Dépouillements

Changing the story: How diagnosticians can support a neurodiversity perspective from the start / Heather M. BROWN in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1171-1174 Titre : Changing the story: How diagnosticians can support a neurodiversity perspective from the start Type de document : Texte imprimé et/ou numérique Auteurs : Heather M. BROWN, Auteur ; Aubyn C. STAHMER, Auteur ; Patrick DWYER, Auteur ; Susan RIVERA, Auteur Article en page(s) : p.1171-1174 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Humans Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613211001012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Changing the story: How diagnosticians can support a neurodiversity perspective from the start [Texte imprimé et/ou numérique] / Heather M. BROWN, Auteur ; Aubyn C. STAHMER, Auteur ; Patrick DWYER, Auteur ; Susan RIVERA, Auteur . - p.1171-1174. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1171-1174 Mots-clés : Autism Spectrum Disorder  Humans Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613211001012 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Do animated triangles reveal a marked difficulty among autistic people with reading minds? / Alexander C. WILSON in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1175-1186 Titre : Do animated triangles reveal a marked difficulty among autistic people with reading minds? Type de document : Texte imprimé et/ou numérique Auteurs : Alexander C. WILSON, Auteur Article en page(s) : p.1175-1186 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Humans  Reading  Theory of Mind  animated triangles  autism  mentalising  meta-analysis  theory of mind  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic people are thought to have difficulty with mentalising (our drive to track and understand the minds of other people). Mentalising is often measured by the Frith-Happé Animations task, where individuals need to interpret the interactions of abstract shapes. This review article collated results from over 3000 people to assess how autistic people performed on the task. Analysis showed that autistic people tended to underperform compared to non-autistic people on the task, although the scale of the difference was moderate rather than large. Also, autistic people showed some difficulty with the non-mentalising as well as mentalising aspects of the task. These results raise questions about the scale and specificity of mentalising difficulties in autism. It also remains unclear how well mentalising difficulties account for the social challenges diagnostic of autism. En ligne : http://dx.doi.org/10.1177/1362361321989152 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Do animated triangles reveal a marked difficulty among autistic people with reading minds? [Texte imprimé et/ou numérique] / Alexander C. WILSON, Auteur . - p.1175-1186. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1175-1186 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Humans  Reading  Theory of Mind  animated triangles  autism  mentalising  meta-analysis  theory of mind  of interest with respect to the research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Autistic people are thought to have difficulty with mentalising (our drive to track and understand the minds of other people). Mentalising is often measured by the Frith-Happé Animations task, where individuals need to interpret the interactions of abstract shapes. This review article collated results from over 3000 people to assess how autistic people performed on the task. Analysis showed that autistic people tended to underperform compared to non-autistic people on the task, although the scale of the difference was moderate rather than large. Also, autistic people showed some difficulty with the non-mentalising as well as mentalising aspects of the task. These results raise questions about the scale and specificity of mentalising difficulties in autism. It also remains unclear how well mentalising difficulties account for the social challenges diagnostic of autism. En ligne : http://dx.doi.org/10.1177/1362361321989152 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Mental health, broad autism phenotype and psychological inflexibility in mothers of young children with autism spectrum disorder in Australia: A cross-sectional survey / Kavindri KULASINGHE in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1187-1202 Titre : Mental health, broad autism phenotype and psychological inflexibility in mothers of young children with autism spectrum disorder in Australia: A cross-sectional survey Type de document : Texte imprimé et/ou numérique Auteurs : Kavindri KULASINGHE, Auteur ; Koa WHITTINGHAM, Auteur ; Amy E. MITCHELL, Auteur Article en page(s) : p.1187-1202 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Child  Child, Preschool  Cross-Sectional Studies  Female  Humans  Mental Health  Mothers  Parenting  Phenotype  Stress, Psychological/epidemiology  autism spectrum disorder  broad autism phenotype  maternal mental health  psychological inflexibility Index. décimale : PER Périodiques Résumé : Mothers of children with autism tend to have poorer mental health outcomes compared to most mothers. Lack of social support, parenting challenges and relationship difficulties are more common for mothers of children with autism and can all affect maternal mental health. Mothers of children with autism are also more likely to have some autistic features, called the broad autism phenotype, that can contribute to poorer mental health; however, how these factors relate to one another are unclear. This study found that mothers who were less flexible in their thinking and behaviour and had more difficult parenting experiences tended to have poorer mental health. Mothers with more autistic features were less flexible in their thinking and behaviour, which, in turn, was linked to greater symptoms of depression, anxiety and stress. Mothers with greater autistic features also reported more difficult parenting experiences, which was in turn linked with greater symptoms of anxiety and depression. This study suggests that supporting mothers of young children with autism to manage parenting challenges and become more flexible with their thinking and behaviour could help to improve their mental health. En ligne : http://dx.doi.org/10.1177/1362361320984625 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Mental health, broad autism phenotype and psychological inflexibility in mothers of young children with autism spectrum disorder in Australia: A cross-sectional survey [Texte imprimé et/ou numérique] / Kavindri KULASINGHE, Auteur ; Koa WHITTINGHAM, Auteur ; Amy E. MITCHELL, Auteur . - p.1187-1202. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1187-1202 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Child  Child, Preschool  Cross-Sectional Studies  Female  Humans  Mental Health  Mothers  Parenting  Phenotype  Stress, Psychological/epidemiology  autism spectrum disorder  broad autism phenotype  maternal mental health  psychological inflexibility Index. décimale : PER Périodiques Résumé : Mothers of children with autism tend to have poorer mental health outcomes compared to most mothers. Lack of social support, parenting challenges and relationship difficulties are more common for mothers of children with autism and can all affect maternal mental health. Mothers of children with autism are also more likely to have some autistic features, called the broad autism phenotype, that can contribute to poorer mental health; however, how these factors relate to one another are unclear. This study found that mothers who were less flexible in their thinking and behaviour and had more difficult parenting experiences tended to have poorer mental health. Mothers with more autistic features were less flexible in their thinking and behaviour, which, in turn, was linked to greater symptoms of depression, anxiety and stress. Mothers with greater autistic features also reported more difficult parenting experiences, which was in turn linked with greater symptoms of anxiety and depression. This study suggests that supporting mothers of young children with autism to manage parenting challenges and become more flexible with their thinking and behaviour could help to improve their mental health. En ligne : http://dx.doi.org/10.1177/1362361320984625 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Exploring the health of families with a child with autism / Sarah L. SMITH in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1203-1215 Titre : Exploring the health of families with a child with autism Type de document : Texte imprimé et/ou numérique Auteurs : Sarah L. SMITH, Auteur ; Hannah B. MCQUADE, Auteur Article en page(s) : p.1203-1215 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Child  Fathers  Female  Grandparents  Humans  Male  Parents  autism spectrum disorders  family functioning and support  family health  qualitative research Index. décimale : PER Périodiques Résumé : Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms), children, and children with autism, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what helped and influenced their family's health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families from a holistic perspective. En ligne : http://dx.doi.org/10.1177/1362361320986354 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Exploring the health of families with a child with autism [Texte imprimé et/ou numérique] / Sarah L. SMITH, Auteur ; Hannah B. MCQUADE, Auteur . - p.1203-1215. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1203-1215 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Child  Fathers  Female  Grandparents  Humans  Male  Parents  autism spectrum disorders  family functioning and support  family health  qualitative research Index. décimale : PER Périodiques Résumé : Families are important for the overall growth and development of a child. The health of a family is foundational to the everyday life in which a child and family can blossom. Families with a child with autism have a family life that has challenges for many reasons including that parents can be stressed from trying to figure out how to be a good parent for their child with autism. We wanted to know two things: (1) what is family health for families of a child with autism and (2) what affects families trying to be their healthiest. We wanted to know the answers to these questions from families themselves, including parents (not just moms), children, and children with autism, because they are the best experts. We talked to 16 families including 16 mothers, 8 fathers, and 32 children (18 with autism). Families shared that being a healthy family was a journey with ups and downs and that families were not always perfect. It helped when families knew about themselves as a family such as knowing what they liked and did not like to do, and knowing what the different people in the family needed. Families said that what helped and influenced their family's health was being together, keeping their days not too busy, stress, autism itself, having helpers like friends, grandparents, therapists, and having money to pay for services. We hope that knowing these answers will guide service providers of people with autism to think about healthy families from a holistic perspective. En ligne : http://dx.doi.org/10.1177/1362361320986354 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Can pictorial narration offer a solution to teacher training on the effective inclusion of students with autism spectrum disorder in low-resource settings? Investigation on knowledge and stigma change / Hui Min LOW in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1216-1233 Titre : Can pictorial narration offer a solution to teacher training on the effective inclusion of students with autism spectrum disorder in low-resource settings? Investigation on knowledge and stigma change Type de document : Texte imprimé et/ou numérique Auteurs : Hui Min LOW, Auteur ; Tze Peng WONG, Auteur ; Lay Wah LEE, Auteur ; Somchay MAKESAVANH, Auteur ; Bountheing VONGSOUANGTHAM, Auteur ; Vikate PHANNALATH, Auteur ; Aznan CHE AHMAD, Auteur ; Ann Sien Sut LEE, Auteur Article en page(s) : p.1216-1233 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Humans  Narration  Social Stigma  Students  Teacher Training  Lao People’s Democratic Republic  autism spectrum disorders  inclusion  knowledge  low- and middle-income countries  stigma  teachers Index. décimale : PER Périodiques Résumé : In this study, we explored whether pictorial narration could offer a solution to teacher training on effective inclusion of students with autism spectrum disorder in the Lao People's Democratic Republic. For this purpose, pre- and post-training knowledge data were collected from 87 Laotian teachers who participated in teacher training using a pictorial narrative e-module called The Story of Khamdy(TM). The teachers' knowledge test results and feedback were analyzed. The findings indicated that teachers' acceptance toward the training method had positive effects on their knowledge changes and supported the use of a pictorial narration approach in imparting knowledge about inclusive education and autism spectrum disorder to teachers in a least developed country. En ligne : http://dx.doi.org/10.1177/1362361320984899 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Can pictorial narration offer a solution to teacher training on the effective inclusion of students with autism spectrum disorder in low-resource settings? Investigation on knowledge and stigma change [Texte imprimé et/ou numérique] / Hui Min LOW, Auteur ; Tze Peng WONG, Auteur ; Lay Wah LEE, Auteur ; Somchay MAKESAVANH, Auteur ; Bountheing VONGSOUANGTHAM, Auteur ; Vikate PHANNALATH, Auteur ; Aznan CHE AHMAD, Auteur ; Ann Sien Sut LEE, Auteur . - p.1216-1233. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1216-1233 Mots-clés : Autism Spectrum Disorder  Humans  Narration  Social Stigma  Students  Teacher Training  Lao People’s Democratic Republic  autism spectrum disorders  inclusion  knowledge  low- and middle-income countries  stigma  teachers Index. décimale : PER Périodiques Résumé : In this study, we explored whether pictorial narration could offer a solution to teacher training on effective inclusion of students with autism spectrum disorder in the Lao People's Democratic Republic. For this purpose, pre- and post-training knowledge data were collected from 87 Laotian teachers who participated in teacher training using a pictorial narrative e-module called The Story of Khamdy(TM). The teachers' knowledge test results and feedback were analyzed. The findings indicated that teachers' acceptance toward the training method had positive effects on their knowledge changes and supported the use of a pictorial narration approach in imparting knowledge about inclusive education and autism spectrum disorder to teachers in a least developed country. En ligne : http://dx.doi.org/10.1177/1362361320984899 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

End-user perspectives on the development of an online intervention for parents of children on the autism spectrum / Susannah HERMASZEWSKA in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1234-1245 Titre : End-user perspectives on the development of an online intervention for parents of children on the autism spectrum Type de document : Texte imprimé et/ou numérique Auteurs : Susannah HERMASZEWSKA, Auteur ; Jacqueline SIN, Auteur Article en page(s) : p.1234-1245 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Internet-Based Intervention  Parents  autism  eHealth  family caregiver  online intervention  parents  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Parent caregivers play an essential role in the lives of individuals on the autism spectrum. The demands of caregiving can have negative effects on the mental and physical wellbeing of parents. Different types of formal support have been developed to help parents to cope with caregiving; however, many parents struggle to access services due to limited availability and busy schedules. The Internet could offer parents more accessible and flexible support. We asked 17 parents what content they would like to include in an online resource. Parents told us about their experiences trying to access and use existing formal support and websites. They overwhelmingly supported the development of an online resource informed by their suggestions. Parents emphasised the need for easier access to information through educational components and direct access to healthcare professionals online. Parents also wanted help with finding existing services and reliable, locally relevant information. Parents stressed the need for a safe environment to meet and chat with other parents online. This research forms the first stage in the development process of an online health resource for parents. En ligne : http://dx.doi.org/10.1177/1362361320984895 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] End-user perspectives on the development of an online intervention for parents of children on the autism spectrum [Texte imprimé et/ou numérique] / Susannah HERMASZEWSKA, Auteur ; Jacqueline SIN, Auteur . - p.1234-1245. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1234-1245 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Caregivers  Child  Humans  Internet-Based Intervention  Parents  autism  eHealth  family caregiver  online intervention  parents  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Parent caregivers play an essential role in the lives of individuals on the autism spectrum. The demands of caregiving can have negative effects on the mental and physical wellbeing of parents. Different types of formal support have been developed to help parents to cope with caregiving; however, many parents struggle to access services due to limited availability and busy schedules. The Internet could offer parents more accessible and flexible support. We asked 17 parents what content they would like to include in an online resource. Parents told us about their experiences trying to access and use existing formal support and websites. They overwhelmingly supported the development of an online resource informed by their suggestions. Parents emphasised the need for easier access to information through educational components and direct access to healthcare professionals online. Parents also wanted help with finding existing services and reliable, locally relevant information. Parents stressed the need for a safe environment to meet and chat with other parents online. This research forms the first stage in the development process of an online health resource for parents. En ligne : http://dx.doi.org/10.1177/1362361320984895 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Effects of autism acceptance training on explicit and implicit biases toward autism / Desiree R. JONES in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1246-1261 Titre : Effects of autism acceptance training on explicit and implicit biases toward autism Type de document : Texte imprimé et/ou numérique Auteurs : Desiree R. JONES, Auteur ; Kilee M. DEBRABANDER, Auteur ; Noah J. SASSON, Auteur Article en page(s) : p.1246-1261 Langues : Anglais (eng) Mots-clés : Adult  Attitude  Autism Spectrum Disorder  Autistic Disorder  Bias  Humans  Prejudice  first impressions  inclusion  intervention  stigma Index. décimale : PER Périodiques Résumé : Autistic adults face prejudice from non-autistic people. They are often judged unfairly and left out of social activities because of their differences. This can make it difficult for autistic people to make friends and find jobs. Some training programs have tried to teach autistic people to act more like non-autistic people to help them gain acceptance. Fewer have focused on teaching non-autistic people how to be more autism friendly. In this study, we used a short training video that teaches people about autism. The video was created with the help of autistic adults and included clips of real autistic people. We found that non-autistic people who watched this video had better knowledge about autism and showed more autism-friendly attitudes than those who watched a video about mental health or those who did not watch any video. They were more open to having a relationship with an autistic person and had more positive beliefs about autism. However, our video did not affect people's unconscious attitudes about autism. People in our study connected autism with unpleasant traits, even if they had watched the autism training video. This suggests that teaching non-autistic people about autism may promote more autism-friendly attitudes, but some beliefs may be harder to change. En ligne : http://dx.doi.org/10.1177/1362361320984896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Effects of autism acceptance training on explicit and implicit biases toward autism [Texte imprimé et/ou numérique] / Desiree R. JONES, Auteur ; Kilee M. DEBRABANDER, Auteur ; Noah J. SASSON, Auteur . - p.1246-1261. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1246-1261 Mots-clés : Adult  Attitude  Autism Spectrum Disorder  Autistic Disorder  Bias  Humans  Prejudice  first impressions  inclusion  intervention  stigma Index. décimale : PER Périodiques Résumé : Autistic adults face prejudice from non-autistic people. They are often judged unfairly and left out of social activities because of their differences. This can make it difficult for autistic people to make friends and find jobs. Some training programs have tried to teach autistic people to act more like non-autistic people to help them gain acceptance. Fewer have focused on teaching non-autistic people how to be more autism friendly. In this study, we used a short training video that teaches people about autism. The video was created with the help of autistic adults and included clips of real autistic people. We found that non-autistic people who watched this video had better knowledge about autism and showed more autism-friendly attitudes than those who watched a video about mental health or those who did not watch any video. They were more open to having a relationship with an autistic person and had more positive beliefs about autism. However, our video did not affect people's unconscious attitudes about autism. People in our study connected autism with unpleasant traits, even if they had watched the autism training video. This suggests that teaching non-autistic people about autism may promote more autism-friendly attitudes, but some beliefs may be harder to change. En ligne : http://dx.doi.org/10.1177/1362361320984896 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Understanding the role of self-determination in shaping university experiences for autistic and typically developing students in the United Kingdom / Jiedi LEI in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1262-1278 Titre : Understanding the role of self-determination in shaping university experiences for autistic and typically developing students in the United Kingdom Type de document : Texte imprimé et/ou numérique Auteurs : Jiedi LEI, Auteur ; Ailsa RUSSELL, Auteur Article en page(s) : p.1262-1278 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Friends  Humans  Students  Universities  autism spectrum disorder  autonomy  college  competence  relatedness  self-determination  university  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Prior research suggests that autistic students in higher education might struggle with developing autonomy, competence and establish relatedness due to their executive functioning and social communication difficulties. We interviewed 18 autistic and 18 typically developing students to explore how students perceived themselves to be in control of their university experience. Both groups provided anecdotal examples that supported similar perceptions of self-determination in shaping the academic, daily living and socialisation aspects of university life. Autistic students reflected on their cognitive strengths such as attention to detail, persistence and ability to tailor their academic studies towards their interest. Varying degrees of sociability were noted, with some autistic students preferring to focus their self-determination efforts on academic success, while others treasured the novel social experiences including peer support and friendship at university. Compared to greater flexibility endorsed by typically developing students, autistic students perceived establishing a routine at university to be a necessity and were self-determined in maintaining stability amid a sea of change. Recognising strengths and self-determination efforts in autistic students can help stakeholders support their personal development towards independent living and self-sufficiency in adulthood and to successfully transition into, through and out of university. En ligne : http://dx.doi.org/10.1177/1362361320984897 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Understanding the role of self-determination in shaping university experiences for autistic and typically developing students in the United Kingdom [Texte imprimé et/ou numérique] / Jiedi LEI, Auteur ; Ailsa RUSSELL, Auteur . - p.1262-1278. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1262-1278 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Friends  Humans  Students  Universities  autism spectrum disorder  autonomy  college  competence  relatedness  self-determination  university  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Prior research suggests that autistic students in higher education might struggle with developing autonomy, competence and establish relatedness due to their executive functioning and social communication difficulties. We interviewed 18 autistic and 18 typically developing students to explore how students perceived themselves to be in control of their university experience. Both groups provided anecdotal examples that supported similar perceptions of self-determination in shaping the academic, daily living and socialisation aspects of university life. Autistic students reflected on their cognitive strengths such as attention to detail, persistence and ability to tailor their academic studies towards their interest. Varying degrees of sociability were noted, with some autistic students preferring to focus their self-determination efforts on academic success, while others treasured the novel social experiences including peer support and friendship at university. Compared to greater flexibility endorsed by typically developing students, autistic students perceived establishing a routine at university to be a necessity and were self-determined in maintaining stability amid a sea of change. Recognising strengths and self-determination efforts in autistic students can help stakeholders support their personal development towards independent living and self-sufficiency in adulthood and to successfully transition into, through and out of university. En ligne : http://dx.doi.org/10.1177/1362361320984897 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Intermittent theta burst stimulation over the posterior superior temporal sulcus for children with autism spectrum disorder: A 4-week randomized blinded controlled trial followed by another 4-week open-label intervention / Hsing-Chang NI in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1279-1294 Titre : Intermittent theta burst stimulation over the posterior superior temporal sulcus for children with autism spectrum disorder: A 4-week randomized blinded controlled trial followed by another 4-week open-label intervention Type de document : Texte imprimé et/ou numérique Auteurs : Hsing-Chang NI, Auteur ; Yi-Lung CHEN, Auteur ; Yi-Ping CHAO, Auteur ; Chen-Te WU, Auteur ; Yu-Yu WU, Auteur ; Sophie Hsin-Yi LIANG, Auteur ; Wei-Chih CHIN, Auteur ; Tai-Li CHOU, Auteur ; Susan Shur-Fen GAU, Auteur ; Ying-Zu HUANG, Auteur ; Hsiang-Yuan LIN, Auteur Article en page(s) : p.1279-1294 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Child  Double-Blind Method  Humans  Single-Blind Method  Temporal Lobe  Transcranial Magnetic Stimulation  Treatment Outcome  autism spectrum disorder  children and adolescents  intervention  posterior superior temporal sulcus  theta burst stimulation Index. décimale : PER Périodiques Résumé : Intermittent theta burst stimulation is a varied form of repetitive transcranial magnetic non-invasive brain stimulation technique used to treat several neurological and psychiatric disorders. Its feasibility and therapeutic effects on the bilateral posterior superior temporal sulcus in children with autism are unknown. We conducted a single-blind, sham-controlled parallel randomized clinical trial in a hitherto largest sample of intellectually able children with autism (N=78). Participants randomized to the active group received two-session/week intermittent theta burst stimulation for continuous 8weeks. Those in the sham group received two-session/week sham stimulations in the first 4weeks and then active intervention for the following 4weeks after unblinding. First, we found that continuous 8-week intermittent theta burst stimulation on the bilateral posterior superior temporal sulcus in children with autism is safe and tolerable. Second, we found that 8-week intermittent theta burst stimulation produced greater therapeutic efficacy, although we did not find any significant effects of 4-week intermittent theta burst stimulation on core symptoms and social cognitive performances in autism. Further analysis revealed that participants with higher intelligence and better social cognitive performance, alongside less attention-deficit hyperactivity disorder severity at baseline, were more likely to be responders. This study identified that the factors contribute to responders and the results suggest that longer courses of non-invasive brain stimulation may be needed to produce therapeutic benefits in autism, with consideration of heterogeneous responses. En ligne : http://dx.doi.org/10.1177/1362361321990534 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Intermittent theta burst stimulation over the posterior superior temporal sulcus for children with autism spectrum disorder: A 4-week randomized blinded controlled trial followed by another 4-week open-label intervention [Texte imprimé et/ou numérique] / Hsing-Chang NI, Auteur ; Yi-Lung CHEN, Auteur ; Yi-Ping CHAO, Auteur ; Chen-Te WU, Auteur ; Yu-Yu WU, Auteur ; Sophie Hsin-Yi LIANG, Auteur ; Wei-Chih CHIN, Auteur ; Tai-Li CHOU, Auteur ; Susan Shur-Fen GAU, Auteur ; Ying-Zu HUANG, Auteur ; Hsiang-Yuan LIN, Auteur . - p.1279-1294. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1279-1294 Mots-clés : Autism Spectrum Disorder/therapy  Child  Double-Blind Method  Humans  Single-Blind Method  Temporal Lobe  Transcranial Magnetic Stimulation  Treatment Outcome  autism spectrum disorder  children and adolescents  intervention  posterior superior temporal sulcus  theta burst stimulation Index. décimale : PER Périodiques Résumé : Intermittent theta burst stimulation is a varied form of repetitive transcranial magnetic non-invasive brain stimulation technique used to treat several neurological and psychiatric disorders. Its feasibility and therapeutic effects on the bilateral posterior superior temporal sulcus in children with autism are unknown. We conducted a single-blind, sham-controlled parallel randomized clinical trial in a hitherto largest sample of intellectually able children with autism (N=78). Participants randomized to the active group received two-session/week intermittent theta burst stimulation for continuous 8weeks. Those in the sham group received two-session/week sham stimulations in the first 4weeks and then active intervention for the following 4weeks after unblinding. First, we found that continuous 8-week intermittent theta burst stimulation on the bilateral posterior superior temporal sulcus in children with autism is safe and tolerable. Second, we found that 8-week intermittent theta burst stimulation produced greater therapeutic efficacy, although we did not find any significant effects of 4-week intermittent theta burst stimulation on core symptoms and social cognitive performances in autism. Further analysis revealed that participants with higher intelligence and better social cognitive performance, alongside less attention-deficit hyperactivity disorder severity at baseline, were more likely to be responders. This study identified that the factors contribute to responders and the results suggest that longer courses of non-invasive brain stimulation may be needed to produce therapeutic benefits in autism, with consideration of heterogeneous responses. En ligne : http://dx.doi.org/10.1177/1362361321990534 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Self-reported community participation experiences and preferences of autistic adults / Lindsay L. SHEA in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1295-1306 Titre : Self-reported community participation experiences and preferences of autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Lindsay L. SHEA, Auteur ; Katherine VERSTREATE, Auteur ; Stacy L. NONNEMACHER, Auteur ; Wei SONG, Auteur ; Mark S. SALZER, Auteur Article en page(s) : p.1295-1306 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Community Participation  Humans  Intellectual Disability/epidemiology  Self Report  autism spectrum disorders  quality of life  social services Index. décimale : PER Périodiques Résumé : Although participation in communities is a key component of health and well-being, little research has explored community participation among autistic adults. A better understanding of preferences and access to various community activities among autistic adults provides intervention and policy directions in a critical area. This study reports responses from one of the largest groups of autistic adults surveyed to date. Participants reported their valued activities, number of days they participated in each activity during the previous month, and the extent to which they perceived their participation to be sufficient. Grocery shopping was the most common community activity, and most important. A wide range of activities were participated in during the previous month and more than half of the autistic adults reported that most activities were important. Autistic adults with a co-occurring intellectual disability participated in fewer activities and said that fewer activities were important. Sufficiency, or the degree to which an individual felt they participated enough in important activities, was greater for autistic adults with higher incomes and lower for autistic adults who lived independently or had co-occurring psychiatric diagnoses. Breadth of participation, or the number of important types of participation in the past month, was lower for autistic adults residing in supported living facilities and for autistic adults with co-occurring psychiatric diagnoses. Breadth was greater for autistic adults with self-reported service needs. Our study findings offer important information to guide implementation of new federal requirements aimed at promoting greater community participation among individuals covered by Medicaid. En ligne : http://dx.doi.org/10.1177/1362361320987682 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Self-reported community participation experiences and preferences of autistic adults [Texte imprimé et/ou numérique] / Lindsay L. SHEA, Auteur ; Katherine VERSTREATE, Auteur ; Stacy L. NONNEMACHER, Auteur ; Wei SONG, Auteur ; Mark S. SALZER, Auteur . - p.1295-1306. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1295-1306 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder/epidemiology  Community Participation  Humans  Intellectual Disability/epidemiology  Self Report  autism spectrum disorders  quality of life  social services Index. décimale : PER Périodiques Résumé : Although participation in communities is a key component of health and well-being, little research has explored community participation among autistic adults. A better understanding of preferences and access to various community activities among autistic adults provides intervention and policy directions in a critical area. This study reports responses from one of the largest groups of autistic adults surveyed to date. Participants reported their valued activities, number of days they participated in each activity during the previous month, and the extent to which they perceived their participation to be sufficient. Grocery shopping was the most common community activity, and most important. A wide range of activities were participated in during the previous month and more than half of the autistic adults reported that most activities were important. Autistic adults with a co-occurring intellectual disability participated in fewer activities and said that fewer activities were important. Sufficiency, or the degree to which an individual felt they participated enough in important activities, was greater for autistic adults with higher incomes and lower for autistic adults who lived independently or had co-occurring psychiatric diagnoses. Breadth of participation, or the number of important types of participation in the past month, was lower for autistic adults residing in supported living facilities and for autistic adults with co-occurring psychiatric diagnoses. Breadth was greater for autistic adults with self-reported service needs. Our study findings offer important information to guide implementation of new federal requirements aimed at promoting greater community participation among individuals covered by Medicaid. En ligne : http://dx.doi.org/10.1177/1362361320987682 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Are there anthropometric and body composition differences between children with autism spectrum disorder and children with typical development? Analysis by age and spectrum severity in a school population / Patricia ESTEBAN-FIGUEROLA in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1307-1320 Titre : Are there anthropometric and body composition differences between children with autism spectrum disorder and children with typical development? Analysis by age and spectrum severity in a school population Type de document : Texte imprimé et/ou numérique Auteurs : Patricia ESTEBAN-FIGUEROLA, Auteur ; Paula MORALES-HIDALGO, Auteur ; Victoria ARIJA-VAL, Auteur ; Josefa CANALS-SANS, Auteur Article en page(s) : p.1307-1320 Langues : Anglais (eng) Mots-clés : Anthropometry  Autism Spectrum Disorder/epidemiology  Body Composition  Body Mass Index  Child  Humans  Overweight/epidemiology  Schools  autism spectrum disorder  pre-school  waist/height ratio Index. décimale : PER Périodiques Résumé : This study makes a comparison between the growth status of pre-school and school-age children with autism spectrum disorder and typical development children. Pre-schoolers with autism spectrum disorder were taller than children with typical development. School-age children with autism spectrum disorder were more overweight/obese, had more body fat and a greater waist circumference and waist/height ratio than children with typical development. The presence of autism spectrum disorder and internalizing problems was associated with cardiovascular risk in school-age children. En ligne : http://dx.doi.org/10.1177/1362361320987724 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Are there anthropometric and body composition differences between children with autism spectrum disorder and children with typical development? Analysis by age and spectrum severity in a school population [Texte imprimé et/ou numérique] / Patricia ESTEBAN-FIGUEROLA, Auteur ; Paula MORALES-HIDALGO, Auteur ; Victoria ARIJA-VAL, Auteur ; Josefa CANALS-SANS, Auteur . - p.1307-1320. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1307-1320 Mots-clés : Anthropometry  Autism Spectrum Disorder/epidemiology  Body Composition  Body Mass Index  Child  Humans  Overweight/epidemiology  Schools  autism spectrum disorder  pre-school  waist/height ratio Index. décimale : PER Périodiques Résumé : This study makes a comparison between the growth status of pre-school and school-age children with autism spectrum disorder and typical development children. Pre-schoolers with autism spectrum disorder were taller than children with typical development. School-age children with autism spectrum disorder were more overweight/obese, had more body fat and a greater waist circumference and waist/height ratio than children with typical development. The presence of autism spectrum disorder and internalizing problems was associated with cardiovascular risk in school-age children. En ligne : http://dx.doi.org/10.1177/1362361320987724 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Reduced differentiation of emotion-associated bodily sensations in autism / Eleanor R. PALSER in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1321-1334 Titre : Reduced differentiation of emotion-associated bodily sensations in autism Type de document : Texte imprimé et/ou numérique Auteurs : Eleanor R. PALSER, Auteur ; Alejandro GALVEZ-POL, Auteur ; Clare E. PALMER, Auteur ; Ricci HANNAH, Auteur ; Aikaterini FOTOPOULOU, Auteur ; Elizabeth PELLICANO, Auteur ; James M. KILNER, Auteur Article en page(s) : p.1321-1334 Langues : Anglais (eng) Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder  Child  Emotions  Humans  Interoception  Sensation  autism  emotion  interoception Index. décimale : PER Périodiques Résumé : More research has been conducted on how autistic people understand and interpret other people's emotions, than on how autistic people experience their own emotions. The experience of emotion is important however, because it can relate to difficulties like anxiety and depression, which are common in autism. In neurotypical adults and children, different emotions have been associated with unique maps of activity patterns in the body. Whether these maps of emotion are comparable in autism is currently unknown. Here, we asked 100 children and adolescents, 45 of whom were autistic, to color in outlines of the body to indicate how they experienced seven emotions. Autistic adults and children sometimes report differences in how they experience their internal bodily states, termed interoception, and so we also investigated how this related to the bodily maps of emotion. In this study, the autistic children and adolescents had comparable interoception to the non-autistic children and adolescents, but there was less variability in their maps of emotion. In other words, they showed more similar patterns of activity across the different emotions. This was not related to interoception, however. This work suggests that there are differences in how autistic people experience emotion that are not explained by differences in interoception. In neurotypical people, less variability in emotional experiences is linked to anxiety and depression, and future work should seek to understand if this is a contributing factor to the increased prevalence of these difficulties in autism. En ligne : http://dx.doi.org/10.1177/1362361320987950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Reduced differentiation of emotion-associated bodily sensations in autism [Texte imprimé et/ou numérique] / Eleanor R. PALSER, Auteur ; Alejandro GALVEZ-POL, Auteur ; Clare E. PALMER, Auteur ; Ricci HANNAH, Auteur ; Aikaterini FOTOPOULOU, Auteur ; Elizabeth PELLICANO, Auteur ; James M. KILNER, Auteur . - p.1321-1334. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1321-1334 Mots-clés : Adolescent  Adult  Autism Spectrum Disorder  Autistic Disorder  Child  Emotions  Humans  Interoception  Sensation  autism  emotion  interoception Index. décimale : PER Périodiques Résumé : More research has been conducted on how autistic people understand and interpret other people's emotions, than on how autistic people experience their own emotions. The experience of emotion is important however, because it can relate to difficulties like anxiety and depression, which are common in autism. In neurotypical adults and children, different emotions have been associated with unique maps of activity patterns in the body. Whether these maps of emotion are comparable in autism is currently unknown. Here, we asked 100 children and adolescents, 45 of whom were autistic, to color in outlines of the body to indicate how they experienced seven emotions. Autistic adults and children sometimes report differences in how they experience their internal bodily states, termed interoception, and so we also investigated how this related to the bodily maps of emotion. In this study, the autistic children and adolescents had comparable interoception to the non-autistic children and adolescents, but there was less variability in their maps of emotion. In other words, they showed more similar patterns of activity across the different emotions. This was not related to interoception, however. This work suggests that there are differences in how autistic people experience emotion that are not explained by differences in interoception. In neurotypical people, less variability in emotional experiences is linked to anxiety and depression, and future work should seek to understand if this is a contributing factor to the increased prevalence of these difficulties in autism. En ligne : http://dx.doi.org/10.1177/1362361320987950 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder / Vanessa C. FONG in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1335-1348 Titre : Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur Article en page(s) : p.1335-1348 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  autism spectrum disorder  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Cross-cultural perspectives on the meaning of family quality of life: Comparing Korean immigrant families and Canadian families of children with autism spectrum disorder [Texte imprimé et/ou numérique] / Vanessa C. FONG, Auteur ; Emily GARDINER, Auteur ; Grace IAROCCI, Auteur . - p.1335-1348. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1335-1348 Mots-clés : Autism Spectrum Disorder  Canada  Child  Cross-Cultural Comparison  Emigrants and Immigrants  Family  Humans  Parents  Qualitative Research  Quality of Life  Republic of Korea  autism spectrum disorder  cross-cultural  family quality of life  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : The purpose of this study was to compare Korean immigrant families and Canadian families of children with autism in their perceptions and definitions of family quality of life. Interviews were done with 13 Korean immigrant parents and 12 Canadian parents of children with autism living in BC, Canada. For Korean immigrant families, three themes were identified: family cohesiveness, value orientation, and acceptance from society. For Canadian families, themes comprising family interactions, support, emotional well-being, individual characteristics, and comparisons to other families were essential elements in defining their family quality of life. The findings emphasize how differences in culture may impact how we understand and assess family functioning and quality of life. If research informing the development of these tools lacks cross-cultural perspectives, service providers and professionals may fail to address these families' unique needs. En ligne : http://dx.doi.org/10.1177/1362361321989221 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use / Jiedi LEI in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1349-1367 Titre : Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use Type de document : Texte imprimé et/ou numérique Auteurs : Jiedi LEI, Auteur ; Lauren JONES, Auteur ; Mark BROSNAN, Auteur Article en page(s) : p.1349-1367 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Computer-Assisted Instruction  Education, Distance  Humans  Language  Technology  autism  disability  identity-first  neurodiversity  person-first  quality of life  terminology  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use identity-first language (autistic person), whereas professionals were more likely to use person-first language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although identity-first language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support. En ligne : http://dx.doi.org/10.1177/1362361320987963 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Exploring an e-learning community's response to the language and terminology use in autism from two massive open online courses on autism education and technology use [Texte imprimé et/ou numérique] / Jiedi LEI, Auteur ; Lauren JONES, Auteur ; Mark BROSNAN, Auteur . - p.1349-1367. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1349-1367 Mots-clés : Autism Spectrum Disorder  Autistic Disorder  Computer-Assisted Instruction  Education, Distance  Humans  Language  Technology  autism  disability  identity-first  neurodiversity  person-first  quality of life  terminology  conflicts of interest with respect to the research, authorship and/or publication  of this article. Index. décimale : PER Périodiques Résumé : Within the neurodiversity movement, one recent divergence is in the semantic choice of language when describing autism, as members of the autism and autistic community preferred to use identity-first language (autistic person), whereas professionals were more likely to use person-first language (person with autism). This study explored 803 e-learners' responses from their comments across two massive open online courses on autism education held between 2017 and 2019. Learners agreed that autistic individuals should guide others on which terminology to use when describing autism, and although identity-first language acknowledges autism as part of an individual's identity, it can also conjure up negative stereotypes and be stigmatising. Although family, friends and professionals highlighted that the diagnostic label is a way to facilitate understanding across stakeholder groups and help autistic individuals gain access to support, autistic self-advocates found the process of disclosing autism as a form of disability to conflict with their sense of identity, and broader terms such as 'autism spectrum' failed to capture individual strengths and weaknesses. Semantic language choices may matter less as long as the person's difficulties are clearly acknowledged, with adaptations made to meet their specific needs. Adding to a growing body of literature on terminology use in autism research and practice, we highlight that language used when describing autism should follow the autistic individual's lead, with the primary focus on communicating an individual's strengths and difficulties, to foster a sense of positive autism identity and inclusivity, and enable access to appropriate support. En ligne : http://dx.doi.org/10.1177/1362361320987963 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

A mixed methods exploration of community providers' perceived barriers and facilitators to the use of parent training with Medicaid-enrolled clients with autism / Diondra STRAITON in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1368-1381 Titre : A mixed methods exploration of community providers' perceived barriers and facilitators to the use of parent training with Medicaid-enrolled clients with autism Type de document : Texte imprimé et/ou numérique Auteurs : Diondra STRAITON, Auteur ; Barb GROOM, Auteur ; Brooke R. INGERSOLL, Auteur Article en page(s) : p.1368-1381 Langues : Anglais (eng) Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder  Humans  Medicaid  Parents  Surveys and Questionnaires  applied behavior analysis  health services  parent training Index. décimale : PER Périodiques Résumé : Using quantitative data from an online survey and qualitative data from follow-up interviews with applied behavior analysis providers, researchers examined barriers and facilitators to providing parent training to Medicaid-enrolled youth with autism spectrum disorder. Barriers and facilitators were identified at the family-, provider-, and organization-levels. Family-level barriers were significantly related to less frequent parent training use and poorer quality of use. Two recommendations are provided to increase the use of parent training in low-resourced community settings: (1) provide professional training opportunities to providers about best practices in parent training and (2) increase agency support for parent training, particularly in reducing logistical barriers. En ligne : http://dx.doi.org/10.1177/1362361321989911 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] A mixed methods exploration of community providers' perceived barriers and facilitators to the use of parent training with Medicaid-enrolled clients with autism [Texte imprimé et/ou numérique] / Diondra STRAITON, Auteur ; Barb GROOM, Auteur ; Brooke R. INGERSOLL, Auteur . - p.1368-1381. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1368-1381 Mots-clés : Adolescent  Autism Spectrum Disorder  Autistic Disorder  Humans  Medicaid  Parents  Surveys and Questionnaires  applied behavior analysis  health services  parent training Index. décimale : PER Périodiques Résumé : Using quantitative data from an online survey and qualitative data from follow-up interviews with applied behavior analysis providers, researchers examined barriers and facilitators to providing parent training to Medicaid-enrolled youth with autism spectrum disorder. Barriers and facilitators were identified at the family-, provider-, and organization-levels. Family-level barriers were significantly related to less frequent parent training use and poorer quality of use. Two recommendations are provided to increase the use of parent training in low-resourced community settings: (1) provide professional training opportunities to providers about best practices in parent training and (2) increase agency support for parent training, particularly in reducing logistical barriers. En ligne : http://dx.doi.org/10.1177/1362361321989911 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Examining frequent emergency department use among children and adolescents with autism spectrum disorder / Judith BEVERLY in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1382-1394 Titre : Examining frequent emergency department use among children and adolescents with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Judith BEVERLY, Auteur ; Theodoros GIANNOUCHOS, Auteur ; Timothy CALLAGHAN, Auteur Article en page(s) : p.1382-1394 Langues : Anglais (eng) Mots-clés : Adolescent  Attention Deficit Disorder with Hyperactivity/epidemiology  Autism Spectrum Disorder/epidemiology  Child  Comorbidity  Emergency Service, Hospital  Humans  Intellectual Disability/epidemiology  adolescents  autism  children  emergency department  frequent emergency department use  healthcare cost utilization project Index. décimale : PER Périodiques Résumé : This study used data for 5.9 million individuals with 9.1 million emergency department visits from all hospitals in the state of New York to explore frequent emergency department use between children and adolescents with autism spectrum disorders and those without autism spectrum disorders. We found that children and adolescents with autism spectrum disorders had larger shares of comorbidities and diagnoses related to attention-deficit/hyperactivity disorder, intellectual disability, and epilepsy. Children and adolescents with autism spectrum disorders were also more likely to utilize emergency departments and to exhibit frequent use. These results emphasize the need for using family-centered care to improve the care experiences of children and youth with autism spectrum disorders and their families. In addition, the education of emergency department staff of processes and practices as it relates to delivery of care and the care experience. En ligne : http://dx.doi.org/10.1177/1362361321990925 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Examining frequent emergency department use among children and adolescents with autism spectrum disorder [Texte imprimé et/ou numérique] / Judith BEVERLY, Auteur ; Theodoros GIANNOUCHOS, Auteur ; Timothy CALLAGHAN, Auteur . - p.1382-1394. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1382-1394 Mots-clés : Adolescent  Attention Deficit Disorder with Hyperactivity/epidemiology  Autism Spectrum Disorder/epidemiology  Child  Comorbidity  Emergency Service, Hospital  Humans  Intellectual Disability/epidemiology  adolescents  autism  children  emergency department  frequent emergency department use  healthcare cost utilization project Index. décimale : PER Périodiques Résumé : This study used data for 5.9 million individuals with 9.1 million emergency department visits from all hospitals in the state of New York to explore frequent emergency department use between children and adolescents with autism spectrum disorders and those without autism spectrum disorders. We found that children and adolescents with autism spectrum disorders had larger shares of comorbidities and diagnoses related to attention-deficit/hyperactivity disorder, intellectual disability, and epilepsy. Children and adolescents with autism spectrum disorders were also more likely to utilize emergency departments and to exhibit frequent use. These results emphasize the need for using family-centered care to improve the care experiences of children and youth with autism spectrum disorders and their families. In addition, the education of emergency department staff of processes and practices as it relates to delivery of care and the care experience. En ligne : http://dx.doi.org/10.1177/1362361321990925 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

Autism-specific parenting self-efficacy: An examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden / Jennifer KURZROK in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1395-1408 Titre : Autism-specific parenting self-efficacy: An examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden Type de document : Texte imprimé et/ou numérique Auteurs : Jennifer KURZROK, Auteur ; Eileen MCBRIDE, Auteur ; Ruth B. GROSSMAN, Auteur Article en page(s) : p.1395-1408 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Caregiver Burden  Child  Humans  Parenting  Parents  Personal Satisfaction  autism spectrum disorder  parent training  parenting self-efficacy Index. décimale : PER Périodiques Résumé : What is already known about the topic?Parents of children with autism experience enormous challenges managing the complex needs of caring for their children. This includes coordinating multiple and complex therapies and acting as partners in treatment. Parenting self-efficacy is the confidence a person has in their ability to manage the tasks that are part of raising a child. People who have more confidence, or greater parenting self-efficacy, often feel less stressed and are more able to manage the demands of family life. This is particularly important for parents with children who have autism spectrum disorder, since they experience more parenting pressures. Although a lot is known about parenting self-efficacy in parents of neurotypical children, we do not know enough about how to help parents of children with autism spectrum disorder develop greater parenting self-efficacy.What this paper adds?This study shows that parents gain a greater sense of parenting self-efficacy when they feel more involved in their child's therapy and are more satisfied with the training they receive as part of these therapies. We also find that feeling pressure related to being a caregiver of a child with autism spectrum disorder can undermine autism-specific parenting self-efficacy. However, parents' sense of confidence was not limited by the severity of their child's symptoms.Implications for practice, research, or policyThe results suggest that there is an opportunity to help parents develop a greater sense of confidence in their ability to manage the complexities of raising a child with autism spectrum disorder by helping them feel more involved in treatment and by creating intervention-related training experiences that are more satisfying. Providers might also help by taking time to address the challenges and pressures that parents are experiencing, and helping them find ways to deal with these challenges. We suggest that there needs to be more research exploring how providers can best design interventions that support autism-specific parenting self-efficacy as a way of improving parental and child well-being. En ligne : http://dx.doi.org/10.1177/1362361321990931 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] Autism-specific parenting self-efficacy: An examination of the role of parent-reported intervention involvement, satisfaction with intervention-related training, and caregiver burden [Texte imprimé et/ou numérique] / Jennifer KURZROK, Auteur ; Eileen MCBRIDE, Auteur ; Ruth B. GROSSMAN, Auteur . - p.1395-1408. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1395-1408 Mots-clés : Autism Spectrum Disorder/therapy  Autistic Disorder/therapy  Caregiver Burden  Child  Humans  Parenting  Parents  Personal Satisfaction  autism spectrum disorder  parent training  parenting self-efficacy Index. décimale : PER Périodiques Résumé : What is already known about the topic?Parents of children with autism experience enormous challenges managing the complex needs of caring for their children. This includes coordinating multiple and complex therapies and acting as partners in treatment. Parenting self-efficacy is the confidence a person has in their ability to manage the tasks that are part of raising a child. People who have more confidence, or greater parenting self-efficacy, often feel less stressed and are more able to manage the demands of family life. This is particularly important for parents with children who have autism spectrum disorder, since they experience more parenting pressures. Although a lot is known about parenting self-efficacy in parents of neurotypical children, we do not know enough about how to help parents of children with autism spectrum disorder develop greater parenting self-efficacy.What this paper adds?This study shows that parents gain a greater sense of parenting self-efficacy when they feel more involved in their child's therapy and are more satisfied with the training they receive as part of these therapies. We also find that feeling pressure related to being a caregiver of a child with autism spectrum disorder can undermine autism-specific parenting self-efficacy. However, parents' sense of confidence was not limited by the severity of their child's symptoms.Implications for practice, research, or policyThe results suggest that there is an opportunity to help parents develop a greater sense of confidence in their ability to manage the complexities of raising a child with autism spectrum disorder by helping them feel more involved in treatment and by creating intervention-related training experiences that are more satisfying. Providers might also help by taking time to address the challenges and pressures that parents are experiencing, and helping them find ways to deal with these challenges. We suggest that there needs to be more research exploring how providers can best design interventions that support autism-specific parenting self-efficacy as a way of improving parental and child well-being. En ligne : http://dx.doi.org/10.1177/1362361321990931 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals / Charli BABB in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1409-1421 Titre : 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals Type de document : Texte imprimé et/ou numérique Auteurs : Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur Article en page(s) : p.1409-1421 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483 [article] 'It's not that they don't want to access the support . . . it's the impact of the autism': The experience of eating disorder services from the perspective of autistic women, parents and healthcare professionals [Texte imprimé et/ou numérique] / Charli BABB, Auteur ; Janina BREDE, Auteur ; Catherine R. G. JONES, Auteur ; Mair ELLIOTT, Auteur ; Cathy ZANKER, Auteur ; Kate TCHANTURIA, Auteur ; Lucy SERPELL, Auteur ; Will MANDY, Auteur ; John R. E. FOX, Auteur . - p.1409-1421. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1409-1421 Mots-clés : Autism Spectrum Disorder  Autistic Disorder/therapy  Delivery of Health Care  Feeding and Eating Disorders/therapy  Female  Humans  Parents  anorexia nervosa  autism  co-occurrence  eating disorder services  females  qualitative research  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : This study explores autistic women's experiences of eating disorder services. About 20%-30% of people with anorexia nervosa are also autistic, and current treatments seem not to work as well for them. We interviewed 15 autistic women with experience of anorexia nervosa, 12 parents of autistic women with anorexia nervosa, and 11 healthcare professionals working in eating disorder services. We asked autistic women and parents about their experiences of eating disorder services, and we asked healthcare professionals about their experiences treating autistic women with anorexia nervosa. Participants' views were represented by three overall themes: misunderstanding autism and autistic traits, one treatment does not fit all, and improving accessibility and engagement within services. We found that autistic women face many barriers when in treatment for anorexia nervosa, often because of a lack of autism understanding within eating disorder services. Future research should look at developing anorexia nervosa treatments that can specifically help autistic individuals. En ligne : http://dx.doi.org/10.1177/1362361321991257 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=483

A co-twin-control study of altered sensory processing in autism / Janina NEUFELD in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1422-1432 Titre : A co-twin-control study of altered sensory processing in autism Type de document : Texte imprimé et/ou numérique Auteurs : Janina NEUFELD, Auteur ; Mark J. TAYLOR, Auteur ; K. LUNDIN REMNÉLIUS, Auteur ; Johan ISAKSSON, Auteur ; Paul LICHTENSTEIN, Auteur ; Sven BÖLTE, Auteur Article en page(s) : p.1422-1432 Langues : Anglais (eng) Mots-clés : Anxiety Disorders  Attention Deficit Disorder with Hyperactivity  Autism Spectrum Disorder  Autistic Disorder  Humans  Perception  autism spectrum disorders  behavioral genetics  environmental factors  sensory processing  sensory profile  twin design  potential conflicts of interest with respect to the research, authorship, and/or  publication of this article: S. B. discloses that he has in the last 3 years  acted as an author, consultant or lecturer for Medice, Roche. Hogrefe,  Kohlhammer, and UTB. Index. décimale : PER Périodiques Résumé : Individuals diagnosed with autism often describe that they process sensory information differently from others, and many experience sensory issues as problematic. For instance, an increased sensitivity to smells or sounds can make participating in social settings challenging. While sensory issues are now part of the diagnostic criteria for autism, they also co-occur with other psychiatric diagnoses such as attention deficit hyperactivity disorder and anxiety disorders. It is unclear to what extent the relationship between autism and alterations in sensory processing are due to genetics or environment. In addition, more research is needed on how autism, as compared to other diagnoses, is associated with sensory issues. Using a twin study, we found that genetic factors influenced self-reported reactivity to sensory stimuli in autism while environmental factors influenced other sensory issues (e.g. difficulties in detecting or differentiating sensory input). Hence, sensory hyper-reactivity might be an early onset core feature of autism, while other domains of alterations in sensory processing might develop later, influenced by the environment. Moreover, autism was more strongly associated with sensory issues related to increased sensitivity/reactivity as compared to other psychiatric diagnoses. However, attention deficit hyperactivity disorder was more strongly related to deficits in detecting/differentiating sensory stimuli and with an increased drive to seek sensory input. Our results indicate that sensory issues are not specific to autism, but that some aspects of altered sensory processing are more relevant for autism than for other diagnoses. En ligne : http://dx.doi.org/10.1177/1362361321991255 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] A co-twin-control study of altered sensory processing in autism [Texte imprimé et/ou numérique] / Janina NEUFELD, Auteur ; Mark J. TAYLOR, Auteur ; K. LUNDIN REMNÉLIUS, Auteur ; Johan ISAKSSON, Auteur ; Paul LICHTENSTEIN, Auteur ; Sven BÖLTE, Auteur . - p.1422-1432. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1422-1432 Mots-clés : Anxiety Disorders  Attention Deficit Disorder with Hyperactivity  Autism Spectrum Disorder  Autistic Disorder  Humans  Perception  autism spectrum disorders  behavioral genetics  environmental factors  sensory processing  sensory profile  twin design  potential conflicts of interest with respect to the research, authorship, and/or  publication of this article: S. B. discloses that he has in the last 3 years  acted as an author, consultant or lecturer for Medice, Roche. Hogrefe,  Kohlhammer, and UTB. Index. décimale : PER Périodiques Résumé : Individuals diagnosed with autism often describe that they process sensory information differently from others, and many experience sensory issues as problematic. For instance, an increased sensitivity to smells or sounds can make participating in social settings challenging. While sensory issues are now part of the diagnostic criteria for autism, they also co-occur with other psychiatric diagnoses such as attention deficit hyperactivity disorder and anxiety disorders. It is unclear to what extent the relationship between autism and alterations in sensory processing are due to genetics or environment. In addition, more research is needed on how autism, as compared to other diagnoses, is associated with sensory issues. Using a twin study, we found that genetic factors influenced self-reported reactivity to sensory stimuli in autism while environmental factors influenced other sensory issues (e.g. difficulties in detecting or differentiating sensory input). Hence, sensory hyper-reactivity might be an early onset core feature of autism, while other domains of alterations in sensory processing might develop later, influenced by the environment. Moreover, autism was more strongly associated with sensory issues related to increased sensitivity/reactivity as compared to other psychiatric diagnoses. However, attention deficit hyperactivity disorder was more strongly related to deficits in detecting/differentiating sensory stimuli and with an increased drive to seek sensory input. Our results indicate that sensory issues are not specific to autism, but that some aspects of altered sensory processing are more relevant for autism than for other diagnoses. En ligne : http://dx.doi.org/10.1177/1362361321991255 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Adults with autism spectrum disorder show atypical patterns of thoughts and feelings during rest / Sonja SIMPRAGA in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1433-1443 Titre : Adults with autism spectrum disorder show atypical patterns of thoughts and feelings during rest Type de document : Texte imprimé et/ou numérique Auteurs : Sonja SIMPRAGA, Auteur ; Ricarda F. WEILAND, Auteur ; Huibert D. MANSVELDER, Auteur ; Tinca J. C. POLDERMAN, Auteur ; Sander BEGEER, Auteur ; Dirk Ja SMIT, Auteur ; Klaus LINKENKAER-HANSEN, Auteur Article en page(s) : p.1433-1443 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Emotions  Humans  Imagination  Social Behavior  Surveys and Questionnaires  amsterdam resting-state questionnaire  autism  mind wandering  resting-state Index. décimale : PER Périodiques Résumé : Everyone knows the feeling of letting one's mind wander freely in a quiet moment. The thoughts and feelings experienced in those moments have been shown to influence our well-being-and vice versa. In this study, we looked at which thoughts and feelings are being experienced by adults with autism spectrum disorder and compared them to adults without autism spectrum disorder. In total, 88 adults with autism spectrum disorder and 90 adults without autism spectrum disorder were asked to rest for 5min with their eyes closed and let their mind wander. Directly after, they filled in the Amsterdam Resting-State Questionnaire, which probes what participants were feeling and thinking during the period of rest. We found that adults with autism spectrum disorder tend to think less about others, felt less comfortable, and had more disrupted thoughts during the rest compared to adults without autism spectrum disorder. Interestingly, autism spectrum disorder participants reporting lower levels of comfort during the rest also reported more autism spectrum disorder symptoms, specifically in social behaviors and skills, attention switching, and imagination. We propose to use the eyes-closed rest condition in combination with the Amsterdam Resting-State Questionnaire more widely to shed light on aberrant thoughts and feelings in brain disorders and to study the effect of therapeutic interventions. En ligne : http://dx.doi.org/10.1177/1362361321990928 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Adults with autism spectrum disorder show atypical patterns of thoughts and feelings during rest [Texte imprimé et/ou numérique] / Sonja SIMPRAGA, Auteur ; Ricarda F. WEILAND, Auteur ; Huibert D. MANSVELDER, Auteur ; Tinca J. C. POLDERMAN, Auteur ; Sander BEGEER, Auteur ; Dirk Ja SMIT, Auteur ; Klaus LINKENKAER-HANSEN, Auteur . - p.1433-1443. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1433-1443 Mots-clés : Adult  Autism Spectrum Disorder  Emotions  Humans  Imagination  Social Behavior  Surveys and Questionnaires  amsterdam resting-state questionnaire  autism  mind wandering  resting-state Index. décimale : PER Périodiques Résumé : Everyone knows the feeling of letting one's mind wander freely in a quiet moment. The thoughts and feelings experienced in those moments have been shown to influence our well-being-and vice versa. In this study, we looked at which thoughts and feelings are being experienced by adults with autism spectrum disorder and compared them to adults without autism spectrum disorder. In total, 88 adults with autism spectrum disorder and 90 adults without autism spectrum disorder were asked to rest for 5min with their eyes closed and let their mind wander. Directly after, they filled in the Amsterdam Resting-State Questionnaire, which probes what participants were feeling and thinking during the period of rest. We found that adults with autism spectrum disorder tend to think less about others, felt less comfortable, and had more disrupted thoughts during the rest compared to adults without autism spectrum disorder. Interestingly, autism spectrum disorder participants reporting lower levels of comfort during the rest also reported more autism spectrum disorder symptoms, specifically in social behaviors and skills, attention switching, and imagination. We propose to use the eyes-closed rest condition in combination with the Amsterdam Resting-State Questionnaire more widely to shed light on aberrant thoughts and feelings in brain disorders and to study the effect of therapeutic interventions. En ligne : http://dx.doi.org/10.1177/1362361321990928 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Camouflaging in an everyday social context: An interpersonal recall study / Julia COOK in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1444-1456 Titre : Camouflaging in an everyday social context: An interpersonal recall study Type de document : Texte imprimé et/ou numérique Auteurs : Julia COOK, Auteur ; Laura CRANE, Auteur ; Laura BOURNE, Auteur ; Laura HULL, Auteur ; William MANDY, Auteur Article en page(s) : p.1444-1456 Langues : Anglais (eng) Mots-clés : Adult  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder  Humans  Social Behavior  Universities  adults  autism spectrum disorders  qualitative research  social behaviour  social cognition Index. décimale : PER Périodiques Résumé : Many autistic people report that, despite personal costs, they use strategies to hide their autistic characteristics or appear non-autistic at work, school or university, when speaking with health professionals, or while socialising with certain friends and family members. These strategies are often referred to as camouflaging. This study explores camouflaging during everyday social interactions. A total of 17 autistic adults were filmed taking part in a common everyday social situation - a conversation with a stranger. They then watched the video of this conversation with a researcher and answered questions about camouflaging. These autistic people told us that they (1) had a strong desire to socialise with and be valued by other people but, because of negative past experiences, they often felt unsure about their ability to do so; (2) used camouflaging to help them to socialise and be valued by others; (3) experienced negative consequences when camouflaging (e.g. fatigue, anxiety and difficulties in friendships); and (4) sometimes socialised in more autistic ways instead of camouflaging. This study shows us how autistic people often change their behaviour because of the way they are treated by nonautistic people and that autistic people may benefit from programmes that help them to socialise in more authentically autistic ways, but only if their autistic social behaviour is met with understanding and acceptance from non-autistic people. En ligne : http://dx.doi.org/10.1177/1362361321992641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Camouflaging in an everyday social context: An interpersonal recall study [Texte imprimé et/ou numérique] / Julia COOK, Auteur ; Laura CRANE, Auteur ; Laura BOURNE, Auteur ; Laura HULL, Auteur ; William MANDY, Auteur . - p.1444-1456. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1444-1456 Mots-clés : Adult  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder  Humans  Social Behavior  Universities  adults  autism spectrum disorders  qualitative research  social behaviour  social cognition Index. décimale : PER Périodiques Résumé : Many autistic people report that, despite personal costs, they use strategies to hide their autistic characteristics or appear non-autistic at work, school or university, when speaking with health professionals, or while socialising with certain friends and family members. These strategies are often referred to as camouflaging. This study explores camouflaging during everyday social interactions. A total of 17 autistic adults were filmed taking part in a common everyday social situation - a conversation with a stranger. They then watched the video of this conversation with a researcher and answered questions about camouflaging. These autistic people told us that they (1) had a strong desire to socialise with and be valued by other people but, because of negative past experiences, they often felt unsure about their ability to do so; (2) used camouflaging to help them to socialise and be valued by others; (3) experienced negative consequences when camouflaging (e.g. fatigue, anxiety and difficulties in friendships); and (4) sometimes socialised in more autistic ways instead of camouflaging. This study shows us how autistic people often change their behaviour because of the way they are treated by nonautistic people and that autistic people may benefit from programmes that help them to socialise in more authentically autistic ways, but only if their autistic social behaviour is met with understanding and acceptance from non-autistic people. En ligne : http://dx.doi.org/10.1177/1362361321992641 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Autistic adults' subjective experiences of hoarding and self-injurious behaviors / Yael GOLDFARB in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1457-1468 Titre : Autistic adults' subjective experiences of hoarding and self-injurious behaviors Type de document : Texte imprimé et/ou numérique Auteurs : Yael GOLDFARB, Auteur ; Osnat ZAFRANI, Auteur ; Darren HEDLEY, Auteur ; Maya YAARI, Auteur ; Eynat GAL, Auteur Article en page(s) : p.1457-1468 Langues : Anglais (eng) Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Cognition  Hoarding  Humans  Self-Injurious Behavior  Repetitive and Restrictive Behaviors and Interests  adults  autism spectrum disorder  hoarding  self-injurious behaviors  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Hoarding and self-injurious behaviors are relatively common in autism, but knowledge about their expressions in adulthood is scarce. Through interviews collecting subjective experiences of autistic adults, these behaviors were explored, and categorized to their underlying purposes. Findings portray the occurrence of these behaviors in the lives of autistic adults, their self-regulatory purposes, and their relationship to other behaviors in the domain of Restrictive and Repetitive Behaviors and Interests. En ligne : http://dx.doi.org/10.1177/1362361321992640 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Autistic adults' subjective experiences of hoarding and self-injurious behaviors [Texte imprimé et/ou numérique] / Yael GOLDFARB, Auteur ; Osnat ZAFRANI, Auteur ; Darren HEDLEY, Auteur ; Maya YAARI, Auteur ; Eynat GAL, Auteur . - p.1457-1468. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1457-1468 Mots-clés : Adult  Autism Spectrum Disorder  Autistic Disorder  Cognition  Hoarding  Humans  Self-Injurious Behavior  Repetitive and Restrictive Behaviors and Interests  adults  autism spectrum disorder  hoarding  self-injurious behaviors  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Hoarding and self-injurious behaviors are relatively common in autism, but knowledge about their expressions in adulthood is scarce. Through interviews collecting subjective experiences of autistic adults, these behaviors were explored, and categorized to their underlying purposes. Findings portray the occurrence of these behaviors in the lives of autistic adults, their self-regulatory purposes, and their relationship to other behaviors in the domain of Restrictive and Repetitive Behaviors and Interests. En ligne : http://dx.doi.org/10.1177/1362361321992640 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Demographic and psychological predictors of alcohol use and misuse in autistic adults / Maya BOWRI in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1469-1480 Titre : Demographic and psychological predictors of alcohol use and misuse in autistic adults Type de document : Texte imprimé et/ou numérique Auteurs : Maya BOWRI, Auteur ; Laura HULL, Auteur ; Carrie ALLISON, Auteur ; Paula SMITH, Auteur ; Simon BARON-COHEN, Auteur ; Meng-Chuan LAI, Auteur ; William MANDY, Auteur Article en page(s) : p.1469-1480 Langues : Anglais (eng) Mots-clés : Adult  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder  Demography  Humans  Male  Mental Health  adult outcomes  adults  alcohol use  autism spectrum disorders  substance misuse  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Alcohol use and misuse are associated with a variety of negative physical, psychological and social consequences. The limited existing research on substance use including alcohol use in autistic adults has yielded mixed findings, with some studies concluding that autism reduces the likelihood of substance use and others suggesting that autism may increase an individual's risk for substance misuse. This study investigated demographic and psychological predictors of alcohol use and misuse in a sample of 237 autistic adults. An online survey was used to obtain data on demographic information, autistic traits, depression, generalised anxiety, social anxiety, mental well-being, social camouflaging and alcohol use. The sample was divided into three groups (non-drinkers, non-hazardous drinkers and hazardous drinkers) in order to investigate associations between alcohol use and demographic factors, autistic traits, mental health variables and social camouflaging. Our results demonstrated a U-shaped pattern among autistic adults, with non-drinkers and hazardous drinkers scoring higher than non-hazardous drinkers on levels of autistic traits, depression, generalised anxiety and social anxiety. Autistic non-drinkers were less likely to be male and had more autistic traits. Gender and level of autistic traits may be the most significant factors in predicting alcohol use in the autistic community. En ligne : http://dx.doi.org/10.1177/1362361321992668 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Demographic and psychological predictors of alcohol use and misuse in autistic adults [Texte imprimé et/ou numérique] / Maya BOWRI, Auteur ; Laura HULL, Auteur ; Carrie ALLISON, Auteur ; Paula SMITH, Auteur ; Simon BARON-COHEN, Auteur ; Meng-Chuan LAI, Auteur ; William MANDY, Auteur . - p.1469-1480. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1469-1480 Mots-clés : Adult  Anxiety Disorders  Autism Spectrum Disorder  Autistic Disorder  Demography  Humans  Male  Mental Health  adult outcomes  adults  alcohol use  autism spectrum disorders  substance misuse  conflicts of interest with respect to the research, authorship, and/or  publication of this article. Index. décimale : PER Périodiques Résumé : Alcohol use and misuse are associated with a variety of negative physical, psychological and social consequences. The limited existing research on substance use including alcohol use in autistic adults has yielded mixed findings, with some studies concluding that autism reduces the likelihood of substance use and others suggesting that autism may increase an individual's risk for substance misuse. This study investigated demographic and psychological predictors of alcohol use and misuse in a sample of 237 autistic adults. An online survey was used to obtain data on demographic information, autistic traits, depression, generalised anxiety, social anxiety, mental well-being, social camouflaging and alcohol use. The sample was divided into three groups (non-drinkers, non-hazardous drinkers and hazardous drinkers) in order to investigate associations between alcohol use and demographic factors, autistic traits, mental health variables and social camouflaging. Our results demonstrated a U-shaped pattern among autistic adults, with non-drinkers and hazardous drinkers scoring higher than non-hazardous drinkers on levels of autistic traits, depression, generalised anxiety and social anxiety. Autistic non-drinkers were less likely to be male and had more autistic traits. Gender and level of autistic traits may be the most significant factors in predicting alcohol use in the autistic community. En ligne : http://dx.doi.org/10.1177/1362361321992668 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

A multimethod approach to assessing motor skills in boys and girls with autism spectrum disorder / Alessandro CRIPPA in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1481-1491 Titre : A multimethod approach to assessing motor skills in boys and girls with autism spectrum disorder Type de document : Texte imprimé et/ou numérique Auteurs : Alessandro CRIPPA, Auteur ; Francesco CRAIG, Auteur ; Silvia BUSTI CECCARELLI, Auteur ; Maddalena MAURI, Auteur ; Silvia GRAZIOLI, Auteur ; Nicoletta SCIONTI, Auteur ; Alice CREMASCOLI, Auteur ; Camilla FERRANTE, Auteur ; Chiara VISIOLI, Auteur ; Gian Marco MARZOCCHI, Auteur ; Massimo MOLTENI, Auteur ; Maria NOBILE, Auteur Article en page(s) : p.1481-1491 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder  Child  Female  Humans  Male  Motor Skills  Quality of Life  Sex Factors  autism spectrum disorder  kinematics  motion capture  sex differences Index. décimale : PER Périodiques Résumé : Motor peculiarities are often reported in children with autism spectrum disorder and may predict subsequent adaptive functioning and quality of life. Although the sex bias in the prevalence of the disorder is well documented, little is known about differences in motor profile in males and females with autism spectrum disorder. Our goal was to study differences in motor functioning of boys and girls with autism spectrum disorder aged 3-11years compared with typically developing children. Their motor performances were evaluated using a multimethod approach, including standardized motor tests, caregiver reports, and a detailed motion capture analysis of a simple reach-to-drop movement. We found that, irrespective of sex, children with autism spectrum disorder had worse scores than typically developing children on standardized tests and on caregiver reports. Interestingly, girls with autism spectrum disorder, but not boys, presented altered motor anticipation in reach-to-drop. Our findings emphasize the need for more sex-specific assessment of motor function in autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361321995634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] A multimethod approach to assessing motor skills in boys and girls with autism spectrum disorder [Texte imprimé et/ou numérique] / Alessandro CRIPPA, Auteur ; Francesco CRAIG, Auteur ; Silvia BUSTI CECCARELLI, Auteur ; Maddalena MAURI, Auteur ; Silvia GRAZIOLI, Auteur ; Nicoletta SCIONTI, Auteur ; Alice CREMASCOLI, Auteur ; Camilla FERRANTE, Auteur ; Chiara VISIOLI, Auteur ; Gian Marco MARZOCCHI, Auteur ; Massimo MOLTENI, Auteur ; Maria NOBILE, Auteur . - p.1481-1491. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1481-1491 Mots-clés : Autism Spectrum Disorder  Child  Female  Humans  Male  Motor Skills  Quality of Life  Sex Factors  autism spectrum disorder  kinematics  motion capture  sex differences Index. décimale : PER Périodiques Résumé : Motor peculiarities are often reported in children with autism spectrum disorder and may predict subsequent adaptive functioning and quality of life. Although the sex bias in the prevalence of the disorder is well documented, little is known about differences in motor profile in males and females with autism spectrum disorder. Our goal was to study differences in motor functioning of boys and girls with autism spectrum disorder aged 3-11years compared with typically developing children. Their motor performances were evaluated using a multimethod approach, including standardized motor tests, caregiver reports, and a detailed motion capture analysis of a simple reach-to-drop movement. We found that, irrespective of sex, children with autism spectrum disorder had worse scores than typically developing children on standardized tests and on caregiver reports. Interestingly, girls with autism spectrum disorder, but not boys, presented altered motor anticipation in reach-to-drop. Our findings emphasize the need for more sex-specific assessment of motor function in autism spectrum disorder. En ligne : http://dx.doi.org/10.1177/1362361321995634 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Enhancing developmental-behavioral pediatric rotations by teaching residents how to evaluate autism in primary care / Jeffrey F. HINE in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1492-1496 Titre : Enhancing developmental-behavioral pediatric rotations by teaching residents how to evaluate autism in primary care Type de document : Texte imprimé et/ou numérique Auteurs : Jeffrey F. HINE, Auteur ; Liliana WAGNER, Auteur ; Rachel GOODE, Auteur ; Verity RODRIGUES, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Amy WEITLAUF, Auteur ; Zachary WARREN, Auteur Article en page(s) : p.1492-1496 Langues : Anglais (eng) Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Curriculum  Humans  Internship and Residency  Primary Health Care  Surveys and Questionnaires  autism spectrum disorder  primary care  resident training  interest with respect to research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Most physician preparation programs do not provide enough practical experiences in autism-related care. This is especially true for how to assess for and diagnose autism. Without this training, many pediatricians are not well prepared to implement appropriate care for children with autism and their families. We designed a curriculum to improve training for medical residents that involved explicit hands-on training in diagnostic identification and care coordination for toddlers at risk for autism. We collected data to assess whether our enhanced curriculum led to increased comfort level across recommended practice behaviors. Almost all the residents were able to complete the training within their rotation and our surveys indicated significant increases in residents feeling more comfortable identifying symptoms of autism, providing feedback about diagnostic decisions, and effectively connecting families with services. A significant majority of residents considered it appropriate or very appropriate for children to receive a diagnosis solely from a primary care provider. Our results suggest feasibility of the enhanced model, and this project reflects the first step in advancing incorporation of autism training into pediatric residency programs. En ligne : http://dx.doi.org/10.1177/1362361320984313 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Enhancing developmental-behavioral pediatric rotations by teaching residents how to evaluate autism in primary care [Texte imprimé et/ou numérique] / Jeffrey F. HINE, Auteur ; Liliana WAGNER, Auteur ; Rachel GOODE, Auteur ; Verity RODRIGUES, Auteur ; Julie LOUNDS TAYLOR, Auteur ; Amy WEITLAUF, Auteur ; Zachary WARREN, Auteur . - p.1492-1496. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1492-1496 Mots-clés : Autism Spectrum Disorder/diagnosis  Autistic Disorder/diagnosis  Curriculum  Humans  Internship and Residency  Primary Health Care  Surveys and Questionnaires  autism spectrum disorder  primary care  resident training  interest with respect to research, authorship, and/or publication of this  article. Index. décimale : PER Périodiques Résumé : Most physician preparation programs do not provide enough practical experiences in autism-related care. This is especially true for how to assess for and diagnose autism. Without this training, many pediatricians are not well prepared to implement appropriate care for children with autism and their families. We designed a curriculum to improve training for medical residents that involved explicit hands-on training in diagnostic identification and care coordination for toddlers at risk for autism. We collected data to assess whether our enhanced curriculum led to increased comfort level across recommended practice behaviors. Almost all the residents were able to complete the training within their rotation and our surveys indicated significant increases in residents feeling more comfortable identifying symptoms of autism, providing feedback about diagnostic decisions, and effectively connecting families with services. A significant majority of residents considered it appropriate or very appropriate for children to receive a diagnosis solely from a primary care provider. Our results suggest feasibility of the enhanced model, and this project reflects the first step in advancing incorporation of autism training into pediatric residency programs. En ligne : http://dx.doi.org/10.1177/1362361320984313 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484

Corrigendum to Exploring the health of families with a child with autism in Autism, 26-5 (July 2022)  

Public ISBD [article]  inAutism > 26-5 (July 2022) . - p.1497-1498 Titre : Corrigendum to Exploring the health of families with a child with autism Type de document : Texte imprimé et/ou numérique Article en page(s) : p.1497-1498 Langues : Anglais (eng) Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613211027494 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484 [article] Corrigendum to Exploring the health of families with a child with autism [Texte imprimé et/ou numérique] . - p.1497-1498. Langues : Anglais (eng) in Autism > 26-5 (July 2022) . - p.1497-1498 Index. décimale : PER Périodiques En ligne : http://dx.doi.org/10.1177/13623613211027494 Permalink : https://www.cra-rhone-alpes.org/cid/opac_css/index.php?lvl=notice_display&id=484