Dépouillements

"We believe in good jobs, fair jobs, dignifying jobs that give you a good sense of identity": Career and job guidance counseling in autism / Sven BÖLTE in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.857-861 Titre : "We believe in good jobs, fair jobs, dignifying jobs that give you a good sense of identity": Career and job guidance counseling in autism Type de document : Texte imprimé et/ou numérique Auteurs : Sven BÖLTE, Auteur Article en page(s) : p.857-861 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361321990325 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] "We believe in good jobs, fair jobs, dignifying jobs that give you a good sense of identity": Career and job guidance counseling in autism [Texte imprimé et/ou numérique] / Sven BÖLTE, Auteur . - p.857-861. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.857-861 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/1362361321990325 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 / Maarten VAN 'T HOF in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.862-873 Titre : Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 Type de document : Texte imprimé et/ou numérique Auteurs : Maarten VAN 'T HOF, Auteur ; Chanel TISSEUR, Auteur ; Ina VAN BERCKELEAR-ONNES, Auteur ; Annemyn VAN NIEUWENHUYZEN, Auteur ; Amy M. DANIELS, Auteur ; Mathijs DEEN, Auteur ; Hans W HOEK, Auteur ; Wietske A. ESTER, Auteur Article en page(s) : p.862-873 Langues : Anglais (eng) Mots-clés : age at diagnosis  autism spectrum disorder  influencing factors  meta-analysis  review Index. décimale : PER Périodiques Résumé : We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120?months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48?months (range: 30.90-234.57?months) and 43.18?months (range: 30.90-74.70?months) for studies that only included children aged ?10?years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention. En ligne : http://dx.doi.org/10.1177/1362361320971107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019 [Texte imprimé et/ou numérique] / Maarten VAN 'T HOF, Auteur ; Chanel TISSEUR, Auteur ; Ina VAN BERCKELEAR-ONNES, Auteur ; Annemyn VAN NIEUWENHUYZEN, Auteur ; Amy M. DANIELS, Auteur ; Mathijs DEEN, Auteur ; Hans W HOEK, Auteur ; Wietske A. ESTER, Auteur . - p.862-873. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.862-873 Mots-clés : age at diagnosis  autism spectrum disorder  influencing factors  meta-analysis  review Index. décimale : PER Périodiques Résumé : We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120?months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48?months (range: 30.90-234.57?months) and 43.18?months (range: 30.90-74.70?months) for studies that only included children aged ?10?years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention. En ligne : http://dx.doi.org/10.1177/1362361320971107 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

The effectiveness of physical activity interventions on communication and social functioning in autistic children and adolescents: A meta-analysis of controlled trials / John Sy CHAN in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.874-886 Titre : The effectiveness of physical activity interventions on communication and social functioning in autistic children and adolescents: A meta-analysis of controlled trials Type de document : Texte imprimé et/ou numérique Auteurs : John Sy CHAN, Auteur ; Kanfeng DENG, Auteur ; Jin H. YAN, Auteur Article en page(s) : p.874-886 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  communication  meta-analysis  physical activity  social functioning Index. décimale : PER Périodiques Résumé : Difficulty with communication and social functioning are two outstanding core symptoms of autism spectrum disorder, while there is no efficacious pharmacologic treatment available to deal with them. Traditional behavioral therapies usually require specialist therapist and be conducted in specific settings, increasing burdens on families and individuals with autism. Physical activity has long been found to promote physical and mental well-beings, and it is more affordable and versatile than traditional therapies. There is preliminary support for the use of physical activity interventions to improve communication and social functioning in individuals with autism. In this study, we quantitatively aggregate data from existing controlled trials to provide an up-to-date inquiry into the effectiveness of physical activity interventions on communication and social functioning in autistic children and adolescents. We included 12 trials involving 350 participants (8 trials reported communication outcomes and 11 trials reported social functioning outcomes) and found small to moderate benefits on communication and social functioning. Further analyses showed that the benefit of physical activity interventions is greater in younger participants. Results of this study suggest that physical activity interventions are effective to improve communication and social functioning in autistic children and adolescents, and early participation in the interventions can be more beneficial. Given their affordability, versatility, and efficacy, physical activity interventions could be considered a cost-effective option for autism spectrum disorder management in the future. En ligne : http://dx.doi.org/10.1177/1362361320977645 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] The effectiveness of physical activity interventions on communication and social functioning in autistic children and adolescents: A meta-analysis of controlled trials [Texte imprimé et/ou numérique] / John Sy CHAN, Auteur ; Kanfeng DENG, Auteur ; Jin H. YAN, Auteur . - p.874-886. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.874-886 Mots-clés : autism spectrum disorders  communication  meta-analysis  physical activity  social functioning Index. décimale : PER Périodiques Résumé : Difficulty with communication and social functioning are two outstanding core symptoms of autism spectrum disorder, while there is no efficacious pharmacologic treatment available to deal with them. Traditional behavioral therapies usually require specialist therapist and be conducted in specific settings, increasing burdens on families and individuals with autism. Physical activity has long been found to promote physical and mental well-beings, and it is more affordable and versatile than traditional therapies. There is preliminary support for the use of physical activity interventions to improve communication and social functioning in individuals with autism. In this study, we quantitatively aggregate data from existing controlled trials to provide an up-to-date inquiry into the effectiveness of physical activity interventions on communication and social functioning in autistic children and adolescents. We included 12 trials involving 350 participants (8 trials reported communication outcomes and 11 trials reported social functioning outcomes) and found small to moderate benefits on communication and social functioning. Further analyses showed that the benefit of physical activity interventions is greater in younger participants. Results of this study suggest that physical activity interventions are effective to improve communication and social functioning in autistic children and adolescents, and early participation in the interventions can be more beneficial. Given their affordability, versatility, and efficacy, physical activity interventions could be considered a cost-effective option for autism spectrum disorder management in the future. En ligne : http://dx.doi.org/10.1177/1362361320977645 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Altered DNA methylation in a severe subtype of idiopathic autism: Evidence for sex differences in affected metabolic pathways / Valerie W. HU in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.887-910 Titre : Altered DNA methylation in a severe subtype of idiopathic autism: Evidence for sex differences in affected metabolic pathways Type de document : Texte imprimé et/ou numérique Auteurs : Valerie W. HU, Auteur ; Yi HONG, Auteur ; Minyi XU, Auteur ; Henry T. SHU, Auteur Article en page(s) : p.887-910 Langues : Anglais (eng) Mots-clés : DNA methylation  autism  autism spectrum disorder phenotype  differentially methylated genes  lymphoblastoid cells  promoter arrays  sex differences  signaling and metabolic pathways Index. décimale : PER Périodiques Résumé : This study investigates altered DNA methylation that may contribute to autism spectrum disorders. DNA methylation is an epigenetic mechanism for regulating the level at which genes are expressed, and is thus complementary to genetics and gene expression analyses which look at the variations in gene structure and gene products in cells. Here, we identify DNA methylation differences between autistic and sex-matched non-autistic siblings, focusing on a subgroup of severely affected individuals with language impairment to reduce the clinical heterogeneity among the cases. Our results show significant differentially methylated genes between the sibling groups that are enriched in autism risk genes as well as in signaling and biochemical pathways previously associated with the pathobiology of autism spectrum disorders. Moreover, we show for the first time that these differences are in part sex dependent, with differentially methylated genes in females associated with pathways that implicate mitochondrial dysfunction and metabolic disorders that may offer some protection to females against autism spectrum disorders. Further investigations of sex differences are required to develop a fuller understanding of the pathobiology, gene regulatory mechanisms, and differential susceptibility of males and females toward autism spectrum disorders. En ligne : http://dx.doi.org/10.1177/1362361320971085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Altered DNA methylation in a severe subtype of idiopathic autism: Evidence for sex differences in affected metabolic pathways [Texte imprimé et/ou numérique] / Valerie W. HU, Auteur ; Yi HONG, Auteur ; Minyi XU, Auteur ; Henry T. SHU, Auteur . - p.887-910. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.887-910 Mots-clés : DNA methylation  autism  autism spectrum disorder phenotype  differentially methylated genes  lymphoblastoid cells  promoter arrays  sex differences  signaling and metabolic pathways Index. décimale : PER Périodiques Résumé : This study investigates altered DNA methylation that may contribute to autism spectrum disorders. DNA methylation is an epigenetic mechanism for regulating the level at which genes are expressed, and is thus complementary to genetics and gene expression analyses which look at the variations in gene structure and gene products in cells. Here, we identify DNA methylation differences between autistic and sex-matched non-autistic siblings, focusing on a subgroup of severely affected individuals with language impairment to reduce the clinical heterogeneity among the cases. Our results show significant differentially methylated genes between the sibling groups that are enriched in autism risk genes as well as in signaling and biochemical pathways previously associated with the pathobiology of autism spectrum disorders. Moreover, we show for the first time that these differences are in part sex dependent, with differentially methylated genes in females associated with pathways that implicate mitochondrial dysfunction and metabolic disorders that may offer some protection to females against autism spectrum disorders. Further investigations of sex differences are required to develop a fuller understanding of the pathobiology, gene regulatory mechanisms, and differential susceptibility of males and females toward autism spectrum disorders. En ligne : http://dx.doi.org/10.1177/1362361320971085 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

T-STAT for detecting autism spectrum disorder in toddlers aged 18-24 months / Chin-Chin WU in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.911-920 Titre : T-STAT for detecting autism spectrum disorder in toddlers aged 18-24 months Type de document : Texte imprimé et/ou numérique Auteurs : Chin-Chin WU, Auteur ; Chung-Hsin CHIANG, Auteur ; Ching-Lin CHU, Auteur ; Lai-Sang IAO, Auteur ; Yuh-Ming HOU, Auteur Article en page(s) : p.911-920 Langues : Anglais (eng) Mots-clés : autism spectrum disorder  screening  sensitivity  specificity  toddler Index. décimale : PER Périodiques Résumé : The benefits of early intervention for young children with autism spectrum disorder highlight the importance of early diagnosis. Reliable diagnoses of autism spectrum disorder can be made before 24?months of age. However, many children are diagnosed with autism spectrum disorder at a later age. Delayed diagnosis can occur for children with less severe symptoms and lead to missed opportunities for early intervention. This current study was executed to examine the Taiwanese version of the Screening Tool for Autism in Two-Year-Olds in detecting autism spectrum disorder in toddlers between 18 and 24?months of age. One strength of this study was the inclusion of toddlers with autism spectrum disorder or mild-autism spectrum disorder using the strict and relaxed Diagnostic and Statistical Manual of Mental Disorders (5th ed.) criteria for autism spectrum disorder simultaneously. The results of this study supported that diagnosis of toddlers with autism spectrum disorder could be made reliable before 24?months of age. And the Taiwanese version of the Screening Tool for Autism in Two-Year-Olds was a Level 2 autism-specific screening tool for toddlers aged from 18 to 24?months in Taiwan. En ligne : http://dx.doi.org/10.1177/1362361320972300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] T-STAT for detecting autism spectrum disorder in toddlers aged 18-24 months [Texte imprimé et/ou numérique] / Chin-Chin WU, Auteur ; Chung-Hsin CHIANG, Auteur ; Ching-Lin CHU, Auteur ; Lai-Sang IAO, Auteur ; Yuh-Ming HOU, Auteur . - p.911-920. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.911-920 Mots-clés : autism spectrum disorder  screening  sensitivity  specificity  toddler Index. décimale : PER Périodiques Résumé : The benefits of early intervention for young children with autism spectrum disorder highlight the importance of early diagnosis. Reliable diagnoses of autism spectrum disorder can be made before 24?months of age. However, many children are diagnosed with autism spectrum disorder at a later age. Delayed diagnosis can occur for children with less severe symptoms and lead to missed opportunities for early intervention. This current study was executed to examine the Taiwanese version of the Screening Tool for Autism in Two-Year-Olds in detecting autism spectrum disorder in toddlers between 18 and 24?months of age. One strength of this study was the inclusion of toddlers with autism spectrum disorder or mild-autism spectrum disorder using the strict and relaxed Diagnostic and Statistical Manual of Mental Disorders (5th ed.) criteria for autism spectrum disorder simultaneously. The results of this study supported that diagnosis of toddlers with autism spectrum disorder could be made reliable before 24?months of age. And the Taiwanese version of the Screening Tool for Autism in Two-Year-Olds was a Level 2 autism-specific screening tool for toddlers aged from 18 to 24?months in Taiwan. En ligne : http://dx.doi.org/10.1177/1362361320972300 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Generosity of state insurance mandates and growth in the workforce for autism spectrum disorder / Ryan K. MCBAIN in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.921-931 Titre : Generosity of state insurance mandates and growth in the workforce for autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Ryan K. MCBAIN, Auteur ; Jonathan H. CANTOR, Auteur ; Aaron KOFNER, Auteur ; Timothy CALLAGHAN, Auteur ; Bradley D. STEIN, Auteur ; Hao. YU, Auteur Article en page(s) : p.921-931 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  health services  policy  vocational/labor force participation Index. décimale : PER Périodiques Résumé : To improve access to health services for children with autism spectrum disorder, US states have passed laws requiring health insurers to cover autism-related care, commonly known as state insurance mandates. However, the features of mandates differ across states, with some state laws containing very generous provisions and others containing very restrictive provisions such as whether the mandates include children aged above 12?years, whether there is a limit on spending, and whether there are restrictions on the types of services covered. This study examined the relationship between generosity of mandates and growth in the health workforce between 2003 and 2017, a period during which 44 states passed mandates. We found that states that enacted more generous mandates experienced significantly more growth in board-certified behavioral analysts who provide behavioral therapy as well as more growth in child psychiatrists. We did not find differences in the growth of pediatricians, which is a less specialized segment of the workforce. Our findings were consistent across eight different mandate features and suggest that the content of legislation may be as important as whether or not legislation has been passed in terms of encouraging growth in the supply of services for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320976744 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Generosity of state insurance mandates and growth in the workforce for autism spectrum disorder [Texte imprimé et/ou numérique] / Ryan K. MCBAIN, Auteur ; Jonathan H. CANTOR, Auteur ; Aaron KOFNER, Auteur ; Timothy CALLAGHAN, Auteur ; Bradley D. STEIN, Auteur ; Hao. YU, Auteur . - p.921-931. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.921-931 Mots-clés : autism spectrum disorders  health services  policy  vocational/labor force participation Index. décimale : PER Périodiques Résumé : To improve access to health services for children with autism spectrum disorder, US states have passed laws requiring health insurers to cover autism-related care, commonly known as state insurance mandates. However, the features of mandates differ across states, with some state laws containing very generous provisions and others containing very restrictive provisions such as whether the mandates include children aged above 12?years, whether there is a limit on spending, and whether there are restrictions on the types of services covered. This study examined the relationship between generosity of mandates and growth in the health workforce between 2003 and 2017, a period during which 44 states passed mandates. We found that states that enacted more generous mandates experienced significantly more growth in board-certified behavioral analysts who provide behavioral therapy as well as more growth in child psychiatrists. We did not find differences in the growth of pediatricians, which is a less specialized segment of the workforce. Our findings were consistent across eight different mandate features and suggest that the content of legislation may be as important as whether or not legislation has been passed in terms of encouraging growth in the supply of services for children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320976744 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Autism screening and conditional cash transfers in Chile: Using the Quantitative Checklist (Q-CHAT) for early autism detection in a low resource setting / Andres ROMAN-URRESTARAZU in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.932-945 Titre : Autism screening and conditional cash transfers in Chile: Using the Quantitative Checklist (Q-CHAT) for early autism detection in a low resource setting Type de document : Texte imprimé et/ou numérique Auteurs : Andres ROMAN-URRESTARAZU, Auteur ; Carolina YAÑEZ, Auteur ; Claudia LOPEZ-GARI, Auteur ; Constanza ELGUETA, Auteur ; Carrie ALLISON, Auteur ; Carol BRAYNE, Auteur ; Mónica TRONCOSO, Auteur ; Simon BARON-COHEN, Auteur Article en page(s) : p.932-945 Langues : Anglais (eng) Mots-clés : Chile  Chile Crece Contigo  Q-chat  autism spectrum conditions  conditional cash transfer  epidemiology  health checks  screening Index. décimale : PER Périodiques Résumé : Getting a diagnosis of autism can take long, because autism is different across people, but also because it depends on the way it gets diagnosed. This is especially important in poorer countries or in the case of poor people living in wealthier countries that have significant groups of disadvantaged communities. We adapted a 10-item version of the Q-CHAT-25 questionnaire for use in routine health check-ups programme in Chile and recruited 287 participants under the age of three divided into three groups: Controls (125), Developmental Delay (149) and Autism Spectrum Condition (13). Our results show that a short questionnaire for autism screening can be successfully applied in a health-check programme in poor resource settings. Our results show that our questionnaire had good overall performance, not different to its longer version, the Q-CHAT-25. Our questionnaire was autism specific, with good sensitivity and reliability, and is suitable to be used in a screening setting. This study provides evidence that the implementation of Autism Spectrum Condition screening programmes using the Q-CHAT-10 provides value for money and improves diagnosis of Autism Spectrum Condition in those participating in routine health check-up programmes in developing countries or poor areas of wealthy countries. En ligne : http://dx.doi.org/10.1177/1362361320972277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Autism screening and conditional cash transfers in Chile: Using the Quantitative Checklist (Q-CHAT) for early autism detection in a low resource setting [Texte imprimé et/ou numérique] / Andres ROMAN-URRESTARAZU, Auteur ; Carolina YAÑEZ, Auteur ; Claudia LOPEZ-GARI, Auteur ; Constanza ELGUETA, Auteur ; Carrie ALLISON, Auteur ; Carol BRAYNE, Auteur ; Mónica TRONCOSO, Auteur ; Simon BARON-COHEN, Auteur . - p.932-945. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.932-945 Mots-clés : Chile  Chile Crece Contigo  Q-chat  autism spectrum conditions  conditional cash transfer  epidemiology  health checks  screening Index. décimale : PER Périodiques Résumé : Getting a diagnosis of autism can take long, because autism is different across people, but also because it depends on the way it gets diagnosed. This is especially important in poorer countries or in the case of poor people living in wealthier countries that have significant groups of disadvantaged communities. We adapted a 10-item version of the Q-CHAT-25 questionnaire for use in routine health check-ups programme in Chile and recruited 287 participants under the age of three divided into three groups: Controls (125), Developmental Delay (149) and Autism Spectrum Condition (13). Our results show that a short questionnaire for autism screening can be successfully applied in a health-check programme in poor resource settings. Our results show that our questionnaire had good overall performance, not different to its longer version, the Q-CHAT-25. Our questionnaire was autism specific, with good sensitivity and reliability, and is suitable to be used in a screening setting. This study provides evidence that the implementation of Autism Spectrum Condition screening programmes using the Q-CHAT-10 provides value for money and improves diagnosis of Autism Spectrum Condition in those participating in routine health check-up programmes in developing countries or poor areas of wealthy countries. En ligne : http://dx.doi.org/10.1177/1362361320972277 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial / Carolyn G. DIGUISEPPI in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.946-957 Titre : Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial Type de document : Texte imprimé et/ou numérique Auteurs : Carolyn G. DIGUISEPPI, Auteur ; Steven A. ROSENBERG, Auteur ; Margaret A. TOMCHO, Auteur ; Kathryn COLBORN, Auteur ; Kristina HIGHTSHOE, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Jeanette M. CORDOVA, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur Article en page(s) : p.946-957 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  early intervention  education services  patient navigation  toddlers  underserved populations Index. décimale : PER Périodiques Résumé : Young children with autism spectrum disorder can benefit from early detection and intervention to moderate autism spectrum disorder's effect on their development. Routine screening with standardized instruments facilitates early identification. However, many screen-positive children do not receive referrals for evaluation, complete diagnostic evaluations, or engage in services. This is especially true for children of color and those from less educated or low-income families. The Screening and Linkage to Services for Autism trial evaluated the effect of family navigation on referral and evaluation for autism spectrum disorder in screen-positive toddlers. The trial was conducted in an urban, low-income population. It was designed to test "real-world" implementation of family navigation. We randomly assigned 275 children aged 16-30?months with an initial positive autism spectrum disorder screen to receive navigation if indicated or usual care. Navigation increased the number of at-risk toddlers who were evaluated for autism spectrum disorder. It also improved the quality of autism spectrum disorder screening in primary care clinics. However, many children failed to receive indicated referrals for evaluation. Navigation did not improve referral rates. Furthermore, nearly half of families who were potentially eligible for navigation could not be contacted. Other ways of structuring the navigation program may be necessary to improve families' access to and acceptance of navigation, especially in the setting of financial, cultural, and linguistic barriers. Our trial nevertheless showed that family navigation may be an important tool for reducing systemic inequalities in the early identification and treatment of young children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320974175 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Family navigation to increase evaluation for autism spectrum disorder in toddlers: Screening and Linkage to Services for Autism pragmatic randomized trial [Texte imprimé et/ou numérique] / Carolyn G. DIGUISEPPI, Auteur ; Steven A. ROSENBERG, Auteur ; Margaret A. TOMCHO, Auteur ; Kathryn COLBORN, Auteur ; Kristina HIGHTSHOE, Auteur ; Silvia GUTIERREZ-RAGHUNATH, Auteur ; Jeanette M. CORDOVA, Auteur ; Jodi K. DOOLING-LITFIN, Auteur ; Cordelia ROBINSON ROSENBERG, Auteur . - p.946-957. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.946-957 Mots-clés : autism spectrum disorders  diagnosis  early intervention  education services  patient navigation  toddlers  underserved populations Index. décimale : PER Périodiques Résumé : Young children with autism spectrum disorder can benefit from early detection and intervention to moderate autism spectrum disorder's effect on their development. Routine screening with standardized instruments facilitates early identification. However, many screen-positive children do not receive referrals for evaluation, complete diagnostic evaluations, or engage in services. This is especially true for children of color and those from less educated or low-income families. The Screening and Linkage to Services for Autism trial evaluated the effect of family navigation on referral and evaluation for autism spectrum disorder in screen-positive toddlers. The trial was conducted in an urban, low-income population. It was designed to test "real-world" implementation of family navigation. We randomly assigned 275 children aged 16-30?months with an initial positive autism spectrum disorder screen to receive navigation if indicated or usual care. Navigation increased the number of at-risk toddlers who were evaluated for autism spectrum disorder. It also improved the quality of autism spectrum disorder screening in primary care clinics. However, many children failed to receive indicated referrals for evaluation. Navigation did not improve referral rates. Furthermore, nearly half of families who were potentially eligible for navigation could not be contacted. Other ways of structuring the navigation program may be necessary to improve families' access to and acceptance of navigation, especially in the setting of financial, cultural, and linguistic barriers. Our trial nevertheless showed that family navigation may be an important tool for reducing systemic inequalities in the early identification and treatment of young children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320974175 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Characterizing the early vocabulary profiles of preverbal and minimally verbal children with autism spectrum disorder / Eileen HAEBIG in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.958-970 Titre : Characterizing the early vocabulary profiles of preverbal and minimally verbal children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Eileen HAEBIG, Auteur ; Eva JIMENEZ, Auteur ; Christopher R. COX, Auteur ; Thomas T. HILLS, Auteur Article en page(s) : p.958-970 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  minimally verbal  preverbal  vocabulary Index. décimale : PER Périodiques Résumé : Although preverbal and minimally verbal children with autism spectrum disorder represent a significant portion of the autism spectrum disorder population, we have a limited understanding of and characterization of them. Although it is a given that their lexical profiles contain fewer words, it is important to determine whether (a) the words preverbal and minimally verbal children with autism spectrum disorder produce are similar to the first words typically developing children produce or (b) there are unique features of the limited words that preverbal and minimally verbal children with autism spectrum disorder produce. The current study compared the early word profiles of preverbal and minimally verbal children with autism spectrum disorder to vocabulary-matched typically developing toddlers. Children with autism spectrum disorder produced proportionally more verbs than typically developing toddlers. Also, children with autism spectrum disorder produced proportionally more action and food words, while typically developing toddlers produced proportionally more animal words, animal sounds and sound effects, and people words. Children with autism spectrum disorder also produced "mommy" and "daddy" at lower rates. Our findings identified several areas of overlap in early word learning; however, our findings also point to differences that may be connected to core weaknesses in social communication (i.e. people words). The findings highlight words and categories that could serve as useful targets for communication intervention with preverbal and minimally verbal children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320973799 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Characterizing the early vocabulary profiles of preverbal and minimally verbal children with autism spectrum disorder [Texte imprimé et/ou numérique] / Eileen HAEBIG, Auteur ; Eva JIMENEZ, Auteur ; Christopher R. COX, Auteur ; Thomas T. HILLS, Auteur . - p.958-970. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.958-970 Mots-clés : autism spectrum disorders  minimally verbal  preverbal  vocabulary Index. décimale : PER Périodiques Résumé : Although preverbal and minimally verbal children with autism spectrum disorder represent a significant portion of the autism spectrum disorder population, we have a limited understanding of and characterization of them. Although it is a given that their lexical profiles contain fewer words, it is important to determine whether (a) the words preverbal and minimally verbal children with autism spectrum disorder produce are similar to the first words typically developing children produce or (b) there are unique features of the limited words that preverbal and minimally verbal children with autism spectrum disorder produce. The current study compared the early word profiles of preverbal and minimally verbal children with autism spectrum disorder to vocabulary-matched typically developing toddlers. Children with autism spectrum disorder produced proportionally more verbs than typically developing toddlers. Also, children with autism spectrum disorder produced proportionally more action and food words, while typically developing toddlers produced proportionally more animal words, animal sounds and sound effects, and people words. Children with autism spectrum disorder also produced "mommy" and "daddy" at lower rates. Our findings identified several areas of overlap in early word learning; however, our findings also point to differences that may be connected to core weaknesses in social communication (i.e. people words). The findings highlight words and categories that could serve as useful targets for communication intervention with preverbal and minimally verbal children with autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361320973799 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Factors related to parental therapeutic self-efficacy in a parent-mediated intervention for children with autism spectrum disorder: A mixed methods study / Kaylin M. RUSSELL in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.971-981 Titre : Factors related to parental therapeutic self-efficacy in a parent-mediated intervention for children with autism spectrum disorder: A mixed methods study Type de document : Texte imprimé et/ou numérique Auteurs : Kaylin M. RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur Article en page(s) : p.971-981 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  interventions—psychosocial/behavioral  mixed methods research  parent-mediated intervention Index. décimale : PER Périodiques Résumé : Parental self-efficacy refers to parents' beliefs in their ability to successfully parent their child. Parental self-efficacy plays an important role in family outcomes when a child has autism spectrum disorder. It is important to consider therapeutic self-efficacy, one's feelings of self-efficacy regarding their implementation of an intervention, within parent-mediated interventions. The goal of this mixed methods study was to better understand factors that relate to parents' therapeutic self-efficacy when using a telehealth-based parent-mediated intervention. Participants were 51 parents of children with autism spectrum disorder between 17 and 83?months old. Parents had generally high therapeutic self-efficacy, and global parental self-efficacy was significantly related therapeutic self-efficacy. Parents' written reflections revealed four themes that related to their therapeutic self-efficacy: the importance of a good fit between the child's skills and the intervention, the importance of a good fit between the parent's interaction style and the intervention, environmental factors support intervention use, and the importance of the child's response to the intervention. Several themes differed for parents with higher and lower therapeutic self-efficacy. Findings suggest that global parental self-efficacy plays an important role in parental therapeutic self-efficacy in parent-mediated interventions. To support parents in learning, coaches should ask about the child's skills, parent's interaction style, environmental challenges, and child's response. En ligne : http://dx.doi.org/10.1177/1362361320974233 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Factors related to parental therapeutic self-efficacy in a parent-mediated intervention for children with autism spectrum disorder: A mixed methods study [Texte imprimé et/ou numérique] / Kaylin M. RUSSELL, Auteur ; Brooke R. INGERSOLL, Auteur . - p.971-981. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.971-981 Mots-clés : autism spectrum disorders  interventions—psychosocial/behavioral  mixed methods research  parent-mediated intervention Index. décimale : PER Périodiques Résumé : Parental self-efficacy refers to parents' beliefs in their ability to successfully parent their child. Parental self-efficacy plays an important role in family outcomes when a child has autism spectrum disorder. It is important to consider therapeutic self-efficacy, one's feelings of self-efficacy regarding their implementation of an intervention, within parent-mediated interventions. The goal of this mixed methods study was to better understand factors that relate to parents' therapeutic self-efficacy when using a telehealth-based parent-mediated intervention. Participants were 51 parents of children with autism spectrum disorder between 17 and 83?months old. Parents had generally high therapeutic self-efficacy, and global parental self-efficacy was significantly related therapeutic self-efficacy. Parents' written reflections revealed four themes that related to their therapeutic self-efficacy: the importance of a good fit between the child's skills and the intervention, the importance of a good fit between the parent's interaction style and the intervention, environmental factors support intervention use, and the importance of the child's response to the intervention. Several themes differed for parents with higher and lower therapeutic self-efficacy. Findings suggest that global parental self-efficacy plays an important role in parental therapeutic self-efficacy in parent-mediated interventions. To support parents in learning, coaches should ask about the child's skills, parent's interaction style, environmental challenges, and child's response. En ligne : http://dx.doi.org/10.1177/1362361320974233 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Embedding school cultures and climates that promote evidence-based practice implementation for youth with autism: A qualitative study / Nathaniel J. WILLIAMS in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.982-994 Titre : Embedding school cultures and climates that promote evidence-based practice implementation for youth with autism: A qualitative study Type de document : Texte imprimé et/ou numérique Auteurs : Nathaniel J. WILLIAMS, Auteur ; Lindsay FREDERICK, Auteur ; Alix CHING, Auteur ; David MANDELL, Auteur ; Christina KANG-YI, Auteur ; Jill LOCKE, Auteur Article en page(s) : p.982-994 Langues : Anglais (eng) Mots-clés : education services  evidence-based practice  implementation  interventions  leadership  organizational climate  organizational culture  psychosocial/behavioral  conflict of interest. Index. décimale : PER Périodiques Résumé : Schools play a major role in providing services to youth with autism; however, not all schools use evidence-based practices, defined as interventions that are proven to improve youth well-being through rigorous research. School culture and climate are strong predictors of whether or not a school uses evidence-based practices; however, little is known about how principals can create school cultures and climates that support the use of these practices. This study interviewed 32 teachers in elementary schools that implemented three closely related evidence-based practices for youth with autism to better understand how principals create school cultures and climates that support effective services. Analysis of the teachers' responses identified seven strategies principals can use to create school cultures and climates that support the implementation of effective practices for youth with autism. The strategies include the following: (a) support teachers to obtain professional development focused on autism, (b) align performance expectations and evaluations with the needs of students with autism and evidence-based practice delivery, (c) allocate resources to ensure adequate staff, materials, and training are available to implement evidence-based practices, (d) be open and flexible to allow teachers to use the building and resources as needed to meet students' needs, (e) provide direct assistance, feedback, and coaching to troubleshoot challenges or involve outside experts to do so, (f) openly value the work of special education teachers and provide recognition to those who develop expertise in evidence-based practices, and (g) look for opportunities to integrate special and general education teachers and students to foster a truly inclusive climate. En ligne : http://dx.doi.org/10.1177/1362361320974509 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Embedding school cultures and climates that promote evidence-based practice implementation for youth with autism: A qualitative study [Texte imprimé et/ou numérique] / Nathaniel J. WILLIAMS, Auteur ; Lindsay FREDERICK, Auteur ; Alix CHING, Auteur ; David MANDELL, Auteur ; Christina KANG-YI, Auteur ; Jill LOCKE, Auteur . - p.982-994. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.982-994 Mots-clés : education services  evidence-based practice  implementation  interventions  leadership  organizational climate  organizational culture  psychosocial/behavioral  conflict of interest. Index. décimale : PER Périodiques Résumé : Schools play a major role in providing services to youth with autism; however, not all schools use evidence-based practices, defined as interventions that are proven to improve youth well-being through rigorous research. School culture and climate are strong predictors of whether or not a school uses evidence-based practices; however, little is known about how principals can create school cultures and climates that support the use of these practices. This study interviewed 32 teachers in elementary schools that implemented three closely related evidence-based practices for youth with autism to better understand how principals create school cultures and climates that support effective services. Analysis of the teachers' responses identified seven strategies principals can use to create school cultures and climates that support the implementation of effective practices for youth with autism. The strategies include the following: (a) support teachers to obtain professional development focused on autism, (b) align performance expectations and evaluations with the needs of students with autism and evidence-based practice delivery, (c) allocate resources to ensure adequate staff, materials, and training are available to implement evidence-based practices, (d) be open and flexible to allow teachers to use the building and resources as needed to meet students' needs, (e) provide direct assistance, feedback, and coaching to troubleshoot challenges or involve outside experts to do so, (f) openly value the work of special education teachers and provide recognition to those who develop expertise in evidence-based practices, and (g) look for opportunities to integrate special and general education teachers and students to foster a truly inclusive climate. En ligne : http://dx.doi.org/10.1177/1362361320974509 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Evaluating the effects of a yoga-based program integrated with third-wave cognitive behavioral therapy components on self-regulation in children on the autism spectrum: A pilot randomized controlled trial / Radhika TANKSALE in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.995-1008 Titre : Evaluating the effects of a yoga-based program integrated with third-wave cognitive behavioral therapy components on self-regulation in children on the autism spectrum: A pilot randomized controlled trial Type de document : Texte imprimé et/ou numérique Auteurs : Radhika TANKSALE, Auteur ; Kate SOFRONOFF, Auteur ; Jeanie SHEFFIELD, Auteur ; John GILMOUR, Auteur Article en page(s) : p.995-1008 Langues : Anglais (eng) Mots-clés : autism  executive functions  self-regulation  sleep  yoga Index. décimale : PER Périodiques Résumé : Children on the autism spectrum may experience difficulties with the regulation of attention, thoughts, emotions, and behavior, understanding, and expressing their emotions appropriately, as well as anxiety, and sleep. In autism research, contemplative practices that work through both body and mind have shown tentatively promising results. However, there are limited studies on this topic, and the use of yoga to facilitate executive control has not been researched yet. The Incredible Explorers (6-week program), a yoga-informed intervention program for children (8-12?years), was developed to understand whether, for children on the autism spectrum, the training could improve the ability to self-regulate, reduce anxiety and sleep problems, and increase awareness of emotions. In our sample, 61 children with one of their parents completed the program. Half of the group received the intervention, and the other half had to wait until the yoga group completed their trial. The participants were asked to give their feedback immediately after program completion and at 6-week follow-up. Compared to the group that was waiting to receive the intervention, parents in the yoga group reported significant gains for their children in regulating their overall executive control immediately after the session and again at follow-up. The parents reported a reduction in some of the sleep problems post-treatment. Children indicated an improved ability to communicate their feelings and willingness to analyze their emotions post-intervention. However, the study had several shortcomings and given that this was the first trial of the program, the results need to be interpreted with caution. Further research is recommended. En ligne : http://dx.doi.org/10.1177/1362361320974841 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Evaluating the effects of a yoga-based program integrated with third-wave cognitive behavioral therapy components on self-regulation in children on the autism spectrum: A pilot randomized controlled trial [Texte imprimé et/ou numérique] / Radhika TANKSALE, Auteur ; Kate SOFRONOFF, Auteur ; Jeanie SHEFFIELD, Auteur ; John GILMOUR, Auteur . - p.995-1008. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.995-1008 Mots-clés : autism  executive functions  self-regulation  sleep  yoga Index. décimale : PER Périodiques Résumé : Children on the autism spectrum may experience difficulties with the regulation of attention, thoughts, emotions, and behavior, understanding, and expressing their emotions appropriately, as well as anxiety, and sleep. In autism research, contemplative practices that work through both body and mind have shown tentatively promising results. However, there are limited studies on this topic, and the use of yoga to facilitate executive control has not been researched yet. The Incredible Explorers (6-week program), a yoga-informed intervention program for children (8-12?years), was developed to understand whether, for children on the autism spectrum, the training could improve the ability to self-regulate, reduce anxiety and sleep problems, and increase awareness of emotions. In our sample, 61 children with one of their parents completed the program. Half of the group received the intervention, and the other half had to wait until the yoga group completed their trial. The participants were asked to give their feedback immediately after program completion and at 6-week follow-up. Compared to the group that was waiting to receive the intervention, parents in the yoga group reported significant gains for their children in regulating their overall executive control immediately after the session and again at follow-up. The parents reported a reduction in some of the sleep problems post-treatment. Children indicated an improved ability to communicate their feelings and willingness to analyze their emotions post-intervention. However, the study had several shortcomings and given that this was the first trial of the program, the results need to be interpreted with caution. Further research is recommended. En ligne : http://dx.doi.org/10.1177/1362361320974841 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Identifying children with autism spectrum disorders in Iran using the Autism Diagnostic Interview-Revised / Sayyed Ali SAMADI in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1009-1019 Titre : Identifying children with autism spectrum disorders in Iran using the Autism Diagnostic Interview-Revised Type de document : Texte imprimé et/ou numérique Auteurs : Sayyed Ali SAMADI, Auteur ; Roy MCCONKEY, Auteur ; Ameneh MAHMOODIZADEH, Auteur Article en page(s) : p.1009-1019 Langues : Anglais (eng) Mots-clés : Iran  autism  autism spectrum disorders diagnosis  evaluation  levels of autism Index. décimale : PER Périodiques Résumé : The diagnosis of autism spectrum disorder is a challenging task. Most of the current assessment scales have been developed in the West. The present study examines the applicability of one of the most used scales (the Autism Diagnostic Interview-Revised) in a Middle-Eastern culture. Two studies were undertaken. In the first, the Autism Diagnostic Interview-Revised ratings given to 420 children with autism spectrum disorder, aged 4-11?years, and 110 typically developing children were contrasted. In Study 2, the Autism Diagnostic Interview-Revised ratings of 720 children with autism spectrum disorder were compared with those of 172 children with intellectual disabilities to find out whether the Autism Diagnostic Interview-Revised scale would discriminate between these two types of developmental disabilities. The studies confirmed the acceptability of the scale to Iranian parents and assessors. However, the summary scores used to determine whether a child was likely to have autism spectrum disorder were recalculated on the two domains of social communication and repetitive behaviours, which were identified in the statistical analyses that are recommended for the evaluation of assessment scales. Thus the translated scale with the modified domain scoring proved very suitable for identifying Iranian children with autism spectrum disorder. Having a common tool such as Autism Diagnostic Interview-Revised will strengthen the opportunities to undertake cross-cultural research into the impact of autism spectrum disorder on the child and families. En ligne : http://dx.doi.org/10.1177/1362361320974558 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Identifying children with autism spectrum disorders in Iran using the Autism Diagnostic Interview-Revised [Texte imprimé et/ou numérique] / Sayyed Ali SAMADI, Auteur ; Roy MCCONKEY, Auteur ; Ameneh MAHMOODIZADEH, Auteur . - p.1009-1019. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1009-1019 Mots-clés : Iran  autism  autism spectrum disorders diagnosis  evaluation  levels of autism Index. décimale : PER Périodiques Résumé : The diagnosis of autism spectrum disorder is a challenging task. Most of the current assessment scales have been developed in the West. The present study examines the applicability of one of the most used scales (the Autism Diagnostic Interview-Revised) in a Middle-Eastern culture. Two studies were undertaken. In the first, the Autism Diagnostic Interview-Revised ratings given to 420 children with autism spectrum disorder, aged 4-11?years, and 110 typically developing children were contrasted. In Study 2, the Autism Diagnostic Interview-Revised ratings of 720 children with autism spectrum disorder were compared with those of 172 children with intellectual disabilities to find out whether the Autism Diagnostic Interview-Revised scale would discriminate between these two types of developmental disabilities. The studies confirmed the acceptability of the scale to Iranian parents and assessors. However, the summary scores used to determine whether a child was likely to have autism spectrum disorder were recalculated on the two domains of social communication and repetitive behaviours, which were identified in the statistical analyses that are recommended for the evaluation of assessment scales. Thus the translated scale with the modified domain scoring proved very suitable for identifying Iranian children with autism spectrum disorder. Having a common tool such as Autism Diagnostic Interview-Revised will strengthen the opportunities to undertake cross-cultural research into the impact of autism spectrum disorder on the child and families. En ligne : http://dx.doi.org/10.1177/1362361320974558 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model / Karl LUNDIN in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1020-1035 Titre : Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model Type de document : Texte imprimé et/ou numérique Auteurs : Karl LUNDIN, Auteur ; Soheil MAHDI, Auteur ; Johan ISAKSSON, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.1020-1035 Langues : Anglais (eng) Mots-clés : Disability  International Classification of Functioning  and Health  autism  cross-cultural  female autism phenotype  functioning  gender differences Index. décimale : PER Périodiques Résumé : In this study, we explored if professionals working with autistic people in different regions of the world perceive differences between females and males diagnosed with the condition. A total of 131 professionals responded to a survey that included an open question about gender differences in autism. Of these, 32 responded that they do not perceive gender differences in autism. The information provided by the other 99 experts was analyzed to identify common patterns. Three main differences were found, (1) Matching the clinical conceptualization of autism where professionals described differences in core symptoms of autism, and that autistic females were less similar to the conceptualization of autism. In (2) Co-existing problems, professionals described that autistic males display more apparent problems including hyperactivity, while autistic females were perceived as having more internalizing issues such as anxiety and eating disorders. In the last category, (3) Navigating the social environment, experts perceived autistic females as more socially motivated, and more inclined to camouflage social difficulties, making their challenges less evident. Professionals also perceived differences in the social environment, for example, that autistic girls receive more support from their peers while autistic boys are more often bullied. Our results suggest that professionals working in different parts of the world acknowledge gender differences in autism, but also that there might be some regional differences. Finally, we found that gender differences reported by the international professionals could largely be assessed with a shortened version of the International Classification of Functioning by the World Health Organization, specifically developed for autism. En ligne : http://dx.doi.org/10.1177/1362361320975311 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Functional gender differences in autism: An international, multidisciplinary expert survey using the International Classification of Functioning, Disability, and Health model [Texte imprimé et/ou numérique] / Karl LUNDIN, Auteur ; Soheil MAHDI, Auteur ; Johan ISAKSSON, Auteur ; Sven BÖLTE, Auteur . - p.1020-1035. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1020-1035 Mots-clés : Disability  International Classification of Functioning  and Health  autism  cross-cultural  female autism phenotype  functioning  gender differences Index. décimale : PER Périodiques Résumé : In this study, we explored if professionals working with autistic people in different regions of the world perceive differences between females and males diagnosed with the condition. A total of 131 professionals responded to a survey that included an open question about gender differences in autism. Of these, 32 responded that they do not perceive gender differences in autism. The information provided by the other 99 experts was analyzed to identify common patterns. Three main differences were found, (1) Matching the clinical conceptualization of autism where professionals described differences in core symptoms of autism, and that autistic females were less similar to the conceptualization of autism. In (2) Co-existing problems, professionals described that autistic males display more apparent problems including hyperactivity, while autistic females were perceived as having more internalizing issues such as anxiety and eating disorders. In the last category, (3) Navigating the social environment, experts perceived autistic females as more socially motivated, and more inclined to camouflage social difficulties, making their challenges less evident. Professionals also perceived differences in the social environment, for example, that autistic girls receive more support from their peers while autistic boys are more often bullied. Our results suggest that professionals working in different parts of the world acknowledge gender differences in autism, but also that there might be some regional differences. Finally, we found that gender differences reported by the international professionals could largely be assessed with a shortened version of the International Classification of Functioning by the World Health Organization, specifically developed for autism. En ligne : http://dx.doi.org/10.1177/1362361320975311 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Qualification for upper secondary education in individuals with autism without intellectual disability: Total population study, Stockholm, Sweden / Isidora STARK in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1036-1046 Titre : Qualification for upper secondary education in individuals with autism without intellectual disability: Total population study, Stockholm, Sweden Type de document : Texte imprimé et/ou numérique Auteurs : Isidora STARK, Auteur ; Peiwen LIAO, Auteur ; Cecilia MAGNUSSON, Auteur ; Michael LUNDBERG, Auteur ; Dheeraj RAI, Auteur ; Anton LAGER, Auteur ; Selma IDRING NORDSTRÖM, Auteur Article en page(s) : p.1036-1046 Langues : Anglais (eng) Mots-clés : Attention-deficit hyperactivity disorder  autism  predictors  school outcome  total population cohort Index. décimale : PER Périodiques Résumé : Obtaining a quality education is important for any individual's chances of leading a healthy and thriving life. Currently, educational policies in many countries underscore the rights of students with autism to be educated in mainstream schools. While there is some knowledge on school outcomes among students with autism from older studies, little is known about rates of qualification for upper secondary education among children with autism in mainstream schools today. This lack of knowledge is problematic since autism is diagnosed more widely, and prior evidence may not be relevant for individuals with autism and their families today. Using Swedish registers, we therefore examined this in a study including all children and young people in Stockholm County in 2001 through 2011. We found that about two thirds of children with autism without intellectual disability qualified for upper secondary education at the expected age, in comparison with about nine in ten among typically developing peers. We also found that girls with autism had further difficulties obtaining such qualification than boys and that those who were additionally diagnosed with attention-deficit hyperactivity disorder were particularly at risk of non-qualification. Finally, students with autism without intellectual disability had a greater chance of completing compulsory education if given an extended period to graduate. These findings underline the need for supportive interventions for children with autism during compulsory school. They may also challenge the inclusive education policy adopted by majority of western countries, at least in the wake of addressing special needs in mainstream schooling. En ligne : http://dx.doi.org/10.1177/1362361320975929 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Qualification for upper secondary education in individuals with autism without intellectual disability: Total population study, Stockholm, Sweden [Texte imprimé et/ou numérique] / Isidora STARK, Auteur ; Peiwen LIAO, Auteur ; Cecilia MAGNUSSON, Auteur ; Michael LUNDBERG, Auteur ; Dheeraj RAI, Auteur ; Anton LAGER, Auteur ; Selma IDRING NORDSTRÖM, Auteur . - p.1036-1046. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1036-1046 Mots-clés : Attention-deficit hyperactivity disorder  autism  predictors  school outcome  total population cohort Index. décimale : PER Périodiques Résumé : Obtaining a quality education is important for any individual's chances of leading a healthy and thriving life. Currently, educational policies in many countries underscore the rights of students with autism to be educated in mainstream schools. While there is some knowledge on school outcomes among students with autism from older studies, little is known about rates of qualification for upper secondary education among children with autism in mainstream schools today. This lack of knowledge is problematic since autism is diagnosed more widely, and prior evidence may not be relevant for individuals with autism and their families today. Using Swedish registers, we therefore examined this in a study including all children and young people in Stockholm County in 2001 through 2011. We found that about two thirds of children with autism without intellectual disability qualified for upper secondary education at the expected age, in comparison with about nine in ten among typically developing peers. We also found that girls with autism had further difficulties obtaining such qualification than boys and that those who were additionally diagnosed with attention-deficit hyperactivity disorder were particularly at risk of non-qualification. Finally, students with autism without intellectual disability had a greater chance of completing compulsory education if given an extended period to graduate. These findings underline the need for supportive interventions for children with autism during compulsory school. They may also challenge the inclusive education policy adopted by majority of western countries, at least in the wake of addressing special needs in mainstream schooling. En ligne : http://dx.doi.org/10.1177/1362361320975929 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Core experiences of parents of children with autism during the COVID-19 pandemic lockdown / Itay TOKATLY LATZER in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1047-1059 Titre : Core experiences of parents of children with autism during the COVID-19 pandemic lockdown Type de document : Texte imprimé et/ou numérique Auteurs : Itay TOKATLY LATZER, Auteur ; Yael LEITNER, Auteur ; Orit KARNIELI-MILLER, Auteur Article en page(s) : p.1047-1059 Langues : Anglais (eng) Mots-clés : Covid-19  autism  coronavirus  home isolation  lockdown  pandemic  special needs Index. décimale : PER Périodiques Résumé : The lockdown and home isolation due to the COVID-19 pandemic led to significant transformation in lifestyles. Being a parent in this situation was not easy for anyone, much less for parents of children with special needs. The shutting down of special education systems meant that parents lost a vital support network and had to be the sole full-time caregivers despite often lacking the skills to cope with this new and daunting situation. We interviewed parents and learned that the main difficulties faced by homebound autistic children stemmed from the change in routine, lack of special education services, limited physical space, and food- and sleep-related issues. Some children experienced worsening in behavioral, social, and developmental domains, yet others seemed to not only overcome the challenges of changing conditions but even benefit from them. The children's success or failure was directly related to how their parents coped. The key factors that enabled successful coping were the parents' ability to accommodate to the child's needs, their own creativeness and resourcefulness, and a generally positive outlook. The results of this analysis revealed that the best way to benefit autistic children caught up in drastic changes in their routine lifestyle is to invest in a strong support system for their parents. En ligne : http://dx.doi.org/10.1177/1362361320984317 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Core experiences of parents of children with autism during the COVID-19 pandemic lockdown [Texte imprimé et/ou numérique] / Itay TOKATLY LATZER, Auteur ; Yael LEITNER, Auteur ; Orit KARNIELI-MILLER, Auteur . - p.1047-1059. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1047-1059 Mots-clés : Covid-19  autism  coronavirus  home isolation  lockdown  pandemic  special needs Index. décimale : PER Périodiques Résumé : The lockdown and home isolation due to the COVID-19 pandemic led to significant transformation in lifestyles. Being a parent in this situation was not easy for anyone, much less for parents of children with special needs. The shutting down of special education systems meant that parents lost a vital support network and had to be the sole full-time caregivers despite often lacking the skills to cope with this new and daunting situation. We interviewed parents and learned that the main difficulties faced by homebound autistic children stemmed from the change in routine, lack of special education services, limited physical space, and food- and sleep-related issues. Some children experienced worsening in behavioral, social, and developmental domains, yet others seemed to not only overcome the challenges of changing conditions but even benefit from them. The children's success or failure was directly related to how their parents coped. The key factors that enabled successful coping were the parents' ability to accommodate to the child's needs, their own creativeness and resourcefulness, and a generally positive outlook. The results of this analysis revealed that the best way to benefit autistic children caught up in drastic changes in their routine lifestyle is to invest in a strong support system for their parents. En ligne : http://dx.doi.org/10.1177/1362361320984317 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Ameliorating the disadvantage for autistic job seekers: An initial evaluation of adapted employment interview questions / Katie MARAS in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1060-1075 Titre : Ameliorating the disadvantage for autistic job seekers: An initial evaluation of adapted employment interview questions Type de document : Texte imprimé et/ou numérique Auteurs : Katie MARAS, Auteur ; Jade Eloise NORRIS, Auteur ; Jemma NICHOLSON, Auteur ; Brett HEASMAN, Auteur ; Anna REMINGTON, Auteur ; Laura CRANE, Auteur Article en page(s) : p.1060-1075 Langues : Anglais (eng) Mots-clés : adaptations  autism  employment  impression management  interviewing  perceptions Index. décimale : PER Périodiques Résumé : Despite possessing valuable skills, differences in the way that autistic people understand and respond to others in social situations mean that they are frequently disadvantaged in job interviews. We examined how autistic and non-autistic adults compared on standard (unmodified) job interview questions, and then used these findings to develop and evaluate supportive adaptations to questions. Fifty adults (25 autistic, 25 non-autistic) took part in two mock job interviews. Interview 1 provided a baseline measure of performance when answering typical, unmodified interview questions. Employment experts (unaware of participants' autism diagnoses) rated all interviewees on their responses to each question and their overall impressions of them and then provided feedback about how interviewees could improve and how questions could be adapted to facilitate this. Interviewees also provided feedback about the interview process, from their perspective. Adaptations to the questions were developed, with Interview 2 taking place approximately 6?months later. Results demonstrated that, in Interview 1, employment experts rated autistic interviewees less favourably than non-autistic interviewees. Ratings of both autistic and non-autistic participants' answers improved in Interview 2, but particularly for autistic interviewees (such that differences between autistic and non-autistic interviewees' performance reduced in Interview 2). Employers should be aware that adaptations to job interview questions are critical to level the playing field for autistic candidates. En ligne : http://dx.doi.org/10.1177/1362361320981319 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Ameliorating the disadvantage for autistic job seekers: An initial evaluation of adapted employment interview questions [Texte imprimé et/ou numérique] / Katie MARAS, Auteur ; Jade Eloise NORRIS, Auteur ; Jemma NICHOLSON, Auteur ; Brett HEASMAN, Auteur ; Anna REMINGTON, Auteur ; Laura CRANE, Auteur . - p.1060-1075. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1060-1075 Mots-clés : adaptations  autism  employment  impression management  interviewing  perceptions Index. décimale : PER Périodiques Résumé : Despite possessing valuable skills, differences in the way that autistic people understand and respond to others in social situations mean that they are frequently disadvantaged in job interviews. We examined how autistic and non-autistic adults compared on standard (unmodified) job interview questions, and then used these findings to develop and evaluate supportive adaptations to questions. Fifty adults (25 autistic, 25 non-autistic) took part in two mock job interviews. Interview 1 provided a baseline measure of performance when answering typical, unmodified interview questions. Employment experts (unaware of participants' autism diagnoses) rated all interviewees on their responses to each question and their overall impressions of them and then provided feedback about how interviewees could improve and how questions could be adapted to facilitate this. Interviewees also provided feedback about the interview process, from their perspective. Adaptations to the questions were developed, with Interview 2 taking place approximately 6?months later. Results demonstrated that, in Interview 1, employment experts rated autistic interviewees less favourably than non-autistic interviewees. Ratings of both autistic and non-autistic participants' answers improved in Interview 2, but particularly for autistic interviewees (such that differences between autistic and non-autistic interviewees' performance reduced in Interview 2). Employers should be aware that adaptations to job interview questions are critical to level the playing field for autistic candidates. En ligne : http://dx.doi.org/10.1177/1362361320981319 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children / Sarosha PILLAY in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1076-1089 Titre : Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children Type de document : Texte imprimé et/ou numérique Auteurs : Sarosha PILLAY, Auteur ; Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur Article en page(s) : p.1076-1089 Langues : Anglais (eng) Mots-clés : autism education  autism spectrum disorder  low- and middle-income countries Index. décimale : PER Périodiques Résumé : There is very little information about autism spectrum disorder in South Africa and not much is known about children with autism spectrum disorder and their educational needs. In this study, we searched for all children with autism spectrum disorder attending schools in the Western Cape province of South Africa and compared our findings with the profile of people living in the province. We found fewer children with autism spectrum disorder in schools than expected (0.08%) and co-occurring conditions (intellectual disability?=?22.2%, attention-deficit/hyperactivity disorder?=?2.6% and epilepsy?=?0.7%) were reported at lower rates. More children were from White racial groups and from English-speaking homes compared with the Western Cape population demographics. Most of the children (89%) attended schools for children with Special Educational Needs and only 10% were in Ordinary/Mainstream schools. Eighty-three percent attended schools in urban areas and 17% in rural areas. There was a 76.03% increase in children with autism spectrum disorder in schools between 2012 and 2016. Our findings support the need for better identification and reporting of children with autism spectrum disorder in the education system. We propose urgent review and strengthening of education systems for children with autism spectrum disorder in the Western Cape province and in other parts of South Africa. En ligne : http://dx.doi.org/10.1177/1362361320978042 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Autism in the Western Cape province of South Africa: Rates, socio-demographics, disability and educational characteristics in one million school children [Texte imprimé et/ou numérique] / Sarosha PILLAY, Auteur ; Madeleine DUNCAN, Auteur ; Petrus J. DE VRIES, Auteur . - p.1076-1089. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1076-1089 Mots-clés : autism education  autism spectrum disorder  low- and middle-income countries Index. décimale : PER Périodiques Résumé : There is very little information about autism spectrum disorder in South Africa and not much is known about children with autism spectrum disorder and their educational needs. In this study, we searched for all children with autism spectrum disorder attending schools in the Western Cape province of South Africa and compared our findings with the profile of people living in the province. We found fewer children with autism spectrum disorder in schools than expected (0.08%) and co-occurring conditions (intellectual disability?=?22.2%, attention-deficit/hyperactivity disorder?=?2.6% and epilepsy?=?0.7%) were reported at lower rates. More children were from White racial groups and from English-speaking homes compared with the Western Cape population demographics. Most of the children (89%) attended schools for children with Special Educational Needs and only 10% were in Ordinary/Mainstream schools. Eighty-three percent attended schools in urban areas and 17% in rural areas. There was a 76.03% increase in children with autism spectrum disorder in schools between 2012 and 2016. Our findings support the need for better identification and reporting of children with autism spectrum disorder in the education system. We propose urgent review and strengthening of education systems for children with autism spectrum disorder in the Western Cape province and in other parts of South Africa. En ligne : http://dx.doi.org/10.1177/1362361320978042 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Physical activity and screen time among youth with autism: A longitudinal analysis from 9 to 18 years / J. DAHLGREN in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1090-1099 Titre : Physical activity and screen time among youth with autism: A longitudinal analysis from 9 to 18 years Type de document : Texte imprimé et/ou numérique Auteurs : J. DAHLGREN, Auteur ; S. HEALY, Auteur ; M. MACDONALD, Auteur ; J. GELDHOF, Auteur ; K. PALMIERE, Auteur ; Justin A. HAEGELE, Auteur Article en page(s) : p.1090-1099 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  neurotypical development  physical activity  screen time Index. décimale : PER Périodiques Résumé : To date, studies using cross-sectional methodologies make up a majority of the literature surrounding children with autism spectrum disorders and participation in physical activity and screen time. Longitudinal studies are needed to examine how physical activity and screen time behaviors co-develop for children with and without an autism spectrum disorder. To address this research gap, this study compared how physical activity and screen time levels changed over time (from 9 to 18?years of age) between youth with autism spectrum disorder and youth with neurotypical development. Data on the levels of moderate-to-vigorous physical activity, light physical activity, television-, and video game-based screen time, collected as a part of the "Growing up in Ireland" study, were compared between youth with autism spectrum disorder and a propensity-matched sample of youth with neurotypical development (n = 88 per group; 176 in total). Robust regression analyses indicated that children with autism spectrum disorder became less active over time compared to children with neurotypical development and that video game screen time also differed significantly between the groups when children were 9 years old. These findings elucidate important disparities present between these groups of children during pivotal developmental times. En ligne : http://dx.doi.org/10.1177/1362361320981314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Physical activity and screen time among youth with autism: A longitudinal analysis from 9 to 18 years [Texte imprimé et/ou numérique] / J. DAHLGREN, Auteur ; S. HEALY, Auteur ; M. MACDONALD, Auteur ; J. GELDHOF, Auteur ; K. PALMIERE, Auteur ; Justin A. HAEGELE, Auteur . - p.1090-1099. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1090-1099 Mots-clés : autism spectrum disorders  neurotypical development  physical activity  screen time Index. décimale : PER Périodiques Résumé : To date, studies using cross-sectional methodologies make up a majority of the literature surrounding children with autism spectrum disorders and participation in physical activity and screen time. Longitudinal studies are needed to examine how physical activity and screen time behaviors co-develop for children with and without an autism spectrum disorder. To address this research gap, this study compared how physical activity and screen time levels changed over time (from 9 to 18?years of age) between youth with autism spectrum disorder and youth with neurotypical development. Data on the levels of moderate-to-vigorous physical activity, light physical activity, television-, and video game-based screen time, collected as a part of the "Growing up in Ireland" study, were compared between youth with autism spectrum disorder and a propensity-matched sample of youth with neurotypical development (n = 88 per group; 176 in total). Robust regression analyses indicated that children with autism spectrum disorder became less active over time compared to children with neurotypical development and that video game screen time also differed significantly between the groups when children were 9 years old. These findings elucidate important disparities present between these groups of children during pivotal developmental times. En ligne : http://dx.doi.org/10.1177/1362361320981314 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

How do children and youth with autism spectrum disorder self-report on behavior? A study of the validity indexes on the Behavior Assessment System for Children, Second Edition, self-report of personality / Reyhane BAKHTIARI in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1100-1113 Titre : How do children and youth with autism spectrum disorder self-report on behavior? A study of the validity indexes on the Behavior Assessment System for Children, Second Edition, self-report of personality Type de document : Texte imprimé et/ou numérique Auteurs : Reyhane BAKHTIARI, Auteur ; Sarah M. HUTCHISON, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1100-1113 Langues : Anglais (eng) Mots-clés : Behavior Assessment System for Children, Second Edition  adolescents  autism spectrum disorder  children  self-report  self-report of personality validity indexes Index. décimale : PER Périodiques Résumé : Using self-report questionnaires is an important method in the assessment and treatment of children with autism. Self-reports can provide unique information about children's feelings and thoughts that is not available through other methods such as parent-reports. However, many clinicians are not sure whether children with autism can provide accurate self-reports. To study this, we examined 139 children and youth with and without autism aged 8-17?years. We looked at the effect of having autism, as well as other factors such as age, intelligence quotient, and attention problems on the validity of self-reports in these children. We examined if the children gave overly negative or positive answers and if they responded to the questions randomly or without paying attention. We found that children with autism can provide acceptable self-reports. However, they have more validity problems compared to their peers without autism. Our findings showed that this difference might be related to having attention problems in addition to autism, rather than having autism by itself. Children, with and without autism spectrum disorder, with fewer attention problems and higher intelligence quotient scores and those in the older age group, showed better validity. This article suggests that clinicians can use self-report measures for children with autism, but they should pay attention to important factors such as children's intelligence quotient and attention problems. En ligne : http://dx.doi.org/10.1177/1362361320984601 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] How do children and youth with autism spectrum disorder self-report on behavior? A study of the validity indexes on the Behavior Assessment System for Children, Second Edition, self-report of personality [Texte imprimé et/ou numérique] / Reyhane BAKHTIARI, Auteur ; Sarah M. HUTCHISON, Auteur ; Grace IAROCCI, Auteur . - p.1100-1113. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1100-1113 Mots-clés : Behavior Assessment System for Children, Second Edition  adolescents  autism spectrum disorder  children  self-report  self-report of personality validity indexes Index. décimale : PER Périodiques Résumé : Using self-report questionnaires is an important method in the assessment and treatment of children with autism. Self-reports can provide unique information about children's feelings and thoughts that is not available through other methods such as parent-reports. However, many clinicians are not sure whether children with autism can provide accurate self-reports. To study this, we examined 139 children and youth with and without autism aged 8-17?years. We looked at the effect of having autism, as well as other factors such as age, intelligence quotient, and attention problems on the validity of self-reports in these children. We examined if the children gave overly negative or positive answers and if they responded to the questions randomly or without paying attention. We found that children with autism can provide acceptable self-reports. However, they have more validity problems compared to their peers without autism. Our findings showed that this difference might be related to having attention problems in addition to autism, rather than having autism by itself. Children, with and without autism spectrum disorder, with fewer attention problems and higher intelligence quotient scores and those in the older age group, showed better validity. This article suggests that clinicians can use self-report measures for children with autism, but they should pay attention to important factors such as children's intelligence quotient and attention problems. En ligne : http://dx.doi.org/10.1177/1362361320984601 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study / Ami TINT in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1114-1124 Titre : Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study Type de document : Texte imprimé et/ou numérique Auteurs : Ami TINT, Auteur ; Hilary K. BROWN, Auteur ; Simon CHEN, Auteur ; Meng-Chuan LAI, Auteur ; Lesley A. TARASOFF, Auteur ; Simone N. VIGOD, Auteur ; Susan L. PARISH, Auteur ; Susan M. HAVERCAMP, Auteur ; Yona LUNSKY, Auteur Article en page(s) : p.1114-1124 Langues : Anglais (eng) Mots-clés : adults  autism spectrum disorders  medical comorbidity  psychiatric comorbidity  reproductive-aged  women Index. décimale : PER Périodiques Résumé : While an increasing number of girls and women are being identified with autism, we know little about reproductive-aged autistic women's health. This study used administrative data from Ontario, Canada, to compare the health of reproductive-aged autistic women with non-autistic women. Overall, reproductive-aged autistic women had poorer health compared with non-autistic women, including increased rates of material deprivation, chronic medical conditions, psychiatric conditions, history of assault, and use of potentially teratogenic medications (i.e. drugs that can be harmful to the development of an embryo or fetus). These findings suggest that there is a need for health interventions tailored to the needs of reproductive-aged autistic women. En ligne : http://dx.doi.org/10.1177/1362361320982819 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Health characteristics of reproductive-aged autistic women in Ontario: A population-based, cross-sectional study [Texte imprimé et/ou numérique] / Ami TINT, Auteur ; Hilary K. BROWN, Auteur ; Simon CHEN, Auteur ; Meng-Chuan LAI, Auteur ; Lesley A. TARASOFF, Auteur ; Simone N. VIGOD, Auteur ; Susan L. PARISH, Auteur ; Susan M. HAVERCAMP, Auteur ; Yona LUNSKY, Auteur . - p.1114-1124. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1114-1124 Mots-clés : adults  autism spectrum disorders  medical comorbidity  psychiatric comorbidity  reproductive-aged  women Index. décimale : PER Périodiques Résumé : While an increasing number of girls and women are being identified with autism, we know little about reproductive-aged autistic women's health. This study used administrative data from Ontario, Canada, to compare the health of reproductive-aged autistic women with non-autistic women. Overall, reproductive-aged autistic women had poorer health compared with non-autistic women, including increased rates of material deprivation, chronic medical conditions, psychiatric conditions, history of assault, and use of potentially teratogenic medications (i.e. drugs that can be harmful to the development of an embryo or fetus). These findings suggest that there is a need for health interventions tailored to the needs of reproductive-aged autistic women. En ligne : http://dx.doi.org/10.1177/1362361320982819 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Differential predictors of well-being versus mental health among parents of pre-schoolers with autism / Cherie C. GREEN in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1125-1136 Titre : Differential predictors of well-being versus mental health among parents of pre-schoolers with autism Type de document : Texte imprimé et/ou numérique Auteurs : Cherie C. GREEN, Auteur ; Jodie SMITH, Auteur ; Catherine A BENT, Auteur ; Lacey CHETCUTI, Auteur ; Rhylee SULEK, Auteur ; Mirko ULJAREVIC, Auteur ; Kristelle HUDRY, Auteur Article en page(s) : p.1125-1136 Langues : Anglais (eng) Mots-clés : autism severity  mental health  mindfulness  parents  personality  well-being  young children Index. décimale : PER Périodiques Résumé : Raising a child with autism has been linked to mental health difficulties. Poor parental mental health is likely influenced by various factors - including child-, parent-, and family/socioeconomic characteristics. However, little is known about what influences and promotes well-being (as opposed to mental health) among parents of young, newly diagnosed autistic children who may be particularly vulnerable. We examined child-, parent-, and family/socioeconomic factors associated with each of mental health and well-being in a sample of 136 parents of pre-school-aged children. Parental mental health was linked to both child- (i.e. autism symptom severity) and parent-related factors (i.e. personality traits reflecting a tendency to experience negative emotions). By contrast, in additional to mental health difficulties, which were linked to well-being, only other parent-related characteristics (and not child characteristics) were related to well-being. These included personality traits reflecting a tendency to be more extraverted/sociable, and also mindfulness. Other child-related and family/socioeconomic context factors (including household income, parental education level) were not linked to parental mental health or well-being in this sample. These results support the idea that poorer mental health and well-being are not simply the opposite of one another. That is, while these two factors were related, they were linked to different personal characteristics. Perhaps most importantly, the link between well-being and mindfulness - a personal characteristic that parents can improve - suggests mindfulness-based interventions may be helpful in directly supporting parental well-being in the context of raising a young child with autism. En ligne : http://dx.doi.org/10.1177/1362361320984315 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Differential predictors of well-being versus mental health among parents of pre-schoolers with autism [Texte imprimé et/ou numérique] / Cherie C. GREEN, Auteur ; Jodie SMITH, Auteur ; Catherine A BENT, Auteur ; Lacey CHETCUTI, Auteur ; Rhylee SULEK, Auteur ; Mirko ULJAREVIC, Auteur ; Kristelle HUDRY, Auteur . - p.1125-1136. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1125-1136 Mots-clés : autism severity  mental health  mindfulness  parents  personality  well-being  young children Index. décimale : PER Périodiques Résumé : Raising a child with autism has been linked to mental health difficulties. Poor parental mental health is likely influenced by various factors - including child-, parent-, and family/socioeconomic characteristics. However, little is known about what influences and promotes well-being (as opposed to mental health) among parents of young, newly diagnosed autistic children who may be particularly vulnerable. We examined child-, parent-, and family/socioeconomic factors associated with each of mental health and well-being in a sample of 136 parents of pre-school-aged children. Parental mental health was linked to both child- (i.e. autism symptom severity) and parent-related factors (i.e. personality traits reflecting a tendency to experience negative emotions). By contrast, in additional to mental health difficulties, which were linked to well-being, only other parent-related characteristics (and not child characteristics) were related to well-being. These included personality traits reflecting a tendency to be more extraverted/sociable, and also mindfulness. Other child-related and family/socioeconomic context factors (including household income, parental education level) were not linked to parental mental health or well-being in this sample. These results support the idea that poorer mental health and well-being are not simply the opposite of one another. That is, while these two factors were related, they were linked to different personal characteristics. Perhaps most importantly, the link between well-being and mindfulness - a personal characteristic that parents can improve - suggests mindfulness-based interventions may be helpful in directly supporting parental well-being in the context of raising a young child with autism. En ligne : http://dx.doi.org/10.1177/1362361320984315 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Intensive behavioural interventions based on applied behaviour analysis for young children with autism: An international collaborative individual participant data meta-analysis / Mark RODGERS in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1137-1153 Titre : Intensive behavioural interventions based on applied behaviour analysis for young children with autism: An international collaborative individual participant data meta-analysis Type de document : Texte imprimé et/ou numérique Auteurs : Mark RODGERS, Auteur ; Mark SIMMONDS, Auteur ; David MARSHALL, Auteur ; Robert HODGSON, Auteur ; Lesley A. STEWART, Auteur ; Dheeraj RAI, Auteur ; Kath WRIGHT, Auteur ; Esther BEN-ITZCHAK, Auteur ; Svein EIKESETH, Auteur ; Sigmund ELDEVIK, Auteur ; Hanna KOVSHOFF, Auteur ; Iliana MAGIATI, Auteur ; Lisa A. OSBORNE, Auteur ; Phil REED, Auteur ; Giacomo VIVANTI, Auteur ; Ditza A. ZACHOR, Auteur ; Ann LE COUTEUR, Auteur Article en page(s) : p.1137-1153 Langues : Anglais (eng) Mots-clés : applied behaviour analysis  autism  autism spectrum disorder  individual participant data  meta-analysis  systematic review Index. décimale : PER Périodiques Résumé : Early intensive applied behaviour analysis-based interventions are designed to support young autistic children's learning and development. Unfortunately, the available evidence about the effectiveness of these interventions remains unclear. Several reviews have focused on the published findings rather than contacting the authors to collect and analyse data about the individual participants in the original studies. Also, most of the studies were carried out by groups involved in delivering the interventions leading to the potential bias in interpreting the results. Our research team (supported by an international advisory group) carried out an independent individual patient data review by collecting the original participant data from the authors of the studies, to examine the effectiveness of these interventions. The results suggested that early intensive applied behaviour analysis-based interventions might lead to some changes in children's cognitive ability (intelligence quotient) and everyday life skills after 2?years, compared with standard treatments. However, all the studies had problems with the way they were designed. Also, few of the studies looked at outcomes that have been described as most important to autistic people or followed children beyond 2?years. We think that further systematic reviews of the existing evidence are unlikely to add to the findings of our review. Furthermore, we recommend that future research should investigate which types of supports and interventions are most effective for children and families, prioritising outcomes measures that are meaningful for the autism community and include, wherever possible, longer-term follow-up. En ligne : http://dx.doi.org/10.1177/1362361320985680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Intensive behavioural interventions based on applied behaviour analysis for young children with autism: An international collaborative individual participant data meta-analysis [Texte imprimé et/ou numérique] / Mark RODGERS, Auteur ; Mark SIMMONDS, Auteur ; David MARSHALL, Auteur ; Robert HODGSON, Auteur ; Lesley A. STEWART, Auteur ; Dheeraj RAI, Auteur ; Kath WRIGHT, Auteur ; Esther BEN-ITZCHAK, Auteur ; Svein EIKESETH, Auteur ; Sigmund ELDEVIK, Auteur ; Hanna KOVSHOFF, Auteur ; Iliana MAGIATI, Auteur ; Lisa A. OSBORNE, Auteur ; Phil REED, Auteur ; Giacomo VIVANTI, Auteur ; Ditza A. ZACHOR, Auteur ; Ann LE COUTEUR, Auteur . - p.1137-1153. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1137-1153 Mots-clés : applied behaviour analysis  autism  autism spectrum disorder  individual participant data  meta-analysis  systematic review Index. décimale : PER Périodiques Résumé : Early intensive applied behaviour analysis-based interventions are designed to support young autistic children's learning and development. Unfortunately, the available evidence about the effectiveness of these interventions remains unclear. Several reviews have focused on the published findings rather than contacting the authors to collect and analyse data about the individual participants in the original studies. Also, most of the studies were carried out by groups involved in delivering the interventions leading to the potential bias in interpreting the results. Our research team (supported by an international advisory group) carried out an independent individual patient data review by collecting the original participant data from the authors of the studies, to examine the effectiveness of these interventions. The results suggested that early intensive applied behaviour analysis-based interventions might lead to some changes in children's cognitive ability (intelligence quotient) and everyday life skills after 2?years, compared with standard treatments. However, all the studies had problems with the way they were designed. Also, few of the studies looked at outcomes that have been described as most important to autistic people or followed children beyond 2?years. We think that further systematic reviews of the existing evidence are unlikely to add to the findings of our review. Furthermore, we recommend that future research should investigate which types of supports and interventions are most effective for children and families, prioritising outcomes measures that are meaningful for the autism community and include, wherever possible, longer-term follow-up. En ligne : http://dx.doi.org/10.1177/1362361320985680 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Development and utility of the Family-Centered Autism Navigation interview / Kris PIZUR-BARNEKOW in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1154-1160 Titre : Development and utility of the Family-Centered Autism Navigation interview Type de document : Texte imprimé et/ou numérique Auteurs : Kris PIZUR-BARNEKOW, Auteur ; Amy C. LANG, Auteur ; Brian D. BARGER, Auteur Article en page(s) : p.1154-1160 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  family functioning and support  health services Index. décimale : PER Périodiques Résumé : When a parent learns of their child's autism diagnosis, they may be overwhelmed, confused, and frustrated. Family navigation services are designed to improve access to care. While these services are a promising intervention to enhance well-being and developmental outcomes, there are limited tools that can systematically facilitate the development of a shared navigation plan that prioritizes the concerns of the family. The Family-Centered Autism Navigation semi-structured interview guide is designed for family navigators to triage and prioritize caregiver's needs to coordinate and navigate systems of care after learning of their child's autism spectrum disorder diagnosis. The goals of the Family-Centered Autism Navigation interview are to (1) identify family and child strengths; (2) identify family/caregiver concerns regarding navigation of services and systems following their child's diagnosis of autism; (3) measure change in caregiver knowledge, ability and skill as it relates to understanding, remembering, and evaluating information they receive; and (4) assist with the development of a shared navigation plan. When using the Family-Centered Autism Navigation guide, family navigators and caregivers co-create a family-centered, prioritized action plan that supports and prepares caregivers as they navigate systems of care. This short report describes the development process of the Family-Centered Autism Navigation semi-structured interview guide. We utilized brief interviews (n?=?42), expert feedback (n?=?13), and quality improvement strategies (n?=?2 family navigators) to develop the questions and determine the usability of the Family-Centered Autism Navigation interview in practice. En ligne : http://dx.doi.org/10.1177/1362361320972890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Development and utility of the Family-Centered Autism Navigation interview [Texte imprimé et/ou numérique] / Kris PIZUR-BARNEKOW, Auteur ; Amy C. LANG, Auteur ; Brian D. BARGER, Auteur . - p.1154-1160. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1154-1160 Mots-clés : autism spectrum disorders  family functioning and support  health services Index. décimale : PER Périodiques Résumé : When a parent learns of their child's autism diagnosis, they may be overwhelmed, confused, and frustrated. Family navigation services are designed to improve access to care. While these services are a promising intervention to enhance well-being and developmental outcomes, there are limited tools that can systematically facilitate the development of a shared navigation plan that prioritizes the concerns of the family. The Family-Centered Autism Navigation semi-structured interview guide is designed for family navigators to triage and prioritize caregiver's needs to coordinate and navigate systems of care after learning of their child's autism spectrum disorder diagnosis. The goals of the Family-Centered Autism Navigation interview are to (1) identify family and child strengths; (2) identify family/caregiver concerns regarding navigation of services and systems following their child's diagnosis of autism; (3) measure change in caregiver knowledge, ability and skill as it relates to understanding, remembering, and evaluating information they receive; and (4) assist with the development of a shared navigation plan. When using the Family-Centered Autism Navigation guide, family navigators and caregivers co-create a family-centered, prioritized action plan that supports and prepares caregivers as they navigate systems of care. This short report describes the development process of the Family-Centered Autism Navigation semi-structured interview guide. We utilized brief interviews (n?=?42), expert feedback (n?=?13), and quality improvement strategies (n?=?2 family navigators) to develop the questions and determine the usability of the Family-Centered Autism Navigation interview in practice. En ligne : http://dx.doi.org/10.1177/1362361320972890 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444

Autistic parents' views and experiences of talking about autism with their autistic children / Laura CRANE in Autism, 25-4 (May 2021)  

Public ISBD [article]  inAutism > 25-4 (May 2021) . - p.1161-1167 Titre : Autistic parents' views and experiences of talking about autism with their autistic children Type de document : Texte imprimé et/ou numérique Auteurs : Laura CRANE, Auteur ; Lok Man LUI, Auteur ; Jade DAVIES, Auteur ; Elizabeth PELLICANO, Auteur Article en page(s) : p.1161-1167 Langues : Anglais (eng) Mots-clés : autism spectrum disorders  diagnosis  disclosure  family functioning and support  parents Index. décimale : PER Périodiques Résumé : Previous research examining how parents talk about autism with their children has tended to focus on parents who are not autistic themselves. We collected information on this topic from 34 autistic parents of autistic children (most of whom had told their children about their diagnosis). We found similarities, but also differences, between the views and experiences of autistic parents in this research and those reported in previous research (in studies of largely non-autistic parents). Similarities include the following: it is important to be open and honest about the diagnosis; the diagnosis should be introduced/discussed as early as possible; discussions should be tailored to each individual child's needs; and we should not overlook the challenges associated with autism, but it is important to focus on positive aspects too. Differences include the following: autistic parents used personal experiences in conversations about autism, which was felt to result in increased understanding and empathy with their children; autistic parents overwhelmingly focused on more positive aspects of an autism diagnosis; our sample did not express concerns that discussions could have negative consequences too (e.g. making children more anxious); and autistic parents did not want or need professional support to talk about autism with their children (instead, they felt confident in using their own knowledge/experiences to guide discussions). En ligne : http://dx.doi.org/10.1177/1362361320981317 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444 [article] Autistic parents' views and experiences of talking about autism with their autistic children [Texte imprimé et/ou numérique] / Laura CRANE, Auteur ; Lok Man LUI, Auteur ; Jade DAVIES, Auteur ; Elizabeth PELLICANO, Auteur . - p.1161-1167. Langues : Anglais (eng) in Autism > 25-4 (May 2021) . - p.1161-1167 Mots-clés : autism spectrum disorders  diagnosis  disclosure  family functioning and support  parents Index. décimale : PER Périodiques Résumé : Previous research examining how parents talk about autism with their children has tended to focus on parents who are not autistic themselves. We collected information on this topic from 34 autistic parents of autistic children (most of whom had told their children about their diagnosis). We found similarities, but also differences, between the views and experiences of autistic parents in this research and those reported in previous research (in studies of largely non-autistic parents). Similarities include the following: it is important to be open and honest about the diagnosis; the diagnosis should be introduced/discussed as early as possible; discussions should be tailored to each individual child's needs; and we should not overlook the challenges associated with autism, but it is important to focus on positive aspects too. Differences include the following: autistic parents used personal experiences in conversations about autism, which was felt to result in increased understanding and empathy with their children; autistic parents overwhelmingly focused on more positive aspects of an autism diagnosis; our sample did not express concerns that discussions could have negative consequences too (e.g. making children more anxious); and autistic parents did not want or need professional support to talk about autism with their children (instead, they felt confident in using their own knowledge/experiences to guide discussions). En ligne : http://dx.doi.org/10.1177/1362361320981317 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=444