Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism / Briano DI REZZE in Journal of Autism and Developmental Disorders, 52-12 (December 2022)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5150-5161 Titre : Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism Type de document : texte imprimé Auteurs : Briano DI REZZE, Auteur ; Stephen J. GENTLES, Auteur ; Mary Jo Cooley HIDECKER, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Peter L. ROSENBAUM, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Caroline RONCADIN, Auteur ; Hanna FANG, Auteur ; Diana J. TAJIK-PARVINCHI, Auteur ; Helena VIVEIROS, Auteur Année de publication : 2022 Article en page(s) : p.5150-5161 Langues : Anglais (eng) Mots-clés : Child  Adolescent  Humans  Aged  Child, Preschool  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Reproducibility of Results  Communication  Parents  Autism spectrum disorder  Childhood  Classification  International classification of functioning  Social communication Index. décimale : PER Périodiques Résumé : The Autism Classification System of Functioning: Social Communication (ACSF) describes social communication functioning levels. First developed for preschoolers with ASD, this study tests an expanded age range (2-to-18 years). The ACFS rates the child's typical and best (i.e., capacity) performance. Qualitative methods tested parent and clinician perspectives of the ACSF age expansion using content analysis. The ACSF was used twice by parents and professionals for the same child/youth. Reliabilities were assessed using weighted kappa. Content validity supported the ACSF's applicability, clarity, and usability. The ACSF adaptations did not change its original construct. Reliability were calculated from 90 parent and professional Time-1 and Time-2 ratings for children/youth (2.1-15.6 years). Results showed good-to-very good intra-rater agreement (typical) and good inter-rater agreement (capacity). En ligne : http://dx.doi.org/10.1007/s10803-022-05621-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489 [article] Adaptation, Content Validity and Reliability of the Autism Classification System of Functioning for Social Communication: From Toddlerhood to Adolescent-Aged Children with Autism [texte imprimé] / Briano DI REZZE, Auteur ; Stephen J. GENTLES, Auteur ; Mary Jo Cooley HIDECKER, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Peter L. ROSENBAUM, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Caroline RONCADIN, Auteur ; Hanna FANG, Auteur ; Diana J. TAJIK-PARVINCHI, Auteur ; Helena VIVEIROS, Auteur . - 2022 . - p.5150-5161. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 52-12 (December 2022) . - p.5150-5161 Mots-clés : Child  Adolescent  Humans  Aged  Child, Preschool  Autism Spectrum Disorder  Autistic Disorder/diagnosis  Reproducibility of Results  Communication  Parents  Autism spectrum disorder  Childhood  Classification  International classification of functioning  Social communication Index. décimale : PER Périodiques Résumé : The Autism Classification System of Functioning: Social Communication (ACSF) describes social communication functioning levels. First developed for preschoolers with ASD, this study tests an expanded age range (2-to-18 years). The ACFS rates the child's typical and best (i.e., capacity) performance. Qualitative methods tested parent and clinician perspectives of the ACSF age expansion using content analysis. The ACSF was used twice by parents and professionals for the same child/youth. Reliabilities were assessed using weighted kappa. Content validity supported the ACSF's applicability, clarity, and usability. The ACSF adaptations did not change its original construct. Reliability were calculated from 90 parent and professional Time-1 and Time-2 ratings for children/youth (2.1-15.6 years). Results showed good-to-very good intra-rater agreement (typical) and good inter-rater agreement (capacity). En ligne : http://dx.doi.org/10.1007/s10803-022-05621-z Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=489

Alexithymia in Parents of Children with Autism Spectrum Disorder / Peter SZATMARI in Journal of Autism and Developmental Disorders, 38-10 (November 2008)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 38-10 (November 2008) . - p.1859-1865 Titre : Alexithymia in Parents of Children with Autism Spectrum Disorder Type de document : texte imprimé Auteurs : Peter SZATMARI, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Stelios GEORGIADES, Auteur ; Jeremy GOLDBERG, Auteur ; Terry BENNETT, Auteur ; Eric DUKU, Auteur Année de publication : 2008 Article en page(s) : p.1859-1865 Langues : Anglais (eng) Mots-clés : Autism Broader-autism-phenotype Emotion-processing Alexithymia Intermediate-phenotype Index. décimale : PER Périodiques Résumé : Given the recent findings regarding the association between alexithymia and Autism Spectrum Disorder (ASD) and the accumulating evidence for the presence of the Broader Autism Phenotype (BAP) in relatives of individuals with ASD, we further explored the construct of alexithymia in parents of children with ASD as a potential part of the BAP. We hypothesized that (a) parents of children with ASD will demonstrate higher impairment in their emotion processing when compared to controls, and (b) high impairment in emotion processing in parents will be associated with severity of symptoms in children with ASD. Psychometric and diagnostic data were collected on 188 children with a diagnosis of ASD. The Toronto Alexithymia Scale (TAS-20) was completed by 439 parents of children with ASD and a control group of 45 parents of children with Prader Willi syndrome (PW). Results show that ASD parents score higher than controls on the TAS-20 total score. Within the ASD group, children of fathers with high alexithymia score higher on repetitive behaviour symptoms compared to children of fathers with low alexithymia. The alexithymia trait appears to be one of the many building blocks that make up the BAP. En ligne : http://dx.doi.org/10.1007/s10803-008-0576-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=641 [article] Alexithymia in Parents of Children with Autism Spectrum Disorder [texte imprimé] / Peter SZATMARI, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Stelios GEORGIADES, Auteur ; Jeremy GOLDBERG, Auteur ; Terry BENNETT, Auteur ; Eric DUKU, Auteur . - 2008 . - p.1859-1865. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 38-10 (November 2008) . - p.1859-1865 Mots-clés : Autism Broader-autism-phenotype Emotion-processing Alexithymia Intermediate-phenotype Index. décimale : PER Périodiques Résumé : Given the recent findings regarding the association between alexithymia and Autism Spectrum Disorder (ASD) and the accumulating evidence for the presence of the Broader Autism Phenotype (BAP) in relatives of individuals with ASD, we further explored the construct of alexithymia in parents of children with ASD as a potential part of the BAP. We hypothesized that (a) parents of children with ASD will demonstrate higher impairment in their emotion processing when compared to controls, and (b) high impairment in emotion processing in parents will be associated with severity of symptoms in children with ASD. Psychometric and diagnostic data were collected on 188 children with a diagnosis of ASD. The Toronto Alexithymia Scale (TAS-20) was completed by 439 parents of children with ASD and a control group of 45 parents of children with Prader Willi syndrome (PW). Results show that ASD parents score higher than controls on the TAS-20 total score. Within the ASD group, children of fathers with high alexithymia score higher on repetitive behaviour symptoms compared to children of fathers with low alexithymia. The alexithymia trait appears to be one of the many building blocks that make up the BAP. En ligne : http://dx.doi.org/10.1007/s10803-008-0576-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=641

Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities / Rackeb TESFAYE in Autism, 23-8 (November 2019)  

Public ISBD [article]  inAutism > 23-8 (November 2019) . - p.1882-1896 Titre : Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities Type de document : texte imprimé Auteurs : Rackeb TESFAYE, Auteur ; Valérie COURCHESNE, Auteur ; Afiqah YUSUF, Auteur ; Tal SAVION-LEMIEUX, Auteur ; Ilina SINGH, Auteur ; Keiko SHIKAKO-THOMAS, Auteur ; Pat MIRENDA, Auteur ; Charlotte WADDELL, Auteur ; Isabel M. SMITH, Auteur ; David B. NICHOLAS, Auteur ; Peter SZATMARI, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; Tracy VAILLANCOURT, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Mayada ELSABBAGH, Auteur Article en page(s) : p.1882-1896 Langues : Anglais (eng) Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407 [article] Assuming ability of youth with autism: Synthesis of methods capturing the first-person perspectives of children and youth with disabilities [texte imprimé] / Rackeb TESFAYE, Auteur ; Valérie COURCHESNE, Auteur ; Afiqah YUSUF, Auteur ; Tal SAVION-LEMIEUX, Auteur ; Ilina SINGH, Auteur ; Keiko SHIKAKO-THOMAS, Auteur ; Pat MIRENDA, Auteur ; Charlotte WADDELL, Auteur ; Isabel M. SMITH, Auteur ; David B. NICHOLAS, Auteur ; Peter SZATMARI, Auteur ; Teresa BENNETT, Auteur ; Eric DUKU, Auteur ; Stelios GEORGIADES, Auteur ; Connor M. KERNS, Auteur ; Tracy VAILLANCOURT, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Mayada ELSABBAGH, Auteur . - p.1882-1896. Langues : Anglais (eng) in Autism > 23-8 (November 2019) . - p.1882-1896 Mots-clés : Autism  disabilities  first-person perspective  inclusion  lived experience  participatory research Index. décimale : PER Périodiques Résumé : Most research regarding youth with autism spectrum disorder has not focused on their first-person perspectives providing limited insight into methodologies best suited to eliciting their voices. We conducted a synthesis of methods previously used to obtain the first-person perspectives of youth with various disabilities, which may be applicable to youth with autism spectrum disorder. Two-hundred and eighty-four articles met the inclusion criteria of our scoping review. We identified six distinct primary methods (questionnaires, interviews, group discussion, narratives, diaries, and art) expressed through four communication output modalities (language, sign language and gestures, writing, and images). A group of parents who have children with autism spectrum disorder were then presented with a synthesis of results. This parent consultation was used to build on approaches identified in the literature. Parents identified barriers that may be encountered during participant engagement and provided insights on how best to conduct first-person research with youth with autism spectrum disorder. Based on our findings, we present a novel methodological framework to capture the perspectives of youth with various communication and cognitive abilities, while highlighting family, youth, and expert contributions. En ligne : http://dx.doi.org/10.1177/1362361319831487 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=407

Behavior profiles of children with autism spectrum disorder in kindergarten: Comparison with other developmental disabilities and typically developing children / Magdalena JANUS in Autism Research, 11-3 (March 2018)  

Public ISBD [article]  inAutism Research > 11-3 (March 2018) . - p.410-420 Titre : Behavior profiles of children with autism spectrum disorder in kindergarten: Comparison with other developmental disabilities and typically developing children Type de document : texte imprimé Auteurs : Magdalena JANUS, Auteur ; Emma MAUTI, Auteur ; Matt HORNER, Auteur ; Eric DUKU, Auteur ; Ayesha SIDDIQUA, Auteur ; Scott DAVIES, Auteur Article en page(s) : p.410-420 Langues : Anglais (eng) Mots-clés : Early Development Instrument  autism spectrum disorder  behavior  developmental disabilities  kindergarten Index. décimale : PER Périodiques Résumé : Monitoring behavior patterns that may be specific to autism spectrum disorder (ASD) at a population level has the potential to improve the allocation of intervention strategies and reduction of the burden of the disease. In Ontario, Canada, developmental data are regularly collected for all kindergarten children with the Early Development Instrument (EDI), a teacher-completed questionnaire that provides information on children's status in five domains: physical, social, emotional, language/cognitive, and communication/general knowledge. Our main research questions are: (a) are there differences in kindergarten EDI domain scores between children who are diagnosed with ASD by Grade 3 and those who develop typically or have other disabilities?; (b) do these differences show a different pattern in relation to an early (by kindergarten) or late (by Grade 3) diagnosis?; and (c) are there specific subdomains on the EDI that demonstrate a consistent pattern of differences? EDI domain and subdomain scores were compared among groups using multivariate analysis of variance controlling for age, gender, EDI year, and EDI year by age interaction. Children with ASD, regardless of timing of identification, had significantly lower scores on all domains of the EDI than typically developing children. Children with later ASD diagnosis had higher scores in kindergarten in cognitive areas but lower scores in social-emotional areas than children with other disabilities. These findings support the potential of the EDI to monitor ASD-like behaviors at the population level. Autism Res 2018, 11: 410-420. (c) 2017 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Identifying behavior patterns among kindergarten children that may be specific to autism spectrum disorder (ASD) at a population level has the potential to improve intervention strategies and thus reduce the burden of the disease. In Ontario, Canada, developmental data are regularly collected with the Early Development Instrument (EDI) for all kindergarten children. The behavior in kindergarten of a sub-population of children diagnosed with developmental disabilities by age 9 is investigated here for patterns that may distinguish children with ASD from those with other disorders. Children with later ASD diagnosis had higher scores in kindergarten in cognitive areas but lower scores in social-emotional areas than children with other disabilities, indicating meaningful differences between those groups even before diagnosis. These results support the potential of using the EDI to monitor ASD-like behaviors at the population level. En ligne : http://dx.doi.org/10.1002/aur.1904 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352 [article] Behavior profiles of children with autism spectrum disorder in kindergarten: Comparison with other developmental disabilities and typically developing children [texte imprimé] / Magdalena JANUS, Auteur ; Emma MAUTI, Auteur ; Matt HORNER, Auteur ; Eric DUKU, Auteur ; Ayesha SIDDIQUA, Auteur ; Scott DAVIES, Auteur . - p.410-420. Langues : Anglais (eng) in Autism Research > 11-3 (March 2018) . - p.410-420 Mots-clés : Early Development Instrument  autism spectrum disorder  behavior  developmental disabilities  kindergarten Index. décimale : PER Périodiques Résumé : Monitoring behavior patterns that may be specific to autism spectrum disorder (ASD) at a population level has the potential to improve the allocation of intervention strategies and reduction of the burden of the disease. In Ontario, Canada, developmental data are regularly collected for all kindergarten children with the Early Development Instrument (EDI), a teacher-completed questionnaire that provides information on children's status in five domains: physical, social, emotional, language/cognitive, and communication/general knowledge. Our main research questions are: (a) are there differences in kindergarten EDI domain scores between children who are diagnosed with ASD by Grade 3 and those who develop typically or have other disabilities?; (b) do these differences show a different pattern in relation to an early (by kindergarten) or late (by Grade 3) diagnosis?; and (c) are there specific subdomains on the EDI that demonstrate a consistent pattern of differences? EDI domain and subdomain scores were compared among groups using multivariate analysis of variance controlling for age, gender, EDI year, and EDI year by age interaction. Children with ASD, regardless of timing of identification, had significantly lower scores on all domains of the EDI than typically developing children. Children with later ASD diagnosis had higher scores in kindergarten in cognitive areas but lower scores in social-emotional areas than children with other disabilities. These findings support the potential of the EDI to monitor ASD-like behaviors at the population level. Autism Res 2018, 11: 410-420. (c) 2017 International Society for Autism Research, Wiley Periodicals, Inc. LAY SUMMARY: Identifying behavior patterns among kindergarten children that may be specific to autism spectrum disorder (ASD) at a population level has the potential to improve intervention strategies and thus reduce the burden of the disease. In Ontario, Canada, developmental data are regularly collected with the Early Development Instrument (EDI) for all kindergarten children. The behavior in kindergarten of a sub-population of children diagnosed with developmental disabilities by age 9 is investigated here for patterns that may distinguish children with ASD from those with other disorders. Children with later ASD diagnosis had higher scores in kindergarten in cognitive areas but lower scores in social-emotional areas than children with other disabilities, indicating meaningful differences between those groups even before diagnosis. These results support the potential of using the EDI to monitor ASD-like behaviors at the population level. En ligne : http://dx.doi.org/10.1002/aur.1904 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=352

"Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time / Katherine T. COST in Journal of Autism and Developmental Disorders, 51-12 (December 2021)  

Public ISBD [article]  inJournal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4560-4574 Titre : "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time Type de document : texte imprimé Auteurs : Katherine T. COST, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Pat MIRENDA, Auteur ; Eric DUKU, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Isabel M. SMITH, Auteur ; Wendy J. UNGAR, Auteur ; Connor M. KERNS, Auteur ; Teresa BENNETT, Auteur ; Peter SZATMARI, Auteur ; Stelios GEORGIADES, Auteur ; Charlotte WADDELL, Auteur ; Mayada ELSABBAGH, Auteur ; Tracy VAILLANCOURT, Auteur Article en page(s) : p.4560-4574 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Checklist  Child  Child, Preschool  Humans  Parents  Autism spectrum disorder  Character traits  Children  Positive psychology  Strengths Index. décimale : PER Périodiques Résumé : This study examined parental perceptions of the character traits of children with autism from early childhood to age 11. Parents (n = 153) provided descriptions of the "best things" about their children on the Child Behavior Checklist (CBCL) at ages 3-4, 7-8, and 10-11 years. Descriptions were coded using the framework of the Values in Action Classification of Strengths, with additional traits added as needed. Parent-endorsed traits included love, kindness, happiness, and humor in children across all ages and traits such as perseverance as children entered school. Higher CBCL scores were associated with a lower likelihood of endorsement for Humanity traits. Results are congruent with a contemporary neurodiversity perspective that emphasizes strengths and resilience. En ligne : http://dx.doi.org/10.1007/s10803-021-04890-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454 [article] "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time [texte imprimé] / Katherine T. COST, Auteur ; Anat ZAIDMAN-ZAIT, Auteur ; Pat MIRENDA, Auteur ; Eric DUKU, Auteur ; Lonnie ZWAIGENBAUM, Auteur ; Isabel M. SMITH, Auteur ; Wendy J. UNGAR, Auteur ; Connor M. KERNS, Auteur ; Teresa BENNETT, Auteur ; Peter SZATMARI, Auteur ; Stelios GEORGIADES, Auteur ; Charlotte WADDELL, Auteur ; Mayada ELSABBAGH, Auteur ; Tracy VAILLANCOURT, Auteur . - p.4560-4574. Langues : Anglais (eng) in Journal of Autism and Developmental Disorders > 51-12 (December 2021) . - p.4560-4574 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Checklist  Child  Child, Preschool  Humans  Parents  Autism spectrum disorder  Character traits  Children  Positive psychology  Strengths Index. décimale : PER Périodiques Résumé : This study examined parental perceptions of the character traits of children with autism from early childhood to age 11. Parents (n = 153) provided descriptions of the "best things" about their children on the Child Behavior Checklist (CBCL) at ages 3-4, 7-8, and 10-11 years. Descriptions were coded using the framework of the Values in Action Classification of Strengths, with additional traits added as needed. Parent-endorsed traits included love, kindness, happiness, and humor in children across all ages and traits such as perseverance as children entered school. Higher CBCL scores were associated with a lower likelihood of endorsement for Humanity traits. Results are congruent with a contemporary neurodiversity perspective that emphasizes strengths and resilience. En ligne : http://dx.doi.org/10.1007/s10803-021-04890-4 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=454

Characterizing the ASD-ADHD phenotype: measurement structure and invariance in a clinical sample / Aneta D. KRAKOWSKI in Journal of Child Psychology and Psychiatry, 63-12 (December 2022)  

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Comparing early language development in monolingual- and bilingual- exposed young children with autism spectrum disorders / J. Kaori OHASHI in Research in Autism Spectrum Disorders, 6-2 (April-June 2012)  

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Construct Validity of the Autism Classification System of Functioning: Social Communication (ACSF:SC) Across Childhood and Adolescence / Diana TAJIK-PARVINCHI in Journal of Autism and Developmental Disorders, 53-8 (August 2023)  

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Continuity of trajectories of autism symptom severity from infancy to childhood / Martina FRANCHINI in Journal of Child Psychology and Psychiatry, 64-6 (June 2023)  

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Correction to: "Best Things": Parents Describe Their Children with Autism Spectrum Disorder Over Time / Katherine T. COST in Journal of Autism and Developmental Disorders, 51-12 (December 2021)  

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Correction to: Profiles of Social and Coping Resources in Families of Children with Autism Spectrum Disorder: Relations to Parent and Child Outcomes / Anat ZAIDMAN-ZAIT in Journal of Autism and Developmental Disorders, 48-6 (June 2018)  

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Differentiating Autism and Asperger Syndrome on the Basis of Language Delay or Impairment / Terry BENNETT in Journal of Autism and Developmental Disorders, 38-4 (April 2008)  

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Disentangling global and domain-level adaptive behavior trajectories among children with autism spectrum disorder / Cristan FARMER in Journal of Child Psychology and Psychiatry, 64-6 (June 2023)  

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Do reciprocal associations exist between social and language pathways in preschoolers with autism spectrum disorders? / Teresa BENNETT in Journal of Child Psychology and Psychiatry, 56-8 (August 2015)  

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Early expressive and receptive language trajectories in high-risk infant siblings of children with autism spectrum disorder / Julie LONGARD in Autism & Developmental Language Impairments, 2 (January-December 2017)  

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