSH care. The aim of this study was to explore autistic people?s experiences of healthcare related to RSH in the United Kingdom. Surveys were distributed with assistance of an autism charity, and were completed by 136 adults. The survey consisted mainly of tick-box responses, but there were also several opportunities for participants to write comments about their experiences. Respondents felt that HCPs almost never seem to know how autism affects their RSH. There was broad agreement that HCPs need to be more aware of the impact of autism on healthcare experiences in general, and the specific impacts of autism on RSH. The data provide a clear picture of unmet needs for autism-aware healthcare for RSH, but further research is required to explore HCPs' knowledge about how autism affects RSH. Combined with our findings, such research could inform the development of resources and training to improve healthcare for autistic people. En ligne : https://dx.doi.org/10.1177/13623613241290628 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Unmet need for autism-aware care for gynaecological, menstrual and sexual wellbeing [Texte imprimé et/ou numérique] / Richard O DE VISSER, Auteur ; Rachel MOSELY, Auteur ; Julie GAMBLE-TURNER, Auteur ; Laura HULL, Auteur ; Felicity SEDGEWICK, Auteur ; Charlotte FEATHERSTONE, Auteur ; Chella QUINT OBE, Auteur ; Eloise FREEMAN, Auteur ; Marianna KARAVIDAS, Auteur . - p.934-944. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.934-944 Mots-clés : autism  health care  menopause  menstruation  sexual health Index. décimale : PER Périodiques Résumé : Autism can make menstruation and menopause and other aspects of reproductive and sexual health (RSH) more difficult. However, healthcare professionals (HCPs) often fail to provide autism-aware care, and often lack the skills or confidence to discuss RSH with patients. This study explored whether autistic people experience particular difficulties and have unmet needs when seeking RSH care. Online surveys consisting of forced-choice items and free-text boxes were completed by 136 autistic adults in the United Kingdom. Quantitative data were analysed using standard parametric and non-parametric tests. Qualitative data underwent thematic analysis. The data provide a clear picture of unmet needs for autism-aware healthcare for RSH. The quantitative data and qualitative analysis revealed that respondents felt: (a) uncomfortable discussing menstrual issues, menopause and sexual wellbeing; (b) that HCPs rarely accommodate their sensory needs and communication preferences; and (c) that HCPs rarely demonstrated awareness of how autism can affect RSH. This novel study highlighted widespread unmet needs for appropriate RSH care for autistic people. Effort is required to enhance HCPs' ability to provide autism-aware care for RSH. The findings could inform the development of resources and training to improve healthcare for autistic people.Lay abstract Autistic people often experience difficulties with healthcare, and are more likely than neurotypical people to have unmet healthcare needs. They may also be more likely to find menstruation and menopause more difficult than neurotypical women. Healthcare professionals (HCPs) often have insufficient training and support to work with autistic adults, and they often lack the skills or confidence to discuss reproductive and sexual health (RSH) with patients. When these two issues are combined, it would appear that autistic people may experience particular difficulties when seeking RSH care. The aim of this study was to explore autistic people?s experiences of healthcare related to RSH in the United Kingdom. Surveys were distributed with assistance of an autism charity, and were completed by 136 adults. The survey consisted mainly of tick-box responses, but there were also several opportunities for participants to write comments about their experiences. Respondents felt that HCPs almost never seem to know how autism affects their RSH. There was broad agreement that HCPs need to be more aware of the impact of autism on healthcare experiences in general, and the specific impacts of autism on RSH. The data provide a clear picture of unmet needs for autism-aware healthcare for RSH, but further research is required to explore HCPs' knowledge about how autism affects RSH. Combined with our findings, such research could inform the development of resources and training to improve healthcare for autistic people. En ligne : https://dx.doi.org/10.1177/13623613241290628 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Accuracy of the Screening Tool for Autism in Toddlers and Young Children in the primary care setting / Rebecca MCNALLY KEEHN in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.945-957 Titre : Accuracy of the Screening Tool for Autism in Toddlers and Young Children in the primary care setting Type de document : Texte imprimé et/ou numérique Auteurs : Rebecca MCNALLY KEEHN, Auteur ; Noha F. MINSHAWI, Auteur ; Qing TANG, Auteur ; Brett ENNEKING, Auteur ; Tybytha RYAN, Auteur ; Ann Marie MARTIN, Auteur ; Angela PAXTON, Auteur ; Patrick O. MONAHAN, Auteur ; Mary CICCARELLI, Auteur ; Brandon KEEHN, Auteur Article en page(s) : p.945-957 Langues : Anglais (eng) Mots-clés : autism  diagnosis  primary care Index. décimale : PER Périodiques Résumé : Feasible and accurate assessment tools developed for non-specialists are needed to scale community-based models of autism evaluation. The purpose of this study was to evaluate use of the Screening Tool for Autism in Toddlers and Young Children (STAT) when used by primary care practitioners (n = 10) across a statewide system of early diagnosis set within seven United States primary care practices. Specifically, for 130, 14- to 48-month-old children, we examined (1) agreement between STAT classification and Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) outcome and expert diagnosis of autism, (2) characteristics of children with inaccurate STAT classifications, (3) consistency between STAT classification and primary care practitioner diagnosis, and (4) the relationship between STAT/primary care practitioner classification and expert diagnosis. The STAT demonstrated good concurrent validity with the ADOS-2 (77% agreement). Concordance between specialty trained primary care practitioners with expert diagnosis was 80%-87% across three age-based subgroups of children. Children misclassified by the STAT were older, had higher developmental and adaptive skills, and lower autism symptoms. Primary care practitioner diagnosis aligned with STAT categorical risk classification in 86% of cases, and 73% of consistent classifications between STAT and primary care practitioner diagnosis matched expert diagnosis. Overall, the STAT demonstrates good accuracy when used by non-specialists as part of a diagnostic evaluation.Lay summary Specialists conduct autism evaluations using tools that are expensive and difficult to get trained on. Families often wait a long time and travel far to get a diagnosis for their child. To help with this problem, primary care practitioners can be trained to provide evaluations in local communities. However, usable and accurate tools developed for non-specialists are needed. The Screening Tool for Autism in Toddlers and Young Children (STAT) was created for this purpose, but limited research has been done on accuracy of the tool in community primary care. This study tested the STAT when used by primary care practitioners as part of a diagnostic evaluation in 130, 14- to 48-month-old children. We tested (1) STAT agreement with the Autism Diagnostic Observation Schedule, Second Edition (ADOS-2), and diagnosis based on an expert research evaluation, and (2) the relationship between STAT classification, primary care practitioner diagnosis, and expert diagnosis. STAT classification matched the ADOS-2 in 77% of cases and expert diagnosis in 78% of cases. Autistic children incorrectly classified by the STAT were older, had higher developmental and adaptive skills, and fewer autism symptoms. In 86% of cases, the STAT classification agreed with primary care practitioner diagnosis. STAT classification, primary care practitioner diagnosis, and expert diagnosis agreed in 73% of cases. Overall, the STAT shows good accuracy when used by primary care practitioners as part of a community primary care autism evaluation. En ligne : https://dx.doi.org/10.1177/13623613241292850 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Accuracy of the Screening Tool for Autism in Toddlers and Young Children in the primary care setting [Texte imprimé et/ou numérique] / Rebecca MCNALLY KEEHN, Auteur ; Noha F. MINSHAWI, Auteur ; Qing TANG, Auteur ; Brett ENNEKING, Auteur ; Tybytha RYAN, Auteur ; Ann Marie MARTIN, Auteur ; Angela PAXTON, Auteur ; Patrick O. MONAHAN, Auteur ; Mary CICCARELLI, Auteur ; Brandon KEEHN, Auteur . - p.945-957. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.945-957 Mots-clés : autism  diagnosis  primary care Index. décimale : PER Périodiques Résumé : Feasible and accurate assessment tools developed for non-specialists are needed to scale community-based models of autism evaluation. The purpose of this study was to evaluate use of the Screening Tool for Autism in Toddlers and Young Children (STAT) when used by primary care practitioners (n = 10) across a statewide system of early diagnosis set within seven United States primary care practices. Specifically, for 130, 14- to 48-month-old children, we examined (1) agreement between STAT classification and Autism Diagnostic Observation Schedule, Second Edition (ADOS-2) outcome and expert diagnosis of autism, (2) characteristics of children with inaccurate STAT classifications, (3) consistency between STAT classification and primary care practitioner diagnosis, and (4) the relationship between STAT/primary care practitioner classification and expert diagnosis. The STAT demonstrated good concurrent validity with the ADOS-2 (77% agreement). Concordance between specialty trained primary care practitioners with expert diagnosis was 80%-87% across three age-based subgroups of children. Children misclassified by the STAT were older, had higher developmental and adaptive skills, and lower autism symptoms. Primary care practitioner diagnosis aligned with STAT categorical risk classification in 86% of cases, and 73% of consistent classifications between STAT and primary care practitioner diagnosis matched expert diagnosis. Overall, the STAT demonstrates good accuracy when used by non-specialists as part of a diagnostic evaluation.Lay summary Specialists conduct autism evaluations using tools that are expensive and difficult to get trained on. Families often wait a long time and travel far to get a diagnosis for their child. To help with this problem, primary care practitioners can be trained to provide evaluations in local communities. However, usable and accurate tools developed for non-specialists are needed. The Screening Tool for Autism in Toddlers and Young Children (STAT) was created for this purpose, but limited research has been done on accuracy of the tool in community primary care. This study tested the STAT when used by primary care practitioners as part of a diagnostic evaluation in 130, 14- to 48-month-old children. We tested (1) STAT agreement with the Autism Diagnostic Observation Schedule, Second Edition (ADOS-2), and diagnosis based on an expert research evaluation, and (2) the relationship between STAT classification, primary care practitioner diagnosis, and expert diagnosis. STAT classification matched the ADOS-2 in 77% of cases and expert diagnosis in 78% of cases. Autistic children incorrectly classified by the STAT were older, had higher developmental and adaptive skills, and fewer autism symptoms. In 86% of cases, the STAT classification agreed with primary care practitioner diagnosis. STAT classification, primary care practitioner diagnosis, and expert diagnosis agreed in 73% of cases. Overall, the STAT shows good accuracy when used by primary care practitioners as part of a community primary care autism evaluation. En ligne : https://dx.doi.org/10.1177/13623613241292850 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum / Braden HAYSE in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.958-974 Titre : Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Braden HAYSE, Auteur ; Melanie A. STEARNS, Auteur ; Micah O MAZUREK, Auteur ; Ashley F CURTIS, Auteur ; Neetu NAIR, Auteur ; Wai Sze CHAN, Auteur ; Melissa MUNOZ, Auteur ; Kevin D. MCGOVNEY, Auteur ; David Q BEVERSDORF, Auteur ; Mojgan GOLZY, Auteur ; Kristin A. SOHL, Auteur ; Zarah H NER, Auteur ; Beth Ellen DAVIS, Auteur ; Nicole TAKAHASHI, Auteur ; Christina S MCCRAE, Auteur Article en page(s) : p.958-974 Langues : Anglais (eng) Mots-clés : actigraphy  autism spectrum disorders (ASD)  fatigue  intraindividual variability  sleep Index. décimale : PER Périodiques Résumé : Fatigue is associated with numerous harmful physical and mental health outcomes. Despite the established relationship between sleep and fatigue, research examining sleep variability within a person (i.e. intraindividual variability; IIV) and fatigue is limited. In addition, the associations between child and parent sleep regarding parent fatigue have not been explicitly explored, which could be relevant for parents of autistic children with increased sleep disturbance likelihood. The current study used two weeks of objective sleep (actigraphy) and subjective fatigue data from 81 parents and their children to explore associations among child sleep IIV, parent sleep IIV, and parent average daily fatigue, including evaluating evidence for mediation. Sleep IIV was estimated using a validated Bayesian model. Linear regression analyses indicated that greater parent total sleep time IIV predicted significantly higher fatigue levels. Child sleep IIV was unrelated to parent sleep IIV and fatigue, unsupportive of hypothesized mediation. Similarly, post hoc analyses examining child sleep averages, parent total sleep time IIV, and average parent fatigue were insignificant. Findings cautiously support the uniqueness of total sleep time IIV within parental sleep?s relationship with fatigue, independent of child sleep. Objective sleep IIV should continue to be examined in addition to average levels.Lay abstract Fatigue is associated with numerous harmful physical and mental health outcomes. Despite research indicating a relationship between fatigue and sleep, there has been a limited focus on how the variability of a person?s sleep may be associated with fatigue. In addition, previous studies have not explicitly explored relationships among child sleep, parent sleep, and parent fatigue. Increasing knowledge about this area of research could be particularly relevant for families with autistic children with an increased likelihood of sleep disturbances. The current study used two weeks of objective sleep (actigraphy) data and subjective ratings of parent fatigue from 81 parents and their autistic children to examine associations among child and parent within-person sleep variability regarding average parent fatigue levels. Evidence was assessed for the role of parent sleep variability in hypothesized connections between child sleep variability and parent fatigue. We found that only greater variability in parents' total sleep time was associated with higher levels of parents' average daily fatigue rating over the two weeks. Child sleep variability was not significantly associated with parent sleep variability or average daily fatigue. In addition, average levels of child sleep were unrelated to parent total sleep time variability and fatigue. Although cautious interpretation is required, findings support the idea that variability in total sleep time may be a unique aspect of parental sleep?s association with fatigue, independent of child sleep. In addition, sleep variability could be important to consider when examining sleep in addition to average levels of parameters like total sleep time. En ligne : https://dx.doi.org/10.1177/13623613241292691 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Exploratory analyses of sleep intraindividual variability and fatigue in parents of children on the autism spectrum [Texte imprimé et/ou numérique] / Braden HAYSE, Auteur ; Melanie A. STEARNS, Auteur ; Micah O MAZUREK, Auteur ; Ashley F CURTIS, Auteur ; Neetu NAIR, Auteur ; Wai Sze CHAN, Auteur ; Melissa MUNOZ, Auteur ; Kevin D. MCGOVNEY, Auteur ; David Q BEVERSDORF, Auteur ; Mojgan GOLZY, Auteur ; Kristin A. SOHL, Auteur ; Zarah H NER, Auteur ; Beth Ellen DAVIS, Auteur ; Nicole TAKAHASHI, Auteur ; Christina S MCCRAE, Auteur . - p.958-974. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.958-974 Mots-clés : actigraphy  autism spectrum disorders (ASD)  fatigue  intraindividual variability  sleep Index. décimale : PER Périodiques Résumé : Fatigue is associated with numerous harmful physical and mental health outcomes. Despite the established relationship between sleep and fatigue, research examining sleep variability within a person (i.e. intraindividual variability; IIV) and fatigue is limited. In addition, the associations between child and parent sleep regarding parent fatigue have not been explicitly explored, which could be relevant for parents of autistic children with increased sleep disturbance likelihood. The current study used two weeks of objective sleep (actigraphy) and subjective fatigue data from 81 parents and their children to explore associations among child sleep IIV, parent sleep IIV, and parent average daily fatigue, including evaluating evidence for mediation. Sleep IIV was estimated using a validated Bayesian model. Linear regression analyses indicated that greater parent total sleep time IIV predicted significantly higher fatigue levels. Child sleep IIV was unrelated to parent sleep IIV and fatigue, unsupportive of hypothesized mediation. Similarly, post hoc analyses examining child sleep averages, parent total sleep time IIV, and average parent fatigue were insignificant. Findings cautiously support the uniqueness of total sleep time IIV within parental sleep?s relationship with fatigue, independent of child sleep. Objective sleep IIV should continue to be examined in addition to average levels.Lay abstract Fatigue is associated with numerous harmful physical and mental health outcomes. Despite research indicating a relationship between fatigue and sleep, there has been a limited focus on how the variability of a person?s sleep may be associated with fatigue. In addition, previous studies have not explicitly explored relationships among child sleep, parent sleep, and parent fatigue. Increasing knowledge about this area of research could be particularly relevant for families with autistic children with an increased likelihood of sleep disturbances. The current study used two weeks of objective sleep (actigraphy) data and subjective ratings of parent fatigue from 81 parents and their autistic children to examine associations among child and parent within-person sleep variability regarding average parent fatigue levels. Evidence was assessed for the role of parent sleep variability in hypothesized connections between child sleep variability and parent fatigue. We found that only greater variability in parents' total sleep time was associated with higher levels of parents' average daily fatigue rating over the two weeks. Child sleep variability was not significantly associated with parent sleep variability or average daily fatigue. In addition, average levels of child sleep were unrelated to parent total sleep time variability and fatigue. Although cautious interpretation is required, findings support the idea that variability in total sleep time may be a unique aspect of parental sleep?s association with fatigue, independent of child sleep. In addition, sleep variability could be important to consider when examining sleep in addition to average levels of parameters like total sleep time. En ligne : https://dx.doi.org/10.1177/13623613241292691 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Seeing it in others versus doing it yourself: Social desirability judgements and conversation production data from autistic and non-autistic children / Lauren MCGUINNESS in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.975-987 Titre : Seeing it in others versus doing it yourself: Social desirability judgements and conversation production data from autistic and non-autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Lauren MCGUINNESS, Auteur ; Kirsten ABBOT-SMITH, Auteur ; Chiara GAMBI, Auteur Article en page(s) : p.975-987 Langues : Anglais (eng) Mots-clés : autism  children  conversation  first impressions  off-topic  response latency  social desirability Index. décimale : PER Périodiques Résumé : On average, groups of autistic individuals are more likely than groups of non-autistic individuals to exhibit unconventional conversational behaviours. We examined autistic and non-autistic children?s social impressions of unconventional responding, as well as actual conversational behaviours in the same participants. Across two studies, 36 autistic and 36 non-autistic matched 9-13-year-olds listened to conversational vignettes which manipulated the relevance and timing of responses produced by the speaker. They then rated the speaker?s social desirability. We also measured the content and latency of the same children?s conversational responses. Autistic children aligned with their non-autistic peers in indicating that they were less likely to befriend, or enjoy interacting with, a speaker who provided off-topic or delayed responses. However, the same autistic children provided more off-topic, and fewer topic-continuing, conversational responses than their non-autistic counterparts. These findings suggest that displaying unconventional conversational behaviours may act as a barrier to friendship or inclusion for autistic children, even when socialising with other autistic peers.Lay abstract During a conversation, on average, autistic individuals are often more likely than non-autistic people to provide an off-topic comment and/or to pause for longer before providing a response. One possible explanation for this is that autistic individuals prefer, or are more tolerant of, unconventional communication styles. To explore this possibility, we investigated whether autistic and non-autistic 9-13-year-olds find off-topic or delayed responding a deterrent to friendship or interaction. Participants listened to scripted conversations and then rated social desirability statements, such as 'I would enjoy chatting to the [target speaker]'. We also examined the prevalence of these behaviours in children?s own conversational responses. We found that autistic children were just as likely as non-autistic children to dis-prefer unconventional conversational responding. Both groups indicated that they were less likely to want to be friends with the speaker, or to chat with them, when they provided off-topic or delayed responses. However, despite their judgements of others, the same autistic children were more likely to provide off-topic responses themselves than their non-autistic peers, as well as giving fewer on-topic responses which facilitate back-and-forth conversation. Overall, this is problematic for autistic children, as our findings suggest that the tendency to exhibit unconventional conversational behaviours will have negative social consequences, even when interacting with other autistic peers. En ligne : https://dx.doi.org/10.1177/13623613241292172 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Seeing it in others versus doing it yourself: Social desirability judgements and conversation production data from autistic and non-autistic children [Texte imprimé et/ou numérique] / Lauren MCGUINNESS, Auteur ; Kirsten ABBOT-SMITH, Auteur ; Chiara GAMBI, Auteur . - p.975-987. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.975-987 Mots-clés : autism  children  conversation  first impressions  off-topic  response latency  social desirability Index. décimale : PER Périodiques Résumé : On average, groups of autistic individuals are more likely than groups of non-autistic individuals to exhibit unconventional conversational behaviours. We examined autistic and non-autistic children?s social impressions of unconventional responding, as well as actual conversational behaviours in the same participants. Across two studies, 36 autistic and 36 non-autistic matched 9-13-year-olds listened to conversational vignettes which manipulated the relevance and timing of responses produced by the speaker. They then rated the speaker?s social desirability. We also measured the content and latency of the same children?s conversational responses. Autistic children aligned with their non-autistic peers in indicating that they were less likely to befriend, or enjoy interacting with, a speaker who provided off-topic or delayed responses. However, the same autistic children provided more off-topic, and fewer topic-continuing, conversational responses than their non-autistic counterparts. These findings suggest that displaying unconventional conversational behaviours may act as a barrier to friendship or inclusion for autistic children, even when socialising with other autistic peers.Lay abstract During a conversation, on average, autistic individuals are often more likely than non-autistic people to provide an off-topic comment and/or to pause for longer before providing a response. One possible explanation for this is that autistic individuals prefer, or are more tolerant of, unconventional communication styles. To explore this possibility, we investigated whether autistic and non-autistic 9-13-year-olds find off-topic or delayed responding a deterrent to friendship or interaction. Participants listened to scripted conversations and then rated social desirability statements, such as 'I would enjoy chatting to the [target speaker]'. We also examined the prevalence of these behaviours in children?s own conversational responses. We found that autistic children were just as likely as non-autistic children to dis-prefer unconventional conversational responding. Both groups indicated that they were less likely to want to be friends with the speaker, or to chat with them, when they provided off-topic or delayed responses. However, despite their judgements of others, the same autistic children were more likely to provide off-topic responses themselves than their non-autistic peers, as well as giving fewer on-topic responses which facilitate back-and-forth conversation. Overall, this is problematic for autistic children, as our findings suggest that the tendency to exhibit unconventional conversational behaviours will have negative social consequences, even when interacting with other autistic peers. En ligne : https://dx.doi.org/10.1177/13623613241292172 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

'I did what I could to earn some money and be of use': A qualitative exploration of autistic people?s journeys to career success and fulfilment / Jade DAVIES in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.988-1004 Titre : 'I did what I could to earn some money and be of use': A qualitative exploration of autistic people?s journeys to career success and fulfilment Type de document : Texte imprimé et/ou numérique Auteurs : Jade DAVIES, Auteur ; Rachel MELINEK, Auteur ; Adam LIVESEY, Auteur ; Estelle KILLICK, Auteur ; Evelyn SAM, Auteur ; Anna Melissa ROMUALDEZ, Auteur ; Elizabeth PELLICANO, Auteur ; Anna REMINGTON, Auteur Article en page(s) : p.988-1004 Langues : Anglais (eng) Mots-clés : autism  career fulfilment  career progression  career success  employment  qualitative Index. décimale : PER Périodiques Résumé : Employment contributes to well-being, yet many autistic people who want to work face barriers to meaningful employment. Much research focuses solely on employment rates, rather than taking a more holistic view of professional trajectories and occupational experiences. We conducted semi-structured interviews with 18 autistic adults to explore their experiences of, and perspectives on, career success. Our participants highlighted the overarching importance of finding fulfilment in one?s career. Using reflexive thematic analysis, we identified five additional key themes: (1) volatile career journeys, (2) the need for continuing career support, (3) the impact (positive or negative) of social interactions, (4) the important role of organisations and (5) the catastrophic impact of poor experiences. Our findings highlight the importance of tailored, lifelong employment support and inclusive workplaces in enabling autistic people to thrive at work. Enabling autistic career fulfilment requires moving beyond entry-level hiring to foster sustainable, fulfilling employment for all autistic people.Lay abstract Many autistic people want to work but have trouble finding jobs they like and can stick with. Most research tries to help more autistic people get jobs, but does not look at whether those jobs are fulfilling, or how people progress once they start working. We spoke to 18 autistic people about their experiences at work, and their ideas about success at work. Participants said finding fulfilment in their careers was key. We found five common 'themes' across the interviews. First, autistic people?s careers often take unexpected turns. For example, many participants only got diagnosed as adults, which sometimes changed their work plans. Second, autistic people might need ongoing help with their career, including help with finding jobs they would enjoy and be good at, and advice on how to progress in their job. Third, getting along with others at work is really important. Having supportive colleagues helped our participants thrive, but workplace bullying forced some to leave their jobs. Fourth, workplaces need to be welcoming to everybody. Adjustments and understanding managers helped, but many of our participants' workplaces were not inclusive. Finally, bad work experiences can be devastating for mental health and well-being and negative experiences like bullying led some participants to quit working entirely. Our findings show that lifelong support tailored to each person and welcoming workplaces are important for autistic people to thrive at work. It is not enough to just hire autistic people - we need to help them have jobs they like and can stick with long-term. En ligne : https://dx.doi.org/10.1177/13623613241292177 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] 'I did what I could to earn some money and be of use': A qualitative exploration of autistic people?s journeys to career success and fulfilment [Texte imprimé et/ou numérique] / Jade DAVIES, Auteur ; Rachel MELINEK, Auteur ; Adam LIVESEY, Auteur ; Estelle KILLICK, Auteur ; Evelyn SAM, Auteur ; Anna Melissa ROMUALDEZ, Auteur ; Elizabeth PELLICANO, Auteur ; Anna REMINGTON, Auteur . - p.988-1004. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.988-1004 Mots-clés : autism  career fulfilment  career progression  career success  employment  qualitative Index. décimale : PER Périodiques Résumé : Employment contributes to well-being, yet many autistic people who want to work face barriers to meaningful employment. Much research focuses solely on employment rates, rather than taking a more holistic view of professional trajectories and occupational experiences. We conducted semi-structured interviews with 18 autistic adults to explore their experiences of, and perspectives on, career success. Our participants highlighted the overarching importance of finding fulfilment in one?s career. Using reflexive thematic analysis, we identified five additional key themes: (1) volatile career journeys, (2) the need for continuing career support, (3) the impact (positive or negative) of social interactions, (4) the important role of organisations and (5) the catastrophic impact of poor experiences. Our findings highlight the importance of tailored, lifelong employment support and inclusive workplaces in enabling autistic people to thrive at work. Enabling autistic career fulfilment requires moving beyond entry-level hiring to foster sustainable, fulfilling employment for all autistic people.Lay abstract Many autistic people want to work but have trouble finding jobs they like and can stick with. Most research tries to help more autistic people get jobs, but does not look at whether those jobs are fulfilling, or how people progress once they start working. We spoke to 18 autistic people about their experiences at work, and their ideas about success at work. Participants said finding fulfilment in their careers was key. We found five common 'themes' across the interviews. First, autistic people?s careers often take unexpected turns. For example, many participants only got diagnosed as adults, which sometimes changed their work plans. Second, autistic people might need ongoing help with their career, including help with finding jobs they would enjoy and be good at, and advice on how to progress in their job. Third, getting along with others at work is really important. Having supportive colleagues helped our participants thrive, but workplace bullying forced some to leave their jobs. Fourth, workplaces need to be welcoming to everybody. Adjustments and understanding managers helped, but many of our participants' workplaces were not inclusive. Finally, bad work experiences can be devastating for mental health and well-being and negative experiences like bullying led some participants to quit working entirely. Our findings show that lifelong support tailored to each person and welcoming workplaces are important for autistic people to thrive at work. It is not enough to just hire autistic people - we need to help them have jobs they like and can stick with long-term. En ligne : https://dx.doi.org/10.1177/13623613241292177 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth / Janeth ALEMAN-TOVAR in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1005-1018 Titre : Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth Type de document : Texte imprimé et/ou numérique Auteurs : Janeth ALEMAN-TOVAR, Auteur ; Meghan M BURKE, Auteur ; Edwin MONÁRREZ, Auteur ; Nicole Espinosa ZALDIVAR, Auteur Article en page(s) : p.1005-1018 Langues : Anglais (eng) Mots-clés : adult disability services  autism  Latinx  parent advocacy  special education Index. décimale : PER Périodiques Résumé : Families of autistic youth often support their children?s transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g. language) Latinx families face when accessing services. Unfortunately, few interventions aim to improve the transition among Latinx families of autistic transition-aged youth. This study examines the effectiveness, feasibility, and acceptability of the ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services) program, a six-session program for Latinx families of autistic youth, with respect to increasing: school-based transition planning and adult disability services knowledge, empowerment, and advocacy. Twenty-nine participants were included in this single-group, intervention study. After completing the program, participants demonstrated significantly improved: knowledge of school-based transition planning and adult disability services, advocacy, and empowerment. In addition, participants were highly satisfied with the program, based on the formative and summative evaluations and individual interviews. Implications for research and practice are discussed.Lay abstract To support Latinx families of autistic youth navigate school-based transition services and adult disability services, we provided a family advocacy program entitled, ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services). The ASISTIR program consisted of six, two-hour sessions and included the following topics: school-based transition planning, person-centered planning, Supplemental Security Income, Vocational Rehabilitation, and Home and Community-Based Medicaid Waiver. Twenty-nine Latinx family members completed the cohort-based ASISTIR program. After participating family members demonstrated increased knowledge of school-based transition planning and adult disability services. Participants also demonstrated increased empowerment and advocacy. En ligne : https://dx.doi.org/10.1177/13623613241292159 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Examining the effectiveness, feasibility, and acceptability of an advocacy program for Latinx families of transition-aged autistic youth [Texte imprimé et/ou numérique] / Janeth ALEMAN-TOVAR, Auteur ; Meghan M BURKE, Auteur ; Edwin MONÁRREZ, Auteur ; Nicole Espinosa ZALDIVAR, Auteur . - p.1005-1018. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1005-1018 Mots-clés : adult disability services  autism  Latinx  parent advocacy  special education Index. décimale : PER Périodiques Résumé : Families of autistic youth often support their children?s transition from adolescence to adulthood. During this time, families learn to navigate the complex shift from school-based to adult disability services. For Latinx (vs non-Latinx White) families of autistic youth, transition is especially difficult because of the systemic barriers (e.g. language) Latinx families face when accessing services. Unfortunately, few interventions aim to improve the transition among Latinx families of autistic transition-aged youth. This study examines the effectiveness, feasibility, and acceptability of the ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services) program, a six-session program for Latinx families of autistic youth, with respect to increasing: school-based transition planning and adult disability services knowledge, empowerment, and advocacy. Twenty-nine participants were included in this single-group, intervention study. After completing the program, participants demonstrated significantly improved: knowledge of school-based transition planning and adult disability services, advocacy, and empowerment. In addition, participants were highly satisfied with the program, based on the formative and summative evaluations and individual interviews. Implications for research and practice are discussed.Lay abstract To support Latinx families of autistic youth navigate school-based transition services and adult disability services, we provided a family advocacy program entitled, ASISTIR (Apoyando a nueStros hIjo/as con autiSmo obTener servIcios de tRansición; Supporting our Children with Autism to Obtain Transition Services). The ASISTIR program consisted of six, two-hour sessions and included the following topics: school-based transition planning, person-centered planning, Supplemental Security Income, Vocational Rehabilitation, and Home and Community-Based Medicaid Waiver. Twenty-nine Latinx family members completed the cohort-based ASISTIR program. After participating family members demonstrated increased knowledge of school-based transition planning and adult disability services. Participants also demonstrated increased empowerment and advocacy. En ligne : https://dx.doi.org/10.1177/13623613241292159 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Disability barriers autistic girls face in secondary education: A systematic review / Kathryn URBANIAK in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1019-1033 Titre : Disability barriers autistic girls face in secondary education: A systematic review Type de document : Texte imprimé et/ou numérique Auteurs : Kathryn URBANIAK, Auteur ; Miranda D?AMICO, Auteur Article en page(s) : p.1019-1033 Langues : Anglais (eng) Mots-clés : autism  girls  lived experience  school experience  secondary education  women Index. décimale : PER Périodiques Résumé : Autistic adolescent girls face complex and diverse challenges in the school setting, specifically mental health issues, unmet social and education needs, and social exclusion. This review provides an overview of research relating to the barriers autistic females face in school settings by reporting on their experiences as well as those of autistic women reflecting on their past. This literature review presents peer-reviewed journal articles published from January 2013 to March 2023. Based on the 17 identified articles, the barriers girls face in the compulsory education setting centred on 4 themes of societal barriers grounded in gender; the institutional or physical barriers of schools; social and communicative expectations; and stigmatization. These results underscore the need for future research to centre diverse autistic lived experiences and knowledge, and autistic inclusion at all levels of participation, from self-advocacy and peer support spaces to the co-development of training and policy.Lay abstract Autistic adolescent girls face complex and diverse challenges in the school setting, specifically mental health issues, unmet social and education needs, and social exclusion. The purpose of this review was to provide a general idea of research relating to the experiences of autistic females in secondary school settings by reporting on their experiences and the lived experiences of autistic women reflecting on their past. Based on the identified articles, the barriers girls face in the compulsory education setting centred on four themes of societal barriers grounded in gender; the institutional or physical barriers of schools; social and communicative expectations; and stigmatization. The study highlighted that there is a need to sensitize and educate widely on the topic of autism for teachers, to support staff, school psychologists and peers of autistic youth. The results call attention to the need for future research to focus on the different lived experiences and knowledge of autistic girls. En ligne : https://dx.doi.org/10.1177/13623613241294189 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Disability barriers autistic girls face in secondary education: A systematic review [Texte imprimé et/ou numérique] / Kathryn URBANIAK, Auteur ; Miranda D?AMICO, Auteur . - p.1019-1033. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1019-1033 Mots-clés : autism  girls  lived experience  school experience  secondary education  women Index. décimale : PER Périodiques Résumé : Autistic adolescent girls face complex and diverse challenges in the school setting, specifically mental health issues, unmet social and education needs, and social exclusion. This review provides an overview of research relating to the barriers autistic females face in school settings by reporting on their experiences as well as those of autistic women reflecting on their past. This literature review presents peer-reviewed journal articles published from January 2013 to March 2023. Based on the 17 identified articles, the barriers girls face in the compulsory education setting centred on 4 themes of societal barriers grounded in gender; the institutional or physical barriers of schools; social and communicative expectations; and stigmatization. These results underscore the need for future research to centre diverse autistic lived experiences and knowledge, and autistic inclusion at all levels of participation, from self-advocacy and peer support spaces to the co-development of training and policy.Lay abstract Autistic adolescent girls face complex and diverse challenges in the school setting, specifically mental health issues, unmet social and education needs, and social exclusion. The purpose of this review was to provide a general idea of research relating to the experiences of autistic females in secondary school settings by reporting on their experiences and the lived experiences of autistic women reflecting on their past. Based on the identified articles, the barriers girls face in the compulsory education setting centred on four themes of societal barriers grounded in gender; the institutional or physical barriers of schools; social and communicative expectations; and stigmatization. The study highlighted that there is a need to sensitize and educate widely on the topic of autism for teachers, to support staff, school psychologists and peers of autistic youth. The results call attention to the need for future research to focus on the different lived experiences and knowledge of autistic girls. En ligne : https://dx.doi.org/10.1177/13623613241294189 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

'I?m sick of being the problem': Autistic mothers' experiences of interacting with schools for their autistic children / Aspasia Stacey RABBA in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1034-1046 Titre : 'I?m sick of being the problem': Autistic mothers' experiences of interacting with schools for their autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Aspasia Stacey RABBA, Auteur ; Jodie SMITH, Auteur ; Gabrielle HALL, Auteur ; Vanessa ALEXANDER, Auteur ; Kate BATTY, Auteur ; Poulomee DATTA, Auteur ; Emma GOODALL, Auteur ; Melanie HEYWORTH, Auteur ; Siobhan LAMB, Auteur ; Wenn LAWSON, Auteur ; Rozanna LILLEY, Auteur ; Katy REID, Auteur ; Najeeba SYEDA, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.1034-1046 Langues : Anglais (eng) Mots-clés : autistic parents  autistic students  parent-teacher partnerships  participatory research  school experiences Index. décimale : PER Périodiques Résumé : Successful partnerships between families and schools can substantially improve children?s success in and out of school. Yet parents of autistic children often report considerable challenges with their children?s education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences of autistic parents' interactions with schools for their autistic children. We conducted semi-structured interviews with 31 autistic mothers of autistic children engaged in education in Australia. We analysed the data using reflexive thematic analysis. Autistic mothers repeatedly expressed feeling like they were in a 'war zone', fighting ongoing battles to gain the necessary support for their autistic child and were 'sick of being [viewed as] the problem'. They also felt that their expertise as parents - and experiential expertise as autistic parents - was often overlooked or ignored. All of this had negative effects on their and their children?s mental health. Despite these negative experiences, autistic mothers who had experienced positive interactions with schools highlighted the importance of mutual respect in establishing and maintaining successful school partnerships and how their own determination and self-advocacy helped to foster these relationships. This research sheds light on the critical ingredients of effective home-school partnerships for autistic families.Lay abstract Good relationships between families and schools make a difference to children?s learning - and the same goes for autistic children. But parents of autistic children often find it very stressful interacting with teachers and school staff. In this study, we focused on autistic parents of autistic children. We wanted to know about their experiences of interacting with schools and the impact these had on them and their children. We spoke to 31 autistic mothers of autistic children about their experiences. They told us that they felt they were constantly fighting with schools to get the support needed for their autistic children and compared it to like being in a 'war zone'. They were 'sick of being [viewed as] the problem' and felt that their views and autistic expertise were not taken seriously by teachers and schools. This was damaging to their autistic children?s mental health as well as their own. Autistic mothers did share some positive experiences too. They spoke about the value of mutual respect and its impact on successful school partnerships. Autistic mothers also spoke about standing up for themselves and their children and how this advocacy and self-advocacy helped them to build better relationships with schools. This research showed how difficult it can be for autistic families to interact with teachers and schools and the impact this can have on the whole family. It also showed us that strong, trusting relationships between school and families are possible - when autistic parents feel safe, and when their knowledge and lived experience are taken seriously by educators. En ligne : https://dx.doi.org/10.1177/13623613241297223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] 'I?m sick of being the problem': Autistic mothers' experiences of interacting with schools for their autistic children [Texte imprimé et/ou numérique] / Aspasia Stacey RABBA, Auteur ; Jodie SMITH, Auteur ; Gabrielle HALL, Auteur ; Vanessa ALEXANDER, Auteur ; Kate BATTY, Auteur ; Poulomee DATTA, Auteur ; Emma GOODALL, Auteur ; Melanie HEYWORTH, Auteur ; Siobhan LAMB, Auteur ; Wenn LAWSON, Auteur ; Rozanna LILLEY, Auteur ; Katy REID, Auteur ; Najeeba SYEDA, Auteur ; Elizabeth PELLICANO, Auteur . - p.1034-1046. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1034-1046 Mots-clés : autistic parents  autistic students  parent-teacher partnerships  participatory research  school experiences Index. décimale : PER Périodiques Résumé : Successful partnerships between families and schools can substantially improve children?s success in and out of school. Yet parents of autistic children often report considerable challenges with their children?s education. Almost no research, however, has examined autistic parents' own experiences. We, therefore, sought the views and experiences of autistic parents' interactions with schools for their autistic children. We conducted semi-structured interviews with 31 autistic mothers of autistic children engaged in education in Australia. We analysed the data using reflexive thematic analysis. Autistic mothers repeatedly expressed feeling like they were in a 'war zone', fighting ongoing battles to gain the necessary support for their autistic child and were 'sick of being [viewed as] the problem'. They also felt that their expertise as parents - and experiential expertise as autistic parents - was often overlooked or ignored. All of this had negative effects on their and their children?s mental health. Despite these negative experiences, autistic mothers who had experienced positive interactions with schools highlighted the importance of mutual respect in establishing and maintaining successful school partnerships and how their own determination and self-advocacy helped to foster these relationships. This research sheds light on the critical ingredients of effective home-school partnerships for autistic families.Lay abstract Good relationships between families and schools make a difference to children?s learning - and the same goes for autistic children. But parents of autistic children often find it very stressful interacting with teachers and school staff. In this study, we focused on autistic parents of autistic children. We wanted to know about their experiences of interacting with schools and the impact these had on them and their children. We spoke to 31 autistic mothers of autistic children about their experiences. They told us that they felt they were constantly fighting with schools to get the support needed for their autistic children and compared it to like being in a 'war zone'. They were 'sick of being [viewed as] the problem' and felt that their views and autistic expertise were not taken seriously by teachers and schools. This was damaging to their autistic children?s mental health as well as their own. Autistic mothers did share some positive experiences too. They spoke about the value of mutual respect and its impact on successful school partnerships. Autistic mothers also spoke about standing up for themselves and their children and how this advocacy and self-advocacy helped them to build better relationships with schools. This research showed how difficult it can be for autistic families to interact with teachers and schools and the impact this can have on the whole family. It also showed us that strong, trusting relationships between school and families are possible - when autistic parents feel safe, and when their knowledge and lived experience are taken seriously by educators. En ligne : https://dx.doi.org/10.1177/13623613241297223 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

A qualitative exploration of the experience of autistic females in Hong Kong / Gary Yu Hin LAM in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1047-1057 Titre : A qualitative exploration of the experience of autistic females in Hong Kong Type de document : Texte imprimé et/ou numérique Auteurs : Gary Yu Hin LAM, Auteur ; Constance Kit Ching CHOW, Auteur ; Sibyl Wai CHAN, Auteur Article en page(s) : p.1047-1057 Langues : Anglais (eng) Mots-clés : adults  autism  Chinese  lived experience  qualitative research  women Index. décimale : PER Périodiques Résumé : There are fewer females than males diagnosed with autism, but autistic females are said to be under-identified and underrepresented in the existing diagnostic and service systems. The gender discrepancy may potentially be attributed to the lack of accurate understanding of autistic females and their needs. Emerging research has begun to document the experiences of autistic women in Western countries, but their experience in Eastern cultures is almost unknown. This study aimed to investigate the lived experience of autistic women in Hong Kong. Thirteen formally diagnosed or self-diagnosed autistic women completed semi-structured interviews, discussing how they identified with autism, their diagnostic experience, and their understanding of autism. Results based on thematic analysis revealed Hong Kong autistic women commonly experienced emotional problems and encountered autistic models on the way they came to identify with autism, despite often being dismissed by families and professionals. They found an autism diagnosis or identity meaningful to their self-understanding. Societal misunderstanding toward autism had a great impact on their self-identity as an autistic female. Findings can inform improved services for autistic women in Hong Kong and provide insights to enhance understanding of autism in Chinese culture.Lay abstract There are more males than females with autism. One of the reasons can be that we do not understand autistic females well. Some research in Western cultures has begun to document the lived experience of autistic females, but no such studies are conducted with Chinese autistic females. This study explored the first-person experience of living with autism in Hong Kong autistic women. We conducted qualitative interviews with 13 women with a formal diagnosis of autism or self-diagnosed as autistic. We used semi-structured interviews to discuss how they came to recognize or identify with autism, their diagnostic experience, and their understanding of autistic females. We summarized several broad themes that depicted their experience. Participants recognized autism in themselves when seeing other autistic people. They indicated mental health challenges that led them to seek help from professionals, who might sometimes reject their concerns about autism. Participants found it meaningful to have an autism diagnosis or identity, but other people?s judgment would affect their self-understanding. Participants also described themselves different from the stereotypes of autism, not the same as autistic males, and were perceived by others as not autistic enough. Our findings suggested autistic women in Hong Kong faced challenges in identity development and support services. There is a need to increase awareness and knowledge about autism in professionals and the public. Understanding how unique cultural factors that influence the identity of autistic women or individuals in Chinese cultures is important to promote their well-being. En ligne : https://dx.doi.org/10.1177/13623613241295318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] A qualitative exploration of the experience of autistic females in Hong Kong [Texte imprimé et/ou numérique] / Gary Yu Hin LAM, Auteur ; Constance Kit Ching CHOW, Auteur ; Sibyl Wai CHAN, Auteur . - p.1047-1057. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1047-1057 Mots-clés : adults  autism  Chinese  lived experience  qualitative research  women Index. décimale : PER Périodiques Résumé : There are fewer females than males diagnosed with autism, but autistic females are said to be under-identified and underrepresented in the existing diagnostic and service systems. The gender discrepancy may potentially be attributed to the lack of accurate understanding of autistic females and their needs. Emerging research has begun to document the experiences of autistic women in Western countries, but their experience in Eastern cultures is almost unknown. This study aimed to investigate the lived experience of autistic women in Hong Kong. Thirteen formally diagnosed or self-diagnosed autistic women completed semi-structured interviews, discussing how they identified with autism, their diagnostic experience, and their understanding of autism. Results based on thematic analysis revealed Hong Kong autistic women commonly experienced emotional problems and encountered autistic models on the way they came to identify with autism, despite often being dismissed by families and professionals. They found an autism diagnosis or identity meaningful to their self-understanding. Societal misunderstanding toward autism had a great impact on their self-identity as an autistic female. Findings can inform improved services for autistic women in Hong Kong and provide insights to enhance understanding of autism in Chinese culture.Lay abstract There are more males than females with autism. One of the reasons can be that we do not understand autistic females well. Some research in Western cultures has begun to document the lived experience of autistic females, but no such studies are conducted with Chinese autistic females. This study explored the first-person experience of living with autism in Hong Kong autistic women. We conducted qualitative interviews with 13 women with a formal diagnosis of autism or self-diagnosed as autistic. We used semi-structured interviews to discuss how they came to recognize or identify with autism, their diagnostic experience, and their understanding of autistic females. We summarized several broad themes that depicted their experience. Participants recognized autism in themselves when seeing other autistic people. They indicated mental health challenges that led them to seek help from professionals, who might sometimes reject their concerns about autism. Participants found it meaningful to have an autism diagnosis or identity, but other people?s judgment would affect their self-understanding. Participants also described themselves different from the stereotypes of autism, not the same as autistic males, and were perceived by others as not autistic enough. Our findings suggested autistic women in Hong Kong faced challenges in identity development and support services. There is a need to increase awareness and knowledge about autism in professionals and the public. Understanding how unique cultural factors that influence the identity of autistic women or individuals in Chinese cultures is important to promote their well-being. En ligne : https://dx.doi.org/10.1177/13623613241295318 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Longitudinal associations between autistic children?s anxiety and social communication differences: The moderating role of executive function behaviours / Elise NG-CORDELL in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1058-1071 Titre : Longitudinal associations between autistic children?s anxiety and social communication differences: The moderating role of executive function behaviours Type de document : Texte imprimé et/ou numérique Auteurs : Elise NG-CORDELL, Auteur ; Hannah PICKARD, Auteur ; Rachael BEDFORD, Auteur ; Annie RICHARD, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Eric DUKU, Auteur ; Teresa BENNETT, Auteur ; Stelios GEORGIADES, Auteur ; Isabel M SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Peter SZATMARI, Auteur ; Mayada ELSABBAGH, Auteur ; Connor M KERNS, Auteur Article en page(s) : p.1058-1071 Langues : Anglais (eng) Mots-clés : autism  anxiety  social communication  executive function Index. décimale : PER Périodiques Résumé : Anxiety has been associated with social communication and interaction differences among autistic children. We sought to clarify the direction of these associations longitudinally, and test executive function as a moderator. Participants were autistic children (N = 157; 15% female, 85% male) engaged in a longitudinal study. Analyses focused on two timepoints during preadolescence (M ages 9.7 and 10.7?years). A cross-lagged panel model tested whether parent-reported anxiety at age 9?years predicted teacher-reported social communication and interaction differences at age 10?years, and vice versa. Next, multigroup analyses tested for similarity in cross-lagged pathways at different levels of teacher-reported metacognition and behavioural regulation (two facets of executive function). At each time point, respectively, 22% and 21% of children had anxiety exceeding a suggested clinical threshold. Longitudinal associations between parent-reported anxiety and teacher-reported social communication and interaction differences were not significant in the full sample. However, multigroup analyses found lower levels of parent-reported anxiety at age 9?years predicted greater teacher-reported social communication and interaction differences at age 10?years among participants with clinically elevated behavioural dysregulation. Findings indicate low levels of anxiety, coupled with behavioural dysregulation, may signify potential for increasing social communication and interaction differences observed by teachers among autistic children entering adolescence.Lay abstract Anxiety is a mental health concern affecting many autistic children, and has been linked to greater differences in social communication and interaction style. Executive functioning (i.e. the ability to direct and regulate attention and behaviour) plays an important role in autistic children?s social-emotional development. We tested whether anxiety (reported by parents) predicts social communication and interaction differences (reported by teachers) over time or vice versa among autistic preadolescents. We also investigated whether the link between anxiety and social communication and interaction differed depending on children?s EF abilities (reported by teachers). We found less parent-reported anxiety predicted more teacher-reported social communication and interaction differences a year later - but only for children who had heightened behavioural dysregulation (an aspect of executive functioning that includes impulse and emotion control). Our work suggests autistic preadolescents with behavioural dysregulation and limited anxiety may be at greater risk for social difficulties, and may need more support in this area. Executive functioning may be a useful mechanism to target in treatment for this group of children. En ligne : https://dx.doi.org/10.1177/13623613241296589 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Longitudinal associations between autistic children?s anxiety and social communication differences: The moderating role of executive function behaviours [Texte imprimé et/ou numérique] / Elise NG-CORDELL, Auteur ; Hannah PICKARD, Auteur ; Rachael BEDFORD, Auteur ; Annie RICHARD, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Eric DUKU, Auteur ; Teresa BENNETT, Auteur ; Stelios GEORGIADES, Auteur ; Isabel M SMITH, Auteur ; Tracy VAILLANCOURT, Auteur ; Peter SZATMARI, Auteur ; Mayada ELSABBAGH, Auteur ; Connor M KERNS, Auteur . - p.1058-1071. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1058-1071 Mots-clés : autism  anxiety  social communication  executive function Index. décimale : PER Périodiques Résumé : Anxiety has been associated with social communication and interaction differences among autistic children. We sought to clarify the direction of these associations longitudinally, and test executive function as a moderator. Participants were autistic children (N = 157; 15% female, 85% male) engaged in a longitudinal study. Analyses focused on two timepoints during preadolescence (M ages 9.7 and 10.7?years). A cross-lagged panel model tested whether parent-reported anxiety at age 9?years predicted teacher-reported social communication and interaction differences at age 10?years, and vice versa. Next, multigroup analyses tested for similarity in cross-lagged pathways at different levels of teacher-reported metacognition and behavioural regulation (two facets of executive function). At each time point, respectively, 22% and 21% of children had anxiety exceeding a suggested clinical threshold. Longitudinal associations between parent-reported anxiety and teacher-reported social communication and interaction differences were not significant in the full sample. However, multigroup analyses found lower levels of parent-reported anxiety at age 9?years predicted greater teacher-reported social communication and interaction differences at age 10?years among participants with clinically elevated behavioural dysregulation. Findings indicate low levels of anxiety, coupled with behavioural dysregulation, may signify potential for increasing social communication and interaction differences observed by teachers among autistic children entering adolescence.Lay abstract Anxiety is a mental health concern affecting many autistic children, and has been linked to greater differences in social communication and interaction style. Executive functioning (i.e. the ability to direct and regulate attention and behaviour) plays an important role in autistic children?s social-emotional development. We tested whether anxiety (reported by parents) predicts social communication and interaction differences (reported by teachers) over time or vice versa among autistic preadolescents. We also investigated whether the link between anxiety and social communication and interaction differed depending on children?s EF abilities (reported by teachers). We found less parent-reported anxiety predicted more teacher-reported social communication and interaction differences a year later - but only for children who had heightened behavioural dysregulation (an aspect of executive functioning that includes impulse and emotion control). Our work suggests autistic preadolescents with behavioural dysregulation and limited anxiety may be at greater risk for social difficulties, and may need more support in this area. Executive functioning may be a useful mechanism to target in treatment for this group of children. En ligne : https://dx.doi.org/10.1177/13623613241296589 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Validating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder / Norton KITANISHI in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1072-1079 Titre : Validating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Norton KITANISHI, Auteur ; Daniela BORDINI, Auteur ; Marcos V V RIBEIRO, Auteur ; Cristiane Silvestre PAULA, Auteur ; Helena BRENTANI, Auteur ; Joana PORTELESE, Auteur ; Pamela J SURKAN, Auteur ; Silvia S MARTINS, Auteur ; Jair de JESUS MARI, Auteur ; Paola Matiko MARTINS OKUDA, Auteur ; Sheila C CAETANO, Auteur Article en page(s) : p.1072-1079 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  child behavior  diagnosis  screening  validity Index. décimale : PER Périodiques Résumé : Early identification of autism spectrum disorder through cost-effective screening is crucial in low- and middle-income countries. The Child Behavior Checklist 1.5-5, using the Autism Spectrum Problems and Withdrawn Syndrome subscales, has potential as a level 1 autism spectrum disorder screening tool, though its construct validity in low- and middle-income countries remains underexplored. We aimed to validate the Child Behavior Checklist 1.5-5 for autism spectrum disorder screening in a representative sample of 1292 Brazilian children aged 3-5?years and 70 autism spectrum disorder children aged 1-5?years. Confirmatory factor analysis evaluated model fit indices and correlation strength between Child Behavior Checklist items and autism spectrum disorder diagnoses. Receiver operating characteristic curves assessed the optimal cutoff score. The Autism Spectrum Problems model demonstrated good fit and reliability (comparative fit index = 0.96, root mean square error of approximation = 0.037, ? = 0.869), as did the Withdrawn Syndrome model (comparative fit index = 0.974, root mean square error of approximation = 0.034, ? = 0.776), with one item per model showing low factor loadings. A cutoff score of 6 on the Autism Spectrum Problems yielded 82.5% sensitivity and 83.4% specificity, while a cutoff of 4 on the Withdrawn scale resulted in 87.9% sensitivity and 82.2% specificity. The Child Behavior Checklist 1.5-5 Autism Spectrum Problems and Withdrawn scales are reliable level 1 autism spectrum disorder screeners for Brazilian children, with good internal consistency and construct validity.Lay abstract Early identification of Autism Spectrum Disorder is very important, especially in low and middle-income countries, where access to resources is often limited. The Child Behavior Checklist 1.5-5 is a tool that has been used to help identify children with autism spectrum disorder through specific behavior patterns. However, its effectiveness in low- and middle-income country settings has not been thoroughly studied. This research focused on evaluating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder among Brazilian children. The study involved 1292 children aged 3-5?years from the general population and 70 children with autism spectrum disorder aged 1-5?years. Using advanced statistical methods, the study tested how well the Child Behavior Checklist identified children with autism spectrum disorder and how reliable it was in this context. The findings showed that the Child Behavior Checklist 1.5-5 performed well in identifying autism spectrum disorder, with high reliability and consistency in the results. Although one item in each of the autism spectrum problems and withdrawn syndrome subscales did not perform as strongly, the overall tool was effective. In summary, the Child Behavior Checklist 1.5-5 proves to be a reliable and valid tool for early autism spectrum disorder screening in Brazilian children. This can help ensure that more children in low- and middle-income country settings are identified early and receive the necessary support and interventions to help them thrive. Future research should continue to test this tool in different contexts to confirm its usefulness across various populations. En ligne : https://dx.doi.org/10.1177/13623613241293088 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Validating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder [Texte imprimé et/ou numérique] / Norton KITANISHI, Auteur ; Daniela BORDINI, Auteur ; Marcos V V RIBEIRO, Auteur ; Cristiane Silvestre PAULA, Auteur ; Helena BRENTANI, Auteur ; Joana PORTELESE, Auteur ; Pamela J SURKAN, Auteur ; Silvia S MARTINS, Auteur ; Jair de JESUS MARI, Auteur ; Paola Matiko MARTINS OKUDA, Auteur ; Sheila C CAETANO, Auteur . - p.1072-1079. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1072-1079 Mots-clés : autism spectrum disorder  child behavior  diagnosis  screening  validity Index. décimale : PER Périodiques Résumé : Early identification of autism spectrum disorder through cost-effective screening is crucial in low- and middle-income countries. The Child Behavior Checklist 1.5-5, using the Autism Spectrum Problems and Withdrawn Syndrome subscales, has potential as a level 1 autism spectrum disorder screening tool, though its construct validity in low- and middle-income countries remains underexplored. We aimed to validate the Child Behavior Checklist 1.5-5 for autism spectrum disorder screening in a representative sample of 1292 Brazilian children aged 3-5?years and 70 autism spectrum disorder children aged 1-5?years. Confirmatory factor analysis evaluated model fit indices and correlation strength between Child Behavior Checklist items and autism spectrum disorder diagnoses. Receiver operating characteristic curves assessed the optimal cutoff score. The Autism Spectrum Problems model demonstrated good fit and reliability (comparative fit index = 0.96, root mean square error of approximation = 0.037, ? = 0.869), as did the Withdrawn Syndrome model (comparative fit index = 0.974, root mean square error of approximation = 0.034, ? = 0.776), with one item per model showing low factor loadings. A cutoff score of 6 on the Autism Spectrum Problems yielded 82.5% sensitivity and 83.4% specificity, while a cutoff of 4 on the Withdrawn scale resulted in 87.9% sensitivity and 82.2% specificity. The Child Behavior Checklist 1.5-5 Autism Spectrum Problems and Withdrawn scales are reliable level 1 autism spectrum disorder screeners for Brazilian children, with good internal consistency and construct validity.Lay abstract Early identification of Autism Spectrum Disorder is very important, especially in low and middle-income countries, where access to resources is often limited. The Child Behavior Checklist 1.5-5 is a tool that has been used to help identify children with autism spectrum disorder through specific behavior patterns. However, its effectiveness in low- and middle-income country settings has not been thoroughly studied. This research focused on evaluating the Child Behavior Checklist 1.5-5 as a screening tool for autism spectrum disorder among Brazilian children. The study involved 1292 children aged 3-5?years from the general population and 70 children with autism spectrum disorder aged 1-5?years. Using advanced statistical methods, the study tested how well the Child Behavior Checklist identified children with autism spectrum disorder and how reliable it was in this context. The findings showed that the Child Behavior Checklist 1.5-5 performed well in identifying autism spectrum disorder, with high reliability and consistency in the results. Although one item in each of the autism spectrum problems and withdrawn syndrome subscales did not perform as strongly, the overall tool was effective. In summary, the Child Behavior Checklist 1.5-5 proves to be a reliable and valid tool for early autism spectrum disorder screening in Brazilian children. This can help ensure that more children in low- and middle-income country settings are identified early and receive the necessary support and interventions to help them thrive. Future research should continue to test this tool in different contexts to confirm its usefulness across various populations. En ligne : https://dx.doi.org/10.1177/13623613241293088 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552

Short report on a distinct electroencephalogram endophenotype for MTHFR gene variation co-occurring in autism spectrum disorder / Uchenna EZEDINMA in Autism, 29-4 (April 2025)  

Public ISBD [article]  inAutism > 29-4 (April 2025) . - p.1080-1086 Titre : Short report on a distinct electroencephalogram endophenotype for MTHFR gene variation co-occurring in autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Uchenna EZEDINMA, Auteur ; Evan JONES, Auteur ; Alexander RING, Auteur ; Spencer MILLER, Auteur ; Andrew LADHAMS, Auteur ; Shauna FJAAGESUND, Auteur ; Terri DOWNER, Auteur ; Gary CAMPBELL, Auteur ; Florin OPRESCU, Auteur Article en page(s) : p.1080-1086 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  children  electroencephalography  gene variant  methylenetetrahydrofolate reductase Index. décimale : PER Périodiques Résumé : Anecdotal reports link a distinct, bilateral, parieto-temporally generated 4.5-Hz rhythm on an electroencephalogram to a methylenetetrahydrofolate reductase gene variant co-occurring in autism spectrum disorder, but the validation of its precision is needed. The electroencephalograms of children with autism spectrum disorder showing the distinct bilateral parieto-temporally generated 4.5-Hz rhythm and their clinical chart report on polymerase chain reaction screening for methylenetetrahydrofolate reductase gene variants, 677C>T and 1298A>C, were retrieved from an outpatient clinic between February 2019 and April 2024. Twenty-five cases were identified. Patients were between 2 and 12 (7?+?3) years old from Asian (n = 16, 64%), European (n = 5, 20%), African (n = 1, 4%) and mixed (n = 3, 12%) ethnicities. Twenty patients (80%) were positive for 677?C>Theterozygous (n = 3, 15%), 1298A>Cheterozygous (n = 8, 40%) or both (n = 9, 45%). The polymerase chain reaction testing detected neither variant in 5 (20%) patients. Therefore, the electroencephalogram-endophenotype showed 80% precision in identifying methylenetetrahydrofolate reductase gene variant within the sample. This preliminary data support the precision of the proposed distinct, bilateral, parieto-temporally generated 4.5-Hz rhythm in identifying methylenetetrahydrofolate reductase gene variants and its potential clinical applications as a valuable, non-invasive and objective measure within the population.Lay abstract Methylenetetrahydrofolate reductase mutations refer to genetic variations in the methylenetetrahydrofolate reductase enzyme, which plays an important role in folate metabolism. Folate is essential for neural development and signalling. Children with autism spectrum disorder have atypical neural signals compared with control. This study used a non-invasive method to identify a distinct neural signal that may be useful in future screening for methylenetetrahydrofolate reductase mutation in children with autism spectrum disorder. Given that the underlying causes of autism spectrum disorder have multiple genetic factors and often require subjective assessment, this study introduces a potential non-invasive screening method for methylenetetrahydrofolate reductase gene mutation. This method could provide valuable biomarkers for screening and personalised treatments, offering hope for improved risk stratification and bespoke nutritional support and supplements to mitigate the impact on affected individuals and their descendants. En ligne : https://dx.doi.org/10.1177/13623613241305721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552 [article] Short report on a distinct electroencephalogram endophenotype for MTHFR gene variation co-occurring in autism spectrum disorder [Texte imprimé et/ou numérique] / Uchenna EZEDINMA, Auteur ; Evan JONES, Auteur ; Alexander RING, Auteur ; Spencer MILLER, Auteur ; Andrew LADHAMS, Auteur ; Shauna FJAAGESUND, Auteur ; Terri DOWNER, Auteur ; Gary CAMPBELL, Auteur ; Florin OPRESCU, Auteur . - p.1080-1086. Langues : Anglais (eng) in Autism > 29-4 (April 2025) . - p.1080-1086 Mots-clés : autism spectrum disorder  children  electroencephalography  gene variant  methylenetetrahydrofolate reductase Index. décimale : PER Périodiques Résumé : Anecdotal reports link a distinct, bilateral, parieto-temporally generated 4.5-Hz rhythm on an electroencephalogram to a methylenetetrahydrofolate reductase gene variant co-occurring in autism spectrum disorder, but the validation of its precision is needed. The electroencephalograms of children with autism spectrum disorder showing the distinct bilateral parieto-temporally generated 4.5-Hz rhythm and their clinical chart report on polymerase chain reaction screening for methylenetetrahydrofolate reductase gene variants, 677C>T and 1298A>C, were retrieved from an outpatient clinic between February 2019 and April 2024. Twenty-five cases were identified. Patients were between 2 and 12 (7?+?3) years old from Asian (n = 16, 64%), European (n = 5, 20%), African (n = 1, 4%) and mixed (n = 3, 12%) ethnicities. Twenty patients (80%) were positive for 677?C>Theterozygous (n = 3, 15%), 1298A>Cheterozygous (n = 8, 40%) or both (n = 9, 45%). The polymerase chain reaction testing detected neither variant in 5 (20%) patients. Therefore, the electroencephalogram-endophenotype showed 80% precision in identifying methylenetetrahydrofolate reductase gene variant within the sample. This preliminary data support the precision of the proposed distinct, bilateral, parieto-temporally generated 4.5-Hz rhythm in identifying methylenetetrahydrofolate reductase gene variants and its potential clinical applications as a valuable, non-invasive and objective measure within the population.Lay abstract Methylenetetrahydrofolate reductase mutations refer to genetic variations in the methylenetetrahydrofolate reductase enzyme, which plays an important role in folate metabolism. Folate is essential for neural development and signalling. Children with autism spectrum disorder have atypical neural signals compared with control. This study used a non-invasive method to identify a distinct neural signal that may be useful in future screening for methylenetetrahydrofolate reductase mutation in children with autism spectrum disorder. Given that the underlying causes of autism spectrum disorder have multiple genetic factors and often require subjective assessment, this study introduces a potential non-invasive screening method for methylenetetrahydrofolate reductase gene mutation. This method could provide valuable biomarkers for screening and personalised treatments, offering hope for improved risk stratification and bespoke nutritional support and supplements to mitigate the impact on affected individuals and their descendants. En ligne : https://dx.doi.org/10.1177/13623613241305721 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=552